Becoming more and more frustrated, but I did take some of your advice, and now have seen two neurologist for the visual disturbances. The double vision, numbness on the right side of my mouth, tongue, teeth and fingers, spots of blindness in the right eye, either whole or half, are still there, with many each day. My family doc has been a great help, but the specialist have offered little of nothing. I thought I had struck gold with last one who started me on a monthly injection of amgality, which I have now taken two. Followed up with the neurologists NP Friday, as they continue, and she said she had never dealt with anyone like me, said I was a Zebra, would check with another doc to see what to do with me. What a wasted trip to Dayton, OH, that was. Nothing has changed, so what is next? this is so frustrating, as I am not a complainer and I am fed up. I have had an MRI of the head done, some normal gray matter for a person my age, 73, but all else negative. I am an active normal person, and this started 2 years after my AVR/Aneurysm surgery at Cleveland Clinic 09/4014. I am at a loss. Any suggestions would be so helpful. Thanks.
Good Morning AVR friends. I have so many questions concerning my bovine valve leak, but still am continuing to f/u with my cardiologist for testing. Just had another TEE and stress test done and didn't do well with stress test. TEE was sent to new surgeon, Columbus, OH, Riverside Hospital to review, and I will meet with my doc June 6th to go over all. Have had other complications come up, so to say my spirits are not what they once were, but I try to stay positive on all aspects. The visual problems since open heart continue, and some days are just to much. Does anyone else experience the ocular problems as well as the numbing around the mouth, etc.? I try to keep my mind busy, and that greatly helps. Would like to hear if anyone else experiences these problems. It will be 5 years in September since I had my surgery, and I count each day as a blessing. Hope you are all doing well and have a great summer.
I love reading all your great comments and inspirations. Keep them coming, as it always gives us all a lift in our spirits. We've gone down this recovery road, and it helps to know the good and bad, so we don't feel so alone. Stay positive!!
Merry Christmas! Haven't posted in quite a while, but try to keep up with everyone's postings. My valve leak continues to stay the same, as I continue to have my echo's. Problems with the visual disturbances continue, but I have learned to live with that. Not pleasant, but it is a complication that sometimes happens being on the heart/lung machine. I am on a medication which does help some, but this fall and winter have really been hard on me. Headaches continue, some worse than others, and our weather doesn't help. It is so rewarding to read everyone's posts, and knowing that we continue to pray for speedy recoveries for all. We are a special group, and I for one certainly thank Adam's Blog for getting us together to share our ups and downs. A blessed Merry Christmas to all.
Continuing with echo's every 3 months. Leak is status quo, and heart is not enlarged. Symptoms are about the same, so no complaints. Will wait till my cardiologist says it is time to get my bovine valve replaced. My leak was discovered April, 2017.
Appointment with my surgeon who replaced my bicuspid AV and Aneurysm 09-09-2014 at Cleveland Clinic. Will have testing done on Tuesday, June 27th, and meet with him in the afternoon to discuss my heart valve leak. I have a bovine valve, and my cardiologist, after an echo and TEE, said my leak is moderate to severe. My cardiologist could hear the leak when I went for my nine month checkup. We were going out of town, but he scheduled the echo before I left due to the sound. Has anyone else had a leak this soon? I have been reading as much as I can about it, but doesn't seem to be many out there.
Thanks, Janice Smith, South Charleston, Ohio
Echo and TEE showed I have a moderate to serious valve leakage. Surgery was 09/09/2014, Cleveland Clinic. All info being sent to my surgeon today. Has anyone else encountered this
type of leakage? Have a bicuspid valve. If anyone has had this problem, what was done to
correct it? Thanks.
Sure would be interested in hearing from anyone who has had visual disturbances, gray spots over their eye, dizziness and numbness around their lips, usually one sided, tongue and index fingers. Had more testing done this past week, so waiting on answers, hopefully. Thanks.
My aortic valve replacement and aortic aneurysm surgery was September 9, 2014 at Cleveland Clinic. All went well other than A Fib, but that is gone, and has been for some time. I have felt pretty good, other than hand tremors, vision problems and numbness around my lips, tongue and fingers. Has anyone had these problems?