Lila's Posts

I applaud your honesty about feeling vulnerable. I am not being humorous, but sincere when I say that I try not to think about longevity, importance of my health to my children-having lost their father as teenagers- my youngest was age 10-just thoughts that try to push into my mind if I am not careful.. It is a constant effort, but the joy of successful TAVR, and good health pushes these thoughts back..hope this helps in some little way..

Lilia, Your post is making me think more about the emotional side of the AVR journey. I still have until May 14th before I see my cardiologist again to get the process started. I check out this site everyday to read how people cope. You are correct that the physical part will probably go smooth, but the emotional side will be a challenge. Thank you.

I love to hear from patients from the year 2015! I hear you Lila! OHS is not a "piece of cake", whether you have a loving spouse around or not. It's hard, and it can take time to process it all. Writing is good, and sharing your honest account of your very personal experience can be healing for you, and helpful for others. It personally helped me a lot when others opened up, because otherwise it was easy to feel so very alone. I know that everytime I wrote there was at least one person who needed to see my post and have some of their experiences validated. April 10th will be my 3 years. I look forward to reading you when you are ready to write.

Wonderful post Lila. I posted something about the emotional part of OHS a few weeks ago. .no one speaks of it and surgeons just tell you physically you will be fine afterwards. Having people that understand what you have gone through even if its just in writing help so much.. As wonderful as family can be, they don't know the true journey.. best to you.

Hi Lila, I am 16 months post op (and 78 years young in two weeks) and your post is of great interest to me as I am also alone. I had my two sons go with me to the surgeon's visit. It freaked one right out and the other told me he was quite stunned also. I had to manage the consult myself as they thought I was so strong and capable of looking after myself. I was a quivering mess inside but told myself I had to be strong as there was no-one to catch me. I was to have two valves replaced but because of complications they only did the one and now it looks as if I may have to have the other done. I'm not holding my breathe for the same support (if you can call it that) as I unfortunately look so fit and well and as the last one was "a piece of cake" I will be fine! Thank God and all the wonderful people who keep this site going. As we all know, it is not "a Piece of Cake" but it seems you have to go thru it to understand that. It has taken your post to make me realise why I feel so depressed most of the time. It is such an emotional roller coaster ride, isn't it? I have been looking for other triggers as I thought this should all be behind me by now. Perhaps the thought of a second time around doesn't help but reading your post has given me comfort. There you are with the same feelings I have. We are not alone! Do keep posting as I think we are helping others as they have helped us. I look forward to hearing from you again and do read Rita's posts as she is such an inspiration to us all. Take care 🌺😇

I too was the only woman in my sessions of rehab, aside from the nurse that was there. We had some interesting conversations about every topic that I am not sure would have happened if it was just the guys. Good for you for singing out loud!! Spread your joy and happiness! It is a journey we are on, and at any stage we can share our happiness, as the one next to you may just need that! One day when you need it I hope someone shares their joy! Fun, joy and happiness are always better when shared! Keep on sharing, and caring for YOU!

hi Lila you keep singing girl my group we had about 5 guys and three girls and we always had fun and if we could not keep up it was fine we were told to just do what we could and not over do it we had one lady who always kept us laughing it was fun and cardio rehab 3 is very similar