I'm sitting here tonight thinking about how last year on a Wednesday February the 17th I was in a ICU recovering from having open heart surgery earlier that day. I can't believe Friday will be a year.
Hit by a bus?
Journal posted on May 18, 2016
I started work back Monday. The first day wasn't bad all I did was get caught up on some computer test but Tuesday and today have been rough to say the least! I work hospice and before my surgery I would see 8-10 patients a day today I saw 3 and I wasn't sure I was going to make it! I have no strength!!!! I had to put some TEE socks on someone today and I really almost couldn't do it and when I finally did I had to rest for the next 15 mins! I know it will take time to build my energy and strength back up but I guess I just didn't realize how bad it was. In the mean time I'm looking for jobs that aren't as physical so anybody who would pray that I find one that would be greatly appreciated!
I haven't posted in awhile. I will be 3 months post-op on the 12th. I can't believe how it has flown by. I start work again next Monday and I think I am ready. Everything is going really good the only complaint I have is low energy but I'm pretty sure that is my fault because I haven't walked like I am supposed to😕 Also the pounding heart is driving me crazy still but it's not near as bad as it was and at least it's still going strong! I hope everyone who has recently under gone surgery is doing well and good luck for the ones with upcoming surgeries!
Tuesday I went for my post-op visit. It was the first time i went and my blood pressure wasn't sky high, it was a great 109/73. I was told I was doing great! The anxiety before surgery was awful, the surgery itself was terrible and recovery has had its very tough moments but I'm starting to feel like a normal person again and am so thankful for such a smooth, even though sometimes rough, surgery and recovery. I am so thankful my valve wasn't as bad as all the test showed and I was able to get a repair instead of a replacement. Most of all I am thankful the Lord has been with me through all of this and I'm so excited for what he has planned for me. To all the people who have upcoming surgery my best advice is to pray a lot, use this website as the great support system it is and have a friend you can call at anytime just to hear them tell you "you are going to live! You are going to be fine!" That helped me a lot, just hearing it! Good luck!
What I think I'll do all day! Happy St. Patrick's day🍀
Journal posted on March 16, 2016
I was feeling so good this morning. I got dressed, fixed my hair and make-up. I was gone from 11:45-5:00😳 and now I'm so sore and EXHAUSTED!! I should have known better than to push it so much. Tomorrow I will do absolutely nothing!
I was 3 weeks post-op on Wednesday!! I'm pretty proud of how my incision looks! And except for the coughing and a pounding heart beat every so often I'm feeling pretty good! I can't believe how far you can come in just three weeks. After surgery I thought
How can a 2 hour surgery knock me down so bad?
Journal posted on February 29, 2016
Really got out of the house for the first time since I got home and it whooped my butt!!! I just went and did a little shopping to lift my spirits but it was exhausting! I know it hasn't been long but I'm so ready to feel normal again!! I know now why depression is a side effect 😕
Last week this time k was coming out of surgery! So here is my incision week 1!
Ouch my shoulder!
Journal posted on February 23, 2016
So today is a much better day today. Thank you, Lord! But is there anything I can do about the constant left shoulder blade pain and it's also very sore under my left breast. That's not as persistent however as the shoulder blade! What can I do?!
I thought things were going so well but today has been awful!!! First I have been throwing up and nauseous every time I move. Called about that and they took me off pain meds. I'm hurting a little bit it does seem to be helping the stomach some.y mouth was hurting so I went to look at it and I have thrush😝 got medicine for it but it won't stop hurting tonight. I still have yet to take my potassium pill cause it's soooo disgusting and I know it will make me sick. I can't swallow pills so I have to crush it! Any advice on what to mix that one with?
Leaving the hospital after open heart surgery selfie. Lol
Journal posted on February 21, 2016
So excited to say that they are letting me go home today!!!this has been some journey but for those who are about to go through surgrey the first and seconds are the worst ever!!! But I promise after that things ease up a lot at YOU CAN DO IT! Good luck to all and thanks for all the support on here!
I had surgery Wednesday! I was supposed to have a new valve put in and a aneurysm repaired but when he got in there he said the valve looked much better than anticipated. For all those left surgery sucks so bad but every day it gets a little better and you can do it
Spending the day with my BFF before surgery Wednesday!
Journal posted on February 12, 2016
Well I'm on the board! I'm not going to lie I'm not all that happy about it. I was getting along good when surgery was weeks away but with being on the board and this being my last day of work it's really hit me. IM HAVING OPEN HEART SURGERY!!!!!! That's completely crazy to me. I'm not even sure how I'm going to go through with this! I'm so ready to be on the healing side of things just wish I could do it without the surgery.
So I have my last day at work tomorrow and yesterday my supervisor asked me if I was counting down the days till Friday. Tonight another girl told me that I was about to get a good rest and relaxation! People at work act like I'm about to take a extended vacation! It frustrates me to no end!! I would much rather be at work. I would have love it if my surgeon would have said he didn't think I need surgery and not that he was afraid that if I didn't have it I wouldn't make it 6 months! Did anybody else have this problem with Co-workers or friends! I find it insulting or maybe I'm just on edge and taking it to personally.
So I took my son to the doctor last week and had a scratchy throat myself but felt pretty good. I even stayed inside all weekend and just rested for extra precautions. Today I woke up feeling like poo! Went to the doctor and I have a sinus infection 😖 I'm so sad about it!! My surgery is just 2 1/2 weeks away and I know it's crazy but I picked the surgery date and I don't won't to have to change it! Hopefully I will feel better soon.
I am a Hospice aide and have a pretty physical job where I do a lot of lifting and pulling on patients. My surgeon thinks because I'm young that I will be able to return to work 8 weeks post-op. I'm not so sure though and was wanting other thought on this. Thanks!!
