Will be my 1st year anniversary since getting my new mechanical aorta valve on 21/09/24 I did have a bit of a rollercoaster π’ after op, had wound infection ...Read more
Will be my 1st year anniversary since getting my new mechanical aorta valve on 21/09/24 I did have a bit of a rollercoaster π’ after op, had wound infection & took quite a while to heal but Iβm keeping so well & never out of breath ! Also back to Aqua Aerobics 4 times a week, living my best life β€οΈ So grateful & happy !
Andrea Babcock Happy First Valve Anniversary! So good to read that you are doing so well and wishing you many more h ... Read more
Andrea Babcock Happy First Valve Anniversary! So good to read that you are doing so well and wishing you many more healthy years with your Valve.
Ana Brusso Great to hear from you Iona, itβs been a while. Congratulations on your first anniversary and Conti ... Read more
Ana Brusso Great to hear from you Iona, itβs been a while. Congratulations on your first anniversary and Continued good health. God bless you πβ€οΈ
Rose Madura Congratulations and what a great tree report! π
Wee update as itβs been a while since I posted anything.. My wound is healing well but Iβm still getting it dressed every 3 days, my warfarin level is ...Read more
Wee update as itβs been a while since I posted anything.. My wound is healing well but Iβm still getting it dressed every 3 days, my warfarin level is staying consistent now. Iβm managing 10 minute walks now every day & am feeling stronger.. Iβm 16 weeks on since surgery & then bad wound infection! Feeling so much better & so much more energy ππ₯°π
Jennifer Fuller Good for you! You had a rough time of it. So glad to hear youβre doing better!
Sharon Behl Actually wondering how you were doing, and so very glad to hear you weathered the infection! Hopefull ... Read more
Sharon Behl Actually wondering how you were doing, and so very glad to hear you weathered the infection! Hopefully you will keep feeling better and better!
Valerie Allen So good to hear from you. You really had some bumps. Hopefully the road will be smoother now.
Iona Macintosh Thanks ladies for you good wishes & support π₯° Iβm feeling amazing & so, so grateful I ... Read more
Iona Macintosh Thanks ladies for you good wishes & support π₯° Iβm feeling amazing & so, so grateful Iβve got this 2nd chance of life π₯°π₯°π₯°ππ
Morning Iβm home again & feeling stronger each day π still have vax/suction machine attached to my wound! Still on antibiotics, wound dressed ...Read more
Morning Iβm home again & feeling stronger each day π still have vax/suction machine attached to my wound! Still on antibiotics, wound dressed every 2nd day by community nurses! Feeling positive again!! Itβs been a rollercoaster π’ Thanks again for all your love & support π₯°π
Pamela Gregory hooray! Glad you are feeling a bit better and being home will definitely help that. Take good care o... Read more
Pamela Gregory hooray! Glad you are feeling a bit better and being home will definitely help that. Take good care of you
Valerie Allen Iona, I was ready to drop you a note to be sure you were improving. I am glad you are feeling more po ... Read more
Valerie Allen Iona, I was ready to drop you a note to be sure you were improving. I am glad you are feeling more positive now.
Laurent G Good news, I'm very glad for you, and wish you the best for the next steps
Grace Mason π cheers to being back at home again. It is hard to "do time" again in hospital, so soon after the ... Read more
Grace Mason π cheers to being back at home again. It is hard to "do time" again in hospital, so soon after the surgery stay, I know! Hang on and enjoy every little high on your rollercoaster π’. You are strong and will be stronger soon.
Iona Macintosh Thanks so much everyone for your lovely, kind words of encouragement π₯°π xx
Hey update To leaking wound π§ so they cleaned out area where small hole had appeared & Iβm now on IV antibiotics for 5 days and they have me strapped ...Read more
Hey update To leaking wound π§ so they cleaned out area where small hole had appeared & Iβm now on IV antibiotics for 5 days and they have me strapped up to this awesome machine! Which has suction & clears all fluid & encourages tissue to grow & hole to shut ππ feel secure & relieved theyβve taken me in, cause last 2 weeks have been horrendous with pain & leaky wound!! π€π»π Iβll go from strength to strength & recovery will continue π
Woke last night to my wound leaking clear fluid π’ I sent an email & attached photos of my wound to my surgeon & his team! I got a call this afternoon ...Read more
Marie Myers Hopefully tomorrowβs intervention will fix the problem for you!
