Mark Caswell - Heart Valve Journal

My Journal

Here's my newest picture!

June 10, 2018 Like | Adam Pick, Judy Shaw, Mark Wilbur and 13 others like this

Almost 2 weeks post op and resting in the recliner. Feeling great after mitral valve repair.

Judy Shaw Looking good!

Susan Lynn Glad your recovery is going so well! Continued success, Mark!

Ivana Okereke Fantastic! Mine is tomorrow, hope it goes as well.

Bonnie Stone-Hope Wonderful news. You look great!

John Lant Glad your recovery is coming along fantastically. The hard part is the waiting for the surgery, but once it is over and you start feeling much better you are ... Read more

John Lant Glad your recovery is coming along fantastically. The hard part is the waiting for the surgery, but once it is over and you start feeling much better you are glad you had it done. Heal up well & God Bless.

Wanda Mroz So happy to hear your recovery is going smoothly. You are looking pretty healthy! 👍🏻

Home since Friday

Journal posted on June 3, 2018

Just a little sore. Did a good amount of walking yesterday as well. Happy to be home but feeling the emotional affects of long week.

All the best friends

Like | Susan Lynn, Valerie Herndon-Vitarella, Jean Hochevar and 6 others like this

Susan Lynn Great news! Glad you're home. Speedy recovery, Mark!

Marie Myers Yes. It is a huge surgery, and it will take time to recover physically and emotionally. Gotta be great to be home, though!

Jean Hochevar Glad to hear that you are doing well, gives the rest of us hope!

Chris Purvis Glad your doing well Mark. I can only imagine the emotional side of it but your home and that’s got to feel great.

Judy Shaw Happy to hear your home and doing well. Rest and not over stress yourself. Best wishes.

Kim Lonergan Glad your surgery went so well and that you are home to continue your recovery! Wishing you good days ahead!

Mark Caswell Thanks all. I really forgot the emotional toll it takes since my last surgery.

Marie Myers I am just starting to get over the emotional trauma of finding out I needed heart surgery. Can't imagine how hard it was to hear that AFTER you have already ... Read more

Marie Myers I am just starting to get over the emotional trauma of finding out I needed heart surgery. Can't imagine how hard it was to hear that AFTER you have already had 1 surgery! That alone is hard.
It has taken me a while to not anticipate "bad" news with every doctor visit, also.

Nikki Escue Mark, Congratulations on getting to come home. Happy to hear that you are up and walking around. Be thankful for that, not all of us are able to do that. ... Read more

Nikki Escue Mark, Congratulations on getting to come home. Happy to hear that you are up and walking around. Be thankful for that, not all of us are able to do that. However, the emotional impact that this journey brings, does take its toll. I pray for your speedy recovery, emotionally and physically. Just don't overdo it in the process. 🙂

Mark Caswell Very thankful!!!

24 hours after surgery...

Journal posted on May 30, 2018

And I feel amazing. All tubes out and may be released tomorrow night. NYU Langone and Dr. Didier Loulmet are amazing.

Good luck to all others having procedures this week.

Like | Lisa McLaughlin, NM Peacesine, Helen Daw and 11 others like this

Anna Jones That is incredible! Glad you are doing so well. Sending prayers that recovery continues gently.

Susan Lynn Great news! Your surgeon has an amazing reputation and it seems it's well deserved. Speedy recovery, Mark!

Kirk Bepler Wow, your going to heal fast! Very good news!

Debbie Chatzky Such good news Mark! My surgery is tomorrow. I can't wait to join you with good news!

Willie Radl Awesome news, glad the recovery is going well.

Mark Wilbur That is something, isn't it? Keep the good recovery going, Mark!

Marie Myers I am impressed you are posting already! Good going!!!

Chris Purvis Man your sounding amazing! Knew you would rock it out

Rose Madura Wonderful news! Not only did you post but you didn't have any spelling or grammatical errors! :)

Bonnie Stone-Hope Good for you! So happy for you.

Mark Wilbur ..

Mark Caswell Some A Fib over night but seems to be going in the right direction now. Probably be released tomorrow. Fingers crossed. Thank you all for your support.

Marjorie Murphy Looking great. Wonderful!

Less than 24 hours to surgery...

Journal posted on May 28, 2018

surprisingly calm. Can't wait to start the recovery process.

Like | Bill H, Jennifer John, Adam Pick and 8 others like this

Mark Wilbur Go with confidence, Mark. You're in good hands. Safe journey to the recovery side!

Mark Caswell Thanks Mark. I think being through the aortic replacement and sternotomy 2 years ago has taken alot of the fear of the unknown away.

MARIE PICUN Prayers to you
Still in the waiting room for aortic heart valve. Echogram every six months

Marie Myers Good for you! Having been through it once already, you know you can do it! Wishing you all the best for a perfect surgery and easy recovery!

Mark Caswell Thanks all for the kind words

Willie Radl Good Luck, wishing you all the best!!

Chris Purvis No doubt you will rock this out my man! Wishing you nothing but the best for sure!

Debbie Chatzky Wishing you a successful surgery and a gentle recovery!

Marjorie Murphy Wishing you all the best. I know you will be fine.

Anna Jones Sending best wishes and prayers for a successful surgery and easy recovery.

Mark Caswell What a amazing, supportive community !!! Thank you!!!

Sue Tom Wishing you a successful surgery and recovery.

Bill H Wishing you all the best and a successful surgery. Saying a prayer for you now.

