Starting to get breathless walking around my house, made an appointment to see a dr today(not my usual dr) gave him information for cardiologist and he called them, I got a call from cardiologist and he said he will ring the hospital to see if he can get the surgery date. Don’t know if he will pass on that information though
It’s been 4 weeks since I had my appointment at the hospital and I still don’t have a follow up appointment, I really don’t like being left in the dark, there is only 5 months left in their timeframe so I don’t know what to think. Headache is setting in but I’m off to bed, have a great day wherever you are in the world
For a long time I have been sleeping under 7 hrs sleep, the last week I have been getting over 8 hrs sleep but feel even more tired during the day. It’s getting hard as I wait for my heart surgery date
Today I got my first AstraZeneca vaccine, I have had a slightly higher heart beat but I feel great, will see how I go over the next few days. I was going to wait till after I’ve had my surgery but decided to get it for work purposes
My life changed in a big way last week, I met an amazing man that knows what I’m about to go through when I have my surgery because he has been through it 5 times already since he was a baby, he has become my rock and our connection is incredible. Wasn’t expecting to ever have anyone special in my life ever again and was ready to give up when the one for me was around the corner waiting
One thing I found out when I went to the hospital on Thursday is that I don’t need to have the angiogram that my cardiologist wanted me to have because I had the CTCA and my arteries are in pristine condition, it’s just me valve that needs to be replaced and that should happen within the next 6 months
It’s morning in Australia, I’m at the airport waiting and my plane has just landed
Update posted on...
March 17, 2021
Looks like my appointment tomorrow is going ahead, no cancellation message today.
On another good note I met a fellow heart warrior today and could hear the ticking of his valve, he even brought a stethoscope over so my son could hear the ticking in his heart. It was so great talking to him today and made life a little bit easier
I’ve tried to keep everything together but last night I finally let everything go, the lid came off the bottle and the emotions came pouring out, I’ve never been one to feel depression but I think having my appointment cancelled really set the last few months into over drive. Really don’t like this feeling and I really don’t have anyone around me and had a feeling of being alone even though I have my son I don’t have someone to hold me at night and telling me I will be ok
In Western Australia we haven’t needed to wear a mask much, but we have to when going into the airports and on the plane so I just got an iron on heart for my mask and although I really don’t like the idea of having to wear it I will do it in style
Update posted on...
February 20, 2021
Only a few more days till me trip to the Perth to see my surgeon, it’s going to be hot when I get up there and I don’t do well in the heat right now but it will be a good day
Thanks Adam for the article about obese patients, I have been overweight for years and when I was diagnosed the first thing my cardiologist said to me was go onto optifast (diet shakes, soups and bars) to loose weight, as of this morning I have lost 27kg, this is since September last year, I try going for a walk every day, my surgeon wants me to loose another 13kg before April. Since being on the optifast I have noticed my body chance and things I use to like the smell of, I no longer do, fast foods are the worst, it can be done and I’m hoping to keep going to get to a healthy weight even after I have my surgery
Been reading through the hospital hand book for cardiac surgery that I found on line, it suggests to have throat lozenges to help after the breathing tube is taken out, has anyone tried this? I got some that is already in my hospital bag, at the moment there are only toiletries and a charger plug in there
Little view of a beautiful Aussie summer’s day it’s 22°c which is 72°F if you were wondering the difference
Update posted on...
January 5, 2021
What a difference a few days can make, got a phone call today from another surgeon and if I loose the right amount of weight (14kg) I will be on track to have my surgery possibly in April, I heard that and my world changed. The Dr wants to see me in February to do my weight and plan the surgery. It’s made my day hearing these words
Out for a walk, this is all I’m allowed in the way of exercise
Update posted on...
December 31, 2020
Happy new year Heart Fam, for those like me waiting for surgery hope you get the date your waiting for, my surgeon has a 6 month wait and i don’t want to wait that long so he is sending my details to another surgeon for a sooner date
It’s been a frustrating week, I was booked to have a phone appointment with my surgeon on the 26 dec and again on the 30th dec, both days he was on call and must have been busy on both days and unable to call. I just want this to progress and not be left to deal with my emotions of not being seen to, makes it feel as though I being pushed aside and forgotten. What have I done to deserve this?
I don’t know if it’s part for my condition but I have had a bad cough the last few weeks, not COVID-19, that is contained in Western Australia, I some times cough up thick mucus. Does anyone else get this?
Found it yesterday I was going to see my surgeon this month but it was pushed back due to some emergencies, I’m ok with that but frustrated that I wasn’t told. Really not easy living with aortic stenosis and being a single mum
I know a lot of people on here are in America but how many are in other countries? I’m in Western Australia. I am new to aortic stenosis, I was diagnosed 3 months ago and finding all the helpful videos that Adam has put online has helped me understand this condition so much more. I have looked into all I can and recently I have watched some surgery videos online to see how the surgery is done for both open heart and keyhole.
Thanks Adam for all you have done within the heart valve community