Jeanette 's Guestbook

Terrie Syvertsen posted a note for Jeanette that says: Jeanette! Just read your great news and also learned about your new grandchild.
I am very Happy for you and your Family for all of the good things life has to offer.
I knew from the first time I saw your beautiful smile that you are an exceptional
Woman.....many whom I have met as part of our "Community" here at HVS.
I think that you have shown such strength, positive energy and what "Life" can be
when you have a healthy focus, faith and so many people who love you. I wish you
a great visit with your Family and continued "Good News" along this path.

Judy Stokes posted a note for Jeanette that says: That is great news. Now you wonder which dr is right!! You just have to put all this aside and enjoy life. Your body will let you know when time is right. God is Good !!!

Robyn Tatu posted a note for Jeanette that says: Thinking of you today, Jeanette. Looking forward to having you check in when you can.

Maria posted a note for Jeanette that says: Dear Jeanette,
God bless you! I will keep you in my prayers as you face these next challenges. I do not want to cause you more churn, but just in case it helps... I wanted to share that my husband had minimally invasive mitral valve repair surgery at Cleveland Clinic, and unfortunately, his mitral valve started severe leaking again after 9 months. Fortunately, at this time he is asymptomatic. We had one of the best surgeons there for that surgery; sometimes things just don't stay fixed. We also were not able to get a firm reason for the re-leak. After all that, I discovered that some hospitals claim to have better diagnostics, including a 3D echo. I believe that Mt. Sinai hospital in NY has it. 3D echo will be our plan when my husband's re-surgery is needed.

Judy Stokes posted a note for Jeanette that says: Hi Jeanette, sorry to hear you are having such a problem regarding the heart valve. I am waiting for a date for surgery at Cleveland Clinic. I have been diagnosed with severe aorta stenosis. Was in hospital for a week with CHF. While there they did all testing to see if I qualified for the TAVR procedure. I did since I have COPD and other health issues. I have all the symptoms. Short of breath, swollen ankles and feet plus extreme fatigue. Dr Navia is my surgeon and Dr White is interventional cardiologist.
I don't know whether they could help you but they do high risk surgery. And I assume that's what you need. I will continue to pray for you. We know that God is in control.

Diana posted a note for Jeanette that says: Hi Stage 4B 1979 at age 15. 5 years ago Heart murmur moderate to severe asymptomatic. Colonoscopy cancer 2012 stage 4 from Hodgkins radiation.

Patrick Dowd posted a note for Jeanette that says: Glad to hear you have some time to think and plan. CC sounds perfect. In your place I would choose between CC and Northwestern. Their outcomes look the best with special challenges. Best wishes in your search. Glad to hear you are going to CC. That's a wise decision. Pat

Enrique K posted a note for Jeanette that says: Hello my dear Jeanette, I also had aortic regurgitation prior to surgery. It also felt like arrhythmia as an abnormal heart rhythm, fatigue and got out of breath with any type of strenuous activity. I will be praying for you for a positive outcome! Hope things get right for you once and for all. Sending you a big hug!

Robyn Tatu posted a note for Jeanette that says: Hey Jeanette - I am so interested to hear what your diagnosis will be and how the doctors wish to treat you. I also have a 'babe' aortic valve (April 2015). My journey was certainly not textbook and it looks like yours will also be out of the norm. Thanks for keeping us updated. Praying for guidance for your doctors and peace for you.

Jacqueline Cook posted a note for Jeanette that says: Continuing to keep you in my prayers....

Eddie Patton posted a note for Jeanette that says: May God bless you as you go through this again. I'll see you on the others side once more and hopefully I won't have to say that again!

Steve Salvador posted a note for Jeanette that says: Hey Jeanette, I know I haven't been on here a long while, some how I decided to look back into this Heart Community. Then 'you' I've noticed, I'm sorry that you had to go through this again, wow !! Take Care Jean, I'm sure the good Lord will take care of you, you will be in my prayers !!

