As I celebrated another birthday (53) on Easter, It was fitting for some reflection on many things, but most important to me at the moment are, my faith in God. I know that he will guide me through the next few months with excellent results. "Jesus I trust in you". To my family and friends for all the positive support you are giving me, even though it's hard for me sometimes to accept because of what lies ahead. Thank you, and I love you all! To my wife Kelly who has been my rock through all this including all of my mood swings. I couldnt do this with out you. I Love❤ you! To all of the Heart warriors on this site Thank you for sharing your stories. To Adam Pick Thank you for creating this site to help ease the anxiety/fears of facing OHS.
Everything will be ok.
Ordered this for post surgery. Very Comfy chair. I now have a reason to get rid of the old recliner!
Update posted on...
March 18, 2019
I'm in the waiting room so to speak. Long day of tests and consults at The Mayo Clinic. My bicuspid aortic valve is worse than I thought after seeing the CTA scan results. Very calcified and a small opening for blood to get through. My surgery is scheduled for June 4 2019
with Dr Alberto Pochettino at St Mary's hospital in Rochester MN. After meeting with the surgeon I feel I'm in good capable hands. He answered all my questions on terms that a person can understand, as did my cardio. Im looking forward to the recovery side soon.
Anxiety and anticipation are high right now for me. My wife Kelly and I will be traveling to The Mayo Clinic in Rochester MN tomorrow ( about 1.5 hour drive) for my anticipated CT Thoracic Aorta Scan. Following that up with a visit with my cardio on the results. Then on to Saint Mary's Hospital campus for a consult meeting with my potential surgeon and his Nurse. I have many questions. I bought Adam's book and read it, it did help ease some of my anxiety/ fear about facing OHS. I'm hoping for good positive vibes tomorrow from the days events, and that not to much has changed with my aorta.
I have taken the next step in my journey to fix my valve. I have a CT thoracic aorta exam scheduled for March 18th at the Mayo Clinic in Rochester MN. I will meet with my cardiologist and the surgeon also that day. I have many questions and some anxiety, because I know I will be most likely
setting up a surgery day too. I try not to think to much about it, and to stay busy, it seems to help get me through. I pray everyday to just get to the recovery side. I know I'm not alone and it will be ok, but will admit OHS scares me. I'm hoping Adam's book "The Patient's Guide to Heart Valve Surgery" helps easy some of my anxiety.
Today I am struggling to take the next steps towards the recovery side for myself, setting a meeting with my recommended surgeon and getting a surgery date. I have so much anxiety about OHS and it's on my mind constantly.
I'm new here, I'm 52 years old and I've been diagnosed with bicuspid aortic valve stenosis. I have been doctoring / monitoring yearly at the Mayo Clinic since, for symptoms I started having in 2016 when I was 50. My echo I had done in January 2019 has showed some more narrowing of the aortic valve, along with not so great results from the treadmill stress test. My cardio has suggested that I need to get valve fixed in the next 3-6 months, and has recommended a surgeon, along with some other testing prior to any surgery. I "m so overwhelmed, but I know I have to do this or I won't be around for many more years. I would have a mechanical valve put in b/c of my young age. The thought of open heart surgery scares the heck out of me and I haven't taken the next step In the process. Lots to digest.