I've been away for a while been mostly on the Facebook page but wants to update my situation , as most know I had my MV and Tricuspid repair surgery on feb ...Read more
I've been away for a while been mostly on the Facebook page but wants to update my situation , as most know I had my MV and Tricuspid repair surgery on feb 20 now 6 mo later , I had an Echo yesterday and im back with Mild Mitral Valve Regurgitation , Im not happy and im disappointed with the Dr. who was suppose to do it in looking at the procedure notes it appears that the Fellow di the surgery , the notes also say that the valve was inspected post reair and it was fine , 3 days later I had my 1st echpo and there was a leak i was told it should improve as the heart mends well it hasn't im so disappointed to think I may have to do this again , has anyone had to go back in to re-repair a bad repair , let me know how you made out
Valerie Herndon-Vitarella I had to have a re-repair because the valve started leaking around the annuloplasty ring where a coup ... Read more
Valerie Herndon-Vitarella I had to have a re-repair because the valve started leaking around the annuloplasty ring where a couple of stitches pulled through. 1 year after the re-repair I still have mild 1+ regurgitation and hopefully this will not worsen to the point of needing another surgery. My cardiologist seemed happy with the last ECHO, I am off the metoprolol and will see him in another year for an ECHO. Valve disease is progressive, so it is something they will always need to monitor. Since you are only mild, try not to worry too much.
Susan Lynn John - I understand your concern. Stay optimistic - much to my initial surprise, I had mild regurg ... Read more
Susan Lynn John - I understand your concern. Stay optimistic - much to my initial surprise, I had mild regurgitation for decades before it progressed any further. Many people live with it their entire lives without any problems. I think a lot of mv repair patients have some, and the objective is to reduce the amount and risk with surgery. Hopefully, you will have many decades of good health!
Marie Myers I don’t believe that “mild” regurgitation is necessarily something that has to be fixed.What di ... Read more
Marie Myers I don’t believe that “mild” regurgitation is necessarily something that has to be fixed.What did your cardiologist say?
Gregory Ballard Many people live with regurgitation for a long time. I'm sure they will watch it. I had a not so go ... Read more
Gregory Ballard Many people live with regurgitation for a long time. I'm sure they will watch it. I had a not so good surgery in 2011 which led to 2 additional OHS weeks later until I finally found new Doctor to get it right. Don't get discouraged.
Rose Madura I know it can be frustrating but I agree with the others. I had mild regurgitation for most of my li ... Read more
Rose Madura I know it can be frustrating but I agree with the others. I had mild regurgitation for most of my life. Don't worry unless it gets severe. Then I'd probably go with a different surgeon.
Rose Madura I know it can be frustrating but I agree with the others. I had mild regurgitation for most of my li ... Read more
Rose Madura I know it can be frustrating but I agree with the others. I had mild regurgitation for most of my life. Don't worry unless it gets severe. Then I'd probably go with a different surgeon.
Rose Madura I know it can be frustrating but I agree with the others. I had mild regurgitation for most of my li ... Read more
Rose Madura I know it can be frustrating but I agree with the others. I had mild regurgitation for most of my life. Don't worry unless it gets severe. Then I'd probably go with a different surgeon.
Rose Madura I know it can be frustrating but I agree with the others. I had mild regurgitation for most of my li ... Read more
Rose Madura I know it can be frustrating but I agree with the others. I had mild regurgitation for most of my life. Don't worry unless it gets severe. Then I'd probably go with a different surgeon.
Rose Madura I know it can be frustrating but I agree with the others. I had mild regurgitation for most of my li ... Read more
Rose Madura I know it can be frustrating but I agree with the others. I had mild regurgitation for most of my life. Don't worry unless it gets severe. Then I'd probably go with a different surgeon.
I pray you get some acceptance of your heart current issue. As you read here others have gone thru it ... Read more
I pray you get some acceptance of your heart current issue. As you read here others have gone thru it again and they are still with giving other encouragement. Stay positive and find a new doctor. Lifting you in prayer for peace, acceptance and comfort.
Unrealistic Expectations After OHS
This may get lengthy, but I wanted to share my thought and feelings with the group who will hopefully understand my thoughts ...Read more
Unrealistic Expectations After OHS
This may get lengthy, but I wanted to share my thought and feelings with the group who will hopefully understand my thoughts ..
Ist off I'm 65 , I’ve had heart issue for many years primarily Afib since 1991 , I had mild Mitral Valve Regurgitation for the past few years in 2017 I was diagnosed with Prostate Cancer and did my selected treatment which concluded with Radiation which was completed in June of 2018. I had been having some shortness of breath, but it escalated to severe shortness of breath and heart pounding literally out of my chest, fast forward to Dec 10, 2018 and two echo’s later was diagnosed with severe Mitral valve Regurgitation, and Tricuspid regurgitation .
My Cardiologist said I needed OHS sooner than later , as you all know there are no other option , and referred me to a surgeon in NYC, being a veteran I have very few options but the surgeon they referred me to had 37 years of experience and specialized in Mitral Valve repairs. I met him and felt pretty confident after speaking to him. I know the VA Hospitals have a bad reputation but I have always had good service and care there , so after a TTE and cath they also discovered that one of my leaflet cordele had ruptured and this was the primary reason things went south so fast, they assured me after the surgery thigs would greatly improve and I’d be a new man. Ummmm ok
I can’t express enough to anyone the mental and physical stress of OHS, and what you endure pre and post-surgery it has changes my life in that regard, how I think how I feel , I worry about everything that is happening and might happen so im one of them, but to me I have just reason.
I am now 3 months post-surgery of my Mitral & Tricuspid repair , atrial appendage clipped , pacemaker lead severed , and a few other things done ,they could not fix my afib as the dr said there was quite a bit of scaring in my heart , while I am not huffing and puffing and my heart is not pounding out of my chest like prior ,I still feel really short of breath I actually think its gotten worse in the last few weeks, I also developed what they said were ocular migraines my eyes go out of focus and I get a headache a weird feeling to see things out of focus it doesn’t last long , or let you know when its coming but you know when it, I also had a foggy light headed feeling that has now mostly gone away thank God, my eyes at times feel like they o heavey I cant keep them open so I called the cardio and told here all of this and she said let do an echo I was worried something went wrong with the repairs , they did an Echo and they said I had faint to mild Mitral Valve Regurgitation but noting that would cause any of this so
Are you post OHS and dealing with weird things happening that didn’t happen before, are you like me and were hopefully that things would greatly improve I'm told be patient , I know this I'm only 3 months but I come to realize that having OHS is a life changing experience it is to me I live in my world not of pity me but , having to come to terms what I have been thru , these groups help immensely as I come to know I'm not alone some of us bounce back greatly and I'm jealous of all those I see lifting weights and looking good and I sympathize with those who are struggling with various post issues like me so that’s my story I'm not overly religious but I do pray that God , helps me get back on track I’ve been through a lot of medical issues past few years I just want a break so I can have my normal like again .
Thanks for reading
John
Joey Hardee Hey John. Man I am so sorry its been slow going and you are dealing with so much junk. I know it has ... Read more
Joey Hardee Hey John. Man I am so sorry its been slow going and you are dealing with so much junk. I know it has to be crazy frustrating. I am not post OHS, quite yet. I haven't gotten there but I know its a very, very real possibility I will deal with a slow or stagnant recovery time as well. I have ocular migraines now, and have had them off and on since I was a teenager. I was actually hoping my more efficient post-OHS heart may help with them. Mine come on suddenly and feel like my fields of vision are crossed. Lasts 45 seconds to 2 minutes sometimes. It is not always followed by a headache. Sometimes its just the visual disturbance. I'm not sure my aortic regurgitation is a cause or contributing factor. Who knows? It might be worse after surgery or surgery may have no effect at all. The only thing I can say that might be encouraging to you is that it sounds like you had a lot done. I remember thinking that back when you went in for surgery, even though it doesn't seem that long ago. It may be slower for you than others with all that was done. I hope and will be praying you turn a corner soon and start getting better. Please keep us updated with how you are doing.
Marie Myers My ocular migraines were much worse for months after OHS. It took 8-9 months for them to decrease. No ... Read more
Marie Myers My ocular migraines were much worse for months after OHS. It took 8-9 months for them to decrease. Now at 2 years they are a rare event. They should get better.
i am also 65, and my body is not quite the machine it was in the past. I still do worry a little more about even vague signs and symptoms, because OHS is a life-changing experience. I also don't enjoy doctor visits so much anymore , cuz I wonder what might they find next! Part of all this is just trying to accept the whole aging process, I guess.
I had a pretty uneventful recovery, but it was not a walk in the park. Best advice I can give you is try to be patient with yourself and your doctors. But if something does not seem right, or continues to get worse, I would seek another opinion. Hope that helps.
Scott Ainsworth Hi John, I too had Afib and flutter issues after my OHS in March of this year. It got worse for me we ... Read more
Scott Ainsworth Hi John, I too had Afib and flutter issues after my OHS in March of this year. It got worse for me week by week and left me bed ridden with several admissions to emergency. I would be down to below 40 beats per minute and then if I rolled over in bed I would hit 140+. Two weeks ago we did a TOE and Cardioversion which held sinus rhythm for nearly a week. The TOE showed bad scar tissue to the heart from the OHS and so last Friday I went under a general anaesthetic for a few hours and had Cardiac Ablation where from how I understood it, destroyed the surgical scar tissue and then burned a new ‘runway’ with new scar tissues to keep the pulses on a correct path. I was out Saturday morning and outside of some groin pain and swelling in chest, it’s the first time I have not been out of breath and feeling positive. It may be a solution to look into mate.
Barbara Wood I'm sorry recovery is going tough for you John, but I do think 3 months is really still very early. A ... Read more
Barbara Wood I'm sorry recovery is going tough for you John, but I do think 3 months is really still very early. And the aftermath of cancer treatment is so stressful, body & mind - I'm a survivor too but mine was 9 years ago- having heart surgery on the heels of that is hard for me to even imagine! I had the eye stuff, some double vision & occular migraines for at least 6 months after surgery. I had afib before my surgery & had a successful maze procedure along with my repair, but I had to find a surgeon who was qualified to do both - not all are. I agree with Scott, I would ask about having an abalation after the fact. Hang in there & best wishes!
Rita Savelis You deserve a break John. I relate to all your feelings 3 months after surgery. I still was out of br ... Read more
Rita Savelis You deserve a break John. I relate to all your feelings 3 months after surgery. I still was out of breath. I still am sometmes. It wasn't until well over a year after OHS that I felt better. And then I had cancer again. For the 3rd time. Heavy sigh. I want you to get the break you deserve. And i validate that what you are feeling is what many feel after OHS. It's a long process and there is a lot to process and a lot to get used to. And you just want to move on with no more health surprises around the corner. Take care. Keep writing in the honest way that you do.
Mike Roskowinski Hey John I am sorry to hear that you have gone through so much in your recovery. Going through two ma ... Read more
Mike Roskowinski Hey John I am sorry to hear that you have gone through so much in your recovery. Going through two major medical events must be hard and tough on the body. I pray that things get better for you in the weeks to come. Hang in there buddy.
Thomas Brusstar Before my OHS in July 2018 I got ocular migraines like once a year, but now I get them regularly, may ... Read more
Thomas Brusstar Before my OHS in July 2018 I got ocular migraines like once a year, but now I get them regularly, maybe once a week. Especially after I exercise. I'm hoping they diminish. I don't usually get a headache, just the vision disturbance that lasts like 10 minutes and kind of migrates or shifts during that period. I'm hoping Marie is right that they eventually become rare.
Mava Reif You have been through so much in the last couple of years! My heart goes out to you! You have had so ... Read more
Mava Reif You have been through so much in the last couple of years! My heart goes out to you! You have had so many set backs, and it's all so discouraging. Prayers for you to find peace & healing.
Welll it's 5+ Weeks post my OHS for Mitral , tricuspid, repair atrial appendage clip, I was told id be a new man well im still 64 , I was hoping all this shortness ...Read more
Welll it's 5+ Weeks post my OHS for Mitral , tricuspid, repair atrial appendage clip, I was told id be a new man well im still 64 , I was hoping all this shortness of breath and huffing and puffing would go away surprise its still here, I climb 6 steps and im out of breath, i have been doing my breathing and walking everyday, amd im still where I was before they cracked my chest open … so i know why I did all this .. but why if im back where i started. adding to it this foggy felling in my head now all the time and headaches. This is not what i was expecting but i guess they say its still only 5 weeks since. You kinda get fooled by seeing some of our brothers and sisters doing so well here hitting the gym , lifting weights and running . guess I wasn't on that list. Just want to feel better than i was before all this .
Darren Ketchley I know how you feel my friend. It is very early days. There is so much inflammation and youre heart h ... Read more
Darren Ketchley I know how you feel my friend. It is very early days. There is so much inflammation and youre heart has had major trauma. Do you gat Afib? The healing process of OHS can be 12 months you should get noticable improvements from 3 months but its a process you cant rush. Its extremley hard mentally going through heart surgery as well as emotional. Im at 9 months now and i have come a long way but i now have afib and some other issues so the battle continues. Good luck
Marie Myers Everyone's recovery is different, and everyone progresses differently. Try not to judge yourself and ... Read more
Marie Myers Everyone's recovery is different, and everyone progresses differently. Try not to judge yourself and your recovery. Believe me, I had a fairly easy surgery and recovery, but it was not perfect. I had good days and bad days, strong days and weak days, tearful days and confident days. It really was a roller coaster at times. Try to be patient with yourself, and not judge yourself so harshly. It really is a process. And you really had a huge surgery! .Wishing you peace...
Jill Mullikin Hang in there John! My son was 19 when he had his aortic valve and aneurysm surgery and he’s just ... Read more
Jill Mullikin Hang in there John! My son was 19 when he had his aortic valve and aneurysm surgery and he’s just now really resuming normal activities. It takes time for your heart to remodel and for you to trust your heart. Any heart surgery is a second chance!
Dan Baltazor 5 weeks is too soon John. Hang in there, you’ll get better and feel better. For me, I didn’t fe ... Read more
Dan Baltazor 5 weeks is too soon John. Hang in there, you’ll get better and feel better. For me, I didn’t feel like a brand new man until 4 1/2 months. It just started to kick in and you’ll get there too.
