Recently encountered some additional stress in my life!!! Can stress induce afib 3 months post op? Apple Watch identified afib average heart rate was 78 but my ...Read more
Recently encountered some additional stress in my life!!! Can stress induce afib 3 months post op? Apple Watch identified afib average heart rate was 78 but my heart rate usually a bit higher than that. What do you think? I called cardiologist he said he is not worried but I am 🤦🏻♀️
Tammie Frizzelle I had several (14) episodes of A-fib on my Apple Watch. I wore a two week heart monitor from my card ... Read more
Tammie Frizzelle I had several (14) episodes of A-fib on my Apple Watch. I wore a two week heart monitor from my cardiologist, and there were no episodes of A-fib. there were some SVT’s, but none were A-fib. 🙌🏼
Scott Mills I’ve had some PACs since surgery. My Apple Watch called it Afib. I think the watch will report any ... Read more
Scott Mills I’ve had some PACs since surgery. My Apple Watch called it Afib. I think the watch will report any out of the ordinary rhythm as Afib.
Melinda Donahue Thanks you Tammy and Scott. This helped a lot. I am such a nervous person as it is, Apple Watch notif ... Read more
Melinda Donahue Thanks you Tammy and Scott. This helped a lot. I am such a nervous person as it is, Apple Watch notification puts me over the top.
I may sound a little nuts - but I ran the afib report thru ChatGPT and chat disagreed with it and said Apple Watch was flawed it how it reviewed the ecg.
Tammie Frizzelle I’ve had PACS also and my cards said the watch was mistaking for Afib
Hi!!! Happy Saturday. Cold and flu season is here and I have another question. Are we at all compromised because we have repairs and have synthetic rings ? ...Read more
Hi!!! Happy Saturday. Cold and flu season is here and I have another question. Are we at all compromised because we have repairs and have synthetic rings ? Sorry for crazy question but this is where my mind goes 🤦🏻♀️
Robert Miller I don't think we are compromised in any way. They make you take antibiotics if you have some dental c ... Read more
Robert Miller I don't think we are compromised in any way. They make you take antibiotics if you have some dental cleaning/procedure but that's about all I know. As for the synthetic ring, I don't think it matters at all. They give you a card with the type of ring they inserted but I don't think it matters. Actually, my ring was from one of our customers and I made a t-shirt saying "Medtronic inside"...
Fidel Martínez Ruiz I am of the same oppinion and lo and behold I´ve catch a cold 1 week ago and it´s still pushing. La ... Read more
Fidel Martínez Ruiz I am of the same oppinion and lo and behold I´ve catch a cold 1 week ago and it´s still pushing. Last year I passed another similar case and it seems didn´t affect my heart status, since my last check up turned out to be fine. That´s why I´m not overly worried. Anyway I think that it´s convenient to have a strong inmune system and I don´t know how to achieve it aside from general recomendations like make exercise, healthy food and bla bla bla. I´m looking for some natural medicine products which not disturb the heart meds I´m taking now.
Richard Munson Are you thinking too much again? Colds and flu affect us all, heart surgery or not. I had a flu shot. ... Read more
Richard Munson Are you thinking too much again? Colds and flu affect us all, heart surgery or not. I had a flu shot. Who knows if they work. My daughter has a cold. She wore a mask on thanksgiving. Did it work ? Who knows. Not sure living in a bubble post surgery is my idea of fun. Worry can cause anxiety which in turn can lower your bodies ability to fight colds and flu. I just made that up.
Richard Munson I like the ring of that dr. Richard. I quote to my dear friend Melinda, who i would love to meet but ... Read more
Richard Munson I like the ring of that dr. Richard. I quote to my dear friend Melinda, who i would love to meet but probably will not, the words of my favorite president Ronald Reagan during a debate with Walter Mondale “ there you go again”. Walk that beautiful dog and enjoy those grandkids, and forget about your synthetic ring. As for me today, and yes, i do have a synthetic ring, i plan to take shadow for a spirited 3 mile walk, and then drive my gas guzzling golden beauty for a spin before they finally salt the roads and end it all, and meet my buddy in his equally gas guzzling 1970 Plymouth duster at dunkin donuts for an artery clogging snack and not think twice about anything but its great to be alive. I may even burn a ten foot patch on my street in Melinda’s honor. Keep your ears peeled. My neighbors will love that. Not.
Rose Madura You go Richard! I couldn't agree more!
Richard Munson Was that your second opinion of the day. Lol. My biopsy results showed my prostate cancer to be about ... Read more
Richard Munson Was that your second opinion of the day. Lol. My biopsy results showed my prostate cancer to be about the same as my last years results. Meet my urologist monday for a consult. Hoping he wants to continue my active surveillance for another year. The thoughts of radiation makes my remaining hair curl. You can be sure that i have already printed out a list of questions and i will hold his feet to the fire.
Richard Munson Btw melinda, your annular ring may not be the only synthetic result of your surgery. I recall my surg ... Read more
Richard Munson Btw melinda, your annular ring may not be the only synthetic result of your surgery. I recall my surgeon telling me that he had to repair a couple of leaflet chords and that he used gore tex thread. I was in a foggy state then so anything is possible.
Fidel Martínez Ruiz Yes Richard, I'm sure that a positive attitude and self-confidence help. But that doesn't mean you s... Read more
Fidel Martínez Ruiz Yes Richard, I'm sure that a positive attitude and self-confidence help. But that doesn't mean you shouldn't be cautious, which is why I think the question is relevant. We are all different and have different health conditions, I think.
Richard Munson Truer words were never spoken. The word of the day is caution.
Richard Munson Although, too much caution can stifle creativity. Creativity is what made this country great. I hope ... Read more
Richard Munson Although, too much caution can stifle creativity. Creativity is what made this country great. I hope we never lose that but alas my hope may not come true.
Melinda Donahue Hi!! Robert when I got that card in the mail I had no idea what it was for. I brought it to my cardiologist and he got a good laugh because I was in a complete panic. He is kind of used to me and in the one who said I need to go and see someone to speak to or for meds to help with anxiety.
Richard, I first want to say that I am so happy that your prostate numbers are not changed from last year and hope it remains that way (if possible, improves) for the next 30 years. You know me pretty well even though we never met and you can only imagine what my husband of 42 years goes through. He tells me I’m looking for a problem when there isn’t one, and like RR does say ‘there you go again’ -lol ! I say I’m trying to make sure I don’t have a problem - I have always been somewhat like this but now I am worse!! Poor Bob!
I read my post surgery report from Mount Sinai and I definitely needed surgery so I am starting to be convinced of it but still haven’t made peace with the process. I think when all the little pains in my chest settle I will stop thinking about it. I know how fortunate I am but think it’s more about inflicting pain on my loved ones than experiencing pain myself. Too deep right lol!! ... Read more
Melinda Donahue Hi!! Robert when I got that card in the mail I had no idea what it was for. I brought it to my cardiologist and he got a good laugh because I was in a complete panic. He is kind of used to me and in the one who said I need to go and see someone to speak to or for meds to help with anxiety.
Richard, I first want to say that I am so happy that your prostate numbers are not changed from last year and hope it remains that way (if possible, improves) for the next 30 years. You know me pretty well even though we never met and you can only imagine what my husband of 42 years goes through. He tells me I’m looking for a problem when there isn’t one, and like RR does say ‘there you go again’ -lol ! I say I’m trying to make sure I don’t have a problem - I have always been somewhat like this but now I am worse!! Poor Bob!
I read my post surgery report from Mount Sinai and I definitely needed surgery so I am starting to be convinced of it but still haven’t made peace with the process. I think when all the little pains in my chest settle I will stop thinking about it. I know how fortunate I am but think it’s more about inflicting pain on my loved ones than experiencing pain myself. Too deep right lol!!
Fidel thanks for always answering my wacky questions with such support. I really want to get back to ‘normal’ but then wonder if my normal was normal. lol.
I saw my cardiologist Monday and he was happy with my progress!! I am still very nervous so he suggested I speak to someone about my anxiety. I ...Read more
I saw my cardiologist Monday and he was happy with my progress!! I am still very nervous so he suggested I speak to someone about my anxiety. I am! I definitely have ptsd regarding the whole ordeal even though my surgery is a successful one.
I no longer have 1st degree block, EKG is excellent, no change in meds and return to work date is after new year. Lots of to look forward to as well - new baby grandson is coming around this time.
J Alexander Lassally I think the PTSD thing is really interesting, and we all experience it to an extent - and no one real ... Read more
J Alexander Lassally I think the PTSD thing is really interesting, and we all experience it to an extent - and no one really addresses it for us post surgery...
Rose Madura Congratulations on a great report! Take care of yourself. I believe that PTSD after OHS is very real ... Read more
Rose Madura Congratulations on a great report! Take care of yourself. I believe that PTSD after OHS is very real. Happy Thanksgiving.
Robert Miller You might want to thing about what your anxiety is about. Put down a few bullet points by priority. T ... Read more
Robert Miller You might want to thing about what your anxiety is about. Put down a few bullet points by priority. Then work on those those bullet points. And if you need input for any of them, ask here. Maybe someone has some ideas. Happy Thanksgiving, if you celebrate it.
Fidel Martínez Ruiz Congratulations on your positive post-surgical data. Regarding stress, I think it happens to most of ... Read more
Fidel Martínez Ruiz Congratulations on your positive post-surgical data. Regarding stress, I think it happens to most of us who have undergone major surgery. You're afraid of what might happen and all that. Think about your grandchild who's on the way. Thinking in good people that surround me help me very much and have a hobby or something you are passionate about. Good tip is putting down points by priority, as Robert says.
Pamela Gregory I definitely had ptsd! Still have it a little bit! I agree it would be nice if someone addressed it ... Read more
Pamela Gregory I definitely had ptsd! Still have it a little bit! I agree it would be nice if someone addressed it post surgery. For me, this site filled with heart patients who understand how I feel is why I still visit this site and connect with everyone. Weather it is paying it forward or needing support myself, this is where I have found the most useful help
Susan Lynn Melinda - You're smart for recognizing these feelings and getting them addressed. Sometimes I think ... Read more
Susan Lynn Melinda - You're smart for recognizing these feelings and getting them addressed. Sometimes I think our minds are just trying to catch up with everything our bodies have been through. Be sure to continue to look ahead - we can't change the past and there's so much offered by the future! There's a lot of life to be lived! Enjoy it.
Melinda Donahue Thanks everyone! I will write down many of the things that worry me or what ifs. I am very fortunate ... Read more
Melinda Donahue Thanks everyone! I will write down many of the things that worry me or what ifs. I am very fortunate and realize it, I think one of the things we miss is the person before surgery. I was asymptomatic so i never really absorbed the severity of my situation - I see it on paper but never had any of that effects and am so fortunate. I do think talking to someone will help. I will keep you posted and thanks so much for helping me too
There is so much stress and trauma for us and our families from this surgery. We all have to find ways to deal it as part of recovery. It’s good you are talking to someone.
Melinda Donahue Thanks to all. JAL - no one does address it ! Its like you are all fixed - live your life, Rose &am ... Read more
Melinda Donahue Thanks to all. JAL - no one does address it ! Its like you are all fixed - live your life, Rose & Pamela thanks for validating this because I know it is and its helpful to have others tell me its true, Susan and Fidel - I do have so many happy things in my life - things to look forward to and 3 and 1 to go grandsons - I am trying! Robert and John I am going to write down what is bothering me and yes hearing what my family was feeling while I was in surgery and having some difficulty added to the stress. I was worried and upset about them being so upset - and I am sure all of our families went thru this.
For me, lack of control was a huge factor - I could not fix anything for them.
Good morning all. Happy Saturday! I have to ask this question. After surgery, was anyone obsessed with the thoughts that you have foreign things in your body, ...Read more
Good morning all. Happy Saturday! I have to ask this question. After surgery, was anyone obsessed with the thoughts that you have foreign things in your body, such as titanium, atrial clips, annuplasty tings, clipped pacing wire? How did you get past it or any of you even bothered by it?
Rose Madura It never concerned me. I was happy that my heart was fixed. I didn't like the alternative.
Valerie Allen I am contently bionic (not properly but conceptually) with heart, knee, etc. what a blessing!
Marie Myers Didn’t bother me either, and it still doesn’t after 8+ years..
Fidel Martínez Ruiz Doesn´t bother me nowadays, and if it bothered me a little in the past I relieved worry thinking tha ... Read more
Fidel Martínez Ruiz Doesn´t bother me nowadays, and if it bothered me a little in the past I relieved worry thinking that the biomaterials I carry are biocompatibles and I´m happy to wear them.
John Cook I’ve accepted I’m in the “rock on completely with some brand-new components” phase of my rock ... Read more
John Cook I’ve accepted I’m in the “rock on completely with some brand-new components” phase of my rock & roll lifestyle.
Melinda Donahue Thank you all!! I think I am in a very reflective stage of my recovery where searching the what ifs via google has taken over!! I am constantly worried about endocarditis, going to the dentist, I read it, I imagine it. It helps to talk to all of you. Thanks for being so patient with me.
