Mark Caswell - Heart Valve Journal

My Journal

1212 days ago

Hi all, I had Aortic Valve Replacement in 2016 and Mitral Valve Repair in 2018. I am now having a cardiac ablation next week for A-Fib and Atrial Flutter. ...Read more

Hi all, I had Aortic Valve Replacement in 2016 and Mitral Valve Repair in 2018. I am now having a cardiac ablation next week for A-Fib and Atrial Flutter. Have many of you valve surgery patients developed A-fib years after the surgeries? If so have you had an ablation? Had good results? Thanks and Happy Thanksgiving!

Rose Madura I had an ablation in 2007 for SVT but it was unrelated to surgery which was 10 years later... I'm ass ... Read more

Rose Madura I had an ablation in 2007 for SVT but it was unrelated to surgery which was 10 years later... I'm assuming the process is the same and I recovered well from it. I'm sorry you have to go through this...

Marie Myers My uncle had a successful ablation for a fib several years ago. Wishing you an easy time with the pro ... Read more

Marie Myers My uncle had a successful ablation for a fib several years ago. Wishing you an easy time with the procedure!

Greg Lewis Not me, but a cousin had it done for his afib. Fixed him.

Miriam St.Clair I haven't had an ablation but I go in for evaluation of my post-surgical afib on December 1st. My afi ... Read more

Miriam St.Clair I haven't had an ablation but I go in for evaluation of my post-surgical afib on December 1st. My afib developed immediately after surgery. I hope all goes well for you and that the ablation takes care of the afib.

Mark Caswellposted a journal

2842 days ago

Susan Lynn, Valerie Herndon-Vitarella, Jean Hochevar and 6 others reacted to this

Just a little sore. Did a good amount of walking yesterday as well. Happy to be home but feeling the emotional affects of long week. All the best friends ...Read more

Just a little sore. Did a good amount of walking yesterday as well. Happy to be home but feeling the emotional affects of long week. All the best friends

Susan Lynn Great news! Glad you're home. Speedy recovery, Mark!

Marie Myers Yes. It is a huge surgery, and it will take time to recover physically and emotionally. Gotta be grea ... Read more

Marie Myers Yes. It is a huge surgery, and it will take time to recover physically and emotionally. Gotta be great to be home, though!

Jean Hochevar Glad to hear that you are doing well, gives the rest of us hope!

Chris Purvis Glad your doing well Mark. I can only imagine the emotional side of it but your home and that’s got ... Read more

Chris Purvis Glad your doing well Mark. I can only imagine the emotional side of it but your home and that’s got to feel great.

Judy Shaw Happy to hear your home and doing well. Rest and not over stress yourself. Best wishes.

Kim Lonergan Glad your surgery went so well and that you are home to continue your recovery! Wishing you good days ... Read more

Kim Lonergan Glad your surgery went so well and that you are home to continue your recovery! Wishing you good days ahead!

Mark Caswell Thanks all. I really forgot the emotional toll it takes since my last surgery.

Marie Myers I am just starting to get over the emotional trauma of finding out I needed heart surgery. Can't imag ... Read more

Marie Myers I am just starting to get over the emotional trauma of finding out I needed heart surgery. Can't imagine how hard it was to hear that AFTER you have already had 1 surgery! That alone is hard.
It has taken me a while to not anticipate "bad" news with every doctor visit, also.

Nikki Escue Mark, Congratulations on getting to come home. Happy to hear that you are up and walking around. Be ... Read more

Nikki Escue Mark, Congratulations on getting to come home. Happy to hear that you are up and walking around. Be thankful for that, not all of us are able to do that. However, the emotional impact that this journey brings, does take its toll. I pray for your speedy recovery, emotionally and physically. Just don't overdo it in the process. 🙂

Mark Caswell Very thankful!!!

Mark Caswellposted a journal

2845 days ago

Lisa McLaughlin, NM Peacesine, Helen Daw and 11 others reacted to this

And I feel amazing. All tubes out and may be released tomorrow night. NYU Langone and Dr. Didier Loulmet are amazing. Good luck to all others having procedures ...Read more

And I feel amazing. All tubes out and may be released tomorrow night. NYU Langone and Dr. Didier Loulmet are amazing. Good luck to all others having procedures this week.

Anna Jones That is incredible! Glad you are doing so well. Sending prayers that recovery continues gently.

Susan Lynn Great news! Your surgeon has an amazing reputation and it seems it's well deserved. Speedy recove ... Read more

Susan Lynn Great news! Your surgeon has an amazing reputation and it seems it's well deserved. Speedy recovery, Mark!

Kirk Bepler Wow, your going to heal fast! Very good news!

Debbie Chatzky Such good news Mark! My surgery is tomorrow. I can't wait to join you with good news!

Willie Radl Awesome news, glad the recovery is going well.

Mark Wilbur That is something, isn't it? Keep the good recovery going, Mark!

Marie Myers I am impressed you are posting already! Good going!!!

Chris Purvis Man your sounding amazing! Knew you would rock it out

Rose Madura Wonderful news! Not only did you post but you didn't have any spelling or grammatical errors! :)

Bonnie Stone-Hope Good for you! So happy for you.

Mark Wilbur ..

Mark Caswell Some A Fib over night but seems to be going in the right direction now. Probably be released tomorrow ... Read more

Mark Caswell Some A Fib over night but seems to be going in the right direction now. Probably be released tomorrow. Fingers crossed. Thank you all for your support.

Marjorie Murphy Looking great. Wonderful!

Mark Caswellposted a journal

2847 days ago

Bill H, Jennifer John, Adam Pick and 8 others reacted to this

surprisingly calm. Can't wait to start the recovery process.

Mark Wilbur Go with confidence, Mark. You're in good hands. Safe journey to the recovery side!

