The fuzzy sheep skin seatbelt cover I bought on amazon is divine! And my scar is now very faint - don’t know if I just heal that way (my other surgical scars are somewhat faint too) or it’s because I used religiously the mederma pm intensive overnight scar cream...
Susan Killian This is a good suggestion. I go in next week for my 1st appoint after surgery, I was going to ask about using a scar cream now. Do you use sun protection too? I have heard that is important.
Julie Copeland Yes! Sunscreen every day year round! I’m very fair and burn easily!
Roadid.com
Journal posted on May 12, 2018
So I wanted to share something that gave me peace of mind in my 2 year wait for surgery and my after surgery... I wear an id made by roadid.com that has all the pertinent emergency contact and medical info in it. They make lots of styles at an affordable price. I have one now for my shoe, a silicone for for the water, and my Fitbit charge 2. My special needs son wears it too. I want my medical team to have the info they need should I not be able to speak for myself and family is not around. They have a sale going now too. I do not work for them nor have any financial or other interest with this conpany. Just wanted to put that out there for my fellow heart valve warriors.
Finished 1/3 of my cardiac rehab classes recently! Interesting classes and great people! It’s getting me back in a great routine! I’m feeling really good! I’d recommend it to anyone!
Susan Lynn I agree! Everyone should attend if they have the opportunity.
Anna Jones That's wonderful news Julie. Keep up the great work and best wishes for continued improvement :-)
Susan Roberts Did your Doctor recommend/refer you or can you request?
Julie Copeland Both! My surgeon thought it was a good idea so I asked for a referral when I saw my cardiologist at home. He referred me for eval 10 weeks after surgery. ... Read more
Julie Copeland Both! My surgeon thought it was a good idea so I asked for a referral when I saw my cardiologist at home. He referred me for eval 10 weeks after surgery. Blessed to live in a city that has an established and accredited program
Julie Copeland The program is 36 sessions. I go 3x week, mostly.
So, I’m 43, married, 2 kids, now 14 weeks s/p mitral and aortic valve replacement. I’m feeling better than ever. I’m having a hard time finding supplemental life insurance because of the heart valve replacements. I couldn’t get it before because of my diagnosis of aortic stenosis... any advice? I’m considering just investing $ instead...
Anna Jones Hi Julie, you are asking a difficult question without giving enough answers:
Supplemental life insurance is usually referring to insurance provided though ... Read more
Anna Jones Hi Julie, you are asking a difficult question without giving enough answers:
Supplemental life insurance is usually referring to insurance provided though an employer. These plans are typically 1x or 2x your salary and are offered free or at a reduced cost. Also, usually, because the insurance amount is a small multiple of your annual salary, the coverage isn't sufficient.... that is why it is "supplemental".
So, questions I have are:
1. Are you working with an independent insurance agent?
2. If so, have you looked into term life insurance, and whole life insurance or universal life insurance?
3. Who do you plan to make the beneficiary of your life insurance policy... and what is the purpose you want it for? In other words, is the beneficiary your husband and you want it to replace your lost income in the event you pass away? Do you want your children to be the beneficiary so they have an inheritance? Do you want the insurance just for the purpose of covering your burial expenses (in which case guaranteed life insurance should work)?
Willie Radl Julie, I looked into this prior to my surgery and what I found was that it is very difficult and or very expensive to get life insurance after surgery. Some ... Read more
Willie Radl Julie, I looked into this prior to my surgery and what I found was that it is very difficult and or very expensive to get life insurance after surgery. Some companies won't even consider it. I actually think Adam P has some blogs on this on the site. If I remember correctly from reading his blogs he did get life insurance but pays ~3x the average rate. Other health factors (i.e. smoking, diabeties, etc.) can also play a big role in being approved or not. I think for a lot of us who have been through the process and feel great or better than we did before surgery find it puzzling that now that we are technically healthier we have a harder time getting coverage...go figure.
Anna Jones Wille Radl, the reason is that insurance companies are basically placing bets on your life. For products like life insurance they are betting that you will ... Read more
Anna Jones Wille Radl, the reason is that insurance companies are basically placing bets on your life. For products like life insurance they are betting that you will live a long life and not need it. For products like annuities they are betting that you will live a short life and therefore use less of it.
Anna Jones julie, I am going to Houston Methodist for my surgery. I wanted to ask you some questions about your care at the hospital. Would that be possible?
Julie Copeland Anna jones- ask away! I’m willing to share my experience!
Julie Copeland Well, to clarify the insurance issue- I’m wanting to purchase a term policy on my own as I feel we are under insured. I keep reading 10x your income is ... Read more
Julie Copeland Well, to clarify the insurance issue- I’m wanting to purchase a term policy on my own as I feel we are under insured. I keep reading 10x your income is a good figure. I have a small policy from work and a whole life policy I got almost 20 years ago when I bought my first house. My youngest son has special needs and will likely need some help the rest of his life. The beneficiary would be my husband and kids. I’m pretty healthy other than the heart valve stuff which I feel is resolved - I don’t smoke, no diabetes, cholesterol is 120, my blood pressure runs 100/60. I exercise and I’m a registered dietitian who practices what I preach almost all the time. I’m a compliant patient who is now stable on medications (Coumadin). My doctors anticipate a long full healthy life for me. I was advised to wait 2 years and apply for life insurance again as I was denied by one application. They also said it would be easier to issue a policy if I only had 1 valve replaced rather than 2... I worry I’m uninsurable and am at a loss as to how to deal with future planning in this aspect. Still considering investing the $ I would spend on a policy...