Ashok Vaid posted a note for Jeanette that says: Hello

Thank you for your thoughtful update ! May I ask the initial valve choice you had ? are you choosing a mechanical valve or considering the ross procedure

Eddie Patton posted a note for Jeanette that says: My mended heart and prayers go out to you as you once again face surgery. I hope tavr turns out to be all that is promised and you finally get past this. Your attitude is an inspiration. Looking forward to hearing from you once again on the other side.

Amelia Pet re -gran73rox2@yahoo.comtre posted a note for Jeanette that says: Hi Jeanette
My name is Amelia Petre. I had open heart surgery Sept 13, 2016. I had my Aorta Valve replaced with a Cow's valve. I am 76 years young and doing well! I live in Ridgefield, CT.
Hope you are doing well too!

Barbara Young posted a note for Jeanette that says: Hi Jeanette, I have just passed my 5year anniversary of aortic valve replacement and had my annual check up. My consultant has told me previously that I still have a pronounced murmur but he now tells me that my new (tissue) valve is leaking! . I am now awaiting echo and other tests to establish the severity of the problem and he has warned me that repeat surgery is likely to be sooner rather than later. I was petrified by the prospect of surgery fiurst time around and my recovery was long and not smooth. I sm not sure I can go through all that again. I really admire your positive outlook and wish you well in whatever the future holds for you.
By the way, I live in UK but would love to follow your progress.

Danny Watson posted a note for Jeanette that says: This is my one year anniversary for my Tavr. Seem to be doing great. Good luck and blessing your way.

Enrique K posted a note for Jeanette that says: Dear Jeanette, how is everything going on your end? Did you get the answer you needed? Let me know if I can be of any help.

Jacqueline Cook posted a note for Jeanette that says: Hi Jeanette...I am so sorry to read this news. Please know I am keeping you in my thoughts and prayers. Your Heart Sister, Jacqueline

ms posted a note for Jeanette that says: ....to be clear on the message I just sent...I had the echo b/c I was very concerned my symptoms were related to something going on with my new AV...after my echo revealed nothing abnormal, my GP diagnosed the respiratory issue and symptoms were treated :-)

ms posted a note for Jeanette that says: Hi Jeanette. Responding to your post from a couple days ago. I had AVR in Aug 2015, tissue valve. Around this time last year started getting short of breath, especially on walks but sometimes at rest, which felt like my bad symptoms just before surgery. Turns out I had some inflammation of my respiratory tract (never had had allergies, asthma, or such symptoms ever). Had an unscheduled echo b/c of this--all normal. My GP ended up prescribing some meds (incl. inhaler) which I took for a week; symptoms went away, I stopped the meds, and symptoms haven't returned. The point is, there are other reasons besides your heart you might be having symptoms. Pollen counts where I am in central FL are high now, and this might be a factor...Also, I was told post surgery I still had a murmur, but obviously one much less serious than pre-surgery. I believe this is not uncommon--that people might still have a (benign) murmur after surgery. Get checked out by your doctors so you can find out for certain what is going on. I wish you well!

Terrie Syvertsen posted a note for Jeanette that says: Hello Jeanette- It has been awhile since I have been online to the HVS.com community and my reading one of your posts prompted me to write to one....see how you are doing and to Two.....see if you have the time drop me a line at tsyvertsen1@sbcglobal.net as I want to communicate about a couple of things that don't relate to our heart site specifically. Hope this finds you well and happy.
Terrie

Rob Gundlach posted a note for Jeanette that says: I am new to the site and recognized your name. Did you teach 4th grade at Coral Reef Elementary?

steven a husted posted a note for Jeanette that says: yes give yourself time to heal i know so many of us try to rush the healing but i remember what adams wife said to adam dont rush it give it time to heal i was glad adam told me this it made me slow down

steven a husted posted a note for Jeanette that says: yes i had a lot of back and shoulder pain after surgery and my doctor in rehab hospital gave me a pain patch stuck on my back after about three weeks it went away

Naomi Ivker posted a note for Jeanette that says: Just wanted to let you know how much it has helped me to follow your story. There don't seem to be many post Hodgkins valve replacements out there although I know that isn't the case. Part of me is incredibly grateful to be given another chance at life, again! Very blessed. Sometimes I get in a bad spot waiting for the other shoe to drop. Your faith is inspiring. Hope you are feeling well

Lynne Ladd posted a note for Jeanette that says: Hi Jeannette - I am 11 days behind you in recovery. I had Mitral Valve Repair on July 17th. Doctors are pleased with my progress. I am looking for support and encouragement and your Blog is full of that. Lots of folks out there at various stages of recovery. So I am 4 weeks today. I have been able to go without pain meds for 2 days now. A dramatic change from last week. Am starting to stretch my arms a bit. Have you or any of your followers done any movements like that to increase flexibility? I cannot imagine walking miles... HaHa! I am like a slug. Look forward to any feedback other heart patients can share.

