OCULAR MIGRAINES- I am writing this post firstly to thank the person on this site ( can’t find their name unfortunately) who wrote about how they stopped their migraines that occurred after exercising. I had a mitral valve repair in Feb 2018 and had been plagued by ocular migraines since, one a day for 5 months, then a couple a week since. I saw a neurologist who suggested several drugs none of which worked. The person on this site said they took an electrolyte drink before they exercised and did not get a migraine. So I decided to do the same. Once I did this, I no longer got an ocular migraine! And I have not had one for several weeks. I rang my neurologist to see if it was safe to take every day which he said was fine. So to anyone out there having an issue with ocular migraine this may be worth a go.
Hi everyone. I would like to hear from people who have had ocular migraines after surgery. When and if, did they stop? What medication were you taking, not for the migraines but overall? Mine seem to be subsiding after 4 weeks and I am wondering if coming off a certain medication has been the reason or that the residue anaesthetic is wearing off. Thanks for your feedback.
Hi everyone! I am hoping mitral valve regurgitation patients might respond to these questions. Were you asymptomatic when you had your surgery? Did anyone have surgery when they only had a mild to moderately enlarged atrium? I have a flail leaflet and mod to severe regurgitation. We seem to have different guidelines in Australia to the US ( the US seems more pro early surgery?). I have spoken to two top Cardiothoracic surgeons who think it is better to operate earlier than later ( and are happy to operate) whereas the cardiologist I have seen is happy to wait and see. All the information I read is very pro early surgery if you have a repairable valve. (Both surgeons have said I have).
Both surgeons say I will feel pretty awful for quite a while after surgery but neither have said directly whether I will return to my current health status.
Would people please give me some feedback on how they feel long term after a mitral valve repair?
I seem to have taken a convoluted journey with this process as it seems most people go through a cardiologist until they have indications they need surgery. I have undertaken to speak to a surgeon/s because the cardiologist was pushing for a mechanical valve and this made me very keen for a second and third opinion.
I am keen to have something done but very concerned about whether I will regain my current good health. As you can see, I am very unsure of what to do particularly as one cardiologist said if I wait, I will in the long run have problems with my LV and other valves. This is very stressful so any feedback is greatly appreciated.
Hello everyone and thanks for your feedback. This is a fantastic site. Thanks Adam for setting up. My question is : if you have had a mitral valve tissue replacement, can you tell me how long yours has lasted. My cardiologist has said 5 years and then it would need replacing. I got a second opinion from a Cardiothoracic surgeon who said 10-15 years. My cardiologist is suggesting a mechanical valve is the best option for longevity but I am not keen on taking Warfarin. I am very active, bush walk, ski etc. Am concerned my lifestyle will have to change significantly if on Warfarin. All advice much appreciated.
I’m from Melbourne, Australia and looking for a surgeon who had done lots of mitral valve operations. This isn’t like America where they seem to have specialist mitral clinics. Surgeons tends to be more general in the work they do. Anyone had a complicated mitral valve repair done with a specialist here? Would really appreciate your opinion.
I am wondering if anyone has the same situation as me. I have a severe mitral valve leak, enlarged atrium, moderately enlarged heart and normal heart function. I am fit, walk 8 kms most days and am up and down stairs. My cardiologist has taken a wait and see approach. I am wondering if people felt better or worse after their mitral valve surgery? I have a second opinion with a Cardiothoracic surgeon who said I have an 80% chance of a repair so not sure which path to take.
Thanks for your help.