Jeanette 's Journal

Jeanette Davidson   She's expected to be born August 10. I am beyond excited. Thank you all for your love and support ! Has been an emotional roller coaster .
Many surgeons including Dr Svensson would really not want to open my chest up again because of all the radiation damage. So I can now feel some relief !!!

Catie B  I know it's been super stressful, Jeanette! I wish you didn't have to deal with this, but I'm thankful it's not time now. I hope you have a wonderful trip!

Eric Linnenburger  Congratulations! That's great news!! Best part is, you can feel good knowing that the recommendation is coming from one of the best.

Jeanette Davidson   Yeah ERIC , that brings me lots of confidence and peace. In retrospect I would've gone there for my AVR two years ago . I had so much radiation damage to my chest. I would recommend anyone that has some complications to go to the best !
I guess we live and learn as we proceed. I don't believe in looking back so I will proceed with strength faith and gratitude as I move forward ❤️❣️

Judy Stokes  Praise God!! Go and enjoy that new granddaughter, they make you forget all your problems!!! I m having TAVR. At cc and I'll let you know how it is. Keep in touch

MaryAnne Jardis  So happy to read the news!! Now just put all of that aside and trust in God to guide you for the future and really enjoy the next month and beyond with your new granddaughter. So happy for this news!! Love from your heart sister💜💖❤️💕

Patrick Dowd  Such very good news and the granddaughter visit caps it all. I have one teen granddaughter visiting us this week. They are such a joy! Happy for you Jeanette.

Laura Jacobs  So happy for you Jeanette!!! Great news! Congratulations on the new granddaughter. You are going to have so much fun!!!

Joseph Freeman  Fantastic news! Similarly, I've welcomed my new granddaughter in April of this year, a week after my ohs. Watching her smile is the world's best medicine. The Lord is so good and merciful!

Sherry Nichols  Just wonderful news!!!! God is so AWESOME!!! I pray the God continue to bless you!!!!!Enjoy your trip and the new granddaughter!!!!

Catie B  Oh my! Great news, but it's all been so stressful. Hope you get confirmation of what the NP said very soon.

Sherry Nichols  That's wonderful Jeanette!!!! Continuously praying for you my sister!! (Lol) we're on the biggest roller coaster ever hold on!!! 😁

pam williams  Wonderful news Jeanette so glad ,now relax and enjoy your summertime,I love the photograph of your mom and dad with you its beautiful take care

MaryAnne Jardis  So glad for you that you got an answer and can put this behind you for now. Good thing you pursued another opinion!! Happy happy for you!!

Patrick Dowd  Wonderful news Jeanette! Yesterday was my 2 yr Valversary. Quite an emotional day...lots of flashback memories ...good and bad. Worked hard physically all day (proving myself I guess). Had Church choir rehearsal last night, damn if the director didn't have us practice Precious Lord... couldn't quite make it through.... Choke...choke. I know you'll understand.💓

Laura Jacobs  Patrick - while I cannot imagine the joy of being two years out, I can certainly imagine all the emotions that must come flooding back on the anniversary of such a monumental event in our lives. We are all so lucky that medical science is what it is today!

Phyllis Petersen  I missed some parts of your story this last month, so was surprised by this posting. Praying that all goes well and that you get a clear idea of what's happening and what's next. It has to be horrible to have life up in the air like this.

Jeanette Davidson   Thanks Phyllis. It's challenging to know that the surgery didn't turn out the way you expected to. I have faith and confidence that they will be able to repair it and I can go on living a healthy productive life !💓

Phyllis Petersen  I hope that they can doing things in some minimal fashion, so you don't have to go through full sternotomy, etc. all over again. Feel free to vent when you need to. This is a group that can understand.

Rita Savelis  Yeah, I found the operating report really interesting as I was unaware of the "challenges" my surgery posed, and the unexpected glitches (all solved before I woke up).
Here in France you don't leave hospital until you are given written reports of your surgery, your stay in ICU, your stay in hospital...

Sending you good wishes Jeanette.

Jeanette Davidson   Thanks all for your support. You warm my heart!💓I will breath easily once I get the next phone call. Until then she said get back to exercise and I am living!!💕

Martha Dean  Thanks for starting this. I was stage II, diagnosed in June 1993 at the age of 23. I had ABVD and MOPP chemo with 6 weeks of radiation in between. My heart journey started about 7-8 years ago with palpitations and then took off from there. I had a heart attack in 2015. And now I'm preparing for double valve replacement with a double bypass on the 13th. I call it one stop shopping. I hope.

Jeanette Davidson   I had Stage 2 . February 1996, I was 34. I had my spleen removed.I had full radiation to my lymphatic system. My main tumor was in my chest. I had a triple bypass and valve replacement in July, 2015. My new valve has severe leakage now and I am preparing and gaining information regarding a Second valve replacement surgery .

Rita Savelis  Well I was too young to know my stage. It was 1976-1977 and I was 15. I had terrible MOPP chemo and radiation in between where my skin burned like a bad sunburn. I had a lymph node in my neck removed and my spleen was removed. Since then I've had my thyroid out because of nodules and 2 small breast cancers and numerous pre cancerous skin cells removed from my chest area. My heart problems were discovered at age 48 and I had 3 damaged valves replaced and repaired in 2015 at age 54. I naively thought that that type of radiation treatment had much improved since the 1970's, and was saddened to learn that it still can cause heart damage. If you google search adult survivors of childhood Hodgkin's, you can see all the possible future side effects of the treatment that saved our lives. I was lucky because my surgeon in France was specialised in surgery on former cancer patients like me with much intérieur scarring on the lungs and heart. I have always felt like I was closely monitored, but what a drag to be a patient so many times.
I think about you a lot Jeannette and what a trooper you are. Keep up the posts on your valves. Lots of love to you.

Mary Rodriguez  I had Stage 1. Diagnosed in Nov. 1989. Had spleen removed. Only received radiation no chemo. Have since had breast cancer from the radiation now aortic stenosis.

Andria Pugh  1989 radiotherapy only stage 2 and in the last month had a new aortic valve due to aortic stenosis caused by the radiotherapy

Barbara Wood  Not a Hodgkins, but left side breast cancer stage 3. My surgeon felt my mitral valve damage was caused by radiation- also arrhythmias.

Jeanette Davidson   I find it interesting that most of us are stage two. And I understand that means the cancer was above the diaphragm . Predominantly in the chest area, therefore leading to heart damage. I was completely unaware that this could be a result years later. Any of You?

Rita Savelis  Yes. I knew I had a big chance of breast cancer and mammograms began very early. When I researched I found scientific papers about all the effects. This was many years later. I don't know what was known in the 70's. Patients died from Hodgkin's then. But it's not like doctors will tell one everything that may happen. One problem at a time. In the same way one doesn't hear about OHS later effects. It's a question of time and having cancer when you're young means time for heart damage to appear. My OHS surgeon told me that my being underweight had allowed my heart to carry on longer under extreme damage conditions. I think there are some US hospitals with departments working specifically on this kind of surveillance and follow up of those who had cancer early. Ultimately, alas, knowing doesn't help that much, because both cancer and heart disease will happen to too many people no matter what their pasts.

Catie B  Jeanette, I'm glad you can take your time. My surgery at CC was 9/29/16. The three Cleveland Clinic surgeons at the top of my list, if I needed a redo and could return there, are Lars Svensson, Gosta Pettersson and Eric Roselli. You can read their credentials and patient testimonials here or on the Cleveland Clinic site. My surgeon was Dr. Gosta Pettersson and while I was in Cleveland, several nurses told me if they needed heart surgery, he is who they'd pick. The day before my surgery, Dr. Pettersson operated on a man who'd had four prior open heart surgeries. Dr. Lars Svensson has years and years of top-notch experience. All three perform many high-risk redo operations. I can't speak about the radiation aspect, but if you call CC and speak with one of the practice manager nurses who work with one of these surgeons, they should be able to steer you in the right direction. Vicky Anderson helps Dr. Pettersson's patients--hopefully she could advise you if one of their cardiothoracic surgeons has more experience with patients who've had radiation treatment. I believe her number is 216-444-2480.

