Lilly's Heart Valve Journal

Has anyone experienced these symptoms? Just heard my step-daughter has these symptoms and we’re concerned. She’s under doctors care and looking into it. But it’s always helpful to hear peoples’ experiences with various symptoms. Thank you!

Hard to believe that today, Dec 14, 2018, will be 4 years since my heart valve replacement! My heart is doing really well, so grateful! thanks to my incredible heart surgeon, Dr. Sharo Raissi!

Not so great news, 2018 has been quite a roller coaster ride! I've been preoccupied with a new problem. I’ve spoken about in my journals. My symptoms started out with migraines, pressure headaches as if my head was in a vice grip, pain on the left side of my head including left ear tinnitus, and panic/anxiety attacks that I thought were seizures. I thought my body was giving up! There were multiple symptoms, and I felt vulnerable and sensitive to everything. The tinnitus was freaking me out, causing major anxiety, and would get quite loud in my left ear. An ear plug in my left ear is helpful as I’ve become very sensitive to noise, which also causes the head pain.
In the midst of all this, I went to 5 different doctors, my GP, an ENT doctor, 2 neurologists and a neuro surgeon. The 1st Neurologist took multiple tests, and basically found nothing! The 2nd neurologist found a benign meningioma tumor in my brain and about 10 punctuate microhemorrhages. He prescribed anti-depressants! But I refuse to take them. I am not depressed….I just want to know what is going on so I can fix it! He also said that the microhemorrhages are from the heart surgery, but the Neurosurgeon says that it is typical for an aging brain. I am 67 yrs old! The neuro surgeon recommended that I see him in a year with a new MRI to compare with the one from last year. And that’s all I can do for now besides maintaining my health by eating right, getting enough sleep on a nightly basis and exercising.
After several months of frustration and devastation, sickness and generally feeling at a loss, I have finally come to terms with myself. It’s been difficult, but it could have been worse. So I dusted myself off, pulled myself together and put things into perspective! I also found a great formula that is working for me, keeping migraines and pressure headaches at an all-time low. I sleep better and I feel better. I meditate, walk more often, and eat healthier. My headaches, migraines, and symptoms were greatly reduced! CBD is my miracle medication. I take half a dropper under my tongue each night, and I vape a mixture of CBD, & CBG throughout the day. It keeps me calm, headache free, and I can sleep at night! No side effects whatsoever, so awesome! It helps with arthritic pain, inflammation, nausea, and mood. It also helps keep the tinnitus volume low. As long as I can sleep and manage my headaches and migraines, the tinnitus is more manageable! I am hanging in there!
Back in July 2018, saw my cardiologist’s assistant, and all is great with my heart! I am due for an Echo next July 2019. My only problem is a bit of tightness in my chest when walking on an incline, but it doesn’t stop me from doing anything that I want to do. I am grateful every day for 4 successful heart years! I wish all of you the best experience. It is a journey that no one else can understand except for us, who have gone through it…..we are heart warriors! May you enjoy the holiday season…this too shall pass…..one day at a time!

Hard to believe that today, Dec 14, 2018, will be 4 years since my heart valve replacement! My heart is doing really well, so grateful! thanks to my incredible heart surgeon, Dr. Sharo Raissi! Here I am at the Heart Walk….still want to give back and pay

My heart is doing well. No problems at all. However for the last 9 months, I have been suffering with Migraines and Tinnitus. My Surgeon authorized an MRI/MRA exam, which was completed at the end of April 2018.

Before I get into further details, I want to share my most recent great discovery, which helped with my head migraines, stomach migraines, anxiety, insomnia, and heart flutter - CBD (Cannabidiol)! I have been using CBD Oil since May 2018. I place 1/3 of a dropper under my tongue, every night before I go to bed. After lunch, I take another 1/4 dropper under my tongue. CBD has reduced my migraines substantially, which also reduces the intensity of the Tinnitus.

Now for the gruesome details....after seeing 2 Neurologists, the first one said I was normal no problems found. He took multiple tests: Carotid ultrasound, blood sedimentation test, EEG, and EKG and confirmed they were normal. So I asked him, so why am I still suffering? (this was before I started CBD)

The 2nd Neurologist reviewed the MRI/MRA carefully. There were no aneurysms, however he confirmed there were multiple cerebral microhemorrhages due to the Cardiopulmonary bypass machine! He also saw a benign brain tumor situated in the front of my brain. Even while I am writing this, it's so hard to digest! He said the benign brain tumor is nothing to be concerned about. Really? He also said that 1 out of 20 people my age (66) have benign brain tumors. Hard to believe, but he is a Neurologist who studied at Harvard.

QUESTION: can anyone on this site relate? have you been diagnosed with cerebral microhemorrhages? or benign brain tumor?

In addition, the 2nd Neurologist prescribed anti-depressant medication called Amitriptyline. I have not taken it nor do I plan to. When I read the side affects, and risks, I called back his office. I have NEVER taken an antidepressant medication and I am scared to.

At this point, I would love to hear back from you. Do you or do you know anyone who can relate to my brain problems?

Thank you....I'm desperate. What can I say!? But I'm okay...trying not to panic, and will continue the CBD, which the Doctors confirmed it is fine to continue, since it is helping me. In addition, the 2nd Neurologist wants to see another MRI in a couple of years to keep an eye on the microhemorrhages and the tumor!!! I am hoping my brain will heal.

After 3 years of success with my heart, I am now not doing so well! I know it could be worse, but I have not managed to get any relief in terms of the migraines and tinnitus. Why after 3 years have my migraines returned, and now triggering tinnitus?

I saw my family doctor and an ENT specialist. My family doctor was no help whatsoever. The ENT specialist saw nothing but he recommended to get my hearing tested. So I will go to that appointment on the 20th to rule out problems with my ear(s). I have been sad and depressed because these migraines and tinnitus are a roller coaster ride! I am concerned specifically because it happened suddenly one day mid-October 2017. I'm trying desperately to find out what happened and also trying everything in my power to stay healthy, have enough sleep so a migraine will not occur. I'm meditating, walking, and resting more than I ever did. The volume of the tinnitus is up and down, and driving me crazy! I do nightly tinnitus treatments by laying down, meditating, and listening to on-line Tinnitus treatments, which is basically listening to a variety of white noise. It absolutely is helpful but of course is not a cure.

A lot of information is out there, and Doctors have different opinions. There are many reasons why tinnitus occurs, so basically I'm trying to find mine.

I have become so desperate that I will reach out to my heart surgeon to find out if there is something going on in my brain; aneurysm, tumor, whatever! I plan to contact him on Friday when he returns from his travels. I want an MRI! Hopefully he can recommend one since I am prone to Aneurysms.

