Adam's Heart Valve Surgery Blog – Page 77

Konichiwa!!

Twenty three months after double heart valve surgery, I find myself in Tokyo, Japan for a week of work. (I’m speaking at a conference here.)

Luckily, I have today (Sunday) to wander through the city. The weather couldn’t be any better – high 60’s and no clouds.

I just went on a long walk through the Hama-rikyu Gardens (pictured above) and I’m getting ready for a stroll down the Ginza district.

Needless to say, I have already had my first fill of sushi.  As soon as I got to my hotel, I dropped my bags in the room and darted to the closest sushi bar.  Yum! Yum! Yum!

The salmon, tuna, and yellowtail was so fresh. Plus, I really like how they prepare their wasabe.  Yes. I’m going for more tonight!

Keep on tickin!
Adam

I approach this topic with delicate care.

“Why?” you may be wondering.

Well…. Let me explain.

It is one thing to realize you need heart surgery.

It is another thing to realize you need to have your sternum broken in the process. That said, heart valve surgery is somewhat of a double whammy.

Yes. There is anesthesia.

Yes. There is pain medication.

Yes. There are medical facts which suggest that you will live longer after heart valve surgery.

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I just received a fantastic question. The question reads, “Adam… Do you know how big our heart valves are?”

The interesting thing… In all my research about heart valves… In all my interviews with patients, nurses, cardiologists and surgeons, I have never specifically found a specific answer to that question.

“Why?” you may be thinking to yourself.

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As many of you know, I had double heart valve replacement due to a very leaky aortic valve that suffered from from calcified aortic leaflets. My problematic valve was a bicuspid aortic valve (that was both stenotic and had regurgitaiton).

I knew about my defective valve since the time I was 5 years old. That said, my condition was considered a congenital heart condition and I had a heart murmur for the first 33 years of my life.

I say “had” because, since my surgery a few years ago, I no longer have a heart murmur or any leaking heart valve symptoms.

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Have you ever wondered when the first heart surgery was performed?

Hmmmmm….

Well, I couldn’t resist the opportunity to learn more about cardiac surgery history so I Google’d the term, “first heart surgery”. Guess what? I immediately found a reference to the first heart surgery. Here is what Wikipedia had to say about the first heart surgery:

“The first heart surgery on the heart itself, performed without any heart surgery complications, was by Dr. Ludwig Rehn of Frankfurt, Germany, who repaired a stab wound to the right ventricle on September 7, 1896.”

Pretty amazing to think that the first heart surgery happened over 100 years ago.

As I can attest, following my double heart valve replacement surgery, patients today are blessed to have pioneers like Dr. Ludwing Rehn of Germany as part of our cardiac surgery history.

Keep on tickin!
Adam

Although minimally invasive procedures are becoming more prevalent in the heart valve surgery community, open heart surgery via a broken sternum is still performed in most cases involving heart valve repair and heart valve replacement surgery.

That said, the sternum is “cracked” through a medical procedure known as a median sternotomy procedure. To learn more, click here.

Yes, I know…

The sound of that for a patient or a caregiver is tough to contemplate. I remember asking my cardiologist, “Ya ya ya ya mean that you’re going to crack my chest?” (That was a purposeful stutter intended to create drama by the way.)

Once you get over the fear, the reality sets. You think to yourself as you rub your chest, “Oh my gawwwwwwd. My sternum is going to be split! My surgeon is going to saw through my breast bone!”

Then comes the ultimate question, “How the heck are you going to keep my chestplate together once you fix my heart?”

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A great question just came in about heart valve disease, specifically a heart valve infection. The email reads, “Adam, what is a heart valve infection? What are heart valve infection symptoms?”

As you may be aware, there are several different types of heart valve disease which can damage the heart valves and result in heart valve repair and/or heart valve replacement. I was born with a bicuspid aortic valve that suffered from aortic stenosis and regurgitation. This led to my Ross Procedure (aortic valve replacement) a few years back. To learn about that operation, click here.

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As many of you know, I had my heart surgery in Los Angeles, California at USC Medical Center by Dr. Vaughn Starnes. I believe I was fortunate for two reasons.

• First, I found a great surgeon.
• Secondly, I had excellent insurance. The costs of heart surgery can be very expensive. Even with my insurance, there were a number of out-of-pocket costs that were not trivial relative to my income.