John Lant Good Luck and Best Wishes on your surgery. I go in to Mt. Sinai for my Surgery on June 25th, replace Aortic Valve, Repair Moderately leaking Mytril Valve & a Double Bypass...

Mark Caswell Trifecta John! My mitral went after they fixed my aortic. Bad luck and timing for me, but such is life.

Bonnie Stone-Hope Best wishes for a successful surgery and will be thinking of you!

Adam Pick Thoughts are with you Mark!

All the best Mark hope all goes Super smooth and you recover well 😊

Mark Caswell Thanks again all. It's go time!

Civita Fahey Prayers to you Mark!

Susan Lynn You've got this! We'll be here waiting for you!

Update posted on...

May 22, 2018

1 week away from mitral valve repair. I am anxious but not anywhere close to what I was 2 years ago when I had my aortic valve replaced. Speedy recovery to all on the other side and best of luck to all with upcoming surgeries.

Like | Kelly Stoll, Barbara Wood likes this

Anna Jones Sending best wishes, Mark.

Michael Eichhorn All the best Mark!

Mark Caswell Thanks!

Susan Roberts Wishing you the best as you approach your surgery!

Marie Myers Here is hope for a super smooth surgery and recovery!

2 years 2 surgeries 2 different valves

Journal posted on April 26, 2018

Just scheduled my 2nd heart surgery in just over 2 years.

Had bicuspid aortic valve replaced in Jan 2016 and now I need my mitral valve repaired due to mitral prolapse and regurgitation.

Bad luck and bad timing but trying to stay positive.

Like |

Marie Myers I am so sorry you have to have a second surgery! Hope you can find some acceptance in your new situation. Life really is a crap shoot ( in my opinion) and you ... Read more

Marie Myers I am so sorry you have to have a second surgery! Hope you can find some acceptance in your new situation. Life really is a crap shoot ( in my opinion) and you never know what will happen in your life. I wish you all the best in your new journey.

Mark Caswell Thanks Marie

Bonnie Stone-Hope So sorry to hear that you are having another OHS so soon after the last one. Glad you have chosen to stay positive. Sending you best wishes for an easy surgery and recovery.

Mark Caswell Thanks Bonnie

Catie B Oh, man! So sorry you need to have another OHS! That's way to soon. But I hope it all goes super smoothly!

Chris Purvis Mark I’m sorry to hear that man. Maybe there will be an alternative way and you get some good news!

Wanda Mroz You got this... be positive.

Phyllis Petersen Hopefully, this times the charm!

Update posted on...

April 4, 2018

Pros and cons for minimally invasive vs robotic mitral valve repair? Decisions decisions!

Like | Helen Daw and 1 other likes this

Steve Farthing Robotic requires an additional 3 incisions for the robot arms compared to MI right thoracotomy with endoscope. Robotic offers no tactile feedback to the surgeon.

Phyllis Petersen I think minimally invasive is not a specific technique. There's several ways to do repairs without doing a full sternotomy. I had robotic mitral valve repair, ... Read more

Phyllis Petersen I think minimally invasive is not a specific technique. There's several ways to do repairs without doing a full sternotomy. I had robotic mitral valve repair, but it was my first surgery and I had a very good profile for qualifying for robotic. You may want to present this question to any surgeons you're considering, along with what type of minimally invasive techniques they employ. The feedback may give you a clearer picture of who is the right surgeon for you.

Mark Caswell Thank you

Update posted on...

March 31, 2018

Does anyone know how common it is to need 2 valves repaired/ replaced (aortic and mitral) within 2 years of each other. If you know any journals or websites that discuss this please let me know. Thanks.

Like |

Steve Salvador wow, don't know if it's common for the valves to last only 2 years !! I had my aortic and mitral valve replaced in 2015. Hope you find an answer, the reasons ... Read more

Steve Salvador wow, don't know if it's common for the valves to last only 2 years !! I had my aortic and mitral valve replaced in 2015. Hope you find an answer, the reasons why, cause your issues is interesting..Hope everything goes well, Heart Brother !!

Marie Myers I am not sure that is the question. I believe Mark had an aortic valve replaced in 2016 and now he needs mitral valve surgery.. Is that the situation?

Mark Caswell Correct Marie. Aortic valve was replaced in 2016 and now the mitral has severe regurgitation.

Marie Myers Don't know how common it is, but I imagine it happens . I know there are several people on this site who have had problems with multiple valves, and hopefully ... Read more

Marie Myers Don't know how common it is, but I imagine it happens . I know there are several people on this site who have had problems with multiple valves, and hopefully some of them will respond. I guess that an unrelated problem in another valve could develop in anyone. I am sorry you have to go through this. Hope everything turns out well. Please keep us posted.

John Lant Mark I feel your pain of having OHS twice in a 2 year period. I also have a bad aortic valve that needs to be replaced and I have a mitral that has moderate ... Read more

John Lant Mark I feel your pain of having OHS twice in a 2 year period. I also have a bad aortic valve that needs to be replaced and I have a mitral that has moderate regurgitating. I am hoping that the surgeon that I am seeing on April 19th will not only replace my aortic valve but also repair my mitral valve during the same surgey. I wish you well and keep on ticking.

Mark Caswell Thanks everyone and good luck to you John.

