While this odyssey seemingly never ends, getting off Xarelto is a big step. I realize that many can't so I feel for you! For me the ability to take NSAIDS to address my chronic arthritis made getting off of Xarelto huge. Just another step in the process. My heart monitor was perfect but the PA stated that they were a little concerned that at times my heart rate got to 120. Duh! It's called exercise. She laughed and said don't stop that or certain other activities that raise the heart rate. Ahem.
Hopefully this odyssey is winding down to the return of a normal life. I am on a heart monitor with the goal of getting off Xarelto. That concludes on 2/13.
As for the pneumonia scare, it was just that. Went to a pulmonologist who ran a esophageal endoscopy. No pneumonia but there was damage to the right lung that he identified as related to my MIMVR. I will have to have a CT of my lungs annually now. Not resentful about it because the MIMVR was such a terrific "job well done". As long as there is no further deterioration I am okay. Hope to report back soon that I'm off Xarelto!
Hello friends. Sorry I haven't posted much lately but please know that I have been thinking of you. Just an update on me. I was diagnosed with bacterial pneumonia on Monday. Had been on amoxicillin for a few days but once I got a chest Xray I was put on Levofloxacin to knock the lung infection out. Quite harrowing given my mitral valve repair and the chance of spreading to my heart. Hopefully the antibiotics fought off any effect on the heart
Anyone out there had a similar experience that turned out okay? Thank you so much!
(BTW, my surgeon warned me to be careful about infections, but what can you do? Took all the hygiene precautions in the world but this was likely airborne.)
Had an EKG yesterday and I am now in normal sinus rhythm. Booyah! Cardiologist knew what he is talking about. Give it time. I did. It worked. So happy. Also found out about some incision scar issues. Going to take more time on that one. Lots of scar tissues and nerve damage that is healing, however so painfully. Thanks be to God!
Feeling better every day but it's gradual. Wish my incision was farther along. Anyone who has had MIMVR-how long did it take to completely heal? Got a lot of scar tissue and some stings now and then. Pretty sure the stings are nerve damage.
So this showed up on my EKG twice. My cardiologist wants to give it a little more time to see if it clears out after the surgery (which was one month ago today). If it doesn't clear out by Nov. 12 then he will treat with cardioversion or drugs. Anyone with similar experience you can share? Doesn't seem like the best condition to have but the fact he waits six weeks to follow up tells me he's not too concerned.
Now that I'm about ten days out of surgery, someone asked me about Duke's cardiac team. I would describe it as a trust fall like we used to do in the 90's in some of my businesses. You just let go and they catch you for about 5-7 days. They never once dropped me or my family! Amazing!
Anyone familiar with the old trust fall exercises used to build trust?
Had a high 4.4 INR yesterday. Going in Friday for last INR prior to surgery this Tuesday. My cardiologist drops the bomb that if my INR doesn't come down by Friday we may have to postpone surgery even though there will be three more days to rid my body of Coumadin. Usually takes 3-5! When I get through this surgery, might be time to go cardiologist shopping! Kale salad anyone?
My wife and daughter. How I see life in a few weeks post-op.
Journal posted on July 31, 2018
Cardiologist put me on Warfarin today. 5 mg until five days before surgery. Dang. Hope it's just temporary and won't need it after my maze treatment during the mvr Bought an electric shaver since I'm prone to nicks. LOL.
So I was moving along towards my surgery on August 21 when, bam! Afib attack and a good one at that. Rushed over to the emergency room and they got it under control. Came within a hair if being admitted but after two hours of medication, it stopped. This was only my second bout of afib. I have always been told that I was asymptomatic except for one other bout of afib during another medical procedure. But yesterday while I was hooked up to all the monitors on Saturday, the machines detected that I was short of breath on my normal breathing pattern. Had to keep taking deep breaths to keep the monitor from "belching".
So, sent message to Duke to see if I can move up my surgery date. Frankly, afib concerns me more than the operation! Onward and upward!
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Will meet with my surgeon, Dr. Glower (rhymes with flower). He's already got my records so hopefully this is a formality and just a chance to ask a few more questions. I used to disdain the "Dukies". Hey, not any more!
Got my cath today and had no blockages. So happy about this as it allows for more options such as minimal invasion for my mitral valve. Next step-off to Duke to see Dr. Glower for further consultation. One of Duke's best cardiac surgeons.
Not entirely sold yet but im a hard ass. Saw one bright, young surgeon and one older more experienced surgeon. Have my cath scheduled for Monday. I have to fix the valve regardless.
Sooooooo, if I don't have a blockage, I'm going to Duke for a second opinion and a visit with Dr. Glower who specializes in minimal invasive mitral valve repair. Five star rated. Interesting that the surgeons today did not hesitate to refer me to Glower if I wished. This impressed me.
Anyone have any thoughts on minimally invasive versus thoracic?
So I have had three cardiologists (due to retirements and my relocating) and all have said this mitral valve needs to be repaired. Does anyone think I need a second opinion from a surgeon? I see my surgeon for the first time tomorrow. Thank you.