Peter's Journal

Briana Morgan  That's how I feel. I start running and immediately feel I have to stop due to shortness of breath. I'm so looking forward to being able to run as I want to. I've heard about cardiac rehab. That sounds like a good idea. I think I will ask about it after my surgery. It is encouraging to hear how well you are doing while I am just about to have my surgery. Thanks for sharing!

Peter Bergan  No problem; honestly, I was running on the treadmill early in September and I just started crying because of how good I felt. I have never felt this good in my life. My only advice for your post surgery rehab is to take it VERY slow. I would get a little frustrated when I started walking/jogging right after surgery because I did not feel that much better. Now, months later, I feel great. Basically, what I did for months was simply walk or jog 3 miles 3 days a week. I started on a treadmill at 3 mph and increased that speed by 0.1 mph each week (week 1, 3.0; week 2; 3.1; week 3; 3.3). Now, I am able job 3 miles at a steady 7 mph. Sucks for us youngins to have to go through this; but you will feel better on the other side.

Sophia Ridley  I have a fitbit too, been great to see my resting pulse fall. Average is now 69 with overnight 60, finding I sleep much better.
I'm at my pre-op weight but feel that it's better places due to cardiac rehab! Overhauled my diet too, which I would never have done without going through OHS.

Barbara Laurie  Peter, great report! I cringe at the thought of going to CR, since they only have a 6:30 am class. Egads, I am not a morning person at all😄😄 But look at you kickin' it! Praying you feel stronger everyday, and have awesome times with your family, especially that little pete, an angel!! Best regards❤️❤️

Michael Meyer  Peter: Do not let the age difference bother you. I had similar experience though not as young as you. I focused on what my goals were. I even had a guy come up to me near the end of rehab and ask why I was there and I told him I had open heart surgery. I thought rehab was great, I did not make any connections with people it was just my time to get back in shape and develop confidence that my heart was working great.

Christine Oliva  I think you will like Rehab more and more. I'm 4 months post so I actually miss it. Keep on exercising!

Gary Stripling  I hear ya about the rehab. The first couple of weeks of rehab freaked me out because I'm also the youngest guy in the room. But now I'm used to it and just grateful I can experience life with these folks!

Tom Mcinerney  Hi Peter, Tom from Lakewood here and glad to see your rehab is doing so good. I had rehab at Fairview hospital great group. They said keep it up and try to get rid of the pounds. I'll be watching your progress. Tom

Michael Bronshteyn  Glad you are making good recovery. I was out to work after 4 weeks. I am at the end of 12 weeks and still have muscle pain and soreness in my chest. I think one of the reason is I am a Software Engineer and have to type all day long.

Christine Oliva  Peter I was told this was expected and the duration and intensity is an individual thing. Mine started to lessen at week 5 and now 3 months later it has gone away except for an occasional chest or side back jab couple of times during the week or if lift something over 15 pounds. Recently my cardiologist told me it will slowly decrease over time, now to 6 months depending on sternum strength. When you go to rehabilitation make sure you tell them so they suggest some exercises if you still have it. Rehabilitation really did help me get rid of a lot of the shoulder and back pain I was having. In the mean time, walk and walk as long it is okay with your doctor. It helps loosen those tight muscles and positioning they place you in during surgery.
I did have headaches too, but mine went away after the first month. Hold tight they should lessen a little bit each day.

Wanda Mroz  I had severe pains in my shoulder blades for days... They gave me hot and cold packs and muscle relaxers to ease it up. no headaches though.

W. Carter  It took me about a year for the painful charlie horses in my shoulders to go away. I am still having tension type headaches but they are getting better (or i'm getting more use to them :-)). Never had any headaches before OHS, even with hang overs so it has to be the surgery or warfarin. Warfarin is the only new med added after surgery. The rest of my meds for CHF and blood pressure I have been on for 3 years prior to surgery without even a hint of a headache.

Kenny Knox  Hey Peter- I had pain in the shoulders. It lasted about 2-3 weeks. Stretching helped me the most. That take home book they give you at CC does wonders!

W. Carter  It will all work itself out in due time. Take it one step at a time, you have a long road in front of you. Patience is a virtue in recovery from major surgery.

Elaine Cutri  I agree with W. Carter. Did they send you home with some pain meds? Take them when you notice you're not feeling comfortable. You need to make sure that you can breath as deeply as possible to keep your lungs clear. You won't need them for long. Best wishes to a successful recovery. What floor and wind were you on at CC? I was in J6-3. Dr. Roselli was my surgeon and Cherie was one of my favorite nurses.

Michael Shaughnessy  Glad to see you are home. Your body
is in healing mode now, don't try and be a hero, yet. Rest. Rest. Rest. The hard work of recovery will be here soon.

Elaine Foster  Glad you are doing well. My taste buds were off for quite awhile, it does get better. Take it a day at a time. Get up and walk a little every hour you are awake. Don't overdue it. You will be amazed how much better you feel in a week. Take care of the sternum, its been through alot! God Bless you

Jeff V.  Great news, Peter! I built a wedge of pillows on my bed and was able to sleep on my back and side (after careful maneuvering).

Kenny Knox  I agree with Michael, don't try to push yourself too hard at first. Excellent job on a quick hotel stay. Sounds like you'really on the right path to a great recovery!

  Glad you are home. I remember having that feeling that I could not get comfortable and my back had this uncomfortable pain. I found the pillows under my arms to be helpful and I am forever grateful to my recliner chair. Slept in it the first month! Day by day. You will get there.

Sophia Ridley  Many congratulations. Take it steady.

I bought a bed wedge off Amazon as my pillow mountain moved in the night (I tested pre-op). I still use it now.

Taste will return, my mum cooked all my favourites to tempt me. Buttery scrambled egg was like heaven! Small meals and often if you can't stomach the usual routine. I drank fortified 'build up' drinks too, called Complan here. Do get your iron checked.