Louanna Miller I learned that we are all very different physically and our recovery is different. I was told I’d ... Read more
Louanna Miller I learned that we are all very different physically and our recovery is different. I was told I’d be in ICU 1 night then go to a the cardiac floor; nope not me, 2 nights and 2 days in ICU. I was told I’d go home on day 4; nope day 10. Was told pain would be about a 4; nope mine was 10+ in ICU and 6-7 for 5 days. I was an outlier on recovery and I did not need to be a superhero or superwomen. John, take it one day at a time. When I was in ICU I recall just making it through moment by moment trying to tolerate the pain. I, too, thought something was not right because everyone elses recovery progressed so much quicker. At 6 weeks I felt okay, but still weak and easily tired. I did not start cardiac rehab until week 9. The 3 month mark I finally had some ability to walk longer and breath better. I’m 7 months and what a huge difference. I’ve had many surgeries, but NONE compare to OHS. It’s traumstic in the heart, mind and body. I was told the heart must recover from being poked, stitched and even touched by human hands. It’s all a process, a long process.
Be gentle with yourself and listen to your body. You will get there.
Gregory Ballard Do you have appt. for 6 week follow up with your cardiologist or electrophysiologist ? Could it be ... Read more
Gregory Ballard Do you have appt. for 6 week follow up with your cardiologist or electrophysiologist ? Could it be your pace maker settings? They may need to change settings after surgery if they haven't already. Good luck brother. hope you get feeling better soon.
Don Brown Dear John... I like the fact that u are a real person going the real trials and pain and feeling like ... Read more
Don Brown Dear John... I like the fact that u are a real person going the real trials and pain and feeling like a fish out of water.. I know that 5 weeks feels like 5 years to us from OHS. I have been noticing that there are lots of OHS stories where they come back like super heros and feel re born and are positive 200% everyday on every posts.. And that is great for them and they need to tell there recovery stories so that those who can relate to them feel positive too... That being said... I have noticed i get less comments and last guestbook sign ins or notes when i post the bad stuff i been going through.. I would hope that this world of OHS also has a even scale for us that dont feel postive in our recovery and just need to see that one post in 100 that they can say that they.feel the same as them.. Once we relized we.arent alone in our.trials we feel better and feel safer that we can share the bad parts of OHS also. I hope as always i dont disrespect anyone on here by saying it this way... Now john.. No.to scare the hell out.of.u but im getting ready for.my.3rd OHS for another tricuspid valve transplant OHS.. And i felt the same after.my second with the breathing the steps the 20 ft walk and sit style that u know too. After.three years of.my.doctors saying i was okay and it was normal and will be better soon. After 3 years i had to get a second opinion and now felt like i wasted 3 years...im only 46 years old.. I started my first OHS at 38.. Im not.saying that u will be the same as me.but.know my OHS brother i know exactly how you feel and i hope that all that pain and dark parts get better for you.. Just know.u arent alone and please stay on your doctors about.whats up with u.. Dont waste three years like.i have. You are a survior and thats a great feat for anyone. Im just happy.you kept it real in ur.post. sorry if this was long but just wanted you to know u were not alone. God Bless u and ur recovery..ty
Mike Roskowinski Good luck John. It sucks to hear you are not where you want to be but keep talking to the doctors and ... Read more
Mike Roskowinski Good luck John. It sucks to hear you are not where you want to be but keep talking to the doctors and pushing through. I have faith you will get there soon
John Morales Thank you to everyone who has replied I feel it is important for us tp be able to share openly how we ... Read more
John Morales Thank you to everyone who has replied I feel it is important for us tp be able to share openly how we feel as only we really know what we have been thru. it is hard to mentally and emotionally express the hurt and pain. I have to say prior to this OHS I battled Prostate cancer for the past year and to have this follow like i was next in line was very traumatizing . ihve had this lightheadedness foggy feeling since before the ohs and was hoping it was related maybe it is and now im thining maybe it isn't life is a challenge but sometimes im sure we all wish we could catch a break that's how i feel ill keep pushing along and keeping positive thanks again we are all family.
Barbara Wood Wow, 5 weeks is so early! My personal experience is that it took me close to a year to really feel pr ... Read more
Barbara Wood Wow, 5 weeks is so early! My personal experience is that it took me close to a year to really feel pretty close to back to normal - both physically & emotionally. This was close on the heels of your cancer treatment, so you're really dealing with 2 major traumas at once. Some of your symptoms might be the result of your medication too. Run it all by your doc, & know that it takes time, but it does get better:)!
Rita Savelis John. I feel for you and I understand how you feel. It's still so early for you. And no one needs can ... Read more
Rita Savelis John. I feel for you and I understand how you feel. It's still so early for you. And no one needs cancer and then OHS. Those of us here who have had both have much compassion for you. I second everything Louanna wrote. So much happens that is unexpected. Every experience is singular. OHS can be brutal. Wishing you some peace. Take care. You don't deserve any of this. You'll get through it.
Tee Ad John your X-ray from March 27 looks like you had a pleural effusion. Did you get it treated? I have t ... Read more
Tee Ad John your X-ray from March 27 looks like you had a pleural effusion. Did you get it treated? I have that and it makes my breathing difficult.
Hi everyone its been a while as i have been participating on the Facebook group I feel like im making progress i still get short of breath , and tired but ...Read more
Hi everyone its been a while as i have been participating on the Facebook group I feel like im making progress i still get short of breath , and tired but im told its only 5 weeks hopefully ill start my Cardia Rehab soon and hope that helps, I found it Strang that after my surgery every time I talk to a Dr. I find out something new that happen during the surgery so i went on line i look at what they did as follows.
Mitral valve repair, reduction annuloplasty neochordae, Mitral ring B815747, 30mm, Tricuspid annuloplasty with implantation of anterior leaflet Ticuspid repair with implantation of 30 contour 3D tricuspid
annuloplasty band Exclusion and eliminiation of LA appendate with placement of Atricure clip Removal of thrombus mass ( ventricular lead)
Removal of intracardiac portion of Atrial pacing lead Closure of ASD
so that's what they actually did, im feeling ok but have not excertid myself at all in my 5 weeks I am now walking about 5-6000 steps on my fitbit just trying to get out and walk ill post a few images after this , but glad to be alive Dr said im doing great I told her i need to feel great.
Today is two weeks since I had my OHS , Mitral & Tricuspid Repair, my atrial appendage was clipped ,but they were unable to fix my afib as I have alof of scaring ...Read more
Today is two weeks since I had my OHS , Mitral & Tricuspid Repair, my atrial appendage was clipped ,but they were unable to fix my afib as I have alof of scaring form previous attempts I kinda assumed this would be the case ..
So why do i almost feel worse than i did before . part of my right hand is now numb and weak when i asked them about it they said , it was probably because of how my arm was tied down during the surgery , and said it should go away in a few months Should I don’t like that word.
I don’t have any energy literally , and the lightheadedness I had prior to the Surgery is still here ,that was the one thig I was hoping would go away, it hasn’t , so what do I do all day not that I'm home not much I use my Incentive Spirometer pretty religiously, its cold outside here in NJ so I'm not going outside to walk or anything so I try to walk around my living room . I don’t have alto of pain from my sternotomy, but I'm being cautious, So am I expecting to much my cardiologist called yesterday and reminded me this is a major, Major operation and I need time and patience I know everyone is different but I was hoping like some I see here I would be improving and getting better and feeling like a new man (nope) . Im grateful to be alive and made it thru the operations , and hopefully in a few months ill feel much better but for today I feel empty and like S ……so I come here to share with those who have been where I have . hopefully im not alone in these feelings. Also having trouble keeping food down looks like after every meal i get dirreah anyone else have stomach issues.
Sommer Russell John- I can tell you that my right arm and shoulders hurt so badly after surgery and was told the sam ... Read more
Sommer Russell John- I can tell you that my right arm and shoulders hurt so badly after surgery and was told the same thing that it would go away and likely from the way I was positioned. The cutting into my body and the nerves that were severed- it really caused havoc across my chest (I'm trying to say that nicely). It felt like pins and needles across my chest. Suddenly, one day last week, I realized that the electric sensation was gone. I think as things are healing it gets worse before better.
As far as symptoms, I just wrote a journal entry about my post-op issues and won't take up your post with my problems, but the cliff's note version, I feel faint upon standing, SOA, and suffer with Sinus Tach now. I have no answers insight. I am 14 weeks post OHS. The one thing that is the constant on all of those complaints is to do cardiac rehab and metoprolol. So, I am trying really hard to cardiac rehab and make myself go, even when I don't want too. I so had the very same hope of feeling like a new wo'MAN, but I can't say that is so. But, once every couple of weeks I have an outstanding day. Like, better than I have EVER felt. I have high energy, everything is running as it should, and I can breath. Those days are my goal. I want that feeling everyday!
Susan Lynn John - Thank you for the update! Two weeks is pretty early into your recovery. Of all the things I ... Read more
Susan Lynn John - Thank you for the update! Two weeks is pretty early into your recovery. Of all the things I remember, the exhaustion definitely was one of them. Keep walking and building up your endurance. It will get better. Plus, you're probably still on many of the post-operative medications or you have some still working their way out of your system. I felt lightheaded upon standing until I was able to get off the beta blockers. Give yourself some time and keep looking to better days ahead!
Marie Myers 2 weeks is very early in your recovery. Gotta be a patient patient.. It really is a HUGE operation th ... Read more
Marie Myers 2 weeks is very early in your recovery. Gotta be a patient patient.. It really is a HUGE operation that you went through, and will take time to feel better. You will notice slow, positive changes. Try not to judge your recovery. A year from now, you will realize what a big surgery this was, and you will be amazed how you have improved. Keep the faith!
Rob Sparling John, you are going to get there! Stay focused and listen to your body. Two weeks is really just the ... Read more
Rob Sparling John, you are going to get there! Stay focused and listen to your body. Two weeks is really just the beginning and is the very early innings. (We can say that, baseball season is around the corner!) Measure your positive progress, too! You might be surprised at how much you have accomplished! Keep pushin’ brotha!
Thomas Brusstar I can tell you that the mega antibiotics in the hospital gave me bad diarrhea. Antibiotics always do ... Read more
Thomas Brusstar I can tell you that the mega antibiotics in the hospital gave me bad diarrhea. Antibiotics always do, strong ones even more (yes, diarrhea in the hospital when getting out of bed hurts was not fun). It gets better slowly, but I actually found making fruit smoothies (strawberries or blueberries or whatever) with Kefir helped. Kefir is like a liquid yoghurt with tons of active cultures. Tastes basically like plain yoghurt, which is fine.
Mava Reif Glad to hear from you, even if you're miserable. I would say that what you're describing is a pretty ... Read more
Mava Reif Glad to hear from you, even if you're miserable. I would say that what you're describing is a pretty accurate picture of things for a lot of people at that point in their recovery. Unfortunately, you had a much more extensive surgery than some others who are breezing through recovery. Mine wasn't half of what you had done, but I would say I felt like you do at that point. My life was consumed with just surviving each day & endlessly painful nights. I won't go into things here, but your post is very accurate with how I felt. Much worse than before surgery. But I was encouraged to put all expectations on hold, while I just aimed to be kind to my body & spirit. Taking more pain meds & not trying to wean myself off was a big point for me, & letting go of anyone else's recovery, too. You're right on track! Your body is slowly repairing, not only the good that was done for your heart, but the trauma they had to put you through to get there. Be patient! Your body is doing miracles of healing right now, all by itself. You will feel better! God bless your recovery.
Meredith Bray Can you get out of the house and be around people at all? I was able to hitch a ride to the mall seve ... Read more
Meredith Bray Can you get out of the house and be around people at all? I was able to hitch a ride to the mall several times during my recovery. It's a great place to walk - warm, dry, things to look at, benches to sit on, and a food court. My digestive system didn't really get back to regular for a few weeks. All the anesthesia and pain management chemicals can really wreak havoc on regularity. Also, you're on an emotional roller coaster right now, keep that in the back of your mind that it WILL get better each day!
Meredith
Holiday, FL
Rita Savelis Everything you describe is normal. It's all hard. Recovery is hard. It's exhausting. I certainly didn ... Read more
Rita Savelis Everything you describe is normal. It's all hard. Recovery is hard. It's exhausting. I certainly didn't feel "better" for a long time. I was exhausted and uncomfortable. You can't physically see your heart or what it's been through. Trust it. And give it the time it needs. Better days will come.
Dan Baltazor Hang in there John. Some days it feels like 1 step forward and 3 steps back. But, you will improve. ... Read more
Dan Baltazor Hang in there John. Some days it feels like 1 step forward and 3 steps back. But, you will improve. In one month you'll look back and see some of those improvements. In 2 months you'll look back and see even more.
Going home soon and i know this has come up before has anyone have experience with heart hugger or any sternum protector or aid devices when im up to it i will ...Read more
Going home soon and i know this has come up before has anyone have experience with heart hugger or any sternum protector or aid devices when im up to it i will make a good post this is hard and exhqustimg
Thanks john
Dan Vechiola I used the Incision Shield https://www.heart-valve-surgery.com/shield.php. I had a lot of sensitivity in my incision area so I wore the incision shield often while moving. At home I just went shirtless. It seems like it hurt when something touched the area.
Use our error page to find helpful information about heart valve surgery.
Marie Myers I did not need any chest protective devices. I did , however, need a shower stool for a couple weeks ... Read more
Marie Myers I did not need any chest protective devices. I did , however, need a shower stool for a couple weeks cuz I was so exhausted. The heart pillow also served as a seat-belt shield while riding in the back seat of the car.
Dianne A I ordered on yesterday. I am having bad coughing spells and they come out of nowhere. Regardless of ... Read more
Dianne A I ordered on yesterday. I am having bad coughing spells and they come out of nowhere. Regardless of where I am I will have those two handles when I start coughing.
John Morales Ok thanks Dianne may get one i alwqys caugh when the pillow is off to the side lmk how you get on
Dianne A The only time I wasn’t holding my heart pillow when a coughing attack started was when the cardiolo ... Read more
Dianne A The only time I wasn’t holding my heart pillow when a coughing attack started was when the cardiologist came in to check me over and sign me out. His graphical what might happen story was all it took to convince me .