Jennifer Fuller Oh, Iβm so sorry! Iβm sure theyβll be able to take care of things tomorrow .
Grace Mason ππΌglad you are getting this attended to right away. It is discouraging to have a set back, ... Read more
Grace Mason ππΌglad you are getting this attended to right away. It is discouraging to have a set back, especially after so many good days. Just focus on the next steps, then the next week, and remember that it is ok to step back until your recovery turns around and you are back on trackβ€οΈβ€οΈ.
Susan Lynn Oh, Iona, I'm sorry you have to go through this. You'll handle it with the same fortitude as your ... Read more
Susan Lynn Oh, Iona, I'm sorry you have to go through this. You'll handle it with the same fortitude as your surgery and be back on track to your recovery. Best of luck to you!
Rose Madura Iona, I'm sorry you are going through this. Having setbacks can be overwhelming. I know, I've had my ... Read more
Rose Madura Iona, I'm sorry you are going through this. Having setbacks can be overwhelming. I know, I've had my share of them. Hopefully they will be able to take care of the issue tomorrow. Please keep us posted!
Ana Brusso Keep your chin-up Iona, you are a heart warrior and you are strong. You are right, they will get you ... Read more
Deena Z Iona, the hardest part is over. Keep reminding yourself that. You made it through the surgery; the... Read more
Deena Z Iona, the hardest part is over. Keep reminding yourself that. You made it through the surgery; the surgery was successful. They got this last "task".
51 days since op.. scar is amazing & drainage sites jst about healed! been a rollercoaster π’ of 2 weeks as pain hit me like a bus π₯² think ...Read more
51 days since op.. scar is amazing & drainage sites jst about healed! been a rollercoaster π’ of 2 weeks as pain hit me like a bus π₯² think we are prone to forget just how much healing needs to happen under the skin! I think the wire, bones & nerve endings decided to start healing all at once as pain was so bad π₯² saw surgeon & he was happy with my progress & lungs & blood tests came back good! So, he said to up my pain killers & carry on doing my exercises & short walks! 2 weeks on pain in now manageable, still on strong pain killers & also antibiotics for a suspected urine infection!
felt very low for a while there but dug deep & trying to get stronger & ππ€π»π all will heal in time & pain eventually subside!
Grace Mason Glad to hear that you are doing well and moving forward in your recovery Iona π I am right the ... Read more
Grace Mason Glad to hear that you are doing well and moving forward in your recovery Iona π I am right there with you. Some days I have no pains and have lots of energy, some days I am really uncomfortable and tired. It is easy to forget that there's still a lot of healing going on inside that you cannot visually see. Wishing you continued healing and more good days then tough ones β€οΈ
DeWayne Adamson Hang in there Iona! Sound like you are in the home stretch.
Delise Becker Glad to hear you got a good report from your surgeon and that you are managing your pain. It is somet ... Read more
Delise Becker Glad to hear you got a good report from your surgeon and that you are managing your pain. It is sometimes challenging to navigate the ups and downs, but listen to your body and rest when you need to. As others have said, this is a normal part of recovery. Best wishes for your continued healing!
Iona Macintosh Thanks everyone π₯° your comments & encouragement means a lot. β€οΈ
Hi 32 days since OHS my recovery has been excellent! But need advice please my wound has healed so well but now Iβm getting pain in my chest like a tightness! ...Read more
Hi 32 days since OHS my recovery has been excellent! But need advice please my wound has healed so well but now Iβm getting pain in my chest like a tightness! Is this my sternum knitting together ? My breathing fine, lungs tip top! Is this something others have experienced??
Rich Butela I'm getting something similar. I'm assuming it's the healing process but I'm going to ask about it T ... Read more
Rich Butela I'm getting something similar. I'm assuming it's the healing process but I'm going to ask about it Thursday when I see the surgeon.
J Alexander Lassally One of the seasoned nurses told me that at 30 days, new pain sensations do happen as the nerves rewir ... Read more
J Alexander Lassally One of the seasoned nurses told me that at 30 days, new pain sensations do happen as the nerves rewire. She said it is to be expected and also temporary. Your fast healing is great
Grace Mason At 6 weeks my chest still feels tight sometimes too, Iona. I try to straighten my posture and take de ... Read more
Grace Mason At 6 weeks my chest still feels tight sometimes too, Iona. I try to straighten my posture and take deeper breaths(and sometimes also on the spirometer to see I'm getting a deeper breath) to help give it a stretch.