Mark Caswell Thanks Mark. I think being through the aortic replacement and sternotomy 2 years ago has taken alot o ... Read more

Mark Caswell Thanks Mark. I think being through the aortic replacement and sternotomy 2 years ago has taken alot of the fear of the unknown away.

MARIE PICUN Prayers to you
Still in the waiting room for aortic heart valve. Echogram every six months

Marie Myers Good for you! Having been through it once already, you know you can do it! Wishing you all the best f ... Read more

Marie Myers Good for you! Having been through it once already, you know you can do it! Wishing you all the best for a perfect surgery and easy recovery!

Mark Caswell Thanks all for the kind words

Willie Radl Good Luck, wishing you all the best!!

Chris Purvis No doubt you will rock this out my man! Wishing you nothing but the best for sure!

Debbie Chatzky Wishing you a successful surgery and a gentle recovery!

Marjorie Murphy Wishing you all the best. I know you will be fine.

Anna Jones Sending best wishes and prayers for a successful surgery and easy recovery.

Mark Caswell What a amazing, supportive community !!! Thank you!!!

Sue Tom Wishing you a successful surgery and recovery.

Bill H Wishing you all the best and a successful surgery. Saying a prayer for you now.

John Lant Good Luck and Best Wishes on your surgery. I go in to Mt. Sinai for my Surgery on June 25th, replace ... Read more

John Lant Good Luck and Best Wishes on your surgery. I go in to Mt. Sinai for my Surgery on June 25th, replace Aortic Valve, Repair Moderately leaking Mytril Valve & a Double Bypass...

Mark Caswell Trifecta John! My mitral went after they fixed my aortic. Bad luck and timing for me, but such is lif ... Read more

Mark Caswell Trifecta John! My mitral went after they fixed my aortic. Bad luck and timing for me, but such is life.

Bonnie Stone-Hope Best wishes for a successful surgery and will be thinking of you!

Adam Pick Thoughts are with you Mark!

All the best Mark hope all goes Super smooth and you recover well 😊

Mark Caswell Thanks again all. It's go time!

Civita Fahey Prayers to you Mark!

Susan Lynn You've got this! We'll be here waiting for you!

Mark Caswellposted an update

2853 days ago

Kelly Stoll, Barbara Wood reacted to this

1 week away from mitral valve repair. I am anxious but not anywhere close to what I was 2 years ago when I had my aortic valve replaced. Speedy recovery to ...Read more

1 week away from mitral valve repair. I am anxious but not anywhere close to what I was 2 years ago when I had my aortic valve replaced. Speedy recovery to all on the other side and best of luck to all with upcoming surgeries.

Anna Jones Sending best wishes, Mark.

Michael Eichhorn All the best Mark!

Mark Caswell Thanks!

Susan Roberts Wishing you the best as you approach your surgery!

Marie Myers Here is hope for a super smooth surgery and recovery!

Mark Caswellposted a journal

2879 days ago

Just scheduled my 2nd heart surgery in just over 2 years. Had bicuspid aortic valve replaced in Jan 2016 and now I need my mitral valve repaired due to mitral ...Read more

Just scheduled my 2nd heart surgery in just over 2 years. Had bicuspid aortic valve replaced in Jan 2016 and now I need my mitral valve repaired due to mitral prolapse and regurgitation. Bad luck and bad timing but trying to stay positive.

Marie Myers I am so sorry you have to have a second surgery! Hope you can find some acceptance in your new situat ... Read more

Marie Myers I am so sorry you have to have a second surgery! Hope you can find some acceptance in your new situation. Life really is a crap shoot ( in my opinion) and you never know what will happen in your life. I wish you all the best in your new journey.

Mark Caswell Thanks Marie

Bonnie Stone-Hope So sorry to hear that you are having another OHS so soon after the last one. Glad you have chosen to ... Read more

Bonnie Stone-Hope So sorry to hear that you are having another OHS so soon after the last one. Glad you have chosen to stay positive. Sending you best wishes for an easy surgery and recovery.

Mark Caswell Thanks Bonnie

Catie B Oh, man! So sorry you need to have another OHS! That's way to soon. But I hope it all goes super smoo ... Read more

Catie B Oh, man! So sorry you need to have another OHS! That's way to soon. But I hope it all goes super smoothly!

Chris Purvis Mark I’m sorry to hear that man. Maybe there will be an alternative way and you get some good news! ... Read more

Chris Purvis Mark I’m sorry to hear that man. Maybe there will be an alternative way and you get some good news!

Wanda Mroz You got this... be positive.

Phyllis Petersen Hopefully, this times the charm!

Mark Caswellposted an update

2901 days ago

Helen Daw and 1 other reacted to this

Pros and cons for minimally invasive vs robotic mitral valve repair? Decisions decisions!

Steve Farthing Robotic requires an additional 3 incisions for the robot arms compared to MI right thoracotomy with e ... Read more

Steve Farthing Robotic requires an additional 3 incisions for the robot arms compared to MI right thoracotomy with endoscope. Robotic offers no tactile feedback to the surgeon.

Phyllis Petersen I think minimally invasive is not a specific technique. There's several ways to do repairs without do ... Read more

Phyllis Petersen I think minimally invasive is not a specific technique. There's several ways to do repairs without doing a full sternotomy. I had robotic mitral valve repair, but it was my first surgery and I had a very good profile for qualifying for robotic. You may want to present this question to any surgeons you're considering, along with what type of minimally invasive techniques they employ. The feedback may give you a clearer picture of who is the right surgeon for you.