If anyone reads this and has anything to share, please let me know :(

Before and after pics, celebrating 3 year anniversary!

3 years have come and gone...and I know where the years went. I thought about my heart everyday, and tried to live as normally as I could and I didn't let anything stop me from living life fully!

But I must say, the last 3 years were very difficult at first. I couldn't help but feel that I was alive, but living in someone else's body. I was traumatized and had major PTSD for about 1 year! I was living in a world that I couldn't make a connection with, and it was weird.

With all that I have been through, I've become a pro with practicing mind over matter with meditation and visualization as I was preparing for surgery and trying to overcome pain post surgery. I may have unconsciously separated from my body. I was in a daze for a long time. I couldn't relate to anything, or anyone, and I didn't want to live. I felt like I came back to hell! nothing felt right...I was scared and I hated everything around me. Work, relationships, my house, everything felt so overwhelming to me, as if I didn't have the strength to cope or manage my life anymore. I was devastated, and just wanted to die! My son and my husband were here for me every step of the way.

Fast forward to today, after working hard and trying to overcome the PTSD, I feel stronger than ever. "Time will tell", time is key! It takes time to heal, time to recover, time to build strength, time to feel confident and time to overcome problems. It also takes patience, especially when all you want is to feel better and make the pain and fear go away.

Here I am 3 years later, I am happy to report that I had no physical complications whatsoever. My cardiologist diagnosed me last August with good health, and a strong beating heart! I have a good paying job which I work 100% remote, a wonderful family that loves me, and I love them so much! I'm happy!!

My 3 year anniversary update:

1 I feel that my sternum has healed 97%, I have no more pain in my sternum and chest area. But when I move my right arm out and above my head, there is a small pain on the right side of my sternum. But I only feel it in this position. I'm not concerned. They cut through the sternum twice, once in 2007 and once in 2014....no wonder!
2 I have no chest pain, no shortness of breath, and I can walk on inclines quite well.
3 At times, I can feel what seems like are PACs or PVCs. They began occurring this year. They are far, few between. I'm not concerned, because I just saw my Cardiologist in August and he was not concerned.
4 My brain is doing so much better. I have had only one migraine related seizure in June and I think it was because I was on a red-eye flight and didn't sleep for 24hrs. My concentration level and memory has improved substantially.
5 PTSD has greatly subsided. I feel like I am connected again, and my attitude is so much better about life. This has a lot to do with my son and daughter-in-law moving closer to me, only a 40 minute drive.

On a not so positive note and not heart related...
1. I am recovering from a recent bout of a virus that begun at the beginning of October that has caused persistent headaches, neuralgia, nausea and tinnitus. This problem has caused my migraines to return and I felt miserable. I'm still under Doctor care.
2. My son's Dad lost everything with hurricane Irma and Maria in Puerto Rico.
3. My son's wife's parents lost everything in the Santa Rose fire.
4. My step-son in England and his girlfriend have a baby girl, and they are going through financial hardships, and almost split up.

Lots of stress around me, lots of sadness, and the world is going crazy! But I manage to get through each day just being so grateful that my family is close by, and that we live in one of the most beautiful parts of the Country, the Central Coast of California. We eat fresh produce locally grown, fresh local fish, and meat, and my Cardiologists are nearby. I am working towards a full retirement once a few things are paid off. I am so grateful my heart was fixed and I'm doing so well. I'm so thankful for what I have! I have chosen to let go all of my grievances and to bite the bullet and "come back" to life, accept the things that I cannot change, and have the courage to move forward, and just be grateful.

There is a silver lining! You may not see it through the clouds, but it's there. Take one day at a time, keep fighting, keep trying and you will make it! Take care of yourself, you are #1!!

What causes a Bovine valve to fail? I was told that my 23mm Edwards Sciences Magna Ease bovine valve has a shelf life of approx 18 years. What will cause the bovine valve to fail sooner or last longer? what are the variables? is it like a tire on a car whereby the amount of mileage you drive will wear out your tires, so the more active you are the more use on your valve? or is it the food you eat, or your blood type? My surgeon couldn't tell me the answer 3 years ago! Does anyone know? I will do some research as well to see if there is any current information I might find.

I've been trying to cope with head pain, and the buzzing and high pitched sound in my left ear for several days. I took myself to urgent care on Friday. They found nothing, but suggested to take Sudafed Congestion in case I may have congestion in my head and sinus area. The doctor also thought it may be migraine related, but the Sudafed will rule it out. Began taking the Sudafed since Friday then went to bed early cause I was miserable. Every sound hurt my head and ear! I did get a little relief but the tinnitus is still very bad. So annoying! It's been 3 days. On top of this, I have a huge CEP exam on Saturday which I am travelling 5 hours to the testing site. I hope this goes away and I hope this is not going to get worse, and that it is not related to my heart in any way. Has anyone on this site ever dealt with this issue and if so, what did your doctor tell you? I am currently seeking and ENT doctor to make an appointment.

Still going strong....still feeling very well after 33 months post valve replacement! The song that comes to mind regarding how I feel today for myself and for all of you who have shared your journey is "Rise Up!"

And I'll rise up
I'll rise like the day
I'll rise up
I'll rise unafraid
I'll rise up
And I'll do it a thousand times again
And I'll rise up
High like the waves
I'll rise up
In spite of the ache
I'll rise up
And I'll do it a thousands times again

All we need, all we need is hope
And for that we have each other
And for that we have each other
We will rise
We will rise...... I know we will. We will do it every day in our trauma, our pain, and our fear! We have the strength and the courage to Rise Up! Thinking of all of you on my Birthday......I wish you all the best with your heart journeys! I feel so grateful to be 66 years old today!

I worry about antibiotics effectiveness and resistance. Been taking them for 10 yrs for dental visits, injuries and procedures .....mostly cephalex. Others have made me break out in hives but so far, so good! I would like to hear about your experience and what you've learned. Is there any thing that can be done to prevent resistance? 🤞

I took this pic in front of the Montreal Museum of Fine Arts when I was there in June! this is to everyone who is having surgery! Thinking of you!

