I'm meeting my surgeon next month, September 21st. It's all getting very real very fast. I'm at the point where I'm ready to get this over with and be on the other side, recovering!
Quick question--for those of you who were monitored long term for your bicuspid aortic valves, how long did it take from the cardiologist saying "it's time to meet the surgeon" until you actually met your surgeon? One month feels like a long wait, but I guess if it was more urgent she'd have flagged it as such...
Meeting with the surgeon next week. Oddly not overly anxious anymore. I'm sure it'll come back at some point. But having an answer after that stress test took a lot of my anxiety away.
Cardiologist said she suspects I'll have surgery scheduled in the next 2-3 months, tops. The surgeon will make the final call there. He's a younger guy, but has a good record and I think others here have had him do their surgeries. Will keep everyone updated as I go along.
I'm nervous, but almost in a giddy "about ready to have a better heart after 42 years of this busted one" kind of way. Is that weird?
Welp I’m fairly certain I failed that stress test today. Felt great the whole time, but the nurse was very concerned about my ekg at times, asked me to confirm I’m not on any heart medications, and asked me while I was cooling off if I really didn’t have any symptoms (I really didn’t).
She then went to try and find my cardiologist while I was preparing to leave, but she was with a patient and said she’d get back to me.
So... it’s probably getting close to “go” time on this aortic valve replacement... will hear more from cardiology in the next 24-48 hours.
Wondering if anyone’s had OHS who uses a CPAP machine. Would I be able to bring that with me to the hospital? Could I even wear it with all the rest of the stuff going on? Curious if anyone’s faced this issue before.
No scheduled surgery date yet but every month it inches closer. Wanting to prepare as heat as I can! Thanks!
Stress test scheduled for the 18th of August, though I can absolutely tell you that I'm stressed out! Not in the way they mean, though :)
My bicuspid aortic valve finally crossed the threshold into severe stenosis about a year or two ago (after being moderate forever) but I haven't had any symptoms. Aortic aneurysm also started enlarging for the first time in years. My cardiologist ordered the stress test, to see if I really am asymptomatic. I'm getting to a point where I just want to get it over with--as scary as the thought of OHS is, I see all these great recovery stories here and I know objectively it's a very safe and successful surgery nowadays!
I'm going to take my cardiologist's recommendations and do as she advises. She's been great so far, and seems to be fairly well-respected in her field. What's funny about the asymptomatic thing is that now I know she's concerned, I think every tiny thing may be a symptom!
I guess it's just hard to be only 42 and staring this surgery in the face, right in the middle of the best years of my life with five kids, a strong career... so much uncertainty and fear about this, even though, again, I know it'll all be okay.
Thanks to all of you for sharing your stories along the journey--it's really helped me out a lot. I'll keep you posted as things progress!