Couple of weeks ago I got a Guest Book note from Mike T. I am not sure If he can see my reply. Probably no, if he does not check it back on my Guest Book. So ...Read more
Couple of weeks ago I got a Guest Book note from Mike T. I am not sure If he can see my reply. Probably no, if he does not check it back on my Guest Book. So I post here.
Hi, Mike T, hope you are doing good. Would you mind sharing your email address with me? My husband and I can meet with you in person to chat about the surgery and the hospital.
Greetings from Lixian and Donghua! Lixian is doing great! He does some light cardio 3-4 times weekly. Sometimes he will have some bruises, especially when ...Read more
Greetings from Lixian and Donghua! Lixian is doing great! He does some light cardio 3-4 times weekly. Sometimes he will have some bruises, especially when he has cold. Nothing else is worrisome. Life is good!
Hello all,
Lixian has done a 3-month post-op echo lately. Dr. said everything is good. I read the report mailed to home. It says trace of mild mitral regurgitation. ...Read more
Hello all,
Lixian has done a 3-month post-op echo lately. Dr. said everything is good. I read the report mailed to home. It says trace of mild mitral regurgitation. It is a little worrisome, but at least nothing to worry for now.
Life is still good!
Diane Maher Hello...I notice that Lixian had an AVR but now his echo is showing some mild mitral regurgitation. ... Read more
Diane Maher Hello...I notice that Lixian had an AVR but now his echo is showing some mild mitral regurgitation. I had my AVR done Aug. 20 and 6 weeks later had a follow up echo....which showed mild mitral regurgitation. At my 8 week consult with my surgeon, we discussed this new finding but he said he was quite confident that it was going to heal on its own as all the valves were checked before closure and everything was fine.
At my 6 week consult with my cardiologist, he basically said the same but ordered another echo to be done a couple of weeks ago for comparison. I had my consult this week, the cardiologist said there was noticeable improvement between the 2 echos, everything was working and healing well and he could no longer hear any mitral valve murmur. Therefore, I don’t have to have another echo or see him for a year. I am hoping that this will be the case for Lixian❤️🙏
Judy S Wonderful for you and encouraging for Lixian, Diane!
Lixian and I both agree that the waiting side was much harder than the recovery side. The first week after surgery was the hardest days in our life. We definitely ...Read more
Lixian and I both agree that the waiting side was much harder than the recovery side. The first week after surgery was the hardest days in our life. We definitely have more smiles after those days.
This surgery humbles us in so many ways. We do not take life for granted any more. Priorities of things in our life change. Many things become trivial. For example, I am looking for an Internship. Job rejections are just not that important any more. My past self would take these rejection seriously. LOL
I will say that it is just bad luck that these things happen to Lixian. The only way is to accept it and brave it. It is absolutely hard, but we get through it and we will continually strive for the best.
We will continue to spread the spirit and support the community. See you all in the recovery side!!!
Louanna Miller You are strong and you are s warrior. Keep taking it one day and one step at a time. It’s a tough ... Read more
Louanna Miller You are strong and you are s warrior. Keep taking it one day and one step at a time. It’s a tough journey but does get better. I’m 8 weeks post surgery and am finally feeling significantly better and feel like I’m making progress. We are all different and we must allow ourselves to walk our own journey. Take care of you!!
Susan Lynn Beautifully written and an excellent reminder to keep perspective about the most important things in ... Read more
Susan Lynn Beautifully written and an excellent reminder to keep perspective about the most important things in life. Our experiences are responsible for creating the people we are. Ironically, the worst ones can be the most developmental because they force us to evaluate ourselves, what we're made out of, even how we choose to spend the time that we do have. None of us want to be heart patients, but I would say that we all recovered with something more than our respective repairs and replacements. We were brought together in this community and we were given the greatest gift to cherish every day. You don't realize how important life is until you're forced to think about the alternative.
Thank you for your post - all the best to you and Lixian!
Marie Myers An excellent post! Lots of wisdom there. Having such a big surgery can change our perspective on thin ... Read more
Marie Myers An excellent post! Lots of wisdom there. Having such a big surgery can change our perspective on things, that is for sure. Wishing both of you all the best!
Rita Savelis Thanks for sharing. Congrats for making it through that first difficult week! Wishing you a smoother ... Read more
Rita Savelis Thanks for sharing. Congrats for making it through that first difficult week! Wishing you a smoother ride from now on.
Lixian's INR is under control ~3.1. He got 10mg warfarin when hospitalized, so his INR was so high after discharged. Now he is having 2.5mg daily. So far so ...Read more
Lixian's INR is under control ~3.1. He got 10mg warfarin when hospitalized, so his INR was so high after discharged. Now he is having 2.5mg daily. So far so good.
Susan Lynn Fantastic news!!! Thanks for the update!
Catie B I know it's a relief to have his INR on track!
Day-1 after surgery (Sep. 25, 2018), Lixian starts to feel miserable. He woke up in the afternoon on surgery day and talked a lot. The blood pressure was normal ...Read more
Day-1 after surgery (Sep. 25, 2018), Lixian starts to feel miserable. He woke up in the afternoon on surgery day and talked a lot. The blood pressure was normal (120+/60+) yesterday. But today he is really sleepy and tired. And the blood pressure goes up (140+/80+). The team says they will give him medicine later today.
He has two roommates in the ICU. Praying for them all.