David Moore John, I ordered the Shield but David did not need it. What he did need was a pillow of some kind in ... Read more
David Moore John, I ordered the Shield but David did not need it. What he did need was a pillow of some kind in every room. He also needed COTTON undershirts because you do a lot of sitting. Wearing these newer fabrics gave him a heat rash. We also bought anti-bacterial wipes and soap to wipe down sensitive areas. He did not need a shower chair but he did use an elevated potty seat. He also slept in his recliner for the first four weeks. Make sure to keep your feet elevated to heart level or above to cut down on swelling. We learned that the hard way after night one. DO YOUR BREATHING and WALKING! I thought the nurse was crazy about breathing during every commercial but it made a huge difference. David learned that standing while doing it was easier and also helped to strengthen his legs with the up/down action. We've been praying for you and we know you can do this!! - Cheryl
Rita Savelis Using any old pillow (doesn't have to be heart shaped) is helpful. You probably have one lying around ... Read more
Rita Savelis Using any old pillow (doesn't have to be heart shaped) is helpful. You probably have one lying around at home. Rest as much as you can. Take it easy. There will be time to post in the future.
Bill Pollard My surgeon had me use a heart hugger. I liked it. Wore for about 5 weeks after surgery. I did not use ... Read more
Bill Pollard My surgeon had me use a heart hugger. I liked it. Wore for about 5 weeks after surgery. I did not use a pillow. I also had very little coughing and sneezing.
Protect the integrity of your sternal closure after surgery with Heart Hugger Sternum Support Harness - a simple, on demand, patient-operated harness that provides full-time wound stability, sternal support, pain management, and fewer wound complications.
Well i know why it takes so long to hear from some this is no joke they did my mitral tricuspid but not maze due to scaring ...im sitting here in afib unrefular ...Read more
Well i know why it takes so long to hear from some this is no joke they did my mitral tricuspid but not maze due to scaring ...im sitting here in afib unrefular ryrhum my heart is beatging ouf of my chest at times ..any ill be back whrn i can ...
Debbie Kelly Let us know how you are doing, John. Hopefully, they are giving you something to regulate your rhyth ... Read more
Debbie Kelly Let us know how you are doing, John. Hopefully, they are giving you something to regulate your rhythm.
Amy Goines I so understand this. You can hear my heart from across the room. Praying for you.
Joey Hardee Haven't been through it yet but I understand there usually is some arrhythmia/afib in the first part ... Read more
Joey Hardee Haven't been through it yet but I understand there usually is some arrhythmia/afib in the first part of recovery. Hope it settles down quickly. Praying for that.
Well i know why it takes so long to hear from some this is no joke they did my mitral tricuspid but not maze due to scaring ...im sitting here in afiv unrefular ...Read more
Well i know why it takes so long to hear from some this is no joke they did my mitral tricuspid but not maze due to scaring ...im sitting here in afiv unrefular ryrhum my hear is bwatging ouf of my chest at times ..any ill be back whrn i can ...
Mava Reif Prayers coming your way! Thanks for the update, & so sorry you're having to deal with this. We are pu ... Read more
Mava Reif Prayers coming your way! Thanks for the update, & so sorry you're having to deal with this. We are pulling for you! God bless!
Meredith Bray Welcome to the other side :) It ain't easy, but it's probably not as awful as you imagined. AND you p ... Read more
Meredith Bray Welcome to the other side :) It ain't easy, but it's probably not as awful as you imagined. AND you probably won't remember a lot of stuff that's happened the past few days. Thanks for posting!
To my Heart Warrior family OK my OHS for a Mitral & tricuspid repair or replace is in two days Wed I go in tomorrow for the final pre test and stay they night ...Read more
To my Heart Warrior family OK my OHS for a Mitral & tricuspid repair or replace is in two days Wed I go in tomorrow for the final pre test and stay they night my surgery is at 9AM now I'm feeling very anxious, scared and almost numb I want to be on the recovery side so i know it all went well the fear of the unknown is killing me…. how did you feel leading up to your surgery tell me im not alone....
Tee Ad You are not alone!! Nervous, sick to my stomach, exhausted, ready to get the surgery behind me—that ... Read more
Tee Ad You are not alone!! Nervous, sick to my stomach, exhausted, ready to get the surgery behind me—that’s how I felt! You will get through this!!!
Tom McDonald John, you are not alone. I can only imagine how you feel because, since I was told I need OHS to rep ... Read more
Tom McDonald John, you are not alone. I can only imagine how you feel because, since I was told I need OHS to replace my aortic valve I feel the same as you. OHS scares the hell out of me I am only in the
begining stages of the process to get to the recovery side but i know i have to get this done if i want any quality of life. We can do this! One of the heart warriors on this site wrote this in a message to me and I remind myself daily "if the Lord wanted something to happen to me, he wouldn't have give n me the opportunity to fix it". I know I will have a lot of emotional days between now and when i get my surgery date but i try to remind myself i have a chance to fix it before something wose happens to me. John I wish you nothing but the best on surgery day and to a speedy recovery. I'll see you on the recovery side at some point.
Susan Lynn We were all frightened, John. You are absolutely not alone. The more worked up I got, the harder ... Read more
Susan Lynn We were all frightened, John. You are absolutely not alone. The more worked up I got, the harder it became for me to breathe. It was more anxiety than it was my heart. Waiting was the worst part - I think every heart warrior will tell you that. So, if you can handle this, you won't have any problem with the rest of it. You'll have a calmness come over you the day of surgery. You will be ready to move forward and keep going! Stay positive - the rewards are worth way more than the effort. You can do it! We'll be here waiting to read your good news and see your thumbs up! ❤
Jeff W Hi John, it’s Cathy. I can tell you that before Jeff’s surgery we were BOTH anxious, nervous, an ... Read more
Jeff W Hi John, it’s Cathy. I can tell you that before Jeff’s surgery we were BOTH anxious, nervous, and ready to put it behind us. Everyone said the anxiety while waiting for surgery day was the worst part, and they were right. Your mind gets the best of you and it’s easy to let fear take over. I completely understand where you’re coming from. But I can also tell you that you are going to come through this surgery just fine! You’ve got an experienced surgical team and you’re in good hands. My prayers for you are for strength and peace. There are so many people that are lifting you up in prayer. Try to focus on that, and how you’re going to have a healthy heart again very soon! Best wishes to you 😊
David Moore John, this is Cheryl. I know David went thru some of the same emotions but he kept his mind occupied ... Read more
David Moore John, this is Cheryl. I know David went thru some of the same emotions but he kept his mind occupied by planning for his recovery at home. Knowing he needed to walk he mapped out a route inside our house and made a plan of walking and spirometer breathing. He's an engineer so "planning" helped with the stress. We also had his brother come to visit and his SIL - who talks non-stop so that helped the night before. As Susan said, he did have a peace that came over him and I believe that type of peace is God sent. Please know that we here in the Moore household down in Georgia will be calling your name out in our prayers tonight and especially tomorrow night for that "peace that passes all understanding" to fall on you and your family. Then we will for sure be praying for you the day of surgery and afterwards. That is the one thing that has been the most amazing thing to me about this website is the support and prayers and follow-up of perfect strangers. #GODSGOTTHIS #FAITHOVERFEAR - Cheryl
Diane Maher John, I was given a 1/2 sleeping tab the night before and when I arrived at the hospital I was compl ... Read more
Diane Maher John, I was given a 1/2 sleeping tab the night before and when I arrived at the hospital I was completely calm, I changed into my gown and hooked up to an IV and .... have no recall as to what happened next, Take advantage of staying overnight and lean on your medical team for support with dealing with your anxiety, they will be there for you.
Many best wishes for an abundance of courage and strength for you and your family and will be looking forward to your posts.
D. Carol Moore Hi John: Anxious, scared and almost numb... Release those cares to God (1 Peter 5:7). I can only imag ... Read more
D. Carol Moore Hi John: Anxious, scared and almost numb... Release those cares to God (1 Peter 5:7). I can only imagine how you feel. Been there, done that but look at me now, 25 years later and still dealing with A-fib, have DVRs and a pacemaker. Ever heard of 'bull-dog faith'? Now is the time to have it. Be strong and courageous and stomp fear in the face (smi). You will be just fine... Look how far you have already come!
Diane Maher P.S. John....I am celebrating six months on the 20th and in six months you will be where I am...celeb ... Read more
Diane Maher P.S. John....I am celebrating six months on the 20th and in six months you will be where I am...celebrating your six months❤️❤️
Marie Myers I was scared, anxious, and just dreading the whole thing. But I just knew I had to do it, and got on ... Read more
Marie Myers I was scared, anxious, and just dreading the whole thing. But I just knew I had to do it, and got on that stretcher. The nurse anesthetist gave me some Versed to relax me, and literally the next thing I knew, I was waking up in ICU. Unbelievable! You can do this!
Marjorie Murphy I was 76 when I had my aortic and mitral valve replaced. I am almost 6 months post op. Physically I ... Read more
Marjorie Murphy I was 76 when I had my aortic and mitral valve replaced. I am almost 6 months post op. Physically I am doing great. I have been dealing with anxiety but getting that under control, This was my second OHS. You will do fine. Just take one day at a time.
steve godbey John, it is natural to have anxiety prior to any surgery, especially heart surgery. You have to look ... Read more
steve godbey John, it is natural to have anxiety prior to any surgery, especially heart surgery. You have to look at the success rate for this type of surgery, which is very good and trust your surgeon. Have the anesthesiologist give you something before you go in to surgery, it will make a difference. You will be fine, I will keep you in my prayers and check back in soon.
Gregory Ballard Try to get a good nights sleep. If in hospital ask if you can have something to help you. I was all ... Read more
Gregory Ballard Try to get a good nights sleep. If in hospital ask if you can have something to help you. I was allowed Benedryl the night before. Best of luck to you. By this time tomorrow the worst will be behind you. I look forward to hearing from you in a few days. You are going to be fine and feeling better in a few weeks, than you have in months.
Mava Reif You are not alone! Thoughts & prayers going with you! Your fears & anxiety are terrible, but soon you ... Read more
Mava Reif You are not alone! Thoughts & prayers going with you! Your fears & anxiety are terrible, but soon you will be on the other side of this. We are all here for you!
DONT DO WHAT I"VE DONE PRE-OP
I've read to much, I've seen to many YouTube videos, I've dug to deep and I've obsessed about my OHS and now I've become a wreck, ...Read more
DONT DO WHAT I"VE DONE PRE-OP
I've read to much, I've seen to many YouTube videos, I've dug to deep and I've obsessed about my OHS and now I've become a wreck, my surgery is Wed the 20th for Mitral, tricuspid, repair or replace and a Maze for afib, I've tried to gain strength form all the great success stories I read, I cheer everyone one, the statistics I see say the success of OHS is that 999/1000 are successful in todays world, so why am i so petrified and scared i keep saying i will be ok , and im planning for things to do the week after, but yet that what if creeps in my head, I want to be on the side of recovery and know it went well , i'll be ok but I've read and watched to many video's till it scared me … Yes do some research of your surgeon and your hospital be educated but don't read what you don't have to,
There are many great OHS surgeons and Hospitals , not just the two or three in the US that everyone thinks are the best , so don't read to much.... look at videos to help and find strength and inspiration form our follow Heart Warriors who have been there. .. sometimes i just need to say soem things out loud Ihave been on these boards since I found out i needed OHS and i hope after my recovery i can come and help others to better deal with the anxiety than i did.
John
Susan Lynn You'll be ready to rock and roll by Wednesday. Anxiety turns to anticipation. In addition to putt ... Read more
Susan Lynn You'll be ready to rock and roll by Wednesday. Anxiety turns to anticipation. In addition to putting surgery behind you, the wait is over - that weight is lifted. Remember, it feels like a one minute nap. Don't focus on the details - your surgical team will do that. You're going to be better than fine, John!
John Isham John.....take a Deep Breath....RELAX.....Get all of this negative anxiety and Crap out of your head! ... Read more
John Isham John.....take a Deep Breath....RELAX.....Get all of this negative anxiety and Crap out of your head! Trust your Surgeon and Surgical Team! You will do just fine.....rest, rest, rest the next few days and focus on POSITIVE THINGS and visualize your surgery as 100% successful because it will be!
Wed are all here with our Heart Warriors Prayers for you and your family...Keep us posted on the recovery side. I saved some snacks for you in the recovery room and left the Operating Room light on for you and the Surgical Team! Again...quit worrying....You will do just fine. Remember, worrying causes unnecessary anxiety and you “my friend” have worried way too much and you have seen too many “You Tube Videos”! I watched ZERO Videos before my surgery.....the last thing I wanted to do is see a OHS Video...Go “Get R Done my friend and start living life again!
John Morales John thanks for your positive words you have been a great help for the last few weeks , ill meet you ... Read more
John Morales John thanks for your positive words you have been a great help for the last few weeks , ill meet you on the recovery side we will a coffee and a laugh thanks again.
John Isham You got it John! You will do great my friend...remember positive thoughts always, visualize a 100% s ... Read more
John Isham You got it John! You will do great my friend...remember positive thoughts always, visualize a 100% successful surgery... get rest now before surgery...clear your head... NO more watching You Tube OHS Heart Valve Replacement Surgery videos....Trust your Heart Surgeon and Surgical Team...remember these guys and gals are super talented at what they do and they do these surgeries like you drink coffee...another words... All the time!
Deep Breath...Relax and Go Get R Done! You will be a new man with a fixed heart in no time...
All will be fine!
Mava Reif John, I'm thinking of you & praying for you during this difficult time. I'm not far ahead of you & yo ... Read more
Mava Reif John, I'm thinking of you & praying for you during this difficult time. I'm not far ahead of you & you encouraged me before surgery! The nerves can get the best of you at times, for sure, but this is your own story & I know it will help others afterward. For myself, as a Christian, I spoke all my fears & anxieties out loud to the Lord in the quiet of my room, especially when I felt the most helpless & alone. It wasn't always evident, but there was a peace that came after a while. The day before my surgery I had no anxieties, & had peace on the way to surgery. Each of us has a unique approach & story, & yours will continue to be inspiring! If I can say, now is your time to be selfish & express your needs to those around you. It's hard not to be the one protecting others, but now is your time in the spotlight. Things are going to go great for you in surgery, without a doubt! Prayers coming your way! You've got this!