Janice Smith  Jeanette, Dr. Lars Svensson at CC did my AVR and aortic aneurysm 09/09/2014. Have a bovine bicuspid valve, and now have a moderate to severe leak. Dr. Svensson's office will be calling me to make an appointment. CC and Dr. Svensson is where I want to be again if I have another problem. Prayers for you.

Marie Myers  It sounds like you are making a good decision. Yours is a complicated situation . Best wishes for a great outcome!

Andria Pugh  Wow its so diificult to go through this when clearly directed what to do so taking control yourself is an added pressure, well done Jeanette for making this decision. My thoughts are with you and hopes that you get all the answers you need to plan your future xx

Shannon Gray  The CC was where I went for my surgery..the focus was on my aortic aneurysm, although I have a bicuspid valve. Dr Svennson was my surgeon....I wouldn't go anywhere else. I had complications before I came home, and was so thankful to have still been in Cleveland so I was there and could immediate help. Dr.. Svennson smiled at me the morning before I was discharged ( I was in the hospital both times combined for over three weeks) and he said I was finally sounding happy, so it must be time for me to head home.

MaryAnne Jardis  HI Jeanette
I think Cleveland Clinic sounds like the place to go. I am sure they have done all kinds of cases similar to yours and can lead you to the person who is most skilled in that situation. I wish you all the best and am here as your heart sister to help you along!!
Love and all the best to you my friend!
Mary Anne

Cathleen Weed  When I had aortic regurgitation I had the symptoms you are describing...extreme shortness of breath and fatigue. When I had stenosis (before TAVR) I hardly felt anything other than heart palpitations.

Robert Osmachenko  You are allowed to feel frustrated and emotional and it's valid. I always understood stenosis (calcification) of the valve to be linked to regurgitation directly because the stenosis causes the blood to pool because of ineffective pumping (regurgitation). This develops into higher pressures, and low ejection fraction numbers and is the reason to use blood thinners in that it prevents clotting of the stagnant blood until it can get moved along (enough said).
I'm confused about a few things in your posts. In the last post you state there is "time" to pinpoint the problem and the medical staff are conducting all of these diagnostics but at the same time you are not feeling well and know something is not right.
Well.... there is something wrong and many times one cannot pinpoint it until there is an operation so why are they not operating with planned contingencies in place? Is this an insurance thing? Is someone not putting the data together to develop a picture of "what is going on"?
Thoughts and prayers coming your way.

Rita Savelis  As always, Jeanette, I hear you on having a complicated diagnosis. It's difficult when doctors are confused and divided and you feel like you might even know more about your problem. AAAAAHHHHH!!!
I still feel that they are doing their best with this complex situation, and wish for it to be resolved as soon as possible. Much empathy with you. Take care.

Shannon Gray  Wishes for a swift resolution and peace for you. The roller coaster is enough! Is there any way to get more information so a plan can be made?

Jeanette Davidson   Thank you everyone for your support. Robert , it definitely does sound confusing. I apologize and I am not very verbose ,!so I don't go into great detail. Yes , there is an insurance issue so that is limiting to where I can have my procedure/surgery. My initial diagnosis was six weeks ago, and unfortunately I have been declining since then particularly with shortness of breath. The surgery was set to go, and the valve team unfortunately the last minute could not agree as to it being an X ternal or an internal Leak. Therefore, a decision has to be made about how to approach getting a new valve. I am in process this week of presenting my case to various vascular professionals. Interventional cardiologists, medical cardiologist, and cardiac surgeons as well as my surgeon who replaced my valve 20 months ago. We will then have to see what the consensus is. No one could be 100% sure at this time because my studies are very difficult to interpret because of all the scarring and radiation damage. I trust and respect all of you on the site and I am open to any input, constructive criticism, and assistance. With love❤️💓💞

Amy Steele  Jeanette, I too had aortic regurgitation prior to AVR surgery. I had extreme shortness of breath and fatigue. I also had a lot of palpitations. Hope this helps.

Amy Steele  No, you're not alone or crazy. I certainly hope that the doctors can get a clearer picture of what's going on so that you can feel better! You're in my prayers.

Robert Osmachenko  We have a running joke around here that one can lay all of the professionals end to end and they still couldn't reach a decision. Meanwhile (figuratively) you are laying in your bed clinging to life. I hope someone "takes the bull by the horns" and gets on with it for your sake and sanity.
It really has come to this, hasn't it?
Love and light.

Patrick Dowd  Back from a wonderful trip and checked in to the site today hoping for you to be finished and on the mend. Prayers and positive energy go out to you every day in this very frustrating time. I'm sure you just want to have the exact answer and be on with it. Well it is most likely they will go in visualize exactly what's up, fix it and get you back to your old self. Meanwhile, you continue with cross country support and best wishes.

Patrick Dowd  PS I'm still hoping for a TAVR for you but with poor visualization it is likely they might go the old fashioned way with more confidence.

Sherry Nichols  Hi Jeanette!!!! Do you remember me? It's been a while. You helped me so much prior to my surgery by being encouraging and spiritually inspirational. After reading your journals, I'm so sorry to hear that you're going through so much. I too have some of the same symptoms you're describing. We truly have a lot in common. (please read my journals) You're not alone my heart sister. I will keep you lifted up in prayer.

Eddie Patton  Wow, just wow. What a rollercoaster. I know you are strong but this has to be wearing you out emotionally. I feel for you.

Jeanette Davidson   Thank you it has been hard and I know God has a plan for me. Back to my original surgeon on Monday hope to get some information and input from him .

  Although this sounds so very difficult to endure, your surgeons are being really thorough. Sending you positive energy and prayers for the best solution to come very soon. I can only imagine how frustrated you must feel.

Clare Auten  Saying prayers for you. Your faith, family and attitude, as well as all of us, are here to support you.

Petey Bello  Prayers are with you & your family as you continue through this heart journey. Thankfully your surgeons are taking the proper time needed to make sure you all make the right decisions! God Bless

Rita Savelis  Oh, Jeannette, you are holding up very well. With a complicated situation like yours (scarring and radiation damage... I can relate), the positive side is that when you have complex problems there are usually many doctors working together to come up with solutions to those complex problems...
Wishing you some good sleep in your own bed.
Take care.

Steve Salvador  “When I felt my feet slipping, you came with your love and kept me steady. And when I was burdened with worries, you comforted me and made me feel secure.” Psalms 94:18-19 (CEV) (this was sent to me in my email, I guess it was meant for you)

Marie Myers  Sorry to hear about this new bump in the road. I hope the docs can come to a decision that is right for you. Thinking about you!

MaryAnne Jardis  Hello Heart Sister!
I know this delays things, but better to make the right decision . Trust in the process and God will be with you every step of the way. Thinking of you and wishing you peace and patience in the weeks to come.
xoxoxo

Enrique K  All the best to you Jeanette! You are making the right decision. I will pray for you and will send positive energy for a quick recovery when you have your procedure done. For now go and get some much needed rest. There is no place like home:)

Catie B  So much stress! My the Lord bring wisdom and clarity to your situation and to each physician, along with peace to your soul, Jeanette.

Enrique K  Hi Jeanette, lovely and beautiful words of wisdom. Send you a big hug, vibes and prayers go out to you my dear friend. Your positive attitude goes along way and I know your TAVR procedure will be a complete success. Take Care and can't wait to hear from you after your uneventful surgery.

Vicki Woschnick  Jeanette, you're amazing! Your positive energy is just the boost I need to keep the faith going into my aortic valve replacement on May 16. Thank you for the post! My thoughts and prayers are with you as you continue your journey.

