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Diagnosis: Aortic Stenosis

Member Since: November 3, 2017

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Susan McNally posted an update

5 years ago (September 29, 2020)

I'm still here, Still haven't had surgery. I think the figures for my heart meant I could withstand a wait but then covid came along. I have been severe for a year now and I've been up reading all night about survival rates and know I'm a year into my... Read more.

Marie Myers

How frustrating! I am sure Covid 19 did not help the situation at all. Are you experiencing any worsening symptoms? I know What you mean about researching too much ; it can really raise my anxiety levels. Hang in there!

Steven Methot

Scary. The general cardiac ward and the cardiac ICU at "my" hospital are in lock down over COVID cases as well as several other wards. What is the reason for their delay in your case?

Susan McNally posted an update

6 years ago (January 8, 2020)

Very distressed at the moment and not all heart related. I have got to the point of severe aortic stenosis. 0.82cm valve size. Time for work to be done. I was discussed at a valve meeting but before that, they asked for a CT scan. I was then called into... Read more.

Catie B

Hi Susan. I'm sure I would have been shocked and alarmed by that kind of note on a medical record, if this happened to me. I know you already felt worried about the nodule. I don't have an answer and I don't imagine that your medical team does yet, either.... Read more.

Judy S

Hi Susan, sorry to hear about all that you are going through. I can tell you that a CT scan I had for my heart resulted in them finding an adrenal tumor. This is very common and is typically found incidentally through scans. Mine has been monitored for the last... Read more.

Susan Lynn

Susan - I'm sure you're frustrated, but you don't want any surprises at the time of surgery. That's why we all get the thorough pre-admission tests. Take it one day at a time - this will all be behind you shortly. Stay positive!

Susan McNally

Thank you all of you. I have had the PET scan now and just awaiting the results. The adrenal tumour diagnosis is more annoying than anything because I have had various symptoms over about 10 years and nobody actually taking any notice. Now that it has shown up on a... Read more.

Catie B

I hear you, Susan. I tend to research things earnestly, too. I know waiting is very hard! Hoping you will have very good news and hope your heart surgery won't be delayed further.

Judy S

Sorry for all the stress you're dealing with Susan. Sending you healthy wishes as you wait to hear.

Susan McNally posted an update

6 years ago (January 3, 2020)

I haven't been on here for a while but I have now had the various work ups for surgery and Im now severe. I was called to a different appointment when I was told that they found a nodule on my lung on my ct scan and that I now... Read more.

Diane Maher

I was in my mid 60's when my heart murmur was detected which led to a variety of tests, one being a CT scan. I was diagnosed with mild aortic stenosis but the radiologist seemed more interested in a detected small lung nodule. I had a consult set up with... Read more.

Marie Myers

That is a tough one. Try not to concentrate on what might be. Just take one step at a time, and hopefully the nodule will be a " means nothing" finding!

Susan McNally

Thank you. I think you can imagine my mind is filled with trepidation now. I know that it looks reasonably low risk by its size and its smoothness and that its solitary but they're obviously still checking it out. I have never been somebody who suffers with chest infections, not... Read more.

Diane Maher

My GP just calls it scar tissue. Even one bad respiratory infection can leave you with scar tissue according to him. Has your surgery date been set yet? I agree with Marie, just try to not think about "all this stuff", shift your mind onto something else when it begins... Read more.

Diane Maher

Interesting....I just looked up where you live and our son lives in Greenwich...Google tells me you only live 27 minutes from there.

Catie B

Susan, I hope whatever they are seeing is completely innocuous and not worrisome!

Chris Calhoun

"This too shall pass" tremendously powerful have faith - know that God will be by your side or may even carry you !!!!

Frank Giovanniello

Susan, before surgery I was aware for about 6 months, they found two nodules. My pulmonologist said it's most likely nothing to be concerned about. But wants a cat scan every year to compare.

Susan Lynn

Susan - My brother found out he had a lung nodule after a motorcycle accident. They monitor it annually, but feel confident that it's not a concern. Hang in there.

Susan McNally

I have had a couple of lung infections over the last 3 years or so. I guess it might be scarring from those. My scan on Wednesday will no doubt clarify any problems but I do feel like I cant cope with much more as heart surgery itself is enough... Read more.

Susan McNally

Diane Maher......I am very close to Greenwich. Where in Greenwich is your Son?

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