Craig's Posts

Hello Craig and Yvonne. I am so sad to hear that Craig has been so sick. I think about both of you often since we share the same surgery date in 2016. I have been doing well and have had no more episodes of CHF since last September. I have my annual echocardiogram and visit with my cardiologist next week. I will be posting an update in my journal at that time. Please know that you are both in my thoughts and prayers through the daily struggles with MS. Take care and God bless you both. ❤️🙏🏻❤️

Thank you all for your thoughts and prayers. I had to cut my entry short as Craig woke up from his nap and needed me. His sepsis has been caused by both uti' s and aspirated pneumonia. Last November he had surgery for a permanent ileostomy for his neurogenesis bowel. In February of this year he ended up with a permanent GJ feeding tube (because of his dysplasia and continued aspirated pneumonia) and a supra pubic catheter for his neurogenic bladder. He has been wheelchair bound since August of 2017. He's been on Macrobid to try and keep the urinary tract infections down, however his neuro urologist down at U of M just gave him a "little break" from antibiotics and within two weeks, he ended up with a super bug. He is on the mend from that and thankfully at the first sign, I contacted his Dr and she cultured it right away. So far, I'm keeping him out of a nursing home and I have respite care two days a week from 9:00am until 1:00. This allows me a shower and a couple of hours to run errands. He can't ever be left alone so I'm trying to enjoy every minute of my 8 hours a week of down time. Denise, I'm so glad you are doing well. Craig's unfortunately had several echoes this year and his Mitral valve is still at moderate regurgitation however we will not plan to do anything about that when/if it were to go severe. We are keeping him comfortable, treating his MS, fibromyalgia, and chronic pain the best we can. God bless you all, Yvonne

Yvonne, Thank you for messaging me so I would see your update! So often, since April I've asked the Lord for you and Craig, and wondered if news would come. How sorry Dave and I are for the hard road you are on! ❤️We continue to pray, I know that, even at my worst, Craig was suffering so much more. But we find our strength in Him. Can I say, Dave had Hernia surgery two weeks ago. I was terrified😳 I found I needed to trust the Lord for every speck of strength I had. The hospital part went well, he's great, our Pastor was with us, and even followed me home to help Dave in the house. (I DROVE!!) but, alone the feeling of, golly. I'm here, attached to an oxygen compressor and now I'm the caregiver! For only one week. But there was nothing for it but to ask God daily for a strength I did not possess. You know Dave, wanting to help me help him! But, that tiny, tiny tiny speck of "turn-around" for me made me even more grateful than I was before. Dave has cared for me with grave, unwavering concern & loving kindness, as I know you have cared for Craig. I know Craig cannot express how your love for him has touched him, or what it means. I know I've been unable to put it into words for Dave. But I am grateful to God, that on THAT Day, we will all know each other clearly.we need Faith Hope and Love now, but then we will only need LOVE; for Jesus and for each other. 💕🌸💕God Bless you Yvonne

Day 2, bowels kicked in tonight!!! Last night he was awake most of the night, not knowing where he was. Confused and crazy dreams. Three more infusions with the last one being Wednesday morning after his 6:30 am MRI of his brain. Taper of prednisone to follow infusions. I nap when ever I get a chance to. Thanks for all of the thoughts and prayers. Yvonne