Today is my 2 year anniversary of my aortic valve replacement due to a bicuspid aortic valve and severe stenosis. I opted for a bovine valve. Things are going well and I feel good.....I walk about 2 miles a day.
My BP has been a little high so trying to figure that out with changing BP meds.
Hope all the oldies in my time frame are doing great and you newbies will be just fine !!!
Not sure if any of the “year ago” posters are still here reading but I wanted to check in.
A year ago today was my angiogram that I was so terrified of!
Anyone needing it and a scaredy-cats like I was please don’t be. It wasn’t bad at all and YES I would go through it again !
They went thru my wrist and I was clear of any blockages.
Then I had a 18 day wait til my surgery day .......
AVR with an Edwards Bovine valve !!!!
I feel great and am doing great.....( I Think ) !!!!! I go for my checkup next month !
I can’t believe it’s all behind me and just a past memory.
Hope everyone that was in my timeframe is doing good.....and for all of you just going through it now .....you will do great and soon it will just be a past memory also!
8 week cardiologist appt today.
He was pleased with me..... but BP is high a bit.
I am currently on 25 mg carvedilol ( Coreg) morn and night and 100 mg Losartin. He added an additional 25 coreg to the night .
He scheduled an echo for Monday the 18.
Is an echo common so soon after?? I guess I am just worrying.
I am 5 weeks out AVR surgery today. Got released from my surgeon last week.
My Blood pressure has been on the increase the past five days.
This morn 160/103
Taking metropolol 50 mg morn and night.
Has anyone else had this happen ??????
I put a call into a special number they gave me when you are released for any issues and explained so hopefully will hear back.
I made it here to the other side !!!!! GOd is good 😊 and thank you for all prayers and wishes!!
I AM HOME !!!! YESTERDAY Afternoon
My surgery was Tues at 2 pm. My Drs have said I did fantastic. Wanted me home to recover and NO INFECTIONS !!!! I was out in 3 days !!!!
No rest in ICU...... they had me up siting just a few hours out .
The breathing tube came out in 2 hours (my dreaded fear ) .
I remember it a little......
Everyone was great. Nurses amazing and sooooo into their knowledge and spirit. Loma Linda s a Seventh Day Adventist University and the way and will of everyone is so much different than anything local we would have. I feel that they have saved my life.......
I DO have a Binder on for larger breasts so no separating incision and my roomie had one also although she was a petite woman.
It is very comfy and velcros at the front.
I DID get a little bit too much , COLACE., MILK MAG, MIRALAX, so yesssss
I was able to GO before I GO !!!!!!!
By the way I am an Edwards Bovine. Trying to register but it isn't letting me :(
I hurt in incision at times. But am only taking Tylenol ...
Have the stronger stuff but trying to hold off.
On Metropolol 2 x day and Maxide 37.5. And a slight fluid restriction.
I go back this Wed to see my Dr.
I had to do a call in for status of surgery.
I was scheduled to be first at 7 am with a check in time at 5am.
Now I got bumped til 2 pm afternoon with a check in time at 7am.
Not happy but.........😏
At my pre op I did ask about Breast support after surgery and the breast pulling on the sternum. It was suggested I get an open in the front bra.
Well here it is Saturday..... I don't have a lot of options for running to a store where I live. I can order on line but I thought at some point I saw a mention of something here.
When I do a search the AZTEC Bra keeps coming up but 135.00 eeeks !!!
I don't mind spending but don't want it to be a waste that gets tossed .
Does anyone have any knowledge or help ??
Thank you in advance for help
Well I am home and in bed for a good nights 😴 !!
Pre op went OK!
They tour you to where you will be in the Heart ICU . Scary!! Then you watch a movie as to what to expect.
Of course I am scared of waking up with the ventilator tube still in .... then finding my arms will be restrained 😥
Everyone seemed very nice.....
Then down to the surgeons clinic for blood draw etc and exam again.
I chose my valve type !!! Tissue versus mechanical ...I chose Tissue
I still am scared but have been reassured I have the best Dr!
The next step is to be in the car at 4 am Tuesday morning driving there!
They gave me something for my anxiety !!!
Scaredy Cat Here..... checking in.
I have my pre op tomorrow Thursday and am feeling 😩 anxious.
I start at 9:00 up on 7100 for a tour ...... then down for financial clearance and then to Surgeon (PA) for my pre op .
Any advice for questions would be appreciated.
I know I am telling them my choice for a tissue valve.
I have had so many many mixed feelings the past couple days from despair to sadness, scared.
I also have Had to quit taking my anti inflammatory drug for my joints and am n a HUGE painful flare up to the point my knees are aching nonstop. I cheated and took a pill last eve at bedtime. I will tell them tomorrow !!
Well.....I am trying to think ahead and although I have my trusty IPad which is attached to my hip most days I thought I might need some good ole paper magazines so just placed an order with Discount magazines to keep my brain entertained !!
Waiting for the transporter to take me for the angiogram
Angiogram Done !!!
Journal posted on September 28, 2017
Well....got thru the Angiogram today!
I am 100% clear of any blockages...... YAYYYYYYYY
I was a nervous wreck but actually it wasn't as bad as I thought it might be.
They went through my wrist and yes it's pretty black and blue .
Hi...everyone.... I had another surgeon consult with Dr Anees Razzouk from Loma Linda University on Wed 8-23-17. I am now scheduled for surgery Oct 17, 2017 with the angiogram on 9-28.
He also explained along with my bi cuspid aortic valve with severe stenosis that I also need an Aortic root enlargement . I had not heard of this before...... ???? Does anyone else know about it or had it ???
Also how do you choose between a tissue valve or mechanical ????
Coumadin the rest f my life???? I just don't know"......... ugggh
Any help is greatly appreciated
Hi Everyone......it's been a while since I have posted here. Unlike most people here who have these heart issues and are brave I am scared of my own shadow and have cancelled 2 surgerys. I found out one year ago right now that my stenosis was moderate to severe. Bicuspid aortic valve. I have chosen to try and ignore but also fret and worry myself into a frenzy most days.I had a surgery for Jan = cancelled and rescheduled for May = cancelled.....and now rescheduled for Oct 23.
In the mean time I have decided to seek and meet another surgeon at Loma Linda....... this Wednesday. He requested an up to date echo which I had done last Monday with the results now being " severe" and output of 60. % left ventricle thickened.
I know I have no choice but to go thru with surgery . I am hoping for more answers or ???? This Wednesday.
I lost my father in 1983 undergoing this same surgery which is why my fear is so awful. His heart did not restart. I know Heart surgery has come a long way since then.
Just wondering if anyone else has gone thru these feeling etc?
Just wondering how long most of you have waited for having the surgery once your cardio told you it was necessary ? I hope that question makes sense ! Right now NOTHING makes sense since yesterday's BOMB got dropped on me.
I am going next MONDAY to have a visit with the surgeon but in my head don't want it til after Jan 10 or so. Also do they try and push you into it sooner ??
I did know I have a congenital heart Bicuspid aortic valve. Also aortic stenosis......It has been in the "watch " mode and has stayed the same but got the bad news today that it has gotten severe.
I just never thought " ME"
So many issues before I can even consent to it 😔
Feeling Anxious & Crazy !!!!!