It has been 13.5 months since my open heart mitral valve repair. Funny how I was on the site so much before and just after surgery, and now so much time has ...Read more
It has been 13.5 months since my open heart mitral valve repair. Funny how I was on the site so much before and just after surgery, and now so much time has passed since I have posted. I thank Adam Pick and all of the heart valve patients for sharing their experiences which was so crucial in getting through all of this from the first notification that I had to have surgery through the point where I returned back to normal daily activities. This site and all of you in this great community are truly helping each other through all of this. So tonight I post my update, and I also made a post on Surgeon Finder, which is the same post that I would like to share with you. I thank all of you and the dear Lord and our surgeons and support staff for this miracle of life.
I am so grateful and blessed to have Dr. Patrick McCarthy as my heart valve surgeon. I highly recommend Dr. McCarthy to anyone that I encounter that needs heart surgery. His experience and great outcomes are what have drawn us towards Dr. McCarthy in our research for a heart valve surgeon. He is the pioneer in many aspects of heart surgery and has many papers for many procedures that you see published in the cardio thoracic surgeon world for other surgeons to follow. For heart surgery, I would recommend that you choose the surgeon and not a place to go that is convenient or close to home for this kind of surgery. The 30 day mortality rate on US News and World Report at Northwestern Memorial in Chicago is 0% and this is a number that you should look very closely at in your research for your hospital. Please take heed in this statistic and your surgeons experience and support staff. It has just been 13 months since my open heart surgery and I am doing very well. My last echo has shown that all heart damage has been reversed and my numbers are great and I feel great and I will thrive for a very long time with my repaired valve. I have had a great outcome and I attribute that to Dr. McCarthy and his staff at Northwestern Memorial in Chicago. It may have been a different outcome if I chose to go somewhere else, who knows.
God bless Dr. McCarthy for his life’s work and his gift of healing and innovation and teaching. BTW, we just attended Patient Day 2016 at Edwards Lifesciences in Irvine CA in Feb 2016, the manufacturer of my heart mitral valve ring, a truly wonderful experience for the patients and also for Edwards Lifesciences, which I also recommend if you are have one of their products. I was so proud to say that Dr. McCarthy was MY surgeon as his name, the inventor, of some of the products along with Carpenter and the great Dr. Adams.
-- Janet Ruddock, Mitral Valve Repair, 2-3-2015
Sophia Ridley It's so wonderful to hear from those who are recovered and getting on with life. Great inspiration, w ... Read more
Sophia Ridley It's so wonderful to hear from those who are recovered and getting on with life. Great inspiration, wonderful to hear you've made a good recovery.
I had mitral valve repair 4 months ago, my story is similar to yours that I had a mild prolapse and then suddenly severe. My atrium is enlarged due to the leak and I had post surgical Afib (converted after a couple of weeks as I couldn't take usual meds as have underactive thyroid).
Pls may I ask some questions -
Has your atrium now returned to normal size?
Have you suffered AFib since?
Are you taking beta blockers, if not, what was it like coming off them?
Tracy Simmons Congratulations Janet and thank you for the update. As Sophia stated, it's so nice to hear about you ... Read more
Tracy Simmons Congratulations Janet and thank you for the update. As Sophia stated, it's so nice to hear about your wonderful progress for those of us who have just started down the path to recovery. I wish you continued good health and progress.
Jean Raber Hi, Janet. Glad to hear a good report! Do you feel you're back to normal for most things? My cardiolo ... Read more
Jean Raber Hi, Janet. Glad to hear a good report! Do you feel you're back to normal for most things? My cardiologist said MVP patients usually get to about 90 percent of where they were pre-op, provided they didn't have any symptoms. Good advice to pick the best surgeon if money is no object, but many of us in HMOs have to trust the system we're in because this is an EXPENSIVE surgery (repair or replace), and co-pays outside your coverage area can be prohibitive.