Anna Jones Hi Julie, I doubt you are uninsurable. You may fall into the high-risk category depending upon which life insurance company is insuring you, which only means ... Read more
Anna Jones Hi Julie, I doubt you are uninsurable. You may fall into the high-risk category depending upon which life insurance company is insuring you, which only means that you will be paying a high premium. However, not all insurance carriers look at exactly the same things. So, your best bet would be to work with an independent insurance agent who represents a lot of different insurance companies. He can shop the market for you. You can also contact an agent at Northwestern Mutual. Their agents are not independent but Northwestern Mutual pays dividends to their insurance owners that are applied against the premium, and that helps to lower the cost a tiny bit.
The second thing you can look into is an annuity for legacy purposes. To do this I would contact Stan Haithcock (Stan The Annuity Man) at 800-509-6473 or email: stan@stantheannuityman.com He is probably the most knowledgeable person I know in setting up annuities for specific purposes. He's also very good at educating his clients. You can find his articles all over the internet. And, he is probably the most honest salesman of annuities and he is scathing of agents who push the variable annuities. Also, as a caution, he is also probably one of the most obnoxious people I have ever met, and you just remind yourself that you are picking his brain not being his friend. [Disclaimer, I don't work for Stan, I have no ties to him, I just think he is excellent at figuring out how to achieve your ends, and if it can't be done he will tell you so.]
Anyway, the point of the annuity (for legacy purposes) would be to provide a monthly income (think pension) for your son and/or you and/or your husband for your son's lifetime. You and Stan could work out the details and he could price it for you. The nice thing about working with him is that once you have the information he doesn't push you to buy it. I'd ask him to send me his relevant books (which are free) so you can educate yourself on what exactly an annuity is and ask more detailed questions. Keep in mind that once you purchase an annuity contract, they are costly to break. But it seems to me that if your son will need additional help this might be beneficial rather than giving him a lump sum life insurance payout. Keep in mind, annuities are constant payments while the person is alive. They are meant to prevent someone from ever running out of money.
Make sure you ask about the insurance company's ratings before making any purchase. Stan can provide the Comdex report which will show AM Best, S&P, Moody's, and Fitch financial ratings (i.e. health of the company)
So, my questions regarding Houston Methodist are:
1. Were the nurses very responsive to your needs? Did it take them a long time to answer your call button?
2. Was your pain managed well?
3. When your drainage tubes and pacing wires were pulled, did they give you additional pain medication to manage the pain during removal? Were they very painful to remove? How were the drainage tubes and pacing wires removed?
4. Did you have a private room?
5. Was the bathroom kept clean?
6. Was the food really terrible?
7. Did you have any complications after surgery? How quickly were those complications addressed?
8. How long was your stay in ICU and in the step-down unit?
9. How soon did they have you sitting in a chair? How soon did they have you walking?
10. In the city where I live, when we go into the hospital we are given a "patient code". In order for a relative to call in and get information on the patient they need the code, otherwise no information is provided. Do the patients at Houston Methodist get a "patient code"? or can anyone just call in and get information on the patient?
Thank you for answering my questions.
Julie Copeland Thank you so much for the info!
Answers to your questions:
1. Yes but politely vocalize your needs. Icu was great! But know that in icu you are among 6 other ... Read more
Julie Copeland Thank you so much for the info!
Answers to your questions:
1. Yes but politely vocalize your needs. Icu was great! But know that in icu you are among 6 other patients unless the new icu is open. You don’t care much though as you’ll feel tired. On the floor, It did not take them long at all, especially with a room close to the nurses station.
2. Yes, for me all I really needed was Tylenol after moved from icu. Avoid narcotics if you can. You will be sore.
3. Drains and pacing wires were removed Day 4-5. I only had 1 drain which is uncomfortable but better once removed. I had complications. Had a heart rate of 30 one night but that resolved on its own, my right lung filled with fluid and had to be tapped on day 3. My stay was longer because of it.
4. Yes to private room as insurance paid for it and it was flu season
5. Yes, housekeeping was great for me- they came everyday and cleaned really well... it was flu season and they were through, also left me a container Clorox wipes when I asked.
6. Food was ok- it’s select menu. I tried everything on it while I was there. Omelets were great! Don’t get the salmon. The chicken was dry.
7. My complications were addressed promptly. My dr and surgeon and/or the pa visited with me at least 2x day and the nurses were always available to pester. I felt well cared for. Discharge with the med changes were challenging. I called my home pcp to help get my labs. The Houston Methodist Coumadin clinic nurse helped till I got everything transferred over. Make a post op appt with your home cardiologist as soon as you discharge.