MaryAnne Jardis  Heart sister my thoughts will be centered around you this week as you get well again. Peace and many blessings to you.
Keep that new grandchild soon to be here as a positive thought and goal for you!💜

Andria Pugh  Good luck jeanette my AVR is scheduled for 16th May so on countdown and just want to get it over with. I think i am more worried about having all the tubes and pipes hanging off me when i wake up as im not a good patient. The mouth tube is freeking me out.
Its so encouraging to see your and others strength through all of this.
Ive chosen a mechanical valve as want to reduce the possibility of further surgery but its a personal choice.

Enrique K  Hi Jeanette! I'm so sorry you have to go through this again. I know it's hard to swallow but you are in the right place to get the support that you need. The best person that can tell you all about TAVR is Cathleen DeWitt. Go ahead and send her a direct message in her guest book. Hope this helps.

Enrique K  Hi Jeanette, I see your post to Cathleen. I wish you the best and if you need any advice let me know.

Enrique K  Jeanette, this doctor replaced Dr. Jospeh Lamelas at Mt. Sinai who is in Miami Beach, FL. It appears he does a lot of TAVR procedures. Check it out.

https://www.msmc.com/doctor/steve-xydas/

Jeanette Davidson   Enrique what a rapid responder you are!!!! Woohoo! I will check him out tomorrow. Thx again ...so glad I decided to get on the blog tonight 👍🏻

Clare Auten  Jeanette, I am sorry to hear this news but will pray you find the right surgeon and are back on the road to recovery soon.

Rita Savelis  Oh, Jeanette. I am so sorry that you have to go through this again. It's so unfair after all you've been through. You've always had a great attitude, but this is shocking, as you say. You are in my thoughts, and I am glad that Enrique has given you some positive advice. Take care.

Shannon Gray  Our thoughts and prayers are with you as seek Dr.'s to help you. I'm so sorry, but it sounds like you are on a great path to find help. Wishing you the best!

Eddie Patton  Oh Jeanette so terribly sorry to hear this. We had our surgeries close together. I can't imagine the frustration. Hang in there. Positive vibes coming your way.

Eddie Patton  Will do Jeanette. If I remember correctly, you went through quite a bit before your last surgery. I admire your attitude after all of that and now this. I would be at my wits end.

Eddie Patton  Jeanette I do have a question and you are the first I have experienced that might be able to answer. I hope you don't mind and I certainly don't mean to add pressure to what you're already going through. this is something I thought about quite a bit. My understanding is TAVI is a one time thing. That being the case if you need a replacement and you base the longevity at say 15 years. If you are at an age where you are likely to out live the tavr replacement should you opt for a traditional ohs now and look at tavr down the road? I hate to ask this of you but it's something I think about quite a bit. it would be great to get the thoughts of someone actually in that situation.

Jeanette Davidson   From what I've learned Thus far Eddie that they've shared with us that TAVR is going to be the way of the future. They not only can do it now, but will be able to do a second surgery if I need it down the road. I kind of thought the same thing and thought maybe they should just do a mechanical valve. It's way too close to my surgery and would be too dangerous. That's what I know as of today seeing the surgeon on Thursday and will know more .
Thanks for your question and stay in touch ! We are all here to help each other❤️

  Jeanette I was wondering if you are maybe a candidate for a TAVR procedure because of your previous Cancer and subsequent treatments etc.... Not sure if this even interests you but it is surely worth talking to your Dr. about if you would be comfortable with it. If not maybe a Mechanical Valve?? I chose an On-X Mechanical Valve for my Aortic Replacement and I have to say the Coumadin is not a big hassle FOR ME at least. I keep my diet pretty much the same and eat real clean. Anyway just wanted to share my thoughts with you to give you my perspective on things. I wish you nothing but the best my friend. God Bless

Jeanette Davidson   Really good points KEITH. Until I get an echo I really won't know what's going on. Hopefully I won't have to have another surgery. But TAVR would be great
If so. Thanks for your support . Keep your fingers crossed for me!😘

Rita Savelis  Jeanette, so lovely to see a post from you and to hear that you and your heart/cancer sister-friend, Mary Anne, are doing well.
I have thought of you often since 2015.
Take care.

Rita Savelis  I'm doing well Jeanette, thanks. That first year after surgery was hard. Now as I head towards my 2nd anniversary I feel better. It takes time, as you know, and then you wake up one day and you've processed it ....
Take care.

Rita Savelis  So nice to hear an update from you Jeannette. Congratulations on your intense year. Have a fabulous peaceful summer!

Lilly Black  Congratulations and happy anniversary! when I had mine, it was a great feeling to meet that goal. Very happy for you, Jeanette!

Kelly Weisgarber  Hope you feel better soon, its hard to know what is a normal part of recovery and what is concerning. I'm happy you got some answers.

pino correale  Hi Jeanette, thanks for your story and above all your sincerity. I am sure going through OHS we all experience different emotions and pain of some kind. I am 6weeks post/op and i also had a few headaches in the ""anxiety"" area of things. I am having them addressed as well.For two full weeks after i came home, i couldn't sleep at all !!!!!
So. being desperate for a good night's sleep, i had to ask for help. Help came.......and i am slowly getting better. You are definitely doing the right thing.I wish you well. If you have the need to talk or communicate this is my email;
pinocorreale@hotmail.com

Eddie Patton  Hey Jeanette glad you are doing well physically. Sounds like a form of PTSD, had that diagnosis myself. We Had Our Surgeries Close together so we seem to be tracking together. Physically fine, emotionally shaky at times. Look for help if needed. I did for a bit but like most things it is getting better with time. Good luck.

Jeanette Davidson   Thank you Eddie. You have always been such a great support to me. I guess we all have a pinches in recovery that we have to work through. I consider myself lucky. All the best to you heart friend !💕

  Best wishes, Jeanette and congrats on your bereavement ministry. Have you ruled out medical reasons for the dizzy spells? Are you getting palpitations? I used to get them before surgery and they worsened with my anxiety. I would do relaxation breathing and that helped. You have probably reported that to your cardiologist. these surgeries are definitely traumatic! I am so thankful for this website!!

Sheila Harrison  Wow this is good info, I am 4 mos post op and starting back to work, my anxiety is over the top. Are you having any memory issues?

Jeanette Davidson   Yes Sheila!
Thanks Laura! I will discuss it much further with both my Primary Care and Cardiologist when I see them this month. Thanks for your support!

Lilly Black  Jeanette, I know how you feel. Although I didn't have a stroke, I have had 2 open heart surgeries. PTSD has been hitting me left and right! Life is hard enough but dealing with this huge life experience is tough! I am with you on using a little help with Xanax. I have been using Ativan on the days that I am anxious, but I don't want to be reliant on it on a daily basis. Generally I have been doing really well physically, but emotionally still a bit up and down. I get up every morning before work and walk for 30 minutes before work. It really helps me! but I believe it takes longer to recover emotionally. There is always a fear of something happening again. More doctors, more surgery and so on. You are doing the right thing by bringing it out in the open....we all need to know it's ok to feel overwhelmed and ask for a hug or reach out to us when you need someone to listen. I'm listening and I hear you!

Patrick Dowd  Jeanette, I sent you a long post this AM but it was before I logged in. I don't see it here but it says I posted it. Did you get it ? If not I will recompose. Perhaps it went as a direct message. Please let me know. I would like to communicate about this trauma stuff that we share. Pat

Steven A Husted  DEAR LORD I PRAY THAT YOU WOULD BE WITH JEANETTE AND HEAL HER MIND BODY AND SOUL GIVE HER WHAT EVER SHE NEEDS TO OVER COME THESE FEELINGS IN JESUS NAME WE PRAY AMEN MAY THE GOOD LORD ABOVE TAKE CARE OF YOU

Jeanette Davidson   Pat, I couldn't post to your guestbook and didn't receive a message from you. Here is my personal email
Nette19@att. Net

Kelly Weisgarber  Jeanette I'm so sorry you're feeling bad. You're always so encouraging to everyone. I can't offer Much advice, my surgery was Monday. Still feeling sore and hoping for release tomorrow... But know you're still in my prayers

W. Carter  Just because this is month 4 that doesn't mean that you should be any more advance in your recovery than you are. At month 4 I was still having major problems and a year before surgery I was working construction right along young guys and staying up with them, so I was pretty fit. I try to tell people this is no joke, but they all think that their recovery will be different, and think they will be recovered fully by 3 months. The ones on here talking about running at 2 months are later on here crying. The surgeons tell you recovery will take about 3 months so most of the blame goes to them. My surgeon told me at my fitness level it should take about 8-10 weeks. :-) It took me a good 10 months to be fully recovered.

