Today, a lovely sunny English Sunday, marks the two year anniversary of my aortic valve re-do. It was a day that I remember very little of, but the great thing ...Read more
Today, a lovely sunny English Sunday, marks the two year anniversary of my aortic valve re-do. It was a day that I remember very little of, but the great thing is that I was fixed and am now living a great life again. I shall always be grateful to my surgeon, Mr Mariscalco. I didn’t have an easy ride but your body can recover in a relatively short period of time. I know that you won’t think that when you are in the midst of recovery but you will look back and realise that you made it! I am posting this because I feel a bit guilty. Two years ago I looked to this site for support which I found very comforting. As I recovered I visited less and less. However, this forum is about supporting as well as being supported. I shall try to visit more often! Best wishes to everyone who is in the position I was two years ago.
Jane Welp 2 years ago just like you I complete the surgery 3/17/17. Grateful for support of the site before, du ... Read more
Jane Welp 2 years ago just like you I complete the surgery 3/17/17. Grateful for support of the site before, during, after!
LINDA ROBERTS Thanks for your update. So glad to hear you continue to do well.
Vanessa Corwin Ditto for me! two years, mine was 3/22. I feel that the support from this group was essential to my ... Read more
Vanessa Corwin Ditto for me! two years, mine was 3/22. I feel that the support from this group was essential to my recovery!
Marie Myers Happy Valveversary! I followed your journey, because my surgery was just a few days after yours. Glad ... Read more
Marie Myers Happy Valveversary! I followed your journey, because my surgery was just a few days after yours. Glad all is well!
Andrea Smith I remember you Maria. I hope all is well for you.
Andrea Smith Sorry, Marie - I didn’t mean to change your name!
Dan Vechiola Congrats on 2 years Andrea. Big accomplishment!
Susan Lynn Happy Second Anniversary, Andrea! Happy you're doing so well.
Today is the one year anniversary of my AVR redo and I can’t believe how quickly the last year has flown by. An eight hour surgery meant that I lost two days ...Read more
Today is the one year anniversary of my AVR redo and I can’t believe how quickly the last year has flown by. An eight hour surgery meant that I lost two days of the year out for the count with fantastic care (three days in intensive care) and nearly two weeks in high dependency (again fantastic care) The next few months were spent gradually recuperating with a couple of easily surmountable setbacks (a chest infection and suspected TIA). Luckily the weather was so much better than it is here in England at the moment and I spent a lot of time enjoying the sun in the garden. Sunshine makes all the difference! I longed to feel ‘normal ‘ and suddenly without realising it it happened.
Positive things came out of this experience. I am alive and nothing holds me back! My philosophy is that I didn’t go through this to sit down, I make the most of every day. We have spent a lot of time travelling - Spain, Sicily, Italy, Poland (to see Andrea Bocelli), Chicago, where my partner completed the marathon, a bridge too far for me, and Florida.
Probably the most wonderful thing is that I found out who my friends are, to coin a phrase. My partner, Tino looked after me, as did my daughters. My three sisters were always there for me and I was visited by numerous friends who showered me wth flowers and cake. I always knew I had a great family and wonderful friends and this was proof of it.
To anyone facing surgery I would just like to say that I understand your fear and trepidation. It’s an enormous thing to face, but with the skill and care of the surgeons and staff you will come through it and be able to look back as I do now and appreciate the positives. This forum has been a big help - you know that you are not the only one going through this and it’s a big support.
I’m pleased to report that I had my one year check up the other day, and for the first time in 13 years I’m being discharged. I’ll continue to visit the forum and wish all of you the best for your upcoming surgeries and speedy recoveries.
Rose Madura Great post! I'm glad you are doing so well. You have a wonderfully positive attitude about life. E ... Read more
Rose Madura Great post! I'm glad you are doing so well. You have a wonderfully positive attitude about life. Enjoy!
pam williams Wonderful post Andrea so good to hear you are enjoying life again, I am 4 months ahead of you and hav ... Read more
pam williams Wonderful post Andrea so good to hear you are enjoying life again, I am 4 months ahead of you and have been feeling great, 6 weeks ago I had knee replacement so having to take it easy while my while it heals best wishes Pam x
Gina Fiorentino Andrea, thanks for sharing! I'm so glad you're doing well and thriving in your life. I had goosebum ... Read more
Gina Fiorentino Andrea, thanks for sharing! I'm so glad you're doing well and thriving in your life. I had goosebumps reading your post, as I, too already see how much I have benefited from finding a highly skilled valve surgeon, discovering the loving support of friends and family....and count every single day as a blessing.
