Adam’s Heart Valve Surgery Blog

Thanks to the members of this wonderful community, I am happy to share that the beta test of our new Heart Valve Chatbot was a tremendous success. As you might recall, the new Heart Valve Chatbot was created with the support of over 100 leading heart valve doctors and thousands of patients.

For the beta test, we evaluated 920 chats between the patients in our community and the new Heart Valve Chatbot. Satisfactions surveys were then provided at the end of each chat.

I am happy to report that the Heart Valve Chatbot received a score of 4.7 out of 5! Amazing!

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[July 19, 2025 Update: Great news! Our patient webinar, “6 Misconceptions of Heart Valve Surgery”, with Dr. Chris Malaisrie was fantastic. You can now watch a video playback of the webinar below or download the FREE eBook here.]

I’m excited to announce that our LIVE and FREE patient education events continue this Thursday, July 17, with a special webinar, “6 Misconceptions of Heart Valve Surgery”. The featured speaker of the webinar is Dr. Chris Malaisrie, a Professor of Cardiac Surgery who specializes in minimally-invasive procedures at Northwestern Medicine.  This special, one-hour webinar will start at 6pm EST.

During the interactive webinar, you will have a special opportunity to ask your questions directly to Dr. Malaisrie during the live “Questions & Answers” session.

This is going to be great!

Keep on tickin,
Adam

When I started HeartValveSurgery.com in 2006, I didn’t know what I was doing. I simply knew that I wanted to help one patient avoid the challenges and setbacks that I experienced during my heart surgery journey. With over 10 million website visits and more than 500,000 social media followers, I am happy and humbled to know that my initial goal was thankfully achieved. Now, my goal has gotten a bit bigger… To raise global awareness to this under-diagnosed and under-treated disease that unfortunately claims the lives of over 25,000 people annually.

With that goal in mind, we have built many educational resources to help patients learn about their disease, their treatment options and their care providers. One of my favorite resources is our online Community. In the Community, patients and their care partners connect to share their experiences in a thoughtful, caring and unique way. You can see these wonderful exchanges in the posts at our Patient News Feed.

Wanda and Alina (Heart Valve Patients)

Every so often, I hear and see stories of patients who form incredibly strong bonds online which inspire them to meet “in-person”.

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Our patient community is downright wonderful and… creative!

This time, Charlie Marlow posted a music video for his new song “Ribcage” which chronicles the story of his open heart surgery. In case you missed it, here is Charlie’s new video:

Many thanks to Charlie for sharing his experiences and his video for “Ribcage” with us.

Related Links:

• U2’s Bono Shares Deep Insights About His Heart Valve Surgery
• Heart Warrior: My Ross Procedure Success Story by Andy Dial
• 10 Spiritual Lessons I Learned From Heart Valve Surgery

Keep on tickin’ Charlie!
Adam

In 2020, Hannah Earls underwent a transcatheter aortic valve replacement (TAVR) to treat her severe aortic stenosis. For five years, Hannah lived a stable and fulfilling life. But in 2025, troubling symptoms returned — fluid retention and high blood pressure signaled that something was wrong.

Hannah Earls (Heart Valve Patient)

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The inspirational patient success stories keep coming in from all over the world!

This time, we have our first “Part 2” of a patient success story from Elisabeth Boylan, a Ross Procedure patient from Quebec.  (As you may recall, we initially featured Elisabeth’s efforts to raise heart disease awareness in 2020. Learn more here.)

Elisabeth Boylan with Sara Borchert (Daughter)

 
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Dr. Chris Malaisrie, and Dr. Christopher Mehta,  cardiac surgeons at Northwestern Medicine Bluhm Cardiovascular Institute specialize in the treatment of aortic valve disease. Along with their team of experts at Northwestern Memorial Hospital, they recently performed their 100^th successful Ross Procedure. “We’re happy to report that Northwestern Memorial Hospital has a 100 percent in-hospital survival rate for this complex procedure in addition to long-term durability,” said Dr. Malaisrie.

Dr. Chris Malaisrie, Dr. Christopher Mehta and Ross Procedure Diagram
(Source: Northwestern Medicine)

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If there is one thing that our patient community has learned over the years, it is that patients and their medical teams must consider the lifetime management of heart valve disease.  While there are many great medical advances and treatment options for patients, the reality is that there are no guarantees that a heart valve repair or replacement will last forever.