Counting down the days! In just 3 weeks I'll be on the other side of all this!
Journal posted on January 20, 2016
I was at work today and wrote the date while signing out supplies. That moment kind of took my breath realizing that my surgery was less than a month away. It cast a somber mood upon me. The time is going so fast and is making me incredibly nervous. So what do I do all afternoon? I Google open heart surgery! After a few hours of reading all that can go wrong or reading about horror stories about waking up breathing through a straw I've got myself in a bit of a panic.
I got my info in the mail today for when I have my surgery. Tomorrow will be one month till the big day!
Good days, bad days
Journal posted on January 12, 2016
I am feeling a bit crazy today. My emotions are all over the place with my surgery coming up. One minute I will feel ok and ready to just get all this behind me and the next I'm crying and feeling like this next month might be my last. Today has just been a bad day I guess.
So I called today and got my surgery date! February 17th. I would like to say that I have some since of relief and I guess I do somewhat but mostly I'm just freaking out and am scared! It terrifies me to think that day might be the last time I see my son. I know it's more realistic to know that that's probably not going to be the case but I can't help but worry. I guess I'll just ask for prayers for calm and accepting feelings. I can't begin to explain how much all of yall have helped me! Reading the other stories and the support I have gotten has helped in a way that I don't think anything else could have.
The past couple of days I have been having heart palpitations. I think it may possibly be my nerves and every time I feel them my nerves skyrocket. Every since I found out about my aneurysm has grown, albeit very little, it's still a 4.6-4.8 on my 5 ft 2 frame I have been extremely uneasy. My doctor said it was fine to wait until February for my surgery and financially that's what is best for me but I just don't want anything to happen before then. I just don't know what to do😔
I am having trouble deciding what kind of valve to get. I'm literally not leaning one way more than the other. I can't imagine having to have this surgery again but feel like so much is being taken away from me with the mechanical valve. I would love to hear about the limitations of the blood thinners from people who are on them.
I went to the doctor today and got a CT scan and Echo. My aneurysm has grown from 4.6 cm to 4.8 cm😔 the surgeon has recommended surgery right after the holidays. I am supposed to call and schedule it for January or February. I am PETRIFIED!!!!!!!!! I know it's crazy but I was really hoping that I would go and somehow all my problems would have amazingly disappeared. No such luck though. Now I have the tough decision on weather to go mechanical or tissue?!! I know this question is brought up a lot but any advice on that and also on how I can calm my nerves would be greatly appreciated!
My appointment with my surgeon is coming up!! The closer it gets the more nervous I get! I can't decide what I want to hear from the doctor. I am so scared for him to tell me it's time for surgery but don't think I can take the anxiety if I have to wait another three months. Any advice on how to calm these nerves of mine?
Well after I was supposed to go to the doctor for a CT scan and Echo in OCTOBER I finally got the call today that my appointment is for December 22nd. That was only however after my mini breakdown on the phone with the office lady. I am very relieved that I have the appointment but I hate it's the week of Christmas. I'm just hoping it's good news, as good as it can be anyway, so that I will still have a good holiday!! I hope everyone had a wonderful thanksgiving!!
I was supposed to go back to the surgeon in October for my CT and Echo but here it is late November and still no word!! The clinic is only open on Tuesdays so I called last Tuesday and they said they were still waiting on my insurance to approve the test! Am I crazy?! Should I not be worried?! I feel like nobody is taking my situation seriously. I went to him in August and was told I would have to have surgery for my valve and aortic aneurysm within in 6 months and now I can't get them to give me a straight answer. anybody else have this problem?
Ugh...caught the Flu from my son and I feel awful! But my main concern is my heart rate. My B/P is fine but my heart rate is running between 100-110 at rest. With the anyerism that really freaks me out! I've already taken my metoprolol for today. Any advice?
I had to call my surgeon today because of increased symptoms. I have been having some light headness, tightness in my chest and shortness of breath. I was hoping they would say not to worry, that it was all normal for what is wrong with me but instead they moved my appointment up to next week and said if it got worse to go to the ER. I'm not even sure what to think!! When is it bad enough that I would need to go to the ER? I can remember them telling me I may have these symptoms and it may get so bad I pass out! Now I'm just freaked out and going back to the doctor next week makes this seem all to real.
The part I'm probably most nervous about the surgery is waking up with the breathing tube😁 I am young and work a physically active job but I am overweight and my sister mentioned today that she thought because of this it would be hard for me to get off of the tube! Can anyone who has been throught ease my mind about this?
If you had asked me yesterday if I had any symptoms of my heart condition I would have said NO! Not at all!! However today I took my son skating and after a little begging by my son he finally convinced me to lace up some skates and join him. I haven't done that in forever but It wasn't that hard and I was actually pretty proud of myself! But after just a few trips around the rink my chest got tight, I got short of breath, light headed and dizzy. I used to just chalk up those feelings to being out of shape but after reading other people's symptoms on this site I guess it's a little more than I thought. I'm glad to know that after my surgery this will start to get better because I defiantly want to be able to do more things with my son!!
It's two in the morning and I can't sleep! Every since I found out about my heart I wake up at night and find I'm to scared to go back to sleep. I have such a fear of my aneurysm rupturing and my son having to be the one to find me! I have always been a glass half full kind of person and during the day seem to still be that way but at night it all goes to crap! It's so frustrating that I can't get out of my own head!!!
I have slowly been trying to prepare for life after surgery. Can anyone tell me what kind of care I will need post-op and for how long? I am lacking in the caregiver department and just need to know how long I will need someone to care for me as well as my son?