Part if my issue is the metoprolol. Switched to time release 25mg but it still ‘zaps’ me during the morning release. I am 5.5 weeks post surgery. I can walk, cook, etc, getting there but I guess i am impatient and think something will go wrong.
Melinda Donahue Thank you all!! I think I am in a very reflective stage of my recovery where searching the what ifs via google has taken over!! I am constantly worried about endocarditis, going to the dentist, I read it, I imagine it. It helps to talk to all of you. Thanks for being so patient with me.
Part if my issue is the metoprolol. Switched to time release 25mg but it still ‘zaps’ me during the morning release. I am 5.5 weeks post surgery. I can walk, cook, etc, getting there but I guess i am impatient and think something will go wrong.
Marie Myers I understand. I had to have a root canal almost 6 months after my AVR and two aneurysm resections. Be ... Read more
Marie Myers I understand. I had to have a root canal almost 6 months after my AVR and two aneurysm resections. Believe me, my mind was going crazy with worry. I took antibiotics for 10 days, and all was well.
Richard Munson Melinda, you can walk, cook and clean. You’re back.
Melinda Donahue Marie I am so happy it all went well and am comforted that I am not alone with the worry.
What is the ‘normal’ heart rate 4 weeks after mitral/trucuspid surgery resting and non resting.
Kimberly Eisenhut I'd think as long as it's between 60-80 you're good. Reach out to your team or Dr . Don't ever feel y ... Read more
Kimberly Eisenhut I'd think as long as it's between 60-80 you're good. Reach out to your team or Dr . Don't ever feel you can't ask your Drs any questions you have. I'm sure I'll be doing same quite a bit for a while.
Melinda Donahue Glad you are back !!! I hope you have a great recovery.
John Cook Mine was a different valve, but I went from 50 - 70 pre-op to 60 - 90 post op for the first 4 weeks.< ... Read more
John Cook Mine was a different valve, but I went from 50 - 70 pre-op to 60 - 90 post op for the first 4 weeks.
I really, really noticed the difference between a resting heart rate of 50bpm and 70bpm.
It slowly returned to normal over weeks 5 - 8.
Kimberly Eisenhut My heart rate leaving hospital is in 80s and my normal is 50s-60s resting. They said at my follow up ... Read more
Kimberly Eisenhut My heart rate leaving hospital is in 80s and my normal is 50s-60s resting. They said at my follow up if still high, may go on beta blocker
Melinda Donahue Mine is around 94 on metoprolol 12.5 am and pm. Doctor said heart rate is normal but wondering what y ... Read more
Melinda Donahue Mine is around 94 on metoprolol 12.5 am and pm. Doctor said heart rate is normal but wondering what you all are experiencing. I am at the 4 week period today John. I am hopeful for a return to ‘normalcy’ over the next few weeks. Kimberly I guess it runs high after surgery. That is what I read and then as our hearts recover the heart rate declines.
John Cook I started on 50mg of Carvedilol 2x/day and I’ve managed to get down to 12.5mg 2x/day. The odd thin ... Read more
John Cook I started on 50mg of Carvedilol 2x/day and I’ve managed to get down to 12.5mg 2x/day. The odd thing is the reduction didn’t seem to change my heart rate at rest. It’s only changed my exercise peak heart rate.
I just looked back at my data. At week 4, I was ranging between 66 & 83, up to 108 when exercising.
My heart rate wasn’t completely back to normal until about Week 9, my dosage at that time was 25mg 2x/day.
Yumiko Ishida Mine was around 110 and I was told it is high normal and sent home without a beta blocker. 110 was ce ... Read more
Yumiko Ishida Mine was around 110 and I was told it is high normal and sent home without a beta blocker. 110 was certainly better than the 140+ I had pre surgery (afib), but still uncomfortable, so I asked my cardiologist to put me back on propranolol (metoprolol lowers my BP too much). Trying to keep the resting HR to below 95. Started at 100mg and now down to 20mg, 21 months post surgery, and resting HR is around 80-85. I haven’t been able to do much exercise due to other health issues, but am hoping to resume cadio exercises, reduce my resting HR through conditioning, and get off beta blockers all together. If you generally have higher BP, you may need to stay on a beta blocker long term, but if HR is your main concern, conditioning through exercise should help. If you want to reduce the amount of beta blocker you take, make sure you do it slowly. I was told reducing it too quickly could have a rebound effect.
Melinda Donahue I see. Thanks. My bp is normal maybe a little low 110/70 or 105/65 but the heart rate in in the 90’ ... Read more
Melinda Donahue I see. Thanks. My bp is normal maybe a little low 110/70 or 105/65 but the heart rate in in the 90’s. Yesterday it was low 100’s and today mostly 90’s. Dr. Said if will take some time. Waking heart rate rises to 104. This is all so new to me. Thanks for responding.
Melinda Donahue Thanks John - yesterday I was panicking. Actually called the surgeon’s office and np said it’s no ... Read more
Melinda Donahue Thanks John - yesterday I was panicking. Actually called the surgeon’s office and np said it’s normal at this point. Hoping for change as time goes on. Tekken 12.5 metoprolol in am and pm. The am dose makes me tired and feel off
Yumiko Ishida It is totally normal at 4 weeks It will come down, especially if you start cardiac rehab, and then... Read more
Yumiko Ishida It is totally normal at 4 weeks It will come down, especially if you start cardiac rehab, and then you could probably slowly reduce your metoprolol dose as well. HR seems to be the thing that takes the longest to come down post surgery.
Melinda Donahue Thanks so much Yumiko. !! You helped so much.
Kimberly Eisenhut Melinda, I can't take Metropolol because my BP dups below 100 at times. Maybe I should ask if there's ... Read more
Kimberly Eisenhut Melinda, I can't take Metropolol because my BP dups below 100 at times. Maybe I should ask if there's something else. I'm most worried about being breathless when I try to walk and the anemia and other bloodwork numbers. I've called my surgical team many times over last few days! I'm not on iron supplements.
Melinda Donahue Kimberly how are you doing now? I am sorry you are going thru a rough patch. I just read this. It is ... Read more
Melinda Donahue Kimberly how are you doing now? I am sorry you are going thru a rough patch. I just read this. It is a process. I am almost 6 weeks post surgery and every day that passes matters. There are small improvements. I hope you start to see this soon.
Kimberly Eisenhut I'm struggling right now with too many things . Horrible migraines every day, anemia, eyesight proble ... Read more
Kimberly Eisenhut I'm struggling right now with too many things . Horrible migraines every day, anemia, eyesight problems, sore on my gums in mouth that hasn't gone away since surgery. Going to dentist today, not that she can do anything, but want to know what this sore spot is from. Then Opthalmologist Friday for narrow angle glaucoma check to make sure my pressures are ok since my right eye laser iridotomy last spring helped it, but since surgery I've been having eyesight problems. More bloodwork with iron test Friday also. Just overwhelmed right now.Trtingbtobeat high iron and protein, but so fatigued.
Melinda Donahue I’m sorry you are going thru this. Did you have a problem with eyesight before surgery ? I had (ta ... Read more
Melinda Donahue I’m sorry you are going thru this. Did you have a problem with eyesight before surgery ? I had (tapered) optical migraines one after another with aura ! Better now. I felt like I just had my pupils dilated, everything I saw was bright as if I was staring into the sun. It’s better not 💯. Going to eye dr tomorrow. This will be stressful for a while ! Honestly I am feeling better 6 weeks tomorrow but chest still hurts along incision and I still feel like I went a few rounds with Mike Tyson. Still upset that pacing wire left in. Gives me metal anguish.
Kimberly Eisenhut Melinda, thanks for the update and communication. I really like knowing there are others like me out ... Read more
Kimberly Eisenhut Melinda, thanks for the update and communication. I really like knowing there are others like me out there struggling with similar things and understand it. We will get through everything one day at a time and one Dr apt at a time. I asked to not have pacing wires and has alternative through neck if needed specifically because of what you said. They put a thing in my neck they could use for paving if necessary during surgery instead of traditional wires. I'm sure you will get it sorted out and am very grateful you shared your experience so I was able to advocate for myself on that. Let me know what happens with that and wish you a peaceful day today❤️
Melinda Donahue Thanks. I am happy that you don’t have this worry. It really bothers me that it’s in there. I loo ... Read more
Melinda Donahue Thanks. I am happy that you don’t have this worry. It really bothers me that it’s in there. I look up the complications and there are so many
Kimberly Eisenhut Just keep up with regular X-rays, scans every year and talk to your cardiologist about your concerns. ... Read more
Kimberly Eisenhut Just keep up with regular X-rays, scans every year and talk to your cardiologist about your concerns. Never feel bad about contacting them with your questions.
Melinda Donahue Thanks Kimberly. Are you feeling better today ??
Kimberly Eisenhut Not really, I think it'll take a while. These headaches are brutal. I half sneezed today and boy did ... Read more
Kimberly Eisenhut Not really, I think it'll take a while. These headaches are brutal. I half sneezed today and boy did that throw me! 😜 I am going to make apt with Ortho Illinois for my neck and spine and see if they can help. I must have been positioned odd during surgery too which sure didn't help my neck problems . One day at a time Melinda 👍🫶
Hi. I have another question. I am very grateful that my surgeons fixed my mitral and tricuspid valve issue and basically did plastic surgery on the hole in ...Read more
Hi. I have another question. I am very grateful that my surgeons fixed my mitral and tricuspid valve issue and basically did plastic surgery on the hole in my heart and am indebted to them. I think they’re amazing! But, I’m caught up in the thought that I have two annuloplasty rings in my body among other things. Was anyone fixated on that after surgery? I know that whatever was placed inside of me was there for the repair but I’m just stuck on that.
Richard Munson You? Fixated ? Who knew. Take the success of surgery and stop sweating the small stuff. Its over, you ... Read more
Richard Munson You? Fixated ? Who knew. Take the success of surgery and stop sweating the small stuff. Its over, you lived thru it. Stories over.
Rose Madura Not at all, just grateful and blessed to have an extended life.
Melinda Donahue Thank you both. You know me well Richard and thanks Rose.
Richard Munson As i sit here on the couch with shadow by my side, he whispered, is that melinda worrying again. We b ... Read more
Richard Munson As i sit here on the couch with shadow by my side, he whispered, is that melinda worrying again. We both agreed, you need a stiff drink and just chill. Spend some serious dog time. Lol.
Melinda Donahue I will.i once had a Long Island ice tea and passed out at the bar newly married, new husband had to ... Read more
Melinda Donahue I will.i once had a Long Island ice tea and passed out at the bar newly married, new husband had to carry me over his shoulder. Woke up next day had not idea how I got home. Stiffest drink is a high noon. lol.
Richard Munson Melindas 6 month post surgery meeting: doctor: your echo looks great, heart all healed, melinda: will ... Read more
Richard Munson Melindas 6 month post surgery meeting: doctor: your echo looks great, heart all healed, melinda: will my scar disappear next week? Doctor: how do you feel? Melinda: i just skied down the matterhorn backwards. Doctor: great accomplishment. Melinda: yes, but i’m worried about my annular ring.
Marie Myers I wish Richard could learn to come out of his shell…🤣
Of course my mind is running away with crazy thoughts and questions!!! Can you have a low heart rate (39 after surgery) and then it returns to ‘normal’ ...Read more
Of course my mind is running away with crazy thoughts and questions!!! Can you have a low heart rate (39 after surgery) and then it returns to ‘normal’ 75-80 and you are cleared not to have a pace maker. Can it revert back to a low heart rate ?
Rose Madura I was having PVCs and my heart rate would show in the 30s. That was inaccurate because when I would ... Read more
Rose Madura I was having PVCs and my heart rate would show in the 30s. That was inaccurate because when I would have a PVC, it wouldn't pickup the heartbeat so it skipped a beat meaning my heart rate was actually double the reading. Hope this makes sense. It may be the same or may not for you. I don't know. But it could be. It is still very early in your recovery. If you feed bad, contact your cardiologist. Please keep us posted.
Kimberly Eisenhut Melinda, always send your team a message if you have MyChart or similar and record these kinds of thi ... Read more
Kimberly Eisenhut Melinda, always send your team a message if you have MyChart or similar and record these kinds of things so they can advise you. If it was for a short period of time, I would not worry too much, but better to let them know anyway. I was told if I feel like I am going to pass out or get dizzy when mine gets low(it has gotten to high 40s during sleep or rest at times), then go to ER. I don't really get it either, as I thought that is considered Bradycardia. Just something to talk to them about. Do you have a number to reach out to the heart team nurse? I have a direct number and if she does not answer, I can send a message through MyChart and someone will get back to me within a day usually. Let me know what they say when you find out, as I will very likely have some of the same issues you have had and are having. I already know that stupid beeping for low heart rate is going to drive me crazy the 2 nights I am there even before surgery. Maybe they can shut it off in the room?
Melinda Donahue Im sorry - I did not explain correctly - my heart rate was 39 a few days after surgery. They were se ... Read more
Melinda Donahue Im sorry - I did not explain correctly - my heart rate was 39 a few days after surgery. They were seriously thinking of putting in a pace maker. It is consistently >75 now - was just wondering If it ever goes backward?
