I'm now just over six weeks done with mitral valve replacement. Doing cardiac rehab, which is a workout! On days I don't have rehab, I walk 2-3 miles, or bike, or hike. For the biking and hiking, I take extra care about crashes and falls, since I'm on warfarin until early December. My Apple Watch Cardio Health function shows steady improvement on an almost daily basis. Within a few weeks, I think I'll be back to where I was before surgery, and then hopefully continue to improve until I'm significantly *better* than before surgery. I was diagnosed with follicular lymphoma during the workup for surgery and will see a specialist next month to see where I stand in that regard.
Everything has healed up nicely, and I have pretty much zero discomfort from the incision sites.
I was released on Sunday, September 12 after a minimally invasive mitral valve replacement at Mayo Phoenix. Recovering nicely at home, walking increasing distances each day.
I’ll be in Coumadin for 90 days. Yesterday I had my first Coumadin clinic appointment.
Had my mitral valve replaced by a minimally invasive procedure Tuesday. One small incision on my side. Went great. I’m in the hospital right now, healing fast. I recommend Dr. Selll-Dottin. Mayo Clinic Hospital is wonderful. Everyone—nurses, doctors, PT staff..even room service makes you feel relaxed and welcome
I was originally scheduled for mitral valve repair/replacement on August 24. However, a planning CT showed that a number of lymph nodes were enlarged, so we stopped and did more tests, including a biopsy. I’ve got advanced stage, low grade follicular lymphoma. But it doesn’t need treatment right now, so surgery is back on for Tuesday the 7th (next week). A TEE a few weeks ago showed the valve may have to be replaced. It’s about 50/50 odds, I guess.
The plan is for a minimally invasive procedure.
Had my angiogram yesterday. Easy and painless, even lying still afterwards (it was femoral). No blockage or disease found, so still a green light for minimally invasive. Next up: another TEE, then 5 day later, the main event.
Wore a Holter monitor the other day to check for AFib (apparently none). Lots of preventricular contractions (PVCs) which I feel as palpitations.
Still scheduled for minimally invasive mitral valve repair/replacement on August 24. Next up: heart cath on Friday the 13th, then a battery of tests the day before surgery. On track for minimally invasive mitral valve repair at this point.
I met my surgeon at Mayo Clinic Phoenix today. The plan is a mini-thoracotomy on August 24. Of course, things can change, and maybe I'll need a sternotomy and more than just a mitral valve repair. But that's the plan for now.
In case anyone has been reading about my hopes for robot-assisted mitral valve repair at Mayo in Arizona, well, the staff there also read my posts! They called to let me down gently, but I was already prepared--while they do a da Vinci mitral valve repair in Rochester, they don't do it here. It's fine--ultimately, I feel fortunate to have Mayo available to me and will forge ahead with them. I now have an appointment with a surgeon there in a couple of weeks.
Thanks to Adam Pick, I was able to get everything straightened out with Mayo with a phone call to the right department. Just a hiccup in the referral process. I’m now expecting an appointment for an initial consultation soon.
I’m greatly relieved and grateful for all the advice here!
Hi everyone. I've been diagnosed with severe mitral regurgitation. My insurance covers Mayo Clinic (I'm in the Phoenix area), and a month ago, my cardiologist sent them a referral for me, followed by my medical records. I have called them a few times, but have gotten nowhere. When I call, after a lot of transferring and waiting, I get the physician's referral service. The one time I spoke to a person, she told me the surgeons were booked out two months, and that it wouldn't bother them if I sought care elsewhere. Other times I've called the phone just rings.
Now I have a second referral in to a different (non-Mayo) surgeon. Waiting several days for that call now.
How long is "normal" when seeking an appointment for mitral valve surgery? I do like the idea of Mayo Clinic, since they do mitral valve repair with the Da Vinci robot, at a high volume and with excellent results.