Helen Daw I'm almost 6 weeks after surgery and love to read about how people are feeling years later. Glad you ... Read more
Helen Daw I'm almost 6 weeks after surgery and love to read about how people are feeling years later. Glad you are enjoying life and I hope I can say the same next year.
Susan Killian So nice to hear from people a year later, I hope to give others inspiration a year from now!
After two weeks, most of which have been a blur, I'm back home. It feels great and we've had a beautiful Spring day to welcome me! Thank you for the support ...Read more
After two weeks, most of which have been a blur, I'm back home. It feels great and we've had a beautiful Spring day to welcome me! Thank you for the support and good wishes leading up to the op. I'm still very weak and everything is an effort, but I know that each day I should be feeling a little bit better.
pam williams Lovely to hear you are now back home Andrea, such early days for you and it's true each day you will ... Read more
pam williams Lovely to hear you are now back home Andrea, such early days for you and it's true each day you will begin to feel stronger ,sending my best wishes for a steady recovery,look forward to your updates x
Catie B Wishing you a very smooth recovery, Andrea!
Civita Fahey just wondering Andrea since this was a re do did you opt for a tissue again or mechanical?
Andrea Smith Hi Civita. I had another tissue valve. My surgeon agreed that it would be best for me as I didn't wan ... Read more
Andrea Smith Hi Civita. I had another tissue valve. My surgeon agreed that it would be best for me as I didn't want to be on warfarin for the rest of my life. He said that this one could last 20 years and if it needs replacing in my 80s it can be done by the tavi method. My old one wasn't fitted with a tavi replacement in mind and was too much of a mess for me to have that procedure this time. I must admit, I don't relish the thought of being opened up again, so I really hope the surgeon is right! Which valve did you have?
Civita Fahey I have the Edwards Magna Ease 23mm.. I believe they feel this could also last 15-20 years.. lets hope ... Read more
Civita Fahey I have the Edwards Magna Ease 23mm.. I believe they feel this could also last 15-20 years.. lets hope..I wish we knew what did or didn't make them last..
A week ago today I was taken into surgery. Unfortunately it turned out to be far more complicated than anticipated and took 8 hours. I came out of intensive ...Read more
A week ago today I was taken into surgery. Unfortunately it turned out to be far more complicated than anticipated and took 8 hours. I came out of intensive care on Tuesday to a high dependency unit where I remain. I need a pacemaker fitted and hopefully that will be done tomorrow. I can't deny it's been an ordeal but I'll get there! I'm struggling to do this PST on my phone and don't have wifi for my iPad so may not be in touch with you as much as I'd like. Best wishes to those awaiting imminent surgery and those of you still recovering.
pam williams Andrea so sorry to hear you have had such an ordeal you are hopefully now over the biggest hurdle, on ... Read more
pam williams Andrea so sorry to hear you have had such an ordeal you are hopefully now over the biggest hurdle, once your pacemaker is fitted you will be up and running so to speak, sending you big hugs, look forward to hearing your updates as soon as you are stronger x
Rita Savelis You are amazing to post so soon! I also got an (unexpected) pacemaker after OHS... and it was quite a ... Read more
Rita Savelis You are amazing to post so soon! I also got an (unexpected) pacemaker after OHS... and it was quite a shock to find out I needed another device along with 2 mechanical valves.
Take care, Andrea.
Civita Fahey Best wishes Andrea and praying you have gone through the worst part and the rest will be easy..
Phyllis Petersen Sorry to hear you had a hard time. I hope that the pacemaker will take care of the rest of your issue ... Read more
Phyllis Petersen Sorry to hear you had a hard time. I hope that the pacemaker will take care of the rest of your issues and you'll soon be on the road to recovery.
God Bless Andrea, I hope you are healing well and don't have any more setbacks. Be Well My Friend
Having been told that it's all systems go for tomorrow, we're just about to leave for the hospital. I'm feeling a bit wobbly and will be glad to get it behind ...Read more
Having been told that it's all systems go for tomorrow, we're just about to leave for the hospital. I'm feeling a bit wobbly and will be glad to get it behind me!