Kimberly Eisenhut Oh, ok. I'd think it may just take some time to settle into a new normal. You can always let Dr know ... Read more
Kimberly Eisenhut Oh, ok. I'd think it may just take some time to settle into a new normal. You can always let Dr know though if you're concerned,they understand👍🫶
Rose Madura A lot of times your heart takes time to get into proper sync.
John Cook This isn’t quite the same. But I had a lot of variability from pre to post op in my heart rate.
My resting heart rate was about 53bpm pre-op. After surgery, it was in the 70s and peaked at 74bpm. I was very aware of how much faster my heart was beating at rest. ... Read more
John Cook This isn’t quite the same. But I had a lot of variability from pre to post op in my heart rate.
My resting heart rate was about 53bpm pre-op. After surgery, it was in the 70s and peaked at 74bpm. I was very aware of how much faster my heart was beating at rest.
It didn’t drop back into the 50s until the end of my second month post-op. Now it’s generally between 54 & 58bpm.
i should also mention, I’ve had my beta blocker quartered since surgery with almost no change in my resting heart rate.
Kimberly Eisenhut Good to know John. I am grateful for all of the heart warriors here and the support as I am sure we ... Read more
Kimberly Eisenhut Good to know John. I am grateful for all of the heart warriors here and the support as I am sure we all are
Kimberly Eisenhut what!!!? Never heard of this before! Why do they do that?
Melinda Donahue I don’t know but true. Mine is in there. I will ask Wednesday. 🥹
Marie Myers They generally pull the temporary wires out several days after surgery if you haven’t needed the pa ... Read more
Marie Myers They generally pull the temporary wires out several days after surgery if you haven’t needed the pacemaker. But if the doc feels too much resistance when pulling them out, it is Safer to leave them in. They just cut the wires flush to the skin surface.
Melinda Donahue Thanks. They didn’t try!!! Just left them in. Will ask about it at appointment on Wednesday. Now t ... Read more
Melinda Donahue Thanks. They didn’t try!!! Just left them in. Will ask about it at appointment on Wednesday. Now that I am ‘awake’ I am a bit more aware😖
Robert Miller Taking out the pacing wires was one of the last things they did before they released me from the hosp ... Read more
Robert Miller Taking out the pacing wires was one of the last things they did before they released me from the hospital. I am a bit surprised they left them in. If you are in a condition where they think they might still need them then I would think you are not ready to leave the hospital. I needed them for my first surgery but they didn't release me until they were confident my heart work properly without the temporary pacemaker.
Kimberly Eisenhut O.k. another thing I need to remember before leaving I guess. Glad I saw this convo. Melinda, let us ... Read more
Kimberly Eisenhut O.k. another thing I need to remember before leaving I guess. Glad I saw this convo. Melinda, let us know what Dr says about it.
Melinda Donahue I will!!! Going tomorrow. I am upset about it honestly.
Melinda Donahue They just snipped it before I left. Said it was the way things were done. I don’t like having somet ... Read more
Melinda Donahue They just snipped it before I left. Said it was the way things were done. I don’t like having something inside me honestly. I will see tomorrow. I am extremely anxious over it 😡
Marie Myers Dont be anxious, as it is common to leave them in. They don’t want to disturb anything healing in ... Read more
Marie Myers Dont be anxious, as it is common to leave them in. They don’t want to disturb anything healing in the area by pulling the wires out. Different docs have different routines..
Robert Miller They pulled mine. But I guess as @Marie Myers said, different surgeons might handle it differently. ... Read more
Robert Miller They pulled mine. But I guess as @Marie Myers said, different surgeons might handle it differently. I could be completely wrong but to my recollection, I was told that if I needed a permanent pacemaker those wires would have to be replaced. If you had open heart surgery then you still have wires that kept your breast bone together. So it's just a couple more wires. I guess as long as they don't disturb you, it should be fine.
Kimberly Eisenhut I'll be checking into the hospital tomorrow but will check here tomorrow evening or Thursday to see w ... Read more
Kimberly Eisenhut I'll be checking into the hospital tomorrow but will check here tomorrow evening or Thursday to see what they said about it. Good luck Melinda, big hugs sent🫂
Melinda Donahue Good luck Kimberly. I will be thinking of you. Cannot wait until your surgery is over.
Hi. I am home a whole three days - my tubes got taken out when I left icu - one week after surgery. Is it normal for me to still feel winded when I walk ...Read more
Hi. I am home a whole three days - my tubes got taken out when I left icu - one week after surgery. Is it normal for me to still feel winded when I walk - mostly uncomfortable around the tube site.
Ana Brusso Hi Melinda, glad you are home. I don’t know what is normal, but give yourself some time. Blessings ... Read more
Ana Brusso Hi Melinda, glad you are home. I don’t know what is normal, but give yourself some time. Blessings 🙏❤️
Fidel Martínez Ruiz Hi Melinda, the same happened to me, it´s very soon to feel yourself completely "normal" . I took al ... Read more
Fidel Martínez Ruiz Hi Melinda, the same happened to me, it´s very soon to feel yourself completely "normal" . I took almost 2 or 3 months to feel fine. It´s important and it has already said to make moderate exercise (walking, for instance) but step by step- one day at a time- as you say-, but without leaving, assuming it as a habit. And drink water. Warm greetings.
Pamela Gregory Welcome home Melinda! You went through a lot and need to take it one day at a time. I found it was n... Read more
Pamela Gregory Welcome home Melinda! You went through a lot and need to take it one day at a time. I found it was not a smooth line forward. If you overdue it one day maybe next day or two was slightly worse. Slow and steady is the best way. Gradually increasing how much you do. Your body will let you know when to ease up. I definitely had discomfort around the tube site the longest. They were not intended to be there in our lifetime so your body gets mad. It is amazing how it bounces back though. Take your time and let your friends and family wait on you
John Cook I’m glad you’re home. Uncomfortable around the tube site is normal. Getting tired when walking is ... Read more
John Cook I’m glad you’re home. Uncomfortable around the tube site is normal. Getting tired when walking is normal. My first week home, I was only walking 7 minutes at a time, I used my cane for balance, and I wasn’t leaving the house. I just paced around in a loop.
Progress will come. Sometimes slowly, sometimes quickly.
Melinda Donahue My gosh - you all are so wonderful. You made me burst out crying. It is so important to know I sha ... Read more
Melinda Donahue My gosh - you all are so wonderful. You made me burst out crying. It is so important to know I share similar experiences with you. Thanks to you and Adam Pick. ❤️
Marie Myers I cried at sad commercials for several weeks…I was an emotional mess for a while after surgery.
Kimberly Eisenhut Melinda, I do know it happens to some. If it does, you will be fine and it will be the best thing fo... Read more
Kimberly Eisenhut Melinda, I do know it happens to some. If it does, you will be fine and it will be the best thing for you. Trust the process and keep your chin up. I will need a lot of encouragement myself soon. Ask the Dr any questions you may have, such as the wire placement as to the tricuspid valve, as that is what I will be doing if it happens to me. I do know it can have an affect on the durability of the tricuspid valve repair, as they usually run across that area as I understand it. I will be hoping you get answers from someone who has had it done after surgery. Lots of love and hugs sent to you today
Melinda Donahue Thanks Kim. I ended up no needing it. My heart ‘stepped’ up. How are you doing?
Kimberly Eisenhut I am so glad you did not need it. I am struggling as you were before surgery. I cry every morning an... Read more
Kimberly Eisenhut I am so glad you did not need it. I am struggling as you were before surgery. I cry every morning and am feeling very alone, even though I have my kids and will have my mother and sister at hospital for most of my stay. It is just the anticipation, unknown and the way my mind works, always needing to have every single thing planned out and figured out does not help at all. I wish I was the kind of person my sister is and just "wing it" ! I have never been the spontaneous type of person. My having to move a couple weeks ago and now this coming up so fast is taking a tole. I have been thinking about a wedge pillow or something for the bed after surgery. Do you have to use pillows to prop up in bed or did you get a wedge pillow system or use a recliner? I did get a power recliner, but if I want to relax in bed or try to sleep in bed I'd like to have that option as well. Thanks for any advice on what you really needed at hospital or the wedge pillow is greatly appreciated. You are now a warrior and I hope to be like you and be of help to others after my surgery. Especially with primary Tricuspid surgery, as there are just not many others like me to talk to and I would love to be that person for someone like me when they come here looking for another person with Primary Tricuspid regurgitation and surgery questions. Sending you big hugs and lots of love today Melinda! 🫂
I have another question. A friend of mine was at my house and had 4 bypass surgery a few years back. He mentioned to me that he had an out of body experience. ...Read more
I have another question. A friend of mine was at my house and had 4 bypass surgery a few years back. He mentioned to me that he had an out of body experience. This made me even more nuts that I am. Any comments?
Rose Madura I will never understand why anyone would tell someone, who is obviously nervous, about something lik ... Read more
Rose Madura I will never understand why anyone would tell someone, who is obviously nervous, about something like that occurring. It's crazy. Melinda, you have chosen a great hospital, a great surgeon and the odds are in your favor of having a positive outcome. Try to focus on that if you're going to focus on anything. Or, try to take your mind off the surgery however you can do that - A movie ? BTW, I did not have an out of body experience. Godspeed. I will pray for you to have peace about it all.
Melinda Donahue I know. I am already nervous now i am totally shaken. Thank you Rose for answering. I cannot wait ... Read more
Melinda Donahue I know. I am already nervous now i am totally shaken. Thank you Rose for answering. I cannot wait until this is over. 😔
Valerie Allen Melinda, the odds are way, way, way in your favor. That visitor was not helpful!
Richard Munson I had one right after my surgery during my first walk in the hospital. My body came out the back of t ... Read more
Richard Munson I had one right after my surgery during my first walk in the hospital. My body came out the back of the hospital gown. No wise CRACKS, please.
Fidel Martínez Ruiz I come up with perhaps your friend had a dream or a fantasy. Everyone can dream very crazy things.
Marie Myers Getting over a long anesthetic and post operative narcotics can produce some pretty crazy dreams in s ... Read more
Marie Myers Getting over a long anesthetic and post operative narcotics can produce some pretty crazy dreams in some people…
Melinda Donahue You guys are the best Richard you do crack me up.
Chris Hall Only thing I remembered was that big water spot on the ceiling in recovery. It made me smile
John Cook No out of body experience here but I don’t remember my first 2 days of ICU.
Weird dreams are also a normal part of open heart surgery.
Pre-surgery, I had REM sleep disorder when my apnea was bad. I had one dream in the hospital that made me try to jump vertically from the bed while I was sleeping on my back. My arms and legs all flung upwards at the same time. It felt so weird it woke me up.
Melinda Donahue Oh my gosh !!! Mi cannot wait until this is over. The anxiety is so hard. That must have been an insa ... Read more
Melinda Donahue Oh my gosh !!! Mi cannot wait until this is over. The anxiety is so hard. That must have been an insane dream
Kimberly Eisenhut Has your Dr given you anything to calm your nerves? You will be just fine Melinda and we will all be... Read more
Kimberly Eisenhut Has your Dr given you anything to calm your nerves? You will be just fine Melinda and we will all be here to cheer you on when you are recovering and enjoying your new and improved heart ! You will dream of the most beautiful places and people you love while sleeping and feel only calm and peace during your recovery. Have a mantra in your head on repeat. One of mine is, "I will lay down in peace and sleep" When I am struggling with sleep and just keep thinking of the word peace. Have a word that comforts you.
Melinda Donahue Thanks Kimberly and no meds! I needed 1 Xanax for a CTA and it was quite the issue. I don’t even d ... Read more
Melinda Donahue Thanks Kimberly and no meds! I needed 1 Xanax for a CTA and it was quite the issue. I don’t even drink! lol. Hi cannot wait until we are both thru this.
I had my pre-op testing on Thursday and thankfully all went well.
I am confused about what you can bring as far as personal items. Pj bottoms, underpants, ...Read more
I had my pre-op testing on Thursday and thankfully all went well.
I am confused about what you can bring as far as personal items. Pj bottoms, underpants, 😖?
Richard Munson I bet nurse marie can give you a list. Hospital gowns are not great covering certain areas of the bo ... Read more
Richard Munson I bet nurse marie can give you a list. Hospital gowns are not great covering certain areas of the body, unless you like walking the corridors exposed to the world. You will be up and walking very soon after surgery so get ready.
Melinda Donahue Richard, I had the strangest conversation with the nurse practitioner at the hospital on Thursday. Sh ... Read more
Melinda Donahue Richard, I had the strangest conversation with the nurse practitioner at the hospital on Thursday. She told me I wasn’t allowed to bring anything. I told her that I actually need my sneakers to walk because I have a foot issue. I told her I would take a brand new pair of sneakers and I’ve never been worn so they’re clean. I told her I really do need to have socks and underwear and pajama bottoms on. I’m not comfortable sitting naked waiste down in a bed, or walking around like that. She commented that I couldn’t bring a bag and that when my husband visits me he could bring me something. I don’t know maybe I misunderstood and I was in like another realm but we were having this conversation.