Janet R Thank you all. Yes my enlarged left atrium has returned to normal size. I have not had afib since eve ... Read more
Janet R Thank you all. Yes my enlarged left atrium has returned to normal size. I have not had afib since even though I feared it for months. My local cardiologist will keep me on Metoprolol 25mg and 81mg aspirin. It has taken a year to feel this great and for the heart damage to reverse and all is normal. I am able to sleep at night now, I exercise as much as I can to keep my heart healthy. I do 25-30 flights of stairs almost every day. I could not even do 1 flight of stairs before surgery. I do feel very fortunate yes to have been able to have my surgeon in network. Expensive yes I am still paying for it but is certainly worth it. I pray for great outcomes and smooth recoveries for all.
Sophia Ridley Thankyou Janet, your feedback is music to my ears! I'm fearing AFib, I've even bought a stethoscope t ... Read more
Sophia Ridley Thankyou Janet, your feedback is music to my ears! I'm fearing AFib, I've even bought a stethoscope to check! 25-30 flights a day is fabulous, congratulations. I really need to pick up the exercise, can go backwards so quickly. I'm struggling to find time with work, commute and home. May your recovery go from strength to strength.
Thoughts and prayers to everyone for successful surgeries and recoveries and good health. It has been 15 weeks since my Mitral Valve Repair and I am now off ...Read more
Thoughts and prayers to everyone for successful surgeries and recoveries and good health. It has been 15 weeks since my Mitral Valve Repair and I am now off of the Warfarin. YAY!!! I wore a Holter Monitor for 24 hours to make sure everything was ok before stopping the Warfarin. My results showed normal sinus rhythm and looked really good. There were however some very rare extra heart beats in the top of the heart and from the bottom of the heart. This is common and benign. No evidence of AFIB was found. Still on the Metoprolol to slow down my heart beat and will revaluate in 4 months to see if I can also stop the beta blocker and I well have another Echo at that time. I am working out 5 days a week for an hour and I feel great. I feel like I am 25 years old again :0) God bless.
Denise Cockayne So is it really possible to get off the Warfarin?
Tammy Pilcher That's great news, Janet! I'm so happy for you! God bless!
Lila Robinson I'm on Warfarin and supposed to only be on it for 12 weeks or so. Do they stop it gradually? I'll b ... Read more
Lila Robinson I'm on Warfarin and supposed to only be on it for 12 weeks or so. Do they stop it gradually? I'll be so happy to be off it!
Janet R Getting off Warfarin and how you do it is up to your cardiologist and your situation. I was able to ... Read more
Janet R Getting off Warfarin and how you do it is up to your cardiologist and your situation. I was able to just stop taking it. I never thought that I would ever say 'I really miss broccoli'.
Lila Robinson Thanks Janet! I know what you mean...I am thinking twice about everything, spinach, asparagus, etc!! ... Read more
Lila Robinson Thanks Janet! I know what you mean...I am thinking twice about everything, spinach, asparagus, etc!!! I don't want anything to upset that. I wish I could go off it soon, but we'll see what the surgeon says. I'm 6 weeks post surgery Thursday and it also coincides with my f/u appointment with my surgeon. I
m hoping #1. I can drive; #2. I can resume bike riding with my cycling club "Silverwheels"; #3. Can I get off Warfarin; #4. May I return to work just 2-3 days a week for a bit before going back full-time;
Janet R Lila, I went back to work at 6 weeks and was on Warfarin for 3 months. While being on the Warfarin, ... Read more
Janet R Lila, I went back to work at 6 weeks and was on Warfarin for 3 months. While being on the Warfarin, I avoided activities like bike riding in the event of a fall. After 12 weeks my sternal precautions were lifted. I have become more aggressive in my workouts, but still careful and mindful of my sternum. I am starting to notice a little clicking of the sternum when I bend over a certain way. Going to call my cardiologist about it.