Wanda Mroz Generally surgeons will replace or repair all during the same surgery if multiple valves are leaking. I had a mitral valve repair, and they also repaired ... Read more

Wanda Mroz Generally surgeons will replace or repair all during the same surgery if multiple valves are leaking. I had a mitral valve repair, and they also repaired my tricuspid which was mildly leaking at the same time, so multiple problems are not uncommon but how common when they require multiple surgeries I don’t know. You got this! It sucks, but this too shall pass and you’ll be fine. Prayers. 🙏🏻💞

Here we go again :(

Journal posted on March 27, 2018

Had aortic valve replacement in Jan 2016. Just found out today I need to have my mitral valve repaired or replaced. Can anyone recommend surgeons from NYC or Philly that do minimally invasive procedures. I loved my previous surgeon in NJ but want to weigh other options as I really dont want to have another sternotomy if I can help it.

Thanks

Like |

Anna Jones Lots of great reviews on this site about:

Dr. David Adams
The Mount Sinai Hospital
1190 Fifth Avenue
New York, NY 10029
(866) 306-9648

Check out ... Read more

Anna Jones Lots of great reviews on this site about:

Dr. David Adams
The Mount Sinai Hospital
1190 Fifth Avenue
New York, NY 10029
(866) 306-9648

Check out Helen Daw's journal.

So very sorry you are having to go through this again.

Helen Daw I second that. Dr David Adams in NYC. The best!!
He operated on me 6 weeks ago.

Mark Caswell Thank you both

Don L Dr T Sloan Guy, New York Presbyterian. Director Robotic Surgery.

https://news.weill.cornell.edu/news/2016/02/dr-t-sloane-guy-leads-new-robotic-heart-surgery-program-at-newyork-presbyterian-and-weill-cornell-me ... Read more

Dr. T. Sloane Guy Leads New Robotic Heart Surgery Program at NewYork-Presbyterian and Weill Cornell Medicine

https://news.weill.cornell.edu/news/2016/02/dr-t-sloane-guy-leads-new-robotic-heart-surgery-program-at-newyork-presbyterian-and-weill-cornell-me

Dr. T. Sloane Guy leads the new robotic heart surgery program at NewYork-Presbyterian and Weill Cornell Medicine.

What a difference a year makes!

Journal posted on January 12, 2017

On this day last year (Jan 12, 2016) I had open heart surgery to replace my bicuspid aortic valve. It was a tough recovery at first but after I felt a little better I wanted to so something significant before the one year anniversary.

I thought it would be awesome to run the WDW HALF marathon. I had officially never run more than a 5k. I trained hard for the half but it was cancelled due to weather and I was absolutely devastated. I could not believe this was going to be taken away from me.

Disney gave us the option to run a full marathon instead. With some hesitancy I decided to go for it! I am so glad I did! I finished my first half and full marathons in the same day! Jan 9, 2017 (5 days before the anniversary of my surgery) 5:27:13

I guess things do truly happen for a reason.

Our fraternity consists of very strong people. No matter where you are in this process know that you can fully recover and maybe even become stronger than you ever thought you could.

Best wishes to all of you having procedures this week.

Like | Shannon Gray and 1 other likes this

Catie B Congrats on your anniversary. Amazing about your marathons!

Robert D'Aurora Wow! Congratulations! I am running in the Gasparilla Run for the Booty 5K in Tampa at the end of Feb. Can't wait! The most I have run before surgery is ... Read more

Robert D'Aurora Wow! Congratulations! I am running in the Gasparilla Run for the Booty 5K in Tampa at the end of Feb. Can't wait! The most I have run before surgery is 10K. I would like to work up to a 1/2 Marathon, but that is going to come later.

Phyllis Petersen Fantastic! Congratulations on moving past the surgery and encouraging everyone else to believe that recovery isn't forever.

Mark Caswell I appreciate your kind words. It takes time and hard work but possible. Prayers and well wishes to all of you.

Lilly Black Happy anniversary, Mark!

What a difference a year makes!

Journal posted on December 12, 2016

This time last year I was freaking out about upcoming AV replacement surgery 1/12/16 and this year I am so excited about an upcoming half marathon on 1/7/17 in Disney World. I feel amazing! What a difference!

Happy Holidays and best wishes to all of you with upcoming surgeries or in post-op! You got this!

Like | Daniel Kung, Robert D'Aurora, Darlene Smith and 2 others like this

Phyllis Petersen Hope it's magical!

KEVIN RYAN Inspiring to all of us, Mark! Get 'er done!

Mark Caswell Thanks Phyllis and Kevin. Staying positive and having great support helped me immensely!

WDW half marathon here I come!

Journal posted on August 12, 2016

7 month anniversary of my surgery today.

I am so excited and currently training to run the Walt Disney World half marathon in January 2017. The best part is that it will be 5 days before the 1st anniversary of my AV replacement.

To do this within one year of my surgery is going to be emotional and amazing. I know the hard work will be worth it

For all of you worried about upcoming surgeries be positive and know that you can not only recover but you can be even stronger mentally and physically than you were before.

Thoughts and prayers for all of you that have procedures this week.

Mark

Like | Shandra Boyd, Alexa Aveta, Joshua Trimberger and 3 others like this

Steven Dean Congrats. Just read through your journal. I am 1 week out of AVR and am feeling inspired.

Clare Auten I was registered for a Rock and Roll half in St. Louis before I knew I needed AVR. I had to walk most but I completed that half at just 9 months post op. You will do great! Good luck to you!

Mark Caswell Thanks for the support!

7 months post AVR and looking for a challenge.

Journal posted on August 8, 2016

This week will be 7 months since my AV replacement. I have lost 30 lbs since the surgery and feel amazing. I am thinking of running a half marathon the week of my 1 year AVR anniversary. I am waiting to hear back from my cardiologist but do any of you know of any concerns I should be aware of?