Mark Caswell Thank you

Mark Caswellposted an update

2906 days ago

Does anyone know how common it is to need 2 valves repaired/ replaced (aortic and mitral) within 2 years of each other. If you know any journals or websites ...Read more

Does anyone know how common it is to need 2 valves repaired/ replaced (aortic and mitral) within 2 years of each other. If you know any journals or websites that discuss this please let me know. Thanks.

Steve Salvador wow, don't know if it's common for the valves to last only 2 years !! I had my aortic and mitral valv ... Read more

Steve Salvador wow, don't know if it's common for the valves to last only 2 years !! I had my aortic and mitral valve replaced in 2015. Hope you find an answer, the reasons why, cause your issues is interesting..Hope everything goes well, Heart Brother !!

Marie Myers I am not sure that is the question. I believe Mark had an aortic valve replaced in 2016 and now he ne ... Read more

Marie Myers I am not sure that is the question. I believe Mark had an aortic valve replaced in 2016 and now he needs mitral valve surgery.. Is that the situation?

Mark Caswell Correct Marie. Aortic valve was replaced in 2016 and now the mitral has severe regurgitation.

Marie Myers Don't know how common it is, but I imagine it happens . I know there are several people on this site ... Read more

Marie Myers Don't know how common it is, but I imagine it happens . I know there are several people on this site who have had problems with multiple valves, and hopefully some of them will respond. I guess that an unrelated problem in another valve could develop in anyone. I am sorry you have to go through this. Hope everything turns out well. Please keep us posted.

John Lant Mark I feel your pain of having OHS twice in a 2 year period. I also have a bad aortic valve that nee ... Read more

John Lant Mark I feel your pain of having OHS twice in a 2 year period. I also have a bad aortic valve that needs to be replaced and I have a mitral that has moderate regurgitating. I am hoping that the surgeon that I am seeing on April 19th will not only replace my aortic valve but also repair my mitral valve during the same surgey. I wish you well and keep on ticking.

Mark Caswell Thanks everyone and good luck to you John.

Wanda Mroz Generally surgeons will replace or repair all during the same surgery if multiple valves are leaking. ... Read more

Wanda Mroz Generally surgeons will replace or repair all during the same surgery if multiple valves are leaking. I had a mitral valve repair, and they also repaired my tricuspid which was mildly leaking at the same time, so multiple problems are not uncommon but how common when they require multiple surgeries I don’t know. You got this! It sucks, but this too shall pass and you’ll be fine. Prayers. 🙏🏻💞

Mark Caswellposted a journal

2909 days ago

Had aortic valve replacement in Jan 2016. Just found out today I need to have my mitral valve repaired or replaced. Can anyone recommend surgeons from NYC or ...Read more

Had aortic valve replacement in Jan 2016. Just found out today I need to have my mitral valve repaired or replaced. Can anyone recommend surgeons from NYC or Philly that do minimally invasive procedures. I loved my previous surgeon in NJ but want to weigh other options as I really dont want to have another sternotomy if I can help it. Thanks

Anna Jones Lots of great reviews on this site about:

Dr. David Adams
The Mount Sinai Hospital
1190 Fifth A ... Read more

Anna Jones Lots of great reviews on this site about:

Dr. David Adams
The Mount Sinai Hospital
1190 Fifth Avenue
New York, NY 10029
(866) 306-9648

Check out Helen Daw's journal.

So very sorry you are having to go through this again.

Helen Daw I second that. Dr David Adams in NYC. The best!!
He operated on me 6 weeks ago.

Mark Caswell Thank you both

Don L Dr T Sloan Guy, New York Presbyterian. Director Robotic Surgery.

https://news.weill.cornell.edu/new ... Read more

Don L Dr T Sloan Guy, New York Presbyterian. Director Robotic Surgery.

https://news.weill.cornell.edu/news/2016/02/dr-t-sloane-guy-leads-new-robotic-heart-surgery-program-at-newyork-presbyterian-and-weill-cornell-me

Dr. T. Sloane Guy Leads New Robotic Heart Surgery Program at NewYork-Presbyterian and Weill Cornell Medicine

https://news.weill.cornell.edu/news/2016/02/dr-t-sloane-guy-leads-new-robotic-heart-surgery-program-at-newyork-presbyterian-and-weill-cornell-me

Dr. T. Sloane Guy leads the new robotic heart surgery program at NewYork-Presbyterian and Weill Cornell Medicine.

Mark Caswellposted a journal

3349 days ago

Shannon Gray and 1 other reacted to this

On this day last year (Jan 12, 2016) I had open heart surgery to replace my bicuspid aortic valve. It was a tough recovery at first but after I felt a little ...Read more

On this day last year (Jan 12, 2016) I had open heart surgery to replace my bicuspid aortic valve. It was a tough recovery at first but after I felt a little better I wanted to so something significant before the one year anniversary. I thought it would be awesome to run the WDW HALF marathon. I had officially never run more than a 5k. I trained hard for the half but it was cancelled due to weather and I was absolutely devastated. I could not believe this was going to be taken away from me. Disney gave us the option to run a full marathon instead. With some hesitancy I decided to go for it! I am so glad I did! I finished my first half and full marathons in the same day! Jan 9, 2017 (5 days before the anniversary of my surgery) 5:27:13 I guess things do truly happen for a reason. Our fraternity consists of very strong people. No matter where you are in this process know that you can fully recover and maybe even become stronger than you ever thought you could. Best wishes to all of you having procedures this week.

Catie B Congrats on your anniversary. Amazing about your marathons!

Robert D'Aurora Wow! Congratulations! I am running in the Gasparilla Run for the Booty 5K in Tampa at the end of Fe ... Read more

Robert D'Aurora Wow! Congratulations! I am running in the Gasparilla Run for the Booty 5K in Tampa at the end of Feb. Can't wait! The most I have run before surgery is 10K. I would like to work up to a 1/2 Marathon, but that is going to come later.