I was so mad! It was the last branch on my honeysuckle bush....I reached up with my right arm with the battery operated trimmer, whacked the branch off, lost my balance and grabbed the trimmer that was still running with my left hand!! Owwww....I ripped up my middle finger...blood was pouring all over the place. I was freaking out! All I could think about was, OMG, I'm going to get an infection! So here's what I did....and I'm only sharing this information to help others as well:

My husband grabbed a clean large bowl and poured cold water in it. I put my hand in the water and soaked it until it stopped bleeding (30 minutes). Then I dried it off, applied antibiotic ointment and placed on the gash. I wrapped it up in gauze and took an antibiotic that I had in the fridge for dental cleanings. The next day, I went to Urgent care, and it was too late for stitches. Instead, the doctor, who was great, super-glued the gash! then strip taped it up, and put on a finger glove made of gauze on my finger. It felt so much better!!! He also gave me a prescription for more antibiotics. He recommended that I keep taking the antibiotics to eliminate any risk for heart infection. And that's what I will do.....wish me luck! :)

I'm going to purchase leather work gloves so this will never happen again!

After my 3 mile jaunt in the park! I made it...

Hi Heart Friends. This is a quick update on something I experienced recently. After weeks of stomach pain and fatigue, I am happy to report that I am fine! I had an Ultra Sound on my stomach area to rule out Abdominal Aneurysm, and blood work to rule out anemia. Test results were negative, and blood work is normal...thank goodness! In the interim, I cut meals in half, stopped drinking wine, stopped all vitamins, supplements, probiotics, and aspirin. My stomach pains went away!!! I am now taking my daily aspirin, and will re-introduce the vitamins/supplements to determine if they were causing stomach pain. My research continues...

What I have learned from this experience is that I'm constantly anticipating the worst! Fear, anxiety, nausea and worry are a vicious cycle for me. It also causes sleepless nights, which in turn heightens those feelings! Could be the result of going through life threatening surgeries! I contacted my surgeon, Dr. Raissi. He said it was very rare that someone who has TAD/BAV to also have an abdominal aneurysm. He asked me if the pain was going to my back, but it was not. He concluded by saying if the pain goes to my back, I should get a CT with contrast.

My cardiologist, Dr. Bocchicchio, confirmed my heart and valve are doing great, however there is LVH (left ventricle hypertrophy), which I thought could be the cause of fatigue... he didn't think so! He added I should lose some weight as it is much harder on the heart to carry extra weight. I don't disagree, as I have put on some weight after this second heart surgery! continuous sitting all day at work, and stress on the job are the cause of my weight gain. He recommended that I push myself to walk 3 to 5 miles several times a week. It's difficult at 66 years old, but I will absolutely try my best.

To all of you who are much younger - don't let your weight get out of control. Once you reach late 50s early 60s, it is much more difficult to lose weight. I have never had such a hard time getting back to a normal weight, and I get so down on myself...and that's not good either.

I am so grateful for my second chance at life, and will continue to improve my health. All the best to everyone! Hang in there, be good to yourself, and don't let things get the better of you, as I did. :)

One of my journal posts, that I cannot find today, I was talking about my stomach upsets. I have been on Probiotics for several months, learned about FODmaps and have experienced some relief. However, I still continue to suffer with upset stomach. I found a new cardiologist and visited on May 1. He listened to me describe my symptoms as well as feel my stomach area for Abdominal Aorta Aneurysm, as I am susceptible to additional aneurysms. In addition, my dad has an AAA presently at 3.0cm. He is 91. My new cardiologist said he felt something when examining my stomach area and wants me to get an Ultrasound, which is now scheduled for May 15. I'm scared....so scared to find out!! But I need to know what the heck is going on and hopefully rule it out. I was reading some stories of people (not this site) who described their symptoms starting out with stomach pain, and digestive disorders and then later found the problems were due to the AAA.

So my question is does anyone on this site have both an Ascending Aorta problem in addition to an Abdominal Aorta problem? (descending aorta) I would love to hear from you. I was once told that it was not possible to have both, but when reading these stories, it appears that people can have multiple types of aneurysms! I hope that I don't....I'm scared, but have hope!

It's been 2 yrs and almost 4 months post aortic valve replacement. I'm 65 yrs old. Still feeling quite well, and energetic. However, we've been quite busy at work which basically means speaking long hours at a time on the phone. I work at a software development company and support clients using our equity compensation web-based tool. I train staff members and help clients through data issues, devise solutions and guide them through the application. I speak and write a lot....all day. The busiest times are from November through mid-April as clients reconcile their expense and work on their YE financial disclosures.

Lately, I feel exhausted, light headed and drained at the end of a work day. It scares me because before I had my valve replaced, I felt very limited in terms of the amount of speaking I was able to handle throughout the day. I usually can manage my job on a daily basis but I find lately that I can't handle back to back multiple calls like I used to.

I'm trying to figure out what this means. Is it heart valve related? Anyone else experience fatigue after a lot of speaking?

I do intend to bring this up to my doctor at my next doctor visit on May 1.

2 pics in one: celebrating my 2 year anniversary!

It's Dec 10, and it is my 2nd year anniversary of my aortic valve replacement, and I am still going strong! I am so grateful to be doing so well, and continue enjoying life with my family. I work full time and I don't let anything get in my way. There are certain things that I don't want to do anymore, like drive alone for hours and hours, but other than that, I can do what I want when I want it.

The other day, I watched the movie "Cast Away" with Tom Hanks. After he was rescued, he said the following.... I knew exactly what he meant. Nobody could have said it better! This is exactly how I felt when I was facing my second heart surgery.

"I had power over *nothing*. And that's when this feeling came over me like a warm blanket. I knew, somehow, that I had to stay alive. Somehow. I had to keep breathing. Even though there was no reason to hope. And all my logic said that I would never see this place again. So that's what I did. I stayed alive. I kept breathing. And one day my logic was proven all wrong because the tide came in, and gave me a sail. And now, here I am. I'm back. In Memphis, talking to you. I have ice in my glass... And I know what I have to do now. I gotta keep breathing. Because tomorrow the sun will rise. Who knows what the tide could bring?"

Except for Memphis, and except for the ice in my glass, I knew I had no power and I was defeated. I was at my lowest low ever!

Fast forward to today, and it's all behind me. I'm so grateful! There were no complications and life is moving right along and I can enjoy living it again! I gotta keep breathing. Because tomorrow the sun will rise. Who knows what the tide could bring?"

I continue to be so thankful and grateful for my second chance at life!

Happy Thanksgiving to all. May you have a wonderful day giving thanks with friends, family or just by yourself chilling out at home! Take care.

Just thought I would share some good information for a healthy recovery! I received an early Xmas present from my husband Dan. It's the Gazelle Glider Freestyle exercise machine. The Gazelle provides low impact aerobic and cardio exercise. I love this thing!

