News Feed For Patients With Heart Valve Disease

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Steve Buffojust updated his profile

4 minutes ago

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Check out the new edits to 'My Story' page by clicking here.

Upcoming Patient Surgeries

Adam Collins
Aortic Regurgitation
July 22, 2019

winston may
Aortic Stenosis
July 22, 2019

Joshua Nowack
Mitral Regurgitation
July 23, 2019

Carlos Banuelosgot a new guestbook post

12 minutes ago

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Mike Roskowinski writes, "Hey Carlos. Yeah I did also find out I was monocuspid also. We are pretty unique people! Good luck in your recovery hope everything is going well for you."

Joe Tarangogot a new guestbook post

14 minutes ago

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Mike Roskowinski writes, "Hey Joe. I needed a pacemaker because I went through complete heart block a few times. I figured it is already there and I can not be fully guaranteed to never have it again so I ... Read more

David Tonksjust updated his profile

2 hours ago

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winston maygot a new guestbook post

5 hours ago

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Erik Jensen writes, "Hi Winston. You're just 2 days away! Good luck on Monday...I'm pulling for you. I hope you have an eventless procedure and a speedy recovery."

winston may Thank you Erik for your kind thoughts.....

Mike Roskowinski Winston good luck with your surgery. We will all be here cheering you on. You will see the recovery is easier than the wait.

Kimberley Anchell posted a photo

5 hours ago

Like | Kirk Bepler likes this

See my other pictures.

Susan Lynn Love it!!! ❤

Kimberley Anchell These were too cute not to share. If ever there was a time when cookie calories don’t count. ;)

Marie Myers Adorable,

Catie B Oh my goodness, are those ever beautiful?? Just great!!

Ruth Rehakposted a photo

11 hours ago

Like | Nancy Feingold, tim miller, Susan Lynn and 1 other likes this

See my other pictures.

Ruth Rehak 5 days post surgery I am up and about and the on my way to recovery..

tim miller awesome job Ruth, hope you continue a speedy recovery.

Susan Lynn Fantastic, Ruth!

Kimberley Anchell Woot woot - way to go, Ruth! Keep up the great work.

Catie B How well I remember those halls! You're doing awesomely, Ruth!

Ruth Rehak You guys are great, thanks so much for the encouragement.

Mike Roskowinski Awesome Ruth. Keep it up it gets easier.

Samantha Pugliesejust updated her profile

12 hours ago

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Rob Scilingoposted an update

21 hours ago

Like | Adam Collins likes this

Had a pretty rough week dealing with the fact that my surgery date is scheduled for August 9th. On one hand I am relieved to have a date and get this thing done. On the other ... Read more

Had a pretty rough week dealing with the fact that my surgery date is scheduled for August 9th. On one hand I am relieved to have a date and get this thing done. On the other hand, I am a mess emotionally dealing with the reality of this whole thing- sad, mad, terrified. Anyway, I posted another video should you want to tune in- I will keep doing this all the way through my surgery and recovery and everything leading up to the big day. Cheers and hope all are well:

https://www.youtube.com/watch?v=5iNma3Qg4Ks

My Aortic Aneurysm Journey- Part 2, The Good, Bad and Ugly

https://www.youtube.com/watch?v=5iNma3Qg4Ks

Week after getting my surgery date and the emotional roller coaster.

Adam Collins I know that feeling. Once I got the date, everything started feeling a whole lot more real.

Jeff Baker I remember when I had 30+ days until surgery, now it's 17. Each day creeps a little closer "sigh."

Ruth Rehak Rob, you are not alone with this. I am 5 days post surgery. What really helped me with listening to guided imagery. Check out Belleruth Naparstek and heer Succeessful ... Read more

Ruth Rehak Rob, you are not alone with this. I am 5 days post surgery. What really helped me with listening to guided imagery. Check out Belleruth Naparstek and heer Succeessful Surgery that you can download. Itheelped me a lot. Best wishes!

Kirk Bepler Rob, I know exactly what your going through. It's a bumpy road but you just have to know you will get through it and on the road to recovery..

Kaaren Caroneposted a journal

21 hours ago

Like | Monica McCaa, Rose Madura, Carlos Banuelos and 3 others like this

Home safely.

All done! New tissue valve a week ago today, no complications. Time to heal. Best wishes to you all.

Jeff Baker Hi Kaaren, glad you had a successful surgery and had no complications.

Marie Myers Congratulations! Now you can rest and heal.

Kirk Bepler Congratulations.....

Kimberley Anchell Glad to hear your recovery is underway - congratulations

Catie B Beautiful news!

Mike Roskowinski Congrats Karen. It is the best thing to get home.

Monica McCaaposted a journal

22 hours ago

Like | Meredith Bray and 1 other likes this

1 week post op

I returned to Cleveland Clinic today for my 1 week follow up . I apparently didn’t look like someone who just had OHS. I don’t know rather to smile about that or not .
Doctor... Read more

I returned to Cleveland Clinic today for my 1 week follow up . I apparently didn’t look like someone who just had OHS. I don’t know rather to smile about that or not .
Doctor was pleased with my progress and activity . I’ve been really concerned about my chest appearance since the surgery but the doctor assured me that the girls would return to normal ! I know I’m thankful to be alive but I do try to take care of myself as well.
Doctor removed my drain tube stich today and unless there is a setback I won’t go back until August 19 .

tim miller Great news! Glad you are doing great and hope you continue to.