Phyllis Petersen Fantastic! Congratulations on moving past the surgery and encouraging everyone else to believe that r ... Read more

Phyllis Petersen Fantastic! Congratulations on moving past the surgery and encouraging everyone else to believe that recovery isn't forever.

Mark Caswell I appreciate your kind words. It takes time and hard work but possible. Prayers and well wishes to al ... Read more

Mark Caswell I appreciate your kind words. It takes time and hard work but possible. Prayers and well wishes to all of you.

Lilly Black Happy anniversary, Mark!

Mark Caswellposted a journal

3379 days ago

Daniel Kung, Robert D'Aurora, Darlene Smith and 2 others reacted to this

This time last year I was freaking out about upcoming AV replacement surgery 1/12/16 and this year I am so excited about an upcoming half marathon on 1/7/17 ...Read more

This time last year I was freaking out about upcoming AV replacement surgery 1/12/16 and this year I am so excited about an upcoming half marathon on 1/7/17 in Disney World. I feel amazing! What a difference! Happy Holidays and best wishes to all of you with upcoming surgeries or in post-op! You got this!

Phyllis Petersen Hope it's magical!

KEVIN RYAN Inspiring to all of us, Mark! Get 'er done!

Mark Caswell Thanks Phyllis and Kevin. Staying positive and having great support helped me immensely!

Mark Caswellposted a journal

3501 days ago

Shandra Boyd, Alexa Aveta, Joshua Trimberger and 3 others reacted to this

7 month anniversary of my surgery today. I am so excited and currently training to run the Walt Disney World half marathon in January 2017. The best part ...Read more

7 month anniversary of my surgery today. I am so excited and currently training to run the Walt Disney World half marathon in January 2017. The best part is that it will be 5 days before the 1st anniversary of my AV replacement. To do this within one year of my surgery is going to be emotional and amazing. I know the hard work will be worth it For all of you worried about upcoming surgeries be positive and know that you can not only recover but you can be even stronger mentally and physically than you were before. Thoughts and prayers for all of you that have procedures this week. Mark

Steven Dean Congrats. Just read through your journal. I am 1 week out of AVR and am feeling inspired.

Clare Auten I was registered for a Rock and Roll half in St. Louis before I knew I needed AVR. I had to walk mos ... Read more

Clare Auten I was registered for a Rock and Roll half in St. Louis before I knew I needed AVR. I had to walk most but I completed that half at just 9 months post op. You will do great! Good luck to you!

Mark Caswell Thanks for the support!

Mark Caswellposted a journal

3505 days ago

Melissa Alfred, Joanne Casserly, Kevin Shackelford and 2 others reacted to this

This week will be 7 months since my AV replacement. I have lost 30 lbs since the surgery and feel amazing. I am thinking of running a half marathon the week ...Read more

This week will be 7 months since my AV replacement. I have lost 30 lbs since the surgery and feel amazing. I am thinking of running a half marathon the week of my 1 year AVR anniversary. I am waiting to hear back from my cardiologist but do any of you know of any concerns I should be aware of? Good luck to all of those having procedures this week. Mark

Juergen Li Congratulations to your weight loss and your recovery - great motivation for all of us that are still ... Read more

Juergen Li Congratulations to your weight loss and your recovery - great motivation for all of us that are still early in this process.

Mark Caswell It's a process for sure Juergen. All the best in your journey.

Eddie Patton Nope, got cleared to race after 4 months. Congrats and good luck.

Mark Caswellposted a journal

3623 days ago

Elaine Cutri, Eddie Patton, amy . and 7 others reacted to this

I thought I would never get here. I have experienced so many emotions from pre- surgery through recovery. I have come so far in a short time. I did so well ...Read more

I thought I would never get here. I have experienced so many emotions from pre- surgery through recovery. I have come so far in a short time. I did so well in cardiac rehab they cut me loose 6 weeks earlier than expected. On the last day I ran a mile in 10 mins. Most importantly this process has made me realize what is important. I have become a much better dad and husband. My eyes are finally wide open for the first time in my life. Good luck to all of you wherever you are in your journey. You will get through this hopefully mentally and physically stronger than before. All the best. Mark

Linda Yaff Congrats Mark. Did you have a biological or mechanical?

Wanda Mroz Wonderful.... All the best to you as well.

Mark Caswell Biological valve Linda. It was the best decision for me being 42 years old and pretty active.

Enrique K Me too Mark I got a biological valve and it was the best decision for an uneventful recovery just lik ... Read more

Enrique K Me too Mark I got a biological valve and it was the best decision for an uneventful recovery just like you. Though I didn't go to rehab I created my own exercises daily. Life is good.

Mark Caswellposted a journal

3666 days ago

Gail Magnus, Whitney Nelson, Wanda Mroz and 2 others reacted to this

Just saw my Dr. this morning and got released to go back to work next Monday. Feeling great, working hard at cardiac rehab and ready to jump back into normal ...Read more

Just saw my Dr. this morning and got released to go back to work next Monday. Feeling great, working hard at cardiac rehab and ready to jump back into normal life. So blessed!

barrett burris Congrats, Mark. So glad you're doing so well.

Steven A Husted god bless you brother and good luck

Mark Caswell Thanks for the kind words! Stay strong.

Mark Caswellposted a journal

3683 days ago

Sharmin Atker, Barbara Laurie, Jean Knappik and 6 others reacted to this

Had my first day of cardiac rehab today. Feel like I can conquer the world right now. I feel amazing and the surgery is becoming a distant memory everyday. ...Read more

Had my first day of cardiac rehab today. Feel like I can conquer the world right now. I feel amazing and the surgery is becoming a distant memory everyday. All the best to everyone having procedures this week. Recovery is right around the corner. God bless.