When it was tight and I also had other symptoms: HR creeping up daily, harder time walking without SOB, slight wheezing by nighttime and new night sweats I knew it was something more going on. Stay aware of any changes.
Iona Macintosh Thanks everyone! Iβm seeing my surgeon on Thursday so Iβll definitely ask him, Iβm just frig ... Read more
Iona Macintosh Thanks everyone! Iβm seeing my surgeon on Thursday so Iβll definitely ask him, Iβm just frightened Iβve got an internal infection! I think I maybe overdid it yesterday as feeling so well! Iβm going to restup today & up the pain killers ! Thanks for all the comments π₯°π xx
Iona Macintosh Hi saw my surgeon & cardio nurse yesterday & they gave me a good thorough examination & i ... Read more
Iona Macintosh Hi saw my surgeon & cardio nurse yesterday & they gave me a good thorough examination & is sure my bones are fine & wires too! I think because my main wound healed quickly & so well that Iβve overdone it π€¦ββοΈ so painkillers & will get an X-ray & ecg in 3 weeks! it can take so long for internal tissue & muscles, so resting more but keeping up my short walks but will increase distance as ππ€π» pain subsides ! Thanks for all your support! π₯°
Rich Butela Glad to hear you got the good news from your Doc. It's easy to stress over the unknowns.
28 days since my surgery & getting stronger every day π wound has healed amazingly well but drain sites taking a bit longer, nurses using a silver dressing ...Read more
28 days since my surgery & getting stronger every day π wound has healed amazingly well but drain sites taking a bit longer, nurses using a silver dressing which is helping with the healing process! Out walking every day in our lovely Autumn π weather..Feeling so much stronger & no breathlessness! So grateful for my 2nd chance in life !
Thank you all for the warm, lovely encouraging messages π₯° 2 weeks ago today I had my surgery & Iβm doing so well & so grateful! So true about ...Read more
Thank you all for the warm, lovely encouraging messages π₯° 2 weeks ago today I had my surgery & Iβm doing so well & so grateful! So true about the tiredness just sweeps over you & a snooze is required ! Thinking positive & thinking how lucky I am to be getting a 2nd chance in life definitely made me stronger! π
Hi Got home on 28th September, progressing really well π₯° all stitches now out! Taking a bit of up & down of dose of Warfarin to try & get right ...Read more
Hi Got home on 28th September, progressing really well π₯° all stitches now out! Taking a bit of up & down of dose of Warfarin to try & get right level! Still get tired but just feeling so grateful & happy!
Rich Butela You look Great ! A little better every day.
Richard Munson Home is where the heart is. One of My mothers favorite phrases other than donβt touch that.
Pamela Gregory You really look beautiful! So glad things are going so well
Grace Mason Congrats on being home, Iona π‘ You look fabulous! Keep on moving forward with your well recoveryπ ... Read more
Grace Mason Congrats on being home, Iona π‘ You look fabulous! Keep on moving forward with your well recoveryπ Richard, you are too funny π
Valerie Allen Wonderful, Iona! So happy for you. Richard, I agree with Grace π
Rose Madura Glad you are home. Listen to your body. Great picture!
Deena Z Wow, you look great, particularly for having surgery so recently. Don't know how you did it, but kee ... Read more
Deena Z Wow, you look great, particularly for having surgery so recently. Don't know how you did it, but keep it going!
Susan Lynn You look lovely, Iona! You might be tired for awhile. That seemed to be the part of recovery that... Read more
Susan Lynn You look lovely, Iona! You might be tired for awhile. That seemed to be the part of recovery that really lingered for me. Resist the temptation to overdo it on your high energy days. You're doing great so far!
Allen Carkner Happy for you! Hope things continue to be smooth and the warfarin levels become more consistent.
Jeff Williams Awesome. Recovery is by the day, success is measured by the week.
Carolyn Gonzalez So happy everything is going so well with your recovery! You look wonderful!
Sharon Behl Awesome how you have healed so much in 2 weeks. You're an inspiration!