Good luck to all of those having procedures this week.

Mark

Like | Melissa Alfred, Joanne Casserly, Kevin Shackelford and 2 others like this

Juergen Li Congratulations to your weight loss and your recovery - great motivation for all of us that are still early in this process.

Mark Caswell It's a process for sure Juergen. All the best in your journey.

Eddie Patton Nope, got cleared to race after 4 months. Congrats and good luck.

Can't believe it has been 3 months since AV replacement.

Journal posted on April 12, 2016

I thought I would never get here. I have experienced so many emotions from pre- surgery through recovery. I have come so far in a short time. I did so well in cardiac rehab they cut me loose 6 weeks earlier than expected. On the last day I ran a mile in 10 mins.

Most importantly this process has made me realize what is important. I have become a much better dad and husband. My eyes are finally wide open for the first time in my life.

Good luck to all of you wherever you are in your journey. You will get through this hopefully mentally and physically stronger than before.

All the best.

Mark

Like | Elaine Cutri, Eddie Patton, amy . and 7 others like this

Linda Yaff Congrats Mark. Did you have a biological or mechanical?

Wanda Mroz Wonderful.... All the best to you as well.

Mark Caswell Biological valve Linda. It was the best decision for me being 42 years old and pretty active.

Enrique K Me too Mark I got a biological valve and it was the best decision for an uneventful recovery just like you. Though I didn't go to rehab I created my own exercises daily. Life is good.

Here's my newest picture!

April 13, 2016 Like | Kate Watson, Eddie Patton, Adam Pick and 3 others like this

3 months post-op and feel incredible!

Adam Pick Awesome!

Christine Oliva You look fantastic. Definitely past the first few hurdles. Congrats and keep on healing.

Enrique K Nice Mark!

Post -op 7 weeks

Journal posted on February 29, 2016

Just saw my Dr. this morning and got released to go back to work next Monday. Feeling great, working hard at cardiac rehab and ready to jump back into normal life.

So blessed!

Like | Gail Magnus, Whitney Nelson, Wanda Mroz and 2 others like this

barrett burris Congrats, Mark. So glad you're doing so well.

Steven A Husted god bless you brother and good luck

Mark Caswell Thanks for the kind words! Stay strong.

4 1/2 weeks post op and first day of cardiac rehab.

Journal posted on February 12, 2016

Had my first day of cardiac rehab today. Feel like I can conquer the world right now.

I feel amazing and the surgery is becoming a distant memory everyday.

All the best to everyone having procedures this week. Recovery is right around the corner.

God bless.

Like | Sharmin Atker, Barbara Laurie, Jean Knappik and 6 others like this

Jean Knappik Congrats with a great recovery...keep up the great work!

Sophia Ridley Mark, that's fabulous! Rehab makes the world of difference.

Mark Caswell Thanks to you both. I hope you are both doing well also.

Kate Watson Thanks for the encouraging words! Glad you are doing so well!

Gary Stripling That's awesome, Mark!

3 weeks post op and feeling amazing

Journal posted on February 2, 2016

Had my first follow-up appointment today and Dr. is impressed with scar healing and overall recovery. ECG and blood pressure were great and pain is almost gone except for mornings. Still a bit tired but all in all I feel amazing.

I start cardiac rehabilitation next week. I hope and pray the progress continues.

To all in post-op keep fighting. You will get there soon. Best of luck for a speedy recovery. Also good luck to all of you that have procedures this week.

Like | Whitney Nelson, Cheryl Shute Walter, Kimberly Biddick and 4 others like this

Whitney Nelson I just pray my experience is like yours! So happy for you!

Mark Caswell I have been so lucky. I feel deeply for people having complications. I just want to tell my story so people know that a smooth recovery is also possible. ... Read more

Mark Caswell I have been so lucky. I feel deeply for people having complications. I just want to tell my story so people know that a smooth recovery is also possible.

Best of luck Whitney. Stay as positive as you can and know that recovery is a process and there are good and bads days. Just pray the good days outnumber the bad ones for all of us.

Liz Burroughs I'm glad that you're doing so well!! Good luck with cardiac rehab!

Whitney Nelson Thank you Mark! I am very grateful for you story and glad you share so often. I look forward to your post! The closer surgery day gets the more overwhelmed, ... Read more

Whitney Nelson Thank you Mark! I am very grateful for you story and glad you share so often. I look forward to your post! The closer surgery day gets the more overwhelmed, scared and nervous I get. It's a awful feeling. Can't wait till I'm on the other side of this.

Mark Caswell We all feel/felt that anxiety. It's natural. Just be confident in your surgical team and lean on your family. You are going to be fine. Can't wait til you join me on the other side.

Melinda Queliz You seem to be doing wonderful! I am praying to recover as nicely as you did!

Here's my newest picture!

January 26, 2016 Like | Whitney Nelson, Gary Stripling, Ed Miskovic and 6 others like this

2 weeks post op.

Debbie Bentley I pray I do as well as you . Hopefully so being we close to the same age . Did you go with tissue valve ?

Mark Caswell Yep. Benefits of tissue valve appealed to me more. :) I pray you do even better than me. Always aim high.

Enrique K Hey Mark, you look great. My recovery has been outstanding as well with no complications. I had also a tissue valve and this was the best decision I could have ... Read more

Enrique K Hey Mark, you look great. My recovery has been outstanding as well with no complications. I had also a tissue valve and this was the best decision I could have made for my lifestyle. Mine was minimal invasive. Stay well and keep on recovering.

Kate Watson You look great and healthy!