By the way, I also have a tread-mill and exercise bike, but when I want something that provides aerobic and cardiac exercise with no impact to my joints, this is it. I highly recommend it for us who have had to endure heart surgeries. Exercise is so important for complete recovery and maintaining good health. After a long day of sitting at my desk, I get on it and work-out. I love it, so easy and gives me the cardio workout I need on a daily basis.

By the way, this is not an advertisement. We all have different needs based on our age, size and health issues, but this Glider has helped me so much already! Good luck and keep improving!

It turns out that my local Cardiologist (not my wonderful surgeon, Dr. Raissi) is now charging $100 a month if I want to continue seeing him. Otherwise, I can only see a Physician's assistant if I continue going to his office for care. Ludicrous!

I have access to Dr. Raissi by phone or text, but he is situated in Santa Monica, which is approx. 250 miles from where I live. Do any of you know of an excellent Cardiologist, who has had many years of experience dealing with BAV and valve replacements? I am still at risk for aneurysm in my aorta, and infection in my heart, so I want to find a great Cardiologist close to me. Anyone know? Thank you :)

Echo results
I'm ecstatic to report that yesterday I received my Echo results from my Cardiologist when visiting with him yesterday. I am doing really well! No problems, and no changes since last year's really positive Echo results. My bovine valve is working very well, and my heart is beating strong! yayyy! I'm so thrilled.

Sternum pain
The doctor concluded that the Sternum pain is due to the damaged nerves surrounding the sternum. It is not caused by the wires. The sternum can take a long time to heal. My chest was opened twice, first surgery was 8 hrs and 2nd surgery was 12 hrs. There is quite a bit of scar tissue, and nerve damage, which is causing the pain. Over the last couple of weeks, after some intensive nightly infrared heat lamp therapy, amazingly I feel an overall improvement. My doctor advised, as long as I am improving, this is a sign that the sternum is healing!

My Lp(a) levels
Unfortunately, I did not receive good news about my blood work. My Lp(a) levels are at 87mg/dl. I did NOT fast for this blood work.... maybe that is the problem, I don't know. However I have never had a cholesterol problem ever in my life time. So I was given 6 months to bring it down, or else I will need medication (ugh!). Believe me, this is just the reinforcement I need. I will do everything in my power to research and work at it to bring it down.....I don't want to take medication! My total cholesterol is on the border-line. I am struggling with weight gain after my second surgery.....this could be the cause of the cholesterol issue. My blood work was perfect (no meds) before my surgery!

That is it....no other problems, no other issues. I have my work cut out for me. I am still ever so grateful for everything!

Yesterday was my 65th birthday! and it is also 1 year and 9 months post op for me. I am so very grateful at my progress and so I want to share some positive news to encourage all of you. Needless to say, the journey is difficult and scary but its so great to know there is light at the end of the tunnel.

I had been experiencing sternum pain on and off that I reported on June 26 in my journal, but happy to say my sternum is definitely improving. I have been using an infrared heat lamp for light therapy and pain relief, which penetrates deep at a comfortable temperature. In just 4 weeks my sternum has improved so much and the pain has greatly subsided...very happy! I am scheduled for an appointment with my cardiologist and want to further discuss getting an xray, or if there is any way to look at the sternum to see what is going on. I will continue the infrared therapy in the meantime, which is really helping.

Nerve damage caused by the heart catheter in my right thigh has improved a lot as well. Walking, stretching, massage and heat has helped immensely. Very happy!

Migraines have greatly subsided. From 3 migraines weekly to about 1 migraine every 3 months or so is such a great improvement. Thrilled about it!

I hardly ever have shortness of breath, but there are days especially when I have over done it physically, I feel tired and a little short of breath. Nothing drastic or scary at all.

Emotionally, I have improved a lot as well and feeling quite strong. But there are times still when I feel vulnerable, and protective, and want to cry. The difference now is that I am giving myself a break, and being less hard on myself. It helps a lot! I guess I was trying to prove something to myself...I don't know, but being aware of it, I am compassionate with myself and allowing myself to give in to being lazy or simply needing some rest.

I feel more confident at my job. I deal with a lot of people daily, clients and staff members. I analyze, reconcile, trouble shoot data problems and train people all day, every day. Doing so much better, as I have more energy, and am less emotional.

My brain function has improved so much in comparison with the 1st surgery. I can concentrate, multi-task and resolve problems with clarity and greater confidence.

I don't let anything get in my way or stop myself from doing anything that I want to do, and I will continue to do as much as I can at my age. (I don't feel 65!)

No emergencies, no weakness, no fainting or dizzy spells, or any weird experiences.

Happy and lucky as can be. I feel extremely grateful! We all have different experiences, and we should not compare ourselves to one another. But just know, there is hope.... and sharing our experiences is so powerful and helpful! Thank you so much for sharing yours :o)

This message is for all the people who are waiting for surgery. I know what it's like. I was scared too. But I didn't like to feel the fear, day in and day out. I hated the feeling. So I hired a surgery coach for my first surgery in 2007. I learned that I don't have to feel frozen with fear. I can turn that energy to something positive instead. She said, think of something that you love to feel, love to do, and can easily visualize, and make it about your recovery...not your surgery. I thought of swimming, butterflies and the ocean. I visualized myself getting out of the hospital bed, and stepping into the swimming pool and taking a nice, cool relaxing swim. When I came out of the pool, I looked toward the ocean and visualized the waves, and heard the sound of the ocean. I visualized this everyday before my surgery, while meditating, relaxing and praying. I replaced my fear with these positive visualizations and thought of myself as recovering 100% after surgery. Wow, I can swim again! I also visualized myself in the butterfly room that my son took me to when he was little. There were beautiful butterflies everywhere. They reminded me that life is so precious and beautiful. Everyday I replaced my fears with these beautiful butterflies and positive visualizations of full recovery while I swam in the pool and looked over to the ocean.

It wasn't easy, it took practice! But the more I did it, the easier it was, and the less fear I felt! It is scary and it is lonely to think of the surgery.... but it can be done. Take one day at a time, and think positively and be grateful that you can get fixed to live a more healthy, more 'normal' life. The surgery coach said it was a known fact that you will also recover faster if you can be as positive as you can be throughout this journey. I didn't need the surgery coach for my second surgery. I remembered what to do, and it helped me immensely.

For everyone waiting for the surgery, I know how you feel. I wish you all the best outcome and I wish you peace within your heart for every decision you make during this journey.

“With every decision I make, I have a choice between a grievance and a miracle. I relinquish all regrets, grievances and resentments, and I choose the miracle." (Deepak Chopra)

Please find the miracles....for yourself! All the best wishes for a great outcome!