Jean Knappik Congrats with a great recovery...keep up the great work!

Sophia Ridley Mark, that's fabulous! Rehab makes the world of difference.

Mark Caswell Thanks to you both. I hope you are both doing well also.

Kate Watson Thanks for the encouraging words! Glad you are doing so well!

Gary Stripling That's awesome, Mark!

Mark Caswellposted a journal

3693 days ago

Whitney Nelson, Cheryl Shute Walter, Kimberly Biddick and 4 others reacted to this

Had my first follow-up appointment today and Dr. is impressed with scar healing and overall recovery. ECG and blood pressure were great and pain is almost gone ...Read more

Had my first follow-up appointment today and Dr. is impressed with scar healing and overall recovery. ECG and blood pressure were great and pain is almost gone except for mornings. Still a bit tired but all in all I feel amazing. I start cardiac rehabilitation next week. I hope and pray the progress continues. To all in post-op keep fighting. You will get there soon. Best of luck for a speedy recovery. Also good luck to all of you that have procedures this week.

Whitney Nelson I just pray my experience is like yours! So happy for you!

Mark Caswell I have been so lucky. I feel deeply for people having complications. I just want to tell my story so ... Read more

Mark Caswell I have been so lucky. I feel deeply for people having complications. I just want to tell my story so people know that a smooth recovery is also possible.

Best of luck Whitney. Stay as positive as you can and know that recovery is a process and there are good and bads days. Just pray the good days outnumber the bad ones for all of us.

Liz Burroughs I'm glad that you're doing so well!! Good luck with cardiac rehab!

Whitney Nelson Thank you Mark! I am very grateful for you story and glad you share so often. I look forward to your ... Read more

Whitney Nelson Thank you Mark! I am very grateful for you story and glad you share so often. I look forward to your post! The closer surgery day gets the more overwhelmed, scared and nervous I get. It's a awful feeling. Can't wait till I'm on the other side of this.

Mark Caswell We all feel/felt that anxiety. It's natural. Just be confident in your surgical team and lean on your ... Read more

Mark Caswell We all feel/felt that anxiety. It's natural. Just be confident in your surgical team and lean on your family. You are going to be fine. Can't wait til you join me on the other side.

Melinda Queliz You seem to be doing wonderful! I am praying to recover as nicely as you did!

Mark Caswellposted a journal

3700 days ago

Liz Burroughs, Joaquim Cimoes, Wanda Mroz and 4 others reacted to this

....and I had my best day yet. I am blessed. I feel for some of you that are having complications. Keep fighting the good fight people and best of luck ...Read more

....and I had my best day yet. I am blessed. I feel for some of you that are having complications. Keep fighting the good fight people and best of luck to all starting their recovery journey this week. Thanks as always to all of you for your support.

Liz Burroughs I'm glad that you're doing so well & have such a positive outlook! Best wishes for continued success ... Read more

Liz Burroughs I'm glad that you're doing so well & have such a positive outlook! Best wishes for continued success in your recovery!

Mark Caswellposted a journal

3708 days ago

Cheryl Shute Walter reacted to this

Slept ok but getting out of bed in the morning was a challenge the first night home.

Tim Goff I used a wedge pillow which helped in sleeping. Getting out of bed and cars required attention to swi ... Read more

Tim Goff I used a wedge pillow which helped in sleeping. Getting out of bed and cars required attention to swing the lower body/legs first before moving the upper body. it is uncomfortable for a few days, but fades with time. Hang in there Mark

Mark Caswell Thanks Tim.

Melinda Queliz Glad to hear you are home and recovering. Would you say the surgery was easier than expected and you ... Read more

Melinda Queliz Glad to hear you are home and recovering. Would you say the surgery was easier than expected and you made the worry more in your mind? Or would you say all your worries and fears (chest tubes and me thinking of them are kicking my butt) were pretty much as expected?

Jennifer Lorenz The first few days are difficult. I slept with about 5 pillows at first because of the pain of getti ... Read more

Jennifer Lorenz The first few days are difficult. I slept with about 5 pillows at first because of the pain of getting out of bed. Every few days I removed one pillow as I began to feel better. I'm five weeks out today and back to a regular pillow. I can sleep on both sides also which is a huge relief. I also had minimally evasive surgery. Each day will get better and easier! Hang in there!

Sophia Ridley Tim is spot on.

I've used a bed wedge and it makes getting up easier. Do take it steady as you can g ... Read more

Sophia Ridley Tim is spot on.

I've used a bed wedge and it makes getting up easier. Do take it steady as you can get quite a head rush. I found if I rolled slightly onto my side helped.

I'm using a shower chair too which makes that easier too.

For any pre-surgery - it was suggested to me that I practised getting up from bed and also from chairs prior to surgery.

Mark Caswell Melinda,

The anxiety pre surgery was way over exaggerated compared to the real deal. Some people hav ... Read more

Mark Caswell Melinda,

The anxiety pre surgery was way over exaggerated compared to the real deal. Some people have more difficult surgeries and complications I'm sure but I had an almost text book in hospital portion of recovery. Dr. Brown and staff at Morristown Medical Center in NJ were amazing.

I too thought of death - I had a morning surgery, was shaved, prepped, and given the cocktail and wheeled in. Hrs later I woke up in recovery. Like I didn't know it even happened.

Scared of breathing tube - I was told I woke up for a brief second and made a gesture to the tube then asleep again. When I re- awoke it was gone. I really have no memory of this.

Day 1 and 2 were hard for me due anaesthesia and pain pills. Did not tolerate percocet well. Once resolved I got my appetite back and start feeling much better.

I was up and walking soon after.

