To those who are on the journey to getting an aortic valve replacement - I am living proof that all turns out just fine. My surgery was done on November 16 ...Read more
To those who are on the journey to getting an aortic valve replacement - I am living proof that all turns out just fine. My surgery was done on November 16 2015 - I am now pumping through spin class with ease, strength training, working full time, and living all the delights and frustrations normal life throws at us...
You have EVERY REASON to believe this will be you too! Breathe, be thankful that a "fix" exists (as challenging as it may be at times) and know that your life will be yours again.
Be hopeful, be strong, and believe you will come out the other side of this.
Best wishes everyone!
Adam Pick Love'd reading this Anita! Way to inspire others with your story, your heart and your voice! Adam
Rob Sparling Anita, always glad to see a waypoint like yours! Way to go and thank you!
Hey everyone out there - just want to let you all know that there is life after valve surgery! It's coming up to 18 months since my aortic valve replacement ...Read more
Hey everyone out there - just want to let you all know that there is life after valve surgery! It's coming up to 18 months since my aortic valve replacement and my ascending aortic aneurysm repair - and I feel great. I go to the gym at least three times a week, work full time, golf, and even do spin classes. I have no chest pain, can catch my breath easily after a workout and generally have my life back. Have courage! Have faith! The chances are absolutely excellent that you will be where I am in the future. Sending hugs and good wishes to all!
Jeanette Davidson So happy to hear you are doing so well. God Bless You💕
Brenda Miller Super read...you hit it bang on...I am also living proof being 11/2year post bovine AVR and aortic ro ... Read more
Brenda Miller Super read...you hit it bang on...I am also living proof being 11/2year post bovine AVR and aortic root patch...back to work in the operating room feeling much more courageous and resilient...feeling very blessed and super thankful to Dr Tirone David and his team at the Toronto General Peter Munk Cardiac Centre❤️❤️❤️Take Care & God Bless All
Ellen Leng Thanks for the encouraging posts!! We all look forward to long term resilience
I just want to reassure anyone starting out on this scary path, and put you at ease, at least as much as possible. I have been living with my new bovine aortic ...Read more
I just want to reassure anyone starting out on this scary path, and put you at ease, at least as much as possible. I have been living with my new bovine aortic valve and repaired ascending aortic aneurysm for more then a year; my surgery was November 16, 2015. I can now walk up hills without chest pain and laboured breathing. I have done spin classes, hiked 10 km, and been to many yoga classes in the past year. I felt the sun on my skin in the summer while swimming in Georgian Bay (Lake Huron) and felt the first snow flakes just this past week.
Yes, this journey isn't easy, but it's worth it. You will be stronger for it, and you will feel the joy of being alive. Just breathe, try to relax, do what your doctors tell you to do, expect some bumps in the road but have faith you will continue stepping down the path. Good luck everyone, and may you find some peace in every day. That was one of my goals when I was waiting.... and waiting... Now I live for today and still try to find peace in the days God gives me. Happy belated Thanksgiving to our American friends. Life is a gift we should all be thankful for :)
Jeannette McLaughlin Very well said, Anita. You are an inspiration for sure! On Sept. 28, 2016, I had a bovine aortic valv ... Read more
Jeannette McLaughlin Very well said, Anita. You are an inspiration for sure! On Sept. 28, 2016, I had a bovine aortic valve replacement, as well as replacement of the ascending aorta (due to aneurysm). I have no symptoms whatsoever of these replacements and I recovered very quickly. The only hic is the pacemaker I received eight days after the surgery due to a complication with the electrical system of my heart (the device is very visible and it keeps poking me in the arm; it probably would be different if I had more fat!) I was very active before the surgery and so far, I've only been walking. I asked a nurse about biking and she said it might be risky in case I fell and poked myself in the chest. I got the okay to go cross-country skiing at the end of Dec. Isn't it just amazing how the human body can heal itself ?!
Lilly Black Right on, Anita. Very scary but definitely worth it. We are living proof. By the way, I am Canadian t ... Read more
Lilly Black Right on, Anita. Very scary but definitely worth it. We are living proof. By the way, I am Canadian too. My sister and dad still live in Quebec, where I'm from. I'm planning to pay a visit in 2017. I left Canada in the 70s. Take care, and thanks for the great TG message!
Going back to work (just afternoons) on Monday - I can't believe Monday will be 9 weeks. I have a desk job so this is not surprising. My biggest concern will ...Read more
Going back to work (just afternoons) on Monday - I can't believe Monday will be 9 weeks. I have a desk job so this is not surprising. My biggest concern will be the stress from office politics and drama. Certain personality types can be difficult as well.
I am in the process of getting going with cardio rehab. My boss has been wonderful and is allowing me the two mornings per week (Tues and Thurs) for the 12 weeks it takes. I am also going to change my hours to 10am to 6pm, after the two weeks are up, to allow for exercise time. I see how important it is to carve out time for this, so I am making it a priority, as well as losing quite a bit of weight -
This is a year long process. I understand there is no fast way through this.
My cardiologist allowed me to discontinue my beta blocker, thankfully. He had me wear a Holter Monitor for 48 hours and said if I don't hear from him I would see him next year. I just have one more hurdle with doctors, that being the surgeon in a few weeks. Don't have that appt yet, but I anticipate it will go well. The one thing I have discovered is I have developed "white coat syndrome". I tend to be high strung (I admit to having anxiety) and having gone through this just made it worse at times. Having my blood pressure taken in a doctor's office hasn't gone well for me lately. I have been monitoring my blood pressure at home and its normal for someone not on meds. I am only taking aspirin and iron for anemia that I have had for a few years (stemming from something else altogether, the surgery made it worse of course).
I am starting to feel like my life is coming back.
So we will see how the next phase turns out...
When I went to the hospital for my pre-op checks, they asked me my birthdate and weighed me and took my blood pressure about 6 times. I started reciting it at every stop before they asked and predicting what my blood pressure was going to be.
This all worked great until I got to the surgeons office at the end of the day for that last "go/wait consult." My blood pressure was up 20 points.
Also, when I went into the cath. lab for my procedure a few week before surgery, my blood pressure went up about 20 points.
So it seem to be part of my body's natural reaction to these kind of situations. Even though I was not aware I was anxious, underneath it was working on me.
