Super itchy rash where my adhesive was. Anyone else experience this a week after surgery?
Journal posted on January 16, 2019
All post surgery patients, I’m 8 days post surgery. Where my adhesive was around my incision is super itchy and irritated! Anyone else have this issue? It’s spreading a little out onto my chest. It’s only on my chest and belly area (thank goodness) and not all over my body.
Tomorrow marks 7 days. One whole week since surgery. Wow! I can’t belive how far I’ve come in 7 days. Amazing what the body can do but i need some suggestions for a few things:
1. How on earth do you keep comforbale in a recliner without using your arms to adjust your body?
2. Other than heating pad, roller ball, oil rub, massaging.... any other suggestions to get the aches out of my neck, traps, and shoulders? They’re way worse than my incision itself.
Love love love to be home. I did enjoy the security of the hospital by being hooked up to monitors. I feel like my heart beats normal, then hard, then pounds, then palpitates.... i guess it’s trying to calm down from being poked and prodded too. There were no flags from the second the surgery started so they had no reason to keep me there. My surgeon said surgery couldn’t have gone better but my regurgitation was more severe than any test showed and actually my echo showed more than the mri. My muscle aches are slowly subsiding although my neck and shoulders still are so tight. I stopped the oxycodone quickly. It made me feel beyond awful.... scary thoughts, sweating, rapid breathing, cloudy memory.... yuck. I feel so much better off them. Every so often I take Ultram but so far being home, Tylenol has been just fine. My plan is to shower or have someone help me shower today. I can’t wait for a good shower! I’m sleeping in a recliner which is what it is. I miss my bed but know it’ll be a while before I comfortably roll on my side. So far so good. It hasn’t even been a week. Our body’s are amazing, doctors are amazing! Thinking back to the past few days is a big blur. So so so happy to be on this side. To those who did it, I get it! Waiting is so hard. The unknown is even harder. Those of you waiting, in a snap you’ll be home in your recliner too thinking “did i seriously just have open heart surgery!?”
Life is good!
Fresh air, sunshine, and a family hike was the perfect way to spend 2 days before surgery. Emotions and nerves are starting to fly high!
T - 4 days!
Journal posted on January 4, 2019
Lots of prep and finalizing these last few days. All my tests and bloodwork came back and all looks good. Amen!
I finished up my work week with my first graders. Today was my last day until April. They had so many questions and some were brought to tears. I didn’t even tell them much, but it still got me emotional a bit. My coworkers are incredible and worked together to round up lots of gift cards for my family to use while recovering. So nice!!!
I went to Khols and loaded up on a new robe, button up jammies, comfy pants, etc for my days at home recovering. I haven’t packed yet but made a list of all the things you all suggested (thank you!!!). I even started an instagram page to document my reset and process as I heal. It’s amazing the connects that can be made through social media.
I’m sleeping at night just fine. Although nervous, I’m proud of how calm I actually am thus far. I think I’ll be fine until Monday night and surgery day on Tuesday. I can’t believe that after this weekend it’s time to rock and roll.
I consider my lifestyle a healthy one but I want to eat as healthy as I possibly can after surgery. From what I hear and read, I won’t have an appetite for a while. Do (Did) you follow a certain eating plan after surgery? Low sugar for sure.
I give my calm self being to all of you keeping me positive and optimistic!
All that keeps resonating in my mind today is that it’s the 8th. The next 8th is surgery day. I’ve been so ready, so optimistic, so eager to get it done. Today, my stomach has butterflies and I’m feeling more nervous than I’ve felt. How often do things go wrong? Is my heart palpitating more today because its a symptom or because I’m growing more anxious? How bad will this hurt? Will my little girl be ok home with Dad and her grandmas who will be babysitting her? $h*t is getting real! What were some ways to keep calm before your big day? I did get a massage yesterday that was so relaxing. One month... one more month....
Hi all! I know some of you had answered so many of my questions prior to this post, and I'm sure more now will be coming. The picture below was from my MRI that showed it's go time for surgery. I'm a young 35 year old active mom and healthy! My plan was to go to Cleveland Clinic but then I fell into the hands of Dr. Bailey at Allegheny General Hospital in Pittsburgh, about 35 minutes from my home. I can't say enough good things about him, and feel confident that he's going to take good care of me. He HAS to take good care of me. I've seen this surgery coming for about 2 years now, but am in high spirits and am ready to tackle this feat! I only get emotional when I think about my four year old daughter. I HAVE to get through this for her.
Reading your posts have given me such confidence that I'm going to go into this and come out stronger than ever. From what I'm reading, the anticipation is the worst part. I'm in high spirits right now and am glad that the hustle and bustle of the busy holiday season will keep my mind off of it. I have a fantastic support team of my husband, parents, in laws, grandparents, aunts, uncles, friends, coworkers, and even students! (I'll be taking some time off of teaching my first graders.)
I'll be having an aorta tissue valve replacement along with the fixing of my aortic aneurysm. The size of my heart and my wonky looking aorta tells Dr. Bailey it's time. Since the heart is a muscle, can the size go back to normal? Another sigh of relief is that once fully recovered, I will get the green light to try to carry a pregnancy! How awesome would that be!?
I'm so fortate for this site to post, ask questions, and read real stories. Thank you ALL! You're all an inspiration.
Cheers to starting 2019: beginning a new year, and a new chapter in my book of life!
I feel like my journal is going to get longer in the next few months. I met with my cardiologist today. My echo results aren't in yet, but we had a long, extensive talk about surgery. Because I'm young (er) and want more children, I have really been weighing the pros and cons of valve replacement (bicuspid aortic value being replaced with a tissue valve) and also fixing my dilated aortic aneurysm.
I LOVE my cardiologist, Dr. Follansbee, as I said in my last post. He didn't tell me what to do, but really spoke my language when making a decision. "There's no greater gift than extending your family and don't let the thought of surgery keep you from that." After meeting with him, I want the BEST care from the BEST doctors. Because I live in Pittsburgh, the UPMC doctors I want to see aren't covered by my Highmark insurance, which leads me to Cleveland Clinic.
I would like recommendations on the best surgeons at Cleveland Clinic and need your help! Feel free to share success stories, too! The sooner I plan this and go the better!
Hi all! I have found so much comfort in reading everyone’s corgagous stories! I’m seeking advice as I round the corner to my next cardiology check up next week.
I have a bicuspid aortic valve and an aortic aneurysm. Forever, the dilation of my aorta was 3.5. I was able to carry a baby who is now 4 years old. Jump ahead to a year ago, and the dilation now sits at 4.4. After speaking to many doctors and surgeons, I have accepted that trying to conceive would be a poor and risky decision.
For a while, I felt at peace with having one child, but my husband and I are now wanting more kids to add to our family.
My question is: is it worth the surgery? I realize that’s a question I have to dig deeper into with myself being the ultimate deciding factor, but after reading so many success stories, I’m hopeful that my recovery would also be one to add to the list.
I’m 35 years old, and if more children are in my future, I really don’t want to hold off much longer, but the thought of the surgery holds me back.
Obviously I would have to get a tissue valve. The new longer lasting valve Adam posted about a little while back really sparked my curiosity. Being that I’m only 35, another procedure is almost guaranteed down the road as I age.
I live in the Pittsburgh area, and love my cardiologist Dr Follansbee. Unfortunately due to insurance battles, I am not able to see him much longer. I have also met with and like my surgeon, Dr Culig out of Forbes, but am willing to get other opinions and open to good doctors any of you may suggest in the area. I’m also not opposed to travel a little if it’s for the best care.
Are there any women who went through the valve replacement around my age who then had a baby when the time was right?