Home day 6 :)

Stay positive. You will be fine. I am almost mad at myself now for being so anxious as none of the fears came true. Again every case is diferent but from stories here it looks like my case is more like the norm than exception.

You will do great!

Christine Oliva First happy that you are home. It is a first step to becoming yourself again. I cheated and had a pow ... Read more

Christine Oliva First happy that you are home. It is a first step to becoming yourself again. I cheated and had a power lifter recliner which is great if you can afford them. Renting them is so much cheaper and in Cali they are everywhere. I think regular pillows with a wedge pillow could of been a second choice. I still sleep with pillows and I am 3 months post. Yea, I could tough it out, but why I just want to feel good as I get ready to go back to work fulltime in very busy environment. Try Amazon for the wedge, very inexpensive and good.

Mark Caswell I have a really nice. recliner and might try to sleep in that short time. Appreciate the advice.

Christine Oliva One more suggestion, get a big fluffy pillow for your chest. You can use it for coughing in as well a ... Read more

Christine Oliva One more suggestion, get a big fluffy pillow for your chest. You can use it for coughing in as well as hold on or "mold on to" as you get up those first few days. Just remember to get up slowly and carefully. Be strong Mark we post people know what it is like and are rooting for you. Also, don't forget to walk around this really helps short and long term, muscles, balance, lungs, heart and your survivor spirit you are doing it!

Mark Caswellposted a journal

3709 days ago

Whitney Nelson, Cheryl Smith, Debbie Bentley and 2 others reacted to this

The toughest most intimidating portion is over. Now ready for the next chapter and battles to come. Good luck to everyone having procedures this week. You ...Read more

The toughest most intimidating portion is over. Now ready for the next chapter and battles to come. Good luck to everyone having procedures this week. You can do it!

Paul Doria Well done mark, bet you feel great your going home. How you feeling

Roger Birch Congrats Mark, good luck at home.

Debra Gann I bet you're relieved about going home. I'll follow your posts and hope to learn from your experience ... Read more

Debra Gann I bet you're relieved about going home. I'll follow your posts and hope to learn from your experiences for my future surgery. God bless you! Will pray for your recovery

Robert Frederick Good news!

Anna Jones Great news. Best wishes for smooth sailing.

Cathy Slipski That's awesome !!!!

Steven A Husted congrats on going home now starts cardio rehab it is fun and you meet a lot of new people

Jennifer Lorenz Congratulations!!! You'll be so happy to be home and in your own bed!!!

Sophia Ridley Great news Mark.

Congrats! Home is whereto will really heal!! Best wishes!

Liz Burroughs Congrats!! Best wishes for a full recovery!

Mark Caswell Sleepy first day home. I think the week in hospital caught up with me and I needed the rest.

I won't ... Read more

Mark Caswell Sleepy first day home. I think the week in hospital caught up with me and I needed the rest.

I won't miss the 2 am vitals check and 4 am lab draws lol.

Can't wait to fight and get stronger everday. Life is good.

Judy Freeman Mark great news that you're home. Before you know it you'll be in rehab and making progress every day ... Read more

Judy Freeman Mark great news that you're home. Before you know it you'll be in rehab and making progress every day!

Robert Frederick When you don't know what to do, walk, if you feel up, or take a snooze if you feel tired.

Mark Caswellposted a journal

3710 days ago

Paul Doria, Adam Pick, Travis Ederer and 5 others reacted to this

Drainage Tubes are out! Woo hoo. Ate my first full meal and already did 2 laps around my floor this morning. Still tired but feel amazing. Fingers crossed I ...Read more

Drainage Tubes are out! Woo hoo. Ate my first full meal and already did 2 laps around my floor this morning. Still tired but feel amazing. Fingers crossed I can go home tomorrow. Good luck to all of you having your procedures this week. You got this. Mark

Sophia Ridley Well done! You're on the road to recovery for sure! Take it steady.

Anna Jones Great news, Mark. I hope you can go home tomorrow too. Sending best wishes.

Wanda Mroz That's great news

Paul Doria Mark, I totally respect your bravery and courage through your journey. I may have to face same op but ... Read more

Paul Doria Mark, I totally respect your bravery and courage through your journey. I may have to face same op but don't even know where I would begin to sum up courage to begin journey?

Great news! Best wishes!!!

Melinda Queliz So happy to hear that! How bad were your tubes?

Lauren Burt You will feel like a new person now that those tubes are out! Those were the worst for me! Glad you a ... Read more

Lauren Burt You will feel like a new person now that those tubes are out! Those were the worst for me! Glad you are doing so well! Best wishes to a speedy recovery!!

Adam Pick Awesome Mark! The fewer tubes... The better!

Mark Caswell Paul,

The build-up in your mind is far worse than reality. Certainly was in my case. I am not going ... Read more

Mark Caswell Paul,

The build-up in your mind is far worse than reality. Certainly was in my case. I am not going to lie. Day 1 and 2 are really tough. Most of my issues were due to adverse effects from anesthesia and strong pain meds. Once I had that under control it is pure will and family support that will get you through. You got this my man!

Meredith Bray Stand up as straight as you can, resist the urge to curl inward to protect your chest. Excellent post ... Read more

Meredith Bray Stand up as straight as you can, resist the urge to curl inward to protect your chest. Excellent posture is KEY to preventing back pain! And welcome to the other side :)
-Meredith

Mark Caswellposted a journal

3715 days ago

Lynee Casper, Elaine Cutri, Emily Rowley and 4 others reacted to this

Next time I post I will be on the "other side". So ready for tomorrow morning. Thanks again for sharing your experiences and positive messages over the last ...Read more

Next time I post I will be on the "other side". So ready for tomorrow morning. Thanks again for sharing your experiences and positive messages over the last few weeks. They have really helped prepare me for this challenge. Peace!

