Relieved. My angiogram is done and my arteries are clear. Valve is very tight and so we move forward. I have Surgeon appointment on Thursday to discuss replacement. Thank you all for your prayers and well wishes.
Feeling anxious and nervous about my angiogram tomorrow. Didn’t have a good experience when I had one done previously. Just can’t wait for it to be done and over. It’s one of those things, that in the grand scheme of things isn’t a big deal but in my head, it is a big deal. Praying I have clean arteries.
I am waiting for the phone to ring to provide my dates for angiogram and surgery. I jump every time. So far, it’s been a guy to replace windows, a duct cleaning service and my bank with a new, great offer. I feel like I’m in high school waiting for the cute guy that I like to call me. Any minute now, I’m calling someone to check my phone is working. I now realize I’m not as patient as I thought and definitely not good waiting for phone calls. Gods blessings to everyone having surgery this week!
Saw the Surgeon today. Dr. Chu, Hamilton General Hospital. They are a “centre of Excellence “ for complex cardiac surgery. I. really liked him. He took his time answering our questions and provided good rationale for his recommendations. Bovine tissue valve. Done sooner than later. I am being scheduled for an angiogram and surgery will be shortly after that. I am feeling better now that I have met the surgeon and he has confirmed the time for surgery is now. Thank you to everyone for your support, the sharing of your experiences and most of all prayers.
Referral was done for surgeon on August 2 and I have heard nothing. I’m probably being way too impatient but seriously, I just want to get this over with now. I realize there are people with more critical situations than me and this guy has a longer wait period than others. So if you want the best you have to wait.
I’m also frustrated at my level of fatigue. I’m good after first waking up and then a few hours later I just want to nap. So the weeds in our flowerbeds are flourishing, our garden shed is still not painted and my quilting lies by my sewing machine incomplete. This is so not me!! As a result I am cranky and my darling husband, who has been a superstar, has decided wisely to go help our daughter take down a fence and give me some space. Tomorrow is truly another day and spending time in Gods house will definitely lift my spirits. Good luck to everyone having surgery this week and I’m only slightly bitter that it’s not me. Keep smiling and ticking
Saw my Cardiologist today and my watch and wait period is over. He is referring me to a surgeon for a aortic valve replacement. I am surprisingly calm and I think it is due to all the experiences and information you have all shared so generously. Thank you to everyone but especially Adam for this site. Now I just wait for the appt.
Im having severe dizziness when I first wake up. It makes me feel nauseous for an hour or so. I seem ok the rest of th day. I am on a cpap for sleep apnea. Coul this be a symptom of my BAV or am I being a hypochondriac.? Its been happening consistently over the last week.
I have asymptomatic AS. Lately I have been sporadically having this feeling of not being able to take a deep breath. Is this a common experience? Its not tiec in with exertion. Thank you to everyone for sharing!
Wishing all the folks on this site a wonderful year of improved health, lots of love, joy and laughter. You are my inspiration every day. Your courage amazes me. May God Bless you and keep you strong my "heart" friends.
Saw my Cardiologist today and I continue to be asymptomatic. So, I continue the watch and wait heart journey. He will see me again August 2nd for an echo. I usually see him every two months, so I'm happy for the break. Good luck and God Bless to all who are facing surgery or in recovery mode. I know my day will come so continue your encouraging words and posts.
Today I would like to take a moment to remember all veterans and their families and thank them for their sacrifice. My Dad died on Remembrance day, 1 year ago today. He was 16 when he served in the British Royal Air Force, stationed in Singapore. Like many vets, he didn't talk much about it but felt he did the right thing. He later married my Mom and raised three children and had a successful career with I.B.M. I was the only daughter and I like to think we had a special bond. He was a loud, funny Irish man who was excellent at storytelling with the required exaggerations, very often at his family's expense. I miss him every day and today as we get together for a family dinner we will remember him with a few tears and many moments of laughter. So many good memories.
This is my Oh Canada quilt. Each panel represents a Province or Territory.
Journal posted on September 19, 2017
The change in blood pressure meds. Has improved heart function. I am completely off Ramipril. I am back in moderate range. I'm so excited and thrilled. Cardiologist tempered my excitement by saying it was just delaying the inevitable surgery (Debbie Downer). No prediction of when but has bought me enough time to go to Mexico for my son's wedding. I see Cardiologist again in December. Prayers have been answered. Many thanks to everyone who has sent me such kind words.
Good news, my fatigue has lessened now that im taking less blood pressure meds. However im having these random chest pains. They only last for a few seconds, right by my sternum. Not unbearably painful, just annoying. Not sure if they are a symptom or not. Has anyone els experienced this? Seeing Cardiologist for another eho on Spt. 19.
Finally got a call from Cardiologist to set up appt. Yet again. Unfortunately, im away this week at the cottage for our annual family vacation, so will be seeing him the following week. Pretty sure he will be sending me on my AVR journey. Stay tuned as my heart adventure unfolds!
Saw my GP yesterday and was qjite thrilled to show her how low my blood pressure readings were. She wasnt quite as exvited. Sh views it as an indication that my valve is not pusing through enough blood. Kidney function is now declining ss well and she thinks its related. On top of that we have disovered I have an under active thyroid omore meds for that. Plan is to confrrenc with my Cardiologist when he returns from holidays and get vlve replaced sooner rathr than later. Just hoping its safd to delay until mid-October so ican be at my sons wedding.
Heart monitor is off and I am awaiting results. Hopefully will hear something early in the week. I'm finding my fatigue is my main symptom and it's so frustrating. I could always go go go all day but now by lunchtime I need a nap. It's really impacting my lifestyle. However, on the other hand, I'm grateful it can be fixed when the time comes. Praying for peace and acceptance on a daily basis.
Had a great week in Ontario cottage country. Now back to reality. Heart monitor gets installed tomorrow. Not exactly my idea of a pretty accessory.
Maybe I should use some glitter on it. After all I have to wear it for my birthday dinner. New dress, sexy shoes and a heart monitor. Doesn't get much better than that
Happy 150th Canada Day to all the Canadians on this site and Happy 4th of July to our American friends. I'm heading for cottage country to celebrate for one week and take a break from the medical appointments. . Then back on a heart monitor when I return. Hoping all the folks with upcoming surgery dates do well and have swift recoveries. Keep Ticking! ))
Echo confirmed that my AS is now severe. I have no symptoms as yet so we are continuing to monitor. I have Holter monitor on for three days as a further check. Anyone else have asymptomatic severe AS? I would love to hear what your experience was.
The closer I get to the stress echo on Tuesday, the more anxious I get. Its the waiting to actually have confirmation that I need the surgery. My Cardiologist is doing it so I am hopeful I will know on Tuesday whether I am back to watchful waiting or on my way to the operating room.
Scheduled for stress echo on June 6 at 7 a.m. not sure if I want it to confirm my AS is severe or not. I have lived with it for 62 years. My echo last week showed it had changed from moderate to severe. Seems strange tht it would change so drastically in six months.