Stopping by to say hello and to check in with old acquaintances to see how everybody is doing.
Life has resumed its old rhythms, mostly. The only thing ...Read more
Stopping by to say hello and to check in with old acquaintances to see how everybody is doing.
Life has resumed its old rhythms, mostly. The only thing different from before last summer's TAVR is that i get breathless with not much exertion. I did cardiac rehab for some months, I'm doing my barn and pasture chores without any trouble. I can clean a couple of horse stalls about like before. But walking up a not-steep incline from barn to house makes me breathless.
I saw my regular cardiologist recently and told him about it. I wondered aloud if it was still being deconditioned after the months of curtailed activity before TAVR. He listened to my heart, listened to my description. He said I am not having heart failure, so deconditioning is most likely. We discussed exercise, and he gave me a written plan for increasing gradually, etc. I have barely looked at it because I don't like walking. I live on a farm on a rural road and I could walk up the road every day, but I am not motivated to do it.
I'd be more likely to use the treadmill in my basement, but it won't start. Who do you call for that? It's huge and heavy, so needs a house call. My husband bought it near where we used to live and they service them, but 25 miles away? I guess it's worth asking.
Rita Savelis Hi Betsy. Nice to hear from you. Although I went back to doing most of what I did before OHS 10 years ... Read more
Rita Savelis Hi Betsy. Nice to hear from you. Although I went back to doing most of what I did before OHS 10 years ago, I still get very out of breath on inclines or stairs. I can do them but have to rest and take them at my own slow pace. No one has ever said that I could improve that. I think surgery was also hard on my lungs and this type of exertion (small inclines) will have to be taken slowly. Wouldn't it be lovely if I were better than pre-surgery?! I admire your ability to do all your farm chores. And I have always appreciated your frank honest posts. Take care.
Robert Miller I am not sure you can determine if you heart failure or not just with a stethoscope. I would check ba ... Read more
Robert Miller I am not sure you can determine if you heart failure or not just with a stethoscope. I would check back with your cardiologist. Not sure about your treadmill. Maybe check yelp. The problem is, that repair sometimes is half the cost of buying a new one.
Rose Madura Hi Betsy. You amaze me with all the farm chores. I did not have a TAVR but my aunt did at age 73 and ... Read more
Rose Madura Hi Betsy. You amaze me with all the farm chores. I did not have a TAVR but my aunt did at age 73 and it did seem to slow her down a bit. Hang in there. I'd try to follow your cardiologist's plan as much as you can and see if you achieve the results you desire. Please keep us posted. ❤️🩹
Betsy Davenport Robert, I don't think a cardiologist uses only what he can hear. There is no reason to assume heart f ... Read more
Betsy Davenport Robert, I don't think a cardiologist uses only what he can hear. There is no reason to assume heart failure, either. This doc is one of the few I've encountered in recent years who conducts a thorough clinical interview to assess function and anomalies.
Robert Miller Betsy, obviously I am not a cardiologist but I think it's rather hard to determine if you have heart ... Read more
Robert Miller Betsy, obviously I am not a cardiologist but I think it's rather hard to determine if you have heart failure without x-ray and/or an echo and/or blood test, etc. If you start showing symptoms like swollen legs, water on your lungs, even being out of breath, etc you waited way too long. My 2 cents from personal experience. But your mileage might vary.
Looks like she's leaving. I've had roofers here for almost 2 weeks, and when she's not in the back of the closet hiding under a pillow, she's either trying ...Read more
Looks like she's leaving. I've had roofers here for almost 2 weeks, and when she's not in the back of the closet hiding under a pillow, she's either trying to escape, or supervising from a windowsill.
Betsy Davenport She keeps track of how long they break for lunch. "Dock their pay!" she screamed when it went too lon ... Read more
Betsy Davenport She keeps track of how long they break for lunch. "Dock their pay!" she screamed when it went too long.
Betsy Davenport Richard, she is so smart she learned how to open the door to the rest of the house. It has a lever ha ... Read more
Betsy Davenport Richard, she is so smart she learned how to open the door to the rest of the house. It has a lever handle, not a round knob, and she stretched up so she could puther front paws on top of it and pull it down. I finally saw her do it on a video camera I aimed for the door. I had to thwart her with a childproofing gadget.