John Morales Mava , thank you so much , we went to church today and I know my wife prayed as hard as i did and put ... Read more
John Morales Mava , thank you so much , we went to church today and I know my wife prayed as hard as i did and put it in God's hands , I prayed for him to guys the surgeons and the team thru a successful surgery I know ll ge on , ill keep saying that … be blessed and all the best in your recovery ill meet you soon on the recovery side. JOhn
Mava Reif Wonderful! I look forward to hearing everything on the other side of your big day! You are in good ha ... Read more
Mava Reif Wonderful! I look forward to hearing everything on the other side of your big day! You are in good hands all the way around. 🙏👍
Phyllis Petersen Hahaha! I looked at the videos and was blown away too. Still, I'm glad that I went in with eyes open. ... Read more
Phyllis Petersen Hahaha! I looked at the videos and was blown away too. Still, I'm glad that I went in with eyes open. Maybe that's just me. I have this need to know. Find something really fun to do that'll take your mind off things and help you relax. If you've read people's stories, then you know that the odds are definitely in your favor for a successful outcome.
Joey Hardee Hey John. I remember when I was going on my first airplane flight. I was 17 and I wasn't going to tak ... Read more
Joey Hardee Hey John. I remember when I was going on my first airplane flight. I was 17 and I wasn't going to take it for several weeks and I couldn't stop thinking about the crashes I had seen/heard about on the news. I drove myself nuts. A week before the flight, a friend of my older sister told me I needed to think about the thousands of flights that take off and land every single day without incident all over the world. It did help me change my thought enough that I didn't need to be sedated to get me on the plane. Once I landed at the destination I thought, "why was I so freaked out?" Since then, I have been on probably 70 or 80 flights and all of them had nothing more than some light turbulence. Remember these procedures are done successfully every day, all over the world. You will be just fine and if there is some light turbulence, your pilot knows just how to handle it so you land beautifully. Think positive. You'll do great!
I want to thank everyone who has responded to my many post and have made me feel better about the upcoming surgery. I think my main problem is this foggy lightheadedness ...Read more
I want to thank everyone who has responded to my many post and have made me feel better about the upcoming surgery. I think my main problem is this foggy lightheadedness that i feel I don't know if its part of my valve symptoms, stress , anxiety or if there is something else going on. my wife says tat stress and anxiety can bring on all kind of things , so that's where I am a week away form surgery this time next week I will be in recovery probably still sedated … I just want to feel like im normal . honestly im a zombie right now feeling this fog in my head like im exhausted and tired,. thanks for listening
John
Debbie Kelly HI John, The minute my doctor told me that my surgery was upcoming, I asked for Lexapro, an anxiety m ... Read more
Debbie Kelly HI John, The minute my doctor told me that my surgery was upcoming, I asked for Lexapro, an anxiety med. As much as I would like to handle the stress without any help, it has been a blessing. I worry about everything, anf the Lexapro has taken the edge off. Come time for my surgery, I am sure I will get that sick, nervous stomach. But, for now, I am looking forward to the day of feeling good again. It's been so long since I have energy and will celebrate the day I can walk without panting. That day is soon!
I will keep you in my prayers. Stay positive and try to focus on the recovery side. Believe me, I know what you are going through. Take care.
Rob Sparling John, stay positive. Refine and strengthen your focus, be sure you have all your homework done and t ... Read more
Rob Sparling John, stay positive. Refine and strengthen your focus, be sure you have all your homework done and then make the leap of faith. Look at the positive: of all goes as planned, you are EXTENDING and IMPROVING your life. You have come so very far. Grab the future from the air right in front of you and make it yours! You can do this! ❤️💪
For the past 3 or 4 weeks I have been feeling like shit, to be honest my wife has been an angel i been feeling light headed , or what i call foggy head , just ...Read more
For the past 3 or 4 weeks I have been feeling like shit, to be honest my wife has been an angel i been feeling light headed , or what i call foggy head , just not myself , tired and run down , cant believe that the Mitral & tricuspid regurgertation can just wear you out like this , im sure all the stress and anxiety in my body isn't helping either , I just hope at the end of the day I can get up after surgery and feel better , and know that with recovery I can win this battle. thanks sometimes you need to talk out loud. i do it often , need to get it off my chest , that i feel this bad , I think if my head were not so foggy i would feel better. my surgery is next wed the 20th I been having a cold so i hope this does not affect things
Marie Myers I think that the doc will want you to be totally over your cold before surgery. Rest, relax, and eat ... Read more
Marie Myers I think that the doc will want you to be totally over your cold before surgery. Rest, relax, and eat well to get over your cold . Then you will be ready for your surgery.
The emotional ups and downs may go on for a while after surgery. I know it did for me.
Tee Ad You will feel better after you recover!! As I recover very slowly from my surgery (3 valves and a maz ... Read more
Tee Ad You will feel better after you recover!! As I recover very slowly from my surgery (3 valves and a maze procedure!) my new goal is to have faith that I will feel better, faith in the ability of our bodies to heal (with help from our surgeon and care providers!) and patience!! I am not naturally optimistic or patient but now is the time to cultivate both!! GOOD LUCK!!!!
Tee Ad Oh and I had a little cold before my surgery and what helped me was drinking lots of ginger tea and g ... Read more
Tee Ad Oh and I had a little cold before my surgery and what helped me was drinking lots of ginger tea and getting lots of sleep. Could any of your meds be making you feel so foggy, btw? Anxiety can do that too.
Jennifer McInerney I am three months out and can’t believe the difference. I felt horrid before I had my surgery, so ... Read more
Jennifer McInerney I am three months out and can’t believe the difference. I felt horrid before I had my surgery, so exhausted! Now I feel 20 years younger. Great energy and I’m finally keeping up with the grandkids! Hang in there, it gets so much better.
John Morales Thanks guys with your help im accepting it more Tee Im getting Mitral Valve Repair, Tricuspid Repair ... Read more
John Morales Thanks guys with your help im accepting it more Tee Im getting Mitral Valve Repair, Tricuspid Repair or replace , Maze procedure , and a Atrial appendage closure, I thought it was a lot to do but the Dr seams to make it like he's fixing my sink , guess that's what it is for them .
Louanna Miller John, I remember feeling exactly like you described. Just wiped out with no energy and ready for the ... Read more
Louanna Miller John, I remember feeling exactly like you described. Just wiped out with no energy and ready for the surgery. Rest now as it will help you following surgery. Your body goes through a lot with OHS. Rest is good now and following surgery. You will get your energy and endurance back. I’m amazed at what. Can do now. Take care. Praying for you and your surgery.
Charles Renner John, I had some of the same concerns prior to my surgery. When the surgeon came in to visit with me ... Read more
Charles Renner John, I had some of the same concerns prior to my surgery. When the surgeon came in to visit with me the day following surgery he told me that my vitals had started to improve as soon as the mitral valve repair was completed. You will be reaping the benefits.
John Morales thank you for all the well wishes and replies for someone like me who is so fixated on this it really ... Read more
John Morales thank you for all the well wishes and replies for someone like me who is so fixated on this it really helps to be encouraged, I look forward to coming back and helping those who like me are just overly petrified, my wife is being strong but i know she has not been sleeping well because im so stressed.
Marie Myers Acceptence of the whole situation was tough for me, also. I had no symptoms, so it was really hard fo ... Read more
Marie Myers Acceptence of the whole situation was tough for me, also. I had no symptoms, so it was really hard for me to face the fact that I needed surgery. Some of the "acceptence" videos and meditations on U Tube helped me realize what I had to do.
Thomas Brusstar You will totally start to feel better afterwards. I realize now that my "persistent cough" before su ... Read more
Thomas Brusstar You will totally start to feel better afterwards. I realize now that my "persistent cough" before surgery was from my mitral valve regurgitation, making it harder and harder for my lungs to do their job as the blood was backing up there. The doctors totally treat the heart like they're working on a sink! And you know what, the heart responds just like a sink, it's a physical structure and the doctors know how to fix it! I hope you can find some calm in knowing you're going to come out of surgery with brand new copper pipes installed in there, no crust or slime in there any more, no weird bends that the builder put there for no reason. I felt a real sense of accomplishment when I was done, almost heroic. It really made me feel like I had overcome something big, so please focus on the achievement, John. Our bodies are amazing things, they'll run with the help the doctors give us. You'll do great.
What If's ---- -And Why Me of OHS...
Sharing my Deep thoughts...….its worse in the Morning .
Are you still waiting for your OHS, mine will be in a few ...Read more
What If's ---- -And Why Me of OHS...
Sharing my Deep thoughts...….its worse in the Morning .
Are you still waiting for your OHS, mine will be in a few weeks moved up to Feb 20th and I'm not Handling this well at all , I have confidence in my Surgeon and his team That everting will be ok he has 37 years of experience he's a professor of Thoracic surgery at NYU so why worry, I envision waking up to being told it went great. But yet the what if keeps creeping into my head, I don’t think I'm alone in these Thoughts, I'm so happy to see so many in recovery here and doing well I keep saying that will be me But still it creeps into my head, I'm depressed , my head has been in this lightheadedness foggy feeling for the past week and I cant shake it free, you start to wonder is there something else wrong with me gee this really suck’s.
In December my primary care said you need to get a echo I think there is more to this shortness of breath 2 Echo’s later I was diagnosed with Severe Mitral Valve Regurgitation, Tricuspid Regurgitation not to mention I have had afib for as long as I can remember and have had a pacemaker. My question was how do I fix this , answered OHS. This is no other remedy for a leaky valve just like in plumbing. My world crumbled I thought I was just getting older and out of shape im 64 I have some emphysema but not a lot. There are no choices to make here either way the outcome of having or not having the operation is the same my biggest fear. I'm an obsessive person and it has literally taken over my thought process.
These group has helped me in gaining some confidence seeing so many successful people making me feel that it will be ok they do this all the time the death rate is very small , my Dr said people don’t die on the table, so why am I so scared. Well for those who have recovered you have already don't it I need to reach in here somewhere and gain some more confidence that it will be ok , visualize the success and try to move forward. Have faith that God has more for me to do. But they what if and why me’s, has taken me to places I shouldn’t go to. I'm writing this as I want to share with some of the folks here who feel the same as I'm and know I'm not and you are not alone I'm in there with you writing this helps me get it out and share it , hope you don’t mind me doing this .. my family I'm sure is already stressed enough so why not share with stranger who are dealing with the same issues…. I'm scared , I'm petrified, But ill be ok I just need to get to the recovery side. Ill ready the books and try to gain more confidence.
I know people don't like to read others doubts and fears but it helps sometimes to talk outloud.
John
Mary Woods You could try hypnotherapy. I'm pre-op but the medics keep changing their minds about timing. When ... Read more
Mary Woods You could try hypnotherapy. I'm pre-op but the medics keep changing their minds about timing. When I thought it was imminent, hypnotherapy really helped me. (And then they changed their minds. I'd just like to get it over and done with!)
Best wishes.
Meredith Bray I was scared af before surgery! And emotional - every chance I had to be alone, I was crying and gett ... Read more
Susan Lynn John - This is exactly the right place to speak out loud. We know what you're going through. I thi ... Read more
Susan Lynn John - This is exactly the right place to speak out loud. We know what you're going through. I think the book Meredith recommended is a great idea. But, I would also suggest that you remind yourself that everything we do has some amount of risk, but we don't focus on it or we would be reluctant to enjoy all the wonderful experiences of life. While I didn't view my heart surgery as something I ever wanted to do, it has resulted in many great outcomes besides my improved health. We don't know why our paths take unexpected turns, but we are the products of our collective experiences, including the challenging ones. Maybe it will help to think about what you will take away from this event. I always try to ask myself, 'What am I expected to learn from this? ' I sincerely believe there's a lesson behind every encounter.
You're going to be better than fine when this is behind you. I'll bet you will go on to support and inspire others. ❤
Vern Ahlo John, I know these thoughts are real and waiting for surgery makes it worse. I'm sure you're working ... Read more
Vern Ahlo John, I know these thoughts are real and waiting for surgery makes it worse. I'm sure you're working out and doing a number of things to keep these thoughts out. You have a lot more to give so keep the faith, stay strong and dominate this! Get on the OHS bus like you own it. Take care Brother!
John Morales Thanks Vern and all who have helped me stay positive , I try to keep the bad thoughts at bay just a b ... Read more
John Morales Thanks Vern and all who have helped me stay positive , I try to keep the bad thoughts at bay just a bit hard at times , im almost there. Feb 20th
Jeff W John, I completely understand everything you’re saying because jeff and I were terrified too. I h ... Read more
Jeff W John, I completely understand everything you’re saying because jeff and I were terrified too. I had complete faith in the surgeon and in the type of surgery we chose. I had read everyone’s encouraging comments too and tried to stay positive. But it’s still freaking scary!! That’s very normal.
I hope the next 10 days passes quickly for you. I’ll be praying for strength and peace for you 😊
Did anyone get a exercise bike to help with recovery just curious, its cold in the east nto sure will get out to walk much .
Susan Lynn I had an elliptical, but that was initially too strenuous for me. I did walk inside my house, three ... Read more
Susan Lynn I had an elliptical, but that was initially too strenuous for me. I did walk inside my house, three times a day to my favorite playlist. 🚶♀️🏠
Valerie Herndon-Vitarella I have a recumbent bike and started back riding 8 days post-op. Before surgery I rode 30 min at level ... Read more
Valerie Herndon-Vitarella I have a recumbent bike and started back riding 8 days post-op. Before surgery I rode 30 min at level 5 so I started at level 3 for 10 min and started building back up. Treadmill would also be good. Elliptical is probably too much. in fact, I wasn't allowed to do the arm part of the elliptical until 6 weeks in rehab. because of sternum.
Barbara Wood I was told to wait 6 weeks before using the elliptical because of the back & forth handles - not good ... Read more
Barbara Wood I was told to wait 6 weeks before using the elliptical because of the back & forth handles - not good for sternum healing. I mapped out1 mile distances inside my house for rainy days & did circuits. Best wishes John - think to the future!
Gregory Ballard This is Greg's wife. I am hacking his account to comment on your post:) He doesn't get on this web ... Read more
Gregory Ballard This is Greg's wife. I am hacking his account to comment on your post:) He doesn't get on this website as much as I do. I wish we had found this website before he had his surgeries. Great support system. Greg was told when he left the hospital he could walk and ride stationary bike as much as he wanted for the first 6 weeks. Check with your doctor but assuming your cardio recovery will be similar. Greg has had 5- OHS's and I personally believe with each recovery his cardio rehab through walking and easy cardio training was one of the best things for him physically and mentally. Get up and moving every day. Start slow and do only what you can. Stay strong. You will feel so much better in a few weeks. I look forward to hearing how everything goes for you and your recovery.