Anna Jones Best wishes. I will be thinking of you tomorrow.

Debbie Bentley Good luck ! Praying for you

Kimberly Biddick Best wishes and prayers being sent your way!

All the best for a smooth surgery and a restful recovery!

John Murray Good luck Mark! Looking forward to reading your post-op writings.

Liz Burroughs Good luck! Our thoughts & prayers will be with you!

Kelly Weisgarber Good luck! Soon you'll be posting about recovery.

Judy Freeman Positive vibes and prayers coming your way.

Whitney Nelson Good luck!

Cathy Slipski Good luck! Will be thinking of you!

Wanda Mroz Best wishes!

Cheryl Shute Walter Today will be the first day of the rest of your life! Best wishes for a smooth recovery!

Michele Tracey God speed healing to you! God bless you and watch over you!

Mark Caswellposted a journal

3719 days ago

Emily Rowley, Cheryl Shute Walter, Lynee Casper and 1 other reacted to this

The support here has been incredible. 5 days til surgery. Work is done, pre-admin testing tomorrow, and have a busy and exciting family weekend planned ...Read more

The support here has been incredible. 5 days til surgery. Work is done, pre-admin testing tomorrow, and have a busy and exciting family weekend planned with my wife and son. I truly feel more at ease after hearing from all of you. Thank you all from the bottom of my heart (lol).

Nova Bonna Tribunalo God bless you Mark. May you have a successful surgery..

Paul Doria Best of luck for surgery. I've just been informed that i may need aortic valve replacement and mind i ... Read more

Paul Doria Best of luck for surgery. I've just been informed that i may need aortic valve replacement and mind in overdrive. I admire your bravery

Kathleen F. You will do great. Thoughts and prayers go out to you from Hoboken NJ! I had a similar condition to ... Read more

Kathleen F. You will do great. Thoughts and prayers go out to you from Hoboken NJ! I had a similar condition to yours, and I'm doing great a year after surgery. Have FAITH! It is so much better on this side of surgery. Surgery's no joke but the recovery really is easier than the wait. Keep posting your progress, we're all pulling for you!

Best wishes!! Sending warm thoughts for a successful surgery and an uneventful and restful recovery! ... Read more

Best wishes!! Sending warm thoughts for a successful surgery and an uneventful and restful recovery!

Gary Stripling Best wishes to you Mark. I wish I had found this site prior to my surgery. But I agree - it's a great ... Read more

Gary Stripling Best wishes to you Mark. I wish I had found this site prior to my surgery. But I agree - it's a great online community!

Bob M You are doing all the right things ... From someone who is on the other side

Wanda Mroz Best of luck to you... You will be fine and soon you will be the one giving advice! Prayers and hea ... Read more

Wanda Mroz Best of luck to you... You will be fine and soon you will be the one giving advice! Prayers and healing thoughts your way.

Cheryl Shute Walter This time next week you'll be looking at the other side - on the way up! Positive thoughts for a suc ... Read more

Cheryl Shute Walter This time next week you'll be looking at the other side - on the way up! Positive thoughts for a successful surgery and smooth recovery!

Cathy Slipski Best of luck with your upcoming surgery! Will be praying for a quick recovery!

Jacqueline Cook Blessings to you as you prepare for your surgery!

Anna Jones Best wishes

Lynee Casper Best to you Mark, sounds like you have a good attitude and are ready to get surgery done, and work on ... Read more

Lynee Casper Best to you Mark, sounds like you have a good attitude and are ready to get surgery done, and work on recovery. Good luck

Brenda Miller All the very best Mark...positive thoughts and prayers for a successful surgery and recovery...take c ... Read more

Brenda Miller All the very best Mark...positive thoughts and prayers for a successful surgery and recovery...take care

Stephen Vieira Best Wishes Mark, I hope you have a fast and speedy recovery.

Mark Caswellposted a journal

3724 days ago

2 people reacted to this

Booked my AVR surgery a few months ago. Now the surgery is 10 days away (Jan 12 in Morristown, NJ.) Freaking out has officially begun. Lol. Best wishes for ...Read more

Booked my AVR surgery a few months ago. Now the surgery is 10 days away (Jan 12 in Morristown, NJ.) Freaking out has officially begun. Lol. Best wishes for a speedy recovery for those post op and best of luck to those anxiously waiting like me. Happy New Year. All the best for 2016.

Anna Jones Hi Mark. I'm freaking out too, and my surgery hasn't even been scheduled yet. Everyone is telling m ... Read more

Anna Jones Hi Mark. I'm freaking out too, and my surgery hasn't even been scheduled yet. Everyone is telling me to concentrate on my breathing, take life one second at a time, keep in mind your trust in your surgeon, keep yourself busy, read this board so you can see how very many people are doing well and are happy after surgery. Sending best wishes for gentle hands caring for you.

Mark Caswell Thanks Anna. The more research I do and more I read others' stories it reassures me that a positive ... Read more

Mark Caswell Thanks Anna. The more research I do and more I read others' stories it reassures me that a positive outcome is coming. Thanks for the kind words and best wishes to you.

Wanda Mroz Been there, done that! Try to relax, remember to breathe, and stay positive. Gosh some days I can't ... Read more

Wanda Mroz Been there, done that! Try to relax, remember to breathe, and stay positive. Gosh some days I can't believe it's been over 4 months and is behind me. Some days it feels surreal. Time flies and it will all be behind both of you before you know it. Best wishes to both of you.

Mark Caswell Hope you are doing well Wanda. Looking forward to the behind me part for sure!

