Guestbook of Lilly Black

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Lilly Blackgot a new guestbook post

130 days ago

Ruth joy posted a note for Lilly that says:

Hi Lilly ,
Congratulations on your nine year anniversary !!!

Lilly Blackgot a new guestbook post

362 days ago

Klara Čičić reacted to this

Terrie Syvertsen posted a note for Lilly that says:

Hi Lilly! Of course I remember you! Your constant support and comments with all the others here was what helped me through th first surgery and I do hope you ...Read more

Hi Lilly! Of course I remember you! Your constant support and comments with all the others here was what helped me through th first surgery and I do hope you are doing great as I write this! I will keep in touch as things progress.this week towards surgery.

Lilly Black Terrie, so good to hear back from you! Yes please keep in touch as things progress.

I am doing real... Read more

Lilly Black Terrie, so good to hear back from you! Yes please keep in touch as things progress.

I am doing really well and so grateful that I'm doing well! In hind sight, for at least 10 years it was a roller coaster ride mixed with fear and anxiety. I healed and recovered, was much more active and managed my panic attacks. Then Covid hit! another 3 years of fear and ambivalence. Now I'm in a better place... I know how to keep safe and am enjoying life more. No heart problems and my bovine valve is doing great!

I wish you great success with the surgery! definitely looking forward to receiving your updates as things progress on your end. I will be on the look out for them....Good luck, Terrie!

Lilly Blackgot a new guestbook post

495 days ago

Ruth joy posted a note for Lilly that says:

Hi Lilly ,
Congratulations on your eight year anniversary !

Lilly Black Thank you so much, Ruth!!

Lilly Blackgot a new guestbook post

1600 days ago

Christine Pittelli posted a note for Lilly that says:

How are you doing? Did they find an AAA? You were going for the test in May. Thanks for sharing your symptoms.

Lilly Black Hi Christine. How are YOU doing? so nice to hear from you! I feel like so much has happened, but AAA ... Read more

Lilly Black Hi Christine. How are YOU doing? so nice to hear from you! I feel like so much has happened, but AAA was not recent problem. My AAA was found back in 2007. You can read my journal to get the most current information. I'm doing well thanks for asking! However Tinnitus is still a problem and sometimes PVCs. I have not followed up on my brain tumor diagnosis since the neuro surgeon didn't seem concerned. I've spent so much money on MRIs, and tests...I'm done! I guess there will always be something going on at this point. I am 68 years old! In general, I'm feeling fine and will continue working hard to maintain my health. Please let me know how you are doing!!

Lilly Blackgot a new guestbook post

2245 days ago

Carmel Power posted a note for Lilly that says:

Hi Lilly. I hope you have found the basis of your migraines and have achieved some relief. All the best. C

Lilly Black Not yet Carmel. But I am working on it. I will not be defeated! In a way it’s worse than the 2 hear ... Read more

Lilly Black Not yet Carmel. But I am working on it. I will not be defeated! In a way it’s worse than the 2 heart surgeries I had because it seems there is no hope. My heart surgeon wants to help me find the cause and that in itself is reassuring. He recommended an MRI, which he will order and review. Thank you for checking in! I will absolutely keep you/everyone posted because we can learn from it. I hope that no one else has to deal with this .... it can drive you crazy! 🤪

Lilly Blackgot a new guestbook post

2310 days ago

Elaine Foster posted a note for Lilly that says:

Hello Lilly, I am sorry it's been so long since I have corresponded with you. Our heart anniversary came and went, and I really forgot about it! I was in ...Read more

Hello Lilly, I am sorry it's been so long since I have corresponded with you. Our heart anniversary came and went, and I really forgot about it! I was in Florida with my old grandson and his family. He has a 4yr old boy and 3 yr old girl. I was kept busy to say the least! I am well, unfortunately, I have put on about 15 lbs since my surgery, and that seems to be slowing me down a little. Other than that things are going great. My daughter and I have made a pact to start a diet the day after Christmas. I will see her in 5 weeks, so we both plan to lose 10 lbs by then! She lives in FL also, and I am in IN. I am sorry to hear you have had such a struggle, I hope things are improving for you. I haven't forgotten you, and I send you Christmas blessings. Elaine

Lilly Black Hi, Elaine. Great to hear from you, and I'm happy that you are doing so well! Even though I had some ... Read more

Lilly Black Hi, Elaine. Great to hear from you, and I'm happy that you are doing so well! Even though I had some struggles, I can honestly say I still have nothing to complain about. I have had no complications with my heart! I am so grateful! I too need to lose weight and I do intend to start a diet in 2018. It sounds like you are having fun with your family and that is so important. No need to apologize about corresponding at all. Great to hear from you! have a wonderful holiday season! All the best to you and your family. May 2018 bring you some peace and great health! take care.....

Lilly Blackgot a new guestbook post

2317 days ago

Peter willard posted a note for Lilly that says:

Lilly Arnold S. had the Ross operation which is not a bovine valve and last a long time also Adam Pick had the same operation.

Lilly Blackgot a new guestbook post

2317 days ago

1 person reacted to this

Maria Williams posted a note for Lilly that says:

Thanks for sharing. I can relate to so much of what you described. I think we met at Patient Day in Feb., 2016.

Lilly Black Maria, thanks for your note. We met in 2016 at Edwards Sciences patient day? Where were you sitting? ... Read more

Lilly Black Maria, thanks for your note. We met in 2016 at Edwards Sciences patient day? Where were you sitting? and how did we meet? :)

Lilly Blackgot a new guestbook post

2318 days ago

Chrissie posted a note for Lilly that says:

Hi Lilly! I too celebrated my 3rd year anniversary in May . Then June brought me pain in my face neuralgia, headaches and then double vision . Finally diagnosed ...Read more

Hi Lilly! I too celebrated my 3rd year anniversary in May . Then June brought me pain in my face neuralgia, headaches and then double vision . Finally diagnosed with an inflammatory illness in the orbit of my eye. It’s been difficult for sure and now I’m about to start radiation therapy combined with steroids. It’s really hard but I have to deal with it . I found help in meditation and good nutrition. Keep fighting and take care .

Lilly Black Chrissie, I hope this message will get to you, because I cannot find your profile. Thank you for sha ... Read more

Lilly Black Chrissie, I hope this message will get to you, because I cannot find your profile. Thank you for sharing that you also celebrated 3rd year anniversary! congratulations! But....inflammatory illness in the orbit of your eye? My goodness. I can't even imagine how painful that might be! Sorry to hear. Meditation and good nutrition definitely will not hurt. You too, I will keep fighting....there is no alternative. One day at a time.....thank you for reaching out to me. All the best....take care.

Lilly Blackgot a new guestbook post

2391 days ago

Tina Williams posted a note for Lilly that says:

Lilly- I will never hear "Rise up" without thoughts of this journey again:). I am hoping to be discharged tommorrow - and looking so forward to it. I know ...Read more

Lilly- I will never hear "Rise up" without thoughts of this journey again:). I am hoping to be discharged tommorrow - and looking so forward to it. I know I have made progress but hope it comes full circle once home....

Lilly Black Tina, I hear you! I cried when I heard it cause I felt it! I felt myself rising up and it gave me th ... Read more

Lilly Black Tina, I hear you! I cried when I heard it cause I felt it! I felt myself rising up and it gave me the strength and courage to survive! Your progress will continue at home! One day at a time....I wish you a great recovery! Keep walking and using the spirometer....be patient, you can do this!

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