George Gardopee Hi Melinda. Just a thought that may clear up the confusion. When I checked in for surgery, I had to r ... Read more
George Gardopee Hi Melinda. Just a thought that may clear up the confusion. When I checked in for surgery, I had to remove everything (clothes, watches, etc.) and put everything in a bag for my wife to take away. You go into the OR with nothing - that may be what the nurse meant. When I got to the ICU after surgery, my wife brought everything I needed. Especially my cell phone. Underwear is initially awkward due to the multitude of drainage tubes, wires, catheters, etc. so not if much use until you get to step-down. I recommend a bathrobe for hall walking. They will certainly let you wear your sneakers.
Richard Munson I put everything in a bag for sure. Sneakers on the table might not work but my bag followed me aroun ... Read more
Richard Munson I put everything in a bag for sure. Sneakers on the table might not work but my bag followed me around from room to room. It was in the middle of covid. No guests. Funny how you can manage when there are no options. Yep my gown was open in the back for my first walk for all the world to see. I did receive a couple of wise CRACKS. BUTT, i got thru it.
Rose Madura I brought chargers, my tablet, and loose clothes to wear home. If I needed anything, the hospital got ... Read more
Rose Madura I brought chargers, my tablet, and loose clothes to wear home. If I needed anything, the hospital got them for me or my husband would bring them. A box of tissues and throat losengers might be helpful. Then you can bring the kind you prefer. My gown didn't expose me at all, if you tie it properly. Least of your worries....👍
Marie Myers I think the nurse was talking about your first day,which is surgery. You wont need anything that day. ... Read more
Marie Myers I think the nurse was talking about your first day,which is surgery. You wont need anything that day. No underwear needed till the urinary catheter comes out, and that is a few days.
Melinda Donahue Thanks. I was so confused. I will be counting minutes u til tubes comes out and most esp the catheter ... Read more
Melinda Donahue Thanks. I was so confused. I will be counting minutes u til tubes comes out and most esp the catheter.
Melinda Donahue Very funny Richard. Thanks and thanks to all of you.
Are you in that much pain after surger ... Read more
Melinda Donahue Very funny Richard. Thanks and thanks to all of you.
Are you in that much pain after surgery and did you all have to take the heavy pain killers. I am not a fan of meds 😭
Richard Munson Pain levels no doubt vary from person to person but it is open heart surgery. I think anyone going in ... Read more
Richard Munson Pain levels no doubt vary from person to person but it is open heart surgery. I think anyone going into ohs and expects no pain is living in dreamland . I just pulled a non stick bandage off my recent arm laceration and it hurt. Can i sue them?
Marie Myers I was on the stronger narcotics for a couple days. After that time, Tylenol did the trick. I cannot h ... Read more
Marie Myers I was on the stronger narcotics for a couple days. After that time, Tylenol did the trick. I cannot handle a lot of heavy narcotics either. When I got home, I would occasionally take a half of a Percocet to help get some sleep. Everyone is different, for sure!
Melinda Donahue I expect pain, but reading many of the experiences makes you wonder - there is such a difference of ... Read more
Melinda Donahue I expect pain, but reading many of the experiences makes you wonder - there is such a difference of opinions - I will no soon enough.
Fidel Martínez Ruiz I remember feeling discomfort more than pain in post-op. Pain level is different from person to perso ... Read more
Fidel Martínez Ruiz I remember feeling discomfort more than pain in post-op. Pain level is different from person to person, but in case of appear on the scar, in general doctors can put it out or alleviate easily.
Melinda Donahue Thanks Fidel. I have three more days to go. The anxiety is extreme. I sincerely cannot wait until thi ... Read more
Melinda Donahue Thanks Fidel. I have three more days to go. The anxiety is extreme. I sincerely cannot wait until this time next week
oh gosh - I have my preops tomorrow - surgery 9/4 and I have been placed on a z - pak because of sinus infections lucky me :(
Kimberly Eisenhut Melinda, I am so sorry you are having to take antibiotics now. Hope you get better quickly. I am try... Read more
Kimberly Eisenhut Melinda, I am so sorry you are having to take antibiotics now. Hope you get better quickly. I am trying to be careful leading up to surgery, although I just hugged and held hands with my daughters neighbor after she told us her son was in hospital and not doing well, and has MRSA! I couldn't help myself, as she was so emotional and upset and just lost her husband of 53 years a few months ago. I came in and immediately washed my hands and changed my clothes and washed them in hot water and dried on high heat. MRSA is no joke. I just was in the moment and wanted to comfort her, but she literally had just come home from being in his ICU hospital room. I will need to just be more careful for the foreseeable future now You will do great and I will be praying for you and sending lots of hugs and love your way
Marie Myers Life still happens, heart surgery or not..I had to have a root canal just a few months after my heart ... Read more
Marie Myers Life still happens, heart surgery or not..I had to have a root canal just a few months after my heart surgery. I was not a happy camper at the time,but everything turned out fine.
Kimberly Eisenhut Marie, thank you for the reality check and positive attitude. I always go the extreme and think of th ... Read more
Kimberly Eisenhut Marie, thank you for the reality check and positive attitude. I always go the extreme and think of the bad things instead of concentrating on the good. Trying to change my mindset for this♥️🫶🙏
Marie Myers It is my nature to look for the worst also… I totally get it!
Marie Myers It is sadly so. I always expect the worst, and then when it doesn’t happen, I am delighted! And th ... Read more
Marie Myers It is sadly so. I always expect the worst, and then when it doesn’t happen, I am delighted! And this year marks my 50th year anniversary from nursing school graduation ...Cannot believe it!
Kimberly Eisenhut Wow Marie! Congrats on your 50th graduation anniversary! I am sure you made so many humans feel care... Read more
Kimberly Eisenhut Wow Marie! Congrats on your 50th graduation anniversary! I am sure you made so many humans feel cared for and what a way to live your life helping others i hope to meat some wonderful nurses during my surgery, I always thank them for everything and make sure I let them know how much they are appreciated by me It is an extremely demanding and stressful job.
Melinda Donahue Marie a root canal!!! Oh gosh. I went to the preops today and all worked out. I was worried they woul ... Read more
Melinda Donahue Marie a root canal!!! Oh gosh. I went to the preops today and all worked out. I was worried they would change the date because of the meds.
Going for pre-ops on Thursday. Get extremely emotional. Just burst out crying when I am alone. I am having so much trouble holding this all together. 🤦🏻♀️ ...Read more
Going for pre-ops on Thursday. Get extremely emotional. Just burst out crying when I am alone. I am having so much trouble holding this all together. 🤦🏻♀️
Suzette Schear Hi Melinda , for me it was very emotional rollercoaster, I did have Xanax and that helped. I watched ... Read more
Suzette Schear Hi Melinda , for me it was very emotional rollercoaster, I did have Xanax and that helped. I watched old tv shows from when I was a kid listened to meditation music , old music from when I was a kid , spoke with my friends and support team and got caught up in movies, though concentration is off. It’s a hard thing to face and in my option this is normal. When you have your moments get it out rather than hold in the anxiety. I also watch funny short clips from you tube
John Cook It is perfectly normal both pre- and post-op. Don’t feel bad about.
John Cook It is perfectly normal both pre- and post-op. Don’t feel bad about.
i cried every day for three weeks after my surgery. It still sneaks up on me sometimes.
Richard Munson I’ll be happy to drive down there with shadow for some emotional stability but nancy might object. ... Read more
Richard Munson I’ll be happy to drive down there with shadow for some emotional stability but nancy might object.
Fidel Martínez Ruiz I passed the same feeling of anxiety and scaring like you and all of us. Think in this and have confi ... Read more
Fidel Martínez Ruiz I passed the same feeling of anxiety and scaring like you and all of us. Think in this and have confidence. My best wishes!!
Melinda Donahue Suzette I think you and I are on the same page. I started watching season one of Blue Bloods and then ... Read more
Melinda Donahue Suzette I think you and I are on the same page. I started watching season one of Blue Bloods and then watching every episode. I also do watch old shows that I loved and very funny YouTube videos. This is also stressful because I am asymptomatic and I wonder what will my life be after. I also think that something extreme will happen to me during the operation. My mind starts to wonder and I get so nervous. I appreciate it. It’s invaluable.
Melinda Donahue Hey John, I got scheduled for my heart surgery about a month after you had your surgery and I have be ... Read more
Melinda Donahue Hey John, I got scheduled for my heart surgery about a month after you had your surgery and I have been following you. I am so happy to see that you are on the mend and almost back to normal. It’s an inspiration! Thanks for sharing that. You also get emotional about this whole situation. It usually happens when I’m all by myself. I keep running over in my mind about leaving my house that day and laying on the operating myself in that surgery room and then just going through surgery. I also started thinking how scary it’s going to be and the what ifs creep in. I think you all know and had the same feelings and this really helps to speak to you.
Melinda Donahue Richard, you’re the best so come on down and bring your wife with you. You shadow and Nancy I’ll ... Read more
Melinda Donahue Richard, you’re the best so come on down and bring your wife with you. You shadow and Nancy I’ll make you dinner.
Melinda Donahue Thank you, Fidel and thank you for being on this site to help all us newbies
John Cook Melinda, thank you. That means a lot to me.
The surgery is major surgery and it is scary to think about. But the statistics on recovery are really, really good and about as close to a sure-thing as it comes.
Recovery is a journey. It will feel both frustratingly slow and amazingly fast. Try to stay focused on the good days and don’t let the bad days get you down, especially during the first 4 weeks. ... Read more
John Cook Melinda, thank you. That means a lot to me.
The surgery is major surgery and it is scary to think about. But the statistics on recovery are really, really good and about as close to a sure-thing as it comes.
Recovery is a journey. It will feel both frustratingly slow and amazingly fast. Try to stay focused on the good days and don’t let the bad days get you down, especially during the first 4 weeks.
On one hand, I didn’t start feeling mostly normal until Week 10. 10 weeks is a long time to not feel normal. On the other hand, what is easy for me to do today in Rehab was impossible for me to do 4 weeks ago and felt like I would never be able to do 8 weeks ago.
David Buchanan Melinda I am at the same point did cardiac CT scan three days ago meeting surgeon this week
happy to journey together and please reach out if needed
I am calm with the fact that my surgeon is the best I can have .
god bless
Melinda Donahue Hi David! Happy to go thru this journey with you. I do find comfort in knowing my surgeon is also th ... Read more
Melinda Donahue Hi David! Happy to go thru this journey with you. I do find comfort in knowing my surgeon is also the best, I keep thinking about the what ifs. 🥹
Fidel Martínez Ruiz Melinda, I'm also a newbie here. Since I don't speak English well, I can some- times seem pretentiou... Read more
Fidel Martínez Ruiz Melinda, I'm also a newbie here. Since I don't speak English well, I can some- times seem pretentious. Sorry for that.
Scott Mills It’s a crazy thing to think about open heart surgery, but these folks do this every day, sometimes ... Read more
Scott Mills It’s a crazy thing to think about open heart surgery, but these folks do this every day, sometimes several times a day. I’m 3 months out, and don’t even really remember the tough days, they fade (in a good way). I was pretty prepared emotionally for the surgery, but not for the recovery, so the first week was more challenging, but I would say by day 6 I was already in a routine of healing / following instructions. I too had some bursts of emotions, and nobody even batted an eye because it was so normal. All the best Melinda :)
Melinda Donahue Thanks Scott. I hope and pray I have a similar outcome.
Melinda Donahue Fidel I think you speak perfectly. I understand exactly what you mean and how helpful you are to ever ... Read more
Melinda Donahue Fidel I think you speak perfectly. I understand exactly what you mean and how helpful you are to everyone. I thank you. I am very new to all of this.
Pamela Gregory I like Suzette had a little help from Xanax to help me sleep the last couple of weeks. It is very sc... Read more
Pamela Gregory I like Suzette had a little help from Xanax to help me sleep the last couple of weeks. It is very scary and I can tell you I was a complete disaster before my surgery. I would cry at the drop of a hat because I was so scared. Mostly because I didn't think I could handle the pain. I was supposed to walk into surgery also but was having a meltdown so they gave me something (that I requested) and I don't remember anything after that till I woke up in recovery. While this journey is no walk in the park, it was no where near where my mind took me. They controlled the pain way better than I thought. As the others have said, there will be good days and bad days but for me once it was over I was so relieved I would say mostly good. I still had meltdowns after the surgery when I was home but it was more emotional and unexpected. I think that is not unusual after heart surgery. You are going to do great but I wanted you to know that lots of us have had similar feelings to what you are experiencing.
Melinda Donahue Oh Pamela it helps so much when I speak to all of you. I am really overwhelmed. What goes thru my min ... Read more
Melinda Donahue Oh Pamela it helps so much when I speak to all of you. I am really overwhelmed. What goes thru my mind is leaving my home and in my head thinking I am the .1% who doesn’t come back home. There I said. I know my doctors are one of the best in the world but I still cannot help feeling like I do
Pamela Gregory I felt that too. Wrote notes to everyone I loved (just in case). That ended up being nice because ma... Read more
Pamela Gregory I felt that too. Wrote notes to everyone I loved (just in case). That ended up being nice because maybe I wouldn't have let my loved ones know those things if not in the position we get put in. You will do great
Marie Myers He is probably giving you a dose before the CTscan to improve the quality of the pictures they get. M ... Read more
Marie Myers He is probably giving you a dose before the CTscan to improve the quality of the pictures they get. Metoprolol slows your heart rate, and that can give them better detail especially of your coronary arteries.
