Hi all! I know some of you had answered so many of my questions prior to this post, and I'm sure more now will be coming. The picture below was from my MRI that showed it's go time for surgery. I'm a young 35 year old active mom and healthy! My plan was to go to Cleveland Clinic but then I fell into the hands of Dr. Bailey at Allegheny General Hospital in Pittsburgh, about 35 minutes from my home. I can't say enough good things about him, and feel confident that he's going to take good care of me. He HAS to take good care of me. I've seen this surgery coming for about 2 years now, but am in high spirits and am ready to tackle this feat! I only get emotional when I think about my four year old daughter. I HAVE to get through this for her.
Reading your posts have given me such confidence that I'm going to go into this and come out stronger than ever. From what I'm reading, the anticipation is the worst part. I'm in high spirits right now and am glad that the hustle and bustle of the busy holiday season will keep my mind off of it. I have a fantastic support team of my husband, parents, in laws, grandparents, aunts, uncles, friends, coworkers, and even students! (I'll be taking some time off of teaching my first graders.)
I'll be having an aorta tissue valve replacement along with the fixing of my aortic aneurysm. The size of my heart and my wonky looking aorta tells Dr. Bailey it's time. Since the heart is a muscle, can the size go back to normal? Another sigh of relief is that once fully recovered, I will get the green light to try to carry a pregnancy! How awesome would that be!?
I'm so fortate for this site to post, ask questions, and read real stories. Thank you ALL! You're all an inspiration.
Cheers to starting 2019: beginning a new year, and a new chapter in my book of life!
I feel like my journal is going to get longer in the next few months. I met with my cardiologist today. My echo results aren't in yet, but we had a long, extensive talk about surgery. Because I'm young (er) and want more children, I have really been weighing the pros and cons of valve replacement (bicuspid aortic value being replaced with a tissue valve) and also fixing my dilated aortic aneurysm.
I LOVE my cardiologist, Dr. Follansbee, as I said in my last post. He didn't tell me what to do, but really spoke my language when making a decision. "There's no greater gift than extending your family and don't let the thought of surgery keep you from that." After meeting with him, I want the BEST care from the BEST doctors. Because I live in Pittsburgh, the UPMC doctors I want to see aren't covered by my Highmark insurance, which leads me to Cleveland Clinic.
I would like recommendations on the best surgeons at Cleveland Clinic and need your help! Feel free to share success stories, too! The sooner I plan this and go the better!
Hi all! I have found so much comfort in reading everyone’s corgagous stories! I’m seeking advice as I round the corner to my next cardiology check up next week.
I have a bicuspid aortic valve and an aortic aneurysm. Forever, the dilation of my aorta was 3.5. I was able to carry a baby who is now 4 years old. Jump ahead to a year ago, and the dilation now sits at 4.4. After speaking to many doctors and surgeons, I have accepted that trying to conceive would be a poor and risky decision.
For a while, I felt at peace with having one child, but my husband and I are now wanting more kids to add to our family.
My question is: is it worth the surgery? I realize that’s a question I have to dig deeper into with myself being the ultimate deciding factor, but after reading so many success stories, I’m hopeful that my recovery would also be one to add to the list.
I’m 35 years old, and if more children are in my future, I really don’t want to hold off much longer, but the thought of the surgery holds me back.
Obviously I would have to get a tissue valve. The new longer lasting valve Adam posted about a little while back really sparked my curiosity. Being that I’m only 35, another procedure is almost guaranteed down the road as I age.
I live in the Pittsburgh area, and love my cardiologist Dr Follansbee. Unfortunately due to insurance battles, I am not able to see him much longer. I have also met with and like my surgeon, Dr Culig out of Forbes, but am willing to get other opinions and open to good doctors any of you may suggest in the area. I’m also not opposed to travel a little if it’s for the best care.
Are there any women who went through the valve replacement around my age who then had a baby when the time was right?