Judy Freeman  Peter so glad to see your post and that you're back home. Great to also hear that you're doing so well. Congratulations.

Robert Frederick  I think the medicines do some weird things. I got very sensitive to smells. I kept changing my pillows out until I got one that smelled OK.

It all kind of went away after about a week at home.

Whitney Nelson  I am so happy to hear everything went ok! I have prayed and prayed for you! Thanks for keeping us updated!

Jennifer Lorenz  Glad all went well!!! Yes, it is very difficult to get comfortable at first but day by day it will get better! I am three weeks out from my surgery and I can sleep on one of my sides now!!! It all takes time.

Kelly Weisgarber  Happy things went well. The comfort will improve, as will the energy level. Hang in there! I don't miss the CC gown :)

Jacqueline Cook  It's hard to imagine it now but as Kelly mentioned...it will get better....p.s. I don't miss the CC gown either! LOL! :o)

Brenda Miller  Whow home already...my thoughts and prayers are with you...one day at a time. ...as your body will tell you...stay strong

Judy Freeman  Wow, it's like you read my mind! I was thinking that it was because I take a beta blocker that inhibits adrenaline. I feel like it's a double edged sword (no pun intended). I want to get on with the surgery, but feel like there area a lot of things that I want to get finished before I enter the world of "take it easy"
Have an uneventful surgery, Peter and a happy new year!

Emily Rowley  Originally I was going to stay in the Hospital for a couple days before my Surgery, but now with the change of plans I will be spending hours travelling on a train with family, hopefully enjoying favourite tea or juice and meal of mine, seeing a few sights of the city, then admitted to Hospital, sleeping there overnight. My first Op-I had Pre-Admission Testing all day long!

No it's not strange, I too have been counting down the days and kinda excited. I was disappointed at first when my Surgery date needed to be Postponed. I'm looking forward to getting it done on my road to recovery-not looking forward to all the pain, discomfort, lack of energy, immobility and vomiting Post-Op though lol. I can feel within myself how much I need this soon.

How are you holding up mentally? Do you finding it harder the closer the day gets?

I wish you all the best in your upcoming Operation.

Sophia Ridley  I was like you, I began to look forward to getting it done. I felt ready.

We didn't do anything extravagant, spent lots of time with husband and girls on the weekend and the Monday was just a normal day (apart from packing) and was admitted the next. I went to church on the Sunday before surgery and received the Sacrament of the Sick which helped me find peace whilst waiting to go to OR.

Please don't think it will be unpleasant for months... First few weeks are up/down but about wk4-5 sees a shift to much more good than bad days. I've had constant AF so you might reach it quicker. As you gain strength you'll be able to do more and it's extra special as things you couldn't have done it a week ago. I've just returned from walking round and round the park as my elder tried out her new bike. Four days ago it was an effort just to get there and I had to sit down. This time I didn't :) Please do be mindful of pushing/lifting etc limitations... With a little one it's v difficult.

Very best wishes for your surgery and a smooth recovery.

Peter Bergan  Thanks. I actually feel worst about being a burden on my family / friends. I am such an independent person and I hate that people are having to rearrange schedules and coordinate babysitting during the time I am in the hospital. Part of me just wants to say to my wife "Drop me off on the 4th and I will see in a few days" - but I know she won't go for that.

Wanda Mroz  I was rushing around making sure I hD everything taken of and dropped my dog Lola at the pet spa. Otherwise nothing special. I was just ready to get it over with.

Sophia Ridley  I'm usually very independent and this has taught me to accept help. People want to help and it's their way to show support. You would be there for them, they want to be there for you. I have found that not being able to drive one of the hardest things. We had a scramble for childcare when plan changed a week before op. It will work out.
You'll be glad of your wife being there, believe me !

Meredith Bray  Finish cleaning, and cooking with mom to fill up the freezer. I spent some time alone in prayer and thought. Sat on the couch with dad for a few hours. Fell asleep clinging to my husband. Woke up the next morning, did what needed to be done, and the rest wasn't nearly as awful as I had anticipated.

Eddie Patton  I actually ended up with two day before surgerys. The day before my scheduled surgery they called about 6:00 pm and moved it out a day so there was a reset the next day. I actually just did my normal routine, went to work to make sure everything was set before having surgery, went home and ate, double checked my list for the hospital.
The weekend before we had a barbecue with some family and friends, all beef since I got a cow valve, but other than that just tried to make the days as normal as possible.

  I worked. :( we did go out to a yummy dinner though and I spent time hugging and talking to my kids, husband, and mom. I also wrote my boys notes about how awesome I think they are and to reassure them about things to take to school and read when they worried about the surgery.

Dean Danel  Peter I hope your surgery goes a smooth as mine did. I was all worried the day before about the long recovery time but was surprised on how well I felt the day after. Had valve replaced and bypass on Nov. 9th was ready to go home on the 11th, didn't let me until the 13th. Out shopping on the 14th and back at work on the17th. I even got my surgeon to release me officially a month early on Dec. 7th. I feel great and other then a little weight loss and the chest scare that looks like a cat scratch you would never know. You look younger then me (58) so you should do well. Best Wishes

Gerald Schaffer  We stayed at a hotel near the hospital the night before and went to see a baseball game in Philadelphia.

Rob Wigley  I took my close and extended family out to dinner at "Celebration" in Dallas, it's sort of soul food, or comfort food. I couldn't think of a better thing to do.

Enrique K  The day before surgery I sat down with my wife, and 2 kids and we discussed my surgery. They wanted to know the whole procedure and asked a lot of questions. They also assured me that everything was going to be all right:-). I was always so open wth my kids that someday dad will need to have heart valve surgery.