Wires out today! Ecg & X-ray done- all looking good! Canβt believe how well things are going & know itβs early days but so grateful & blessed! Mr ...Read more
Wires out today! Ecg & X-ray done- all looking good! Canβt believe how well things are going & know itβs early days but so grateful & blessed! Mr Doshi( surgeon) & his team are just amazing π₯°
Susan Lynn Iona - You look fabulous! A few less wires and a different background, you'd look like you were on... Read more
Susan Lynn Iona - You look fabulous! A few less wires and a different background, you'd look like you were on a great vacation! It's such a relief when surgery is behind you and your million dollar smile and radiance show it!!! You go, Girl! Show all the folks in the waiting room that they can do it, too!
Pamela Gregory Congratulations! So glad things are moving forward
Rose Madura Welcome to recovery! Time to follow doctors orders and listen to your body.
Klara ΔiΔiΔ Iona you look fantastic! I love the make up and the earrings. I remember how these small things ment ... Read more
Klara ΔiΔiΔ Iona you look fantastic! I love the make up and the earrings. I remember how these small things ment a lot when you feel broken quite literally :) Hope everything stays this well!
Grace Mason You look amazing!! It IS such a great feeling to know you did this and wow I can't believe I feel th... Read more
Grace Mason You look amazing!! It IS such a great feeling to know you did this and wow I can't believe I feel this well. So happy for you Iona.ππ
Rich Butela Looking good. I know it must feel great getting that chest tube out
Iona Macintosh Thanks everyone for your kind comments π₯° Iβm so, so grateful!
Melinda Donahue Amazing. Ever since I was told that mitral valve repair is inevitable (not if but when) I have been ... Read more
Melinda Donahue Amazing. Ever since I was told that mitral valve repair is inevitable (not if but when) I have been consumed with anxiety, fear, etc. This site, you and all of members help so much with every day (minute) that passes. You look fabulous and may your rapid and total recovery continue.
STEPHEN MORRIS I wish I looked that good after my surgery...because I wasn't expecting to go to the hospital (emerge ... Read more
STEPHEN MORRIS I wish I looked that good after my surgery...because I wasn't expecting to go to the hospital (emergency). I didnt even have clothes...wow memories.
Had my surgery for new aorta valve π«mechanical! Everything went went & I got out of icu earlier today & tummy drains now gone & neck drains coming ...Read more
Had my surgery for new aorta valve π«mechanical! Everything went went & I got out of icu earlier today & tummy drains now gone & neck drains coming out later. Been up for a shower with the nurses & walked twice up corridor with physios ππ€π» doing so well so far x
So got a call this afternoon & I go into hospital on Wednesday 21st & OHS on Thursday 22nd ! Iβm so calm but probably because I know I really need ...Read more
So got a call this afternoon & I go into hospital on Wednesday 21st & OHS on Thursday 22nd ! Iβm so calm but probably because I know I really need this op & am so tired!
ππ€π»π it goes ok !
Delise Becker Prayers for a successful surgery and recovery. Glad that you'll be getting your new valve soon!
Marie Myers Wishing you a smooth surgery and recovery!
Grace Mason Sending many well wishes and prayers your way. Glad to hear you are feeling calm, that is a good thi... Read more
Grace Mason Sending many well wishes and prayers your way. Glad to hear you are feeling calm, that is a good thing
Rose Madura Praying for a successful surgery and uneventful recovery.
Cathleen Weed Prayers for your surgery I see you're from Scotland!! I lived there for 3 NFL Europe football seaso... Read more
Cathleen Weed Prayers for your surgery I see you're from Scotland!! I lived there for 3 NFL Europe football seasons when I was in my 20's. First in Edinburgh and then in Glasgow. So incredibly beautiful with such kind people . I'll be thinking of you this week and sending positive vibes from Southern California! xo
Rita Savelis Calm is good. All you have to do for surgery is show-up
Iona Macintosh Just at π₯ waiting to go to ward! Still feeling calm.. ohs still scheduled for tomorrow ππ€π ... Read more
Iona Macintosh Just at π₯ waiting to go to ward! Still feeling calm.. ohs still scheduled for tomorrow ππ€π»π so need it now as getting so tired!