Lila Robinson Hi Janet! I'm going back to work tomorrow....2-3 days a week through July 6th and then back to 5 day ... Read more
Lila Robinson Hi Janet! I'm going back to work tomorrow....2-3 days a week through July 6th and then back to 5 days a week! I'm sitting here feeling so apprehensive about it. I mean I WANT to go, but I'm worried I won't be able to hand the drive, the hours, the stress, yada yada. But, even my grown son, and overall caretaker says "Mom, you've got to get back to work!" as I was explaining to him all the back stories of "My Gypsy Sister", "Return To Amish", "Keeping UP With Kardashians", and all the day time court shows (including Paternity Court) that are all not in repeats for me!
The good news is he let me stop the Coumadin at 6 weeks which was such a joy for me. And he said the same as you, 12 weeks the sternal precautions will be lifted...which will be July 23rd. But I'm leaving July 28th for an Alaskan cruise and then a convention until August 11th...so I'm not going to resume bike riding until then.
My insurance company authorized the referral to Cardiac Rehab and so I will be starting that I think sometime this week. I really need it. I've hit some sort of stall wall or something. So I guess all around I need the structure, and the medically supervised activity, but also the dietitian and counselor. I think working a lot from home PC has kept depression, etc. at bay, but am now having anxiety about the not knowing how much to do and when. Since I wasn't in the best fitness beforehand, I just don't know what to be doing...so I think this will be good for me.
Janet R Busy plans. Listen to your body. I think cardiac rehab is the key to getting your heart strong agai ... Read more
Janet R Busy plans. Listen to your body. I think cardiac rehab is the key to getting your heart strong again and getting your strength back. Enjoy Alaska so beautiful.
Lila Robinson How are you feeling/doing Janet? I have an echo scheduled for July 8th and a follow up with my Cardi ... Read more
Lila Robinson How are you feeling/doing Janet? I have an echo scheduled for July 8th and a follow up with my Cardiologist on July 22nd before I fly off to Vancouver! I really am so glad I joined cardiac rehab.
Thoughts and prayers to all the upcoming surgeries and to all in the recovery process. It is now just over 8 weeks from surgery and I feel really good. Much ...Read more
Thoughts and prayers to all the upcoming surgeries and to all in the recovery process. It is now just over 8 weeks from surgery and I feel really good. Much better than before surgery. I am still a little sore in the chest but I have not taken a Tylenol in like 5 days. I take my vitals every day. I think that exercise is the key to recovery to get my heart stable and strong. I do my own cardiac rehab in my house for 1 hour 5 days a week and I am feeling much stronger. I did attend rehab at a facility for 5 times, but then my insurance decided to deny coverage. On the meds, I am down to just taking Metoprolol to lower my heart rate and still on the Warfarin until 3 months from surgery. Hopefully, I will get off the beta blocker at some point too and then no more drugs! Just a daily low dose aspirin. I went back to work full time on 3-16, I work from home. I am still pretty tired when 5pm comes around and go to bed after I take my 8pm pills. I should overcome that too as time goes by. My goal is to walk up Diamond Head in Hawaii which I was never able to do before. I feel so blessed and grateful to have been able to get my heart fixed. It’s amazing.
Nancy D So happy to read that you are progressing so well! It is a process and you seem to be in charge of g ... Read more
Nancy D So happy to read that you are progressing so well! It is a process and you seem to be in charge of getting stronger and setting goals! Keep up the fabulous work!
Ed Smith Janet, congrats on your continuing progress and successful recovery. I'm just ahead of you at 10 week ... Read more
Ed Smith Janet, congrats on your continuing progress and successful recovery. I'm just ahead of you at 10 weeks and agree 100% about the value of doing the workouts, be it in cardiac rehab or on our own. I'll be on Oahu in September visiting family and plan on following your example of climbing Diamond Head.