Mark Caswell Thanks everyone for the kind words.

2 weeks post op today

Journal posted on January 26, 2016

....and I had my best day yet. I am blessed. I feel for some of you that are having complications.

Keep fighting the good fight people and best of luck to all starting their recovery journey this week.

Thanks as always to all of you for your support.

Like | Liz Burroughs, Joaquim Cimoes, Wanda Mroz and 4 others like this

Liz Burroughs I'm glad that you're doing so well & have such a positive outlook! Best wishes for continued success in your recovery!

Here's my newest picture!

January 21, 2016 Like | Whitney Nelson, Adam Pick, Gary Stripling and 4 others like this

2 days at home is really helping recovery. I have an amazing support system. Defintely blessed.

Adam Pick Go Mark Go! We love Smiling Scar Selfies! Welcome home!

Mark Caswell Thanks Adam. The book and this website are amazing. Kudos to you for bringing us all together!

Gary Stripling Looking good! Congrats on your recovery!

Cathy Slipski That's great!!

Pat Bluemel Nice work. Take it easy.

Bob M Great scar! Take it easy Heart brother! Keep on smiling!

Wanda Mroz Hey I have one of those! Lol. Glad to hear it's going well!

Kelly Weisgarber looking good!

Tina Maroon Looking great there. Congrats on your recovery!! Hope it continue's to go well.

Robert Frederick Like the smile!

Here's my newest picture!

January 20, 2016 Like | Whitney Nelson, Paige Rupe, Kate Watson likes this

8 days post-op and can't be more pleased with results. Feeling great (as can be expected) and confident for future.

Jean Raber That scar looks pretty darn good for 8 days.

Debra Gann You're not going to have much of a scar.Good job!

John Murray Amazing scar Mark. I think I'm going to be a little jealous.

Mark Caswell Thanks all. I am pleasantly suprised myself. Can't praise Dr. John Brown III enough. If you live in North Jersey I would defintely suggest Morristown Medical ... Read more

Mark Caswell Thanks all. I am pleasantly suprised myself. Can't praise Dr. John Brown III enough. If you live in North Jersey I would defintely suggest Morristown Medical Center. Amazing Dr., surgical team, and nursing staff.

Your scar looks great!!!

Sophia Ridley That's so good that you'll hardly see it!

Tina Maroon Your scar looks fantastic for 8 days.

Any tips on best ways to sleep/get out of bed?

Journal posted on January 19, 2016

Slept ok but getting out of bed in the morning was a challenge the first night home.

Like | Cheryl Shute Walter likes this

Tim Goff I used a wedge pillow which helped in sleeping. Getting out of bed and cars required attention to swing the lower body/legs first before moving the upper body. ... Read more

Tim Goff I used a wedge pillow which helped in sleeping. Getting out of bed and cars required attention to swing the lower body/legs first before moving the upper body. it is uncomfortable for a few days, but fades with time. Hang in there Mark

Mark Caswell Thanks Tim.

Melinda Queliz Glad to hear you are home and recovering. Would you say the surgery was easier than expected and you made the worry more in your mind? Or would you say all ... Read more

Melinda Queliz Glad to hear you are home and recovering. Would you say the surgery was easier than expected and you made the worry more in your mind? Or would you say all your worries and fears (chest tubes and me thinking of them are kicking my butt) were pretty much as expected?

Jennifer Lorenz The first few days are difficult. I slept with about 5 pillows at first because of the pain of getting out of bed. Every few days I removed one pillow as I ... Read more

Jennifer Lorenz The first few days are difficult. I slept with about 5 pillows at first because of the pain of getting out of bed. Every few days I removed one pillow as I began to feel better. I'm five weeks out today and back to a regular pillow. I can sleep on both sides also which is a huge relief. I also had minimally evasive surgery. Each day will get better and easier! Hang in there!

Sophia Ridley Tim is spot on.

I've used a bed wedge and it makes getting up easier. Do take it steady as you can get quite a head rush. I found if I rolled slightly onto ... Read more

Sophia Ridley Tim is spot on.

I've used a bed wedge and it makes getting up easier. Do take it steady as you can get quite a head rush. I found if I rolled slightly onto my side helped.

I'm using a shower chair too which makes that easier too.

For any pre-surgery - it was suggested to me that I practised getting up from bed and also from chairs prior to surgery.

Mark Caswell Melinda,

The anxiety pre surgery was way over exaggerated compared to the real deal. Some people have more difficult surgeries and complications I'm sure but ... Read more

Mark Caswell Melinda,

The anxiety pre surgery was way over exaggerated compared to the real deal. Some people have more difficult surgeries and complications I'm sure but I had an almost text book in hospital portion of recovery. Dr. Brown and staff at Morristown Medical Center in NJ were amazing.

I too thought of death - I had a morning surgery, was shaved, prepped, and given the cocktail and wheeled in. Hrs later I woke up in recovery. Like I didn't know it even happened.

Scared of breathing tube - I was told I woke up for a brief second and made a gesture to the tube then asleep again. When I re- awoke it was gone. I really have no memory of this.

Day 1 and 2 were hard for me due anaesthesia and pain pills. Did not tolerate percocet well. Once resolved I got my appetite back and start feeling much better.

I was up and walking soon after.

Home day 6 :)

Stay positive. You will be fine. I am almost mad at myself now for being so anxious as none of the fears came true. Again every case is diferent but from stories here it looks like my case is more like the norm than exception.

You will do great!