Thank you all so much for all your kind wishes xx
Robert Miller Maybe I am too tired but today is Thursday 9/21/23. So the 22nd would be Friday and not Thursday. Any ... Read more
Robert Miller Maybe I am too tired but today is Thursday 9/21/23. So the 22nd would be Friday and not Thursday. Anyways, good luck with your surgery. All you will do is sleep for a few hours while the surgeons do their magic...
Cathleen Weed Robert, she's in Scotland...a day ahead.
Robert Miller In Scotland, Thursday should still be 9/21/23... Anyways, technicality, or time-icality or whatever.... Read more
Robert Miller In Scotland, Thursday should still be 9/21/23... Anyways, technicality, or time-icality or whatever. As long as Iona showed up on the right day and time all is good... And no earthquakes during surgery (just had a small one 2 miles away a couple minutes ago...)
Cathleen Weed Depends on the time she posted...I have no idea about that. I lived in Scotland for a few NFL Europe ... Read more
Cathleen Weed Depends on the time she posted...I have no idea about that. I lived in Scotland for a few NFL Europe seasons. My husband is from the SF area (Walnut Creek). Down here in Los Angeles, I always think about an earthquake during surgery too lol.
Iβm having OHS in next 2 weeks for aorta Stenosis- Iβm 58 active til lately a big girl but fit! Iβm frightened of the op! Nit pain but tube down throat ...Read more
Iβm having OHS in next 2 weeks for aorta Stenosis- Iβm 58 active til lately a big girl but fit! Iβm frightened of the op! Nit pain but tube down throat & recovery π’π’
Robert DeVita Not sure if it helps but I don't even remember the tube as they took it out before I regained full co ... Read more
Robert DeVita Not sure if it helps but I don't even remember the tube as they took it out before I regained full coherence. My son told me I was answering him with thumbs up type of responses but I don't even remember them taking it out!
Sharon Behl Same here, I don't remember the tube going in or coming out. Yes, my throat was sore and voice scratc ... Read more
Sharon Behl Same here, I don't remember the tube going in or coming out. Yes, my throat was sore and voice scratchy, but after some honey and a few days of healing, all better. Recovery is no picnic, but if you're fit going into the surgery, then you'll find healing so much easier!
Alice Williams You'll be unconscious when they intubate you. I have the vaguest memory of it coming out. I was anxio ... Read more
Alice Williams You'll be unconscious when they intubate you. I have the vaguest memory of it coming out. I was anxious about a couple of other things before surgery, but they were no big deal either. I only took pain pills for the first 4 days. I did have issues with nausea and anemia and my heart rate is still high after 5 months. Even with all that, I was able to say that every day is better than the day before.
GARY STANKO My main concern was the tube also. I just concentrated on my breathing when I woke up. They had it ... Read more
GARY STANKO My main concern was the tube also. I just concentrated on my breathing when I woke up. They had it out very quick and it was a non event.
Ana Brusso Iona, you are fit and you will do well. I will be praying for your successful surgery and recovery. G ... Read more
Ana Brusso Iona, you are fit and you will do well. I will be praying for your successful surgery and recovery. God bless you. I, like most of these heart warriors, donβt remember the tube at all. πβ€οΈ
Iona Macintosh Thanks everyone for your comments π I feel reassured all will be ok π
Robert DeVita Iona.., not sure if you read the post by Deb Michalowski but it will leave you at ease. I had Aortic Valve replacement earlier this year and I found her very detailed description to be very accurate! Good luck!
Hi appointnent next week with surgeons ! open heart surgery date to be given then π again is there anyone who had had ohs who has a high bmi ...Read more
Hi appointnent next week with surgeons ! open heart surgery date to be given then π again is there anyone who had had ohs who has a high bmi but is quite fit! Iβm a larger lady but swim everyday & my lungs etc in great order π
Valerie Allen Iona, I was just reading a couple articles about the AMA thinking that focusing so much on BMI has be ... Read more
Valerie Allen Iona, I was just reading a couple articles about the AMA thinking that focusing so much on BMI has been detrimental, rather than overall health. Of course, your doctor would be able to answer your questions best. I also have extra weight and will be questioning mine as well.