My Surgery has been moved up to Feb 20th I have been having sever symptoms lately i have been having what i call foggy head and borderline dizziness I cant ...Read more
My Surgery has been moved up to Feb 20th I have been having sever symptoms lately i have been having what i call foggy head and borderline dizziness I cant stand this feeling like i have a cloud over my head did anyone else have this lightheadedness foggy feeling prior to there Valve surgery I have to admit all kinda of crazy things are going thru my head like do i have another problem or is this related I hate feeling like ...
Susan Lynn John - I was lightheaded before my mitral valve surgery and managed to rationalize that symptom, alo ... Read more
Susan Lynn John - I was lightheaded before my mitral valve surgery and managed to rationalize that symptom, along with a few others, as normal aging. I realize now they were related to the decrease in oxygenated blood going into my heart.
I hope you're happy about your new date. The sooner you get it done, the sooner you can start your recovery and feel better.
I wish you the best of luck! You'll be fine!
Tee Ad John, did you talk to your doctor about the dizziness etc?
Bradley Dunn The sooner the better. The faster you get this done, the sooner you can start recovery!
Vern Ahlo John, I'm glad they moved your date up. Sorry for the dizziness. We'll keep in touch as it gets close ... Read more
Vern Ahlo John, I'm glad they moved your date up. Sorry for the dizziness. We'll keep in touch as it gets closer. Charge the hill Buddy!
Louanna Miller I experienced dizziness with my Mitro valve prolapse. I’m glad your surgery has been moved up. So ... Read more
Louanna Miller I experienced dizziness with my Mitro valve prolapse. I’m glad your surgery has been moved up. Sooner the better. You will feel much better once you start recovering.
Marie Myers It is probably all related to your heart, but it does not hurt to check in with your doc.
Rob Sparling John, I agree with the comments above. Sooner is a blessing. ❤️💪
My Surgery has been moved up to Feb 20th I have been having sever symptoms lately i have been having what i call foggy head and borderline dizziness I cant ...Read more
My Surgery has been moved up to Feb 20th I have been having sever symptoms lately i have been having what i call foggy head and borderline dizziness I cant stand this feeling like i have a cloud over my head did anyone else have this lightheadedness foggy feeling prior to there Valve surgery I have to admit all kinda of crazy things are going thru my head like do i have another problem or is this related I hate feeling like ...
The Emotional Magic of This Group.
When I was 1st diagnosed with Mitral And tricuspid regurgitation and told the only solution was OHS, I felt my world ended ...Read more
The Emotional Magic of This Group.
When I was 1st diagnosed with Mitral And tricuspid regurgitation and told the only solution was OHS, I felt my world ended and the mortality of an OHS operations was extremely scary in the few weeks in this group I have become more confident that everything will be ok, The people in this group pre and post surgery are compassionate, informing and supportive and while I'm still petrified and scared I have more confidence that i will come out ok. The information from patients here is invaluable while speaking to the Dr's and nurses is somewhat comforting , its those who are going thru the pre and post emotional rollercoaster that truly know. I wanna thank all those who are inspiring me from the recovery side ,that everything will be ok , and say keep coming back some of us really need you trailblazers to help get us thru this . And those like me waiting keep asking questions that will help you deal better with what's ahead so that we can be ones to inspire others.
Mark Jaycox I agree 100%. I don't know how I would of gotten through all this if it wasn't for this website and a ... Read more
Mark Jaycox I agree 100%. I don't know how I would of gotten through all this if it wasn't for this website and all the Heart Warriors.
Jennifer McInerney I agree too. I don’t post as much but I know hoe much the information on this site helped me. I ... Read more
Jennifer McInerney I agree too. I don’t post as much but I know hoe much the information on this site helped me. I’m 3 months post op and just came off Warfarin. I feel great!
Susan Lynn John - It sounds like you're headed in exactly the right direction. The longer wait times for surger ... Read more
Susan Lynn John - It sounds like you're headed in exactly the right direction. The longer wait times for surgery can be difficult. I'm certain you'll be ready to go when the time comes. You'll wish you didn't worry so much once it's over. I told my family that if it were any easier, they'd be doing this procedure through a drive through window. Well, it's not quite that easy, but it's not the heart surgery that we remember from years ago and it was way less traumatizing than I ever thought it could be. You've got this!
Marie Myers I got a lot of comfort from this forum in the time just before and during recovery from my AVR... Gl ... Read more
Marie Myers I got a lot of comfort from this forum in the time just before and during recovery from my AVR... Glad it is helping you, too!
Dan Vechiola John, I ran from doctors for 39 years since being diagnosed at 18 years old with a heart murmur all ... Read more
Dan Vechiola John, I ran from doctors for 39 years since being diagnosed at 18 years old with a heart murmur all because I feared heart surgery. I had my aortic valve replaced this past September and because of the love and support of this community my experience was nowhere near what I feared for 39 years. Now just under 5 months post op my life is very normal and I feel great and for the first time in my life I have a healthy heart and peace of mind which is PRICELESS! Best wishes John! We will be here supporting you my man!
Karen Warren Whenever I felt anxious before my procedure, I reminded myself that my surgeons did heart procedures ... Read more
Karen Warren Whenever I felt anxious before my procedure, I reminded myself that my surgeons did heart procedures like they were doing puzźles they had done before many times. The success rate for heart sugery is extremely high. Good luck.
Civita Fahey This site was invaluable to me both before and after surgery. I like to check in every so often to se ... Read more
Civita Fahey This site was invaluable to me both before and after surgery. I like to check in every so often to see if anyone needs a bit of comfort. I'm glad its helping you as well.. remember we have all been on this roller coaster and though we may have come off, it doesn't mean we don't remember that anxiety right before it drops, but know you will reach it the end of the ride just as we all have..
Question for those on the recovery side of things , I know that you are definitely in pain from sternum being split in half for a few weeks , but does the ...Read more
Question for those on the recovery side of things , I know that you are definitely in pain from sternum being split in half for a few weeks , but does the Heart hurt maybe this is a stupid question but someone asked me . and I didn't have an answer, what other pain do you have from OHS.. thanks
Susan Lynn John - I have heard that the heart, itself, does not feel pain. I had a side entry and did not fe ... Read more
Susan Lynn John - I have heard that the heart, itself, does not feel pain. I had a side entry and did not feel any pain in my chest. I think most of the heart warriors will tell you that the entire process is very tolerable and well managed with medication, as necessary. Don't worry - we did it and you will, too! You're going to be fine and surprised how much easier it is than you think. Only positive thoughts until game day - ok?
John Morales Thanks Susan appreciate the encouragement and support.
Tracy Fallu The pain is absolutely monitored and managed while in the hospital.
Our bodies are made to heal itsel ... Read more
Tracy Fallu The pain is absolutely monitored and managed while in the hospital.
Our bodies are made to heal itself. Try not to worry about the pain.
Debbie Moriarty John - the pains are actually kinda spread out. Sometimes I hurt on the right side, sometimes on the ... Read more
Debbie Moriarty John - the pains are actually kinda spread out. Sometimes I hurt on the right side, sometimes on the left. I actually asked my doc if my heart was hurting. He assured me it wasn’t. What I finally got through my head was that we heal from the inside out. And you might feel little twinges here and there, but I can say the only real pain came from my sternum. Use your heart pillow faithfully. And take the meds they prescribe! You will breeze through the discomfort.
Barbara Wood Hi John, it is not a given that a full sternotomy is painful. I had a one & had no pain - ever! I too ... Read more
Barbara Wood Hi John, it is not a given that a full sternotomy is painful. I had a one & had no pain - ever! I took no painkillers, not even Tylenol when I came home. We're all so individual in how we perceive pain. My skin was very sensitive to anything touching it in my collarbone area - I could only wear deep vneck tees for the first couple weeks & I slept very poorly- it's hard sleeping on your back! I too worried about pain & was surprised when I had none. You've been dealt a particularly tough hand here, this coming right on top of your cancer treatment. Having gone through both I can assure you that heart surgery is far far easier than dealing with the stress of cancer - psychologically & physically. Waiting is terribly hard, but Susan is right, you'll be surprised at how much easier it is than you imagine now. Hang in there, it will be behind you soon! Sending positive vibes...:)
Noreen Kitchen My sternum pain was never that bad after the first few nights. I went home 4 days after surgery and w ... Read more
Noreen Kitchen My sternum pain was never that bad after the first few nights. I went home 4 days after surgery and was just taking Tylenol by then. I can’t say I remember my heart hurting. It all seems like a distant memory now. I am now feeling better and healthier than I ever have. I know you’ve heard this before but the waiting is honestly the worst part. You’ll do great.
Marie Myers I had a full sternotomy, and pain was not a big issue for me. The aches in my neck and shoulders and ... Read more
Marie Myers I had a full sternotomy, and pain was not a big issue for me. The aches in my neck and shoulders and the exhaustion was far more bothersome for me. I was sent home with 10 Percocet, and I only used 3 of them. Honest to God...
Meredith Bray Disclaimer: Everyone is different! For me, it was extreme discomfort. The weird part was laying down ... Read more
Meredith Bray Disclaimer: Everyone is different! For me, it was extreme discomfort. The weird part was laying down at night and feeling all sloshy inside. My neck/shoulder/back pain was relieved by doing posture exercises and making sure I had enough support on those area while I was resting. I stopped taking narcotic pain pills after they removed my drain tubes, and only took tylenol for a couple weeks after I got home. My opinion is that the waiting/anticipation is the worst, because it's all unknown to you. And my opinion is also that the recovery won't be nearly as awful and painful as you imagine!
Meredith
Holiday, FL
Dan Vechiola I had a mini and my sternum pain was pretty intense for the first 6 weeks. After 6 weeks in reduced ... Read more
Dan Vechiola I had a mini and my sternum pain was pretty intense for the first 6 weeks. After 6 weeks in reduced significantly and was pretty much gone by 8 weeks. The pain I experienced was from my ribs being opened and pulled apart which protruded into my shoulder, neck and arms. I still have some shoulder muscle pain in the morning and its been 4.5 months. I don't think my heart hurt.
John Morales Thanks you everyone for your replies , you are all away so supportive as I venture towards my surgery ... Read more
John Morales Thanks you everyone for your replies , you are all away so supportive as I venture towards my surgery in March ,
Sara Colosimo I can’t say my heart hurts but it feels different! It beats harder or seems that way. And as I hea ... Read more
Sara Colosimo I can’t say my heart hurts but it feels different! It beats harder or seems that way. And as I heal i feel like it’s beating in odd places.... in my collar bone, my neck. Weird! March will come and go and you’ll be on the road to recovery.
John Morales HI Sara ,thank you was wondering about how you were doing, I hope our healing and recovering well, ou ... Read more
John Morales HI Sara ,thank you was wondering about how you were doing, I hope our healing and recovering well, out side of the different beat I guess that's part of the recovery your heart has geen repaired maybe like a car needs to be broken in wishing yo all the best I guess you cant imagine how its going to be post your operation .Please keep us updated on your recovery
Bob Fessler No heart pain here. No sternum pain either unless you count some soreness. After I left the hospita ... Read more
Bob Fessler No heart pain here. No sternum pain either unless you count some soreness. After I left the hospital, I only used pain pills to help me sleep. I only did this for a couple days. Pain was not my problem. Sleeping and energy was. You can do this.
Tee Ad I’m 17 days post surgey and about every 5-6 hours I take 1/2 a tramadol or 2 extra strength Tylenol ... Read more
Tee Ad I’m 17 days post surgey and about every 5-6 hours I take 1/2 a tramadol or 2 extra strength Tylenol. I switch off between the two. I tried cutting back to just Tylenol but oddly the Tylenol makes me more tired than the half (25mg) of tramadol! I hope I can cut back on both soon but I’m walking (slowly) 15 mins 3x a day and putzing around the house, so I feel like it’s what I need for now. GOOD luck!! It’s all manageable and patience is key.
Willie Radl I didn't have any heart pain. Just at the sternum and as others mentioned, more at the ribs. I had ... Read more
Willie Radl I didn't have any heart pain. Just at the sternum and as others mentioned, more at the ribs. I had a mini - Stern with the "J" cut, I'm guessing it is a bit harder on the ribs because most of my pain was in the area near the bottom of the "J"... if that makes sense.
Kim Boardman I didn’t have any heart pain. I did have some chest pain and extreme back pain at times. I was on n ... Read more
Kim Boardman I didn’t have any heart pain. I did have some chest pain and extreme back pain at times. I was on narco in the hospital for a few days, but then switched to morphine because the narco made me sick to my stomach. After about 5 days post op I was only on extra strength Tylenol every 6 hours. One tip is, if the say you can have something for pain every so many hours...due it to stay on top of the pain management! They have lots of options for pain, and will work with you to figure what is best for you.
Bob Gillespie The sternotomy was my biggest concern going in......and the least problem I had post op. Sore, but n ... Read more
Bob Gillespie The sternotomy was my biggest concern going in......and the least problem I had post op. Sore, but not a lot of pain. I used a device called the heart hugger for when I moved/coughed/sneezed. But mostly it was the fear of causing pain that bothered me more than the pain itself.
Vern Ahlo Hey John in ICU I was drugged up, uncomfortable but didn't really care and don't remember much. Now i ... Read more
Vern Ahlo Hey John in ICU I was drugged up, uncomfortable but didn't really care and don't remember much. Now it is more of an annoyance and discomfort then actual pain. My upper back, neck and shoulder cramping is more of a problem and still missing a full nights sleep . During the day I'm pretty good it's the evening hours when I have to adjust. I had and still have many questions so ask away! You'll be fine!!! Take care.
Rita Savelis I never had any pain but i had massive discomfort and exhaustion. The chest and sternum felt tight an ... Read more
Rita Savelis I never had any pain but i had massive discomfort and exhaustion. The chest and sternum felt tight and strange for a long long time but there was nothing to call pain. This made OHS so very different from other surgeries. Recovery was harder but no pain. I have no words to correctly describe the discomfort, though. This is exactly how the anasthesiologist and surgeons described to me how post surgery would feel. Take care.
Andrea Webb I have to echo what most everyone here has said, the sternum (I had a full) pain is the mildest area ... Read more
Andrea Webb I have to echo what most everyone here has said, the sternum (I had a full) pain is the mildest area of pain, although it was my major concern leading up to surgery until heart warriors on this forum told me it was nothing compared to the drain tubes and they were right on. It isn't the heart hurting, just everything around it. Remember, you also have a lot of inflammation around your heart after surgery and that combined with everything that was stretched, causes pains in the most odd places. One day it will be your right shoulder, the next your left back, the next your entire neck, the next your diaphragm. My surgeon said this will go away in about six months. I'll be six weeks from surgery tomorrow and still have aches and random pains, some days more than others.