Christine Oliva First happy that you are home. It is a first step to becoming yourself again. I cheated and had a power lifter recliner which is great if you can afford them. ... Read more

Christine Oliva First happy that you are home. It is a first step to becoming yourself again. I cheated and had a power lifter recliner which is great if you can afford them. Renting them is so much cheaper and in Cali they are everywhere. I think regular pillows with a wedge pillow could of been a second choice. I still sleep with pillows and I am 3 months post. Yea, I could tough it out, but why I just want to feel good as I get ready to go back to work fulltime in very busy environment. Try Amazon for the wedge, very inexpensive and good.

Mark Caswell I have a really nice. recliner and might try to sleep in that short time. Appreciate the advice.

Christine Oliva One more suggestion, get a big fluffy pillow for your chest. You can use it for coughing in as well as hold on or "mold on to" as you get up those first few ... Read more

Christine Oliva One more suggestion, get a big fluffy pillow for your chest. You can use it for coughing in as well as hold on or "mold on to" as you get up those first few days. Just remember to get up slowly and carefully. Be strong Mark we post people know what it is like and are rooting for you. Also, don't forget to walk around this really helps short and long term, muscles, balance, lungs, heart and your survivor spirit you are doing it!

Going home today!

Journal posted on January 18, 2016

The toughest most intimidating portion is over. Now ready for the next chapter and battles to come.

Good luck to everyone having procedures this week. You can do it!

Like | Whitney Nelson, Cheryl Smith, Debbie Bentley and 2 others like this

Paul Doria Well done mark, bet you feel great your going home. How you feeling

Roger Birch Congrats Mark, good luck at home.

Debra Gann I bet you're relieved about going home. I'll follow your posts and hope to learn from your experiences for my future surgery. God bless you! Will pray for your recovery

Robert Frederick Good news!

Anna Jones Great news. Best wishes for smooth sailing.

Cathy Slipski That's awesome !!!!

Steven A Husted congrats on going home now starts cardio rehab it is fun and you meet a lot of new people

Jennifer Lorenz Congratulations!!! You'll be so happy to be home and in your own bed!!!

Sophia Ridley Great news Mark.

Congrats! Home is whereto will really heal!! Best wishes!

Liz Burroughs Congrats!! Best wishes for a full recovery!

Mark Caswell Sleepy first day home. I think the week in hospital caught up with me and I needed the rest.

I won't miss the 2 am vitals check and 4 am lab draws lol.

Can't ... Read more

Mark Caswell Sleepy first day home. I think the week in hospital caught up with me and I needed the rest.

I won't miss the 2 am vitals check and 4 am lab draws lol.

Can't wait to fight and get stronger everday. Life is good.

Judy Freeman Mark great news that you're home. Before you know it you'll be in rehab and making progress every day!

Robert Frederick When you don't know what to do, walk, if you feel up, or take a snooze if you feel tired.

Day 4 post op.

Journal posted on January 16, 2016

Drainage Tubes are out! Woo hoo. Ate my first full meal and already did 2 laps around my floor this morning. Still tired but feel amazing. Fingers crossed I can go home tomorrow.

Good luck to all of you having your procedures this week. You got this.

Mark

Like | Paul Doria, Adam Pick, Travis Ederer and 5 others like this

Sophia Ridley Well done! You're on the road to recovery for sure! Take it steady.

Anna Jones Great news, Mark. I hope you can go home tomorrow too. Sending best wishes.

Wanda Mroz That's great news

Paul Doria Mark, I totally respect your bravery and courage through your journey. I may have to face same op but don't even know where I would begin to sum up courage to begin journey?

Great news! Best wishes!!!

Melinda Queliz So happy to hear that! How bad were your tubes?

Lauren Burt You will feel like a new person now that those tubes are out! Those were the worst for me! Glad you are doing so well! Best wishes to a speedy recovery!!

Adam Pick Awesome Mark! The fewer tubes... The better!

Mark Caswell Paul,

The build-up in your mind is far worse than reality. Certainly was in my case. I am not going to lie. Day 1 and 2 are really tough. Most of my issues ... Read more

Mark Caswell Paul,

The build-up in your mind is far worse than reality. Certainly was in my case. I am not going to lie. Day 1 and 2 are really tough. Most of my issues were due to adverse effects from anesthesia and strong pain meds. Once I had that under control it is pure will and family support that will get you through. You got this my man!

Meredith Bray Stand up as straight as you can, resist the urge to curl inward to protect your chest. Excellent posture is KEY to preventing back pain! And welcome to the other side :)
-Meredith

Here's my newest picture!

January 15, 2016 Like | Eddie Patton, Eddie Patton, Eddie Patton and 3 others like this

Day 3 post op for AVR. First 2 days were extremely tough. I feel great today and started walking regimine. Just found out I need to stay an extra day or 2 due to small bout of A-Fib. Sad about that but very excited about the future.

Anna Jones Hi Mark, very glad to read you are well enough to post. I hope the A-Fib will resolve itself soon. Keep us posted and continued best wishes.

Debbie Bentley Glad to see you are doing great . Did you go with tissue or mechanical valve ?I'm 44 and torn with which valve to go with.

Mark Caswell Debbie. I went with tissue valve. With technology I don't think I will need to have chest cut again. At least that is my hope. I am still relatively active ... Read more

Mark Caswell Debbie. I went with tissue valve. With technology I don't think I will need to have chest cut again. At least that is my hope. I am still relatively active and didn't want to be on coumadin the rest of my life. Just felt tissue valve benefits were better for me. Good luck with your decision and procedure.