I'm checking back in after several weeks. I have been kind of discharged from the valve program due to it being almost 2 months since my valve job and no complications, ...Read more
I'm checking back in after several weeks. I have been kind of discharged from the valve program due to it being almost 2 months since my valve job and no complications, much. Not serious ones, anyway. I've been absent from here due mostly to a persisting foul mood combined with extraordinary activity at home, consisting of a new roof on my house, the departure of my long-term farm maintenance and repair guy, and a drainage project proposed by my neighbor to the south. It seems water runs off my fields into his garage every winter, and something had to be done, and the cost shared. I could say a lot about my mental state which still includes sketchy cognition and depression, but will do that another day because it is 3 am and I am, or should be, heading for bed.
I started cardiac rehab 2 weeks ago and have begun to recalibrate my perceptions of how much I am exerting myself. It is pleasant to feel my muscles in a way that tells me they are working. For a long time, I had to do so much less because my heart couldn't pump much blood oxygen out to the rest of my body. Now, with a 23mm valve opening wide, the blood pours through easily and I can finally use my body in a way that it has been wishing for. I have been doing cardio only but it bores me out of my mind, and this coming week I will start with free weights. I used to lift weights, some years ago, and I'm really looking forward to it.
My aging body isn't going to look like it did in my 30s, but I will feel and be stronger. There is nothing quite like growing up a farm kid for part of your self concept being about feeling sturdy and physically capable. The stenotic aortic valve rendered me weak and I felt alarmingly vulnerable. It seems I am not yet old enough to have to accept that as a permanent state. I don't know what I'm capable of, but I'm eager to see how I do.
My mood, ugh. Oh yes, I am saving that description for another journal entry on another day. I hope this finds everyone doing well, and I am glad to be back among you.
Rita Savelis Thank you Betsy for your honest update. It's always helpful to read your straightforward accounts. An ... Read more
Rita Savelis Thank you Betsy for your honest update. It's always helpful to read your straightforward accounts. And I hear you on "mood". You will write about that another day. Take care.
Valarie Sullivan Hey, Betsy! Please keep us updated as you figure out your ‘new normal’. I hear you about being vu ... Read more
Valarie Sullivan Hey, Betsy! Please keep us updated as you figure out your ‘new normal’. I hear you about being vulnerable and trying to figure out what you can and cannot do. That’s a sore spot for me, too. But very encouraging that you are feeling a difference!
Suzette Schear I was told before my surgery this was normal. My boyfriend was warned by a friend. It’s definitel ... Read more
Suzette Schear I was told before my surgery this was normal. My boyfriend was warned by a friend. It’s definitely an adjustment. It sucks that on top of that you have other changes. I took this pic yesterday hope it makes you laugh.
I am 2 weeks post TAVR. I'm taking a walk every day. I'm not a fan of taking walks. Before TAVR I was doing chores in the barn and pastures, feeding horses, ...Read more
I am 2 weeks post TAVR. I'm taking a walk every day. I'm not a fan of taking walks. Before TAVR I was doing chores in the barn and pastures, feeding horses, loading up and pulling a cart full of hay and feed, checking the horses for wounds, picking up their feet, etc. The only part of that which made me breathless was pulling the cart.
My post procedure instructions were to avoid lifting, pushing, or pulling anything greater than 10 lbs. This was to protect the incisions into my femoral arteries. They are fine, healing up nicely.
I am trying to figure out when I can start back on my previous routine. The pulling and lifting are definitely more than 10 lbs. But I can't increase the weight gradually, because it's a lot more than 10 lbs. After 2 weeks there has been no guidance.
What's everybody else been doing?
Yumiko Ishida I’m not sure how to determine weight equivalence, but I found resistance bands to be helpful. They ... Read more
Yumiko Ishida I’m not sure how to determine weight equivalence, but I found resistance bands to be helpful. They don’t take up a lot of space, and it’s hard to over do it.
Betsy Davenport I have never been able to make sense of them. Maybe if I had instructions, but I like free weights.
2 weeks post TAVR, I finally felt like cooking something. This is a Thai-inspired curry and tofu soup. Good for a few days so I don't have to cook again tomorrow. ...Read more
2 weeks post TAVR, I finally felt like cooking something. This is a Thai-inspired curry and tofu soup. Good for a few days so I don't have to cook again tomorrow.
Suzette Schear Betsy that's wonderful cooking and wanting to eat.
Larry Peterson Nothing better than a tofu curry! Looks great, Betsy!
Richard Munson It does look good actually but to celebrate my eye surgery today i grilled a huge burger and some fri ... Read more
Richard Munson It does look good actually but to celebrate my eye surgery today i grilled a huge burger and some fries in the oven. To make it heart healthy i added a slab of Bermuda onion for my veggie. I cheated a little for dessert with my favorite coffee ice cream. My mouth is watering just typing this with no glasses.