34 years ago, I began suffering of migraines with aura. Over the years, I tried several ways to control them, or simply get some relief. I had many triggers and they changed as I grew older. Hormonal imbalance, anxiety and stress when I was young. When I was older it was lack of sleep, anxiety and stress. Stress and anxiety were produced in many ways; work, time constraints, worrying about my son as a single Mom, financial constraints, relationships, health issues, etc. At times, I thought the migraines were caused by diet, too much MSG or sulfates. I was prescribed Fiorinal, (Butalbital/Aspirin/Caffeine), and have taken Fiorinal for ~ 30 yrs only upon onset of migraines. I have never had any problems with the drug, and no side effects whatsoever. After my first OHS in 2007, which was a replacement of my entire ascending aorta with Dacron to fix the aneurysm, my migraines with aura became worse! Although the surgery repaired the aneurysm, my natural bicuspid valve was still intact, but also continued to decline. This surgery was supposed to be good for ~15 yrs.

I learned that migraines are caused by abnormal brain activity, triggered by many things, and can be different for everyone. I began experiencing some crazy episodes for which I had no control! For instance, one evening I was watching a movie, and all of a sudden I felt like I was going to get sick, as if someone had punched me in the stomach. I tried to rush to the bathroom to throw up but had to stop and sit on the couch, I felt I was going to pass out. I couldn't speak, and felt numb, and experienced loud ringing in my ears. Was this a stroke? Other times, a deja vu feeling would come over me, then the aura would begin, my stomach would rise and I had to ride 'the wave' until it was over. These episodes lasted about 15 minutes. During the episodes, erroneous thoughts and pictures were rushing through my mind. I had to stop what I was doing, let go and wait for it to end. Were these seizures? The after math was awful as well, and it basically ruined the remainder of my day. I couldn't function.

At first these episodes would freak me out! They continued to happen at least once a week for many months. If I didn't freak out, it wasn't as bad! I later learned from my doctor that migraines can cause a reaction in the brain similar to epilepsy. When these episodes would occur, at times they were followed by a severe migraine headache, and other times I just felt sick and had to rest for the remainder of the day.

These episodes were causing me concern and I felt as if I was losing control. My doctor wanted to prescribe Tegretol, which was used for epilepsy. I refused it and thought I would try to help myself naturally instead.

In my search for some relief, I found a natural product called GABA in 2009, which calmed me and helped me sleep. It helped me focus and take one thing at a time as opposed to being anxious and "all over the place" in my mind. GABA was very helpful at the time, as it reduced the migraine severity and the episodes. I also took vitamin C, vitamin B complex, multi vitamins, COQ10, Omega 3s, swam 5 times a week, 30 minutes each day, which helped me feel better. I took GABA for about 2 yrs, and kept increasing the dosage. But as time progressed, GABA was making me feel too lethargic. I wanted my energy and pep back, but I knew it could lead to possible migraine severity. But I accepted it, weaned off, and no longer used GABA. I continued to experience migraines and aura but not as severe. I continued my regular exercise and vitamins regime.

During the next several years, my aortic valve was becoming stenotic. I couldn't exercise as much, experienced chest pain, severe AS with a mean gradient of >60, and I could not walk for more than several feet before I had to stop. I couldn't speak for more than a few minutes at a time, either, due to shortness of breath. I continued to suffer with Migraines, continued taking Fiorinal with migraine onset, and also tried Ativan for anxiety. On December 10th, 2014, I had my 2nd OHS. My aortic valve was replaced with an Edwards Lifesciences 23MM bovine valve.

Shortly after my second heart surgery to my surprise, I no longer experienced the episodes. Could this be, I asked myself. It has been 1.5 years since my surgery. My migraines greatly subsided and the auras I experience today are short and small. They don't take over my body, or mind, and they are very infrequent. I don't need Fiorinal but on occasion when anxiety from work is high, I will take .5mg of Ativan. I don't take any medication on a daily basis, except for 1 baby aspirin, and will continue taking my vitamins and supplements. I try to drink water throughout the day, eat lots of raw fruit, steamed veggies, berries, beans, grains, chicken, fish and occasional beef (like tri-trip). I drink cabernet and chardonnay in moderation, and I eat very similar to a Mediterranean style. I walk, work in my garden, meditate, pray, listen to music and make every effort to de-stress. I am doing so much better!

My conclusion is that once my bicuspid aortic diseased valve was replaced, my blood flow and heart pumping action had greatly improved! I have never had a good valve. Valves act as one way doors to keep blood moving forward. With BAV, the brain is not getting enough blood flow due to an obstruction in the heart or an abnormal heart rhythm. I believe due to the decrease of blood flow to my brain, my migraines were getting worse over the years. For me, it wasn't only about finding the right meds, or the right food, controlling anxiety, or having enough sleep. As soon as I received a larger, new valve, my migraines were significantly diminished. I sleep better, get much more exercise, and I have never felt better in my life! That is my experience, my personal theory and my conclusion, and I hope this is helpful to others who also suffer of migraines with aura.

Yesterday was not a good day for me. I was experiencing pain in my upper sternum on the left side. It was sensitive to touch and every time I moved my upper body, I felt a sharp pain in my upper sternum area. It was annoying, painful and was causing me to be immobile. I took some Aleve for pain and inflammation. Today I feel much better. The pain is gone.

I will speak to my doctor about this to determine what went wrong. When I was trying to research this pain on line, I came across Costochondritis. Of course, I should not be diagnosing myself, but a lot of the symptoms were similar. I am quite active when I'm not working. But at work, I sit at my computer (ergonomically correct), I type all day long, and speak with clients and colleagues on the phone all day long as well. But when I don't work, I go on walks, I cook, clean, dance, swim, work in my garden, and pretty much do as much physically as I want to do and need to do. I don't normally hold back anything.

I have no idea what happened yesterday, but during the first year of recovery of my second heart surgery, it took quite a while to heal my sternum, and I still do NOT feel as though the upper left hand side of the sternum has healed 100%. When I had my first surgery, which was the same 11 inch incision, I swam 5 days a week. After each 30 minute swim, I went into the spa and put my chest directly into the jets. This not only massaged the chest incision but also broke up the scar tissue, slowly but surely. Maybe I need to do this for this second surgery as well. I will first speak to my doctor, and if he gives me the green light, I will give it a try! I was a bit more hesitant in treating the incision and upper chest area for the second surgery as I was for the first.

Has anyone else experienced more tenderness in their sternum and upper chest area in their second surgery?