Jennifer Lorenz You look fantastic!!!! Each day will get better and better!

Michele Tracey You look great! May God bless you with rapid healing!

The hard part is over; best wishes!!

Cathy Slipski You look great!!

Mark Caswell Thanks for all the kind words.

Wanda Mroz Very good... The best is yet to come! Glad you are doing well.

Ready as I'll ever be!

Journal posted on January 11, 2016

Next time I post I will be on the "other side". So ready for tomorrow morning. Thanks again for sharing your experiences and positive messages over the last few weeks. They have really helped prepare me for this challenge.

Peace!

Like | Lynee Casper, Elaine Cutri, Emily Rowley and 4 others like this

Anna Jones Best wishes. I will be thinking of you tomorrow.

Debbie Bentley Good luck ! Praying for you

Kimberly Biddick Best wishes and prayers being sent your way!

All the best for a smooth surgery and a restful recovery!

John Murray Good luck Mark! Looking forward to reading your post-op writings.

Liz Burroughs Good luck! Our thoughts & prayers will be with you!

Kelly Weisgarber Good luck! Soon you'll be posting about recovery.

Judy Freeman Positive vibes and prayers coming your way.

Whitney Nelson Good luck!

Cathy Slipski Good luck! Will be thinking of you!

Wanda Mroz Best wishes!

Cheryl Shute Walter Today will be the first day of the rest of your life! Best wishes for a smooth recovery!

Michele Tracey God speed healing to you! God bless you and watch over you!

Here's my newest picture!

January 11, 2016

What an amazing group of people.

Journal posted on January 7, 2016

The support here has been incredible.

5 days til surgery. Work is done, pre-admin testing tomorrow, and have a busy and exciting family weekend planned with my wife and son.

I truly feel more at ease after hearing from all of you. Thank you all from the bottom of my heart (lol).

Like | Emily Rowley, Cheryl Shute Walter, Lynee Casper and 1 other likes this

Nova Bonna Tribunalo God bless you Mark. May you have a successful surgery..

Paul Doria Best of luck for surgery. I've just been informed that i may need aortic valve replacement and mind in overdrive. I admire your bravery

Kathleen F. You will do great. Thoughts and prayers go out to you from Hoboken NJ! I had a similar condition to yours, and I'm doing great a year after surgery. Have ... Read more

Kathleen F. You will do great. Thoughts and prayers go out to you from Hoboken NJ! I had a similar condition to yours, and I'm doing great a year after surgery. Have FAITH! It is so much better on this side of surgery. Surgery's no joke but the recovery really is easier than the wait. Keep posting your progress, we're all pulling for you!

Best wishes!! Sending warm thoughts for a successful surgery and an uneventful and restful recovery!

Gary Stripling Best wishes to you Mark. I wish I had found this site prior to my surgery. But I agree - it's a great online community!

Bob M You are doing all the right things ... From someone who is on the other side

Wanda Mroz Best of luck to you... You will be fine and soon you will be the one giving advice! Prayers and healing thoughts your way.

Cheryl Shute Walter This time next week you'll be looking at the other side - on the way up! Positive thoughts for a successful surgery and smooth recovery!

Cathy Slipski Best of luck with your upcoming surgery! Will be praying for a quick recovery!

Jacqueline Cook Blessings to you as you prepare for your surgery!

Anna Jones Best wishes

Lynee Casper Best to you Mark, sounds like you have a good attitude and are ready to get surgery done, and work on recovery. Good luck

Brenda Miller All the very best Mark...positive thoughts and prayers for a successful surgery and recovery...take care

Stephen Vieira Best Wishes Mark, I hope you have a fast and speedy recovery.

Not so tough now lol

Journal posted on January 2, 2016

Booked my AVR surgery a few months ago. Now the surgery is 10 days away (Jan 12 in Morristown, NJ.) Freaking out has officially begun. Lol.

Best wishes for a speedy recovery for those post op and best of luck to those anxiously waiting like me.

Happy New Year. All the best for 2016.

Like | 2 people like this

Anna Jones Hi Mark. I'm freaking out too, and my surgery hasn't even been scheduled yet. Everyone is telling me to concentrate on my breathing, take life one second ... Read more

Anna Jones Hi Mark. I'm freaking out too, and my surgery hasn't even been scheduled yet. Everyone is telling me to concentrate on my breathing, take life one second at a time, keep in mind your trust in your surgeon, keep yourself busy, read this board so you can see how very many people are doing well and are happy after surgery. Sending best wishes for gentle hands caring for you.

Mark Caswell Thanks Anna. The more research I do and more I read others' stories it reassures me that a positive outcome is coming. Thanks for the kind words and best wishes to you.

Wanda Mroz Been there, done that! Try to relax, remember to breathe, and stay positive. Gosh some days I can't believe it's been over 4 months and is behind me. Some ... Read more

Wanda Mroz Been there, done that! Try to relax, remember to breathe, and stay positive. Gosh some days I can't believe it's been over 4 months and is behind me. Some days it feels surreal. Time flies and it will all be behind both of you before you know it. Best wishes to both of you.

Mark Caswell Hope you are doing well Wanda. Looking forward to the behind me part for sure!

Wanda Mroz Pretty well thank you! Incision is still tender, but gets better. Still feel a bit drained by end of day but I've come a long way!,

Pat Bluemel You'll do swell. If I could give any direct advice (and it's easier said than done for sure), try not to worry, worry doesn't change any outcome. The only thing ... Read more

Pat Bluemel You'll do swell. If I could give any direct advice (and it's easier said than done for sure), try not to worry, worry doesn't change any outcome. The only thing you can control through all this is your attitude so try and stay light hearted (pun intended) and positive.