Marie Myers The first couple days were the worst. Everything will slowly get better. Try to stay optimistic.
Doris Fowler Prayers for healing and that he get good rest
Susan Lynn The anesthesia takes some time to work it's way out of the body. For the patient, sleeping can fee ... Read more
Susan Lynn The anesthesia takes some time to work it's way out of the body. For the patient, sleeping can feel like a relief after the pre-surgical stress and a quick way to pass the time in the hospital. He'll get his energy back then it's - walk, walk, walk.
Lixian's surgery went smoothly. It took about 3 hours. Only aortic valve was replaced with the ON-X valve. He is still sleeping, although he looks good. His ...Read more
Lixian's surgery went smoothly. It took about 3 hours. Only aortic valve was replaced with the ON-X valve. He is still sleeping, although he looks good. His eyes are a little bit swollen. I'd like to record everything and make a photo book for him. But I was not allowed to take a photo of him. Never mind.
Feeling blessed! Thank you all for the support and thank God!
Susan Lynn Great news! Thanks for the update. Wishing him a speedy recovery!
San Myint Very good news.Wishing him a speedy recovery.
This afternoon (8.1.2018) was interesting. Both of my hubby's and my minds were in the clouds. We left early to the clinic but forgot to bring the echo CD, ...Read more
This afternoon (8.1.2018) was interesting. Both of my hubby's and my minds were in the clouds. We left early to the clinic but forgot to bring the echo CD, forgot to close the garage door, and found the wrong way to the clinic.. lol..
So far so good. Not allowed to record the talk. Lixian will have a CT scan to check if aortic graft is needed. Will have the surgery done within 2-3 months. I am ready but Lixian is not.. lol..
Dr. Macheers seems nice and great so far.
Catie B I'm glad you were impressed with the surgeon. It will help, knowing Lixian is in excellent hands.
Marie Myers It can be very overwhelming at first, but Lixian will get through it! Take one step at a time...
Susan Lynn It's perfectly normal to feel stressed and preoccupied. I forced myself to maintain a folder of my ... Read more
Susan Lynn It's perfectly normal to feel stressed and preoccupied. I forced myself to maintain a folder of my information so I could stay organized for each consultation. You're all going to be fine. Take it one day at a time.
Lixian and I will meet with his surgeon this afternoon (Aug 1, 18). His surgeon is Dr Steven Macheers in Emory St. Joseph's Hospital. Which surgeon and hospital ...Read more
Lixian and I will meet with his surgeon this afternoon (Aug 1, 18). His surgeon is Dr Steven Macheers in Emory St. Joseph's Hospital. Which surgeon and hospital will you suggest or have any comment? Hospitals in Atlanta area seem good enough to me, even though they are not the best in the US. We appropriate any comment. Thank you!
Chris Purvis I live in Atlanta as well. If your staying local Northeast Georgia in Gainesville is the best. Dr. Wo ... Read more
Chris Purvis I live in Atlanta as well. If your staying local Northeast Georgia in Gainesville is the best. Dr. Wolfe and Dr. Winston.
Chris Purvis If you stay local they might be able to do a mini sternotomy. Check out my story if your interested.. ... Read more
Chris Purvis If you stay local they might be able to do a mini sternotomy. Check out my story if your interested...in a minimally invasive procedure that requires travel to Houston Texas
My husband and I just find out the ON-X valve.
Does anyone know or have this kind of valve?
It said:
"The On-X Aortic Valve is the only mechanical valve ...Read more
My husband and I just find out the ON-X valve.
Does anyone know or have this kind of valve?
It said:
"The On-X Aortic Valve is the only mechanical valve with FDA and CE approval for significantly less blood thinner (warfarin)"
But it is quite new.
Appreciate any advice.
Kelly Stoll I have one. My surgery was in April. Cardiologist said it is a little quieter than the St. Jude and p ... Read more
Kelly Stoll I have one. My surgery was in April. Cardiologist said it is a little quieter than the St. Jude and personally, we found some good reviews about it while researching options. It is approved for less warrfrain but it all depends on your diet, body chemistry and INR (how fast your blood clots). We figured worst case, I take just as much meds as I would with the other valve. Best case, less. So far, very happy.
Kelly Stoll You are welcome. It is a big surgery and can be very scary to talk about at first. As my doctor said, ... Read more
Kelly Stoll You are welcome. It is a big surgery and can be very scary to talk about at first. As my doctor said, find a surgeon you feel comfortable with and can trust. The rest will fall into place.
Lyle Blanchard I have one and I'm 14 months post surgery...so far so good... I keep up with my INR weekly and take w ... Read more
Lyle Blanchard I have one and I'm 14 months post surgery...so far so good... I keep up with my INR weekly and take warfarin and metoprolol daily but other than those meds I don't have to take anything. I'm happy with the valve so far and I've been given a clean bill of health from my cardiologist and my electro physiologist so unless I have something come up I will see them yearly from here on. I'll be happy to answer any other questions you may have.
Willie Radl I received the on-x valve in aortic position, it is approved for lower INR range (1.5-2) but there is ... Read more
Willie Radl I received the on-x valve in aortic position, it is approved for lower INR range (1.5-2) but there isn't as much history on that value. So far mine has been great, heart feels normal and don't notice any difference is the way it feels. I work out regularly and there are no issues. Best of luck.
Donghua Cai Thank you Lyle & Willie. Just read your comments. Feeling great to hear all your words!