Adam's Heart Valve Surgery Blog – Page 76

This is really great news…

More than twenty Orange County, California organizations and hospitals will share in nearly $245,000 in grants this year from The Edwards Lifesciences Fund.

The Edwards Lifesciences Fund, the charitable arm of Irvine heart valve maker Edwards Lifesciences Corp., announced today that it would donate more than $2.5 million to 60 charitable organizations worldwide as part of its third annual grant cycle. That is more than twice the amount it gave away last year.

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Konichiwa!

After eight very busy days in Tokyo, I am back in Los Angeles.

I have to admit, Tokyo is one impressive city.

Great trains, great clients and unbelievable sushi!!!

So you know, I’m a sushi addict.

I’ll never forget the first sushi bar I went to in Tokyo. I ordered tuna and the waiter responded with, “How fatty do you want your tuna?” That was a great sign I was in the right place for the freshest raw fish on the planet.

I even made it to the famous Japanese Fish Market – the Tsukiji Fish Market – with two of my colleagues. We got up at 5am and then headed down to the docks. One hour later, we were eating sushi right alongside the fish auctions. It was pretty incredible to see all the tuna auctions in the wholesale market.

Anyways, now I’m back with my bride, Robyn, and checking emails. Lots of news about heart valve surgery, heart valve replacement and heart valve repair during the past few days. I’ll be uploading some blogs shortly.

Arigato!
Adam

In my humble opinion, developing recovery milestones is a critical, often over-looked, element of heart valve surgery recovery. As patients heal following surgery, many experience perceived or actual heart valve complications. To learn more about complications post-op, click here.

That said, recovery milestones are tangible signs of progress which counter a lurking thought that most patients feel at some point during recovery. That thought is, “I think something is wrong!”

Personally, I developed a series of recovery milestones that I wrote about in a prior blog. So you know, I keep developing these recovery benchmarks even though I had my double heart valve replacement twenty-three months ago.

I am happy to report that I achieved another milestone earlier today. As some of you know, I am currently in Tokyo on a business trip. I awoke to a beautiful day here in Japan – clear skies with the temperature in the high 60’s.

I couldn’t resist… I decided it was time to go for a run before my morning meetings. However, this time, I decided to leave my heart rate monitor behind.

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I’m on day three of my work trip through Japan. So far, Tokyo is very impressive and… very crowded! I almost had a panic attack walking through the train stations this morning. So many people! I’ve since learned that Tokyo is one of the most populated cities in the world, with a population over 12 million.

Needless to say, the jet lag is still overwhelming considering I live in Los Angeles. That said, I’ve had some extra, early morning hours to dig through my inbox and answer some questions. I just received an interesting question about life expectancy after heart surgery. It reads, “Adam – Do you know what the life expectancy is for patients after heart valve surgery?”

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A great topic… Heart Valve Manufacturers.

They design, develop and manufacture the little gizmos that replicate the functioning of our own tissue heart valves.

However, often times, patients know very little about the manufacturers of  mechanical or biological heart valve replacement devices. That said, the question of “Who are the top heart valve manufacturers?” is a great one.

Edwards Lifesciences Valve Replacement

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This was news to me…

Did you know that patients can be awake during a heart bypass operation?

I had no idea this was possible until I just saw an incredible video on Youtube.com about patients being awake during cardiac surgery.

In India, several cardiac surgeons are pioneering heart valve operations (including valve repair and valve replacement) in which the patient is awake. No general anesthetic is used throughout the entire procedure.

I’m still a little amazed.

Keep on tickin!
Adam

There are a lots and lots of questions that race through a patient’s mind when he or she is diagnosed as “needing heart valve replacement surgery”.

However, one of the most common questions I receive when talking with patients and their caregivers about heart valve surgery is… “What are my valve replacement surgery risks?”

It’s an interesting question. I know it well. I’ll never forget when I was diagnosed. That question was re-phrased in my mind and sounded more like, “Oh my god! Open heart surgery? Am I going to die?” (I’m guessing you can relate to that thought.)

However you chose to phrase the question, that IS NOT what makes the question interesting.

Nope… Not at all.

What makes that question interesting is the fact that there is risk if you have the surgery AND there is risk if you don’t have valve replacement surgery. In fact, you have “risk” every second of your life – from the moment you wake up to the moment you go to sleep. To learn more about valve replacement surgery, click here.

Think about it! Do you think driving in a car is completely safe, without risk? Think again! I live in Los Angeles. The drivers are crazy in that city. Once a week I yell out to someone, “What are you trying to kill me?”