Janet R Thank you Nancy and Ed. Ed, Keep up the workouts! Send me a picture from the top of Diamond Head :0 ... Read more
Janet R Thank you Nancy and Ed. Ed, Keep up the workouts! Send me a picture from the top of Diamond Head :0)
I had my 2 week post surgery check up with my local cardiologist. My wounds are healing, I am in normal sinus rhythm, and no more heart murmur. My heart used ...Read more
I had my 2 week post surgery check up with my local cardiologist. My wounds are healing, I am in normal sinus rhythm, and no more heart murmur. My heart used to sound like swish swish and now it is all lub dub. Amazing and most grateful.
Terrie Syvertsen Good news that you are doing so well. Congrats on the healthy sounds your heart is making too! Contin ... Read more
Terrie Syvertsen Good news that you are doing so well. Congrats on the healthy sounds your heart is making too! Continued progress with your recovery.
Cheryl Batzing So glad to hear you are doing well Janet! Prayers for continued healing.
Thoughts and prayers to all the upcoming surgeries and to all in the recovery process. It is suddenly 11 days since surgery. I remember how anxious I was during ...Read more
Thoughts and prayers to all the upcoming surgeries and to all in the recovery process. It is suddenly 11 days since surgery. I remember how anxious I was during the months leading up to surgery and the 5am march that my husband, my sisters and myself made across the street from the hotel to the hospital that morning on the quiet streets of downtown Chicago, the only sounds was us playing my surgery theme song, Geronimo by Sheppard. Things seem to happen so fast from there. I do not remember being rolled out of the pre op the op room at all. The next thing I remember was the ventilator tube being removed, one of my dreaded fears, but knew that this was a great moment. I did great and was only in ICU for only 24 hours. The ICU hours are a little fuzzy now. Just encountered a few bumps. I had a huge ulceration in my throat from the breathing tube, I could only tolerate liquids for the first week. I had a lot of impacted blood in my nose from a gastric tube that would not go through my nose. That also cleared up before being discharged. It was the night before discharge and Bill and I were making our plans and then I went into AFIB. I never want to experience that again. I converted within 15 minutes upon the meds being administered. Spent another day in the hospital with IV meds and then to AFIB pills upon my final discharge. My numbers have been great all along and have been good since being home. I feel very fortunate all went well and that I will only be on meds, warfarin, metoprolol and ami for about 3 months only. I pray for no more bumps in the road and clear saling from here. Feeling a little better each day. My back hurt the most and I was told that is from the chest tubes. Still on the pain pills, but trying slowly get away from them and start alternating with Tylenol during day.
Jim Kelly-Evans Congratulations, Janet! You're well on your way to a fine recovery. I hope you have no further speed ... Read more
Jim Kelly-Evans Congratulations, Janet! You're well on your way to a fine recovery. I hope you have no further speed bumps. Best wishes!
Bob M Sounds like the worst is behind you now Chicago heart sister! Take it easy. God bless and rise up!
Janet R Hi my Chicago heart brother. I have been meaning to give you a shout out. I will be going to CDH fo ... Read more
Janet R Hi my Chicago heart brother. I have been meaning to give you a shout out. I will be going to CDH for the cumadin clinic. Still need to determine where to go for cardiac rehab.
Mary Myers Janet, , I had afib also. It was scarey. I had about three days of it. I ended up in the hospital for ... Read more
Mary Myers Janet, , I had afib also. It was scarey. I had about three days of it. I ended up in the hospital for a lot longer due to it. I was able to stop the coumadin about 3 months post op. I have not had any afib since in the hospital. Please donot be in a hurry to stop pain meds. Wishing you a fast recovery. Rehab is a must. Where do you live in Chicago?
Janet R I'm glad your afib is over. Thanks for the advice on the pain meds. I live in Warrenville.
Tammy Pilcher Janet, I pray your recovery is smooth sailing here on out!
Cheryl Batzing Janet, so glad to hear how well you are doing! I had afib in the hospital as well but didn't convert ... Read more
Cheryl Batzing Janet, so glad to hear how well you are doing! I had afib in the hospital as well but didn't convert with meds, so had to be cardio-converted. Doing well since release and at 8 weeks post op. Prayers for your recovery heart sister!
