Well recovery took a few steps backwards on Tuesday when I couldn’t catch my breath for a few hours and was sent to the ER. I spent 23 hours in ER waiting for a bed but am finally admitted to the cardiac floor. I have moderate fluid around the lungs so was put on IV lasix. Which seemed to be helping but the echo today still shows moderate amounts of fluid. now I’m waiting for a pulmonary consult. And my brand new heart decided to get the hiccups at the same time so I’m now on full bed rest because my heart rate keeps dropping randomly to the low 40’s. So now I’m also waiting for an electrophysiology consult. But I’m staying positive. I feel better overall than I did last week. The incision is healing nicely and I’m able to stay off the narcotics except at bedtime. Just a few more bumps in the road to recovery.
Day 12 post Ross procedure. Been a much harder recovery than I anticipated. Five days in ICU and then three more in step down before finally being released. Still have a long way to go but every day is better. I will definitely go back and post updates
On the train to NYC headed to Mount Sinai for Preop tests. Can believe the day is almost here
10 Day countdown to Surgery - looking forward to recovery
Journal posted on September 13, 2021
Everyone's suggestions on how to get through the weeks leading up to surgery are so appreciated. I have added many things to my list on how to prepare now. Ultimately though I am putting my faith in God, Dr. Stelzer and his team and know that it will be a success!
It seems so strange to be counting days now instead of weeks or months, but I am finally looking forward to recovery. My sisters, whom I have not seen due to COVID, told me they are going to both travel out to help when I get home. Then a gift from my cousin arrived - something to keep me busy through recovery. A Lego kit of a VW camper microbus. So excited to hug my sisters and build my dream vehicle!
Been trying so hard to stay focused on all the things I need to get done in the next 3 weeks before surgery. I'm also trying to stay strong that this is "no big deal" for my son and for everyone else. I realized though that I'm not doing that great of a job at it the other night when I almost woke my husband to go to the ER. I go to bed late because sleeping is not really that good (can't breath if I lay flat and being propped up on a wedge all night isn't that comfortable) and for some reason I was extremely short of breath even on the wedge. I tried basically sitting completely upright but that wasn't helping and soon I was extremely light headed. My blood pressure was 160/95 so I just went to the couch for awhile until it all settled down. Really scared me. My cardiologist says its probably mostly stress. How does everyone get through these last few weeks leading up to such a major life changing procedure. If I'm being totally honest I am beyond scared yet super excited to be on the other side soon.
Few questions - I'm starting my lists (i cant live without them) on what to pack or have on hand before the surgery. Considering renting a recliner so I have a place to rest on the first floor. Also wondering if the open heart surgery bra's are actually helpful for women. Thoughts?
Have to find a place to stay in NYC for my family while I'm in the hospital. would like something within walking distance to Mount Sinai. I know many people have had their surgeries there so any advice on where to stay or look is greatly appreciated!
Done a TON of research over the last few weeks, mostly through this website and all the information everyone shares. I met with three surgeons all of whom I really liked but 2 of the 3 would do a mechanical valve replacement. I was on coumadin for 10 years and struggled to regulate my INR and had to change a lot of my life because of it, so I really do not want 40+ years more on it. So we took the train to NYC to meet Dr. Stelzer and am beyond happy to say that I am a good candidate for the Ross Procedure! Never thought Id be excited for heart surgery but what an amazing doctor, surgeon and man he is - I almost hugged him! Looking forward to getting my life back soon. Date is set for 9/23 and praying COVID doesn't change that. Now I have a lot of ducks to get in a row - excited and nervous!
While I have known for 16 years I would have to eventually replace my aortic valve, its still a little scary to be actually getting ready to discuss it with a surgeon. I have been asymptomatic until this year and now my symptoms are making life difficult to say the least. Next week is a CTA Chest scan and a meeting with first surgeon at Yale Medical Center. Reading as many stories as I can on this site to gather information on what to expect and ask. Feeling grateful to have found this group!