W. Carter  Just knowing you are on the right track to recovery validated by other people that have been through it has got to be reassuring. God bless you and your recovery, mentally and physically.

Elaine Cutri  It is tough to go through what we have been through and not be blue even though we've been "fixed". I agree with W. Carter and Lilly. I get asked if I'm fully recovered (starting in month 2, now at month 6) and I say "I'm nearly there" or "I feel really good". However, today I "need" a nap and it will be at least a full year, next May, until I am 100%. I'll keep you in my thoughts and prayers!

  Jeanette, you just made my exact argument for why specialists need integrated care that includes mental health professionals. I am sorry you have gone through what you have. A therapist who can provide you treatment for PTSD would be helpful. Exposure therapy and cognitive processing therapy are two of the best researched PTSD treatments. My father passed away from side effect of meds after his valve replacement and I have significant anxiety about my upcoming surgery. I am a psychologist and work in an integrated primary care clinic for children and it is so helpful for our children and families. This stuff is no joke. I was planning on talking to my surgeon about support for anxiety and trauma related to these surgeries. I wish you well.

Mary K  Dear Heart Sister. God bless you. I went to a meditation workshop last weekend where the presenter spoke often about "opening the heart". My blood pressure just rocketed on Sunday, and I had to step out. By the grace of God there was a therapist present who helped me process some of the trauma of the surgery. I came to realize that for some people ( she told me about her father's experience the surgery is no big problem, but he is a mechanical engineer), for them the process is very much more on the physical snd mental levels. For others, especially those naturally, or trained to be, exquisitely sensitive, the surgery wounds deeply and profoundly on many different levels. The wounds are compounded by a tone deaf medical system that has little provision for, or even recognises, much less attends to the very real and significant psychological and spiritual trauma. Having her really witness how shocked and horrified I had been by the surgery process and aftermath was healing in itself. And today, my heart is more at ease. I pray that healing on all levels comes to us both, little heart sister.

MaryAnne Jardis  Hi heart sister! You have been an inspiration to so many. Know you are a warrior in dealing with all your challenges. Allow yourself to take a few steps back. We all have been there. Our faith will tell us that it will get better. Believe it with all your heart. I will be in touch with you on Monday 💜 Pamper yourself this weekend! And think of how far you have come!

Jeanette Davidson   Thanks for your support, # Laura. I am a Mental health Counselor. Still, will my knowledge can be challenging. I have a great support team, still difficult to process. This surgery is a complete mind , body, soul experience. Many blessing and good health to you!❤️

  Thank you! Even as professionals, we all need support! Warm thoughts, comfort, and healing are being sent your way.

Betsey Osgood  That's awesome Jeanette! I'm a few months behind you so it's always nice to read the positive posts!!! Keep on moving!!!

Kimberly Biddick  Thank you for sharing! I am so glad to hear you are doing so well and it is very inspiring for those of us still pre op!!

Eddie Patton  Great to hear. We had our surgeries within a few days of each other. Sounds like you have turned a corner. Good luck.

Jacqueline Cook  Glad to hear you are doing so well. My surgery has been moved up to November 11. I am always inspired by your posts!

Tom Mcinerney  Hi Jeanette, yes I had to go though chest x Ray, a tapping and looking at my chest then a 20min stress test on a tread mill all total about fours to get the OK to start cardiac rehab . Now I go three times a week for an hour not too bad but make sure your insurance pays for it because it costs about 650.00 each time you step on a treadmill. Tom

David Augustus  I did a stress test before I started cardiac rehab. I didn't feel I needed cardiac rehab, but I'm glad that I went.

Jean Raber  I hope rehab helps, Jeanette. Everyone here seems to feel better with the exercise, and talks about the camaraderie of their fellow rehabbers.

Ruth Reshad  I think the rehab gave me confidence after surgery. It assured me that I wasn't fragile. I did not have a stress test before rehab but that was in 2006.

Elaine Cutri  I didn't have a stress test before starting. I asked to start rehab. I'm glad I did. It's help me regain my strength and boost my confidence. Best wishes.

Bob M  I did complete a stress test. I was told that I needed to determine my heart rate target for cardiac rehab. I assumed everyone needed a stress test before cardiac rehab. Take it easy heart sister. The worst is all behind you now, and I pray forever.

Steven A Husted  yes i did have a stress test before i started cardio rehab i think they just want to see if your heart can take the stress of the exercise they pushed me just a little to see if i could keep up and i did better than i thought i would so i started cardio rehab phase 2 and now i am in phase 3 and doing well one year out best wishes and good luck

Rita Savelis  Yes, I had a stress test before and after cardiac rehab. Not that big a deal. I was tired but had to walk on a treadmill with various electrodes attached to me. The worst part was how thirsty I got because of the meds against fluid retention I was taking at the time. You do just how much you want to on a stress test, no one pushes you.
As far as PTSD, I hear you Jeanette. You've been through way too much, so your fears have to come out. Cardiac rehab was good - not because of the exercice but because of the other patients, especially lots of older men who had probably never "exerciced" formally in their lives. Nice to be in this crowd of people who had been through the same horrible experience. Just their presence was reassuring.

Lynne Ladd  Hi Jeanette
You have been on my heart for a week now. I haven't logged in here for awhile, but had you on my heart to seek out this morning. I am so sorry you are suffering from PTSD, and pray your counselor can help you navigate thru this. Please know you are on my heart and in my prayers. You will get thru this one step at a time.
I am glad you are opting for Cardio Rehab. I did not have a stress echo prior to starting, but I would take it as a positive that they are being cautious and proactive about your condition at this point.
You were one of my inspirations when I first joined this community at 4 weeks and I thank you for that. I am now 10 weeks, similar to you and relate to your journal posts very much. I pray you are surrounded by supportive, loving friends & family to continue to love you thru this difficult time of adjustment and healing.
Love, Prayer & Hugs!!

  Yes.....Nine weeks is still early in recovery. Remember let your body be your guide, Jeanette. It's so easy to over-do it. You should rest between activities, and drink plenty of fluids. Your body is letting you know it was too much, too soon.
Being patient while recovering is hard to do!
God Bless You as you continue to recover.

Eddie Patton  You are doing great. I try to push but sometimes my body says "not just yet". I think it is good to test your limits some as long as you know when your body says nope too much.

Tammy Pilcher  Jeanette, I agree that sometimes we realize after the fact that we might have over done it. I know I've experienced that too. Take it easy heart sister. God bless you!

Mary K  Too much is when one's body tells you that it is too much, although it is hard to listen when we are having fun! Would you have traded any of those experiences for rest time, though? I am guessing that a bit of overdoing it now and then is probably not so ba, as long as we don't injure ourselves.. So we know how to rest and recuperate, right? Happy healing Heart Sister.

Ruth Reshad  YES-You need to take it easy for many months after open heart.
I wanted to thank you for writing on my journal about the TEE. It was HEART warming to see the responses there.