Iona Macintosh Yes bmi seems to be used a lot but Iβm fit although fat π€¦ββοΈ
Hi Had an appointment with Tavi surgeon & he says with my anatomy itβs very tricky plus he thinks I should go for OHS.. oHs surgeons now says yes ...Read more
Hi Had an appointment with Tavi surgeon & he says with my anatomy itβs very tricky plus he thinks I should go for OHS.. oHs surgeons now says yes but recovery might take a long time as Iβm a large lady π³ but fit In all other areas kidneys, lungs, liver etc so π I will get OHS Sept/October as Iβm not critical .. any larger people who have had OHS & got on well? Iβd love to hear from you π
Allen Carkner I hate to speak on someone's behalf but my uncle who had his second aortic valve replacement 5 days a ... Read more
Allen Carkner I hate to speak on someone's behalf but my uncle who had his second aortic valve replacement 5 days after my first has recovered pretty smoothly. He had a bicuspid aortic valve, did a tissue for 8 years, then needed another and did a mechanical valve. He is a pretty big guy and has done well. It was strange to need our surgeries so close together but was nice to have the shared experience.
Iona Macintosh Thanks so much for your comments! Hope ur both keeping well ..
Can anyone advise how they feel after Tavi procedure, pain, energy, tiredness ??
How long was it until you felt better? Anyone had the ...Read more
Can anyone advise how they feel after Tavi procedure, pain, energy, tiredness ??
How long was it until you felt better? Anyone had the Tavi more than 6 years ago & are you still feeling fine ?
Susan Lynn Iona - I'm hoping one of our folks who have had aortic valve replacement will reply. I'm a mitral v... Read more
Susan Lynn Iona - I'm hoping one of our folks who have had aortic valve replacement will reply. I'm a mitral valve repair heart warrior, but I think the issue is two fold with someone of your young age. Surgeons like to put in a large valve if you're getting a bio material because these valves - even the new and improved ones - have a limited lifespan. The second procedure when another valve is needed, the trancatheter 'valve-in-valve' procedure is often the choice to avoid a more invasive entry. The first valve has to be big enough in diameter to accommodate the second valve, however. Younger patients here in the US can initially get the TAVR - it was previously only offered to high risk patients who couldn't undergo surgery - but in the UK, they may not have adopted that approach for a 58 years young woman. Most of these valves will easily last 6 years, but they will require a replacement within your lifetime. Best of luck to you.
Would really like to hear from anyone around 58 - 65 who have had the Tavi procedure
DeLois Tweedy I had a TAVR procedure in June 2020 to replace aortic valve. I am high risk and could not tolerate OH ... Read more
DeLois Tweedy I had a TAVR procedure in June 2020 to replace aortic valve. I am high risk and could not tolerate OHS. I had just turned 65 about 2 months prior. I have been told and always have heard that tissue valves last 10 to 20 years and tissue vs mechanical valve is used more for older patients. Everyone is different and it is always best to discuss things with your doctor. This is a great site for education and discussion/encouragement with others on this "heart journey". Feel free to ask questions. Best wishes as you make these decisions with your doctors.
Civita Fahey I didnt have a TAVR as I was too young also. I've had my bovine valve now for 6 years. Doing well. T ... Read more
Civita Fahey I didnt have a TAVR as I was too young also. I've had my bovine valve now for 6 years. Doing well. They did say they last anywhere from 10-15 possible 20 years. So, I guess its the chance we take. 6 years sounds very low. I know there are people on this site that have had their bovines for more than 6 years. I'm banking on a long time and a TAVR when it needs to be replaced. I was almost 56 when I had my OHS.
Patsy Stewart I had a TAVR in December of 2020 after an unsuccessful OHS in November 2020. I was and am very thankf ... Read more
Patsy Stewart I had a TAVR in December of 2020 after an unsuccessful OHS in November 2020. I was and am very thankful that the TAVR was a success.
Iona Macintosh Many thanks for these comments β€οΈ Iβm meeting with Tavi Team on Monday π€π»ππ€π» I h ... Read more
Iona Macintosh Many thanks for these comments β€οΈ Iβm meeting with Tavi Team on Monday π€π»ππ€π» I hope they will do this procedure on me soon ! Iβll keep you all posted!
I did have a bit of a rollercoaster π’ after op, had wound infection ...Read more
I did have a bit of a rollercoaster π’ after op, had wound infection & took quite a while to heal but Iβm keeping so well & never out of breath ! Also back to Aqua Aerobics 4 times a week, living my best life β€οΈ
So grateful & happy !