Joan Davenport  I remember just staying at home and paying every bill I had and really just spending the weekend before surgery alone (I don't have much family). The day of surgery I felt very calm (almost too calm). My surgery went very well and I recovered quickly, but the surgery didn't really change anything because I really didn't have any symptoms to start with. My surgery was 3 + yrs. ago. I still wonder if I really needed the surgery to replace the aortic valve.

Liz Burroughs  We packed & drove 2+ hours from our home to Charlottesville. We drove by the medical center & then checked into our hotel. Our son drove from his college to the hotel to meet us for dinner & to spend the night. I was so glad that he could be there for me!

Cheryl Shute Walter  It sounds like you are as prepared as you can be. One thing I would suggest you checking on is the possibility of having a pacemaker. I am 15 days post bovine tissue valve replacement surgery. Had some problems with a heart block, and ended up having a pacemaker, which is also requiring Coumadin at this point. Also having some mild A fib. I will keep you in my prayers for a successful surgery!

  Sounds like you made an informed decision and are ready to go! Best wishes on a smooth surgery and restful recovery!!

Whitney Nelson  What made you chose a tissue valve? I'm only thirty and the thought of having to do the surgery again scares me but some of the younger people on this site going with tissue has me questioning things.

Peter Bergan  Whitney- my surgeon made me think that a transcatheter valve replacement was a real possibilty. I think the reality is that we will need another surgery whether we choose tissue or mechanical. I am hopeful that in 10-20 years there are more methods. I just really dont want to be on blood thinners.

Jeff V.  Interesting. My CC surgeon suggested that TAVR will only be indicated for high risk patients for a long time to come. I was told that OHS is the best technical way to replace a heart valve whenever surgery can be tolerated. He stated that OHS will not be replaced by TAVR anytime soon. The technology has clearly advanced in the last 10+ years, however, it will require a quantum leap for valve delivery via TAVR or some other less invasive manner to become the first line of approach for replacement. My surgeon advised me that if my AV needed to be replaced and I select a tissue valve, there was a 100% certainty that I would need another valve in about 10 years based on average outcomes for someone my age (51). Likewise, if I received a mechanical valve, there was a 1% chance that I would need another valve surgery in my lifetime. It was his opinion that the risks associated with having multiple open heart surgeries outweighed the risks of being on a thinner for the rest of my life and was proved out by the long term survival rates of either approach. In the end, it comes down to personal choice. I have a dual valve problem and fortunately, my MV was repaired and my AV was left alone... for now. For me, the most important information not found on HVS.com are those details that can be shared by community members over extended periods of time... 5, 10, 15 years. Hopefully, as our community ages, we can continue to input over the long haul providing invaluable insight into our experiences.

Emily Rowley 
Hey Peter,
How did your Surgeon convince you to go with a tissue valve over mechanical? My Surgeon is all for placing a pig's valve in me 🐷

Sandra Wummer  my story was very similar to yours. 2 years ago I had an AVR for aortic stenosis and bicusp. I went to Penn Heart in Philadelphia. waiting IS the hardest part but this support group is great. you look fairly young and active. The tissue valve will give you the possibility of a TAVR should you need another when you are old. by then, TAVR will be procedure of choice. its been 2 years since my last valve and there is nothing I cant do. except bench press heavy weight. I have never felt better. keep posting. there are great tips and support here.

Peter Bergan  The main thing my surgeon focused on was lifestyle on blood thinners. I am very active, especially with outdoor sports and he indicated that I would need to be very careful if I had a mechanical valve requiring blood thinners. My original main worry was about having a repeat surgery to replace the tissue valve -- he indicated that the risks of a repeat surgery were no greater than with the original surgery provided that the surgery is done at a hospital that performs these repeat procedures regularly (e.g., Cleveland Clinic).

Steven A Husted  i think you are making the right decision with a bovine valve i started out thinking a mech. valve because of a redo surgery but the more i researched i did not want any blood thinners because i do bleed at times from kidney stones i have several a year and just the idea of taking coumadin the rest of my life was not for me and i read about several patients who had mech. valves and had to have a second ohs with in 5 years or less and i also read about a patient who had a bovine valve and was going on 31 years out so i went with a bovine valve and i am glad i did because the ohs was really not that bad and i could do it again if i had to with out being so scared the idea of a second operation does not bother me there have been so many others here and on other sites that have had three and four ohs and are still doing well so it is not really how long they will last but what you are comfortable with and weather you want to be on blood thinners the rest of your life i am glad i went with bovine and i am over one year out best wishes and prayers your heart brother steve (popeye)

Elaine Cutri  You listed Dr Roselli as your surgeon, he did my surgery in May 2015. I saw him 2 weeks ago for my 6 month follow up. He was pleased with my healing, inside and out. He gave me a tour of the 3D model of my latest CT, it was amazing. He's still enthusiastic and passionate about his vocation. He answered more questions about the repairs he did for me. It was great to see him, gave him a big hug. He said I didn't need to see him for 5 years.

Emily Rowley  That's great your Surgeon took your lifestyle into consideration. My Surgeon+Cardiologist thought me being a female (of child bearing age) might like to have children, therefore they took that into account.

Michael Shaughnessy  Hi Peter. Which valve are you going to get? Merry Christmas! I love my tissue valve. Medtronic Freestyle stentless. You can do more than you ever imagined. Ran an easy 11 miler yesterday 4 years out. Good luck.

Peter Bergan  Thanks Michael. I have decided to go with a tissue valve over a mechanical valve. It's great to hear that you are able to run without limitations. I am actually excited for my surgery and look forward to getting on with this next phase of my life.

Tina Maroon  I didn't have to have the Tricuspid Valve replaced this time but I did have an Annuloplasty. My Heart Surgeon at the Cleveland Clinic recommended a Tissue Valve for me if I would have needed it. Not sure why or what the difference would have been.