8. Complications kept me longer than anticipated. 3 days in icu, 5 in step down
9. Day 2 I was up and went for a walk- felt like a marathon. Not gonna lie, it was hard! But you’ll prevail.
10. HIPPA requires you to authorize release info to who you want. My husband and dad were there and passed info on to others. There’s no phone for you in icu. Visiting hrs in icu are very limited. You’ll be glad for that as you’ll need rest, which is hard in the icu as they are always doing something. Admitting will take whatever info you want though. Do NOT bring anything valuable to the hospital- jewelry, computers etc... you don’t need it! There’s not a secure way to store it. They will furnish everything you need. Just ask!
Julie Copeland I found an insurance policy that will begin coverage in July- 6 months post op!
Anna Jones Julie, I am very happy that you found an insurance policy. I figured if you shopped around you would find one :-)
Thank you very much for answering the above questions. I really appreciate it.
14 weeks later
Journal posted on April 26, 2018
14 weeks s/p mitral and aortic valve replacement and am doing pretty good. I’m enrolled in a 36 session cardiac rehab program to help keep me going in the right direction. It’s fun and I’ve met a lot of great people! I’d recommend it- it’s time well spent!
Anyone deal with hair loss (like on your head) after surgery? Mine seems to be getting thinner and thinner... I’ve been blaming it on my drugs (which the only thing added was Coumadin) and healing. I’ve added a B complex vitamin. What’s going on and what do I do? Gonna bring this up to he Dr at the next visit.
Wayne Casey I was told it’s the anesthesia. Mine thickened back out about 10 weeks post op.
Rita Savelis I had that too, and didn't know what to blame it on (drugs, anasthesia, life...). It did stop after a few months. Do bring it up with your doctor though...
Michelle E I read that one of the drugs they put you on will do that. Amiodarone for regulating the heartbeat. I've been watching that myself but think it's too soon to tell.
Clayton Mcarthur I think that's normal after surgery that affects you like that I had to take amiodarone for 3 months and noticed it as well but once stopped the hair thickened up again
Mark Wilbur My wife has been on amioderone for the last 15 months for afib and had noticeable thinning hair. She mentioned it to her cardiologist and has had less hair ... Read more
Mark Wilbur My wife has been on amioderone for the last 15 months for afib and had noticeable thinning hair. She mentioned it to her cardiologist and has had less hair loss since dosage was reduced. She'll be off it soon, thank goodness.
Lilly Black I lost my hair like crazy! I used to have such gorgeous thick hair and people always commented on it. After my last surgery, I lost a lot of hair....every day ... Read more
Lilly Black I lost my hair like crazy! I used to have such gorgeous thick hair and people always commented on it. After my last surgery, I lost a lot of hair....every day I found hair all over my laminate floors! I was devastated. Although I still lose hair on a daily basis 3 yrs post surgery, I gained a lot of it back. However, much of it is coming in as white hair, after all I will be 67 years old in September. So it may or may not come back....but there's not much you can do about it. Some things are: don't freak out, don't over wash, don't over brush, massage your scalp, eat healthy and get some decent sleep. I take Buried Treasure liquid vitamins. I wash my hair with very diluted shampoo. I don't put dye on my scalp, and my conditioner is made of argan oil. I have noticed that my hair is getting thicker and shinier and less hair is falling out. Good luck!
Julie Copeland My hair did stop falling out about a month ago, and is slowly growing again. I had it cut shorter and highlighted based on the advice of my hairdresser. And I’m still on the b complex vitamin.
5 weeks today
Journal posted on February 20, 2018
5 weeks post op today! And doing pretty well! My stamina, soreness, etc is slowly improving! My scar doesn’t look bad at all, considering what I’ve been thru. I will wear it proudly as a badge of honor to my awesome medical team, family & friends. I’m anxious to start cardiac rehab but am awaiting a green light from my cardiologist. For now, I walk and bike daily at home. I’m still not driving, am careful as I move and lift anything. My hubby is ready for me to be completely recovered. He’s come to appreciate all the things I do each day as he’s had to pick up the slack in that area. My Coumadin regimen is finally worked out better and I’m scheduled to get a home inr monitor soon so I don’t have to go to the lab. I’m excited about that! I’ve got a bit of cabin fever, but still stay home most of the time as I’m trying to limit my exposure to this awful flu season and just focus on my heart surgery recovery. I’m very thankful for awesome health insurance! Yowzers! Well over $300,000 in claims have been made!
Julie Copeland From my FB page
4 weeks ago today (yes, on the texas ice day) I had open heart surgery... I feel like I’m a walking/talking miracle. Still recovering, but ... Read more
Julie Copeland From my FB page
4 weeks ago today (yes, on the texas ice day) I had open heart surgery... I feel like I’m a walking/talking miracle. Still recovering, but doing much better! PTL! Thankful for each day! Thankful for my medical team, family, & friends!
#recoverymode
#mattersoftheheart
#congenitalheartissues
Julie Copeland Back from Houston! Good reports from the docs that I’m on the mend! PTL!
Today’s the day! Wear red for national heart day! Did you know heart disease in women kills more than ALL cancers combined?! Know the symptoms (& don’t ignore them), learn prevention and treatment options, and see your doctor.
I was doing everything right- ate healthy, exercise, nonsmoker/drinker... but I still needed to listen to my symptoms and seek help- so glad i did too!
