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Diagnosis: Mitral Regurgitation, Atrial Fibrillation

Member Since: June 28, 2023

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Jill Porter posted an update

1 year ago (September 6, 2024)

Hi everyone! I am a few days past my one year valveaversary. I had a MV repair last August with a 21 day hospital stay and about 5 weeks of post op Afib. Grateful that everything eventually settled down. Took me several months to start feeling normal. Have been able... Read more.

👍 Darrell Malone reacted to this

Rose Madura

1 year ago (September 6, 2024)

Congratulations Jill on your anniversary. You have a rough ride so I understand your anxiety. Our minds can really mess with us sometimes. Stay strong! ❤️🩹💪

Jill Porter

1 year ago (September 6, 2024)

Thank you Rose!

Grace Mason

1 year ago (September 7, 2024)

Glad to hear things are going well with you Jill. Happy anniversary 💐

Jill Porter posted an update

2 years ago (January 22, 2024)

Does anyone have epicardial pacing wires retained following OHS. I was in the hospital for 3 weeks after my OHS and they said that they couldn't remove the pacing wires but cut them off close to my skin so they would retract into my chest. Now I have a lump... Read more.

Marie Myers

2 years ago (January 22, 2024)

The doc was able to pull my temporary pacer wires out a couple days post op. Sometimes the pacing wires don't come out easily, and it is deemed less risky to leave them in. In that case, the wire is clipped close to the skin surface. I know several people... Read more.

Thomas Brusstar

2 years ago (January 23, 2024)

Hi. I had pacing wires. They insert them during surgery, just so they have a connection in case they need good pacing leads in recovery. I didn't actually need them, but I understand why they put them in. They explained that there is a little hook at the end where... Read more.

Jill Porter

2 years ago (January 25, 2024)

I had the appointment and the cardiologist said in fact it was one of the epicardial pacing wires that were left in and it was popping out and had to be dealt with. So now I have an appointment for next week with the electrophysiologist because he's the one who... Read more.

Jill Porter posted an update

2 years ago (January 7, 2024)

Hi all! I'm 4 months out from my MV repair surgery. I'm doing well I think but I still do have some shortness of breath. My new cardiologist (we recently moved to this area) wants me to do a PFT - Pulmonary Function Test and a stress test which seemed... Read more.

Carolyn Stone

2 years ago (January 7, 2024)

Hi Jill, I had a PFT prior to my TAVR procedure. I had no idea they gave you carbon monoxide but it explains the little capsule they made me sit in (I did it while at the hospital for my Pre-TAVR angiogram). They did say that I was a bit... Read more.

Richard Munson

2 years ago (January 7, 2024)

Breathing in carbon dioxide sounds like a bad idea to me but what do i know. Stress test and echo sounds like a good idea.

Jill Porter

2 years ago (January 7, 2024)

I did not have surgery. I was braced for four years from 12 to 16. Fun times.

Rose Madura

2 years ago (January 7, 2024)

Jill, I didn't see anything about breathing in carbon dioxide in this article. Maybe ask the doctor about it.... https://www.hopkinsmedicine.org/health/treatment-tests-and-therapies/pulmonary-function-tests

Pulmonary Function Tests

https://www.hopkinsmedicine.org/health/treatment-tests-and-therapies/pulmonary-function-tests

Pulmonary function tests (PFTs) are non-invasive tests that show how well the lungs are working.

Klara Čičić

2 years ago (January 7, 2024)

Dear Jill, there are few pulmonary function tests used regularly to help diagnose lung conditions and one of them is called DLCO. It is very useful in determining problems with diffusion capacity, or how good your lungs are in gas exchange. It uses mixture of gases one of which is... Read more.

Valerie Allen

2 years ago (January 7, 2024)

Interesting, I didn't know this

Ana Brusso

2 years ago (January 7, 2024)

I was given a pulmonary test and now was given an albuterol sulfate inhalation solution to treat my lungs for a mucus on my lower lungs. Will do this treatment after my treatment for knee replacement. I understand that shortness of breath is common after OHS. Who knows.

Jill Porter

2 years ago (January 8, 2024)

I had a conversation with my Dr. We agreed that since my SOB is improving slowly, to cancel the tests for now and review again at my next appointment. Thank you for all your thoughts and input. I love having this group to reach out to!!

Richard Munson

2 years ago (January 8, 2024)

I think thats great. Walk before run is good medicene.

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