For these reasons, I have learned of many patients traveling to India heart surgery centers to minimize the costs of their heart valve repair or heart valve replacement surgeries. India heart surgery is not new by any means. However, the outsourcing of heart surgery to India from foreign regions is a relatively newer alternative to minimize patient healthcare costs of medical systems in regions like the United States.

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The email reads, “Adam – I was just diagnosed with severe tricuspid regurgitation. I feel stupid asking this but where exactly is my tricuspid valve in my heart. The doctor showed me a fake, plastic heart but I can’t remember right now. Please help!”

Don’t worry. I totally understand. Honestly, when I was diagnosed with severe aortic stenosis and regurgitation I was so shocked I don’t remember much of what my cardiologist told me besides, “You need open heart surgery!” That’s a tough one to forget.

Anyways, here is a human heart diagram that shows the various valves of the heart – aortic, pulmonary, mitral and the tricuspid.

I hope this helps you better understand where your tricuspid heart valve is.

Keep on tickin!
Adam

If there is one thing I know about going through heart valve surgery… you learn a lot about your body. From the moment you are diagnosed with the need to have heart valve replacement or heart valve repair, new words, new terms and new acronyms start flying in one ear and out the other.

At first, I called it medical mumbo-jumbo. Then, I realized I should sharpen up on my heart anatomy and learn what all these unique terms meant – bicuspid, regurgitation, leaflets, stenosis, Ross Procedure, percutaneous, catheter, mediam (broken sternum), etc.

Following surgery, the learning doesn’t stop. During the recovery, a new set of terms and tests will become part of your post-operative life.

One of the terms I came to know very well was referenced by cardiologist time-and-time again. That term was musculoskeletal. Any time I raised a concern about the pain in my incision or the pain in my chest, my cardiologist would say, “Don’t worry about that… It’s musculoskeletal! You’ll be fine.”

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Guess who I just got off the phone with???

Yup!!!

No other than Dr. Donald Ross, the inventor of the Ross Procedure, a special form of aortic valve replacement. To learn more about the Ross Procedure, click this link.

(So you know, Dr. Vaughn Starnes performed the Ross Procedure on me in 2005 at USC Medical Center in Los Angeles.)

Anyways, for being eighty plus years of age Dr. Ross is still a firecracker. The innovative surgeon was at his office working away in London.

I have to admit, it was quite surreal speaking with the man who developed the procedure that was now part of my heart. I guess it was a very good kind of surreal.

We talked a bit about how thankful I was for his innovative ideas on surgical approaches to enhancing heart health. Then, we spoke about my book, The Patient’s Guide To Heart Valve Surgery.

It turns out that Dr. Ross is on his way to China tomorrow to speak at a few heart conferences in Shanghai and some other cities in China.

Amazing, right?!!!

Keep on tickin!
Adam

Alright. You’ve made it through the surgery and your new or repaired valves are doing great!! You’re out of the hospital. Finally…you’re home. The recovery is ready to begin!

After week one, you look a little something like this after open heart surgery (if you are curious). If you have noninvasive heart surgery, the scar will be significantly smaller. This is a picture of me exactly seven days after my double heart valve replacement.

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Over the past few years, I have been incredibly close to unwelcome tragedy relating to heart valve disorders.  The word “tragedy” is the key part.

For those people who are asymptomatic, there are no warning signals. There are no mitral valve prolapse symptoms. There is no way of knowing the true impact of a mitral valve prolapse during a 26 mile race in 90 degree weather.

That was the issue with Chad Shieber who passed away during the Chicago marathon last week.  While initial reports placed fatal blame on the unseasonal heat of my former hometown city, Chicago, the autopsy and medical records showed that the other conspirator of this untimely death was a defective heart valve. To learn more about mitral valve prolapse, click here.

Chad Shieber had a mitral valve prolapse. Chad Shieber had been cleared by his physicians to run the race.

This is a tough blog to write.  Chad had a wife, three kids and was only 35 years old.

I am 35 years old. I am recently married.

While the similarities appear to stop there, my sadness for Chad Shieber and his family does not.

If only it wasn’t 90 degrees that day.

If only Chad stopped to take a break and walk on mile eighteen…

My thoughts and prayers go out to the Schiebers.
Adam

A great question just came in specific to driving after heart surgery. The question reads, “Hi Adam – Great website! Quick question. When can I drive after heart surgery? Thanks, Susie!”

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Finally, somewhat of an easy question… (You guys have been tough on me lately!)

Well, not really.

Let me explain….