I remember when my son was six years old and I picked him up from school. I had a bad day, filled with stress, and I wasn't feeling well. He asked me to come into the school because he wanted to show me something. I followed him, as he held my hand and led me into the butterfly room. When I entered the room, it was so awe inspiring! there were thousands of butterflies being displayed in the entire room, all kinds of butterflies from many parts of the world, all kinds of colors. I was in awe, it brought tears to my eyes! I didn't want to show my son I was crying because I didn't know if it was happiness or sadness. But it was beautiful....and he looked so proud to show it to me. I realized then that my son was sharing his experience with me. That was why I cried! he was real, and life is real....and this is life. Life is Now!

"Life is what happens while you are busy making other plans." - John Lennon.

It has been 17 months since my December 10, 2014 aortic valve replacement. I'm still progressing onwards. Still feeling very good! yayyyyy!

To share my experience so that it can help you as well:

o My right leg that was slightly damaged due to the heart catheter going into my groin has definitely improved. The pain that I felt when I touched that area of my leg has subsided substantially. I no longer feel pain, but it's still a bit sensitive.
o Migraines are 99.5% gone! this is still unbelievable to me after suffering of migraines for 30 yrs.
o I gained 20lbs since my surgery. This is due to my appetite returning and my physical stamina improvement. I can cook my heart out and never get tired! I have since began losing weight with diet and exercise.
o My sternum pain has subsided. Still feeling a bit of strain on the left side of the scar, there are broken veins surrounding the top part of the scar as well. But overall, doing well.
o Medical bills have been worked on and reduced substantially, and I have only $3900 left to pay.
o Emotionally I still feel stressed out. Still sensitive to many things, and I'm still working on it. This is taking the longest in my recovery. I'm sure the recovery due to the PTSD will take some time. To relieve stress, anger, and anxiety, I walk, swim, stretch, meditate, pray, listen to music, drink wine, and be mindful of how much time I spend working vs have time for myself.
o I've been sleeping so much better! I'm always mindful to get as much sleep as I can, as lack of sleep can greatly affect my mood, and physical activity.
o Gratefulness and just being thankful for everything has definitely helped me keep positive. I will continue to be grateful for getting that second chance at life!

I hope this is helpful. Let me know if you have any questions.

This is a 23MM Edwards Lifesciences Magna Ease bovine tissue valve. So soft, yet so strong!

These are the 3 ladies that assembled my bovine valve at Edwards Lifesciences!

Thank you for my 23MM Edwards Lifesciences Magna Ease bovine valve. You saved my life!

It was very moving, for me, to have met the 3 women that took part in assembling my valve. I cried when I shook each one of their hands. It was fascinating to have seen the valve up close, to touch it and feel the bovine tissue. I took a small piece of the bovine tissue and one of the patients standing next to me held it with me and we tried to pull apart to see how strong was the tissue. It did not budge at all! the bovine tissue in my body and yours is super strong! To have seen the valve and felt it was extremely encouraging. It reinforced my confidence in my own valve big time!

I met many of you, heard the stories of the people on the panel, and also met Mike Mussallem, the CEO of Edwards Lifesciences. I sat with several people and listened to their experiences. Each and every one of us has their own venture, their own tragedies, their own awesome experiences recovering from surgery, and it was interesting in learning how they feel today. Most of us do very well! it is inspiring, and life changing to have gone on this journey.

Thank you, Edwards Lifesciences! Thank you, Everyone!

I was physically doing so well. But as the medical bills started piling up, I began feeling the insurmountable stress! Not to bore you with the details, but I thought I had the best med plan with UHC. But what I later learned is about AB 533, and balanced billing. The Anesthesiologist and several additional providers were visiting me during my 1 week hospital stay when I had my aortic heart valve replaced. Every single one of the providers, including the Anesthesiologist, was out of network. Therefore they billed me separately! I was devastated! why didn't tell me? I was in a hurry to get the surgery done, because I wanted it to do it in the same year of when I reached my deductible, and my heart was failing. I was not doing well at all.

After a whole entire year (2015), of stressing over the bills, and managing 5 people in Customer Support in a super demanding job atmosphere, I was getting depressed. I put on 20lbs. I was NOT doing well....again! This was not a good way to continue living my life! I was once again defeated!

I started thinking about how will I gain the strength, courage, and time to fight this. My husband was super helpful, because he was the one who found out about AB 533 and balanced billing. I got a hold of my courage, and contacted our new HR Director, and the company who managed my company's health benefits. They told me about a new thing that started in the end of 2015, called Mediation. They told me to contact UHC and request Mediation. It took a couple of weeks to resolve, but my Anesthesiologist bill went down from $11,000 to $3,000. My assist surgeon bill went down from $12,000 to $0.00. I have several other minor bills to handle, but these were the largest bills.

If you are stuck with huge medical bills, please do not let them defeat you. Seek help, it's out there! they have to stop surprising patients with these huge bills that are not only devastating but UNFAIR. If you live in California, read about AB 533, and balanced billing. It will put things in perspective for you. Hope this post is helpful!

If I can give back, pay it forward, this is where I will start. Patient Day is being held on Friday, February 26, 2016 at their headquarters in Irvine, CA. I'll let you know if I was accepted to attend/participate.

Patient Day is about bringing together people who have benefitted from Edwards Lifesciences technologies. I have their Magna Ease 23MM bovine valve inside me. My insights can help Edwards and their partners have an impact on the lives of future patients. Hopefully, I might meet one of you there as well. Looking forward to it! :o)

On Christmas Day exactly 1 year ago, I was 2 weeks out of my 12 hour heart valve replacement surgery! I was so happy that the surgery was past me, and that I can live my life without having this dark shadow over my head and heart wondering when will the valve replacement take place! I'm sure many of you know the feeling.

I wasn't feeling great yet, and still struggling with walking everyday. However, when I fast forward to today, I am still so amazed at how much better I am doing, and how much better I feel!!! I don't feel as old as I am, which is 64 years old. I have so much energy and life inside of me! My "Post 1 year status" post says it all.

I wish you ALL a great recovery, good health, and to be with your loved ones on this holiday season!! these are the 3 things that I struggled so hard for this and every year, and I finally achieved it in 2015! :o) Happy, happy holiday season and Merry Christmas to ALL!

After celebrating my 1 year anniversary, I thought I would share my physical status in detail so others may have some idea of what they also may experience.


