All my tests at the Cleveland Clinic came out well!
No blockages! My wrist is pretty sore, but the test itself was painless. Got to meet Dr. Svensson who made me feel reassured about the whole process. I am very grateful to have my cousin Margaret here and she has been a great support. Will be so glad to be on the other side of surgery. Have to be at the hospital at 5:15 tomorrow morning. I am sure there will be no sleep . Wishing others going into surgery good luck.
Getting ready to leave here Tuesday for Cleveland. Stocking up on everything except perishables for a month. The cat and dog are hearty eaters so they are occupying a lot of the space in my kitchen cabinets. Also, I want to make sure I have lots of coffee. Will get my hair cut today and may even start packing my suitcase- though I will be in hospital gowns most of the time.
I spent a lot of time worrying about what kind of biological valve I want, but I am sure after my pre-surgery tests Dr. Svensson will make his recommendation and I will feel peace with that. Also, I am going to ask my surgeon is there anything they can do to deter the after effects of atrial fibrillation during surgery. I have not been diagnosed with that so probably they would do nothing- even though I feel my heart racing at times. Also, I have not been going to the gym for have been feeling more tired- pretty sure it is emotional- and don't want to be run down and sick before surgery.
A heart-felt thanks to this wonderful community and all the support I have felt to this point of my journey facing heart surgery. I am so thankful for Adam for creating this site. Wishing all a successful surgery.
I have made my list and these are some of the questions I will ask my surgeon? If you see any question I have left out and should ask, I would appreciate your input? At this point this is about the only thing I feel I can control, so that makes me crazy. I will ask what are the results of my tests pre-surgery? What type of biological valve does her recommend and why, the hemodynamics, size of the valve, studies on durability, will this change my high pressure gradients? What type of incision? Since Cleveland Clinic is a teaching hospital, I want to be assured Dr. Svennson will be doing all of the actual surgery himself. Are there measures to protect against pump brain after surgery and atrial fibrillation? Do I have pulmonary hypertension caused by valve problem? Any questions that you wished you had asked and did not, let me know. Thank you so much.
1.Do patients enter cardio rehab about week 5 after valve replacement? If so , do they give you a cardiac stress test first to see what level you should begin at? I notice some people get the nuclear stress tests but really wonder why since that involves radiation and the regular stress test shows just as much. What is your opinion about the nuclear stress test? 2. Also was wondering, since I just had my teeth cleaned, if all patients are taking are taking 2 grams of amoxicillin an hour before dental work or a cleaning after valve surgery? 3. Is sushi and anything raw a no-no after valve surgery?
I read up to 50% of patients who undergo valve replacement or repair have bouts of atrial fibrillation after surgery. If a patient never had atrial fib and developed it after surgery due to the trauma of surgery, how long did this go on after surgery and did it eventually just go away? Were you placed on a certain medication like metoprolol or whatever and how long did you remain on that medication? Thank you.
For those who have had valve replacement or repair
Journal posted on July 13, 2018
After facing valve replacement and now being on the other side of that journey, I would assume there must be an enormous emotional relief that now I have a healthy heart. My question is, "Do you feel a tremendous difference in your stress level worrying about your repaired or replaced valve, or is that something that remains but the intensity level of worry is different? Would like to know you experience.
I am obsessing today over aorta valve replacement. I have the utmost confidence in the Cleveland Clinic and know Dr. Svensson is a top-notch surgeon. However, due to the distance I will travel for surgery all tests will be done one or two days before surgery and I will meet Dr. Svensson a day before surgery. Since I am an anxious person I want to get it all over at one time. How did others feel that are in a similar situation of meeting their surgeon and getting results of test a day just before surgery?
I will be getting a biological valve and was wondering if any studies have been done on the one with the best durability and hemodynamics? I am curious what makes some people's valve deteriorate faster than other. Any input would be appreciated.