Judy Freeman  I used to joke that I wanted to wait surgery until they perfected the Star Trek medicine, where they wave the box over your chest and it's fixed. I was supposed to have MV replacement 6 years ago. The routine stress echoes that I had, indicated that I was worse than the results of the cardiac cath. The cath doc came in after it was over and told me that I should not have the surgery yet, that I wasn't bad enough and that my symptoms were due to the A-fib and they would subside once the meds were working. After reviewing the results with my cardio and surgeon we agreed to wait. I was followed every 6 months with stress echoes and held pretty well until a year ago when my pulmonary pressure started going up from where it was. I was having some symptoms but still able to do what I needed to do. Now I'm in the range that surgery is called for, but not an emergency so that I can schedule on my own terms. Six years ago the surgeon recommended mechanical valve. Both my cardio and surgeon are now recommending tissue valve because it's their belief that when the valve needs to be replaced it will be done via trans catheter. My cardio is also a cath doc and she's doing work on cath valve replacement. One doc told me that my cardio was doing "groundbreaking work" Coumadin isn't an issue for me because I'm on it for life due to my A-fib. I've been out of rhythm so long that it can't be converted. I'm on a set of meds to keep my heart rate down so that I don't feel the pounding, lightheadedness and racing heart rate. My one thought is, depending on whether it's pig or cow, once the valve is in place, I'm now part pig or part cow. I will have to swear off either pork or beef, because that would be like cannibalism, which I am not.
Happy New Year!

Terrie Syvertsen  Peter-Like you, I had Aortic Stenosis, largely asymptomatic but for a little change in breathing and heaviness in chest(especially if feeling anxious) once my echo showed progression and the need for my heart Cath. The Cath was great as the technology allowed my health team to know exactly the state of my heart and better informed them when the time was right to operate on my valve. Having the Heart Cath completed will arm you with that knowledge and help them determine whether or not your changes in breathing or chest pains needs to be addressed or that you might be experiencing them due more to becoming anxious over the surgery in your future. I hope your heart cath next week will help you find your answers and that your tests have
good results. Keep your Cardiologist aware of any changes in symptoms and know you are in good hands as you move forward with your Heart being mended. Take care!

Sophia Ridley  When I found out I needed surgery, I was completely asymptomatic apart from two occasions of chest pain which got me to the doctors. In the months that followed I felt more breathless. I had probably noticed this previously but just brushed it off as being unfit. My pre-surgery echo showed that my heart had further dilated in a matter of months. Having symptoms made it easier to face surgery as I knew it had to be done.

Jean Raber  Hi, Peter! I think most of us actually DO have symptoms, but they're so mild or fuzzy that we just figure we're tired or getting a cold or something. It wasn't until I was diagnosed with a heart problem and cancer that I realized that the occasional headaches, dizziness, and shortness of breath and increased fatigue actually weren't just "old age catching up with me." I notice my symptoms more now (though they're not worse), and I am more vigilant about taking care of them so I can keep on ticking. Just my two cents.

  I agree; I had a similar experience and noticed more "symptoms" which I wasn't sure if they were psychological playing into the medical. Clearly the data shows you need surgery at some point and symptoms are one data point. The heart cath should give good information. All the best.

Whitney Nelson  I find myself getting short of breath upon exertion or my chest getting a little tight if I walk a lot and any time I have just a little bit of symptoms my anxiety goes through the roof and my symptoms get 10 times worse!!

Mary K  Symptoms can accererate rapidly. Do not let anyone tell you differently. Keeping a log or journal may be helpful. I went from paddleboarding with the gradkids to gasping for breath in a walker in a matter two months.

Emily Rowley  I feel my symptoms worsen so much in the last month! Stress & anxiety doesn't help me either :S Know that you're not alone.

Ginger Marine  I didn't learn a new skill, but I spent a great deal of time on ancestry.com and had a terrific time doing that.

Tom Mcinerney  Well Peter, after I was aloud to go into the basement I went down and worked on my train layout and built kits on the patio on nice days. Also lots of walking,really anything you want as long as you take it easy. Tom

Liz Burroughs  Hi Peter, I didn't have much energy when I first got home so I basically just rested on the couch for the first few weeks. Once I was feeling better I had a daily routine & tried to accomplish a few things around the house each day. I also took a walk in the afternoon & did a little reading. Now I go to cardiac rehab for 1 hour on M, W, & F. I think that once you're feeling better & have more energy you could definitely work on learning a new skill. You just need to take things slowly & listen to your body. You may need to just rest during your first few weeks at home. Take care. Liz

Billy G  Hi Peter, everyone is obviously different, but I'm 17 days post-op for aortic valve repair and am feeling great. I'm 34 (and also an attorney, although that probably has no relevance here, eh?).

I read many accounts about how people had difficulties concentrating, problems with pain/discomfort, etc. I thankfully experienced very little of that. I stopped taking pain meds (including over the counter Tylenol and such) a good while ago and was catching up on some emails the first day out of the hospital (I was only in for 3.5 days post-op after a full sternotomy). I do find I sometimes get tired (in a good way, compared to pre-surgery) if I walk around or move around too much. The main reason I'm taking it pretty easy is because my cardiologist knows me and keeps reminding me to take it easy for 6-8 weeks.

The short answer is this: while remembering every person will have a unique experience, I personally would have had (and still have) the ability to concentrate on learning a new skill. I've mostly spent my time with my parents because they have been visiting for 3 weeks now, and I don't get to see them often enough.

Steven A Husted  i would say that cardio rehab is a very good past time and it keeps your heart in shape and you make new friends i am over one year out and still in cardio rehab phase 3 and enjoying it

Kenny Knox  Peter- I think it's completely doable to maximize your time after surgery. After my first surgery, I picked up guitar; second surgery I did a bunch of reading/studying basketball sets (I coached at the time); and recently after this 3rd, I wrote 1/2 of a book. I'm finishing that now. Each time I pushed myself to walk and get outside as much as possible.