2 weeks post surgery update- I’m amazed at the total reversal of symptoms I have now after replacing 2 valves! It’s amazing! PTL! I feel like I’m slowly turning the corner in terms of stamina/endurance but I’ve got a ways to go. I’m moving around better and am not in as much pain. I’m still very careful and am following all the restrictions and protocols. (Sneezing hurts- just saying! No driving- airbag! No lifting anything heavier than a gallon of milk. No falling or crazy moves- broken sternum is healing!) I shed about 16 pounds of water weight and feel so much better (thank you drugs)! I think that has helped a lot too! Also my heart literally “ticks” like a clock, which is kind of soothing to hear in the quiet of the night. I follow up next week with the cardiologist and surgeon so stay tuned!
#mattersoftheheart
#marathonnotasprint
#recoverymode
Bonnie Stone-Hope Fantastic news. So happy for you.
Thank you for sharing your happy news.
Fatema Yaqubi Glad you’re doing fine, I’m waiting for my surgery to replace my two valves, very nervous but hopeful, by the way my story is exactly the same as you and we are the same age.
Swelling
Journal posted on January 26, 2018
Who has dealt with Post surgical lower leg/feet extremity swelling? I’m on lasix and potassium but the swelling is awful... slows me way down! How long does it take to go away?
Cathy Zuber Hi Julie!! Great schedule idea!! I took a nap every afternoon for a while!! I like the PJ idea..but I had home health care visiting..and one was a younger ... Read more
Cathy Zuber Hi Julie!! Great schedule idea!! I took a nap every afternoon for a while!! I like the PJ idea..but I had home health care visiting..and one was a younger guy..so I just stayed in sweats !! Yes, I had lots of swelling in my legs and feet!! I couldn't wear my great tie shoes..in the Winter..I was wearing summer sandals with the straps made bigger with Velcro!! No fun. I took 3 different water pills each day...no fun!! This lasted several months for me..then the water weight finally started to disappear!! Follow up with your primary care docs and/or yr cardiology team!! This is common after surgery. Hang in there.....take time to enjoy those naps!
Bonnie Stone-Hope So sorry to hear that you have this issue.
I assume that you have already advised your physician of the swelling and that you have been keeping your feet ... Read more
Bonnie Stone-Hope So sorry to hear that you have this issue.
I assume that you have already advised your physician of the swelling and that you have been keeping your feet up when sitting.
Perhaps your pharmacist could let you know if this could be a side-effect of one of the drugs you are talking.
Recovery
Journal posted on January 26, 2018
Need to figure out how to permanently put a 2 hr nap and live in the softest pjs into my schedule everyday... I’m finding it helpful for recovery! And it’s great to have helping hands of family/friends nearby...
#marathonnotasprint
#recoverymode
Soggy Rodent There is no way I could've dealt with my care alone after surgery. My mom and brother were very supportive. Having friends take me out for lunch or little walks ... Read more
Soggy Rodent There is no way I could've dealt with my care alone after surgery. My mom and brother were very supportive. Having friends take me out for lunch or little walks really helped to boost my mood and keep me positive. Hooray for our support teams!!
Jailbreak
Journal posted on January 26, 2018
2 days ago this was my FB Post-
Hospital jailbreak! Leaving for Home tomorrow! I still can’t believe I did this, willingly...but I couldn’t go on anymore. It was a no choice situation. And it’s suppose to be a one and done! PTL!
#mattersoftheheart
#marathonnotsprint
#blessed
So if you have to spend 9+ days in a hospital, Houston Methodist is not a bad one! Just saying! (It’s not a resort though. You don’t rest here. You recover. You pray, you encourage, and may even cry. Emotionally and physically you may come out sore and spent but also better for it.) Blessed even!
People that work here are happy, polite (think Chickfila training), and smart & industrious...and are human too. I’ve met people from many places around the globe here and all walks/ages of life. I’ve been exposed to the talents of many (not just their job titles) and some of their life stories while allowing them to contribute to my own. Young, old, sick, worried family, volunteers spreading hope, and even the talents of just musicians in the lobby. They’ve have poured themselves into my care, and are honored by signing my heart pillow, which is my sort of souvineer of this crazy adventure.
Therese ODell Hi Julie! So glad you have had excellent care! Will you be able to go home soon? Did you have complications that have kept you in for longer than "normal" ... Read more
Therese ODell Hi Julie! So glad you have had excellent care! Will you be able to go home soon? Did you have complications that have kept you in for longer than "normal" whatever normal is...... hope you are doing well and on the road home!
Anna Jones Hi Julie, I'm also very glad that you've had good care. I'm sorry you had to be at Houston Methodist for so long. My Cardiologist thinks that is the best ... Read more
Anna Jones Hi Julie, I'm also very glad that you've had good care. I'm sorry you had to be at Houston Methodist for so long. My Cardiologist thinks that is the best hospital for cardiac care and he would like me to go there for my surgery. I'm currently interested in interviewing another surgeon. Would you be willing to let me know who your surgeon was if and you were happy with his skill and attention? Thank you for any information you will provide.
Rita Savelis I also appreciated musicians in the lobby.
Lovely post Julie.