Janet R Thank you Tammy and Cheryl. I remember following you during your Afib. Glad to hear you are over th ... Read more
Janet R Thank you Tammy and Cheryl. I remember following you during your Afib. Glad to hear you are over that and doing very well.
Caregiver Bill giving update.
All wires are out and she is doing her short walks. She is sleeping now and the pain is manageable.
To all the heart community ...Read more
Caregiver Bill giving update.
All wires are out and she is doing her short walks. She is sleeping now and the pain is manageable.
To all the heart community thank you.
To Dr McCarthy and the surgical team thank you.
To Northwestern Memorial Hospital thank you.
Adam Pick and heart-valve-surgery, where this all started, thank you.
Everything is going well. breathing tube out at 2:00 pm. Janet has been talking and looking for ice chips ( yeah I finally have a job again). Some pain but ...Read more
Everything is going well. breathing tube out at 2:00 pm. Janet has been talking and looking for ice chips ( yeah I finally have a job again). Some pain but it is managed. She wakes up for a little bit and then goes back to sleep.
Thank you everyone.
I welcome this surgery day tomorrow, 10 hours from now! 5:30am check in and 7am surgery. I am ready and find my peace in God and my great surgeon, and my ...Read more
I welcome this surgery day tomorrow, 10 hours from now! 5:30am check in and 7am surgery. I am ready and find my peace in God and my great surgeon, and my great husband Bill who will be posting updates. Thank you all.
kathy lesnau good luck Janet, you will do great! This time tomorrow you will be on the road to recovery. Prayers ... Read more
kathy lesnau good luck Janet, you will do great! This time tomorrow you will be on the road to recovery. Prayers for you, your family and surgeon.
Tammi Gunwall Prayers and peace to you Janet. Your Dr's will take great care of you and of course God is the ultima ... Read more
Tammi Gunwall Prayers and peace to you Janet. Your Dr's will take great care of you and of course God is the ultimate caregiver. You will soon be on the road to recovery. God bless!
Dan Crogan Good luck. Sending positive thoughts your way. I will be right behind you with my surgery this Thursd ... Read more
Dan Crogan Good luck. Sending positive thoughts your way. I will be right behind you with my surgery this Thursday.
Edith Dim Sending prayers for a successful surgery, and a smooth recovery road ahead.
Adam Pick Janet and Bill, The good news... You've found one of the best valve surgeons in Dr. McCarthy. The gre ... Read more
Adam Pick Janet and Bill, The good news... You've found one of the best valve surgeons in Dr. McCarthy. The great news... You are going to do wonderfully. The bad news... Ummm. I don't have any. :)
I'm sending you healthy, heart-pumping thoughts and prayers from California!!! Go Janet!!!
Janet R Thank you everyone for all your thoughts and prayers. And God bless Dr. McCarthy and his life's work ... Read more
Janet R Thank you everyone for all your thoughts and prayers. And God bless Dr. McCarthy and his life's work, he is truly one of the best. Signing off for now and turning in all my electronics for a while. We will be walking over to the hospital within the hour. Peace and love.
Today is my last day work. And I am on the leader board! Anxious to have the surgery behind me and on the road to recovery. We are leaving Sunday to the ...Read more
Today is my last day work. And I am on the leader board! Anxious to have the surgery behind me and on the road to recovery. We are leaving Sunday to the hotel, big snow storm in the forecast for Sunday. Rather have the storm on the way there then on the ride back home. Feels good to have 'back home' on the agenda.
Tammi Gunwall Good luck Janet! You will do great. I know it's a fast moving time now...packing, finishing things up ... Read more
Tammi Gunwall Good luck Janet! You will do great. I know it's a fast moving time now...packing, finishing things up...the emotional rollercoaster can be overwhelming too. But God has you covered! Before you know it you'll be on the other side of this and working on recovery. My prayers are with you!!
Janet R Thank you Tammi, my sentiments exactly, I am in good hands.
Jim Kelly-Evans Best wishes, Janet...you will be in my thoughts.