John Jones  Glad you are doing well surgery twin. I am cruising at a pretty good clip myself. My heart rate was/is opposite of yours. I was on 200mg amiodorone and 100mg metroprolol. hr got down to around 48 to 50. doc cut metro back to 50mg 2 weeks ago. I feel so much better. Walking intentionally 2 miles a day plus keeping very busy around the house. My next goal is to get entirely off the meds. Hopefully after sept. 21. headed down to Pensacola tomorrow to visit my daughter. First long trip post op. I am ready to resume life.

Patrick Dowd  Great hearing your progress Jeanette. I got to drop the metoprolol and get to exercising as well. Had another thoracentesis this past week and think they got it all. There was a total of 2.4 liters of fluid removed from the left pleural cavity. No wonder I was short of breath. Now I'm back to my pre surgery inspiration volume, can exercise and feel like a million$.. Got my bicycle out today going for the first ride tomorrow. So thankful for all the prayers of friend and family. Thanks for your kind words as well. Pat

Dan D.  I hope that the added metoprolol will get that runaway train under control, but glad that you're progressing well otherwise and feel like you're ready to dance, dance, dance.

Eddie Patton  Great news. I too have had to get used to a stronger heartbeat feels like it is about to jump out of my chest sometimes. Dr. Said no issue so just chalking it up to not being used to having a healthy heart.

Terry Shermeister   Hi Jeanette: I think you are a real trooper. You demonstrate a lot of courage. This is a learning journey for all of us and we deal with it individually. So glad you are on the mend, and keep up with your great attitude!!

Lynne Ladd  Sorry you have the noisy valve to contend with, that would be unsettling I think. I had mitral valve repair, so, am not experiencing that. You are a trooper for sure!!! I, too, look forward to dancing and swinging a golf club.. Unimaginable at this stage (6 weeks post op). HaHa!!
I started Cardio Rehab yesterday. Wore me out!! And I was only on machines for 20 minutes. Looking forward to building up my strength. I am driving now... Enjoying the freedom!!

Have you had any more word from your Doctor about rehab?

Jeanette Davidson   No cardiac rehab for me! They want me to increase my walking each week and I am going to take a dance exercise class and start lifting 5 pound weights for my arms. I am going to start PT for my shoulders and neck. Sounds like a comfortable plan for me. We will see how it goes Thanks @Lynne Ladd for following up! Hope you are doing well!

Patrick Kennedy  Awesome! My heart rate was still high 7 weeks out and I'd not down to around 75. I had Matrial valve repaired may 11.

Lora Lee Peterson  Hi Jeanette! My valve was really rocking for a few days, but now it seems to have quieted a little. I hope it stays that way! I was surprised at how noisy and how much it shook my shoulders.

Kenny Knox  Hey Jeanette! My back and shoulders were sore for the first 3-4 weeks. Is this a new discomfort or has it been consistent since your hospital stay?

Gerald Schaffer  Don't just ask for a script for pt try to get in a good cardiac rehab program that will monitor your heart while they work out your kinks and get you stronger. Some also have therapists to get you through any anxiety or just listen to you as well as nutritionists if you need either.

Jeanette Davidson   It has been sore since the beginning. MY DR is not recommending cardiac rehab! Thank for your input. I will call on Monday and ask lots of questions and get info.

Dan D.  Jeanette, Glad to know that your surgery went well. A physical therapist came to work with me while still in the hospital. I started physical therapy 2 weeks after surgery, but I didn't have the back & shoulder pain. I'm 14 weeks after surgery and my chest still feels tight when I open a door or some other pulling or twisting motion. I hope your back pain gets resolved and you feel better soon. Best to you.

Rita Savelis  The tightness and soreness comes and goes. I think that trying to do too much "normal" stuff makes the sternum sore again. I can feel "healed" one day and then tight and sore again the next. I remember being told that it takes the sternum 4 wks to heal, but now I think maybe I will always feel it off and on. It's not really pain, just discomfort. Hang in there Jeanette.

Gerald Schaffer  Jeanette, what is your doctor's reasoning for not recommending cardiac rehab. It doesn't make sense to me. I'm going to be asking to attend one and was wondering why a doctor would be against it.

Jeanette Davidson   Gerald, He encouraged me to do my walking and knows I am very self motivated. From what I have understood , some surgeons don't think it is necessary.

Meredith Bray  JEANNETTE AND BACK/NECK PAIN! Do I have your attention? :) I had the best Physical Therapist come to my home after surgery. Here's what I learned from him:
FIRST:
Neck muscles extend a good 12 inches down our back, like, to the average bra line (sorry guys).
Our heads are HEAVY! Bowling-ball heavy, and we use a lot of energy holding our head up, straining the neck muscles (you know - the ones that go halfway down your back?)
Therefore, we should support our head & neck as often as possible during the initial recovery period. Do this by using a U-shaped travel pillow when resting, even when sitting in your comfy recliner! it allows those long neck muscles to relax....to rest a bit...and can divert your energy to healing instead of working.
SECOND:
We have a very natural tendency to curl forward, to protect our sternum area, hunched over. Do you KNOW what that does to our core muscles? it contorts them and makes them work harder - against their design to hold us upright.
Therefore, whenever we are standing or walking, we should be tall and straight, like a model or...the Queen/King of Everything!
That man alleviated 90% of my back pain in one visit. Try it! You'll like it!

Lynne Ladd  Jeanette, I feel exactly the same. Neck and back pain from the start (5 was now) and The past couple days has added tightness in chest. Feels like there is a stiff plate in my chest. Hard to get comfortable laying or sitting. I am still sitting up to sleep.
I have been using a travel pillow and that does help support the neck, I agree with Meredith's PT. the poor posture I am experiencing is exacerbating the neck and back pain. I have been working on standing up straight but then chest aches. Aaargh!! I start Cardiac Rehab this week. Am anxious to see what they suggest to strengthen these areas. I have tried some arm movements and stretches, but then the tightness in the chest and sternum area began.

Jeanette Davidson   Just got the script for PT!! Yahoo! Thank you Meredith for your detailed explanation! Really helpful!😊

Sandra Moore  My husband doesn't get it either and I haven't even had surgery yet ! You should be feeling fragile and vulnerable. You just had major surgery. Be kind to yourself and rest.