Mike Roskowinski That is great news. It will take a little time to heal but you will get there. Keep up the great recovery

Monica McCaaposted a photo

22 hours ago

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See my other pictures.

Nicole DuPontposted a journal

1 day ago

Like | Tim Saint , Carlos Banuelos, Susan Richards and 2 others like this

Perspective

My friend died today. She was 46 and her breast cancer metastasized. My 2 friends called today and said they would fly to be with her husband and kids instead of flying to be with ... Read more

My friend died today. She was 46 and her breast cancer metastasized. My 2 friends called today and said they would fly to be with her husband and kids instead of flying to be with me for my surgery on Friday, and would I be ok. I said of course I will be ok, please be with them, and let them know I wish I could be there too. I reiterated that I will be fine. After I hung up, I thought about how lucky I am to have what amounts to a mechanical problem. I am not looking forward to surgery or recovery, but I will be fixed so I can live another 30-40 years. Aren’t we lucky?

Jeff Baker Hi Nicole, it could definitely be worse. Sorry to hear about your friend.

Mike Roskowinski Nicole sorry to hear about your loss. Definitely things could be worse for us. At least our issues can be fixed while some people’s are not. Prayers to you for a good surgery

Joey Hardee Very sorry, Nicole. I know that is hard especially because you want to be there too. I told my wife before surgery that I had already lived an awesome life ... Read more

Joey Hardee Very sorry, Nicole. I know that is hard especially because you want to be there too. I told my wife before surgery that I had already lived an awesome life for 55 years and to think they can fix me and extend my life is a wonderful blessing.

Susan Richards I have had those thoughts many, many times. I actually know three people right now who are waiting for a kidney donor. One of them is only 30 and this is her ... Read more

Susan Richards I have had those thoughts many, many times. I actually know three people right now who are waiting for a kidney donor. One of them is only 30 and this is her second one.
So sorry for the loss of your friend.

Erik Jensen I'm so sorry for your loss, Nicole. I'm also sorry you're losing part of your on-site support group for your surgery but it's amazing to have friends so willing ... Read more

Erik Jensen I'm so sorry for your loss, Nicole. I'm also sorry you're losing part of your on-site support group for your surgery but it's amazing to have friends so willing to travel to be there for you, now your deceased friend's family. I have a good friend who just went through prostate cancer surgery on Tuesday and I too found myself feeling fortunate, all things considered. Best of luck to a successful surgery and recovery, and I hope your friend's family finds peace.

Marie Myers Sorry to hear about your friend. It does throw a whole new light on your own upcoming surgery, doesn’t it?

Christi Harrington I'm sorry for your loss. I am really glad to hear that you are still feeling loved and supported in your journey.

Barbara Wood I'm so sorry about your friend Nicole - I'm a 9 year stage 3 breast cancer survivor, my valve & heart rhythm problems were caused by my treatment...but I know ... Read more

Barbara Wood I'm so sorry about your friend Nicole - I'm a 9 year stage 3 breast cancer survivor, my valve & heart rhythm problems were caused by my treatment...but I know I'm so fortunate to still be here. Very best wishes for a successful surgery & a smooth recovery!

Kimberley Anchell Ahh - Nicole - Thanks for sharing that story. I have a feeling that there will be several data points that reinforce how lucky we are to be eligible for OHS. ... Read more

Kimberley Anchell Ahh - Nicole - Thanks for sharing that story. I have a feeling that there will be several data points that reinforce how lucky we are to be eligible for OHS. I’m sorry for your loss - please know that we are many prayers are being said for you and your family.

tim millerjust updated his profile

1 day ago

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Ripley Casdorphgot a new guestbook post

1 day ago

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Ruth Rehak writes, "Ripley, it was great to see you yesterday and today! You are such an inspiration to me, your walking up the hall to my room was what made me get up and walk to day. I'm sure you will be back on your bike and I will be back on mine in no time. NIce that we could share this journey."

Laura Hollenbaughjust updated her profile

1 day ago

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Check out the new edits to 'My Story' page by clicking here.

Ruth Rehakgot a new guestbook post

1 day ago

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Frank DeGrazia writes, "Ruth,
By the sound of the comments below, you made to the other side in flying colors! Hopefully all is still going well and your feeling stronger every day."

LA Heatleygot a new guestbook post

1 day ago

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Jeff Baker writes, "Hi LA, we have a lot in common as I have Mitral Valve repair surgery coming up soon."

LA Heatleyjust updated her profile

1 day ago

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Check out the new edits to 'My Story' page by clicking here.

Robert Thompsonposted an update

1 day ago

Like | Susan Lynn, Bradley Dunn, Adam Collins and 1 other likes this

Hello everyone, After my AVR surgery in 2012, I started experiencing more frequent ocular migraines and strange seemingly random woozy spells. I was really worried because I ... Read more

Hello everyone, After my AVR surgery in 2012, I started experiencing more frequent ocular migraines and strange seemingly random woozy spells. I was really worried because I thought it was heart related. I told my PCP and cardiologist and they wrote it off as low blood sugar or lack of sleep.

A friend of mine is an Airman and drone pilot. I told him about my spells and he very casually said, "Oh yea, digital dizziness.. half the guys in our unit get it from staring down at the computer training simulations." I looked up digital dizziness, which is also referred to as cyber sickness, and it is eerily similar to what I feel and is more prominent among migraine suffers. I am frequently looking down at my phone and watching video for work and play.

Just throwing this out there in hopes of relieving someones worry.

https://well.blogs.nytimes.com/2015/11/14/feeling-woozy-it-may-be-cyber-sickness/