I think a balance of outside and inside work is critical to recovery. Don't bury yourself too deep in a new skill/hobby. Good luck!

Doran Herritt  At 3 weeks I got back to work. Only two days and I have a desk job, so it was doable. I missed the people and found I needed to break the monotony of being home. With all that said I didn't pick up anything new. Read a lot, clashed some, spent time with family and friends. I like routine so getting back to what is normal for me was a priority. Take care. Drn

Emily Rowley 
Before my Op I took a great Holiday, doing things I never done before. Then Post-Op was a whole learning to be human again process. Later on, I explore more of my creative side by drawing and painting (tried canvas for first time) the world around me. Unfortunately this time I have work commitments so I can't take a Pre-Op Holiday lol.
I hear some people learn a language, but my concentration levels after Surgery were very poor.

Emily.

Sophia Ridley  We moved house a while ago without decluttering so I have a loft full of stuff to eBay... that's my plan for my second 6wks. Will have to go to Post Office frequently so good exercise too! So far I've read a lot of magazines and just finished a book, am getting bored but my mind is fitter than my body so need to ensure I don't overdo it.

Peter Bergan  Out of Cleveland? I need to be here so I can celebrate with the rest of the city when the Browns win the Super Bowl this year!

Jean Knappik  Hi Peter, I can relate to that have always walked at a good pace on treadmill 5 days a week, recently walked a little slower. I think it all depends on how narrow your valve is, because they do not want your heart chambers to over work and get enlarged to get that blood through the stenotic valve...I was told to do very little< but my aortic valve is only open 25% of what it should be. Maybe exercise but tone it down. good Luck!

Tim Goff  Peter,
I did continue to exercise, but backed off the duration, frequency and intensity. Some happened because of symptoms and somewhat as directives from the surgeon. For many, exercise can be a mental benefit in addition to the physical so I took some solace in that I still got in some exercise, but focused a bit more on resting up and being prepared. Every condition is different and consulting with your medical team is the best course.

Tom Mcinerney  I think if you keep at it you will be in better shape when your surgery date is and you won't have to work so hard afterwords to build yourself up. I'm getting closer to the end of my 36 times at the rehab center. Tom

Gregg Nissly  Since I was diagnosed on Oct 9 with severe aortic stenosis (.6cm), I've continued to walk an average of about 3 miles a day and do light lifting and stretching. I know the feeling that I was getting before the diagnosis when I exerted too much (out of breath, but also a burning feeling deep in my throat). I will now walk to the point of breathing hard, but always back off before I start to get the burning feeling. The light exercise really makes me feel better. But of course consult with your cardiologist.

Sophia Ridley  I wasn't doing any formal exercise but walking locally and within my commute. I've tried to maintain the same level, but I've been absolutely shattered and noticed now that I need to stop and sit down. I can't stand for long and that seems to get worse as my pulse rises. Before these symptoms appeared I was in denial of surgery in some way, now it's a case I want to get on with it to get better.

Neil Collins  My surgery is on Friday and I did a 50km bike ride last week. Going to do a couple of short runs this week. I'm treating it like a marathon…..
My only restriction was "nothing competitive" so no races or organized event where I would push myself. Although riding last week with a two time ironman just about knocked me out for a couple of days.

Elaine Cutri  I agree with the comments above. Exercise is a good mental health task while you're waiting. Just listen to your body.

Peter Bergan  I stopped because I didn't want to overdo it -- prior to finding out that I would require surgery, I was running about 5 miles a day and doing heavy weightlifting. I think I will walk/job a couple of miles a day from here on out up to my surgery date.

Elaine Cutri  No weightlifting is a smart idea. Walk/jog will help keep you in shape and clear your head. It worked for me! Best wishes.

W. Carter  Nothing really changes except the introduction of TAVR. With a mechanical valve you will have an increased risk of hemorrhage. The lifetime of a tissue valve is typically 10 to 15 years, often less in younger patients. Over this time the valve will likely be degenerating to the point of requiring replacement. Because valve replacement surgery carries a significant risk of death, patient life expectancy is a major criterion in considering a tissue valve. American Medical Association guidelines indicate that mechanical valves are generally appropriate for a majority of patients 65 years old and younger, or patients already on coumadin. It comes down to personal choice and recommendation from your surgeon.

Doran Herritt  Peter. I never found one. Try searching mechanical vs. tissue. There is some stuff in here and outside. Onx kept coming up for me when I was searching and would have been my first choice if I decided on mech. I went tissue in the end mostly because of Coumadin use and the advent of Tavr. But I just had a malformed and damaged tricuspid valve, no stenosis Nor other complications. You can also check out my journal. I asked the same questions in June/ July with plenty of responses. Ask your doctor about repair. It may be a possibility. I am 6 days post op. Good luck. Thoughts and prayers with you.
Drn

Steven A Husted  hi peter i read a lot about mechanical valves and how they would last a lifetime but then i read also that of some that did not last but 1 or 2 years so i went with a bovine tissue valve and i am glad i did because the operation was not that bad and i think i could go thru a second ohs with out any problem in maybe 20 + years i read where one bovine valve lasted 31 years i think the main difference is coumadin and INR and a bleed out or a redo operation with tissue and a redo is also a possible with mechanical valve it is a very hard decision you have to go with what you feel comfortable with they will both do the job of fixing your heart look up mechanical vs tissue i know i went back and forth between both and went with bovine and now i am glad i did

Steve Salvador  being on warfarin makes you a liability, esp. if it is a job requirement. I choose tissue (porcine). I got off of it this month. Now on 81mg baby aspirin. The other day, I did a search, ' how long will tissue or mech would last'. My guess with the readings, They recommend if you're young (mech) if you're 60+ (tissue). With advance technology, I'm sure they will come up with something fantastic. Maybe a bionic heart valves !! Take care heart brother !! I'm glad I went tissue. Warfain has too many bad side effects for me.