Debbie Moriarty Good explanation, Andrea! Just random things here and there.
Out of Curiosity , are the only heart Hospitals and Dr. listed here only ones that Advertise on the site. I don't see my Dr. or the hospital , NYU which ...Read more
Out of Curiosity , are the only heart Hospitals and Dr. listed here only ones that Advertise on the site. I don't see my Dr. or the hospital , NYU which is not ranked at the TOP but considered a top hospital.
QUESTION- For those who suffered form shortness of breath how did you cope prior to surgery with your everyday life and working, wondering if there were any ...Read more
QUESTION- For those who suffered form shortness of breath how did you cope prior to surgery with your everyday life and working, wondering if there were any exercise or things you would do to make it easier.
Craig Irving Hi John. well, I can tell you that I worked up until 2 weeks before my surgery, and it sucked. Shortn ... Read more
Craig Irving Hi John. well, I can tell you that I worked up until 2 weeks before my surgery, and it sucked. Shortness of breath, dizzy, and everything. As far as exercise, I just walked a few times a day. I really don't think anything helps the situation other than getting the problem fixed.
Susan Lynn John - do what you can to relax. I found that I could become short of breath while sitting down if ... Read more
Susan Lynn John - do what you can to relax. I found that I could become short of breath while sitting down if I allowed myself to think about surgery. Acceptance, visualization, meditation might ease your symptoms. Your big day is around the corner - stay focused on how great you'll feel when it's behind you!
Rich Hahn I went to a vegetarian diet with lots of raw vegetables, fruit, cooked vegetables, no wheat, etc and ... Read more
Rich Hahn I went to a vegetarian diet with lots of raw vegetables, fruit, cooked vegetables, no wheat, etc and within about 3 days starting feeling fantastic. I also find I feel much better after walking. Anything you can do to lower the amount of inflammation should help.
Andrea Webb There really isn't a lot you can do. You need to stay as active as you can without overdoing it, so ... Read more
Andrea Webb There really isn't a lot you can do. You need to stay as active as you can without overdoing it, so I learned to go slow and stop and take slow breaths as much as I could.
Debbie Moriarty I agree with all these replies. Walk as much as you can. But not too much. I wish I had read Rich Hah ... Read more
Debbie Moriarty I agree with all these replies. Walk as much as you can. But not too much. I wish I had read Rich Hahn’s relply above before my surgery because I didn’t realize inflammation was part of the problem.
I look back and chuckle now because I was worried about the actual surgery! And what I chuckle about is I never realized I’d just sleep through the whole thing!!! And when I woke up there were many familiar faces of my family and friends and even more wonderful medical people taking care of me like I was their most important patient ever!
Walk as much as you can just to stay in practice. After your surgery you will feel inspired to do more!!!
Am i the only one who comes back to see how some have made out with there surgery , to wonder how they are doing a few Heart Warriors went in this week and ...Read more
Am i the only one who comes back to see how some have made out with there surgery , to wonder how they are doing a few Heart Warriors went in this week and are still to appear I hope there surgeries went well they are recovering maybe don't have access to leave a message yet..
Debbie Kelly No, I do the same, John. There are some who post regularly and stop posting after their surgeries. ... Read more
Debbie Kelly No, I do the same, John. There are some who post regularly and stop posting after their surgeries. I would love hearing from them, but I guess they recover and get on with their lives. One lady, in particular, lives close to me, and I would give anything to ask her some questions about her surgeron, but she never once posted after her surgery,
There are those whose loved ones post for them, which, shows what a great support system they have.
Marie Myers Yes, there are people I think about, and wonder how things went. They just may not feel up to posting ... Read more
Marie Myers Yes, there are people I think about, and wonder how things went. They just may not feel up to posting. Also, for people who had complications, they may be too overwhelmed or tired to post.
John Morales HI Debbie / Marie I have also ventured over to Facebook as there as Adam also has a page there that ... Read more
John Morales HI Debbie / Marie I have also ventured over to Facebook as there as Adam also has a page there that is more active. I am awaiting my surgery and am petrified of it , seeing everyone come back and share there successes stories with us is a great help in building my shaky confidence I know I have a top notch surgeon but the unknown and a overly thoughtful mind does not do me good I just want to be recovered and moving on its been a hell of a 2 years for me having dealt with prostate cancer and now this in any event ill keep coming and posting and looking for inspiration here. I guess for some once there are in recovery there is maybe no need to relive the surgery or as Mary says maybe complications that I don't wish on anyone has consumed their time .
Marie Myers John- I wish I could convince you that the waiting for surgery was really the worst part. I, too had ... Read more
Marie Myers John- I wish I could convince you that the waiting for surgery was really the worst part. I, too had confidence in my surgeon, and I knew I would get through it. I just didn't want to go through it. It was also my first hospitalization, and I was used to being a healthy active person.
Now, it has been almost 2 years since my surgery. I look back, and it seems like another lifetime. I did not suffer a lot of pain, the breathing tube was a non-event, and even the chest tubes did not bother me much. I was overwhelmed by exhaustion, though. Really surprised me how tired I was. I needed a shower seat cuz I was too tired to stand. But that faded more with each passing day. By 2 weeks, I was actually feeling pretty good. Started cardiac rehab at 3 weeks, tho I feel I could have done it on my own. I felt good enough to back to work (in the operating room) at 8 weeks , just 2 days a week.
You have been dealt a double whammy with the prostate cancer, and that in itself is a battle-both mental and physical. I have no doubt you will make it through the heart surgery, and will be surprised it was not as bad as your worrying mind had it made out to be. I do wish I worried less, and was more like those "Git-R-Done" people. But everybody is different. We all progress at our own speed. Just be patient with yourself, and expect some ups and downs emotionally and physically. Though it is a big surgery, it is done every day, all over the world. Trust in the science and your medical team. They really want the best for you, also!
Dan Baltazor I think we all do it John. We're routing for everyone's success too.
John Morales Dear Marie , thank you for taking the time to inspire and reassure me, im a thinker my wife say i spe ... Read more
John Morales Dear Marie , thank you for taking the time to inspire and reassure me, im a thinker my wife say i spend to much time thinking and reading about this and she's probably right but i try to keep her at bay so she doesn't worry more than she already is so i want to thank you and those here who have bee very supportive to my needs.
Louanna Miller I was in ICU 2 days and then the cardiac floor room for 9. In ICU I was moment to moment for the fir ... Read more
Louanna Miller I was in ICU 2 days and then the cardiac floor room for 9. In ICU I was moment to moment for the first 12 hours. Then had other issues that I barely remember. In the cardiac floor room I was inundated with the many many therapist, nurses, MDs, X-ray, lab techs, etc. It wasn’t until I was on day 7 that I actually slept for 3 hours straight.
I was no superhero or Wonder Woman; just made the most of a complicated situation. I learned we are all unique and experience the heart surgery process differently. My advice it to take things one day at a time. Be good to yourself and follow all the instructions you receive.
Will be praying for you.
Susan Lynn John - I've been following this site for about 18 months and I do my best to follow up on the heart w ... Read more
Susan Lynn John - I've been following this site for about 18 months and I do my best to follow up on the heart warriors who have had surgery and are recovering. When I tell folks that I'm cheering them on and awaiting their good news, I'm not kidding! I get very worried until I see that post-op post or thumbs up photo. I am genuinely concerned about everyone's outcomes and progress. These people feel like family. ❤
Debbie Moriarty Hi John! I’m 8 weeks out and I can tell you as much as I wanted to talk to everyone on here, I just ... Read more
Debbie Moriarty Hi John! I’m 8 weeks out and I can tell you as much as I wanted to talk to everyone on here, I just couldn’t for a while! I came to this group so many times for inspiration and encouragement before my surgery. And I got back on as soon as I could!! I’m telling you, you can do this and you will feel so much better!! I came out of it having a whole new love and appreciation for my surgical team and cardiologist!!! They def took care of so many little things that I didn’t have a clue about!
This is work for sure!! But it comes in baby steps and they only give you as much as you can handle!! I promise! Yes, you will sleep a lot, you will walk as much as you can, you will get used to new medications (some only temporarily), etc.... But honestly, your doctor knows all of this and will be keeping a very close watch on you!!! You will feel so cared for!!! Promise!!!
Well I had my TEE & Catherization yesterday , got tot the hospital as requested at 6:30 AM 8 patients later and 3:30 in the afternoon they finally took me ...Read more
Well I had my TEE & Catherization yesterday , got tot the hospital as requested at 6:30 AM 8 patients later and 3:30 in the afternoon they finally took me for the TEE I was pretty frustrated and pissed to have waited so long but finally , meet the Dr and he staff who was really nice she explained everything to me in detail said tey come a long way since i last had it 20 years ago , she put an IV line in and went to work , the next i remember it was over and she said everything went well. guess they drugs really worked so I was Droggly happy if that's a word, the next I remember i was in the Cath lab on the table and they were doing the wrist Cath , I was awake so i thought, next i know it was over and they said all was well.. 2 hrs later my wife was coming to get me... I'm really happy how the day went except for the long wait it cound not have been a better experience they staff at the VA were nice gracious and caring , made it eazy and finding out everting went well was the cherry on top now i meet the Dr on wed to go over all the findings but thru the day when i said Dr Grossi was doing my surgery all i got were accolades of how he was the main man for valves and world renown so have to admit it has made me feel better , now mind yo I hat that I hve to do this but im glad that the people who will be responsible are highly thought of. Hope everyone's test goes as well as mind did... onward Heart Warriors.
Janet Morganti I hope it all goes well for you, John. Prayers for you and the team working on you.
Debbie Kelly Great news! All went well with my cath too. Very thankful no blockages. You are in great hands with ... Read more
Debbie Kelly Great news! All went well with my cath too. Very thankful no blockages. You are in great hands with your surgeon. I wish you the best!
Louanna Miller Good to hear. Move on forward to surgery and recovery!!
Thinking Out Loud,
I hope this is ok here , If its a bit much ill delete it , Since I was diagnosed with my Valve issues, I have had a hard time coming ...Read more
Thinking Out Loud,
I hope this is ok here , If its a bit much ill delete it , Since I was diagnosed with my Valve issues, I have had a hard time coming to terms with this , I know im not alone in the why me sometimes self pity club, I know my shortness of breath and light headedness were getting progressively worse as I dealt with my prostate cancer last year. I was just dealing with it and concentrating on the cancer treatment , I kept thinking maybe it was a pulmonary issue well , 2 Echo's later its my Mitral valve Regurgitation as well as my Afib. and tricuspid leaking severely, Thursday I go for the TEE and Cath pro op test...
So now why is every little ache and chest pain an issue and magnified, not to mention the fear of the surgery. I’m a veteran and get my treatment at the VA hospital as there is no thoracic at my VA I was sent to NY so I don't get many options of where to go and who to do it. The surgeon I was assigned is from NYU who has 30 + years of experience and is a professor at the school and the head of thoracic at the VA so why am I worrying. Maybe because I am like everyone elseI think about my family and all the things I feel I still ave to do in life,.I do music for a living and constantly travel the world today I had to tell my agent I had to shut it down for at least March and April, my health is # 1 if I don't have it there isn't a gig in the world worth it .. My visit with the Surgeon was good and we decided we will do it March 11th , I have a two week tour to do in Australia and NZ , he said go do it , come back and we will do the surgery but still I worry anyway ,
im sorry if this is the wrong place for this . I just needed to talk out loud and apologize to my heart Warriors , but seeing all the success stories here gives me hope ill be one of the good ones. much love and prayers to all the Warriors.
Jennifer McInerney This is exactly the “right” place. I also experienced the “every little symptom wondering”. ... Read more
Jennifer McInerney This is exactly the “right” place. I also experienced the “every little symptom wondering”. The waiting time is the worst. However you will feel like a new person after surgery and recovery time. We all have been scared and kept on going through the process. Knowledge truly is power. Do your research, read Adams book and read everyone’s stories. Stay positive. You can do this!
Debbie Moriarty Hi John! I agree that thinking out loud is perfect for this group! My surgeon allowed me to take a Di ... Read more
Debbie Moriarty Hi John! I agree that thinking out loud is perfect for this group! My surgeon allowed me to take a Disneyland trip one month before my surgery. I was fine and very happy I didn’t disappoint my granddaughter for her birthday trip. Just get some good rest before your surgery!! Your body and mind will need your help to recover!!
If you also write music, this might be an inspirational trip for a new song or two!!
Louanna Miller You are at the right place. I’m so glad you are thinking out loud and shared with us. We have all e ... Read more
Louanna Miller You are at the right place. I’m so glad you are thinking out loud and shared with us. We have all experienced the thoughts and feelings you just expressed. Take this journey one day at a time. Allow yourself to process all of your thoughts and feelings. We will listen and answer your questions. Go on your trips and enjoy them. Then return home for your surgery. We are all unique and go through surgery, recovery and healing differently. The process is the same and we all share that in common. We are here for you.
Civita Fahey John, this is the right place..No one knows how you feel like we do.. our family members do their bes ... Read more
Civita Fahey John, this is the right place..No one knows how you feel like we do.. our family members do their best, but, they aren't walking in our shoes.. As Jennifer said, the waiting is the worst part.. your post brings back many memories.. I too felt all the same feelings. But, since its been about 20 months since surgery, I know that it was normal and that its good to express it.. You will do great, just as we all have. I learned that they really do have this down pat. They know what to expect and know what to do. Stay positive, keep reading the positive outcomes and before you know it you will be one of them. My prayers are with you..
Thomas Brusstar This is the perfect place. Once I knew I needed surgery, I thought I was handling the stress ok, BUT ... Read more
Thomas Brusstar This is the perfect place. Once I knew I needed surgery, I thought I was handling the stress ok, BUT I seriously would wake up with a start every few nights thinking my heart had stopped. I would calm down and eventually get back to sleep, but it was disruptive. My heart hadn't stopped, or anything like it, of course -- my valve problem wouldn't really even cause a cardiac arrest -- but my mind was obviously working overtime processing the heart issues. It was bothering me more than I knew, I guess. And now, 6 months after the open heart valve repair, I can say I haven't woken up like that even once since surgery. My subconscious seems to understand that I'm fixed! So dealing with anxiety, and figuring out our bodies and minds, is what this site is best for. Keep thinking out loud here.
