Diane's Profile

My story starts in 1989, age 34, with a diagnosis of: Mitral valve prolaspe Mitral regurgitation Aortic Insufficiency Hyperkinetic L ventricular systolic function I was told then, it would just be monitored annually with an echo, but not to surprised if I needed surgery within 5 years. My primary complaint for all these years has been fatigue. That was always written off as being busy, "everyone is tired", you have two kids, you work full time, etc. I was convinced I had Chronic Fatigue Syndrome, even though I'm very aware that is a catch all diagnosis for when they can't find the reason you are tired. Now, 2015, age 60, not working due to fatigue and hip osteoarthritis. My last echo had changed enough to switch from being monitored every 3-6 months. I called last week due to mild shortness of breath, (SOB), after meals. I am on 20 mg. of Lasix which has gotten rid of the SOB after meals, but has done nothing for the exhausting fatigue. My next appointment is Monday (Aug. 3) and I have a lot to discuss. I have not been referred to a surgeon at this point. My cardiologist has always stated that as soon as I'm referred they will do surgery, but he thinks it's best to control it with medication as long as the heart muscle is not being damaged. I have not checked into eligibility for disability but I want to start asking about it and see if that is an option.