1. Above my right knee, leading towards the groin, there is some numbness from the heart catheter that was placed when the doctors cut into my groin 1 year ago.
2. On the left side of my sternum near the wires, I continue to have pain at times. Not sure if it is due to the wires, or if it is nerve pain. I also have broken veins surrounding the scar. In due time, I will revisit the scar to determine what type of cosmetic treatment can help me. I use ice and/or heat depending how bad it is.
3. I can actually perspire now. Since I have no limit in terms of how much I can do or how much I exercise, such as walking on an incline or riding my exercise bike, I perspire. Great feeling!
4. I hardly experience migraines anymore. I used to have migraines 2 or 3 times a week. A full blow migraine with aura, nausea and headache were common for me. Other migraine related incidences, I experienced physiologic non-epileptic seizures caused by sudden changes in the blood supply to my brain. Those are completely gone!
5. Anxiety caused by fear of the unknown due to my heart valve condition has diminished significantly.

Overall gratitude, happiness, and just grateful to be alive. At times, I revert back to my sadness, and anxiety, but it is easier to pull myself out just because I feel so much healthier.

I hope this is helpful for our heart friends. Happy holidays!

OMG! how time flies. Physically I am feeling better than ever. A couple of times, I did feel breathless and tired, but maybe it was because I over-did it.

Emotionally, getting better each day, but still working on it. It doesn't help to still be struggling with med bills, and a very stressful job!

I still work full time. Everyday at 7am I walk for 30 minutes before I get started on my day. I am doing really well! My cardiologist says all I need to do is take my baby aspirin, get regular exercise, and see him in 1 year. I haven't received such great news in many years! This will be a great Christmas! Merry Christmas, Happy Holidays to All!

I visited my Cardiologist to receive the results of my first Echo after surgery and he confirmed that I am doing very well! I don't need to see him until next year. This is the first time in years that I actually had good news from a cardiologist....it felt strange! My only problem now is keloids. For some reason, my scar flared up with keloids, and has been so uncomfortable for several days.

I bought some mederma scar product, and have used yesterday and all the today. I hope that I will soon feel good results. Has anyone gone through this with this scar? what did you do to feel better? I'm thinking about cortisone injections. Has anyone ever had the injections?

It takes 9 months to make a life. It's a wonderful process I will never forget when I had my son. It's been 9 months since my valve replacement and it feels like a new life! I've been a bit down lately for the last several months wondering what was going on with me. I still can't explain it. Was it the enormous medical bills? Was it everyone treating me differently like I was more fragile or their amazement on how great I am doing? Is it the very stressful job, new boss, new people reporting to me? Is it fear of not know how long I will feel this good? Or just everything?

I have come a long way and my life is back. Physically I am doing great! Emotionally is another thing. It takes a great amount of strength and courage to keep going as if nothing ever happened. In my mind I keep coming back to the time I wasn't doing so well. I can hardly remember the chest pain, which I have had for years, the constant fatigue and the sleepless nights.

Recently though I am beginning to feel emotionally better, as I take one day at a time. Comedy is helpful and family support as well. My walks are awesome, listening to music and meditation feeds my soul. I can take full breaths without feeling fear or pain. I have been sleeping very well most nights. I will be patient with myself and cut myself some slack as I put things in perspective one day at a time....

It has been 19 weeks since my aortic heart valve replacement. Unbelievable! I'm still so thankful and grateful for my life. I'm working full time in a very stressful environment, supporting my team with various major issues in our web application, trying to keep our clients happy!

My mind and heart continues to come back to this place, where I met all of you, and read your stories. We have been through so much! the stress at work is a mere drop in the bucket compared to the fear and anxiety we have been through, and what our bodies have endured. I have been losing my hair in handfuls since the surgery, so decided to cut it and let it grow in again. I've read that it is common after surgery but it should grow back again. I've had my first day of breathlessness last weekend but I don't know why. I chalked it down to anxiety......still dealing with hospital bills, the health insurance company, and this crazy job. I took a nice long walk to walk off the anxiety and get my heart pumping....that seemed to do the trick. Although I don't exercise as much now that I am back at work, but I do feel the need. I try to get out as much as possible for my 2 mile jaunt, or I get on my Pace Master Gold bike and ride 5 miles. Sometimes I just walk around the block just to de-stress before I get back to my desk. It helps greatly!

Physically I am still doing great! My sternum is healing very well. Sneezing, and taking a deep breath is much easier and a lot less painful. My energy level is awesome. I can exercise, clean house, go shopping, go swimming, and cook meals all in one day, without having to rest between activities. I only take 1 baby aspirin a day, and my regular vitamins and supplements....that's it. My blood pressure is very good, 110/75 most of the time. I eat well, and drink wine with my dinner on most nights.

Even though things are mostly going great, I still need to find the time to get back to my 3 month post-op tests. Dr. Raissi wants a CT scan of my heart to determine how everything is healing. I also need to get back and have a chest x-ray to determine if the fluid surrounding my lung has fully dissipated. However, in the midst of all these potential plans, I have to fly to Sacramento on business to hire and train 2 new staff members. Its a juggling act right now at work, but I have to get back to my reality and close the loop on my post-surgery tests. Maybe I'm feeling apprehensive! I don't want to incur more bills, and find out anything negative....yes that's it, just figured it out. Now I just have to gather my courage and make the appointments.

Take care, Everyone! Listen to your doctor, but mostly listen to your body and take care of yourself. You're #1!

It wasn't as tough as I thought it would be. However, I do sit all day and speak on the phone to clients and my Support staff team who report to me. I work 100% remotely, which I love. I have a new boss that began this week also and he seems great so far. Everyone that I spoke to said they missed me, and were happy that I was back at work! It was awesome to be missed. But most importantly, I was energetic, I didn't get tired, and I was able to speak for hours. This was was a huge problem for me prior to my HVR.

As time goes on, I will try to keep logging on to Adam's site when I have free time to keep connected. I read your posts and my heart goes out to you. I don't want to forget all that I have been through. I feel so lucky and so grateful that I am able to continue on my life's journey. Everyone was so helpful.... it was amazing reading your stories, feeling your fear and pain, and to share the joy each time we reached a milestone. I will never forget this time in my life, I have learned so much. I have done away with regrets, and resentments and I feel happy. At this point in my life, I can only progress as I continue on this healing journey. The gratitude that I feel has changed my life and I will celebrate each day. I look in the mirror and see my scar, and it brings a smile to my face. I faced a lot but overcame each obstacle. Now it's your turn! After the fear has subsided, and your heart is fixed, you will feel amazing! Thank you to everyone.....and thank you, Adam, for this awesome site!

How time flies! I am planning to return to work on March 2nd. I work 100% remote, so NO need to commute.....I'm so grateful for that. However my job is quite stressful managing a team of people, and speaking to clients on a daily basis. I will be sitting 8+ hours a day training clients, and/or trouble shooting my company's web application.