Sophia Ridley When mine was high going to the GP was a blessing as it seemed to normalise! Probably the adverse as ... Read more
Sophia Ridley When mine was high going to the GP was a blessing as it seemed to normalise! Probably the adverse as I knew I was getting help.
Hypnotherapy has helped me get used to having bloods taken, maybe it could help you relax before appointments ?
I just wanted to reassure everyone that has impending surgery - you will make it! I feel really good, considering I had open heart surgery via sternotomy to ...Read more
I just wanted to reassure everyone that has impending surgery - you will make it! I feel really good, considering I had open heart surgery via sternotomy to replace my aortic valve and repair an aortic aneurism just 5 weeks ago. I know our journeys are unique and we all do this our own way. My advice for anyone who is going through this is to be patient with yourself, and try to be grateful every day. Attitude means so much. Some days are better then others, especially in the first 3 weeks - remain optimistic. You will come through this.
Terrie Syvertsen Anita- This was a kind hearted post of support and thoughtful use of words just at a time for some wh ... Read more
Terrie Syvertsen Anita- This was a kind hearted post of support and thoughtful use of words just at a time for some who need it more than others! Especially for those people getting ready for their surgeries. Thank you for sharing these thoughts to our heart brothers and heart sisters and I wish you Happy healing as well as Happy Holiday's and New Year!
Steven A Husted what a beautiful post i agree with it may the good lord above give you a smooth recovery and may you ... Read more
Steven A Husted what a beautiful post i agree with it may the good lord above give you a smooth recovery and may you have a merry christmas and a happy new year
Liz Burroughs Hi Anita, I'm glad that you're feeling good & I really appreciate your advice! Sometimes I forget to ... Read more
Liz Burroughs Hi Anita, I'm glad that you're feeling good & I really appreciate your advice! Sometimes I forget to be grateful & start feeling sorry for myself. I need to start the new year with a good attitude & a grateful heart. Merry Christmas & Happy New Year!! May your 2016 be filled with happiness & good health! Take care. Liz
Emily Rowley Thank you so much Anita for your lovely Post. Giving me hope for my upcoming Open-Heart Surgery. Last ... Read more
Emily Rowley Thank you so much Anita for your lovely Post. Giving me hope for my upcoming Open-Heart Surgery. Last night I had a bad dream there was nothing the could do to save me, then I woke up this morning reading your great Post :) Wishing you all the very best!
Is anyone on Beta Blockers post aortic replacement? I am on Metoprolol and am wondering how long I will have to be on them. The surgeon gave me a three month ...Read more
Is anyone on Beta Blockers post aortic replacement? I am on Metoprolol and am wondering how long I will have to be on them. The surgeon gave me a three month supply. Like usual, I read up on the side effects and now am worried about them. (shortness of breath, dizziness, light-headedness - I thought I was supposed to get rid of these symptoms lol)
I have been reading about hair loss as a side effect and wondering if anyone has experience with this? What are your experiences with this medication in general?
Thanks for any input,
Anita
Eddie Patton I have been on it for almost 6 months not sure if it will be from now on or not, was told it would be ... Read more
Eddie Patton I have been on it for almost 6 months not sure if it will be from now on or not, was told it would be evaluated at my 1 year appointment. I think it depends on if you had high blood pressure or not, I did. As far as the hair, couldn't tell you lost mine long before I took beta blockers.
Ed Smith Anita, I have been taking Metoprolol since my AVR surgery in January of this year. I did have one inc ... Read more
Ed Smith Anita, I have been taking Metoprolol since my AVR surgery in January of this year. I did have one incident of A-Fib 3 days post-surgery and the Cardiologist prescribed the Metoprolol. He feels I may need it permanently. My dose is small (25 mg per day, half in the morning and half in the evening). Initially, it seemed to cause very low blood pressure, resulting in light headiness, but that is no longer an issue. When I started cardiac rehab, my BP was often quite low at the beginning of the session, but I resolved that concern by taking the morning dose after I got home from rehab (with permission from the Cardiologist). I can't speak to the hair loss issue, as I'm almost completely bald.
Emily Rowley
I did have what you had done but Post MVRepair I was on beta blockers because my heart rate kept get ... Read more
Emily Rowley
I did have what you had done but Post MVRepair I was on beta blockers because my heart rate kept getting upto 170 bpm at rest and 200 bpm after walking, they also gave me something else for that too. Was on them for week but then I went straight off them (they stopped giving them to me) which I didn't think they could do! Beta Blockers are such a small yet powerful pill that only 10mg (1/4) is given at one time.
Sophia Ridley I had MV repair 2 wks ago and on Bisoprolol 2.5 to reduce my pulse due to continuous AFib. Might incr ... Read more
Sophia Ridley I had MV repair 2 wks ago and on Bisoprolol 2.5 to reduce my pulse due to continuous AFib. Might increase once BP more stable. I've got to take them beyond it being fixed so indefinite time at moment, also on thinners. Given impression that once my heart has healed from surgery then all of this will get better.
I noticed post op that there was more hair on the brush but haven't noticed that continuing.
Did they give you a clear understanding why they want you to take them?
Lisa Heinen I had a Ross Procedure on Sept. 30th, 2015 - I am to remain on Metoprolol
for 3 months- in my case, ... Read more
Lisa Heinen I had a Ross Procedure on Sept. 30th, 2015 - I am to remain on Metoprolol
for 3 months- in my case, it is to keep my heart rate and blood pressure low while my pulmonary valve transitions into my aortic valve. After that - I should be off all medications.
Doran Herritt I think from all the posts you can see it is quite common. I am on it but now at 5 weeks with my card ... Read more
Doran Herritt I think from all the posts you can see it is quite common. I am on it but now at 5 weeks with my cardiologist are starting to lower my dose. I did have some a fib right after surgery. Seems like it is a precaution until your heart heals for the a fib. Take care, drn
Enrique K Good Day Anita, I had minimal invasive surgery on Oct 9 for a valve replacement and root replacement. ... Read more
Enrique K Good Day Anita, I had minimal invasive surgery on Oct 9 for a valve replacement and root replacement. I was on Metrpolol for 1 month only and off that medication completely. Now take a 81 mg baby aspirin everyday for the rest of my life. Never experienced the Afib post surgery. Metropolol never made me dizzy.
