6 months since AV surgery , (can't believe where the time has gone) all well except one thing - in the last month, occasionally I have got breathless after light exercise even after resting this stays for a couple of hours but disappears after a good nights sleep. I have have heard people say the same sort of thing and its 'usual' or gets better after a year post op. Any one have any experience of this?
3 Months & 1 Week after op and can at last say I am feeling much better. Have to say the first couple of months were quite tough a lot of pain and pills some of which is down to problems during the op. Has been a case of 2 steps forward and 1 step back or sometimes 1 step forward and 2 steps back!
Have started cardiac rehab which as been great and now down to 2 different tablets a day and virtually no pain, unless I over do it. I can only reflect what was said to me, 'it takes time but you will get there'...
Apparently during the operation I went into anaphylaxis which they believe this was due to one of the anesthetics (or plastic’s?) in the system, they are doing some tests to try and identify exactly what it was. My blood pressure went down to 40/20 and my heart did not re-start spontaneously and had to be shocked. I was sedated and put in the high dependency ward where I woke up (very groggy but) none the wiser 24 hours later. After that swelling & itching, (due to the anaphylaxis?) caused severe back pain and a fast acting dose of ‘tramadol’ did not have a good effect on me and left me with a ‘lost’ weekend of which I have no idea of what happened. Possibly because of this I was 2 or 3 days behind the curve of what ‘I’ had expected and left hospital 9 days after the operation instead of my expected 6 or 7.
Was great to make it out before Christmas however the 9 days since leaving hospital have been ‘slow’. Bad constipation due to the pain relieve meds has been resolved, (if they don’t get you one way they you the other!). After a week at home I can make it up the stairs in one go, where as I had to stop every other step the first time.
I ‘believe’ I am feeling more pain than I had expected after the operation but not sure what is ‘normal’ I am on 4 meds for pain relief and another 5 dealing with heart function. I am expecting to come off most of these at the 6 week review, I would be glad to hear the experience of others post op-pain?
Praying for a happy and healthy new year for all visiting this site.
After posting I had a trapped nerve but all was going fine they prescribed oxynorm because of the trapped nerve and l went dulally. The last 24 hours is a complete mystery to me. The pain relief did not work for me, being told what you did for the last 24 hours but not knowing what you did is rather odd. Still not really with it but at least I know that!
Improved pain relief meant much more movement but limbs still badly swollen moving about as much or more than other patient's but don't seem to be progressing as quick, plan to discuss with surgeon tomorrow.
I had expected to be able to breath normally once the drains were removed but it has taken 24 hours to settle have session with the phyiso Friday but the most wonderful thing no banging heart and I can hear 'Nothing'
Apparently had an allergic reaction to something in the anesthetic and blood pressure went crazy had to be sedated for 24 hours plus blood, now on high dependency ward. Other than that don't feel too bad;)
I first met my cardiologist less than two months ago and later today head for the hospital for my AVR tomorrow. There have been moments when I thought that’s my lot but thanks to the people on this site I’m as prepared as I ever will be. While the medical teams are doing all they can to ensure we survive physically, here I have got the answers to the many questions after the doctors have left.
Looking back through older threads I did not recognize many names and realized, brilliant! these people have got through it survived and moved on with their lives and in the nicest possibly way, who wants to be a member of this club? But I am very thankful to be part of this family.
Hospital called and surgeons secretary's said a slot had come up for tomorrow morning could I come in today (glup!) but then realized I hadn't finished the 5 day MRSA treatment, so as I was, still scheduled for Friday.
Surgeons team contacted me yesterday and want to bring surgery forward, check in on the afternoon of the 8th December ready for the 9th so looks like a week and a bit to go. Am beginning to get breathless doing simple jobs so need to get on with it.
Sometimes I’m focusing on something and everything is ‘normal’ then there is a sudden realization that I’ve got to have this operation and it all goes unreal again, does anyone else have that experience?
Met with surgeon today. Advised CT heart scan not required as they have all the information they need and believe they can determine a bicuspid aortic valve from the angiogram in any case the operation will confirm this. Arranged a pre-op for next Tuesday 23rd November and said they will operate within the next two weeks. Good to know things are moving on but worrying they seem to be putting an urgency on it - I am worse than I feel? Long discussion regarding biological vs mechanical valve, the choice is mine but I have no idea which one to go with?
Coronary angiogram found 2 separate left coronary arteries
Journal posted on November 5, 2016
Thanks for your responses; it’s comforting to know one is not alone on this journey. It’s like going into a dark room to fight some evil demons; I understand why the guy went into surgery with a light sabre. Still fearful though, the first thing I watched on TV after being told I needed AVR was that episode of Colombo where Leonard Nimoy, (forever Mr Spock) used the wrong sutures to try and kill the patient – surely they have different colours?
Had a coronary angiogram yesterday. Terrified going to the hospital but a huge peace came over me in the pre-op ward and did not need a sedative. All fine for 20 minutes and someone said ok, just finishing then suddenly it’s ‘oh, look there, that’s a ????’ then I was there for another 15 minutes. When they finished the consultant showed me some images and explained I was ‘special’ as I had two separate left coronary arteries instead of one - which I think is good. Anyway all normal and no narrowing, all that healthy living has finally paid off.
Meeting the surgeon & team in a few days and have to think about what sort of valve to have. I am assuming I will be directed towards a mechanical valve based on age etc. and have seen the videos but would be very grateful to anyone who has experience of either and what it actually means to them in day to day living?
Just been told I have severe aortic stenosis and need a valve replacement urgently. Never spent a day in hospital in my life before. Never felt any symptoms until I walked up a hill whilst on holiday three months ago and became breathless. Now terrified.