In some ways I am totally looking forward to returning, but found myself very emotional last night. I have been through so much, as all of you, and I have managed to get through every obstacle....it was a tough, and my life was put on hold, so to speak. However, I am so grateful to have a job to return to, and I am so thankful and thrilled to be feeling well again! :o)

Carlos Ortiz, one of our heart brothers, said in one of his posts, "DO NOT JUDGE YOURSELF BY WHAT OTHERS HAVE ACHIEVED". I say, right on!

We are all unique and we have our own issues to deal with during the post heart surgery healing process. Although some of the issues may be very similar, we cannot expect the healing process to be exactly the same for each of us! Have patience with yourself...the healing process takes time. Judging yourself is a waste of your time, and will slow down your healing process. My first surgery, I can honestly say that I felt better after 2 years. This second surgery, it is 9 weeks and 6 days, and I feel almost back to normal....but even better because I have an awesome new valve!

I wish you all a speedy recovery, but mostly, take your time to heal and don't judge yourself. Use this wonderful site to learn about other peoples' experiences, so you may apply some of the great knowledge to your own experience. All the best of luck in your healing process!

I am so happy to announce that the fluid level surrounding my right lung is further reduced, and almost completely gone! no need for a Thoracentesis procedure. I believe the combination of daily walking and resuming the Lasix absolutely helped to eliminate the fluid. Whew! I am so grateful.

Happiness is knowing I am out of the woods!

I cannot believe how great I feel after 57 days!

The first month was so tough! I was emotional, in pain, fearful, couldn't sleep, no appetite, anxious and always uncomfortable!

Today I am off all meds, except for daily baby aspirin. I am back on my regular vitamins and supplements, including daily protein shakes first thing in the morning. I have been cooking home made food regularly. My diet consists of fresh fruits and veggies, salads, organic free range chicken and turkey, salmon, eggs, grains, nuts, and beans etc. I have not added any sugar to my diet in 3 months. The other day, in celebration of my victory, I treated myself to my first piece of chocolate while sipping on cabernet wine....yum!

I have reached my walking goal of 2 miles including walking inclines! No more breathlessness, and no stopping to catch my breath. No more chest pain! yay!

I began sleeping much better and through the night. My incision and sternum has healed very well.

My right leg injured from the heart catheter has healed almost 100%.

One lingering issue: the fluid surrounding my right lung has dissipated, but not completely gone. I will follow up this week with another lung x-ray.

To be honest, I am in disbelief! But I am so happy! Can you tell?

Happiness is knowing I am out of the woods!

I am now 1 month and 4 days post-op. Been walking daily, at least 1 mile, and really feeling the affects of my new valve! I no longer need to stop....I can keep going. I love it! I will continue to increase my exercise level.

I just received a call from the Pulmonologist who was assigned to me during my hospital stay. Although the fluid level surrounding my right lung (not in my lung) has dissipated, he said there is a small residual which was found in my last xray of Jan 8th. They tried to remove all the fluid during my hospital stay, but there was not enough to safely remove with a needle. I was recently asked to discontinue the Lasix, which is like a diuretic.

Has anyone else experienced this? Of course I will speak to my doctor as well, but just wondered if anyone else had fluid surrounding their lung(s), and what was done to completely remove the fluid. Thank you!

Surgery was pushed out to the 10th, which caused everyone in my family so much anxiety! but they understood so we just gathered together and had more wine and pizza.
Surgery morning, we all woke up at 4:30am and headed out to St John's Health center in Santa Monica. Surgery was 12 hrs. Lots of scar tissue to cut into, which caused some bleeding - surgery was stalled. The bleeding finally stopped and they were able to proceed. I received a 23mm Edward Sciences Magna Ease Bovine Valve, which was carefully sutured to the Dacron of my previously repaired Aortic Valve. My new valve is slightly more than 3 times the size of my diseased valve. (correction: if my original valve was .7mm then my new valve at 23mm is almost 23 times its size....wow!!) My surgeon showed a picture of my diseased valve to my family, and my husband said that he couldn't believe I was actually functioning with it! he said it look like it went through a grinder....it looked so bad!

After 12 hrs, I was finally wheeled out to ICU. A couple of funny things; a nurse told me 'don't worry Lilly, we will be taking out the tube from your throat soon', I was so out of it, I couldn't even feel it! Then when I was finally sitting I noticed my right hand was shaking so bad, I thought to myself, 'great, now I have some sort of brain damage'. but I guess if I really did I would not have been thinking it. I also kept trying to feel for my glasses, which of course were not on my face. Anyway, the next day those feelings were gone.... thank goodness!

The surgery was a tough one but my surgeon, Dr Sharo Raissi, was there for me at all times....even after it was over. I remember several times, he came very close to my face. and looked into my eyes to see if Lilly was still there! He consoled me and told me I did well, and I was fine. He took care of me the entire time I was in the hospital. He visited my everyday, along with the additional team of surgeons and cardiologists. He monitored my meds, and diet as well. I feel between all the great nurses, and there were many, and the very proficient team of doctors, I received fantastic care!!

I will receive post-care as well, as he wants to see me this Friday. Since my release, he asked me to text him my vitals daily.

When I leave to go back home on the 21st, we will keep in touch as well, he wants me to send him pictures of my incision to determine how it is healing.

This wonderful surgeon is committed throughout the entire time; pre-op, during and post-op.

I have been feeling well, but tired. When I got back to our rented condo, I was so happy to take a shower!! and sleep in a very cushy bed.....no interruptions! it was great!

Conclusion: I spoke to a friend today for about 1 hr, I was not out of breath, or winded at all. Felt pretty tired today, but still took a walk and also walked to a restaurant for lunch. 10 blocks in total. One negative thing that I wish to add. I've been noticing that my right leg where they inserted tubes up my groin is not doing well, took a closer look and there was a clear band aid still on the cut. So I carefully removed it then soaked in peroxide. I have a nurse coming out tomorrow to help me with it. My right leg is getting numb on the top part near the cut! not good! I will have the doctor look at it on Friday. Generally, doing well, but I feel like I've been beat up, or hit by a truck! Let the healing begin.......

Thank you to everyone for your wonderful thoughts and prayers!
Just a short note tonight.... I got released today from the hospital, and I am tired! Total 6 days, 2 days in ICU, and 4 days in a beautiful hospital room looking out on Santa Monica Blvd. It was rough, second surgery and lots of scar tissue....details to come. But I feel amazing already. I actually walked a lot during my stay, but tonight I walked several blocks with my son without having to stop once. Even my son was amazed!

Thanks again to everyone! I cannot wait to be fully recovered!!!
Lilly