W. Carter I've been on beta blockers for about 12 years, first Atenolol then Carvedilol which I have been on fo ... Read more
W. Carter I've been on beta blockers for about 12 years, first Atenolol then Carvedilol which I have been on for the last 3 years. I see all this complaining on here about them but I have never had any problems at all. If you have chf, heart palpitations, or a-fib they are a must along with an ace inhibitor and diuretics. I currently take carvedilol, lisinopril, furosemide, spironolactone, and warfarin for my heart and can't tell I take anything. None of them bother me at all. A new heart valve and vein graft will most likely save and extend your life, but they don't cure all heart disease.
Liz Burroughs I had been on Metoprolol for probably 2-3 years before I had my MV repair surgery. I never had any pr ... Read more
Liz Burroughs I had been on Metoprolol for probably 2-3 years before I had my MV repair surgery. I never had any problems with the medication; no side effects. After my surgery they told me to stop taking it. I don't know if my cardiologist will put me back on the medication or not. I'll find out next Friday.
Jean Knappik Hi Anita, I am 9 days post op and was having a lot of arrhythmias and the surgeon just prescribed 25 ... Read more
Jean Knappik Hi Anita, I am 9 days post op and was having a lot of arrhythmias and the surgeon just prescribed 25mg metoprolol for 30 days...I will keep you posted on my experience....the arrhythmias were quite a pain so I have know problem if I do not have to experience this.
Kathleen F. I had the Ross procedure last December and was on Metroprolol for only a month. When I started cardi ... Read more
Kathleen F. I had the Ross procedure last December and was on Metroprolol for only a month. When I started cardiac rehab 6 weeks later they were surprised I wasn't still taking any meds. They said that was unusual.
Kathleen F. Also, I didn't notice any side effects, except for feeling very calm. Almost "blunted" (is that a wor ... Read more
Kathleen F. Also, I didn't notice any side effects, except for feeling very calm. Almost "blunted" (is that a word?) - not excitable. I'm not sure that's a good explanation but it's the best I can come up with. I started feeling more like "myself" when I was taken off them, and I was told that's normal. But no dizziness or light-headedness that I recall. Hope that helps. Good luck in your recovery!
Wanda Mroz I have been on it since after my mitral valve repair. No issues. No idea how long I'll have to take ... Read more
Wanda Mroz I have been on it since after my mitral valve repair. No issues. No idea how long I'll have to take it but it is a good medication... Does its job.
anita egden These posts make me feel so much better; thanks everyone for responding. It's early days for me, 3 we ... Read more
anita egden These posts make me feel so much better; thanks everyone for responding. It's early days for me, 3 weeks post-op on Monday Dec 7, so there is still healing to be done. Hopefully I will be off the meds one day, but I have to trust my doctors know what they are doing. I think they were prescribed to keep my blood pressure down while my heart is healing and also to avoid atrial fibrillation. I had an aortic valve replacement and an aortic aneurism repair, so I guess I should just learn to be patient. What would I do without all of you awesome heart brothers and sisters? You truly are a gift.
It's so nice to be able to report that for the past couple of days I have started to feel pretty good... still tire easily of course, but in general, I feel ...Read more
It's so nice to be able to report that for the past couple of days I have started to feel pretty good... still tire easily of course, but in general, I feel so much better than a week ago today when I was released from hospital. Being home is very comfortable for me, although it does feel odd (psychologically) not to be going to work. I know physically I wouldn't be able to handle that - but being home in the daytime is such a novelty.
I hope everyone enjoyed their American Thanksgiving celebrations and were warmed with a sense of love and gratitude. Being Canadian and home from work I had a chance to watch the Macy's Thanksgiving Day parade for the first time in my life. I really enjoyed watching something "fun", especially after the tragic events in the world of late and my own little journey recovering from open heart surgery.
On a good note, my GP said I was doing fantastic, didn't continue the water pills or potassium, and said the incision looks very good and is healing well. Even though my own Thanksgiving celebration was more than a month ago, I truly feel full of gratitude today. We have so much to be thankful for.
Blessings to all of you,
Anita
Tammy Pilcher Great news on your recovery, Anita! Happy Thanksgiving and God bless you, heart sister!
Liz Burroughs Hi Anita, I'm glad that you're doing so well! I know what you mean about being home during the day! I ... Read more
Liz Burroughs Hi Anita, I'm glad that you're doing so well! I know what you mean about being home during the day! It really seems strange at first but it's nice to be able to stay at home to relax & rest. I'm glad you had a chance to watch the parade. It's always so much fun to watch! Yes, we all definitely have a lot to be thankful for!! Take care. Liz
Gerald Schaffer Congrats on your good news and hope your recovery continues to go well.
Kelly Weisgarber My surgery was the same day as yours. I'm feeling pretty good too. So much to be thankful for this ye ... Read more
Kelly Weisgarber My surgery was the same day as yours. I'm feeling pretty good too. So much to be thankful for this year. I'm glad you're doing well! Hope you continue to feel stronger every day.
Emily Rowley
That's great to hear you are improving nicely. I know how it's a strange feeling doing doing your us ... Read more
Emily Rowley
That's great to hear you are improving nicely. I know how it's a strange feeling doing doing your usually work routine lol Soon resting up might feel like your new routine as you're on your road to recovery. Sleep when you are tired Anita-best advise I can give you at your stage!
Well, I did it. The surgery went very well, they replaced my aortic valve and part of my ascending aorta on the 16th. I got home Friday, and although I know ...Read more
Well, I did it. The surgery went very well, they replaced my aortic valve and part of my ascending aorta on the 16th. I got home Friday, and although I know this is a long journey back to wellness, I have hope that it is so doable. Is there pain? Yes. Will it be tolerable? Yes. Will you come home feeling encouraged? I did. I am doing my 6 times 5 minutes walks around the house to equal 30 minutes, have my little low-key exercise program to keep other stuff loose, and am trying to be a good girl with my diet. I am getting used to taking beta blockers, potassium, water pills, and lots of Tylenol extra strength. Yes they gave me a morphine based pain killer, but I haven't needed it so far. Passed on a chip and dip craving watching the Toronto Maple Leafs lose to Boston last night.... Did have to sleep in an easy chair last night after trying to sleep upstairs in bed, but I am just not ready for the flat bed yet and so be it. Just trying to accept where and who I am - have a great day, Anita Egden
Emily Rowley
That's great to hear you are back home, able to begin your recovery back to good health! :D
Emily Rowley
That's great to hear you are back home, able to begin your recovery back to good health! :D
Do the water pills help release fluid?
