Ben's Posts

Diagnosis: Mitral Regurgitation

Member Since: March 13, 2015

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Ben Hyman posted an update
5 years ago (June 14, 2021)
Hello fellow heart warriors. It's been a while. I had a successful Mitral Valve repair at Mayo Rochester in March 2017. All had been going well until last March when the pandemic hit. Up until then, I had been working out 3 days a week with Kettlebells, as well as... Read more.
I notice the heat will impact my heart rate and the readings on my Apple Watch. The hotter it is, the higher the readings. I'm so sorry... please take gentle care of yourself.
I also notice that after tennis or pickleball in our hot ,humid Florida climate that my heart rate goes higher an stays high longer . I think for me, I am not hydrating enough, am not aerobically fit enough, and I found that during the summer, I just can't play... Read more.
Extreme heat plus humidity has a major impact on heart functionality. At cardiac rehab was told to not do any exercise or extensive anything when temps were over 80, plus there is the humidity factor. Am only 3 months out from surgery, but dont expect this caution to change much... Read more.
Hi Ben, Sorry to hear you're going through this. I hope you get it figured out soon.
So I met with my Cardiologist who believes that my issues are being caused by the Alpha Blocker I was prescribed for my UTI and the "flow" problem that it's causing. It opens the blood vessels around the Urethra but also causes dizzy ness and lightheadedness when standing ( oh... Read more.
Ben Hyman posted an update
8 years ago (September 23, 2017)
Hello fellow heart warriors . I was recently contacted by another fellow Mitral Valve repair patient wondering how I was doing and suggested that I update my journal. Well...I'm still here! As you all know, I had a stroke 3 months after my repair which gave me a minor setback.... Read more.
Thanks for the update Ben. It takes time to feel "normal" again, whatever that normal may be. A year sometimes seems like a short time when you later look back at it. Here's hoping that you will be soon back in the (muscle) shape that you are used to. Take... Read more.
So glad to read your update & hear how well you are doing! And thanks for letting us know what the docs think caused the stroke - I'm 4 months past a repair with an artificial ring, I won't be pushing so hard to stop the Coumadin now! Best wishes... Read more.
I'm happy to hear all is ok, Ben.. I have been wondering how you were doing.. I'm 5 months post op today and I feel good also.. Back to my boxing class and hoping to start some weight training ( not 180lbs) soon.. I think it takes a year for... Read more.
Ben Hyman posted an update
9 years ago (June 6, 2017)
I was admitted to thechospital today for a stroke. . My valve threw a bloodclot which caused extreme dizziness I had the oresence of mind to call 911 and they administered TPA in time. Fortunately there is no permanent damage. I was doing so well with my recovery I never... Read more.
👍 Ben Hyman reacted to this
Hi Ben. So sorry to hear of this setback although it sounds like quick and effective action was taken and any effects minimized. This may slow your recovery a bit, but with rest and careful planning, I bet you'll be back on track soon. I'll be pulling for you.
Sending good vibes! Glad you knew what to watch for. Fingers crossed its just a minor glitch and the recovery continues.
Thinking of you & praying you are back to full recovery mode soon!
It's so frustrating no neurodoc has come by to check in on me to find out how I'm doing and fill me in on what the hell happened this morning and what to expect! Not impressed wih the docs here
Anonymous, heart valve patient
Anonymous
So sorry to hear about this Ben! Sending positive energy your way that this is a wee setback and you'll soon be on your way to a full recovery.
Oh Ben, how very scary! Please keep us posted...sending all positive thoughts & prayers to you. Hang in there, may this be only a bump in the road for you!
I am so sorry Ben! Thank goodness you acted right away! I see that you are no longer on blood thinners. I've been back n warfarin for almost a year due to occasional afib or a flutter... I'm glad I am after reading your post. Feel better and I do... Read more.
Ben just read your story you have been through a lot but done all of the right things i think u are going to be fine just a glitch i soon will be having my second surgery gad a ross 17 years ago and it needs repair so here i... Read more.
Sending get well wishes! You'll be in my thoughts and prayers as you overcome this incident.
I am so sorry this happened--that must have been scary! I hope you get to see a neurologist very soon. Wishing you a quick recovery.
Thinking of you! So sorry this happened.prayers you have overcome all the hurdles that were in your way and now it's a smooth road recovering.
I'm sorry to hear that Ben.. but that was good thinking.. prayers to you that you recover soon
Sorry to hear this Ben, but praying you make a full recovery.
Hi Ben ~ I am so sorry that happened it must've been very frightening for you. Try to be assertive with the doctors and get them to see you quickly. I had a stroke prior to my heart surgery in 2012. I'm here to support you in anyway I can.... Read more.
It can be hard to get information in hospitals. Doctors spend their time talking to computers and feel they have spoken to patients. One sits around waiting for explanations... I'm sorry you have to gotthrough this. Being readmitted to hospital is no fun. Take care, and hope you have some... Read more.
Hi Ben, I am so sorry to hear about your worrying set back. You have been doing so well since your surgery, and it is my deepest and most sincere wish that you can still try to be positive.... and will very soon get the acceptable answers you are seeking,... Read more.
Being discharged tonight. The nurse was telling me that they have never discharged a strioke patient directly from ICU to go home- esoecially with a large clot like I had
Wow, Ben - prayers that you get appropriate answers and treatment from your doctors after this upsetting occurrence.
Very thankful you're doing so well, Ben. Wow.
Take good care. Why are you going home so quickly if that is not what they normally do? I hope you are comfortable with that, if not please voice your concerns. I am sending you positive energy. 💓
Oh wow Ben 😔 I'm so sorry. Thank God you called 911 and caught everything in time. That's amazing. I hope they figure it out for you. I'll be watching for your updates.
Yes why are you going home so quick if it isn't the norm? Prayers🙏🏻💞
That is so scary, Ben. Did they put you on blood thinners? I'm really surprised you are being discharged so early. Be your own advocate, if it doesn't feel right, question them. Prayers for you. Yvonne and Craig
Wishing you a full recovery! Your heart brothers and sisters are sending our well wishes!!!
An still in the hospital. They decided to keep me admitted for one more night for observation. Should be discharged by lunch time. Soooo sick of hospitals and being poked every 5 minutes!
Just read Amy's post on her stroke and made a comment on her profile to contact me. Hers sounds like a bleed. Mine was from a clot. Wonder how many others who had a mitral repair had a negative neurological event? Just gave myself a Lovenox injection. I thought I... Read more.
I must have missed this post, but just saw your comment on Amy's page. I'm sorry to hear you're going through this and hope that they can prevent this from happening again. Did you ever get a full explanation of why this happened?
I'm so sorry to hear about this complication Ben. I hope they figure out what happened and you can get back to your normal, healthy self soon.
Oh my gosh. So scary Ben! I hope you are feeling better and getting the answers you need. Stroke is one of my biggest fears. I do hope this is an anomaly and it is behind you. Take care!!
Lovenox!!! I remember it well. I took those after surgery. Then when my INR was good I was taken off and on Coumadin. I was taken off of Coumadin in December after August surgery, but put back on the following July due to an a flutter event. Been on it... Read more.
Ben, I hope things are getting better and better now. Sooo sorry you had this ordeal!

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