Elaine Foster God Bless you, my prayers go with you.
Patricia Garcia Janet...I pray you have a successful surgery and fast recovery.
Janet R Thank you everyone. We have already checked into the hotel in downtown Chicago right across the stre ... Read more
Janet R Thank you everyone. We have already checked into the hotel in downtown Chicago right across the street from Nortwestern Hospital. Went to the hospital chapel today to reflect on things. Snow blizzard today. The next time we walk over will be the day of surgery to get my heart repaired which I am so grateful for.
Janet R Amy, Yes we will! It must be extra hard to do this being asymptomatic. My heart pounds out of my che ... Read more
Janet R Amy, Yes we will! It must be extra hard to do this being asymptomatic. My heart pounds out of my chest just doing one flight of stairs lately. I will be praying for you on your day of surgery tomorrow and for a smooth recovery.
Ed Smith Best wishes for a quick surgery and smooth recovery, Janet. I had my valve replacement two weeks ago ... Read more
Ed Smith Best wishes for a quick surgery and smooth recovery, Janet. I had my valve replacement two weeks ago and am feeling much stronger every day. I wish the same for you.
I had my angiogram and all the pre-surgery testing done on Jan 15th. Great news, no blockage. I also donated one pint of blood for my surgery just in case. ...Read more
I had my angiogram and all the pre-surgery testing done on Jan 15th. Great news, no blockage. I also donated one pint of blood for my surgery just in case. Only a few weeks away, and I can't wait to have my mitral valve repaired and on the road to recovery. Thank you everyone for all the support and well wishes from this heart community.
Bill Hendrickson Glad to hear you great test news. You have enough on your plate to contemplate. Wishing you well in t ... Read more
Bill Hendrickson Glad to hear you great test news. You have enough on your plate to contemplate. Wishing you well in the near future.
Adam Pick Congrats Janet! Another step in the process is... complete. Also, good idea donating some blood just ... Read more
Prior to heart valve surgery, patients are faced with many, many, many questions. One of those questions is specific to potential blood loss during the operatio
Adam Pick I love my sternum too Janet. Hmmmmm. I think I love it more now than I did before my surgery. Funny h ... Read more
Adam Pick I love my sternum too Janet. Hmmmmm. I think I love it more now than I did before my surgery. Funny how that works.
Tammy Pilcher Janet, I know! I love mine too, even more now that it's healing so nicely after what it went through ... Read more
Tammy Pilcher Janet, I know! I love mine too, even more now that it's healing so nicely after what it went through! You're going to do great!
Lori Beuerlein Janet, your story sounds very similar to mine, I wish you luck on your upcoming tests, and a feeling ... Read more
Lori Beuerlein Janet, your story sounds very similar to mine, I wish you luck on your upcoming tests, and a feeling of peacefulness as you prepare for surgery. Keep us posted.
Janet R Tammy, I am glad that your sternum is healing well.
Janet R Hi Lori, I am so happy for you that you are now home! Heal well! Had my angiogram, good news, no ... Read more
Janet R Hi Lori, I am so happy for you that you are now home! Heal well! Had my angiogram, good news, no blockage.
I first want to thank everyone in this heart community and how grateful I am to have this place. I finally updated my story and hope to start posting more ...Read more
I first want to thank everyone in this heart community and how grateful I am to have this place. I finally updated my story and hope to start posting more journals as my surgery date approaches. Going for my angiogram and pre-op tests on 1-15-15. Hoping the angiogram presents good results with no blockages since all of my other tests are clear.
I had mitral valve repair 4 months ago, my story is similar to yours that I had a mild prolapse and then suddenly severe. My atrium is enlarged due to the leak and I had post surgical Afib (converted after a couple of weeks as I couldn't take usual meds as have underactive thyroid).
Pls may I ask some questions -
Has your atrium now returned to normal size?
Have you suffered AFib since?
Are you taking beta blockers, if not, what was it like coming off them?