Barbara Laurie So glad your experience was a blessed one, nine day! Hope you are recovering nicely❄️💕❄️
Julie Copeland My care was awesome! Historically, Houston Methodist has done this a long time and is highly ranked, and for me was only 3 hrs from home. I’m a complicated ... Read more
Julie Copeland My care was awesome! Historically, Houston Methodist has done this a long time and is highly ranked, and for me was only 3 hrs from home. I’m a complicated case as I have severe RA & needed 2 valves replaced. One was bicuspid. Over the year + awaiting my procedure I was seen by many of the team. At first I was annoyed, but I got several opinions this way, which helps. My cardiologist was awesome! Dr Little and Barker are great, and they arranged recommendations/interviews of surgeons. I chose Dr Ross REUL- who I recommend as he’s got a lot of approaches to surgery and will give you his honest opinion on each for your case/medical situation. He is kind, confident (but not Godlike), experienced, and a good listener. He’s been doing this surgery about 18 years and knows his stuff. His stats are really good. Ultimately, I trusted him to his recommendations- I didn’t push him into an outcome he wasn’t comfortable with. He’s the surgeon, not me. He took all the time to answer questions, give info, etc.
The surgeon you’ll only really see the most the first year, then yearly after that for checks. You need an awesome relationship with your cardiologist who you’ll likely see forever... keep that in mind as you decide. I love my cardiologist at home, trusted his judgement of Houston Methodist, and went from there...
Also Houston Methodist is set to open an entire brand new state of art cardiac icu etc at the DeBakey heart & valve hospital this spring! I just missed experiencing it! You can view it online.
Update post surgery for today- more walking and rehab stuff, more medication management changes to go home (not a human pin cushion anymore), ate some meals, took a shower, hung out with jeff (so thankful he’s willing to help me in the forever and always things of life- we are all just hanging in there), and I’m so thankful for family and friends helping at home with my boys! Miss them so! Ready to go home by the end of the week! I’ve been a bit emotional, exhausted and sore. I’ve been told there are good days and harder days but have been reassured of superhero status!
Brenda Bryson Julie, glad too hear you are doing well. Just take your time. I do recommend that you start your cardiac rehab as soon as possible, it does made a difference.
Debra Langford So very glad you’re doing well. I go for my surgery on Feb 15 so I’ve been reading your updates. Prayers for a continued recovery.
Bonnie Stone-Hope One day at a time............
Follow your body's lead. I felt very tired some days, and walked a bit more when able. Good piece of advice I read on this blog is...........measure your progress weekly, not daily.
Soggy Rodent Emotional, exhausted, and sore. I was all of those too. I cried so much I became sick of myself. A common statement was "I don't know why I'm crying..." OHS ... Read more
Soggy Rodent Emotional, exhausted, and sore. I was all of those too. I cried so much I became sick of myself. A common statement was "I don't know why I'm crying..." OHS is a highly traumatic event as is being put on bypass... Sounds like ur doing great. Sending u healing vibes :)
My PSA
Journal posted on January 21, 2018
So this is my PSA for St Jude’s - they developed my perfect heart valve replacements that the surgeons replaced on Tuesday! Support them when and where you can- they are working to save lives!
So heart surgery is no joke, but not the worst thing ever! I can honestly say my faith has been strengthened in God, and loads caring people! I’ve got a ways to go but am looking forward to the journey God’s places me on...
Update post surgery #3- getting a little better everyday! Ate real food, went on a few strolls thru the halls, did my protocols on the inspiraometer etc, discontinued the o2, took a shower (I feel more human again). Still working on medications and other issues. Hopeful for a discharge early next week sometime.
Marie Myers Sounds like you are doing well! Once you get home, you can really recover. It was very hard to sleep in the hospital...
Update 2
Journal posted on January 19, 2018
Post Surgery update- assessed by cardiac rehab, got the pacing wires removed, central lines removed, arterial lines removed, still on o2, educated on Coumadin even though I’m on a heparin drip,took a stroll down the hall, ate a few meals. No rest for the weary in the hospital.
Darlene Smith What is that old expression? Something about going to the hospital to be fixed. Then you do the resting at home. Hang in there!
judith monti I remember getting out of ICU and going to regular nursing floor. I was exhausted as there was no rest it seemed in ICU. I actually did sleep pretty good ... Read more
judith monti I remember getting out of ICU and going to regular nursing floor. I was exhausted as there was no rest it seemed in ICU. I actually did sleep pretty good on the regular floor. Of course there is the usual 4 a.m vital checks that resulted in teeth brushing again and looking out the window, etc. THe pain medication certainly allowed sleep to come.
Getting home was not as great as we had the 6" snowstorm the day I was released and we lost power for over 2 days. I did sleep the entire following day without any medication. So, yes, you do need rest after the hospital experience.
Hope you are feeling better! It takes a while.
Rita Savelis The hospital was exhausting! I hear you. Hope you get the rest you deserve soon. Take care, Julie.
judith monti sounds like you are doing great! Hope this trend continues! Please keep us updated on your progress!
Coumadin ed
Journal posted on January 19, 2018
Coumadin education... where was this when I wanted to get out of eating my green veggies as a kid? Now I love those veggies but have to eat them “constinently”...