Are they potassium tablets, how do you find them (not too salty?)? I could remember the potassium drip in my arm which would sting like crazy so they had to slow it down.
I'm very pleased to hear your surgery went well.
Haha You're allowed a yummy treat :P
Hopefully you have a very comfy chair. I know how uncomfortable Hospital chairs can get therefore I couldn't wait to reach my home bed.
Try to take each day in small steps and not over doing things, especially exercise.
Take care,
Emily.
Mindy Currence Sounds like you are on the right track! Thank you for the update! Keep it up!
anita egden I haven't noticed much change yet with the water pills but I have only taken one so far. The potassi ... Read more
anita egden I haven't noticed much change yet with the water pills but I have only taken one so far. The potassium is because of the water pills. I do have water retention from the surgery. The potassium pills are covered with some coating so I am not sure if they are salty, but the professionals explained that potassium is stripped by water pills so I will take them.
patience is the biggest lesson I have to learn in this life. I am training myself to take baby steps and to believe that's OK. Hopefully I become a good student soon...
Sam T so great! sounds like you're well on your way! keep up the great work, and positive attitude.
its so ... Read more
Sam T so great! sounds like you're well on your way! keep up the great work, and positive attitude.
its so nice to read about!
susan kotansky One day at a time...you have a great attitude. It certainly gets easier with time. I wish you the ver ... Read more
susan kotansky One day at a time...you have a great attitude. It certainly gets easier with time. I wish you the very best.
Wanda Mroz Sounds like you are doing well and on track! Best wishes for continued progress!
Steven A Husted sounds like you are doing great take it slow give your self time to heal time is a healer dont rush i ... Read more
Steven A Husted sounds like you are doing great take it slow give your self time to heal time is a healer dont rush it best wishes and god bless
Enrique K Wonderful News! Keep up the healing process.
Gerald Schaffer It sounds like you're doing well considering surgery was only several days ago. Keep up a positive at ... Read more
Gerald Schaffer It sounds like you're doing well considering surgery was only several days ago. Keep up a positive attitude and your walks.
Great news!!
Jean Knappik Anita, you sound like you are recovering remarkable...Best wishes to continue your progress!
Christine Oliva Anita, it will definitely get better. I'm 6 wks post tomorrow. I can remember the first few weeks, to ... Read more
Christine Oliva Anita, it will definitely get better. I'm 6 wks post tomorrow. I can remember the first few weeks, tough, but tolerable with the pain meds. I think I made my biggest jump on week three. Now I'm driving, walking twice a day mile each or close to, can do lite housework and now even decorating for the holidays. A mile from where I was 6 weeks ago. I did it and I know you can too! Go...........ooo Anita and Happy Turkey day. We can still eat turkey even with Warfarin, Have peaceful one.
anita egden Christine that is so inspiring and makes me feel so much better - I still feel quite tired 8 days ou ... Read more
anita egden Christine that is so inspiring and makes me feel so much better - I still feel quite tired 8 days out and am trying to accept that this is a process that I have to be patient with. 6 weeks will be new year's ish; great time for a new look on life
Best wishes Kelly, Natalee, Roberta and Michael - may all go well with your surgeries; prayers and best wishes for health and vitality to be yours soon
Anita ...Read more
Best wishes Kelly, Natalee, Roberta and Michael - may all go well with your surgeries; prayers and best wishes for health and vitality to be yours soon
Anita
Kelly Weisgarber Thank you Anita. Best wishes to you also, prayers being sent your way. Enjoy your evening and your d ... Read more
Kelly Weisgarber Thank you Anita. Best wishes to you also, prayers being sent your way. Enjoy your evening and your drive, sounds like a lovely thing to do. Hope to touch base when we are both on the recovery side.
Natalee LaJeunesse Same to you Anita! We will soon both have this behind us. Hoping and praying things go well for you t ... Read more
Natalee LaJeunesse Same to you Anita! We will soon both have this behind us. Hoping and praying things go well for you too!
OK, it was a little jarring to be told on Friday morning that my surgery was booked for Monday morning (November 16). I am past that now and ready to show ...Read more
OK, it was a little jarring to be told on Friday morning that my surgery was booked for Monday morning (November 16). I am past that now and ready to show up tomorrow at 6 am.
This has been quite a journey of self discovery, even though it's been a bit of a whirlwind. People have told me that this surgery will change my outlook on life. Things will be different, and the same. Maybe it's my attitude that is going to change as we are being given an extension - a second chance at life.
All will be well. Today I plan to take a drive to Georgian Bay and take in the view from the top of Blue Mountain (Collingwood Ontario) - something that awes me and quiets my chattering mind.
I have decided that I am going to take the time off work and really think about what I want that new life to be like... tomorrow morning I will say a prayer or two, and take comfort that I have a highly trained team of experts performing the surgery, and most importantly, that no matter what happens, heaven is watching over me, and I will be OK whatever the outcome.
Anita
Lilly Black Hi, Anita. I am also Canadian but live in the US in California. I lived in TO for 3 years in the 1970 ... Read more
Lilly Black Hi, Anita. I am also Canadian but live in the US in California. I lived in TO for 3 years in the 1970s but originally from Montreal. I have had 2 open heart surgeries, BAV, and aortic stenosis. I'm happy to hear that you feel ready for the surgery. I felt that way too. It's tiring to feel tired and weak all the time, and I was glad to get it over. You will do well and just know that most people do very well post-surgery! I personally have never felt so good! I wish you the best for your surgery tomorrow!
Sophia Ridley Best wishes Anita. May your surgery go smoothly and your recovery without incident.
anita egden Thanks everyone... I am just sitting here tonight watching the Toronto Maple Leafs play the New York ... Read more
anita egden Thanks everyone... I am just sitting here tonight watching the Toronto Maple Leafs play the New York Rangers with my husband... just like any regular night, and trying to keep my mind calm. I really appreciate all the best wishes and prayers, and now am ready to get to the "other side" of surgery...
So I will be going in for aortic valve replacement surgery (and maybe repairing the dilated ascending aorta) early Monday morning, this coming Monday the 16th ...Read more
So I will be going in for aortic valve replacement surgery (and maybe repairing the dilated ascending aorta) early Monday morning, this coming Monday the 16th of November. I received the call this morning before leaving for work....
It's really happening OMG
Eddie Patton It's scary but you are,that much closer to being recovered.
Emily Rowley
What valve replacement have you choose?