Naomi Ivker posted a note for Jeanette that says: Jeanette,
I was very interested to read, and very inspired by your story. I, too, have aortic stenosis as a result of treatment for Hodgkins disease 25 years ago. I am not complaining, the treatment was better than no treatment! I do find it interesting how little they know about the progression of stenosis caused by radiation. In my case, it progressed much faster than they thought. I am looking forward to having the valve replaced and getting back to life. I really appreciate having gotten to read your story.

Mary Myers posted a note for Jeanette that says: Jeanette, I have a St. Jude piggy valve. I always say my piggy valve, guess I need to name mine! I also am high on life. Rest,relax and baby steps.

Mary Myers posted a note for Jeanette that says: Jeanette, am so happy that you are doing well. Hope your sleep is settling. I didnot sleep well for 21 days. I.joke that my new heart valve was like a new born, had to wake up constantly durung the night. I found if I take benadryl 25 mg. Or 50mg. ,that I sleep well. Sometimes I add tylenol too. Absolutely no caffeine after noon. Thank you heart sister for always focusing on the positive!!! I just had my one year heart anniversary on the 29th! Am doing very well. So thankful and blessed. Love you my dear heart sis.
Mary (Mia)

Mary Myers posted a note for Jeanette that says: Jeanette, am so happy that you are doing well. Hope your sleep is settling. I didnot sleep well for 21 days. I.joke that my new heart valve was like a new born, had to wake up constantly durung the night. I found if I take benadryl 25 mg. Or 50mg. ,that I sleep well. Sometimes I add tylenol too. Absolutely no caffeine after noon. Thank you heart sister for always focusing on the positive!!! I just had my one year heart anniversary on the 29th! Am doing very well. So thankful and blessed. Love you my dear heart sis.
Mary (Mia)

Sherry Nichols posted a note for Jeanette that says: Hi Jeanette I have read your journal from the beginning to present and alot of your comments/ encouragement that you give to others. You are truly heaven sent!!!!! I feel so encouraged and blessed just reading your journal. Reading it has also helped me put my faith back in the front. I had allowed fear to take over after learning that I need a triple bypass and my mitral and aorotic valves replaced. I to have had a challenging life. After a bad marriage, I've raised 4 children (ages now 28, 26, 20 and 16) as a single parent (it was only God that helped me through that lol), I was diagnosed with discoid lupus in 1994 ( which has been a battle in itself), in 2010 I had a stroke (tia), in 2012 I had a stent and now the Open heart surgery. God has seen me through it all and I know he's going to continue to see me through. You are a true blessing for me and you and your story has put me back on the right track. Thanks Jeanette keep on keeping on!!!! Praying for the best and fast recovery for you. You look beautiful God bless
Sherry Nichols

Jackie🌸 posted a note for Jeanette that says: Jeanette,
I am so happy to see that everything went well for you.😊
You look beautiful, even in a hospital gown!💜 Prayers for a quick, complete healing for you and your heart brothers and sisters.

Mary K posted a note for Jeanette that says: Praying for you, Jeanette.

Praying for you, Jeanette! God Bless You.....

Terrie Syvertsen posted a note for Jeanette that says: Hello Jeanette/Greg? Sure would love to hear how you are doing Heart Sister.......
Sending continued prayers and positive energy your way that all is going well and want you to
know that the community is thinking about you!

Lora Lee Peterson posted a note for Jeanette that says: Jeanette, I am missing your upbeat personality I hope you are doing okay! Thinking about you a lot! My prayers are with you!