Cath on Monday went well- no issues. My 6 hr mitral and aortic valve replacement went well on 1/16 despite the ice/snow in texas. I really recall very little getting preped. I don’t recall being anxious. I was not happy with the breathing tube when I woke and asked for a communication board. It was eventually removed. Day 1 post op was met with lots of nausea, soreness and some rest. I had issues with low bp, heart rate, and 1 liter of fluid on my lung that was removed. Day 2 was getting up to a chair, moving, coughing and using the inspiraomter more. Day 3 I walked 200 feet (felt like a marathon) and had my drain removed, ate solid food. I was moved day to a step down cardiac room where I slept well and await today’s events
judith monti Glad you are doing well. I never could have posted anything in cardiac ICU.
Julie Copeland Also, my cath was not done thru the groin! They did the access thru my arm which cut down on time in recovery (in theory though I had a hard time with clotting). The test took like 20 minutes!
judith monti I don't recall much in prep either. A nurse looked me over for any shaving and my husband came back for maybe a minute when everyone swarmed into the room, ... Read more
judith monti I don't recall much in prep either. A nurse looked me over for any shaving and my husband came back for maybe a minute when everyone swarmed into the room, surgeon signed my right shoulder then anesthesiologist started an iv and I was out. I don't recall much when I woke either other than I opened my eyes and lots of activity and people in the room where I was prepped. It seemed very loud. I don't recall anything else but I was mysteriously moved to ICU! Spent 3 days there. Little rest in ICU. I was exhausted and happy to be moved to regular nursing floor.
Creature comforts
Journal posted on January 15, 2018
Today is Cardiac cath day and tomorrow is surgery day!
My friend, a cardiac icu nurse, brought me a basket of what she called necessary creature comforts- a heart shaped pillow (easy to find on tHe valentine isle now), a water bottle (drink and move so you don’t get constipated), cough drops and lip balm (for when they take the tube out), wet ones, deodorant, dry shampoo, hair tie, and some fuzzy socks to make life feel more comfortable. She also advised to not let anyone touch me without hand washing and/or hand sanitizing first- the flu is awful now and it the last thing I need! Thought I’d share this list so you might be prepared too!
Lisa McLaughlin Thank you Julie for sharing this list! My surgery is next Monday and have been thinking of little things I definitely want to have with me. Sending lots of ... Read more
Lisa McLaughlin Thank you Julie for sharing this list! My surgery is next Monday and have been thinking of little things I definitely want to have with me. Sending lots of positive thoughts your way today and tomorrow!
Rose Madura One thing that was very helpful for me was a travel pillow. It made sleeping in the room chair a lot more comfortable.
Sophia Ridley Don’t forget front fastening non-wire bras!
Julie Copeland I’d recommend a presurgery massage if you can. It would help with soreness after too but won’t happen. $10,000 Hospital beds are not that comfy, especially ... Read more
Julie Copeland I’d recommend a presurgery massage if you can. It would help with soreness after too but won’t happen. $10,000 Hospital beds are not that comfy, especially with rheumatoid arthritis and other issues after surgery.
Rehab questions
Journal posted on December 30, 2017
So tell me about cardiac rehab... all I’ve heard is a lot of walking is ahead after surgery. My surgeon also warned me I’d feel like a truck hit me and that initially it will take all my energy just to shower. Right now my energy level is super low, and I get short of breath pretty easily. So ready to feel good again as I’ve got lots of living to do.
Catie B The staff are very supportive and encouraging. They take your BP before and after you exercise, and you'll be monitored while working out. Recumbent bike, ... Read more
Catie B The staff are very supportive and encouraging. They take your BP before and after you exercise, and you'll be monitored while working out. Recumbent bike, treadmill, cross stepper, and later strength training was what they used where I attended. All geared to your level of ability.
Barbara Wood Cardiac rehab was so helpful, it really helps you regain your energy & stamina. Mine was 20 min each on treadmill, recumbent bike & a kind of shoulder/arm thing ... Read more
Barbara Wood Cardiac rehab was so helpful, it really helps you regain your energy & stamina. Mine was 20 min each on treadmill, recumbent bike & a kind of shoulder/arm thing that I have no idea of the name :). We put on ekg leads & they monitored as well, also checked weight each time. I did about a month of that (3x/week) then switched to a program that was monitored but no leads ( my copay for the more intensive monitoring was $40/ session, the other program $50/ month).I did that for 2 months then switched to a regular gym.
The first week home I found showering so tiring I had to take a nap afterward! Best wishes Julie, soon all this will just be a distant memory!
Marie Myers Good advice from both Catie and Barb. I used a shower seat for the first week or two because I was pretty tired. At week 3, I started cardiac rehab, slowly ... Read more
Marie Myers Good advice from both Catie and Barb. I used a shower seat for the first week or two because I was pretty tired. At week 3, I started cardiac rehab, slowly of course. I think my first session was 3 five minute sessions. I completed 35 sessions of rehab, and now am keeping it up on my own. I do 15-20 minutes of brisk walking and 20-25 min of bike riding several times a week.Luckily, I live in Florida, so I can do this all year. (Just a lot of sweating involved in the summer). Like Barbara said, soon your heart surgery will be a distant memory! All the best to you!
Michael Meyer Highly recommend rehab as it really takes the concerns out of getting back to normal. I did a lot of walking at home as I have a Brittany Spaniel and she was ... Read more
Michael Meyer Highly recommend rehab as it really takes the concerns out of getting back to normal. I did a lot of walking at home as I have a Brittany Spaniel and she was always ready for a walk, I also did a lot of napping.