Sunday is Mother's Day in the U.K. My lovely daughters gave me an early present - a one touch kettle. It means that I can have a bit of independence when I get back home and will be able to make myself a cup of coffee.
Andrea Smith Oops! I didn't think this had posted so I pressed 'post' a few times. Sorry to bore you all!
Jane Welp Good morning to you - a new tea kettle sounds grand, Andrea! It is day 10 after my AVR & I truly feel ... Read more
Jane Welp Good morning to you - a new tea kettle sounds grand, Andrea! It is day 10 after my AVR & I truly feel better each day like people on the site say we will! I pray the same is true for YOU.
pam williams Best wishes to you Andrea you have done this before and had a great result with 12 years ,wishing you ... Read more
pam williams Best wishes to you Andrea you have done this before and had a great result with 12 years ,wishing you an even better result second time around x
I am just home from my pre op. CT scan on Monday, then all set for admission on Thursday and surgery on Friday. For anyone who read a previous post of mine ...Read more
I am just home from my pre op. CT scan on Monday, then all set for admission on Thursday and surgery on Friday. For anyone who read a previous post of mine about not being able to raise yourself up using your arms, it seems the guidelines are changed. Now I have been you that as long as you do it with both arms equally and gently it shouldn't be a problem. Also, the guidelines re the wearing of a bra (gentlemen look away now!) have changed and for the less well endowed not an essential.
Andrea Smith That should read 'now I have been told'!
Barbara Helen Dance Hi Andrea, yes, I had my pre-op today, all ok except I apparently my temp was up , unknown to me!!!. ... Read more
Barbara Helen Dance Hi Andrea, yes, I had my pre-op today, all ok except I apparently my temp was up , unknown to me!!!. I had an ECG, a full of observations , bloods and weight, and check for m.r.s.a. . I am already on Warfarin, but must stop that 7 days prior to my angiogram. I don't have a surgery date yet, but may have a better idea once I have had the angiogram. Whether or not it will be replacing the aortic valve alone..... or any thing else..... like a bypass I suppose??. It will either be done at Coventry, or B'ham!!!!!., depending on what will need to be done ,and the best place to have it done????. Hope all keeps good for you, best wishes, Barb.xx
Andrea Smith Thanks, Barb. I had my angiogram in January and am fortunate that it revealed that it was just the va ... Read more
Andrea Smith Thanks, Barb. I had my angiogram in January and am fortunate that it revealed that it was just the valve that needed replacing. Fingers crossed that it will be the same for you. Hope your appointment comes through soon. All the best xx
Barbara Helen Dance Hi Andrea, thankyou for keeping your fingers crossed for me........ I too have my fingers crossed th ... Read more
Barbara Helen Dance Hi Andrea, thankyou for keeping your fingers crossed for me........ I too have my fingers crossed that your surgery goes well ,and you are soon on a speedy road to recovery.My warmest wishes are with you, Barb.xx
pam williams Hi Andrea sending you my very best wishes for your AVR , just think this time next week it will all b ... Read more
pam williams Hi Andrea sending you my very best wishes for your AVR , just think this time next week it will all be over and you will be on the road to recovery will be thinking of you x
Having been told my surgery would be on 14th March, I then discovered it was to be in May. I received a phone call at lunchtime today saying it would be 24th ...Read more
Having been told my surgery would be on 14th March, I then discovered it was to be in May. I received a phone call at lunchtime today saying it would be 24th March. Pre op appointment tomorrow afternoon, CT scan next Monday and hospital admission on Thursday. I'm now feeling wobbly again but will be so glad to get it all behind me and on the road to recovery.
Marie Myers So sorry about your delay. I wish you peace during your wait...
Phyllis Petersen Aaaagh! This has to be driving you crazy. Hopefully, the new date holds and you'll soon be on the oth ... Read more
Phyllis Petersen Aaaagh! This has to be driving you crazy. Hopefully, the new date holds and you'll soon be on the other side.
Tracy Simmons Best to you, I think waiting is one of the toughest things.
Andrea Smith Thank you all for your kind wishes. You're right, Tracey waiting is hard. You try to put it out of yo ... Read more
Andrea Smith Thank you all for your kind wishes. You're right, Tracey waiting is hard. You try to put it out of your mind but it keeps coming back. It seems strange to say that you're looking forward to heart surgery but I just want it out of the way!
Barbara Wood Wow! All the best on your upcoming surgery Andrea.