Rita Savelis  The best valve for you will depend on your age and which valve/how many valves you are having replaced, whether you are okay with multiple surgeries or not, whether you can incorporate a daily med into your life and regular blood tests. If there were a perfect solution we'd all choose it. Most patients tend to advocate for the valve they ended up with, but again it is very personal and patient-specific. Hopefully your surgeon will be advising you. There is lots of info on the internet but there are exceptions to every piece of information you find. Wish I could be more helpful - as your question is everyone's question. Ultimately every choice is the right one.

Doran Herritt  Well said Rita. No wrong decisions. Rather a correct decision for you. Look at all the info out there. Think about it. Talk to family and friends. You will go back and forth. Decide. Move forward. Once you make it, it gets a lot easier.
Drn

Lisa Heinen  I had one surgeon suggest mechanical as that's all they did- and one suggest tissue- I chose my own path and opted for the Ross Procedure. 28 days post op and I am feeling incredibly well! Feel free to read my story and contact me if you have any questions. As I was told- the best decision is the one you make as you are the one who has to live with it. Good luck!

Kenny Knox  Peter, I've had both tissue and mechanical. I responded to an earlier message you sent me, sorry for the delay. I bet your surgeon can help steer your decision for you but honestly, both types are fine.

Steven A Husted  its like many have said here they both will do a good job for you it comes down to what you are most comfortable with because you are the one who has to live with it different people like different things about each if taking coumadin and testing and brusing and bleeding dont bother you maybe mechanical or if a second operation which is not really not that bad will not bother you go with a tissue valve i hope what we all have said will help you in some way it is a lot to take in and consider i know i had the same problem your heart brother steve (popeye)

Michael Shaughnessy  You cannot really study them head to head. Too many differences. As a physician myself, I have seen too many Coumadin complications over the years in young and old patients; from strokes to cerebral hemorrhages, blindness, even one patient almost died from a nosebleed. My final decision was based on my age (43 at time of surgery). I can definitely handle another surgery, Coumadin, and biomechanics. There are multiple studies on the micro damage that mechanical valves impart on red blood cells over time. It is not just Coumadin but WHY you need Coumadin. Mechanical valves are more traumatic to blood cells and to the pulse wave that originates in the left ventricle (if you are talking about aortic replacement). These damaged RBCs can cause microscopic long term changes throughout your body. Some PET scan studies have demonstrated this phenomenon. Not to mention the turbulent jets that are created through the rigid valve increasing your risk of clots and stroke. When it comes to tissue valve understand that there are stented and unstented. The stented valves are bovine or porcine pericardial tissue wrapped over a synthetic (or stented) form. These do not last as long. Pure bovine valves are typically too large for a human. Pure porcine or human unstented valves have the most anatomically normal function of all valves. (Human valves are not as easily acquired). I appreciate and respect the comments that we tend to promote what we have, but I did a lot of research before my surgery like you are doing). My porcine unstented valve was recently interpreted as a normal valve with normal cardiac function on an echo. ( The radiologist obviously had not read my history). My cardiologist always reads my echoes and we had a good laugh about how normal my valve looks 4 years out of surgery. If you are a high risk surgery patient a mechanical valve is a good option because it may last your whole life. If you are not high risk, the future of valve replacement (TAVR) will likely be something we don't even contemplate yet. Knowing everything I know and having talked to other patients with both valve types, I still choose unstented tissue. Sorry to be so long worded, it is something I feel strongly about.

Peter Woglom  Hi Peter. Sounds like you're on the same journey that a lot of us started at one point in time where we consumed whatever we could online and made our pros/cons lists. Given my age (was 39 at the time), I opted for a Ross Procedure instead of tissue or mechanical but the choice was as much about the surgeon I wanted as it was the valve choice. When I was doing my research, I was hoping I'd come across the one resource that would sway things one way or another but that pendulum kept swinging back and forth. I did my reading, spoke with a number of surgeons and even people who had undergone various surgeries and that finally got me leaning one particular way. Again though, that was really solidified by pairing the procedure I wanted with the right doctor at the right hospital.

Peter Bergan  Thanks everyone. I have my three day appointment marathon in mid-December where I will do all my pre-op testing and discuss the surgery with the surgeon. I am still weighing the pros and cons of each type of valve. I will let you know what the surgeon suggests and which type I ultimately go with (either type beats the crappy valve I currently have!).

Peter Bergan  Well, Cleveland Clinic just lied to me...the nurse consultant just called and I am on the board for surgery Jan. 4

Peter Bergan  My cardiologist is at the Clinic (Dr. Majdalaney); so I have had several cardiologist appointments there together with a cardiac MRI, echocardiogram and EKG (all performed at the Clinic).

Jeff V.  Dr. Roselli is worth the wait. I began going to the Clinic in 2009 for annual check-ups, initially thinking that surgery was imminent as my MV leakage was considered moderate/severe at the time. I also have mild AV stenosis. It wasn't until five years down the road when on 9/14, following a poor result on a stress echo, that my CC cardiologist (Dr. Wm. Stewart) felt it was time for surgical intervention. My doc suggested surgeon, Dr. G. Pettersson, and recommended that I should have surgery sometime in the following 6 months; we targeted Dec., 2014. I waited 2-3 weeks for the call from the surgeon's office to finalize the date. Looks like you are locked in, Peter… good luck on 1/4! Check out my journal if you want more info. on my CC experience.