As a result, patients may need a second, third, fourth or even fifth heart valve surgery. For example, I just heard from Therese Tilton, a heart valve patient who has been dealing with heart valve issues for over 50 years.  This is her story…

Therese Tilton (3-Time Heart Valve Surgery Patient)

 
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I am very excited to announce that Providence Little Company of Mary Medical Center Torrance, a Keck School of Medicine of USC partner, just became the newest sponsor of HeartValveSurgery.com!

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When Jim Makovetz moved to East Norrtion, Pennsylvania in July 2024, he began feeling unwell. After visiting a local urgent care, Jim learned that he had high blood pressure. Then, it was recommended that Jim get a transesophageal echocardiogram. The tests revealed severe mitral valve regurgitation due to Barlow’s syndrome, a condition Jim had no noticeable symptoms of at the time.

 
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I am thrilled to share that Deborah Heart and Lung Center has become the newest sponsor of HeartValveSurgery.com!

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U2 is my favorite band.  And, Bono is one of my heroes.

I’m not alone. For millions around the world, Bono is more than just the iconic frontman of U2 — he’s a voice for justice, humanity, and now, heart valve patients. Diagnosed with severe aortic valve disease and an aortic aneurysm, Bono needed emergency heart surgery in 2016. The complex procedure was performed by Dr. David Adams, the Cardiac Surgeon-in-Chief of Mount Sinai Hospital in New York City, who has successfully treated many patients in our community.

Now, Bono is sharing his life in a deeply personal way with his new film “Bono: Stories of Surrender,” that is streaming on Apple TV. Based on his bestselling memoir, Surrender: 40 Songs, One Story, the film explores Bono’s extraordinary journey, his near-death experience with heart disease, and the strength it takes to keep going — in music and in life.

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[May 30, 2025 Update: Great news! Our patient webinar, “Ask Dr. Gerdisch Anything”, with Dr. Marc Gerdisch was fantastic. You can now watch a video playback of the webinar below. You can also download the free eBook at this link.]

As many of you know, patients can be very confused about their diagnosis, their treatment options, and the lifetime management of heart valve disease.

For that reason, we are hosting a special FREE and LIVE webinar next Thursday, May 29, at 7pm EST.  The webinar will provide you a unique opportunity to ask your questions to Dr. Marc Gerdisch, the Chief of Cardiac Surgery at Franciscan Health, who is a world-renowned, minimally-invasive expert having performed over 5,000 heart valve operations.

Also… If you have any questions you would like to send me in advance of the webinar, I will get them answered during the webinar. Please email your questions to adam@heartvalvesurgery.com.

I look forward to seeing you on this interactive webinar!

Keep on tickin,
Adam

Hey Everybody,

Here’s a quick update regarding the launch of several new dynamic features at the Patient News Feed which is one of the most trafficked pages on our website.

If you would like to see the new updates at the Patient News Feed, click here.

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I received a very interesting note from John Bryan, a heart valve patient. I share John’s story not to scare you but rather to educate you specific to the realities of valvular defects, heart valve replacement durability, and cardiac monitoring.

John Bryan (Heart Valve Patient)

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What happened after David Herzhaft, an aortic valve patient from Idaho, had a successful Ross Procedure performed by Dr. Ismail El-Hamamsy at Mount Sinai in New York City?

To answer that question, here is a really fun patient success story as told by David.

David with Dr. Ismail El-Hamamsy

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I LOVE getting inspirational updates from heart patients all over the world.

This time, Richard Godbey shared a big milestone for him after transcatheter aortic valve replacement (TAVR).

Richard Godbey (TAVR patient) with Son at Mount Whitney

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Great news! To educate patients, their families and friends, we just released the world’s first Heart Valve Chatbot powered by artificial intelligence. The Heart Valve Chatbot was created with the support of 100+ heart valve doctors and 1000s of patients.

Below is a quick video that describes the futuristic features of the Heart Valve Chatbot. After you watch the video, I would really appreciate it if you would use the Heart Valve Chatbot and provide your feedback.

>>> To test the Heart Valve Chatbot, simply click the “Blue Chat Icon” at the bottom-right section of this page. When you’re done using the Heart Valve Chatbot, please click the three vertical dots at the top of chatbot and select “End Chat” to complete the survey.

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Hearing from patients about their heart valve surgery journey is my favorite part of running this website.

This time, we get to learn the amazing success story of Edward Rutkowski, a patient who underwent robotic heart valve surgery 15 years ago.

Edward Rutkowski (Heart Valve Patient)

 
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How good can life be 10 years after successful heart valve surgery by Dr. Robert Saeid Farivar?

Thanks to Tammi Gunwall, a patient who recently celebrated her 10th heart valve anniversary, we know that life can be pretty darn great.

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