Wanda Mroz Pretty well thank you! Incision is still tender, but gets better. Still feel a bit drained by end o ... Read more

Wanda Mroz Pretty well thank you! Incision is still tender, but gets better. Still feel a bit drained by end of day but I've come a long way!,

Pat Bluemel You'll do swell. If I could give any direct advice (and it's easier said than done for sure), try not ... Read more

Pat Bluemel You'll do swell. If I could give any direct advice (and it's easier said than done for sure), try not to worry, worry doesn't change any outcome. The only thing you can control through all this is your attitude so try and stay light hearted (pun intended) and positive.

Waiting is the hardest part. The recovery was not nearly as bad as I expected (but it wasn't roses ei ... Read more

Waiting is the hardest part. The recovery was not nearly as bad as I expected (but it wasn't roses either). I'm almost 5 weeks out from surgery. Like Wanda, my incision is very sensitive. Thoughts for a smooth surgery and a restful recovery!

Mark Caswell Thanks Pat and Laura. I appreciate all the advice and words of experience. It is really helping.

Brenda Miller I totally understand...Freaking out is a normal reaction ...waiting is no doubt the worst part of the ... Read more

Brenda Miller I totally understand...Freaking out is a normal reaction ...waiting is no doubt the worst part of the whole ordeal...I am a very passionate experienced operating room nurse awaiting a date for my severe AVR ...professionally and personally speaking you will no doubt be in the expert hands of a highly skilled specialized cardiac team....who are highly dedicated and committed(intellectually and technically) to saving lives...life truly is a wild ride..hopp aboard and take this adventure with all of us who are sharing similar heart disease situations..throughout this ordeal....stay strong ,positive and have faith in God.......my thoughts and prayers are with you...all the very best...💔😊

Cathy Slipski Freaking out has begun for me too! I go Jan 25th. I am trying to focus on my kids and keeping my mind ... Read more

Cathy Slipski Freaking out has begun for me too! I go Jan 25th. I am trying to focus on my kids and keeping my mind occupied. My mind could be my worst enemy. I pray everyday and I can't wait for this to be over and I am on the recovery side. Try to stay busy it helps so much!

Julie McDonald-Lundgren Freaking out is normal and I remember it too! Hard to believe I had my OHS to replace my BAV just 6 ... Read more

Julie McDonald-Lundgren Freaking out is normal and I remember it too! Hard to believe I had my OHS to replace my BAV just 6 months ago. I also feel that the time before surgery is very difficult because of all the unknowns. I was 'Freaking out' too! Praying for all of you that are anxious about your up coming surgery.

Mark Caswell This is so helpful speaking to people that have been or currently experiencing the same thoughts and ... Read more

Mark Caswell This is so helpful speaking to people that have been or currently experiencing the same thoughts and feelings I am having. You are all special and I appreciate the responses and kind words!

Beth Kelly We are keeping the freaking out at bay as best we can for surgery Jan 6th. I try to think ahead to t ... Read more

Beth Kelly We are keeping the freaking out at bay as best we can for surgery Jan 6th. I try to think ahead to the time a week later, getting ready for my husband to be discharged. I hope that helps you. Think about that when you start freaking.

Meredith Bray Tough on the outside, freaking out mashed potatoes on the inside - that was me! It's normal. This is ... Read more

Meredith Bray Tough on the outside, freaking out mashed potatoes on the inside - that was me! It's normal. This is a big deal! *BUT* it is a manageable big deal. Just one step at a time, that's all it takes.

Mark Caswell Thanks Meredith. That's the plan.

Christine Oliva Mark I 100% agree it can be a managed deal with some planning. I am 10 weeks post AVR and once you ge ... Read more

Christine Oliva Mark I 100% agree it can be a managed deal with some planning. I am 10 weeks post AVR and once you get past that last week before surgery it just runs its course. It is really speeding up as I finish up my rehab classes and beginning to make plans for my future. I actually have a future!
Stay positive, enjoy your family and friends, keep busy, don't forget to rest, stay away from sick people and go into surgery realizing this is an opportunity to get better and I mean spiritually as well as physically. I won't lie the first couple weeks post were tough, but it can be done with right mind set and some planning, i.e. plans of who is going to help you and how, sleeping vs bed and anything you will need or make you more comfortable including diet. This board has great tips and I don't know what I would of done without it. Fellow heart patients are a great source of help/understanding so keep reading this board. Good luck Mark and you will be in my prayers for a speedy and full recovery.

Melinda Queliz My surgery is March 3rd and yep I'm dreading it but I also just want to get it over with. The anxiety ... Read more

Melinda Queliz My surgery is March 3rd and yep I'm dreading it but I also just want to get it over with. The anxiety is so much worse. I know we all tend to make everything in our minds way worse than what it really is. Best of luck to you, I will add you and your care team to my prayers. I look forward to hearing from you once you are feeling up to it!!

Mark Caswell Thanks again all. I love the "been there done that posts". I usually don't like to share too much but ... Read more

Mark Caswell Thanks again all. I love the "been there done that posts". I usually don't like to share too much but this has been amazing support.

Cheryl Shute Walter Take a deep breath, Mark, and try to relax. I'm know it's easier said than done, but everything will ... Read more

Cheryl Shute Walter Take a deep breath, Mark, and try to relax. I'm know it's easier said than done, but everything will be over before you know it. I waited 13 years (and Clonazapam daily) until the day of my surgery. It was scheduled for 8am. My husband, daughter-in-law and best friend were there for me. Then my surgeon had an emergency surgery, and we all waited together until 3:30 when they came to get me. I had been sitting up in bed the entire time. Let me tell you about being nervous, lol.... But I am now over 4 weeks post surgery and am getting better every day. Yes, there was pain at first, yes, I had a hard time sleeping, yes, I couldn't do everything at first that I was used to doing, but now things are slowly getting back to normal. Keep your head up, and I will check back on your progress post surgery!