Waiting is the hardest part. The recovery was not nearly as bad as I expected (but it wasn't roses either). I'm almost 5 weeks out from surgery. Like Wanda, ... Read more

Waiting is the hardest part. The recovery was not nearly as bad as I expected (but it wasn't roses either). I'm almost 5 weeks out from surgery. Like Wanda, my incision is very sensitive. Thoughts for a smooth surgery and a restful recovery!

Mark Caswell Thanks Pat and Laura. I appreciate all the advice and words of experience. It is really helping.

Brenda Miller I totally understand...Freaking out is a normal reaction ...waiting is no doubt the worst part of the whole ordeal...I am a very passionate experienced operating ... Read more

Brenda Miller I totally understand...Freaking out is a normal reaction ...waiting is no doubt the worst part of the whole ordeal...I am a very passionate experienced operating room nurse awaiting a date for my severe AVR ...professionally and personally speaking you will no doubt be in the expert hands of a highly skilled specialized cardiac team....who are highly dedicated and committed(intellectually and technically) to saving lives...life truly is a wild ride..hopp aboard and take this adventure with all of us who are sharing similar heart disease situations..throughout this ordeal....stay strong ,positive and have faith in God.......my thoughts and prayers are with you...all the very best...💔😊

Cathy Slipski Freaking out has begun for me too! I go Jan 25th. I am trying to focus on my kids and keeping my mind occupied. My mind could be my worst enemy. I pray everyday ... Read more

Cathy Slipski Freaking out has begun for me too! I go Jan 25th. I am trying to focus on my kids and keeping my mind occupied. My mind could be my worst enemy. I pray everyday and I can't wait for this to be over and I am on the recovery side. Try to stay busy it helps so much!

Julie McDonald-Lundgren Freaking out is normal and I remember it too! Hard to believe I had my OHS to replace my BAV just 6 months ago. I also feel that the time before surgery is ... Read more

Julie McDonald-Lundgren Freaking out is normal and I remember it too! Hard to believe I had my OHS to replace my BAV just 6 months ago. I also feel that the time before surgery is very difficult because of all the unknowns. I was 'Freaking out' too! Praying for all of you that are anxious about your up coming surgery.

Mark Caswell This is so helpful speaking to people that have been or currently experiencing the same thoughts and feelings I am having. You are all special and I appreciate the responses and kind words!

Beth Kelly We are keeping the freaking out at bay as best we can for surgery Jan 6th. I try to think ahead to the time a week later, getting ready for my husband to be ... Read more

Beth Kelly We are keeping the freaking out at bay as best we can for surgery Jan 6th. I try to think ahead to the time a week later, getting ready for my husband to be discharged. I hope that helps you. Think about that when you start freaking.

Meredith Bray Tough on the outside, freaking out mashed potatoes on the inside - that was me! It's normal. This is a big deal! *BUT* it is a manageable big deal. Just one step at a time, that's all it takes.

Mark Caswell Thanks Meredith. That's the plan.

Christine Oliva Mark I 100% agree it can be a managed deal with some planning. I am 10 weeks post AVR and once you get past that last week before surgery it just runs its course. ... Read more

Christine Oliva Mark I 100% agree it can be a managed deal with some planning. I am 10 weeks post AVR and once you get past that last week before surgery it just runs its course. It is really speeding up as I finish up my rehab classes and beginning to make plans for my future. I actually have a future!
Stay positive, enjoy your family and friends, keep busy, don't forget to rest, stay away from sick people and go into surgery realizing this is an opportunity to get better and I mean spiritually as well as physically. I won't lie the first couple weeks post were tough, but it can be done with right mind set and some planning, i.e. plans of who is going to help you and how, sleeping vs bed and anything you will need or make you more comfortable including diet. This board has great tips and I don't know what I would of done without it. Fellow heart patients are a great source of help/understanding so keep reading this board. Good luck Mark and you will be in my prayers for a speedy and full recovery.

Melinda Queliz My surgery is March 3rd and yep I'm dreading it but I also just want to get it over with. The anxiety is so much worse. I know we all tend to make everything ... Read more

Melinda Queliz My surgery is March 3rd and yep I'm dreading it but I also just want to get it over with. The anxiety is so much worse. I know we all tend to make everything in our minds way worse than what it really is. Best of luck to you, I will add you and your care team to my prayers. I look forward to hearing from you once you are feeling up to it!!

Mark Caswell Thanks again all. I love the "been there done that posts". I usually don't like to share too much but this has been amazing support.

Cheryl Shute Walter Take a deep breath, Mark, and try to relax. I'm know it's easier said than done, but everything will be over before you know it. I waited 13 years (and Clonazapam ... Read more

Cheryl Shute Walter Take a deep breath, Mark, and try to relax. I'm know it's easier said than done, but everything will be over before you know it. I waited 13 years (and Clonazapam daily) until the day of my surgery. It was scheduled for 8am. My husband, daughter-in-law and best friend were there for me. Then my surgeon had an emergency surgery, and we all waited together until 3:30 when they came to get me. I had been sitting up in bed the entire time. Let me tell you about being nervous, lol.... But I am now over 4 weeks post surgery and am getting better every day. Yes, there was pain at first, yes, I had a hard time sleeping, yes, I couldn't do everything at first that I was used to doing, but now things are slowly getting back to normal. Keep your head up, and I will check back on your progress post surgery!