That said, valve replacement surgery risks are quite small. The unfortunate truth is that some patients do not make it through the heart surgery. However, it is a very small percentage.

During my research for the book, The Patient’s Guide To Heart Valve Surgery, I learned that the mortality rate for heart valve surgery is only 2.4%. And, thanks to medical technology, the mortality rate continues to improve.

I hope that helps calm some of your fears about valve replacement surgery risks.

Keep on tickin!
Adam

Konichiwa!!

Twenty three months after double heart valve surgery, I find myself in Tokyo, Japan for a week of work. (I’m speaking at a conference here.)

Luckily, I have today (Sunday) to wander through the city. The weather couldn’t be any better – high 60’s and no clouds.

I just went on a long walk through the Hama-rikyu Gardens (pictured above) and I’m getting ready for a stroll down the Ginza district.

Needless to say, I have already had my first fill of sushi.  As soon as I got to my hotel, I dropped my bags in the room and darted to the closest sushi bar.  Yum! Yum! Yum!

The salmon, tuna, and yellowtail was so fresh. Plus, I really like how they prepare their wasabe.  Yes. I’m going for more tonight!

Keep on tickin!
Adam

I approach this topic with delicate care.

“Why?” you may be wondering.

Well…. Let me explain.

It is one thing to realize you need heart surgery.

It is another thing to realize you need to have your sternum broken in the process. That said, heart valve surgery is somewhat of a double whammy.

Yes. There is anesthesia.

Yes. There is pain medication.

Yes. There are medical facts which suggest that you will live longer after heart valve surgery.

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I just received a fantastic question. The question reads, “Adam… Do you know how big our heart valves are?”

The interesting thing… In all my research about heart valves… In all my interviews with patients, nurses, cardiologists and surgeons, I have never specifically found a specific answer to that question.

“Why?” you may be thinking to yourself.

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As many of you know, I had double heart valve replacement due to a very leaky aortic valve that suffered from from calcified aortic leaflets. My problematic valve was a bicuspid aortic valve (that was both stenotic and had regurgitaiton).

I knew about my defective valve since the time I was 5 years old. That said, my condition was considered a congenital heart condition and I had a heart murmur for the first 33 years of my life.

I say “had” because, since my surgery a few years ago, I no longer have a heart murmur or any leaking heart valve symptoms.

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Have you ever wondered when the first heart surgery was performed?

Hmmmmm….

Well, I couldn’t resist the opportunity to learn more about cardiac surgery history so I Google’d the term, “first heart surgery”. Guess what? I immediately found a reference to the first heart surgery. Here is what Wikipedia had to say about the first heart surgery:

“The first heart surgery on the heart itself, performed without any heart surgery complications, was by Dr. Ludwig Rehn of Frankfurt, Germany, who repaired a stab wound to the right ventricle on September 7, 1896.”

Pretty amazing to think that the first heart surgery happened over 100 years ago.

As I can attest, following my double heart valve replacement surgery, patients today are blessed to have pioneers like Dr. Ludwing Rehn of Germany as part of our cardiac surgery history.

Keep on tickin!
Adam

Although minimally invasive procedures are becoming more prevalent in the heart valve surgery community, open heart surgery via a broken sternum is still performed in most cases involving heart valve repair and heart valve replacement surgery.

That said, the sternum is “cracked” through a medical procedure known as a median sternotomy procedure. To learn more, click here.

Yes, I know…

The sound of that for a patient or a caregiver is tough to contemplate. I remember asking my cardiologist, “Ya ya ya ya mean that you’re going to crack my chest?” (That was a purposeful stutter intended to create drama by the way.)

Once you get over the fear, the reality sets. You think to yourself as you rub your chest, “Oh my gawwwwwwd. My sternum is going to be split! My surgeon is going to saw through my breast bone!”

Then comes the ultimate question, “How the heck are you going to keep my chestplate together once you fix my heart?”

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A great question just came in about heart valve disease, specifically a heart valve infection. The email reads, “Adam, what is a heart valve infection? What are heart valve infection symptoms?”

As you may be aware, there are several different types of heart valve disease which can damage the heart valves and result in heart valve repair and/or heart valve replacement. I was born with a bicuspid aortic valve that suffered from aortic stenosis and regurgitation. This led to my Ross Procedure (aortic valve replacement) a few years back. To learn about that operation, click here.

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As many of you know, I had my heart surgery in Los Angeles, California at USC Medical Center by Dr. Vaughn Starnes. I believe I was fortunate for two reasons.