The description of being hit by a truck is pretty accurate, but you feel immediately better after the surgery, hard to describe but after coming out of ICU I felt better.
Meredith Bray I loved cardiac rehab. I've never been one for going to the gym, but the rehab appointments gave me a good reason to get up and dressed and out of the house. ... Read more
Meredith Bray I loved cardiac rehab. I've never been one for going to the gym, but the rehab appointments gave me a good reason to get up and dressed and out of the house. I didn't lose any weight, and I was still on beta-blockers so my heart rate stayed pretty steady. What cardiac rehab did for me was help me gain my confidence on what I could do and couldn't do. I never found anything I couldn't do! The therapists were always watching me - either right next to me or watching my wireless data come in to their monitoring station in the center of the room. I highly recommend cardiac rehab in a rehab setting!
Julie Copeland Y’all are very encouraging! I hope this is truly a distant memory and I feel good in the next 6 months!
judith monti I am a gym rat and I am one who continues to push the limit. I find cardio rehab will not allow me to do this. They are a great group of people at rehab. I find it helpful in getting back to normal.
Surgery date set
Journal posted on December 27, 2017
Surgery date is set for 1/16, with a cath on the 15th. I’ve been busy getting ready for this- making arrangements for my 2 kids, hotel reservations for my hubby, buying comfy clothes for after surgery, got my hair cut, making lists of books and tv shows/movies to pass time as I recover. I’m stocking the freezer with meals as my hubby is not really a cook but is great at kitchen cleanup. What am I missing that I can do before surgery? What things helped you at home as you recovered? Also, I’m not really into narcotic drugs for pain (I hate the loopy drugged feeling) what alternatives worked for you? Did you feel you needed to use a grocery delivery service (like shipt or Instacart)? Did you feel you needed a housekeeping service? My husband has a demanding work schedule and I have family around for help, but don’t want to take advantage of the situation... any tips would be great! Never had something this big done before...
Catie B Best to you, Julie! It sounds like you have prepared well.
Put often-used items on counters, you won't be reaching up for a bit. I used Tylenol only once ... Read more
Catie B Best to you, Julie! It sounds like you have prepared well.
Put often-used items on counters, you won't be reaching up for a bit. I used Tylenol only once released from the hospital.
You may need a family member to help you in and out of support stockings for a couple weeks. Clothing-wise, I didn't want anything to touch the incision.
Do you have any reclining furniture, in case you're not able to return to sleeping in bed right away?
Barbara Laurie I wanted a reading in bed type pillow(with arms) to sleep with in my bed to stay upright. We needed a food deliver plan but they aren’t available, but friends ... Read more
Barbara Laurie I wanted a reading in bed type pillow(with arms) to sleep with in my bed to stay upright. We needed a food deliver plan but they aren’t available, but friends shopped for us. My husband can’t cook, but learned the hard way with “hello fresh”. Since the meals I made in the freezer never got used! Plan on audio and video options if you’re a reader, because holding up a book can be hard. And bending over. Is hard sometimes. But, everyone is so so different the best thing to do is relax, and remember things will either get done, or not, but you will be okay and so will your family. Sounds like you are well prepared. God Bless and Best Regards!💕❤️💕
Julie Copeland Thanks so much! Those are great ideas! I’m thinking of taking up an offer from a friend to use a motorized recliner!
Susan Rush Julie, I am just 5 weeks out from surgery, and I live alone. I found that I treated myself to Netflix and that has helped keep me entertained. Plenty of ... Read more
Susan Rush Julie, I am just 5 weeks out from surgery, and I live alone. I found that I treated myself to Netflix and that has helped keep me entertained. Plenty of shows and movies to listen to. A friend also sent me (4) audio books - and I loved it! It was nice to sit and listen, and doze off when ever i wanted.
I didn't need any pain killers. Hospital sent me home on Tylenol (which I took faithfully for about a week) . There wasn't much pain in my miminally invasive AVR.
I did need help around the house. I had my sister come over at the two week period and she did laundry and ran the dishwasher. Would have liked her to come back in another week - but she didn't. So I called a girlfriend, who was more than helpful. Moral of the story - don't be afraid to ask a friend or neighbor for help. One load of laundry doesn't take long, and you just ask a different friend to do another load the next day! :-)
Rita Savelis I second the wise words of Barb "Things will either get done or not...."
You sound amazingly organised Julie, so you'll be fine. Post-OHS is different for everyone, ... Read more
Rita Savelis I second the wise words of Barb "Things will either get done or not...."
You sound amazingly organised Julie, so you'll be fine. Post-OHS is different for everyone, and different from what everyone expects in both good and bad ways. So you just have to relax into what will be.
The house can be a mess and the family can eat sandwiches.
Barbara Wood It sounds like you are very well prepared! I bought a 9" memory foam wedge pillow - that with about 4 regular bed pillows was more comfy than any chair or sofa for the first few weeks. Best wishes!
Sophia Ridley Bed wedge with lots of pillows and a shower chair were very useful. You’ll need daily clean towel for incision, I used hand towels and kept them on a shelf ... Read more
Sophia Ridley Bed wedge with lots of pillows and a shower chair were very useful. You’ll need daily clean towel for incision, I used hand towels and kept them on a shelf I could reach without raising my arms. I also found a shawl and a cotton scarf useful too as I had low iron after surgery and always felt cold.