Michael Shaughnessy  The advice I was given by both a CCF doctor and a UHC doctor in my early 30 s was that although my bicuspid valve had "moderate /severe regurgitation" my left ventricular function was excellent so monitoring was OK. Once the LV starts to have trouble, you should be thinking intervention. The tipping point for me was the ascending root aneurysm at 6 cm, which echocardiograms had failed to properly diagnose in the past. The bicuspid valve had slowed me down all my life and I never knew it, but the aneurysm would surely have killed me. My echo and MRI never told the full story. I have the pathology photos of my valve after removal. It was horrible and I was asymptomatic. I did get several opinions before surgery. If you haven't met Alan Markowitz at UH, just talk to him. If you have any difficulties getting into him, I can intervene. We are young, have families, jobs, futures, it is all scary. I don't regret my decisions for a second, but I was terrified beforehand. I would be happy to talk to you about my journey.

Tammy Pilcher  Hi Peter, my pre-op mean gradient was 80 mmHG and my valve area was 0.39cm2. I had been having symptoms for a long time and thought they were asthma related. My surgeon told my husband right after my surgery that my valve was basically non-functioning and that he didn't know how I had been going up stairs. We had told him pre-op that we have stairs and that I would have chest heaviness, shortness of breath, and a couple of times dizzy spells going up them. After my surgery, I could tell a difference the first time I walked down the hall in ICU. It has been amazing! I'll keep you in my prayers for your surgery and recovery. God bless! Isaiah 41:13.

Mindy Currence  Hi Peter, I think my MPG was 75 mmHg. I have always been told it was severe for my aortic valve, but not as bad for my mitral; however, at my last appointment we discovered both were at a point for replacement. I am scheduled for December 2nd, and I declare my shortness of breath and chest heaviness are increasing. At first I thought the symptoms were psychological, but the other day after doing some stairs my husband said my lips were bluish...pretty frightening, but the doctor's just say these symptoms are common for this degree. They say I have handled them so well due to my age. Maybe you are not feeling the symptoms as bad for the same reason. Even with all of this they said I could wait so I could finish my Master's degree.

Terry Shermeister   Hi Peter, just read your story and I applaud your courage to have the surgery sooner rather than later. I had MVR on May 14, and had zero symptoms. I've been a competitive person in the areas of biking, swimming, skiing, and all the other sports one does through HS and College. I swam a mile before my surgery and biked 15 miles the day before. I'm now post op., about five months and am doing my normal activities and more. It sounds as if you will have great outcomes as well, so healing thoughts and prayers to you.

Clare Auten  Yes. Cardiac rehab gave me specific cold and hot weather precautions. I don't remember the specifics but can look them up.

Jackie Owens  Yes there are restrictions. Right after my surgery last month, I went to my Dad's to recover in Palm Springs ( hot hot hot)....he had to take me to a mall or walmart, etc to do my walking indoors in the AC. Now, I'm back in Colorado where I live and I was informed to also walk inside in extreme cold conditions. I think my paperwork said below 40 and above 80 are examples of temps to avoid.

Jeff V.  No snow shoveling or no snow blowing. Otherwise, I was given no restrictions about being out in cold weather.

Sophia Ridley  I'm in London, UK and the news keeps warning that we're in for a harsh winter. My op is 16 Nov. All I had been thinking of was boots with good grips(!), thankyou for your post as I haven't thought to ask. Will do.

Michael Shaughnessy  I live in Cleveland and was not restricted from weather. I had surgery early December 2011 and was out running 3 1/2 weeks post. I enjoy the cold and ran (and continue to do so) all winter with my new valve!

Jacqueline Cook  Hi Peter. We just moved to Carlisle PA....I've heard winters can be pretty bad here (they got hammered with snow last year). I am having my surgery done at CC on December 17. I will be in recovery through the winter months. They have not given me any specific instructions concerning the cold as of yet; however, I will probably go to a gym close by when the weather is bad so I can walk on the treadmill on the days I don't go to cardiac rehab. I have been thinking this through in advance because I know that I am not typically motivated to exercise outside when it's freezing! Plus I don't want to risk slipping on ice or anything of the sort.

Kimberly Biddick  I have aortic insufficiency as well as aneurysm and that is one of my symptoms. It's frustrating and scary! My cardiologist just shrugged his shoulders, but my surgeon said it's just not normal to always have chest pain and that weighed in heavily on his decision to go ahead and schedule my surgery. I hope get some answers and feel better soon!

Peter Bergan  Thanks. I have a call into my cardiologist now and will see how he responds. It's just scary when you read stuff that says "the risks of not replacing the valve are likely greater than the risks of surgery." The only thing keeping me out of the "severe" range in all categories is that my valve area is 1.02; which technically puts me into the moderate category (but very close to severe).

Whitney Nelson  I have that!! But when I told my cardiologist and surgeon they both said its not my heart and basically just told me to take a tums.

Peter Bergan  Yes; that is what they told me when I was younger and had similar chest pains -- they said it was either indigestion or "growing pains"

Peter Bergan  Not much new to report; but I did speak with my cardiologist who was going to talk to Dr. Roselli to discuss next steps. Stay tuned.

Lori Rees  Peter, I had that too. My surgery was 10/5/15. I'm still recovering. I would get a pressure or tightening in the area of my heart. It was intermittent. As time went on it was frequent, would last longer. I also had shortness of breath. I still have some pain, but it is related to the surgery. Too soon for me to comment on how much better I feel, now that it's over. My cardiologist wasn't terribly concerned about the chest pain symptoms, so I trusted his lack of concern. Good luck!

Elaine Cutri  Welcome to the group Peter. You will hear from some wonderful people about their experiences - pre and post op.
I had my ascending aorta repaired, new aortic valve implanted and tricuspid valve repaired at the Cleveland Clinc on May 20th. June and July were slow and easy as my body was recovering. I was sore, small appetite, and had some fluid behind my lung during this time. Once August rolled around I felt about 90%. Just as Dr Roselli said it would be. Everybody is different. I've been back at work since the beginning of September. Ask questions! Best wishes.