Melinda Donahue Thanks to all of you! I of course have another question. Because I am so nervous he also prescribed . ... Read more
Melinda Donahue Thanks to all of you! I of course have another question. Because I am so nervous he also prescribed .25 MG of Xanax. Should I take that before the test or will that lower my heart rate too much? I’m supposed to take that 15 minutes before the CTA Please let me know what you think.
Richard Munson Does xanax lower your heart rate? Or just send you into la la land. Maybe smoke a joint first. You ne ... Read more
Richard Munson Does xanax lower your heart rate? Or just send you into la la land. Maybe smoke a joint first. You need to laugh more. I just drove out to dunkin in the car with top down and ordered a sabrina strawberry dream cooler. I asked the server if sabrina came with the drink. I saw her on line, pretty hot. She said sabrina was too young for me but that she was up for a ride. So in 2 minutes i went from depressed to happy.
Marie Myers It is safe to take before your CTscan..If you have someone driving you, you can take it at home so it ... Read more
Marie Myers It is safe to take before your CTscan..If you have someone driving you, you can take it at home so it is working when you get there…Xanax shouldn’t lower your heart rate, and that is a small dose..
Yumiko Ishida My BFF recently had a procedure for which she was prescribed one valium, and she took it in the docto ... Read more
Yumiko Ishida My BFF recently had a procedure for which she was prescribed one valium, and she took it in the doctor’s office right before the procedure. If your doctor says 15 minutes before the scan , I would take it 15 minutes before the scan, at the test site. You don’t want it to wear off before the test is over.
I don’t know if xanax lowers HR but it definitely lowers BP. I used to take it but had to stop when I started taking beta blockers because in combination they lowered by BP too much. If you are not used to it, it will definitely make you loopy.
Maureen Hoganson Hi Melinda -- If I were you, I would see if you could start on a smaller dose first to see how you to ... Read more
Maureen Hoganson Hi Melinda -- If I were you, I would see if you could start on a smaller dose first to see how you tolerate it and monitor your heart rate. 100 mg seems really high! Metoprolol made my throat feel tight at 12.5 mg, so I had it compounded to make sure it wasn't another ingredient in the med. I was not able to tolerate a very high dose of the medicine and know that 25mg is even a small dose for what most cardiologists recommend. I am very sensitive to meds -- so thankful I had the Ross Procedure done successfully (11 weeks ago) -- and the only meds they want me on is the 81mg low dose aspirin. I am allowed to take my usual supplements (as I have chronic Lyme, CIRS, etc.) and doing much better now!
Melinda Donahue Thank you all again and Richard you did make me laugh.
Melinda Donahue Maureen I asked him if I could cut the dose of metoprolol in 1/2. Thank you. Marie thanks for the in ... Read more
Melinda Donahue Maureen I asked him if I could cut the dose of metoprolol in 1/2. Thank you. Marie thanks for the info, Yumiko - it doesn’t take much to me loopy. lol
As my surgery gets closer I am concerned with what happens after surgery ! How about if I have afib or fluid in my lungs for an infection. This is all consuming. ...Read more
As my surgery gets closer I am concerned with what happens after surgery ! How about if I have afib or fluid in my lungs for an infection. This is all consuming.
Robert Miller Check out the learning center. There is a lot of information there. The good thing is that you will b ... Read more
Robert Miller Check out the learning center. There is a lot of information there. The good thing is that you will be in the hospital where you are constantly monitored. They will take care of everything. Afib is not too uncommon after surgery. They might put you on some meds like Amiodarone. Avoid it long term but you probably won't need it long term anyways. If you already have Afib, a maze procedure might be performed. Ask them. Have the appendage removed. I am not familiar with having fluid on your lungs after surgery. But do your breathing exercises. They collapse your lungs during surgery and the breathing exercises help for the lungs to "unfold". Most people won't really have big (temporary) side effect. For my first surgery, the heart wouldn't beat by itself until some 2 or 3 days after surgery. But they kept me on the temporary pacemaker and constantly monitored me. You will be in good hands.
Get important facts about heart valve disease, symptoms, risks and treatment.
Kate Watson Oh the anxiety beforehand is so very hard and not one many others can understand if they haven’t go ... Read more
Kate Watson Oh the anxiety beforehand is so very hard and not one many others can understand if they haven’t gone through it. Yes I had some complications but it was my 3rd open heart and twice I needed 2 valves replaced. So I knew there would be some issues but like Robert says, you will constantly be hooked up to EKG monitors and they will take good care of you. Afib is common after surgery but luckily doesn’t last long for most. If you have any problems post op, you’ll get through them one, they are prepared to handle everything. The best thing I could do for anxiety before surgery was to focus on things that would make my recovery easier at home and think of all the things I was looking forward to after it was over.
Melinda Donahue Robert and Kate I thank you for taking the time to respond. You both have been thru so much ! I will look at the info in the learning center, Robert - thanks for that ! Kate, I will take your advice and think about coming home and helping myself recover as fast as I can.
Melinda Donahue Robert and Kate I thank you for taking the time to respond. You both have been thru so much ! I will look at the info in the learning center, Robert - thanks for that ! Kate, I will take your advice and think about coming home and helping myself recover as fast as I can.
Melinda Donahue Thanks David. I am pretty nervous. Tears and all tonight. Sometimes okay with it and brave and other ... Read more
Melinda Donahue Thanks David. I am pretty nervous. Tears and all tonight. Sometimes okay with it and brave and other times falling apart. Cannot wait till I am passed this. 3 weeks from today it will be done.
Robert Miller My wife always makes fun of me because I "cry" with just the slightest emotion when watching a movie. ... Read more
Robert Miller My wife always makes fun of me because I "cry" with just the slightest emotion when watching a movie. Or when there is just a little bit of wind blowing into my face. Something seems wrong with my eyes... In any case, surgery never caused a single tear. Easy to say, I know. But the fact is that at least my surgery (mitral valve repair) is something that is done all the time. And while it's a pretty intensive surgery, it is very safe. And you will be constantly monitored before and after surgery. And you will come out better than before. Yes, recovery can be hard but within a few weeks you will be better off than now. I wish I would have had more than a week to find a surgeon, etc but I actually looked forward to the surgery. You are in good hands and the surgery will add many more years to your life.
Melinda Donahue Thanks Robert! My surgery is also my valve repair. I think the waiting is very difficult. I’m so gl ... Read more
Melinda Donahue Thanks Robert! My surgery is also my valve repair. I think the waiting is very difficult. I’m so glad I have this site and you all to talk to. It is very comforting.
Scott Mills I was expecting some side effects, so when they occurred it wasn’t worrying. I had 17lbs of extra f ... Read more
Scott Mills I was expecting some side effects, so when they occurred it wasn’t worrying. I had 17lbs of extra fluid, including around the lungs, but the team expected it, saw it, managed it, and I got it off (peeing became an Olympic sport). I got afib as well, but again they took it in stride and we had it controlled quickly. I’m on a holter monitor as I type this to confirm that the afib has not returned so I can stop the blood thinners. What seems like a big issue to the patient (you and I), is just another part of their day. It will all be well :).
Melinda Donahue Ok my 17lbs. If my scale went up 17lbs I’d faint, being a woman and all 😁amazing that they know ... Read more
Melinda Donahue Ok my 17lbs. If my scale went up 17lbs I’d faint, being a woman and all 😁amazing that they know exactly how to handle this. I have to remember this.
I am starting to go into another panic episode. I am told that is normal. I have to get the CTA next Thursday, pre ops the following Thursday, then surgery ...Read more
I am starting to go into another panic episode. I am told that is normal. I have to get the CTA next Thursday, pre ops the following Thursday, then surgery the next Thursday. I have so many what if’s. God bless all of you people for being so patient with people like me.
Susan Lynn Totally normal! You're stronger than you think. You can do this!
Rose Madura It's normal to be nervous and scared. Try to keep in mind that these surgeries are very successful an ... Read more
Rose Madura It's normal to be nervous and scared. Try to keep in mind that these surgeries are very successful and you are in good hands with your surgeon. It may help to focus on something else like a good book or something like that. God bless you.
Pamela Gregory I felt exactly the same! It is so scary but ended up not being near what my brain thought it would. ... Read more
Pamela Gregory I felt exactly the same! It is so scary but ended up not being near what my brain thought it would.
Melinda Donahue Susan thanks! A few more weeks. The waiting time is excruciating.
Rose thank you ! I will find a good book I think it will help. Too bad I read it ends with us and begins with us already !!
Pamela my mind is going 100 miles a minute and sometimes the more the more you know the more scared you get.
I trust I have the best doctors I think I am just at my put party and I need to get out.
Richard Munson You can always back out in the waiting room. Maybe not
Valerie Allen If you haven’t asked for a bit of anti-an Ist med from your Dr, it may be an option.
Geoff Curtis the anticipation is a lot... but once on the other side, the wait will be worth it. as hard as it se ... Read more
Geoff Curtis the anticipation is a lot... but once on the other side, the wait will be worth it. as hard as it seems, sit back and try to relax and enjoy these last few days.
Melinda Donahue Richard I won’t chicken out. I want to but I will not. Lol
Valerie that is a great idea I should ask.
Geoff. I will try and thanks for the encouragement ... Read more
Melinda Donahue Richard I won’t chicken out. I want to but I will not. Lol
Valerie that is a great idea I should ask.
Geoff. I will try and thanks for the encouragement
Did anyone ever hear of the drug amiodarone which is given for afib
L S It was effective for me but there are many side effects, stabbing pain in the ribs and collarbone, nu ... Read more
L S It was effective for me but there are many side effects, stabbing pain in the ribs and collarbone, numbness, insomnia, headache. I’m now finally ending the medication because the pain has been a lot . I’ve been on it for 8 weeks . I hope this helps
Rose Madura Yes, it's commonly used to treat Afib after OHS. As LS said, nAny side effects. You don't want to b ... Read more
Rose Madura Yes, it's commonly used to treat Afib after OHS. As LS said, nAny side effects. You don't want to be on it for long, in my opinion.
Kimberly Eisenhut I am hoping there is an alternative they can use if I should need something like this, as my HR is al ... Read more
Kimberly Eisenhut I am hoping there is an alternative they can use if I should need something like this, as my HR is already low. I will need to make a note of it for when I speak to my cardiac surgeon.
Carla Mason My understanding is that amiodarone is given short term in the event of AFIB occurring during and aft ... Read more
Carla Mason My understanding is that amiodarone is given short term in the event of AFIB occurring during and after OHS. It is a very strong drug with a long half life. I believe it is the best choice to restore sinus rhythm expeditiously. However it has a lot of side effects long term. If you’re not in afib, there are other drugs to use to mitigate its recurrence if at all necessary. I would definitely ask your doctor why you’re still on it and if it can be replaced. Or else get another opinion. I already told my doctor if I should need amiodarone to restore SR, to make sure it is used for the least amount of time possible. Hope this is helpful
Melinda Donahue Thanks all! If you don’t have afib before surgery there is no guarantee you won’t have it after, ... Read more
Melinda Donahue Thanks all! If you don’t have afib before surgery there is no guarantee you won’t have it after, is this correct ?
Susan Lynn That's correct, Melinda. Those who have it before will often have a Maze procedure at the time of th ... Read more
Susan Lynn That's correct, Melinda. Those who have it before will often have a Maze procedure at the time of their surgery. Anyone can have episodes of afib after surgery, but it is often temporary. If not, there are multiple ways it can be treated.
Yumiko Ishida Ask your surgeon about getting the maze procedure and closing off your LAA. You can get those done ev ... Read more
Yumiko Ishida Ask your surgeon about getting the maze procedure and closing off your LAA. You can get those done even if you haven’t had afib before. Maze is not foolproof but it really helps. There is an article on this site about the benefits of having it done as a preventive measure. I had afib before valve replacement but not after surgery.
Robert Miller I had afib before surgery and they did the maze procedure. The also removed the appendage where blood ... Read more
Robert Miller I had afib before surgery and they did the maze procedure. The also removed the appendage where blood clots can form. Afterward they put me on amiodarone. You also give a high dosage of amiodarone before cardio version and then a lower dose afterwards. I had no sideffects but if taken over decades it can affect your liver.
Melinda Donahue Thanks all. My preop is coming quickly. These are all great points for me to discuss.
It took me a while to formulate this post, and get my thoughts together. I am actually coming to the experts, those who have gone through this journey and asking ...Read more
It took me a while to formulate this post, and get my thoughts together. I am actually coming to the experts, those who have gone through this journey and asking what your thoughts are.
I found out I had a floppy mitral valve right after the birth of my second child in 1989. I was told it was innocent and not to worry about it but saw a cardiologist every year just to make sure things will not be becoming an issue.
