Aortic Stenosis Blogs

By Adam Pick

Technology Update: How Did 4D-MRI Help John Time His Heart Surgery?

By Adam Pick on May 31, 2018

Timing heart valve surgery can be tricky for cardiologists, for surgeons and, ultimately, for patients.  For this reason, doctors and medical device companies are working together to develop next-generation technologies to determine the right time to operate or to continue “watchful waiting”.

I wanted to learn more about this topic, so I met with John Pascarella from Frankfort, Illinois.  John was unexpectedly diagnosed with severe aortic stenosis, a bicuspid aortic valve and an aortic aneurysm during a Medicare physical.  Interestingly, John was not rushed into surgery.  Instead, Dr. Chris Malaisrie, a leading cardiac surgeon at Northwestern Medicine, used Four Dimensional Magnetic Resonance Imaging (4D-MRI) to watch John closely until surgery was needed.  This is John’s story…

 

 

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Heart Surgery Patients Unite By A Mexican Pool!

By Adam Pick on April 5, 2018

An unexpected gift just occurred in my life.

While on Spring Break with my family in Cabo San Lucas, Mexico, I had the extraordinary pleasure of meeting…  Not one…  Not two… But, three heart valve patients.  Here’s what happened:

First, I met Mike from New Jersey.  Mike is a heart valve replacement patient who suffered from aortic stenosis.  Like so many patients in our community, Mike was mis-diagnosed several times.  It wasn’t until he was severely symptomatic and the valve was almost completely closed that Mike got help.

 

 

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Is Aortic Valve Repair A New Global Phenomenon?

By Adam Pick on November 7, 2017

Together, we’ve learned lots about the advantages of mitral valve repair procedures which include long-term durability and freedom from re-operation.  In the process, I’ve attended wonderful mitral valve conferences and I’ve even gone inside live surgeon workshops dedicated to teaching best practices for mitral valve repair.

That said, you might be wondering, “What about aortic valve repair?” and “Why don’t I hear much about aortic valve repair?”.  Unfortunately, our educational efforts specific to aortic valve repair have been minimal.  In the past, I simply haven’t received many patient questions about aortic valve repair.

Well…  It appears that is about to change.  During the recent Heart Valve Summit, I sat down with Dr. Vinay Badhwar, the Professor and Executive Chair of Cardiovascular and Thoracic Surgery at West Virginia University Medicine, to get the latest updates on new aortic valve repair devices and techniques.  Here are the exciting highlights from our discussion.

 

 

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Aortic Stenosis Progression: Top 5 Facts Patients Should Know

By Adam Pick on October 24, 2017

Aortic stenosis is a wildly misunderstood form of heart disease that impacts 12% of the elderly population. The disease is often mis-diagnosed and often under-treated. This narrowing of the aortic valve is commonly referred to as an “insidious” disease considering (i) its symptoms are regularly and incorrectly discounted to normal aging processes and (ii) patients can be asymptomatic.  As the disease can have fatal implications, I’ve also heard several doctors call aortic stenosis a “silent killer”.

 

Facts About Aortic Stenosis

 

As my personal mission is to educate and empower our patient community, I wanted to learn more about aortic stenosis progression.  Specifically, I wanted to dig deeper because so many aortic stenosis patients in our community are in “watchful waiting”.  In watchful waiting, the patient has been diagnosed with aortic stenosis. However, the severity of the disease does not yet require surgical aortic valve replacement (SAVR) or transcatheter aortic valve replacement (TAVR).  So you know… I was in the “watchful waiting” for 7 years.

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John’s Photos Go Viral With 5,300 Facebook Likes!

By Adam Pick on October 24, 2017

The power of our patient community never ceases to amaze me. You guys and gals are simply amazing!!!

Interestingly… When you combine our “patient power” with social media, some unexpected and wonderful things can happen that drive awesome awareness to heart valve disease.  For example, John Dodson had aortic valve replacement due to aortic stenosis last week.  During John’s hospital stay, Seth (his son) posted several inspirational photos at John’s journal.  After seeing these inspirational photos, I posted them at our Facebook page.  Then, these photos went viral and were shared all over the world.  In total, John’s pictures had over 5,300 Facebook Likes and 750 Comments.

Here’s John flashing our community two “thumbs-up” just 4 hours after surgery. This one photo had 4,800 Facebook Likes, 619 Comments and 225 Timeline Shares. Fantastic!

 

 

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