Peter Bergan  Thanks. Did you obtain a tissue valve or mechanical? I am trying to decide between the two; the concept of being on blood thinners scares me.

Michael Shaughnessy  Peter good luck to you. I was 43 when I had my AVR. I live in Cleveland as well and would be happy to talk to you in more detail.

Kenny Knox  Welcome Peter - I live in Columbus and recently had an AVR at the CC. I'm 33, went with a mechanical valve, and have most had a smooth recovery. I'm about 15 weeks post op and will be going to my second Browns game this weekend - no problems with walking, steps, or tailgating :) This was my 3rd OHS and that played a large factor in my valve type decision. I've had tissue before. I'll be glad to answer any questions. Good luck with everything - you'll do fine!

Peter Bergan  Thanks. I am in the process of scheduling my consultation with Dr. Roselli (who is very busy it appears). I was given the option of having the surgery now or coming back to the cardiologist every 3 months for a cardiac MRI for them to track my process. Two of the three measurements were in severe range, whereas the other was moderate/severe, so he said at this point surgery is not absolutely required but it will be soon. I would prefer to just get this over with. I have been told since I was a little kid that I would eventually need the valve replacement. Again, though, I have not had any symptoms (e.g., played high school football; played rugby at Ohio State) so its a little frustrating to be told I have a heart problem and that I need surgery when I feel fine. But, I trust the Cleveland Clinic.

Jackie Owens  I am 38 and very athletic before surgery. I am 5 1/2 weeks post op from my 4th open heart surgery. I had my ascending aorta repaired and aorta replaced along with a pulmonary conduit replacement. I was asymptomatic until about a month before surgery. I opted for a tissue valve as my surgeon at UCLA advised me that with blood thinners I would have to give up snowmobiling, snowboarding, Mtn biking, etc due to the risks of bleeding if I were injured. I was not willing to give up my entire lifestyle so that's why I chose tissue valve.

As for my recovery, I'm doing well. I'm up to walking 3 or so miles a day but I do get tired by 7-8 pm. In fact, today is the first day in 5 weeks I've woke up without any pain in my sternum, back, shoulders, etc....it's a nice change. Just know that you have age on your side, but it's still a long recovery process. You'll get frustrated at times and want to try to do more than your body will allow. I'm very very guilty of this! Good luck in your surgery! You'll do great !

Steven A Husted  HI PETER WELCOME TO OUR FAMILY OF HEART VALVE SURGERY I HAD A AORTIC VALVE REPLACED AND A BYPASS I CHOSE A BOVINE VALVE AS FAR AS MECHANICAL OR TISSUE THEY WILL BOTH GIVE YOU A LONGER LIFE WITH THE MECHANICAL YOU WILL BE ON BLOOD THINNERS THE REST OF YOUR LIFE AND WITH A TISSUE YOU WILL PROBABLY NEED A REDO IN 15 OR 20 YEARS BUT A REDO MAYBE A TAVR OR OTHER EVEN IF YOU NEED A SECOND OHS IT WAS NOT REALLY THAT BAD I THINK IF I HAD TO I COULD DO IT ONE OR TWO MORE TIMES THAT IS WHY I WENT WITH A TISSUE AND I DID NOT WANT TO BE ON BLOOD THINNERS THE REST OF MY LIFE AND DID NOT WANT TO BE AFRAID OF STOPPING A BLEED IF I INJURED MYSELF HOPE THIS WILL HELP IN SOME WAY YOUR HEART BROTHER STEVE (POPEYE)

Elaine Cutri  Jackie and Steven gave a few good reasons why a tissue valve is advantageous. I was offered a tissue valve, but opted for another mechanical valve. This was my 4th OHS, I'm 57 and hope that 4 surgeries are enough. I've been on blood thinners for several decades so I'm use to the routine, but I really enjoyed having a tissue valve in my 20-30s. It was the best! See my story for more details. Best wishes. You're in good hands.

Neil Collins  Peter, I'm 44 and was about to compete in a triathlon a few days after my last echo. Was feeling ok but told not to compete as my valve had narrowed to the "severe" category.
Hardest decision I've ever had to make was the tissue or mechanical valve. I went tissue in hopes that I can stay off blood thinners for a while and the slim possibility of the technology allowing Trans Catheter replacements in those with moderate risks.

David Augustus  Peter, welcome to the community. Like you, I didn't have symptoms but knew for over 30 years that I needed to replace my bicuspid aortic valve. I was in the hospital for 5 days and was back to my desk job after 5 weeks. I had some bumps on recovery road, but that's to be expected. Because of my age I opted for the mechanical valve. My journal details my story. Positive thoughts for you and your family.

W. Carter  Best of luck to ya! Everything will be fine and they will take great care of you. Take it real slow for a couple of months after surgery and let the recovery begin. At your age you should be 100% recovered in 4-6 mo. It took me about 9 mo. but i'm 58 and had a couple of set backs due to complications. Now i'm walking and jogging 4-5 miles a day so give it time. I have a mech. and take warfarin, so don't be scared of the blood thinners, you can do whatever you want to do except anything that might give you a head injury. :-)

Patrick Dowd  Good luck Peter. What a tough decision you are going to hear good folks who went in either direction mechNical or tissue. It is such a difficult decision because there are uses and minuses. Younger people like you seem to choose mechanical but the issue of blood thinners and clots is an issue. I am older and so a tissue may outlive me but if if not a TAVR. This is a tough surgery so if there is any good way I don't want to do it again. Again, sorry but is an individual decision.

Tammy Pilcher  Welcome Peter! Prayers for you and if I can help answer any questions, I will. I went with bovine tissue and my surgery was last year, Oct. 31. It wasn't as bad as I thought it would be. Isaiah 41:13. God bless!

Jacqueline Cook  Welcome Peter! I will be having surgery at CC in December. Prayers for you and your family as you go through this process.