Jackie posted a note for Jeanette that says: Such wonderful news! Continued prayers for a quick and complete recovery.💗

Terrie Syvertsen posted a note for Jeanette that says: Jeanette-I was up early as usual. Gary left for work at the same time you were planning to leave for the hospital. I made some coffee and sat out on the back porch letting Hunter out and the air was crisp and the trees were wiggling in the wind. It was a gentle wind and I drank my coffee in silence thinking of what at big day you have ahead of you today. I was back in the house and waited for your 5 o'clock start time and hoped you had made it to the hospital safe and that they were prepping you on time and fully awake and ready to go! Then I envisioned a group of people all really upbeat and all business and you sailing in on the whispers of the many people praying for you and the success of your surgery today. Things were looking good then and I pray are going well now! I am excited that you are no longer going to have to wait and that you have a healing time and recovery to look forward to soon.......Bless you this day Jeanette and know the hearts of many are with you on this journey!

Julie McDonald-Lundgren posted a note for Jeanette that says: Thinking of you, prayers for a successful surgery and restful recovery!

Julie McDonald-Lundgren posted a note for Jeanette that says: Thinking of you, prayers for a successful surgery and restful recovery!

Kimberly Biddick posted a note for Jeanette that says: many prayers for a smooth surgery and recovery tomorrow!! 💗

Jackie🌸 posted a note for Jeanette that says: Jeannette,
May tomorrow pass by quickly for you, so you can be on your way to a quick recovery. 😊
I will be praying for you and your family, as you begin your journey tomorrow. Sending out positive, healing thoughts. 💕

Hi Jeanette!
I am in St. Louis, since Wednesday, and will be driving back to MN,all day, tomorrow. Praying that your surgery goes smoothly and that you have a steady recovery. God Bless You!

Mary Myers posted a note for Jeanette that says: Jeanette,

Thinking of you and sending prayers for you tonight and tomorrow. I am almost one year post op from mitral valve replacement. I am a bit older than you, just turned 59!
The night before my surgery I could not get to sleep. It was midnight before I could settle. Talked or texted family members then off to bed. That night I could not even talk to my sister, as I was choked up. Had a few moments before the surgery when I was negative. Then pulled it together. I did remind myself that it was no big deal to not sleep as the day of surgery I would be getting a lot of sleep.

I am very grateful and thankful to have found this wonderful heart family. I discovered it about one month before surgery. Adam's book really prepared me for post op. All the posts from our heart brothers and sisters really helped me. I have become very close to many of the heart sisters and brothers.

You will do wonderful! Please have your hubby post your heart family, as we will all be awaiting the news that surgery is completed and your on the road to healing.

God bless you Jeanette. If I can be of any help pleased email me at kidsjunction@gmail.com

Your heart sister,
Mary from Michigan

Eddie Patton posted a note for Jeanette that says: Good luck Jeanette, hope all goes well and you are off and running with you new life soon.

Terrie Syvertsen posted a note for Jeanette that says: Hello Jeanette-Happy 4th of July! Wanted you to know I was thinking about you and sending positive energy your way!

Meredith Bray posted a note for Jeanette that says: Hey Jeanette! Have you reached the point yet where you just want to drive yourself to the hospital and crawl on the table and say, "Get it done and over with already!" :) Glad you've got your pre-op stuff out of the way, although that just kind of makes it more real. Enjoy your weekend, bask in His Light, cook a few things to throw in the freezer, and practice breathing deep and walking tall. Looking forward to hearing from you next week!
-Meredith

Mary K posted a note for Jeanette that says: Hi Jeanette, I cannot really tell from your blog here whether you have your date or not it sounds like you do but I do not see it. Glad to see you're getting ready to go, if you like music you might want to consider bringing something that will play music for you. there was a television in my room, but frankly I just did not Have the energy or the interest in anything that was on it.

Jackie posted a note for Jeanette that says: Jeannette,
What a wonderful outlook! So glad you have your date set. Get the surgery over, so the healing can begin.😊Then you will be able to continue to make the world a better place for others. You are such a caring person! Now, it is your time to be cared for. We will be praying for you.🙏🏻