They set me free today and it felt so good to be home familiar surrounding,
Question... I can feeling my heart beating in my chest, and sometimes, my whole body shakes with the beats.
Thank you everyone for your prayers and support! Trying to take it easy. It was such a beautiful day outside, so I took a walk around the block. My family has been amazing and I know it couldn't be easy for them to see me in that condition, but they were troopers. Each day gets better.
Sorry I haven't posted earlier. I think my sister posted my progress. The Drs and nurses here are amazing. Especially the ICU nurses. Spent a little more to time in there then I want with a tube Dow my throat, but i am finally headed in the right direction. They left the tube in cuz I wasn't breathing on my own and my O2 says we're too low. I am on the road to recovery. And evert day gets a little better. Thanks to everyone who sent my prayers, I appreciate everything this site has brought to my healing proceeded and motivation. I'm not one of those who say "it's not as bad as I thought to was gonna be". The worst is over and I am on the right track toward recovery. I will be thinking and praying for those surgeries next week.
Surgery this week. I go between looking forward to feeling better, and being totally scared. Praying helps during those doubtful moments. Reading other peoples comments help too, especially the ones who say it wasn't as bad as they thought it would be. Had a great weekend with my kids and husband.
Keeping all of those with upcoming surgeries in my thoughts and prayers. I also will be thinking about your families who are right there beside you, and loving you every minute of every day. I hope they are your inspiration for a speedy recovery.
"I carry your heart, I carry it in my heart" - E. E. Cummings
With MV repair surgery just over a week away, is there anything I need to do before the big day? Any insider tips would be much appreciated.
BTW - I am totally at peace as the surgery date gets closer. What a different feeling from when I first found out I needed OHS. This site (and Adam's book) have helped tremendously. It is so good to hear from other heart valve brothers and sisters. Thank you all for sharing your heart stories!
Date is set for MVR, surgeon says there is a 90% chance of repair, so that is good news. He gave me a choice of the less invasive procedure if I wanted to. I know there are pro and cons to that approach. I am not concerned about scars, so I am on the fence about the less invasive choice. I also have breast implants which means a little more time (and a plastic surgeon) in the OR. Anyone out there have the less invasive approach, and if so, what can I expect?
PS, I haven't made up my mind about thus, so I appreciate any insight!
One surgeon down, one more to go (or maybe 2). The first surgeon wants to bypass my 50% blockage of the LAD. I was not expecting that!
I see a surgeon from Mayo clinic on Tuesday. We will see how we like that one. Done reading Adam's book (read it the first night I downloaded)!
I've been reading everyone's posts, and I am so thankful for all the patient perspectives and honesty about recovery. Several posts have really hit home, and have put my mind at ease... At least for the time being.
I am also thankful for my incredible family, especially my husband who already has been so supportive with everything so far. He truly is my rock, along with all the incredibly courageous people on this web site.
Kind of ironic, the last few years I have worked so hard to prevent that blockage from getting bigger, so I wouldn't have to have open heart surgery.... Oh well!
My goal is to do the Tillman run (walk) in April right around my birthday. Me and my family have done it every year, 4.2 miles in honor of Pat Tillman. I should be good to go by then, right?
Completed all necessary testing to confirm the surgery. Cardiologist who did the cath said it was the most severe regurgitation he has seen in a long time. Now just need to pick a surgeon! I have the one my cardiologist recommended, and a second opinion set up at Mayo in Phoenix on Friday. I am really seriously considering going to LA and talking to one of the surgeons highly recommended on this website. Just researched to see if my insurance covers the surgeons out of state and they are in network! So confused as to the right choice! I guess I will know when I find "the one" !