J H Mattingly John....you have found the absolute best place...a true blessing to all of us. We are here for you b ... Read more
J H Mattingly John....you have found the absolute best place...a true blessing to all of us. We are here for you brother...OHS is no fun but is something you will be able to handle and get yourself fixed. The waiting is the worst part of this journey. Stay strong and be positive and you will do great! The surgery will be over in an instant and you will be on the other side of the mountain...which feels soooooogood. You’ll be sore but nothing you cannot handle.
We are all here for you! You got this!!
Make Sure to Come Back... I was thinking today as I came here looking for updates When I was dealing with my Prostate cancer I noticed that when we are looking ...Read more
Make Sure to Come Back... I was thinking today as I came here looking for updates When I was dealing with my Prostate cancer I noticed that when we are looking for help assistance and support we tend to be very active. In my short time here I have also noticed that once some people have had there surgery and are on the road to recovery they no longer visit. I would like to implore some of you who have had successful surgeries to please come back and help support those like me who are still to have there operations and are longing for support and encouragement, as you know this is a really big deal operation and the support many get here help them us get thru this . so please make sure to come back and help those who like you need help in the beginning.
Civita Fahey John there are a lot of us here.. most will come back and just look but not post.. I try to post ever ... Read more
Civita Fahey John there are a lot of us here.. most will come back and just look but not post.. I try to post every so often but I regularly check in. If I can help someone like I was helped, it would be my honor..
Diane Maher Hi John...some excellent, informative and inspirational journals to read while in the waiting room... ... Read more
Diane Maher Hi John...some excellent, informative and inspirational journals to read while in the waiting room...Rob Sparling, Dan V., Jennifer John, and Susan Lynn. When I was preparing for my Aug. surgery, I read everyone’s journals and posts on a daily basis and from there I developed my mental, physical and emotional plan....extended my daily walking activity by several thousand steps with the help of a newly purchased Fitbit, purchased, Prepare for Surgery, Heal Faster: A Guide of Mind-Body Techniques ( her 30 min. Visualization and relaxation tape was SO helpful), breathing exercises, and staying in the moment which was important to keep my mind from wandering to negative or anxious thoughts. Over time I have realized that some members do not necessarily update in their journals but will do so in responding to someone else’s post and give some very excellent and helpful info. As these are somewhat early days for you, Susan Lynne’s journal posting Creating Your Own Story May be particularly helpful and timely.😊
John Morales Thanks you Diane , appreciate the suggestions and support, I will heed your advice.
Judy S Diane makes a great point John. I am one of those members who responds rather than posts in my journa ... Read more
Judy S Diane makes a great point John. I am one of those members who responds rather than posts in my journal, but we're here to answer questions!
Well its Christmas Eve Day and most of my day gets consumed with the thought of my future surgery whenever that may be as I don't see the surgeon till the ...Read more
Well its Christmas Eve Day and most of my day gets consumed with the thought of my future surgery whenever that may be as I don't see the surgeon till the 9th Jan ,its so easy to say don't think about it,. Burt since its a OHS the fear of not getting up, really is messing with my head. anyway just finding some time to share my thoughts with everyone here who understands these feelings , and wishing those who are in recovery the best of luck you've done it , and to those of us who are waiting and scared your not alone , I wish you and your families the best as we all wait for that day to come , i'm in there with you wishing it was all behind me and I was recovering till then I will try not to let it over consume my thoughts.
John
Dan Baltazor Merry Christmas John, Try and be in the present moment. There’s nothing you can gain by thinking o ... Read more
Dan Baltazor Merry Christmas John, Try and be in the present moment. There’s nothing you can gain by thinking of your surgery today. Christmas Peace to you.
Joy Rose Definitely the waiting is the worst. I had mitral and tricuspid repair and had afib prior to surgery ... Read more
Joy Rose Definitely the waiting is the worst. I had mitral and tricuspid repair and had afib prior to surgery on 3 December. Been home now, 2 weeks and feeling fine and dandy. Maybe, I was lucky but didn't have too much pain, stopped taking painkillers 4 days after getting discharged. Just had a bit of back pain for a days but all good now. Just get a bit tired and try and take a nana nap in the afternoons when I remember. Try not to worry about surgery, you won't remember it anyway. Take your own pillow to hospital, I took my 'V' pillow and used it sleeping and sitting on a chair. Try your best to have a merry xmas.
Susan Lynn John - We've definitely all been there. Think positive thoughts and prepare yourself by writing dow ... Read more
Susan Lynn John - We've definitely all been there. Think positive thoughts and prepare yourself by writing down the questions you have for your surgeon. You'll feel much more in control and comfortable once you have done your research. And - enjoy the holidays! There are lots of wonderful memories to make this year!
Rob Sparling John, you have scaled the wall of worry and in a short period of time it will be behind you. Dont be ... Read more
Rob Sparling John, you have scaled the wall of worry and in a short period of time it will be behind you. Dont be afraid, recognize you are prepared. (And if you aren’t yet, that is Ok because you have some more time to get ready)
Be ready to give high fives all the way into the OR and get so positive you infect everybody else with it! Your positive mental state is one of several major drivers to a successful outcome!
You’ve got this! Make memories right now and set goals for the other side. There are a lot of reference points from HWs here! Get a Fitbit now and start establishing a baseline for how many steps you walk everyday! You can’t manage what you don’t measure!
❤️💪
Bradley Dunn Spend your time with those you love doing what you love doing together. Make yourself a better person ... Read more
Bradley Dunn Spend your time with those you love doing what you love doing together. Make yourself a better person while making those around you better. If you do that and concentrate on that, it will all work out!
OK Heart Valve Family, Sorry for a repost but5 needed to add some more information to it.. Finally had a chance to speak to Dr Grossi this week about my case, ...Read more
OK Heart Valve Family, Sorry for a repost but5 needed to add some more information to it.. Finally had a chance to speak to Dr Grossi this week about my case, and he said I need ,a mitral valve and tricuspid repair, as well as a possible maze to deal with my afib, he said after 20 years of having afib my heart has enlarged a bit causing the Miral to leak and it needs repair, I have had various ablations over the years as well as having a pace maker . He has almost 30 years of experience in OHS. I’m going to need the whole gambit of test which anyone who has had this is familiar with Jan 9th for most of the test and Jan 15th for the Cath test. and all the blood test , to say this is totally freaking me out is to put it mildly.
I told the receptions he souds like he’s changing his socks and she said he does surgery almost on a daily basis, and forgets that for the patients it’s a big deal . but there is always a risk of fatality ,they will not do robotic or MI as he explained I have multiple issues which are nor a good candidate for robotic...
I know I don’t have any options but to get the surgery . I’m so scared but i see so many here who have had them done with great success. I love seeing the pictures of people post there procedure and doing so well , I wish i could wake up and have this all behind me it will probably be a few months before I get it done unless he says otherwise when I finally go in to meet him but im going to use all the successes on here to help me get thru this....
Has anyone else had both valves repaired as well as a-fib arrhythmia dealt with during their surgery. I am now assuming that it will be a longer recovery period for me due to the complexity of my case . anyway thanks again and sorry for the many post, everyone tells me I'm so brave I just finished a bout for prostate cancer and this followed a few months behind I will need much support in the next few months to get thru this.
This may sound sliek a stupid question but post the surgery where is it most painful during the recovery I'm thinking does the heart feel pain like when you pull a muscle in your leg ??
And last but not least I don’t think it was smart to go watch some YouTube videos’ for the surgery
John
Rob Sparling John, no more YouTube videos. The heart does not feel muscle aches, at least mine did not. It is stra ... Read more
Rob Sparling John, no more YouTube videos. The heart does not feel muscle aches, at least mine did not. It is strange, but you don’t even know it was touched. The drain tubes inside your chest cavity and the incision are things you can feel (and are a nuisance) and back aches from laying down so long (and with chest propped open) but that is minor in the big scheme of things. The first 12 hours in ICU you will be out of it and pushing the pain button every chance you get and are in and out of sleep. Then you feel like you got run over by a truck for about 24 hours and probably move to a step down unit about then. Then you feel like you ran into the truck yourself the next 24 hours and subsequent to that you feel like you got tackled by a 300 lb linebacker. The Oxy and other pain killers are plenty — you will not have a problem with pain.
I can’t help on the dual valves, a-fib or arrhythmia.
I hope this helps!
Barbara Wood Glad you had a meet up with your surgeon John, it sounds like you are in excellent hands. I've had a ... Read more
Barbara Wood Glad you had a meet up with your surgeon John, it sounds like you are in excellent hands. I've had a mitral repair & a maze & like you, I'm a cancer survivor- it's actually what caused my valve damage. I just really never had any pain, but I was uncomfortable, mainly the skin around my collar bone area was really sensitive, I couldn't stand to have clothing touch it. My main gripe was difficulty sleeping & lots of fatigue. I did have a bout of afib after I came home, but none since - it's been a little over 1 1/2 years now. My doc said in 6 weeks you'll feel pretty decent, in 12 weeks pretty good - that held true for me. It's not a cakewalk, but it's very doable - compared to chemo, not nearly as hard! Best wishes, the waiting is the hardest part!
John Morales Thanks Guys appreciate the support and well wished Barbara I have not met the Dr yet he called me I ... Read more
John Morales Thanks Guys appreciate the support and well wished Barbara I have not met the Dr yet he called me I will see him on the 9th , I guess like most having watched the surgery I have a fear of when they stop the heart to work on it, it has given me nightmares anyway I will keep coming here as Im needy and the support and well wishes are most needed , its just sad that as I look back tru the stories , as people improve they don't return here to help the new people who are up next anyway as I did with the prostate group I return there to help the new ones and let them know they will be ok …
John
Brian Havlin Hi John, I watched videos too. Be careful with that because it can make your anxiety worse. I would ... Read more
Brian Havlin Hi John, I watched videos too. Be careful with that because it can make your anxiety worse. I would research success rates and likelihood of a full recovery which I would say are excellent. In my case, I didn't have any actual heart pain. I did have pain on my right side of my chest where the surgeon and robot entered to perform the procedure. For me, the most uncomfortable feeling was once the chest tube was removed. There was some pain through my right side. Much of my right side is numb now from nerves etc. But it's getting better. I noticed that my heart would occasionally feel like it was beating differently (maybe faster or harder at times) but that's to be expected right after OHS. They were monkeying around with your heart. Each of us is different and may experience different aches and pains after surgery. I can say that as time passes these things subside and go away. It just takes time then you can thoroughly enjoy your newly fixed heart. Hang in there John. I know it's stressful. You don't know me but trust me, I had so much anxiety and the actual procedure (stopping the heart included) was nothing. I was asleep and you will be too. You'll wake up and it's over except for healing. I will continue to pray for you, your anxiety, your procedure, your surgeon, and your recovery. You will be fine!! Try to relax a bit and I hope you have a great Christmas and New Years. If you need to talk to someone let me know.
Bradley Dunn I had some soreness in my breasts muscles... That's about it. Never really had any incision pain.
John Morales HI Brian thank you for your reply , I see you had robotic , mine will most likely be the traditional ... Read more
John Morales HI Brian thank you for your reply , I see you had robotic , mine will most likely be the traditional crack your chest open surgery , I would def like to have a chart with you at some point how do I get you my details all the best John
Brian Havlin 3305597019
Bhavlin@waterstonemortgage.com
Rob Sparling John, people return.... Keep posting, keep improving, keep walking, keep posting, keep improving, ke ... Read more
Rob Sparling John, people return.... Keep posting, keep improving, keep walking, keep posting, keep improving, keep walking. Keep.... 💪❤️
Dan Vechiola John, the only discomfort post surgery were my chest muscles and sternum being dedicate. As they hea ... Read more
Dan Vechiola John, the only discomfort post surgery were my chest muscles and sternum being dedicate. As they healed my sleep improved and my life started getting back to normal. Please know that the waiti is the hardest part and the surgery/recovery will be nothing like you are expecting. Stay close to this great group. We will guide you along the way.
Dan Baltazor I had some internal pain and sternum pain but could manage it with Extra Strength Tylenol. I'm 6 week ... Read more
Dan Baltazor I had some internal pain and sternum pain but could manage it with Extra Strength Tylenol. I'm 6 weeks post op and I'm taking a dose just twice a day for achiness instead of every 6 hours. My sleep is almost returned to normal.
I just had my OHS on 12/7. I had mitral valve repair and tricuspid repair with Barlow's valve disease. I also had some afib/ irregular during Hr after surgery. But they got it under control in icu. They performed some procedure my hubby says that us standard for these types of afib things. I didn't feel any pain from heart muscles. Biggest complaint has been right shoulder blade and chest muscles tightness. Keep doing the deep breathing exercises. The incision has not produced much pain but is the most visible from the OHS. Your fears are valid but don't let them consume you. Everyday has it challenges along with successes.
I made sure I had some biofreeze or China gel for my shoulders. I also played meditation music. My choice was artist called aoeliah. Also I had a rag with lavender oil to help me relax in a zip loc bag in the hospital. The nurses keep pain managed well. I am 17 days post surgery taking a little pain med in the morning and at bedtime and filling in with Tylenol. The exercises pt gave in hospital is helping. Everyday is different. I am trying to be patient with myself.
steve pruett I had Barlow Disease and that is a more challenging surgery than normal. He was able to repair my va ... Read more
steve pruett I had Barlow Disease and that is a more challenging surgery than normal. He was able to repair my valve vs replace which was great. THat seems to be his specialty. They did they MAZE procedure to correct my afib during my surgery as he said, about 10 minutes extra.
Easy to say not to worry but this is where trusting your surgeon. You are accurate, they are confident. My guy said this was not his first rodeo. Dr. McCarthy was very aware of my condition and that gave me great comfort. Best of luck and wait to hear from you about your successful procedure.
Phyllis Petersen Hi John, The time spent on this site does taper off for most of us as we move back into our normal li ... Read more
Phyllis Petersen Hi John, The time spent on this site does taper off for most of us as we move back into our normal lives. Also, there are a lot of people in the community, so I know I don't see every new person or post. I had mitral valve repair in October 2016. I knew I had MVP, but was surprised when I went to have knee replacement and need cardiac clearance that I needed the valve repaired. The bouts of fatigue were very frustrating and I can't say that I found a way to deal with them. I took a package for early retirement in May 2013, but was packing up and selling my house in Staten Island and moving across the country to Tucson, AZ. Then, I was dealing with my mortgage bank who had messed up years before and had failed to fix the problem, but wouldn't listen to me. The stress, the two locations, etc., etc. weren't helping. I had finally been able to fully move to AZ at the beginning of 2016 and then had to have two major surgeries. At least I wasn't fighting cancer like you've been. I was able to have robotic surgery and had options because of my health insurance. Each method of doing the repair has it's good points and bad points. But it's definitely going to be worth it. You'll be horribly exhausted immediately following the surgery, but recovery generally progresses more quickly than you might expect. Feel free to read my journey. All the best in getting through the process!