I'm sure you'll feel so much relief and better after havin ... Read more
Emily Rowley
What valve replacement have you choose?
I'm sure you'll feel so much relief and better after having it done so soon.
All the very best wishes,
Emily.
anita egden Before I answer this question, I want to make clear that this decision is so very personal, and that ... Read more
anita egden Before I answer this question, I want to make clear that this decision is so very personal, and that whatever choice a valve replacement patient makes is the right choice. We are all unique in our wants and desires for life going forward. We are allowed to make our own choice and once made, be happy and satisfied about it. That being said, I benefited from reading other's experiences as I was navigating my way through this decision. Be educated, but make the right choice based on understanding yourself and what you need from this for the rest of your life.
At first I was going with a mechanical valve, because I am 51 and have been told that going with a tissue valve will require another surgery at some point. After soul-searching and really discovering my own wants and needs I decided I would rather risk another surgery than have to be monitored on Coumadin and also have the ticking in my chest. This is because I understand my own make-up, strengths and weaknesses, and how I envision my future life. My circumstances are uniquely my own but I've benefited immensely from the valve replacement patients sharing their experiences.
We are so very lucky to have this resource! Wishing you the best on your own journey Emily and thanking you for your good wishes
Anita
Emily Rowley
You're right Anita, it is a personal and individual decision that's not taken lightly. At first I th ... Read more
Emily Rowley
You're right Anita, it is a personal and individual decision that's not taken lightly. At first I thought "I want to make the right decision, I want what is the best option" then went onto research. I have found listening to real people's experiences has helped a tremendous amount. What I didn't consider at first and now know is I need to consider my own individual needs, what I believe is best for myself and stick to it.
I'm glad you have found peace in your decision.
The noise of the valve or anticoagulants monitoring would not bother me, but there are other parts which would such as risks involved. I'm leaning more towards the tissue valve and am starting to find peace in my decision especially because I've taken into consideration what I want in years to come (i.e children) and how choosing a pig valve would benefit my life.
I hope your surgery and recovery goes well. Tell me how it goes :)
Yesterday my husband and I discussed my health condition on a long drive to see family out of town. So many things make sense now. We are (were) pretty active, ...Read more
Yesterday my husband and I discussed my health condition on a long drive to see family out of town. So many things make sense now. We are (were) pretty active, going to the gym, hiking in all seasons (I live in Canada so yes snow shoeing comes to mind) and just the overall down hill progression of my health. Gasping on exertion... feeling light headed.... that nagging pulling sensation in my chest...
I was born with a bicuspid aortic valve and knew about it all my life. My current surgeon explained that when I was born (in 1964) patients with this congenital defect simply didn't live when it got to severe stenosis. As a kid I visited Toronto's Hospital for Sick Children frequently and then Toronto General when I turned 18. By puberty I was given the all clear to exercise but was so overweight and clumsy that sports were simply not part of my life. That's a whole story in itself, best left for another post. Suffice it to say that I don't remember not being out of breath on exertion so I didn't see the warning signs these past years as having anything to do with my heart defect.
In my young adulthood I lost the weight, got into a great marriage with my wonderful husband and raised 3 wonderful boys into men. I worked at my office jobs (still do) and continued on with my life pretty much ignoring my valve. If I felt tightening in my chest walking up hills, it felt the same as trying to run as a kid, I didn't think anything of it. Gasping for breath, feeling like I was going to pass out when touring the Columbia Ice Fields was simply the elevation getting to me as I live in Ontario and this was in the Rockies. Beating my numb hands on my legs when going up the ski lift was simply because I just easily got colder then everyone else on the ski lift, even if it wasn't particularly cold for that day (it may sound odd but we get acclimatized to the cold living in northern climates)
It was gasping for breath for longer than a minute during a spin class that really got me thinking "could it be?" Nah... then almost passing out at work a few times (thankfully I avoided the embarrassment of that actually happening and got a ride home) pushed me to go see my GP. That was March. I hadn't seen a cardiologist for 11 years and figured maybe we should rule out the bicuspid thing in trying to figure out why I was feeling so crappy. I didn't see the cardiologist until August 24...
He ordered and echo of his own, explaining he prefers to read them himself. They are so busy I didn't get back there until September 28. I sat there dumbfounded when he said the valve needs to be replaced. (duh I probably knew this deep down inside but refused to believe it) He ordered and angiogram to rule out coronary artery disease (arteries are healthy and clear) that was done Oct 5, saw the surgeon Oct 6, had the pre-op Oct 21 and here I am waiting for a surgery date...
It took awhile for the whole thing to settle, but I can honestly say it has settled and now I just want my life back. I want to climb hills, go to spin class, snowshoe in the winter, and enjoy my family. I want to go to work with a clear head - I feel so light headed all the time. Funny, this has been a slow progression but I have to admit it's been going on for awhile.
All of just slowly snuck up on me until I couldn't ignore it anymore. The alternative is grim. Not only did the surgeon explain my life expectancy without surgery is two years, I have come to realize it would be two years of feeling worse and worse and worse....
So now I am looking forward to getting this behind me, working diligently on my recovery, listening to the doctors and all the other health care professionals, and signing into to cardiac rehabilitation as soon as possible.
I am also busily training people at work so I don't have to worry about that part.
I am so ready to get this past me now
Meredith Bray You will feel so much better when you get a surgery date! This is a very emotional process for everyo ... Read more
Meredith Bray You will feel so much better when you get a surgery date! This is a very emotional process for everyone affected. Patient, Spouse, children, parents. Even coworkers! Look forward to the "Day On Which Your New Life Begins!" And by new life I mean cardiac rehab, exercise, less difficulty breathing, no frozen toes in the middle of summer. Oh, and you'll probably need a new set of makeup colors as well, your improved circulation is going to make difference in your face ;)
-Meredith
anita egden And here I thought going to bed with socks and sweatshirts over my nightgown under a duvet was normal ... Read more
anita egden And here I thought going to bed with socks and sweatshirts over my nightgown under a duvet was normal.... lol
Liz Burroughs Hi Anita, I understand how you feel! I've been living with MVP & mitral regurgitation for years. I fi ... Read more
Liz Burroughs Hi Anita, I understand how you feel! I've been living with MVP & mitral regurgitation for years. I first saw a cardiologist when I was a freshman in college. I never thought that I would need surgery. Well, my time has come & I'm going in for surgery tomorrow. You'll feel much better once you've had your surgery & are on the road to recovery. Take care. Liz
Elaine Cutri I agree 100% with Meredith. Let us know when your surgery is scheduled. It's not a fun process, but m ... Read more
Elaine Cutri I agree 100% with Meredith. Let us know when your surgery is scheduled. It's not a fun process, but manageable and cardi rehab will make you feel confident and strong. Best wishes!