• First, I found a great surgeon.
• Secondly, I had excellent insurance. The costs of heart surgery can be very expensive. Even with my insurance, there were a number of out-of-pocket costs that were not trivial relative to my income.

For these reasons, I have learned of many patients traveling to India heart surgery centers to minimize the costs of their heart valve repair or heart valve replacement surgeries. India heart surgery is not new by any means. However, the outsourcing of heart surgery to India from foreign regions is a relatively newer alternative to minimize patient healthcare costs of medical systems in regions like the United States.

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The email reads, “Adam – I was just diagnosed with severe tricuspid regurgitation. I feel stupid asking this but where exactly is my tricuspid valve in my heart. The doctor showed me a fake, plastic heart but I can’t remember right now. Please help!”

Don’t worry. I totally understand. Honestly, when I was diagnosed with severe aortic stenosis and regurgitation I was so shocked I don’t remember much of what my cardiologist told me besides, “You need open heart surgery!” That’s a tough one to forget.

Anyways, here is a human heart diagram that shows the various valves of the heart – aortic, pulmonary, mitral and the tricuspid.

I hope this helps you better understand where your tricuspid heart valve is.

Keep on tickin!
Adam

If there is one thing I know about going through heart valve surgery… you learn a lot about your body. From the moment you are diagnosed with the need to have heart valve replacement or heart valve repair, new words, new terms and new acronyms start flying in one ear and out the other.

At first, I called it medical mumbo-jumbo. Then, I realized I should sharpen up on my heart anatomy and learn what all these unique terms meant – bicuspid, regurgitation, leaflets, stenosis, Ross Procedure, percutaneous, catheter, mediam (broken sternum), etc.

Following surgery, the learning doesn’t stop. During the recovery, a new set of terms and tests will become part of your post-operative life.

One of the terms I came to know very well was referenced by cardiologist time-and-time again. That term was musculoskeletal. Any time I raised a concern about the pain in my incision or the pain in my chest, my cardiologist would say, “Don’t worry about that… It’s musculoskeletal! You’ll be fine.”

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Guess who I just got off the phone with???

Yup!!!

No other than Dr. Donald Ross, the inventor of the Ross Procedure, a special form of aortic valve replacement. To learn more about the Ross Procedure, click this link.

(So you know, Dr. Vaughn Starnes performed the Ross Procedure on me in 2005 at USC Medical Center in Los Angeles.)

Anyways, for being eighty plus years of age Dr. Ross is still a firecracker. The innovative surgeon was at his office working away in London.

I have to admit, it was quite surreal speaking with the man who developed the procedure that was now part of my heart. I guess it was a very good kind of surreal.

We talked a bit about how thankful I was for his innovative ideas on surgical approaches to enhancing heart health. Then, we spoke about my book, The Patient’s Guide To Heart Valve Surgery.

It turns out that Dr. Ross is on his way to China tomorrow to speak at a few heart conferences in Shanghai and some other cities in China.

Amazing, right?!!!

Keep on tickin!
Adam

Alright. You’ve made it through the surgery and your new or repaired valves are doing great!! You’re out of the hospital. Finally…you’re home. The recovery is ready to begin!

After week one, you look a little something like this after open heart surgery (if you are curious). If you have noninvasive heart surgery, the scar will be significantly smaller. This is a picture of me exactly seven days after my double heart valve replacement.

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Over the past few years, I have been incredibly close to unwelcome tragedy relating to heart valve disorders.  The word “tragedy” is the key part.

For those people who are asymptomatic, there are no warning signals. There are no mitral valve prolapse symptoms. There is no way of knowing the true impact of a mitral valve prolapse during a 26 mile race in 90 degree weather.

That was the issue with Chad Shieber who passed away during the Chicago marathon last week.  While initial reports placed fatal blame on the unseasonal heat of my former hometown city, Chicago, the autopsy and medical records showed that the other conspirator of this untimely death was a defective heart valve. To learn more about mitral valve prolapse, click here.

Chad Shieber had a mitral valve prolapse. Chad Shieber had been cleared by his physicians to run the race.

This is a tough blog to write.  Chad had a wife, three kids and was only 35 years old.

I am 35 years old. I am recently married.

While the similarities appear to stop there, my sadness for Chad Shieber and his family does not.

If only it wasn’t 90 degrees that day.

If only Chad stopped to take a break and walk on mile eighteen…

My thoughts and prayers go out to the Schiebers.
Adam