OK Heart Valve Family, I got a chance to speak to Dr Grossi this morning about my case, and he said I need , Mitral Valve and tricuspid repair and also dealing ...Read more
OK Heart Valve Family, I got a chance to speak to Dr Grossi this morning about my case, and he said I need , Mitral Valve and tricuspid repair and also dealing with my afib, he said after 20 years of afib my heart has enlarged a bit causing the Mitral to leak and it needs repair, HE has almost 30 years of experience in OHS. Im going to need the whole gambit of test which anyone who has had this is familiar with. TEE, Cath , Cat scans, Pulmonary function and all the blood test , to say this is totally freaking me out is to put it mildly ,
He has done surgery almost on a daily basis, but there is always a risk of fatality they will nto do robotic or MI as I have multiple issues which are nor a good candidate for robotic... I know I dont have any option but to get the surgery . Im so scared but i see so many here who have had them done with great success. I wish i could wake up and have this all behind me it will probable be a few months but im going to use all the successes on here to help me get thru this....
Has anyone else had both valves repaired and a-fib arrhythmia dealt with during there surgery I am now assuming that the traditional surgery i will get means it will be a longer recovery period for me. anyway thanks again all I will need much support in the nest few months to get thru this.
And last but not least how smart is it to go youtubeing looking at the operation , was probably nto a smart thing to do I guess..
John
Dan Vechiola I was terrified all my life of having my aortic valve replaced. I ran from it to the end of the road ... Read more
Dan Vechiola I was terrified all my life of having my aortic valve replaced. I ran from it to the end of the road when I had no choice. I found the best hospital and surgeon near me and put my fate in their hands. I then began to learn, read and research as much as possible. Knowledge is power and the more you have it make this process easier. I went from terrified my entire life of this surgery to confident. As far as the videos, I watched 6 different aortic valve replacement surgery videos on YouTube. Again knowledge is power and it was beneficial to learn as much as I could and tame my mind.
Brian Havlin It is a scary thing. I was in your shoes just over 3 weeks ago. I can honestly say that the surgery ... Read more
Brian Havlin It is a scary thing. I was in your shoes just over 3 weeks ago. I can honestly say that the surgery was the easy part. Recovery can have it's challenges but nothing you can't get through. Trust me, these surgeons really know what they are doing. This is pretty easy stuff for them. Once you get the surgery your problem will go away. Good luck to you John! You'll be fine!
Dan Baltazor I agree with Dan and Brian. Praying for Peace for you.
John Morales Brian , thanks I may lean on you as it appears your very similar to me in this regards fortunately yo ... Read more
John Morales Brian , thanks I may lean on you as it appears your very similar to me in this regards fortunately your on the road to recovery and I'm glad to have virtually met you and the others on here who are gpoing thru all this ... As we say in my business its doesn't take a lot of people to make a great party it just takes the right people.
Rita Savelis I had 2 valves replaced (aortic and mitral) and the tricuspid repaired. There is a lot of anxiety bef ... Read more
Rita Savelis I had 2 valves replaced (aortic and mitral) and the tricuspid repaired. There is a lot of anxiety before OHS, and then it's over and you start the recovery period where you will be very tired for days or weeks or months and perhaps deal with some side effects/aftereffects which should pass. And then you realise a year has gone by and you're okay and you can think about other things. Everything you are feeling is normal. It's hard. And it can help to express everything you are feeling. Take care. Wishing you the best.
Barbara Wood Has anyone mentioned having a maze procedure along with the repairs? They usually recommend having o ... Read more
Barbara Wood Has anyone mentioned having a maze procedure along with the repairs? They usually recommend having one if you have a history of afib. My husband watched a few surgery videos, I never worked up the nerve:). Recovery has it's challenges, but the relief of having surgery behind you is so great! Best wishes!
Lisa Guinan My sister had her mitral replaced and tricuspid repaired. She had atrial and ventricle enlargement. I ... Read more
Lisa Guinan My sister had her mitral replaced and tricuspid repaired. She had atrial and ventricle enlargement. I’m not sure if she was in AFIB before her surgery but she has been since. She also had a very low heart rate so she ended up with a pacemaker before she went home. She also had an ablation 5 weeks after surgery. She’s 71. Best of luck to you.
MARIE PICUN I was scard, had anxiety. These heart warriors help me get through the operation and now in recovery. ... Read more
MARIE PICUN I was scard, had anxiety. These heart warriors help me get through the operation and now in recovery. You will get through this .
Rob Sparling John, find the right team and thread a needle through all of your concerns, risks and needs. It can ... Read more
Rob Sparling John, find the right team and thread a needle through all of your concerns, risks and needs. It can and will happen! Prepare for it. Will it. Visualize it. Pray for it.
The right team can truly work miracles; add faith to the equation to tip the scales. Do everything possible for them so all involved have a clear path to put the odds in your favor!
Research relentlessly and learn all you can until an option stands out as being the best way forward.
Hello everyone my Name is John im 64 and live in NJ , I hope you are all as well as can be, I have arrived here in search of support and comfort form those ...Read more
Hello everyone my Name is John im 64 and live in NJ , I hope you are all as well as can be, I have arrived here in search of support and comfort form those who are like mem scared of the thought of OHS death petrifies me ... I battled Prostate Cancer earlier this year and just as i was feeling better and recovering after all the treatment this ,I had severe shortness of breath and constantly tired and sometimes get lightheaded , has most of the test done and thought i had some pulmonary issues and 2 weeks ago the ECHO reveled severe mitral valve regurgitation I knew something was wrong i could barley get up a flight of starts without huffing and puffing. and my legs were swelling up a bit. yesterday the Dr redid the ECHO himself and confirmed the diagnosis. And said you need this repaired. Being a Veteran adn no other medical insurance i don't have many options but i have to say i have always been happy with my care at the VA.. I live in New Jersey they said they will send me to NYU and a Dr called Eugene Grossi at NYU Langone .. and am waiting for my appointment to meet with him to discuss my case and I assume make an appointment for the surgery. I also have afib and i have a pacemaker to boot.
I travel extensively for my work and fly very often long haul flights. so for those with some pre op experience , i have a few questions how do you deal with the extreme shortness of breath are there any tricks to help make it more manageable and take less strain off the heart .
For me as im sure for most the mental dwelling and worrying is overwhelming to think og OHS i couldn't think of anything worse to worry about .
Thank you in advance to anyone who answers and shares in my struggle , mos tof us come here because were desperate for someone to tell us were goanna be ok. My wife and family are super supportive but if yu r like me you don't want to burden them with your stress. OHS makes you think of the worse things
John
John
Brian Havlin John-sounds like you've been through a lot lately. I don't know what to say about the shortness of b ... Read more
Brian Havlin John-sounds like you've been through a lot lately. I don't know what to say about the shortness of breath. I haven't experienced that. What did your cardiologist say? The good news is that the mortality rate for this type of procedure is very good. So like 999 out of 1000 patients make it through. That's excellent if you ask me. It may vary from hospital and surgeon but that's what my research has uncovered. It's completely normal to feel anxious about it. As my surgeon put it, mitral valve regurgitation is a plumbing problem that can be fixed. You need a good plumber. I found out in June of this year that I was having surgery on 11/26. It was a very stressful 5 months. Looking back on it, the easiest part is showing up and having the surgery. You're asleep and don't know anything. The recovery can be challenging. I've learned that it's different for everyone. Each person experiences different things. Some people cruise right through it.
There is also a maze procedure that can be done that may help with your A fib. Make sure you ask about that. I know what you're going through. Feel free to reach out if you want to talk. I'll be praying for you.
Dan Baltazor John - The hardest part of this is the waiting. I'm at my 4 week mark post op and can tell you that t ... Read more
Dan Baltazor John - The hardest part of this is the waiting. I'm at my 4 week mark post op and can tell you that the time leading up to surgery can be stressful, but once you lay down on that pre op bed the medical team really put me at ease and I just trusted in their expertise and experience. They do this everyday. Yes the recovery can be challenging and I had my share of issues as do most patients, but we work through them one day at a time. I think you should not worry about being a burden on your family and rely on them to help you get through this journey. OHS is a big deal and we all need help from our family and friends. I sure know I have and it has helped me in so many ways! I will also be praying for you as you go on this journey.
Janice West Hi John, I am 63 and 7 weeks post op. About shortness of breath - I was told to try to inhale throug ... Read more
Janice West Hi John, I am 63 and 7 weeks post op. About shortness of breath - I was told to try to inhale through my nose and exhale through pursed lips to help get breathing back to normal. I don’t know if it really worked but it took my mind off of huffing up the steps. When I was first told I may need OHS I was “No how, no way!” I felt fine. They said my quality of life would improve and I sat there thinking my quality of life is just fine. There was no way anyone was going to crack me open. I found this group, watch several videos, one of valve replacement OHS in its entirety and finally came to a peace about it. Ultimately the choice was really to live or die. Once I accepted that I tried to make the best of the wait. I wasn’t scared going in, was at complete peace and looking forward to it being done so it would be over. I like details. I want to know what is going to happen and why. The more information I got, the more empowered I got. This forum was a proverbial life saver for me. We are here to support you and each other. Hang in there!
Marie Myers I can sympathize. I was 63 when I had my surgery, and I was scared from the time I found out I needed ... Read more
Marie Myers I can sympathize. I was 63 when I had my surgery, and I was scared from the time I found out I needed surgery to the minute I woke up from surgery.
Good news is, the whole experience was easier than I thought it would be. Pain was not a big problem, but fatigue was. I was exhausted the first couple weeks. Things got better day by day, as it will for you. The waiting was the hard part, because your mind can make you worry about all kinds of things. Have faith that you will do well. It amazed me that these big surgeries are done every day, in every state in the country. Put your faith in the medical team and take that leap of faith. You WILL get through it!
MARIE PICUN Just had my heart valve aortic valve surgery on October 9. Talk about anxiety,I was the queen. The da ... Read more
MARIE PICUN Just had my heart valve aortic valve surgery on October 9. Talk about anxiety,I was the queen. The day of surgery, I was calm but nervous. The heart warriors our brothers and sisters will help you get through this as they did for me.
John Morales I want to thank everyone for their comments and suggestions , As I said Im a Veteran and a patient at ... Read more
John Morales I want to thank everyone for their comments and suggestions , As I said Im a Veteran and a patient at the VA hospital this procedure is not done there and is being farmed out to NYU in NY and a Dr Eugune Grossi and it looks like a good place with lots of experience the biggest issue as everyoine has said is the waiting Ihave to waiot to get an appointment to meet with the surgeon and that may not be till jan sometime then wait for my date that could be a few months my Dr said I wasn't going to die anytime soon but to understand my limitations due to the regurgitation andnot to exert my self to much so im going to try and be patient and come here for support and to lend whatever I can when I was in the Prostate Forum they helped me deal with the set back I had hopefully there wont be any here. thank you all for the love and support its much needed.
Im curious on average how long did some of you wait after you were diagnosed to the time you had your OHS procedure.
Dan Baltazor I was diagnosed as a youngster, but test findings this past September showed it was time for surgery. ... Read more
Dan Baltazor I was diagnosed as a youngster, but test findings this past September showed it was time for surgery. I was slated for Feb./March of 2019, however pre op test showed I was critical. They moved me up as soon as they could. I had symptoms including shortness of breath and I just avoided exertion until surgery.
John Morales Thanks Dan for your reply , the worse thing is that once your diagnosed even though you have had the ... Read more
John Morales Thanks Dan for your reply , the worse thing is that once your diagnosed even though you have had the symptoms for some time every little pain or ache , concens you , not to mention the everyday pains just makes it all worse so ill keep tryin gto be positive and wait my turn I don't think the Dr. would of not be overly concerned if it was something severely serious not that it isn't , I just come here to vent now but do notice and I'm sure its a necessary evil that there are a lot of Dr ads. on this site.
Marie Myers I had my surgery 7 months after my aneurysm was diagnosed.
John Morales Thank you everyone for your replied and support, as I've said just started this journey , haven't eve ... Read more
John Morales Thank you everyone for your replied and support, as I've said just started this journey , haven't even met the surgeon yet, hopefully this week but i know i need this my 2 cardiologist said so after 2 echo's, they said you need open heart, im like, really me , why , its been a rough year i spent it battling prostate cancer and just as i was getting in front of it , they tell you oh By the way the reason your so short of breath and alwasy tired and light headed is you have severe Mitral valve regurgitation .you need open heart. surgery.. really why me ... then it starts to circle in your head and you keep saying why me, haven't i had to deal with enough ( i guess not) yes i have a fear of dying and the prospects of this surgery and the need to stop the heart is not comforting I fell i have so much left to do at 64, my mom is 90 and hasn't a care in the world just says when its my time im ready ...um no im not ready at all . I found alot of support and solace in the prostate forum that was very active so hopefully here i can find some and help me as i start this journey , i notice its not as busy but hopefully i can get wht i need , so again thank you for replying ot me not feeling alone is a welcome necessity , so ill be back and often to hear the comments and results of those who go before me that you will be great after comments, form you guys who have been there are are about to go there thanks again i need you guys.
John
Brian Havlin John-all the things you're saying is normal. Most people on this site have had the same thoughts. E ... Read more
Brian Havlin John-all the things you're saying is normal. Most people on this site have had the same thoughts. Especially me! You mention stopping the heart. They do it everyday thousands of times a day. I asked my surgeon how does he know my heart will re start and he looked at the light switch on the wall and said if you turn that off and back on the lights will go out and come back on. He said it's the same with the heart it just starts back up. Find a surgeon that makes you feel comfortable and trust them. This is what they do everyday. Our medical procedures (particularly for this type of operation) are so advanced. Don't want to down play it too much but seriously you will be fine. The best part is that you're asleep so when you wake up it's over except for recovering from it. Again, your thoughts are all normal. We've all been there. It's the worse part...the time leading up to the surgery. Hope this helps. Take care of yourself!