All went well with my pre-op. The pharmacist prescribed amiodarone to start taking 6 days before my surgery to help stave off atrial fibrillation - she said ...Read more
All went well with my pre-op. The pharmacist prescribed amiodarone to start taking 6 days before my surgery to help stave off atrial fibrillation - she said it was preventative. I have also booked a cleaning with my dentist and will take the penicillin before hand - this appointment is also required. My hospital won't schedule the surgery until a week beforehand. They do emergency operations there and as was explained there are too many variables to do anything farther out. I was told two or three weeks after pre-op is usual. So I guess I am looking at sometime near the second week of November. Ballpark
Gary Stripling Amiodarone is a very powerful drug. I was on it for at about a year and it destroyed my thyroid. Be c ... Read more
Gary Stripling Amiodarone is a very powerful drug. I was on it for at about a year and it destroyed my thyroid. Be careful! Best wishes on your journey!
anita egden Thanks for the warning. I did read up on it and amiodarone does sound really scary. The pharmacist ... Read more
anita egden Thanks for the warning. I did read up on it and amiodarone does sound really scary. The pharmacist explained this was going to be very short term. I certainly hope so
My pre-op scheduled for Oct 21 - I was wondering how long afterwards most people wait for their surgery?
I have signed the papers with the surgeon and ...Read more
My pre-op scheduled for Oct 21 - I was wondering how long afterwards most people wait for their surgery?
I have signed the papers with the surgeon and we decided on a mechanical valve because I am 51 and really don't want this surgery again. In preparatory mode at work now, trying to sort out who will do what when I am away for 2 or 3 months. Also, I am trying to wrap my head around the fact that I will not be in control of my life during that time. I think this is the worst part of my acceptance, to let it be, let it happen, and just go with the journey...
I will know more next week, after I go for the surgery pre-op... also seeing my GP on Monday for his own "pre-op" (he has to fill out his own form that gets forwarded to the hospital)... This seems to have happened very fast but at the same time I just want it over now. I guess I am not very good at waiting for answers, and will have to change my whole outlook on life.
The other thing that is bothering me is that I am now a "life-long" heart patient, that I will never be "cured" so to speak, and that I have to be on warfarin for the rest of my life. This, of course, is not logical thinking as I have been a "heart patient" all my life, having been born with a bicuspid aortic valve. I guess it could be way worse; my surgeon explained that when I was born people with my condition didn't have a chance when aortic stenosis developed in their valve. My parents found out when I was a toddler that I had a bicuspid aortic valve - I remember going to "Sick Kids" in Toronto when I was very young, quite frequently. I eventually "grew out of it" (not really, it just became asymptomatic) until these last few years. Now these surgeries are done all the time.
We are lucky that our lives can be extended - and I have to accept that comes with a new reality for me.
I guess I am just at the point where this is all becoming uncomfortably real. I still shake my head thinking its a bad dream.... but then I look at the bruise on my wrist from the IV for the angiogram and realize it came from something that really happened...
Thankfully I talk to God every day and somehow find peace. Again, I am blessed to have the opportunity to have the surgery in the first place.
Now I just want to know when it will actually happen - still trying to learn patience at 51! So far I have not been successful at that..
And many of us had many of the same thoughts and concerns that you do. You found the right place . This is a wonderful supportive community.
I hated it that I needed surgery, that I was becoming a heart patient, that I would have to surrender completely to have the procedure done. But then, my condition devolved quickly, so my surgery was urgent, and I realized by then that I was fortunate to have it in order to save my life.
All the best to you. Your faith will see you through. You may want to gather as many people as possible to pray for you, I felt lifted up by prayer.
Doran Herritt Anita,
Mine was scheduled within about 45 days of my meet with the surgeon. My heart chamber is enla ... Read more
Doran Herritt Anita,
Mine was scheduled within about 45 days of my meet with the surgeon. My heart chamber is enlarging and they want to fix the valve so enlargement can be reversed possibly. I am asymptomatic and still riding my bike and or elliptical every night. So the timing was made around how my heart was acting/reacting. From this site I can tell you every situation is different.
On another note, what an amazing story to live this with from childhood, make it to 51 without having your valve replaced and now having it replaced and getting the chance to live a long, long time post op.
The technology is awesome these days and just getting better. Monitoring of Warfarin is getting easier. You can do it.
Take care. Your in my prayers.
Drn
Lisa Heinen Traveling a great distance - my pre-op was the day before surgery. I had also known since very young ... Read more
Lisa Heinen Traveling a great distance - my pre-op was the day before surgery. I had also known since very young that I had a bicuspid valve. What's crazy to me is now I don't actually have a murmur anymore! I'm at peace with my decision for the Ross Procedure.
Clare Auten My cath and pre op stuff was done the night before surgery. I was 45. Went with a mechanical valve, ... Read more
Clare Auten My cath and pre op stuff was done the night before surgery. I was 45. Went with a mechanical valve, full sternotomy. I was off work for about 11 weeks but could have gone back at 9 (as a teacher that would have been 3 days before spring break and I didn't see the point). I was taking care of things around the house and with kids (4, 7 and 13 at the time) by the second week. Good luck.
anita egden Thanks everyone. I will just have to accept the process and the timing. All will be well, I will fi ... Read more
anita egden Thanks everyone. I will just have to accept the process and the timing. All will be well, I will find my faith and just keep going...
Rita Savelis Six months after OHS I still can find it hard to wrap my mind around being "a lifelong cardiac patien ... Read more
Rita Savelis Six months after OHS I still can find it hard to wrap my mind around being "a lifelong cardiac patient". It's a very difficult transition to make. In fact it can't be made - the future is too long to think about. One day at a time.
I went for my angiogram yesterday and the good news is my coronary arteries are clear and healthy. The doctor performing the procedure saw that the aortic ...Read more
I went for my angiogram yesterday and the good news is my coronary arteries are clear and healthy. The doctor performing the procedure saw that the aortic root and ascending aorta are dilated; I read this is quite common with my bicuspid aortic valve. The test made use of my femoral artery and as such I was told I had to stay home from work today as well. Yesterday the orders were to lie flat on my back and not bend my leg (Ok I tried - anyways all well, no bleeders) The surgeon's office called yesterday afternoon to have me come on for a consult today. has anyone had their aortic root and ascending aorta replaced along with the aortic valve?