My regurgitation went from mild, to moderate, to moderate to severe, to severe. In May, I saw my cardiologist and and my echo is compared to last year‘s echo and there were no changes and was told. See you in nine months. Before I left, they put a 3?day monitor on me. The results came back and my cardiologist felt that they were inconclusive. There was 0% a fib, but PVCs and PACs were shown, but this was also shown on other Holter monitors prior to this one.
My cardiologist sent me to an electrophysiologist in the group because he felt that there would be a better chance to get an extended Holter monitor if the petition to the insurance company was coming from him. The electrophysiologist gave me three options. He told me I could wear a loop recorder and they would manage me for five years, a 30 day monitor may not show anything because a fib could happen on day zero or day 31 we get an Apple Watch.
I was a little confused because the whole Amanda report showed 0% a fib and went back to see my cardiologist. My cardiologist told me he was putting me on Eliquis and thought it was time. I went to see Dr. Adams and Dr. Boateng at Mount Sinai. They asked me why I was on Eliquis and my response was I was told I have a fib based on the three day Holter monitor test. They looked at the Holter monitor test and saw 0% a fib and told me that everybody gets PACs and PVCs. I asked him if I could get off the Eliquis and they told me to call my cardiologist. I did and I am now off Eliquis.
I am asking you all because I feel you are the experts because you all had so many different experiences. If you had the situation, would you feel you have a fib. Please note I have worn my Apple Watch for almost a month and there are no indications of a fib and trust me I test for it all the time. Is there a definitive test that will be done to ensure that I do or don’t have a fit prior to my surgery?
I appreciate your thoughts on this and thank you in advance for your time
Richard Munson I have had a loop recorder for 3 years and counting. It just recently detected an issue that lasted f ... Read more
Richard Munson I have had a loop recorder for 3 years and counting. It just recently detected an issue that lasted for 30 seconds. As a result i was prescribed a higher dose of metropolol. The loop sends a message directly to your doctor. Holter units work i guess but very short term, can cause rashes and present issues in the shower, plus they are fairly large and uncomfortable. I wore one, i know. The loop is a tiny chip inserted under the skin over your heart. Hope this helps. My insurance covered it.
Richard Munson One more comment. If you are having or suspect you are having a fib and you are also having mitral va ... Read more
Richard Munson One more comment. If you are having or suspect you are having a fib and you are also having mitral valve surgery, why not ask for the maze procedure at the same time. Seems almost a no brainer. The eliquis btw does not solve a fib , its taken to avoid a stroke after afib which can occur. In many cases a fib is asymptomatic . So you won’t know. The holter is only on a few days, so maybe you have it after its removed and you won’t know. Sorry to write so much.
Valerie Allen I had a holter monitor 3 months after my surgery so they could determine if I was ready to go off Eli ... Read more
Valerie Allen I had a holter monitor 3 months after my surgery so they could determine if I was ready to go off Eliquis. I had had limited afib immediately after surgery. The holter monitor read each beat for 30 days. They have much improved since I had one 20 years ago and I hardly noticed it.i think this would be a reasonable option. It showed quite a lot of pvcs btw that they said were not harmful unless they started to impact me.
Melinda Donahue Richard I appreciate your response and please write as much as you can. Your responses are so helpful ... Read more
Melinda Donahue Richard I appreciate your response and please write as much as you can. Your responses are so helpful and appreciated. I will speak to my cardiologist about this on Monday as I will be getting the carotid ultrasound.
Melinda Donahue Valerie, when were you put on Eliquis, after surgery and was it because you developed afib? Did you ... Read more
Melinda Donahue Valerie, when were you put on Eliquis, after surgery and was it because you developed afib? Did you have afib before surgery ?
Melinda Donahue *amanda - should be holter monitor report - sorry!
Valerie Allen I had a bout of afib probably a decade ago. Then I had it on and off after surgery while in the hospi ... Read more
Valerie Allen I had a bout of afib probably a decade ago. Then I had it on and off after surgery while in the hospital. I believe the Eliquis was for that but it could just be standard after surgery, that I don’t know. I do know they felt comfortable taking me off it after the holter monitor, despite the pvcs.
Fidel Martínez Ruiz My experience of afib was only once when I began the cardíac physiotherapy exercises after my mitra ... Read more
Fidel Martínez Ruiz My experience of afib was only once when I began the cardíac physiotherapy exercises after my mitral replacement surgery. That was detected in the ECG and then the cardiolog in charge sent me to the emergency room of the hospital. There, I chilled out quickly and my heart rate got normal, but I didn't prevent that I'm taking Lixiana (similar to Eliqis) up to now, two years after since the episode. I've got a pulse meter watch and managed acceptably. No afib anymore.
Melinda Donahue Thanks for the post. You only had one episode of a fib?
Fidel Martínez Ruiz Yes, Melinda, only once. But The cardiologist, out of caution, perhaps excesive- I've not judgement-, ... Read more
Fidel Martínez Ruiz Yes, Melinda, only once. But The cardiologist, out of caution, perhaps excesive- I've not judgement-, prescribed me that medication since then and has not taken me off it since, as a precaution against thrombotic events. And I obey the doctor.
Dan Fouratt I had Aflutter 10 day post surgery. Went to the emergency room for a bonus three days in the hospita ... Read more
Dan Fouratt I had Aflutter 10 day post surgery. Went to the emergency room for a bonus three days in the hospital. No history before. I went on Eliquis and Amiodarone. I purchased an Apple watch. 3 months later I wore a heart monitor for 30 days. with no signs of AFIB or AFlutter I came off the two drugs. I wore the watch for another 6 months and still no signs. I was given permission not to wear it. It is now 5 months later and all is well. We concluded the AFlutter was the result of the surgery not a condition.
MINI: Minimally invasive heart surgery, or MICS, allows
surgeons to access the heart through smaller incisions than traditional
open-heart surgery, often avoiding the need to cut through the breastbone
(sternum). Instead, surgeons may make small incisions between the ribs,
sometimes using robotic assistance, to perform procedures like valve repair or
replacement, coronary artery bypass, and other heart surgeries.
My chest was never open. They have robotic options that I think provide the same limited intervention.
MINI: Minimally invasive heart surgery, or MICS, allows
surgeons to access the heart through smaller incisions than traditional
open-heart surgery, often avoiding the need to cut through the breastbone
(sternum). Instead, surgeons may make small incisions between the ribs,
sometimes using robotic assistance, to perform procedures like valve repair or
replacement, coronary artery bypass, and other heart surgeries.
My chest was never open. They have robotic options that I think provide the same limited intervention.
Dan
Susan Lynn Melinda - The Apple watch is supposed to be very effective at detecting afib, but you can ask about a ... Read more
Susan Lynn Melinda - The Apple watch is supposed to be very effective at detecting afib, but you can ask about a Zio monitor. I've worn them several times over the years and usually have them on for two weeks. They track every heart beat and generate a very lengthy report. I would question why you're on Eliquis. I don't know why medication is handed out so freely, but it is. We always say, you have to be your own advocate. We also say, get a second or third opinion. Good luck!
Melinda Donahue Susan Lynn - I have been taken off Eliquis - not sure why I was put on it honestly. No signs of a fi ... Read more
Melinda Donahue Susan Lynn - I have been taken off Eliquis - not sure why I was put on it honestly. No signs of a fib with apple watch - 3 day holter monitor said 0%. I am so confused about why I was told I had a fib - I guess the PVC's and PAC's but from what I understand eveyone has them - I have had them show up on EKG's for years and never deemed an issue so I am confused to say the least.
I have so many questions - such as for those who had to be on heart - lung by pass what were your experiences ? I am so nervous.
Susan Lynn Melinda - Everything went exactly as planned when I had my mv repair. I didn't have any lingering iss ... Read more
Susan Lynn Melinda - Everything went exactly as planned when I had my mv repair. I didn't have any lingering issues as a result of being on bypass. I do think I felt mentally foggy in the weeks after surgery, but who knows if it was the anesthesia, the medications, the disruption in sleeping, but it was temporary. My advice to you is to relinquish control of the details of your repair to your surgeon and medical team. As we always say, all you have to do is show up - everything else will be handled for you. It's true! Surgery will feel like only one minute has passed. You'll wake up and it will be behind you! You will see progress every week in recovery! Just do your periodic walks, don't overdo it on the good days, and you'll be fine! No worries.
Melinda Donahue Susan thank you - I hear you loud and clear but now I have to make what you say, how I live for the n ... Read more
Melinda Donahue Susan thank you - I hear you loud and clear but now I have to make what you say, how I live for the next 4 weeks.
Susan Lynn Melinda - Most people on this site will tell you the worst part of the process is waiting for surgery ... Read more
Susan Lynn Melinda - Most people on this site will tell you the worst part of the process is waiting for surgery. You're going through the hardest part right now. Try to enjoy the end of the summer, get your bag packed for the hospital, and just relax. It'll be here soon!
Melinda Donahue Thanks Susan you have always been so wonderful to me since my first posting. Regarding this bag for t ... Read more
Melinda Donahue Thanks Susan you have always been so wonderful to me since my first posting. Regarding this bag for the hospital what happens after you wake up? Can you get dressed once you are up and about? Do you have to wear a gown ?
Susan Lynn Melinda - You have to wear the gown because you'll have several tubes remaining until the day after ... Read more
Susan Lynn Melinda - You have to wear the gown because you'll have several tubes remaining until the day after surgery or maybe the next day. Once I had my tubes removed, I put a pair of pajama pants and a robe over my hospital gown - 24/7. I was pretty mobile so I walked multiple times a day and was able to use the bathroom without assistance. I didn't go back to wearing clothes until I was notified that I was being released. But, there are several other things you might want to pack - long phone charging cord, travel pillow, disposable toothbrushes, slippers, a notebook (to write down questions, instructions, etc.), reading glasses, chap stick, dry shampoo, etc. Pretty much everything you need will be provided, but you will want to bring any other items that will make you more comfortable. Don't forget to bring a shirt that buttons or zips in the front and some loose stretch pants to wear home. Lifting your arms after surgery can be difficult and many of us went home with a little extra water weight - hence, the loose pants. Go with the flow while you're at the hospital - follow the nurses' instructions and you'll be leaving before you know it!
Melinda Donahue Susan how long do you retain water? Does it remain nice you are discharged ?
Susan Lynn Melinda - I didn't have a lot of fluid retention, but I was placed on diuretics for the first week I ... Read more
Susan Lynn Melinda - I didn't have a lot of fluid retention, but I was placed on diuretics for the first week I was home. They helped. It didn't last long. Some folks have experienced several additional pounds of fluid after surgery. They may be prescribed diuretics for a longer period of time.
Melinda Donahue I see! I just ordered a few button down shirts - you have the best 'tips' ! I have to order the pho ... Read more
Melinda Donahue I see! I just ordered a few button down shirts - you have the best 'tips' ! I have to order the phone charger cord. I order a light weight zipper up robe - and I do have pj tops and bottoms but will only bring bottoms. I hope I am out as fast as you were.
Susan Lynn Melinda - I think there's an actual packing list someone created on this site. Over the years I've ... Read more
Susan Lynn Melinda - I think there's an actual packing list someone created on this site. Over the years I've been monitoring it (about 8!) I've picked up some tips from all of the heart warriors. I'm only too happy to share. I don't think we discussed the things you might want to have at home. I bought a shower chair (more of a stool). I, ultimately, didn't need to use it, but I felt more comfortable taking showers by myself. I found showering to be one of the most exhausting activities after surgery. So, keep them short and make sure the water isn't too hot. I found out later that hot showers can drop your bp. Many of our folks swear by recliners, foam wedges, and lots of pillows. Sleeping in a comfortable position can change from one day to the next age surgery - be sure to have options. You'll find what works for you! You have a month to ask any questions you may have. Please don't hesitate to reach out.
Melinda Donahue Susan I am trying to find a travel pillow - is that a lumbar pillow ? Also does your bp go up after s ... Read more
Melinda Donahue Susan I am trying to find a travel pillow - is that a lumbar pillow ? Also does your bp go up after surgery ?
Melinda Donahue I misread the bp and shower part. you cannot lift your arms to wash your hair ??
Melinda Donahue Susan Lynn I found a travel pillow. Thanks !!! Yellow cannot miss it
Susan Lynn Melinda - My travel pillow is lumbar shape and size, but the wrap around kind could probably be help ... Read more
Susan Lynn Melinda - My travel pillow is lumbar shape and size, but the wrap around kind could probably be helpful, too. My blood pressure did go up after surgery, but I'm not sure if that's the case for everyone. But, as far as showering goes, a hot shower can drop your blood pressure (I'm not sure exactly what it does to your blood vessels - constrict them, I suspect) and cause you to feel dizzy. That's why you want to keep them short. As far as washing your hair, you will want to get that answer from the sternotomy people. I didn't have a problem lifting my arms, but I had a minimally-invasive entry.
You'll find out how to get through your daily tasks by trial and error. Recovery is very individual, so while we try to share our experiences, do whatever works for you.
