Jeanette 's Guestbook

Jeanette! Just read your great news and also learned about your new grandchild. I am very Happy for you and your Family for all of the good things life has to offer. I knew from the first time I saw your beautiful smile that you are an exceptional Woman.....many whom I have met as part of our "Community" here at HVS. I think that you have shown such strength, positive energy and what "Life" can be when you have a healthy focus, faith and so many people who love you. I wish you a great visit with your Family and continued "Good News" along this path.

That is great news. Now you wonder which dr is right!! You just have to put all this aside and enjoy life. Your body will let you know when time is right. God is Good !!!

Dear Jeanette, God bless you! I will keep you in my prayers as you face these next challenges. I do not want to cause you more churn, but just in case it helps... I wanted to share that my husband had minimally invasive mitral valve repair surgery at Cleveland Clinic, and unfortunately, his mitral valve started severe leaking again after 9 months. Fortunately, at this time he is asymptomatic. We had one of the best surgeons there for that surgery; sometimes things just don't stay fixed. We also were not able to get a firm reason for the re-leak. After all that, I discovered that some hospitals claim to have better diagnostics, including a 3D echo. I believe that Mt. Sinai hospital in NY has it. 3D echo will be our plan when my husband's re-surgery is needed.

Hi Jeanette, sorry to hear you are having such a problem regarding the heart valve. I am waiting for a date for surgery at Cleveland Clinic. I have been diagnosed with severe aorta stenosis. Was in hospital for a week with CHF. While there they did all testing to see if I qualified for the TAVR procedure. I did since I have COPD and other health issues. I have all the symptoms. Short of breath, swollen ankles and feet plus extreme fatigue. Dr Navia is my surgeon and Dr White is interventional cardiologist. I don't know whether they could help you but they do high risk surgery. And I assume that's what you need. I will continue to pray for you. We know that God is in control.

Glad to hear you have some time to think and plan. CC sounds perfect. In your place I would choose between CC and Northwestern. Their outcomes look the best with special challenges. Best wishes in your search. Glad to hear you are going to CC. That's a wise decision. Pat

Hello my dear Jeanette, I also had aortic regurgitation prior to surgery. It also felt like arrhythmia as an abnormal heart rhythm, fatigue and got out of breath with any type of strenuous activity. I will be praying for you for a positive outcome! Hope things get right for you once and for all. Sending you a big hug!

Hey Jeanette - I am so interested to hear what your diagnosis will be and how the doctors wish to treat you. I also have a 'babe' aortic valve (April 2015). My journey was certainly not textbook and it looks like yours will also be out of the norm. Thanks for keeping us updated. Praying for guidance for your doctors and peace for you.