The surgeon's name is Dr. Kevin Teoh - he worked out of McMaster in Hamilton for 20 years and joined Southlake Regional in Newmarket recently. Anyone living in Southern ON hear anything about Dr. Teoh? Everything I read on line is pretty positive.
Will post the outcome of the meeting later this afternoon
Ruth Valenzuela Anita, I just underwent OHS for exactly what you will be going in for. I had no idea about the aorta ... Read more
Ruth Valenzuela Anita, I just underwent OHS for exactly what you will be going in for. I had no idea about the aorta root and ascending aorta that measured 4.7 right after my angiogrambut right before surgery my surgeon said it was actually 4.4 and was unsure whether he would touch it. He would know more once he was in thereafter surgery was told my walls were thin thus he took it out (which made not only me happy but all my family. I was let out of the hospital yesterday and I feel pretty good. Recovery will take time but I expected that. I just can't believe how well I do feel. Someone else said it was no walk in the park but I can honestly say is not as bad as one perceives it to be. I do understand how you may be feeling a little jittery and that is the human side of us. I love the Lord and can say I felt his peace and love going into surgery. Prayer for me is so important so I'll be praying for you. Bless you
Tammy Pilcher Good news your arteries are clear, Anita. Keeping you in my prayers for your consult to go well toda ... Read more
Tammy Pilcher Good news your arteries are clear, Anita. Keeping you in my prayers for your consult to go well today. Praying for God to give you guidance and peace in finding your surgeon. God bless!
anita egden Thanks so much for the prayers - I have to remember that I am never alone as God is always with me, a ... Read more
anita egden Thanks so much for the prayers - I have to remember that I am never alone as God is always with me, and I won't be alone even in moments that have the potential to feel that way. Thanks, ladies, for reminding me of this. Perhaps I will have my surgical date soon and this waiting game can finally start to be over.
Then I can look forward to the rest of my life, or as Adam says in his book, my second chance.
Elaine Cutri Hi Anita, I had this same surgery in May 2015 at the Cleveland Clinic with Dr Roselli. This was my 4t ... Read more
Elaine Cutri Hi Anita, I had this same surgery in May 2015 at the Cleveland Clinic with Dr Roselli. This was my 4th surgery and it went very well. It took a couple of months to recover, but I feel very good and returned to work about 5 weeks ago. Congratulations on healthy coronary arteries!
Gerald Schaffer Having clean arteries is great as its one less thing that needs fixing and helps your heart too. Cong ... Read more
Gerald Schaffer Having clean arteries is great as its one less thing that needs fixing and helps your heart too. Congrats on that good news.
This past week was surreal - I was really in denial, even telling myself that they might have the wrong person (despite my own fatigue and angina, sheesh) ...Read more
This past week was surreal - I was really in denial, even telling myself that they might have the wrong person (despite my own fatigue and angina, sheesh) Southlake Regional (Newmarket On) called me yesterday to schedule the angiogram procedure. I guess the surgeons want no surprises when they open me up sometime in the future. I go for the test Monday. They will discuss the results with me then. What seemed so unreal is beginning to take hold. When the cardiologist said "valve replacement" last Monday he lost me - I don't remember much of what he said after that. I even went to the gym like a fool on Thursday, having had a relatively "good" day and paying for it yesterday with fatigue and shakiness. Maybe its time I listened to my doctors. I guess I am pretty new to this cardiac patient status. I have to stop arguing with myself and just let the process be. I need to accept this as my new reality.
Alma Mater It takes time to process for sure, but you'll get there.
You'll find this community a wonderful place for support. Welcome!
Doran Herritt Yep. At first it scares you good. I still ask at every appointment and test "has my murmur healed"? I ... Read more
Doran Herritt Yep. At first it scares you good. I still ask at every appointment and test "has my murmur healed"? It makes me smile. Listen to your doctors. Stay positive. There's a lot of good technology. Lots of skilled doctors. You can make it. Believe. Thoughts and prayers to you as you work through it.
Doran Herritt A couple of other suggestions. Write down your questions before you go in. The first few times I thou ... Read more
Doran Herritt A couple of other suggestions. Write down your questions before you go in. The first few times I thought I would remember what I wanted to ask and each time I got home and said...I forgot to ask that. Second. I just had my heart cath / angio. They said I shouldn't really do anything for 48-72 hours. Just so you are aware.
anita egden Thanks - I guess it is a process. It's heartening to see how many of us there are. Support from ot ... Read more
anita egden Thanks - I guess it is a process. It's heartening to see how many of us there are. Support from others who are going through the same thing is so important
Charles Haas And have someone else with you. My wife remembered a number of things from my surgeon's visits that ... Read more
Charles Haas And have someone else with you. My wife remembered a number of things from my surgeon's visits that I did not.
Doran Herritt Right on Charles. I brought my wife too.
anita egden I have asked my husband to attend the angiogram day with me, and he will be doing the driving as well ... Read more
anita egden I have asked my husband to attend the angiogram day with me, and he will be doing the driving as well.
Sophia Ridley Hi Anita, I had an angiogram (through groin) on Monday in readiness for MV surgery. I was worried abo ... Read more
Sophia Ridley Hi Anita, I had an angiogram (through groin) on Monday in readiness for MV surgery. I was worried about it but the wonderful people here helped me. I was given a mild sedative which took the edge off and it was better than expected. Afterwards they will exert a considerable amount of pressure and you will need to say still. It was reduced over a course of 4-6hrs, as I was in overnight (procedure was 6pm) they left it on. Do heed the advice about very limited movement (no bending) and rest up for 48-72hrs. The bruising will be quite colourful. I had some unrelated drama (see my post) so can't say when you'll feel better, but today my husband remarked that I'm back to normal :)
I knew nothing of heart surgery before told I needed my MV repair and it was a shock. I've found absorbing info and looking towards recovery is my way to approach this, it's become "Project Op".