There is a pretty standard answer to the question, “How Long Does A Mechanical Mitral Valve Last?”

In fact, the durability of a mechanical mitral valve is one of the biggest advantages of selecting a mechanical valve versus a pig valve (porcine valve), cow valve (bovine valve) or human valve (donor) for heart valve replacement surgery. To learn more about mechanical valves, click here.

The trade-off for the long-lasting life of the mechanical mitral valve, however, is the ongoing use of Coumadin (blood thinners) and the potential sound of a mechanical valve.

That said, a mechanical mitral valve can is reported to last between 20 to 25 years. Some suggest that the life of a mechanical mitral valve may even be longer.

You have to remember two things. First, heart valve replacement surgery is a relatively new medical procedure. It’s only been within the past 30 to 40 years that heart surgery has become a standardized medical procedure.

Second, you need to remember that mechanical mitral valves are made of very durable materials including titanium. Thus, there is some uncertainty as to how long the mechanical mitral valves may last in the human body. It may very well be longer than the 20 to 25 years referenced above.

I hope that helps answer the question, “How long does a mechanical mitral valve last?”

Keep on tickin!
Adam

Drum roll, please …

The innovation that will have the biggest impact on health care in 2008: robotic catheter technology.

That’s the prediction of a panel of Cleveland Clinic doctors. Clinic doctors pared down a list of about 100 of today’s coolest medical innovations to what they believe will be the most important in the coming year.

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I’ll never forget my second opinion from Dr. Chaikin, a cardiologist in Los Angeles.

I was having my second echocardiogram…

Unlike many cardiologist, Dr. Chaikin was actually present during the echocardiogram. He studied the monitor as it flashed pictures of my beating heart and pictures of my heart valves. I studied the monitor as well – with great purpose and intent. But, I had no idea what I was looking for.

As it turns out, eight weeks later I would find myself having double heart valve replacement surgery via the Ross Procedure. Similar to most patients, I became much, much, much, much, much more interested in heart valve anatomy once I scheduled my open heart surgery with Dr. Vaughn Starnes.

One of the questions I had was, “What does a heart valve really look like?”

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Every once in a while, I receive an email that triggers a distinct memory from my heart surgery recovery. As you may have read in my story, I had a double heart valve replacement at the age of thirty-three in Los Angeles by Dr. Vaughn Starnes at USC.

Following my heart valve surgery, I experienced some challenges with my body temperature. I write about this in my book, The Patient’s Guide To Heart Valve Surgery.

Continue reading this post »

I just received an email asking, “What is the number of mitral valves in the heart?”

To help answer the question, you will see a human heart diagram (below) that shows a top view of the heart. As you can see there are four heart valves in the heart. The heart valve types are – aortic valve, tricuspid valve, pulmonary valve and… one mitral valve.

So the answer to the question of “What is the number of mitral valves in the heart?” is… one mitral valve.

It is interesting to note that the mitral valve is the only bicuspid valve in the heart. That means that the mitral valve has only two leaflets. As you can see, the other three heart valves each have three leaflets.

However, it is possible for the other valves to have two leaflets. Personally, I had a bicuspid aortic valve which led to my heart valve surgery. Bicuspid valves can trigger heart valve disease including heart valve regurgitation and/or stenosis.

Keep on tickin!
Adam

It happens often!

I will be talking with a heart valve surgery patient when they say something ab-sooooo-lutely brilliant.

As I learned when I had my aortic and pulmonary valves replaced, speaking with former cardiac surgery patients was incredibly helpful. There is a sense of related-ness that is simply unmatched.

For this reason, I started a new category in my blog called “Excellent Patient Quotes”. I’m going to use this space to share with you some of the inspirational, wise, motivational and loving comments that I hear when I’m out speaking with heart valve surgery patients and caregivers.

Today’s excellent quote is about the recovery from heart valve surgery. As I personally experienced, recovering from open heart surgery can be extremely difficult for the patient and their caregivers.

Kathy Benson – Heart Valve Surgery Patient (Minnesota)

Anyways, Kathy Benson from Minnesota recently had an excellent quote about mis-managing your expectations of recovery and comparing yourself to other patients. Here is what Kathy revealed:

“Don’t gauge your surgery and recovery on others. Each surgery is unique and each patient will handle things in a different manner. It seems that patients strive to become normal as fast as they can. What is normal? We will forever be heart surgery patients.”

In my opinion, that could not be more true.

Keep on tickin!
Adam