Terrie Syvertsen  A ticking clock ticks and makes us aware that time is moving on. A newly
"installed" Heart valve helps it tick on and unlike before we can never really feel it is just a beating heart but that it is a "Made by God" piece of us that until our first echo had these wonderful and beautiful little pieces furiously opening and closing letting the blood flow and if you are like me, it took my breath away to see these little buggers work have been doing that for me over 66 yrs. now. It is still this vision I see of how hard they were having to work and once at the Severe stage I knew that they were threatened it was crystal clear what had to be done.
Because it is the patient that experiences all the heavy information after diagnosis and bit by bit stores it like a squirrel somewhere in our brain as more and more of the experience takes over our lives and we are faced with this thing upon completion called recovery. We are gifted by well meaning friends if we have them, Family(if we have them) and importantly our spouses, partners, caregivers as we wade in what we have heard others report happens during recovery. We are wisely told by many, many, many people that each story is going to be unique like the person telling it, experiencing it. Along the way, we ourselves think we are capable of getting on with things only to learn we are going to have to be patient with ourselves because the body is saying to us every minute of every day to "be kind", be careful". Those around us actually do see that the body may be showing the battle scars but the person seems to be getting back into their life but what they don't get sometimes is the truth of us not wanting to be a burden, not wanting to give up too much independence now that we have made it through as we want to show everyone that although one day at a time..... we have it covered. We know the truth of the aches and pains, muscles that are sore, the incision which is in a damned awkward place so that for the first few months, like it or not, admit it or not it is difficult to find that norm again with the activity we try to perform, being a little to soon, turning over on the side when the chest wall and sternum are arguing "not ready yet" or that walk in the park went a little too long and you are ready to curl around the nearest tree trunk and take a nap before continuing on home(if only you could even get into a low enough position with no pushing or pulling in the first place. Those we love are looking to us to let them know when we have had enough and when we could use their help even though it is difficult to ask or annoying even that you have to. After all you are looking like you are getting back "into it"! If you don't look like you are struggling a bit you will not see help arrive when you need it! I learned especially that our chest wall is a very delicate part of this surgery that can be affected many months after we have made it to the "other side". I am one of the nuts who was doing laundry far sooner than I should have(I couldn't bare to face my husband going naked to work.......) The man did laundry once he knew I wasn't ready but he would have let me continue to do it had I not begin to suffer for the moves-pulling, lifting. Same with just everyday life and needing time to sleep when my body just plain ass needed it but I didn't think with my husband making up for what I couldn't do that it was fair. I think Jeanette that you have exuded energy and excitement to have come thru this surgery and it is a powerful energy that almost makes one weightless never mind getting any and all medications balanced out of our systems that have also been compromised & which can also affect how others see us and maybe confuses what help we need.I learned to change my attitude because going without proper sleep, proper nutrition and exercising slowly until you can work up to more is only going to make you "Cranky", Frustrated with everyone and everything around you and especially yourself which can bring us to the old"Cardiac Depression" which hits many of us as we go through our recovery.
Patience is hard to have but necessary in getting through each day and those that we are closest to sometimes really just don't get what going through the surgery and the slowness we sometimes deal with as we bounce back makes it difficult for them to comprehend. Why not" They are on the outside looking in at some powerful and frightening events that someone they love is having to face. Surgery itself is one. Recovery and resuming a normalcy is the other. Jeanette... Being fragile and feeling frustrated is part of recovery that you will have to find "Patience" with not only your husband but yourself to find a happy medium as you find your way back. You are one of the most positive Heart Sisters in this Community. You express your caring, loving self in most of your writings and in your work it is all about taking care to take care of people. It is a good time to be good to "Jeanette" and make sure that you don't overdo
things and give yourself the time to also mentally heal while engaging in things that you have the strength each day to do or give yourself the time
to rest and move on again. I don't know if this makes sense(I have been out in the 98 degree heat on and off all day!) but I want you to know you sounded like me 8 months ago and I understand and hope you find things are better soon. Heal on with that great big Heart of yours! Thinking of you--take care........

Eddie Patton  I had my bouts with cardiac depression or whatever you want to call it. Luckily I have a friend who had bypass surgery I could lean on. It's hard for those that haven't been through it to understand that just because we are doing normal things does not mean we are back to normal. Physically, mentally, and emotionally it takes time. My wife and I have had numerous conversations about it.

Cheryl Batzing  Jeanette, oh my, your post made me smile. Sorry....but I SO GET IT! I had OHS in mid December and limped through Christmas, but then did feel really pretty good, as it sounds like you do. I'm so thankful you are feeling well enough at 6 weeks post to do all you are. You are a rock star! My church brought me meals every other day for a month after surgery, and although I didn't think I would need them, was so blessed by them. The past 2 weeks I've had a rough time energy-wise, and wondering why...could be chalked up to the Dallas heat. I've had friends say...."Hello, you had OHS! Your body is still healing!" I never thought to keep being gentle with myself...but was so glad to get that confirmation. Know you have heart brothers & sisters who get it....and feel free to vent here! You are in my prayers during your continued recovery!

Gerald Schaffer  I don't know what to say. He needs to understand it takes awhile to get back to 100% and certainly it's not six weeks time. I think you're doing great just by cleaning the house and cooking meals.

Nancy D  Just because the surgeon has released you from his care doesn't mean you are totally healed and well. Surgeons tend to minimize the recovery and tell you things like "you can be back to work in X weeks." Not so..... Some do get back in X but not all, in fact the average is more than X weeks, and some need more than that depending on the type of work you do. At 6 weeks I couldn't clean house, or do a whole lot of things....... It sets us up for feeling like failures when we still need a nap at 4-6 weeks and fatigue is still an issue at 8 weeks. We all need time to get through the physical, and emotional toll that major surgery takes on our bodies. It takes as long as it takes and to try to rush it is not beneficial. YOU are doing so very well, and way beyond where I was at 6 weeks. Listen to your body......and happy healing!!

Jean Raber  Yes, your nearest and dearest often don't get it, especially if you look good. I realize that when they say, "You look OK," they're reassuring themselves that I am still upright and breathing, and I shouldn't infer that they think it's all in my head. My modus operandi is to lower expectations for everybody around here before I have to have surgery. I'm finding I have quite a knack for it!

Mary K  Hi Heart Sister. There is a lot of discussion about OHS patients going through depression, but I have not seen anything about OHS caregiver depression. I believe that it is a reality. They just get tired and stressed and want it to be over. In some cases they have read or heard that recuperation time is six or eight weeks and take that as gospel, instead of listening to the person who is recuperating. Hello?

I know that you will walk through this with grace. Praying for an extra measure for you.

Jeanette Davidson   Thank you everyone for your support. I must say my husband is a wonderful man. Just very hard for him too! I'm not depressed , I thank goodness , I am sad at times that I had to go through all this plus cancer and his stroke which I think is really normal . Thank you for helping me realize that I have a long way to go. The doctors pumped me up after surgery and said how great I was doing which is very true and I am very blessed but I think my body lead needs a lot longer to heal . Thanks for the reality check 💕

Tammy Pilcher  Jeanette, I think it's normal to be a little nervous after everything we've been through, especially in the early part of recovery. As time goes by, you'll probably feel more secure in your new healthy heart. I'm so happy for all of us with our fixed hearts! God bless you!

Adam Pick  You said it, "One day at a time Jeanette." Take it easy. This is a process. You are on your way to a complete recovery. No need to rush that. As you write above, "Your heart is fixed!" Fyi, it took me a lonnnnnnnng time to internalize that reality. Once I understood it, my life re-opened. I'm now almost 10 years post-op and in the best shape of my life. My thoughts are with you!

Gerald Schaffer  Keep in mind you had major surgery not that long ago and it takes time to get your strength back. Your heart also has to figure out how to pump with this new wide open valve. I hope you start feeling better soon.

John Jones  I'm right there with you surgery twin. I am trying my level best to stay focused on the fact that it has only been 5 weeks and we all heal at different rates. Also I take great comfort in the fact that God did not bring me this far for nothing. He isn't done with me.
I had several things I planned to do today. However, I've been lethargic and generally not feeling well. I walked about 1/2 mile. I really didn't feel like it but did it anyway. It dawned on me an hour or so later that I made it despite the fact I really didn't want to try. Last week, I may have just stayed home under the same circumstances. I consider that an improvement.

Eleanor R  I felt exactly the same Jeanette, for several months after surgery. Even to today, one year later, if I feel my heart beating faster, or I feel tired, my first thought is my heart. I have learned to acknowledge this thought, and ask myself what else it might be. Often, it is because I really am tired, or exerted myself too much. I think as time goes by and you see that other things can affect you, it will be easier. For the first couple of months I was ready to blame everything on the surgery.. My surgeon's PA told me that for the first 3 months after surgery, their practice has an understanding with the ER at the major regional hospital where they practice, that any of their patients who are admitted go straight to the step-down unit in the cardiac ward. After 3 months, their assumption is that the ER visit is not necessarily heart related, and they leave it up to the ER doctors to determine where an admitted patient should go. For me, this was a good marker, if they felt that after 3 months, their work was basically "done" and any future event would not be tied to the surgery. This helped me a lot, not that I was at the hospital except for a visit to the ER one week post surgery, for numbness in my left hand, which the surgeon's office wanted checked out. Unfortunately they kept me overnight, sent me up to the cardiac ward, and I had a good reunion with the nursing staff who had cared for me days earlier. And, my hand "woke up" shortly after arriving there. Since then, no problems other than "normal" life events of hurting a foot, mildly burning an arm, life events that result from being active, and clumsy!