You sound v organise. Take time for you. Keep hydrated. I went for a back and shoulder massage a few days before which I think helped too. Best wishes for an uneventful surgery and a stress free recovery.
Julie Copeland Thanks so much for the ideas! I’m ready for this surgery to be done also I can start feeling good again...I’m so fatigued and short of breath on the simplest things.
Kim Shuba Hi Julie, I am also going to be getting ready for surgery, I still have one more test which will be done on Jan. 2nd. From there, once the surgeon gets the ... Read more
Kim Shuba Hi Julie, I am also going to be getting ready for surgery, I still have one more test which will be done on Jan. 2nd. From there, once the surgeon gets the results, I am sure I will have another appointment and surgery scheduled. , Your question was great for I was beginning to think of the same things. Great ideas and I am thinking of the arm pillow. Thank you for posting, and thank all who answered. :) Happy New Year
Toni Z You can download Overdrive ap and sign up with your local library and download free audible books. That’s what I’ll be killing some time with. :)
Wendy Evans I found sleeping in my son's recliner for the first few weeks after surgery was a blessing! Surgery 10/27, home 10/31 to my son's, home to my home 11/30. I ... Read more
Wendy Evans I found sleeping in my son's recliner for the first few weeks after surgery was a blessing! Surgery 10/27, home 10/31 to my son's, home to my home 11/30. I live alone and my son wanted to keep an eye on me first couple of weeks. Rehab didn't start for me til 4 weeks after surgery, you will need that breastbone to heal some before starting rehab. Take it easy, you sound really prepared...I only had 24 hours to prepare for my surgery! Rehab is so great - love the nurses and my rehab buddies!
judith monti I felt pretty good when I went home. I went to the pharmacy to pick up script, did a little grocery shopping. Our car got stuck in the snow on the way home ... Read more
judith monti I felt pretty good when I went home. I went to the pharmacy to pick up script, did a little grocery shopping. Our car got stuck in the snow on the way home and I managed to walk home in the wet snow. I took a hot shower after, climbed into bed. Power went of 15 later for 2.5 days. The following day I slept all day. I wasn't hungry so didn't really eat.
My husband is retired so he was home with me. I cooked and cleaned but also rested. I was told the sooner you get back to normal, the better. However, do listen to your body. You will have good/bad days. I have found this to be true. My surgery was Nov. 29, 2017.
TEE
Journal posted on December 6, 2017
A little about me- I’m 43, married with 2 young kids. I work in healthcare and lead a healthy lifestyle but have a complicated medical history as I have RA.
Over 2 years ago I was diagnosised with moderate to severe AVS. I followed my cardiologist recommendations to go to Houston for intervention. I’ve been followed by numerous cardiologists in Houston since. Around that time is when I read Adam’s book and did some research. I’ve been in the “just wait and not worry” mode since according to my dr advice. I’ve been to every follow up and things are slowly getting worse. Given my age, the advice was to wait as long as possible. On Monday, I had a TEE to check on my valves, and it was not good news. Now I have a torn mitral valve that will need intervention too. I have an appointment with a doctor in Houston Tuesday to come up with a plan. Would appreciate your prayers. Hate this finally becoming an issue to deal with at this time of year... but I don’t think there’s ever a good time. I’m not really fearful about surgery but hate the idea of a lengthy recovery as I’m the big caregiver for my kids- my hubby is gonna need a lot of help!
Shannon Gray Welcome! We are the same age and I, too, have two young children. My surgery was almost 2 years ago, and the focus of it was on my ascending aortic aneurysm. ... Read more
Shannon Gray Welcome! We are the same age and I, too, have two young children. My surgery was almost 2 years ago, and the focus of it was on my ascending aortic aneurysm. I can relate as to the challenges of going through surgery while having two young children. I am so glad you found this site and I hope we can be of help to you as you continue along this heart journey. My best to you!
Margot Swann I can see why you would have some anxiety. Because you have youth on your side and medical background, I imagine you will personally do fine. Your husband ... Read more
Margot Swann I can see why you would have some anxiety. Because you have youth on your side and medical background, I imagine you will personally do fine. Your husband and children may just surprise you in how well they cope with your situation.
I'm sure your caregiving mentality will help you line up folks to help with food prep, child transportation, and prayer. It's good for family and friends to have the opportunity to help with specifics.
Rose Madura I'm sorry yoh need surgery so young. I agree with Margot, I think you family (and friends) will astound you. Best wishes for a successful surgery.
Toni Z Our story sounds similar. I’m 42 with 2 boys-5&7. I too hoping recovery won’t be too bad or lengthy. Luckily hubby’s mom lives with us and she’s still ... Read more
Toni Z Our story sounds similar. I’m 42 with 2 boys-5&7. I too hoping recovery won’t be too bad or lengthy. Luckily hubby’s mom lives with us and she’s still pretty active to help out with the kids and cooking. Good luck with the surgery! Mine is 1-19 😬
judith monti I would think youth, good health and lifestyle will be on your side. Hope you will get the help and support you need. I don't envy you with small children to watch. Good luck!
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