I saw the cardiologist yesterday and my aortic stenosis is classified as severe. He told me that the surgery will be done in the next few months, but that I ...Read more
I saw the cardiologist yesterday and my aortic stenosis is classified as severe. He told me that the surgery will be done in the next few months, but that I need an angiogram first to make sure there are no coronary blockages. I am new to navigating the cardiac world of medicine - it looks like this test takes all day and I can't drive myself home, but will I be alright to go to work the next day? I know this sound like a basic question but like I said, I really have no idea what is going to happen now. It is all so new to me.
Clare Auten I can't really answer the question since min was the day before surgery and I spent the night at the ... Read more
Clare Auten I can't really answer the question since min was the day before surgery and I spent the night at the hospital. However, welcome and good luck.
Charles Haas I had my angiogram via my groin, and they kept me in the hospital for about 4 hours afterwards, and t ... Read more
Charles Haas I had my angiogram via my groin, and they kept me in the hospital for about 4 hours afterwards, and told me to stay at home the next day. I believe if you are able to have it done via the wrist, it is less restrictive.
Enrique K I had a cardiac cath through the wrist its a none event and was out 4 hours later. My doctor never pr ... Read more
Enrique K I had a cardiac cath through the wrist its a none event and was out 4 hours later. My doctor never prescribed an angiogram.
Rita Savelis You may have to ask your doctors how they plan to proceed. The test itself takes only about an hour o ... Read more
Rita Savelis You may have to ask your doctors how they plan to proceed. The test itself takes only about an hour or so but you need to be observed and not walk too much that day (afterwards) if you have a bandage on your groin.
Jeff V. Anita - It depends on the type of work you do and how you are feeling. I had a leg cath and was able ... Read more
Jeff V. Anita - It depends on the type of work you do and how you are feeling. I had a leg cath and was able to go back to my desk job the following day with no problem. Ask your doc.
Elaine Cutri The procedure doesn't hurt and it's very interesting to watch (was mildly sedated). If they go in thr ... Read more
Elaine Cutri The procedure doesn't hurt and it's very interesting to watch (was mildly sedated). If they go in through the groin (the femoral artery) you have to stay flat for at least 4 hours to allow the clot to form. A rest day after may be a wise idea. Sometimes it's a little harder on the heart than expected. I had one a number of years ago and my blood pressure would drop every time I tried to get up after the required flat rest. My system did not tolerate the procedure very well. This last time was not a problem.
Doran Herritt I can tell u Friday. Just remind me. I have a heart catch scheduled Thursday. I was told to expect. G ... Read more
Doran Herritt I can tell u Friday. Just remind me. I have a heart catch scheduled Thursday. I was told to expect. Go in through the wrist. 60-90 minutes to look around. A few hours to be observed make sure you r ok. Home that day. Work the next day. Oh, and sedation. Mild sedative, groggy but not asleep. He did say wrist was a bit better for recovery as they have good visibility to the entry site, but all patients cannot do it there. Good luck. Drn
anita egden My test still has to be booked and I think my cardiologist told me that they go through the groin are ... Read more
anita egden My test still has to be booked and I think my cardiologist told me that they go through the groin area. I so appreciate all the comments on my query, thanks everyone. I am in such early days, and really am learning as I go.
Hello everyone - I am new to the community, and have a question. I have a congenital bicuspid aortic valve; the last echo showed moderate aortic stenosis ...Read more
Hello everyone - I am new to the community, and have a question. I have a congenital bicuspid aortic valve; the last echo showed moderate aortic stenosis and the past year I have been feeling angina like symptoms when walking up hills; the gym cardio stuff is now a thing of the past. It was only in the past few years I really noticed that I have this issue, and in March I pushed my doctor for an echo. Anyways, I saw the cardiologist on August 24 and will see him again this coming Monday, Sept 28. Things seem better now that I have de-scheduled myself somewhat and took the hills out of my walks. I work full time.
So, I am not sure if the cardiologist will be recommending surgery anytime soon but it is weighing on me, especially as it concerns my job. How long did it take for people to get back to work? I have an administrative/accounting job, yes with deadlines and job related stress - normal stuff. It is a desk job, I am not lifting heavy boxes or anything.
What is your experience in getting back to work, if you even did? I am so new to this and would love to find out people's experiences living post-op
Thanks
Ruth Reshad After my first OHS I was back to work in 8 weeks. I was tired but it was doable-I'm a social worker.
Rita Savelis I went back to work after 12 weeks (to an office job). It was good to take that much time off because ... Read more
Rita Savelis I went back to work after 12 weeks (to an office job). It was good to take that much time off because I was tired. Really tired. When I went back, I was ready, but it was still a tiring shock!
Eddie Patton Went back at 5 weeks. Did some from home before that.
Meredith Bray I took the full 12 weeks. As a bus driver, I was mandated NOT to return until 12 weeks. At 8 weeks, I ... Read more
Meredith Bray I took the full 12 weeks. As a bus driver, I was mandated NOT to return until 12 weeks. At 8 weeks, I felt I could have returned to a desk job. All that being said, everyone is different!
anita egden Thanks everyone - I guess it will just depend on how things go
Daniel Spurgeon I am sort of an anomaly, I was back at work full time in less than two weeks. I have a job that does ... Read more
Daniel Spurgeon I am sort of an anomaly, I was back at work full time in less than two weeks. I have a job that doesn't require any physical exertion and was just as comfortable typing at my desk as sitting at home.
Rodger Dixie I am retired and walked five Kms at four weeks after receiving a new aortic tissue valve. If I still ... Read more
Rodger Dixie I am retired and walked five Kms at four weeks after receiving a new aortic tissue valve. If I still worked I could have returned this week which is week five. I haven't felt this way s food in fifteen years. I also had a quadruple bypass seven years ago.
Bob M Because of my doctors, my nurses, my caregivers and of course my wife, my guardian angel, I returned ... Read more
Bob M Because of my doctors, my nurses, my caregivers and of course my wife, my guardian angel, I returned to work 40 days after my surgery. Yes, a nice round number from the Bible.
anita egden I saw the doctor yesterday and was told I will be having the surgery in the next few months. It is h ... Read more
anita egden I saw the doctor yesterday and was told I will be having the surgery in the next few months. It is heartening to hear that there are so many success stories - thanks for sharing
Rita Savelis One has one's entire life to work, but only a few months to "recover" from major surgery.... so if yo ... Read more
Rita Savelis One has one's entire life to work, but only a few months to "recover" from major surgery.... so if you can rest a bit longer, take advantage. Every case is individual. Every story is a success story.