Nancy D  celebrate the little goals as they add up quicker than big ones. It helps when the progress is going slower than we want or think it should be! ;-)

Steve Offenbecher  How very true. I am reading a book called "How to make today the best day of your Life" written by a pastor friend of mine and it helps remind me to keep my life in order every day. We cannot change the things that happened in the past and we really have no control over the future. Just live today like it is the last and best day of your entire life. I find it much easier by trusting that I am following God's plan....one day at a time.

Morgan Braddon-Walker  Love this! Yes, each experience can be a gift and an opportunity for growth, even if we don't see it right away. Beautiful attitude! :)

Jeanette Davidson   In the Asian culture the symbol for crisis an opportunity ate the same. I share that often with my clients it's very powerful !

Morgan Braddon-Walker  Also, here is another book recommendation. My Stroke of Insight by Jill Bolte Taylor another amazing book to check out. :)

  Happy Sunday to you. My top BP number doesn't want to go over 100. Have been this way (82-102). since last Monday. Only 2 readings were OK. I went out with my husband to restaurant today. I was so light headed when we got there. I stayed in the car while he went into grocery and drugstore. Tried to walk driveway this morning. I understand your anxiety. I think it is normal. I think we both want to get back to feeling normal energy again. Being patient with medication changes and healing bodies is challenging. Keeping you in prayer. Enjoy your brother's dinner tonight. ❤️❤️❤️

Nancy D  It is a process to get back to life, and fear does creep in! Try on days you feel strong, remember to breathe deep, and stay hydrated-its hot out there! There will be days you don't feel like it - then rest; or you sit in the car as Mary did while her husband went in the store- but each time you get out there and do a bit more, you build confidence and endurance! Celebrate each accomplishment no matter how small....they add up quicker than big ones! We were granted this second chance to live life- ENJOY!

Rhonda Rawles  I find that the more I do outside my comfort zone the better I have felt so press on and you'll do great!

Tammy Pilcher  Happy Sunday to you too, Jeanette. I hope you had a great day out and about today! Each time you venture out will get easier. Prayers and best wishes, heart sister! God bless you!

Rita Savelis  It's okay for you to feel "weak" sometimes Jeannette.
Weak is fine. I cancelled a lot of social activity because I preferred to stay home. This was unlike me. Then I realised it was actually okay. There will be a time to be busy, but maybe it does not really have to happen immediately.

Lora Lee Peterson  I hope your dinner went well last night, and all of your anxious feelings disappeared when you with family that loves you so much! They'd never let anything happen to you, which you already know. Sometimes we need to remember that when we get scared, I guess. I'd be the same way as you are! Anyway, what did he have for dinner?

Mary K  Hope you did well last night. I felt like my identity was changing from "patient" with all the protections that title carries to "normal" when I started to go out. It took a few excursions to feel comfortable. Now at six weeks I am enjoying being out, but keep a close watch on my energy level and go sit if I need to. I am finding that the 112 heat index days are brutal, just walking from the car into a store can wear me out! It's OK, I am improving every day. Hope you ate too!

Jeanette Davidson   The day turned out great! Walking to the car in the heat is the worst part. I was happy I did it and went out again for a little bit today. ( with my husband of course) I think I'm making progress
And three weeks the cardiologist said I could drive again but we're following the surgeons guidelines for six weeks!😊 thank you all for your support and encouragement

Gerald Schaffer  I've read several others that say the same thing. The heart goes through a lot of trauma during these valve replacements and it takes some time to settle back down and pump like it used to. I wouldn't be overly concerned about it unless it doesn't get back to your normal rhythm soon. It may be worth mentioning to your doctor just to see what they say.

Nancy D  yes! My heart rate was high for several months, and even the nurses and others overseeing cardiac rehab said it was normal for it to take "several months" to return to normal post valve surgery. I could feel 'Flossie' when on my left side at night. Both are gone now at 11 months out. It is rare that I feel it beating on my side. I realize that for a very long time, my circulatory system was faulty, and half my blood volume was going to my lungs and not my organs or extremities, and so the heart must now adjust to proper circulation! It will happen, for sure.

Jeanette Davidson   Thx Nancy that is really helpful and hopefu! I totally agree with the circulation thing. Stay well heart sister!❤️

Laura Metrano  I'm just over 3mos post-op, my HR was hi 90's/100. Doctor said it was not unusual after OHS and was not concerned but I wasn't feeling great... little anxious, like I couldn't relax, my sleep was inconsistent. He put me on 25mg of metoprolol which brought my HR down into 90's. Not a huge jump in number but I feel a lot better and am much less aware of beating heart! Good luck :)

Meredith Bray  I was at 88 resting all through cardiac rehab. Now I'm closer to 70 or less. Your heart and veins and vessels need to re-learn how to do everything the right way, it takes time.

Kristin Heusser  Hi Jeanette
You mentioned your resting heart rate. Mine has been anywhere from low 90s to 80s for the most part post surgery, and thats after stopping meds. I had valve repair and Maze procedure for a fib. The surgery hugely helped lower my rate so far. Im 7 weeks out.

We all know everyone is different, so maybe its comparing apples and oranges, but one thing I do to add in lowering my rate is meditation. I know this is in no way a cure all, but it does help me get it down some and assist in the whole process. I personally am totally a believer in mind - body healing. Western medicine plus naturopathic healing as well. My rate goes down at least ten points meditating. i find that very cool. Maybe meditating isnt your thing, but truth is there are a million different kinds. Even small bits here and there can add up ...... Just tossing this out there in case it could help :)

Wishing you continued healing.

Kris H :)

Rita Savelis  I feel my heart pumping all the time. Sometimes it's so fast... and I'm not doing anything. I think you need more time for your body to get over the big trauma you went through. All kinds of odd things happen.

Jeanette Davidson   Hey Kris!!!
Thanks for the reminder. I do believe in meditation so I'm going to give it another shot you are exactly right thank you so much ❤️

Tammy Pilcher  Jeanette, I can relate to you reframing everything to a positive! I'm not a therapist, but I've always done the same thing. I guess it's just the optimist in me. :-) I hope your heart rate levels out soon. God bless you heart sister!

Bob M  Your blood pressure is good and your heart rate is less than 100 with no Afib. Good is good enough for now in my opinion. Take it easy heart sister!

Kyle Väth  I'm pumping away 90s-100s pretty often and I'm still on lopressor. But I don't "feel" it pumping so hard like it did pre-surgery. Keep up the good work!

W. Carter  You look great! I think anemia just comes with ohs. I was down to 7. They ought to just give iron to all patients. I was on it for 5 mo. until my blood built back up. God bless!

Terry Shermeister   Hi Jeanette: So good to hear about your visit to the cardio person. Keep up your great attitude, Terry

Eddie Patton  So are you feeling better than before surgery? Can you tell a difference yet? Three weeks is about where I thought "I think I am better than I was before".

Jeanette Davidson   Yes Eddie! I think something has shifted! I think it will still be up and down. I am still astonished with how much repair they can do in this cardiac world today. I believe and help I'll just get stronger every day !❤️

Lewis Garlisi  I wouldn't worry about the 4 mile goal. Everyone heals very differently and you'll get there eventually. Do what you feel you can for now. It took me a bit longer than I wanted because of various obsticles. The oppressive Florida summers can certainly be one of them. As long as your pushing yourself a little (but not too much) every day, you'll do fine. Don't get discouraged.

Kenny Knox  I wouldn't worry about the distance either. As long as you're moving, I'd say that's great! I've been using a Fitbit to track steps/distance/time. When I first started, I was happy to walk for 2-3 minutes. It's hot in Ohio right now so I've been doing laps around the front room and kitchen. I didn't start paying attention to steps/distance until I was able to walk for a half hour. The dogs think I'm crazy but every time I do it, I can do a little more.

Give it some time and I'm sure you'll notice progress! 6/10 of a mile is a pretty good start! I'd be proud!

  This morning I walked down the driveway to the street and walked one house down. I was so tired when I got back in, I took an hour nap. It will take some time to regain energy. Keep moving, I know it will get better.