Dan Fouratt One thing I would add to your list is snacks. I had protein bars, protein yogurts, protien granola p ... Read more
Dan Fouratt One thing I would add to your list is snacks. I had protein bars, protein yogurts, protien granola packs and protien shakes. The food was bad at Duke (my wife verified that) and my taste buds did not like anything, These snacks got me through and allowed me to eat a high level of protien with minimal effort. My dietician said I needed to hit 150 grams a day for my size after surgery (100 KG *1.5g/KG). Dan
Getting ready to go for my surgical consult !! Needless to say I am beyond anxious.
Robert Miller Check the learning center on this page. Write down all your questions on a piece of paper. Leave spac ... Read more
Robert Miller Check the learning center on this page. Write down all your questions on a piece of paper. Leave space to write down the answers. If you have a partner, bring him/her to help you write down the answers and ask other questions. https://www.heart-valve-surgery.com/learning-center.php
Does one have to get a cardiac catheterization before mitral valve repair surgery?
Adam Pick Hi Melinda, So you know... You can use the new Heart Valve Chatbot to get answers to over 50,000 ques ... Read more
Adam Pick Hi Melinda, So you know... You can use the new Heart Valve Chatbot to get answers to over 50,000 questions about heart valve disease therapy. If you wish, simply click the blue chat icon in the bottom-right section of the screen to get answers to most patient questions.
Learn why patients need angiograms (cardiac catheterizations) before cardiac surgery including heart valve repair & replacement procedures with Dr. John Grehan.
J Alexander Lassally Institutionally it depends. Some practices rely on CTs while other groups insist on cath... Honestly, ... Read more
J Alexander Lassally Institutionally it depends. Some practices rely on CTs while other groups insist on cath... Honestly, if done at a great hospital it was not as bad as I feared. Just a step in the journey. The inverse can be bad luck to miss something that has consequeunce.
Hi! Does anyone have Barlow's Mitral Valve and if so what is the surgery like - was it minimally invasive with a thoracotomy or a full sternotomy?
Michael Smith I have a Barlow valve too, but haven’t had surgery yet (November 5th). Had to search for a surgeon ... Read more
Michael Smith I have a Barlow valve too, but haven’t had surgery yet (November 5th). Had to search for a surgeon who could repair, not replace the valve. Will be doing minimally invasive surgery, and having a maze procedure as well as a atriclip. Would like to hear comments as well.
Susan Lynn I'm a Barlow's mitral valve heart warrior. I had a minimally-invasive repair. I would highly recom ... Read more
Susan Lynn I'm a Barlow's mitral valve heart warrior. I had a minimally-invasive repair. I would highly recommend it! Please feel free to ask any questions you may have.
Dr. Scott Goldman and his team lead one of the most experienced mitral valve repair centers in the country, with superior patient outcomes. For more informat...
Melinda Donahue Wow Susan you were so kind to me when I started my journey and now I am back. I have an appointment w ... Read more
Melinda Donahue Wow Susan you were so kind to me when I started my journey and now I am back. I have an appointment with Dr Adams mid month.
Melinda Donahue I am still asymptomatic with inklings of afib which my doctor isn’t too definite about but his elec ... Read more
Melinda Donahue I am still asymptomatic with inklings of afib which my doctor isn’t too definite about but his electrophysiologist thinks I do based on a 3 day holter monitor.
Melinda Donahue I do have Barlow mitral valve. What was your surgery like ?
Susan Lynn Melinda - My surgery went exactly as planned. The team at Lankenau was absolutely amazing!
Susan Lynn Melinda - My surgery went exactly as planned. The team at Lankenau was absolutely amazing!
Dr. Goldman performed a mini-thoracotomy and froze the nerves on my right side near the incision. I had some soreness, but no pain from day one. Everything went so well, surgery on a Friday morning and I was released midday on Monday. Uneventful recovery at home. As the nerves regenerated, I had numbness, as well as, pins and needles sensations for about a year afterward. They were very tolerable. Dr. Goldman also hid my scar in the crease on the side of my right breast, so it's not noticeable at all.
You'll get a great result from Dr. Adams, but if you have your heart set (no pun intended) on a minimally-invasive entry, I don't think he does that procedure. The sternotomy is supposed to be the fastest, most efficient route to the heart and minimizes time on bypass. There are pros and cons to each method of entry, but the repair is the same and the most important thing. Good luck with your decision. Please keep us posted on your progress.
Melinda Donahue What are the negatives of the sternonomy? Time?
Susan Lynn Melinda- The folks who have had sternotomies might want to respond, but from what I've read it's the ... Read more
Susan Lynn Melinda- The folks who have had sternotomies might want to respond, but from what I've read it's the preferred method of entry for most surgeons, it allows the best view of the heart, it makes access to bypass easier, it generally shortens overall surgical time, but, there is a sternum cut and a larger scar. While some folks on this site have mentioned an issue or two, most have said it wasn't as painful as they anticipated and many proudly display their scars as a representation of their resilience. There isn't much downside at all.
Melinda Donahue Thank you so much for your response. Reading your responses calms me down a great bit but I am indeed ... Read more
Melinda Donahue Thank you so much for your response. Reading your responses calms me down a great bit but I am indeed overwhelmed and am so hyper focused on the what can happen than focused on the life after. I am starting to understand the affect doing nothing can have and at the same time caught up in the what if’s during surgery.
Melinda Donahue Susan - yet another question - are you on any medications after surgery ?
Susan Lynn I went home on several medications. Some were stopped in a week, a month, and even a baby aspirin ... Read more
Susan Lynn I went home on several medications. Some were stopped in a week, a month, and even a baby aspirin was stopped after one year. I did develop PVCs and PACs and slightly elevated blood pressure several years after surgery. I was put on extended release metoprolol succinate and a small dose of lisinopril. However, two months ago, I asked my cardiologist about reducing the metoprolol. Long story short, I was able to have the dosage cut in half and my PVCs and PACs are well within acceptable levels. I'm hoping to have it reduced further or eliminated after my next appointment.
I'm a bit of a medical cynic based on some bad experiences I've had outside of my cardiology visits. I question everything including maintenance medications. In this case, I wanted some confirmation that they were still needed. I recognize my heart function was inefficient for years, but I wanted to see if it improved over time. Luckily, I go to a fantastic cardiologist who is always willing to listen and offer options.
Sorry for the long answer to your short question.
Melinda Donahue Oh no!! Your answers help. I think I was out on eliquis prematurely because I didn’t get a definiti ... Read more
Melinda Donahue Oh no!! Your answers help. I think I was out on eliquis prematurely because I didn’t get a definitive answer as to whether or not I have afib. Holter monitor says 0% but electrophysiologist disagrees. I detest being on meds Got cholesterol down to 213 from 289 just by diet and exercise. Am sensitive to meds and am feeling itchy !!
Susan Lynn Melinda - I'm a big fan of second opinions, as are most of us on this site - especially our dear Rose Madura. I had a visit with an electrophysiologist and, again, the cynic in me thinks no one gets out of one of those consultations without a prescription and a bunch of future follow-up appointments.
You may want to ask for a Zio monitor. You wear it for two weeks and it tracks every heart beat and summarizes any findings related to your rhythm. Plus, just in case your doc doesn't share the fine details with you, the company will email you the entire report.
I don't want to be the patient who has to second guess my physicians, but with the competitive nature of healthcare, providers have become incentivized salespeople who practice medicine on the side. ... Read more
Susan Lynn Melinda - I'm a big fan of second opinions, as are most of us on this site - especially our dear Rose Madura. I had a visit with an electrophysiologist and, again, the cynic in me thinks no one gets out of one of those consultations without a prescription and a bunch of future follow-up appointments.
You may want to ask for a Zio monitor. You wear it for two weeks and it tracks every heart beat and summarizes any findings related to your rhythm. Plus, just in case your doc doesn't share the fine details with you, the company will email you the entire report.
I don't want to be the patient who has to second guess my physicians, but with the competitive nature of healthcare, providers have become incentivized salespeople who practice medicine on the side.
Good or bad, Dr. Google has made us educated consumers. Question everything. You're not asking anything your doctor wouldn't ask if he/ she were in the same position.
Melinda Donahue You need a script. I have message him. The cardiologist had me wear a 3 day monitor and the result ... Read more
Melinda Donahue You need a script. I have message him. The cardiologist had me wear a 3 day monitor and the results said 0% afib but there were pvcs and pacs and the electro dr believes I have afib or the beginnings of it. Idk. First I get old see you next year no changes then the monitor, now an appointment. The scary thing is I am symptomatic which makes me wonder if waiting will compromise my condition. I guess Dr. Adams will let me know but I also know he is a surgeon which makes me more nervous
Susan Lynn What symptoms do you have? Do you know the frequency of your PVCs and PACs? There's an acceptable ... Read more
Susan Lynn What symptoms do you have? Do you know the frequency of your PVCs and PACs? There's an acceptable level that aren't treated at all. I was put on Metoprolol and told that PVCs and PACs could be a precursor to afib. If you actually do have afib, your surgeon will likely recommend a Maze procedure when he does your mv repair. Two birds, one stone.
Melinda Donahue Hi. I am so sorry I did not respond sooner to your post. I don’t always see my responses. I am stil ... Read more
Melinda Donahue Hi. I am so sorry I did not respond sooner to your post. I don’t always see my responses. I am still trying to figure out how to navigate. I do have pvcs and pacs and don’t have any afib. The electrophysiologist said I do but holter monitor report stated 0%. I am being referred to Dr. Adams and appointment tomorrow at 10am. I em extremely nervous. Cardiologist says I need surgery because of severe MR and also said def repair. I am just so nervous and am wondering if because of barlows will turn into a replacement. I am hopeful because of your response and a couple of other patients. I have read Dr. Adams is an expert in this type of repair.
Susan Lynn Melinda - No worries. If anyone can do a repair, it's Dr. Adams. He's highly experienced! Gener ... Read more
Susan Lynn Melinda - No worries. If anyone can do a repair, it's Dr. Adams. He's highly experienced! Generally speaking, more than 90% of mitral valves are repaired. My surgeon was so confident he could repair my Barlow's valve, we didn't even discuss a replacement choice before surgery. Don't borrow any worries. See what Dr. Adams says at your appointment. Good luck!
Melinda Donahue Hi Susan! Went for my surgery consult and it is repair. Dr. Adams and Dr. Boateng were extremely con ... Read more
Melinda Donahue Hi Susan! Went for my surgery consult and it is repair. Dr. Adams and Dr. Boateng were extremely confident and told me my mitral valve Barlow’s is quite common and they perform many successful surgeries like mine a year. I am scheduled for 9/4 because I have severe regurgitation- no symptoms and heart is not yet compromised. They feel surgery is necessary and must be done sooner than later.
I have a strange question - is the metal that is used to suture your ribs metal? How do you know if your body will reject it or you will be allergic to it ? ...Read more
I have a strange question - is the metal that is used to suture your ribs metal? How do you know if your body will reject it or you will be allergic to it ?
Fidel Martínez Ruiz Hey Melinda. The metal used to suture commonly is 316 L stainless steel, which has been used for man... Read more
Fidel Martínez Ruiz Hey Melinda. The metal used to suture commonly is 316 L stainless steel, which has been used for many decades in orthopaedic implants for hip, knee and other joints and continue being used today without problems. Few people present allergy to that steel, above all the nickel sensitive, and in that case, titanium wire is used instead. I come up with the idea of a way to know the own allergy and It is to be aware if one is allergic to jewelry or other pendants, many of them made of stailess steel. Best regards.
Melinda Donahue Thanks so much !!! I thought about it much of the night - and then gratefully woke up to your respons ... Read more
Melinda Donahue Thanks so much !!! I thought about it much of the night - and then gratefully woke up to your response.
Hi - I am scared to death - I have been seeing my cardiologist for years and the statement made to me from him was not if you will need mitral valve surgery ...Read more
Hi - I am scared to death - I have been seeing my cardiologist for years and the statement made to me from him was not if you will need mitral valve surgery - the question is when. I am 65 and have severe mitral valve reguritation and of late have a few occurences of aFib He told me he thinks it is time to see a surgeon and referred me to Dr. David Adams at Mount Sinai. I will be calling them back to schedule at 3:30.
I have been holding my own - my cardiologist says its best to take of this before your heart is compromised. He did put me on a blood thinner.
Any thoughts? Any and all comments are sincerely welcome
Richard Munson Scared is normal but by taking control of the situation is the answer. Maybe they can repair the valv ... Read more
Richard Munson Scared is normal but by taking control of the situation is the answer. Maybe they can repair the valve and not have to replace. That should be your first question.
John Cook It is scary at first. I felt numb for about a week when I was told it was time for surgery. I was able to take comfort in the fact that the risk of surgery and the recovery process is so much better now. At a high volume facility, which Mr. Sinai has to be, the risk of surgery is less than 1%.
I had my Ross procedure surgery 27 days ago and I’m already back to doing 2-mile walks around my neighborhood.