Dan D.  Some days you will walk a lot, some days you will struggle not to get out of bed. Your recovery will not be a perfect straight line up, but a jagged line up but not without downs. Try not to compare yourself with others, especially the overly optimistic. Some of these Pollyanas made me feel like a slug. I felt like: once I got to ICU, I should rip out the tubes and wires, don track clothes and race out to join the marathon. Push yourself a little, but don't berate yourself it you can't match the most optimistic recovery times. It's a long slow process.

Terry Shermeister   Hi Jeanette: I remember after about one week going out for the first time and not being able to walk around the block, and needed to use two hands to pull the door open an my home. The fact that you are out and walking is great! Don't compare yourself to others. Be consistent. If you feel too tired don't push it. If you feel you want to exercise then do it. Thanks for your words of encouragement to me, it has really helped.

Steve Salvador  I'm walking a pace of 2.5 mph, 1 mile, I felt I could push little harder, but didn't want to blow out my "valves'. Take it easy and work at it. Monitor your heart rate as you exercise, I'm using a treadmill.

Jeanette Davidson   Everyday I am so grateful for all of you heart brothers and sisters. Thank you so much for your support and encouragement!❤️

Gerald Schaffer  Everyone is different. I think as long as you are doing a little better each day you're doing good. You were smart to go indoors, you probably increased your distance by doing that. I can tell you I won't be doing 3 miles a day after 19 days as I haven't been able to do that in years.

W. Carter  Jeanette, I live in Dallas Tx. and the heat is 100 degrees every day. I was walking about 3 miles a day 3 times a week in spring time when it was 70-80 degrees. Now I have been home bound watching t.v., eating, and gaining weight. As soon as it starts cooling I will continue (I promise I keep telling myself). :-)

Daniel Spurgeon  Just do what you can, this isn't a competition. I used to live in humid climates and vividly remember how quickly humid hot weather drains a person. I am always cautious about pushing myself in those circumstances.

Clare Auten  At cardio rehab I got specific guidelines regarding when I could and could not exercise outdoors. Heat and humidity were big factors. Be careful. You are only a few weeks out from surgery and you don't want to overdo it.

Rita Savelis  Jeannette, on day 19 I was in hospital and walked a few steps down the corridor. Then came back and collapsed into bed.

Steven A Husted  HI JEANETTE I AGREE WITH THE OTHERS DONT OVER DO IT TAKE YOUR TIME TIME IS A HEALER DONT COMPARE YOURSELF WITH OTHERS EVERY ONE HEALS DIFFERENTLY I REMEMBER WHEN I WAS THREE WEEKS OUT I HAD A NURSE AND A THERAPIST AT HOME AND THE THERAPIST SHOWED ME A PATH TO WALK FROM ONE ROOM TO ANOTHER AND TO START WITH 5 MINUTES AND TRY TO INCREASE A FEW MINUTES EACH DAY OF WALKING THRU THE HOUSE AND IT WORKED FINE THEN CAME CARDIO REHAB PHASE 2 WHICH I RECOMEND AND IF YOU CAN PHASE 3 WILL KEEP HELPING YOU WITH YOUR HEART HEALTH MOST OF ALL TAKE YOUR TIME DONT RUSH IT

W. Carter  I agree with Steven, the Cardio Rehab is going to do wonders with different muscle exercises and stretching. They had one machine just for your arms and shoulders like bicycle pedals that is great for shoulder, chest, and arm recovery. I had numbness (nerve damage) in my right hand from surgery and that helped to get my feeling back. I did 8 weeks but I would recommend doing the max which is usually 12-16 weeks. I just couldn't see going to the VA Hospital 3 times a week for 12 weeks. :-)

Eleanor R  That's the girl! Let the doctor's office help you out with what you can and cannot take. I would never have thought to take Benedryl, just one caplet, to sleep were it not for the surgeon's PA. Works for me, and Tylenol (for my hip, not my heart) when I've been too active during the day and I sleep well. No naps now during the day since I'm past my one year anniversary, so I only lie down at night, and try to sleep 7 to 8 hours. Sometimes it is only 6, but that's fine too it gets caught up with the following nights. Sounds like you are on a good path towards healing, keep it up. Eleanor

Rita Savelis  I barely slept for about 7-8 weeks. I had to take sleeping medication (which I never do and I hate to do). The doctors said my body needed sleep so I should take those sleep meds. When I could finally move into any position I wanted to (side, stomach, etc,) I could finally sleep. It is still so very very early Jeannette.

John Jones  I am feeling for you Jeanette. After the first week of sleeping (overstatement) on my back in a recliner, I finally googled "when can I sleep on my side after open heart surgery". One of the returns was from the Mayo clinic which said in essence, if it doesn't hurt to sleep on your side then you can. I immediately grabbed and hugged my pillow and went on my side (on the couch) and got the best sleep I had since pre-op. I hope this helps.

Nancy D  I had to resort to Tylenol PM, which is Tylenol and Benadryl. I had my first stretch of sleep with that, and eventually could get some sleep without it.

J B  I had the same problem for about 10 days. I probably slept a total of 6 hours in the forst 10 days post op. Then all of a sudden I statrted sleeping again. It happened that fast. Hopefully you will experience a similar result. Dont get discouraged.

W. Carter  In my opinion you really need pain and sleeping medicine for at least a month or 2 following surgery. Your body rebuilds itself during rest. Take it slow, It will probably be 5 or 6 months before you will be recovered, maybe longer. God bless!

Gerald Schaffer  I would try the Tylenol pm and see if that helps. There's several prescription and non-prescription sleep aids you can try just read into the side affects. From what I've read it's not that unusual, hopefully you get back to a normal sleep pattern once you heal more and can become more active.

Eleanor R  For the first month or so, my surgeon's office recommended extra strength Tylenol at bed time along with one caplet of Benedryl. I was sleeping in the electric lift recliner since my bed is high, and difficult for me to get up and down from. I would wake up generally at 2 or 3 but the combination of the drugs kept me pain free and drowsy. I was glad to get back into my bed, and pretty much off the meds unless really called for. I wouldn't worry about it too much, just try to limit afternoon naps, and in my case no caffeine after noon. It is so hard to not worry about things that are different after surgery, and I questioned if this was going to be the new normal for me, for the rest of my life. Fortunately, it is not. I recently read that our original sleep pattern, back centuries ago, was to sleep 3 to 4 hours, then wake up around 2 or 3, and go back to sleep an hour later for another 3 hours. I'd never heard of that, but it made sense. I asked my physician about this, and he said it is a common pattern and not to worry as in my case it is not related to pain or stress or medication, just a natural sleep pattern. I hope you are able to go back to sleep after you awaken, and I wish you more restful nights, too. Eleanor

Mary K  Hi heart sister. Lots of advice here. Since I am three weeks ahead of you I add my two cents.I agree with W Carter. Go ahead and take the meds that you need. You just had major surgery, girl , let your body rest and recuperate. End of two cents.

Sending love and prayers for a smooth, perfect recovery.

Steve Offenbecher  Sorry I do not have that problem. Make sure you check with you surgeon, he will have an opinion on this subject.

Meredith Bray  I took about 6 months to get back in to a regular sleeping pattern, and sometimes I'm STILL up til 3 or 4! I was taking naps until about week 8 I think. Your doctor is right - it is normal!

Michael Donohoe  I just hit four weeks and had a bout of sleeplessness for about 8 days. I could not get exhausted when I needed to be. Currently doing alright, but ready for the next time around.

Patrick Dowd  31/2 weeks out. Got my first nights sleep last night. I allow myself 2 short naps during the day. I found that pain meds which I don't need and Xanax or other relaxers make it more difficult to breathe. So like you Jeanette I just try to follow my body's clues. It trust it knows what is good for itself. Also, many people say and it is so true: each of us is different.