One of the main reasons doctors recommend surgery a lot earlier than they used to is because patients have much better post-surgical outcomes with early intervention (severe stenosis or regurgitation and minimal or no symptoms). ... Read more
John Cook It is scary at first. I felt numb for about a week when I was told it was time for surgery. I was able to take comfort in the fact that the risk of surgery and the recovery process is so much better now. At a high volume facility, which Mr. Sinai has to be, the risk of surgery is less than 1%.
I had my Ross procedure surgery 27 days ago and I’m already back to doing 2-mile walks around my neighborhood.
One of the main reasons doctors recommend surgery a lot earlier than they used to is because patients have much better post-surgical outcomes with early intervention (severe stenosis or regurgitation and minimal or no symptoms).
Unfortunately, with heart valve disease, it’s always a matter of ‘when’ not ‘if.’ It’s not something that gets better without surgery.
Always feel free to get a second opinion from another cardiologist and/or surgeon. The doctors actually encourage it. And talk to them about all of your fears and concerns.
Melinda Donahue thank you for your comments Richard and John. Richard, thankfully it will be (I'm told) repair, so t ... Read more
Melinda Donahue thank you for your comments Richard and John. Richard, thankfully it will be (I'm told) repair, so thankful. John, Mount Sinai has a great reputation and Dr. Adams is one of the best, as far as I have seen. You hit right on the head, exactly what the cardio told - not if - its when and while I am so healthy - its best to do it now. Thank you. I just - like we all do, have so much to live for - three little grandsons and another on the way and I am so scared.
Robert Miller Yes, get this taken care of sooner than later for many reasons. The older you get the harder surgery ... Read more
Robert Miller Yes, get this taken care of sooner than later for many reasons. The older you get the harder surgery will be on you. But more importantly, if you have severe regurgitation, your heart's left ventricle will enlarge. This can lead to stiffening of the heart muscle, reducing the heart's efficiency and eventually leading to heart failure. Your blood vessels with also become smaller which will help maintaining blood pressure. I don't want to scare you but if you have at least two opinions that say you need surgery then get it done sooner than later.
John Cook It’s okay to be scared. There will be difficult times but you’ll get through them just as I and everyone else on here did. And the good news is those difficult times are usually short in duration.
- I was in ICU for 5 days, 3 of them were very difficult. - I was in a regular hospital room for another 6 days, most of them were good days. (11 days in hospital is longer than most people). - The next 7 days I had both good and bad days while I adjusted to being back home. ... Read more
John Cook It’s okay to be scared. There will be difficult times but you’ll get through them just as I and everyone else on here did. And the good news is those difficult times are usually short in duration.
- I was in ICU for 5 days, 3 of them were very difficult. - I was in a regular hospital room for another 6 days, most of them were good days. (11 days in hospital is longer than most people). - The next 7 days I had both good and bad days while I adjusted to being back home. - Once I hit 3-weeks post-surgery, it has been almost all good days. - I’m now at 4-weeks and I’m feeling about 80% of normal. Every day I feel a little bit better than the day before. I restart working again tomorrow. The things I can’t do, I shouldn’t be doing yet anyway. - In 2 weeks, I start cardiac rehab. They will get me running and cycling again. I’ve already set myself the goal of running a couple 5Ks and 10Ks next year. When I get to where I can run a 10K, I’ll know I’m back to where I was pre-surgery.
Melinda Donahue Robert I am asymptomatic right now with inklings of afib appearing which is why my cardio is sending me for a surgical consult. Your comment definitely resonated.
John why did you have stay in icu so long ?Why was it so difficult ? What happens if you do not mind me asking
Melinda Donahue Robert I am asymptomatic right now with inklings of afib appearing which is why my cardio is sending me for a surgical consult. Your comment definitely resonated.
John why did you have stay in icu so long ?Why was it so difficult ? What happens if you do not mind me asking
I am so happy you both are better
Robert Miller @Melinda I was asymptomatic also but then things did go south quickly. In any case, when you get surg ... Read more
Robert Miller @Melinda I was asymptomatic also but then things did go south quickly. In any case, when you get surgery make sure they remove the appendage. If you have afib your blood can "pool up" in the heart's appendage. That can lead to clots. So make sure this is being taken care of.
Melinda Donahue I feel like this is the only place I can ask very emotional questions to because you are all probably ... Read more
Melinda Donahue I feel like this is the only place I can ask very emotional questions to because you are all probably the only people who get it - did you feel so afraid to get the surgery because you feel you wont wake up?
There were 2 issues: The first is I had edema problems going into surgery from recently diagnosed Psoriatic Arthritis. I put on another 16lbs of water after the surgery.
I don’t really remember the first 2 days in ICU. But the 3 really tough days I remember, I was on diuretics and had water restrictions to force me to lose all that water fast. The diuretics affected my kidney function. My electrolytes kept dropping because I was flushing so much fluid out. If my electrolytes dropped too much, I’d go into V-tach. They wouldn’t move me out of ICU until I reached my “dry weight.” I ended up dropping 21lbs of water by the time I left the ICU. I had to apologize to several nurses after I stabilized because I was not a fun guy to be around for those 3 days. ... Read more
There were 2 issues: The first is I had edema problems going into surgery from recently diagnosed Psoriatic Arthritis. I put on another 16lbs of water after the surgery.
I don’t really remember the first 2 days in ICU. But the 3 really tough days I remember, I was on diuretics and had water restrictions to force me to lose all that water fast. The diuretics affected my kidney function. My electrolytes kept dropping because I was flushing so much fluid out. If my electrolytes dropped too much, I’d go into V-tach. They wouldn’t move me out of ICU until I reached my “dry weight.” I ended up dropping 21lbs of water by the time I left the ICU. I had to apologize to several nurses after I stabilized because I was not a fun guy to be around for those 3 days.
The second issue was my blood pressure was all over the place. With a Ross Procedure, they want my post-op BP between 90 & 120 for a year while the pulmonary valve gets used to its new home on the aortic side. I kept swinging from the mid-80s to mid-130s depending on what they gave me. It took 5 days to figure out the right drug combo.
I’ve had to go back on diuretics and electrolytes twice since I was discharged because I’m still yo-yoing a gallon of water (7-8lbs over 4 days). I went off them again today. Hopefully I don’t have to go back on them again. I’m trying to be more conscious of my sodium intake this time to see if it helps.
Melinda Donahue Oh my goodness! John I hope you continue to improve please watch the sodium. Thanks so much for shari ... Read more
Melinda Donahue Oh my goodness! John I hope you continue to improve please watch the sodium. Thanks so much for sharing.
Melinda Donahue My appointment got changed to 7-16 due to a cancellation.
Vincent Nelson Melinda, don't wait! Waiting is an obsolete approach to this condition and increases the risk of a r ... Read more
Vincent Nelson Melinda, don't wait! Waiting is an obsolete approach to this condition and increases the risk of a replacement vs a repair...and you don't want that! I was asymptomatic and had severe regurgitation, so I researched heavily on Adam's site, picked Cedars-Sinai and an awesome surgeon who does these all the time (Joanna Chikwe), and got it done. Supposedly, my life span now has returned to that of a person without heart valve issues. I am your age and my stay in ICU was one day, then 3 days in the cardiac unit, then home. Recovery for me took about a month. I'm back to normal activities and I'm a fairly aggressive athlete.
Melinda Donahue I Vincent. Thanks for your post. I did see Dr. adams and Dr. Boateng. They are top notch as is Dr. C... Read more
Melinda Donahue I Vincent. Thanks for your post. I did see Dr. adams and Dr. Boateng. They are top notch as is Dr. Chikwe. I am so happy for you and your great outcome. I am scheduled for Sept 4th and just fear the whole the whole process. The wait is horrible and I think the heart lung machine is a big scare factor foe me and all the what ifs. Dr. Adams assured me that my heart is not compromised now and I will have a great outcome and will be looking at a normal life expectancy as you so wonderfully have. Needless to say I cannot wait until I am on the other side. The thought of any downside is numbing.
I went to my 6 month check up with my cardiologist. Mitral Valve regurgitation is Grade 1 and I am asymptomatic. Was told my heart is very strong ...Read more
I went to my 6 month check up with my cardiologist. Mitral Valve regurgitation is Grade 1 and I am asymptomatic. Was told my heart is very strong and we will wait another 6 months. Back in August. Has anyone been through this waiting situation and what are your thoughts/feelings about it?
Rose Madura I had annual echos for as long as I can remember. I was diagnosed at age 7 after having rheumatic fev ... Read more
Rose Madura I had annual echos for as long as I can remember. I was diagnosed at age 7 after having rheumatic fever. This was back in the 1960s and my parents were told I would need OHS later in life. So my situation is a bit different but waiting was part of my life. Be thankful you don't have an emergency and can choose a treatment plan. I call it a journey... Godspeed.
Melinda Donahue Thank you so much for your post. Your words mean a lot and are encouraging. Sometimes you just don't... Read more
Melinda Donahue Thank you so much for your post. Your words mean a lot and are encouraging. Sometimes you just don't know what to do and it helps to hear what people who are in a similar situation have done or will do
Valerie Allen I have been on watchful waiting for 10 years. I will have my surgery in April.
J Alexander Lassally Not a bad thing. All about that sweet spot for when or if to intervene! I'd celebrate the news... (I ... Read more
J Alexander Lassally Not a bad thing. All about that sweet spot for when or if to intervene! I'd celebrate the news... (I waited over 4 years from initial alarm bells to the right time).
Melinda Donahue Thank you Valerie - that is a great term - watchful waiting. I will be following you and cheering y... Read more
Melinda Donahue Thank you Valerie - that is a great term - watchful waiting. I will be following you and cheering you on! J Alexander I have been following you and am so amazed, you are an inspiration. I am happy but always have that in the back of my mind. Seeing you all makes me realize how fortunate we are!
Rich Butela I went through that for about two years. Echo every 6 months. Finally my stenosis got bad enough tha ... Read more
Rich Butela I went through that for about two years. Echo every 6 months. Finally my stenosis got bad enough that we decided to pull the trigger, even though I was pretty much still asymptomatic. I'm glad we did. I think going in while you're still relatively healthy makes the whole process easier.
Melinda Donahue Thanks Rich I agree. ‘Speaking' with you all helps a lot. Googling and statistics on some sites mak ... Read more
Melinda Donahue Thanks Rich I agree. ‘Speaking' with you all helps a lot. Googling and statistics on some sites makes you a bit nuts. 5 year survival rates/10 year survival rates for mitral valve…. The more I read the more nervous I get.
Melinda Donahue A long time since I posted and the time has finally come!!
The more I read, the more overwhelmed I become and am sure all have experienced this. Is repairing a mitral value with Barlow's disease more complex?
Susan Lynn Melinda- It's a great question. Maybe a good one for Adam to ask the next time he interviews one o... Read more
Susan Lynn Melinda- It's a great question. Maybe a good one for Adam to ask the next time he interviews one of the top mv surgeons. I have a Barlow's valve and I wasn't aware that it was any more complicated than a normal mv repair, but despite the thickened leaflets, my surgeon used a technique that didn't involve removal of any tissue - like Beyonce, he just put a ring on it! An annulplasty ring, that is, and fixed some broken chords. At some point when you find the surgeon you trust, you'll have to spend your energy on the 'time' and let him/her worry about how the watch is built. It's easier said than done, I know, but we can't do much about our Barlow's valves, we can just have them repaired by talented, experienced professionals. Be careful of information overload - we've all been there. Put your questions together for your prospective surgeon interviews and try to relax. Exertion - including mental exertion - isn't going to make you feel better. You'll make the right choice when you're ready.
Melinda Donahue Thanks so much. I get extremely emotional at this point. I will pull together xox
Melinda Donahue Following - is my conversation with my cardio 'I hope all is well with you+Im sure you are very busy! ... Read more
Melinda Donahue Following - is my conversation with my cardio 'I hope all is well with you+Im sure you are very busy!Sorry to bother you,I have a question regarding my echo stress since I was there on 9/1.Let me first say,I trust you 100% + I don't want you to think I don't.I cannot seem to understand the stress test results + am so happy my heart is healthy.I am coming for a repeat echo on 2/15 + know you are 'watching' me+feel safe knowing that.
What I don't understand is what severe reguritation is without back flow-I am assuming that's great but does it mean the reguritation isnt causing an issue?I don't understand what it means.I know you were all happy that my pressure (heart?) went right down when I finished treadmill.This is always on my mind and I am a nervous wreck.You have assured both Bob+I that life as I know it can continue,I am not in jeopardy but ever since the severe reguritation diagnosis,been consistently worried. Melinda
His response: Hi, happy to clarify. You have severe leakiness of your mitral valve. I did the stress echo to make sure that the right side of the heart isnt having higher pressures as well. You still have severely leaky valve, but as of now, you do not meet any indications for surgery. Looking forward to seeing you in feb. You have an echo before you see me as well. Make sure to bring bob!
my ...Read more
my heart rate usually a bit higher than that. What do you think? I called cardiologist he said he is not worried but I am 🤦🏻♀️
there were some SVT’s, but none were A-fib. 🙌🏼
I may sound a little nuts - but I ran the afib report thru ChatGPT and chat disagreed with it and said Apple Watch was flawed it how it reviewed the ecg.