Betsy Davenport And on clear days, I can see Mt. St. Helen's out there. On really really clear days, also Mt. Baker a ... Read more
Betsy Davenport And on clear days, I can see Mt. St. Helen's out there. On really really clear days, also Mt. Baker and Mt. Hood. I think. I can never remember.
I've been taking 1-2 strolls each day, not too strenuous. I go out to the mailbox and back (rural road, mailbox far from house). I go down to the barn and poke ...Read more
I've been taking 1-2 strolls each day, not too strenuous. I go out to the mailbox and back (rural road, mailbox far from house). I go down to the barn and poke around sometimes beyond it, past the pond, as far as the burn pile and the hazelnut orchard, then back. Sometimes both those destinations. Today, I went out to the mailbox, up the road to the neighbors' donkey pasture, and back home. This walk has the most slope, and I could feel it. But! It felt like exercise used to feel, back when I was a runner, taking a hill or on a new route with more slope. Noticeably using a bit more oxygen than I had. But! It did not feel like it's felt for the last year, when my aortic valve was calcifying and couldn't throw enough blood through the diminished opening to provide my lungs and muscles with enough oxygen. I can't describe the difference I felt between the 2 functionally similar (identical?) circumstances, because it was subtle, and because I can't feel both simultaneously to compare. But I have a physical template in my body, first laid down in around 1980, and made indelible over the course of the next 30 years. I have another, more flimsy template applied for about a year. They are different. I like the first one better. I don't feel as vulnerable now because of course I have a durable cow tissue valve, which is brand new and working efficiently for me and I no longer have an active fatal heart condition. For the first time in a couple of years it feels safe to exert myself without fear of damaging my heart or keeling over with a heart attack. It is liberating.
Rose Madura Wonderful to hear and I totally understand the feeling. It's very liberating. 👍
Update. I was asked to come get a new EKG. normal. After some discussion with the PA, I was instructed to resume the Metoprolol I have been using for a few ...Read more
Update. I was asked to come get a new EKG. normal. After some discussion with the PA, I was instructed to resume the Metoprolol I have been using for a few years to normalize my BP. After 2 days, my BP and heart rate returned to normal.
I'm feeling less tired but sleeping 12 hours a day. My appetite is better. My little incisions are healing. I'm not eager to do more, and I think I might appreciate a bit of supervised reconditioning so I can recalibrate my system.
Richard Munson Wow, 12 hours a day. That is some serious sleeping. If it recharges your batteries thats good.
Suzette Schear I have at times slept that long. Glad they switched the meds for me it’s harder to switch the mind ... Read more
Suzette Schear I have at times slept that long. Glad they switched the meds for me it’s harder to switch the mindset . Glad appetite is better. Your got this it will get better
Yumiko Ishida Glad things are starting to normalize. Sleep as much as you can. Your body clearly needs the rest.
Betsy Davenport Richard, it's rarely all in one stretch. But I nod off in my chair sometimes and a couple of hours pa ... Read more
Betsy Davenport Richard, it's rarely all in one stretch. But I nod off in my chair sometimes and a couple of hours pass. Or I go to my room mid afternoon and take a nap deliberately.
Kathy Pate I'm in love with your cat....he's gorgeous & precious!! I'm looking at our shitzu, Ruby Sue. I ... Read more
Kathy Pate I'm in love with your cat....he's gorgeous & precious!! I'm looking at our shitzu, Ruby Sue. I dread leaving her for 2 nights. Yes, I spoil her rotten & love every minute of it. My daughter says, she needs that time away to teach her humblesness...LOL. She's kidding of course. Well, she is a bit of a diva; but, adorable at the same time. Countdown to my TAVR tomorrow is less than 14 hrs. Thank You Lord!!🙏🏻❤️
Kathy Pate Love it....my daughter will be sleeping with Ruby Sue, our shitzu...she's really my granddog; but, sh ... Read more
Kathy Pate Love it....my daughter will be sleeping with Ruby Sue, our shitzu...she's really my granddog; but, she's really mine!! 😍
Ana Brusso He is very comfortable but I’m sure he missed you. 😍
Would a few people tell me about their cardiac rehab program? I'm told I'll get a call to get started but I'd like an overview of what it consists of.
This is my one criticism of my valve team. They are shit about giving information. No overview of the entire process, from diagnosis to done. No roadmap, no context for anything. It's been, "Okay, get x test." Then, "We'll call you to set up an appt." (For what? What's the goal? Can't you write anything down??)
I like my doctor and feel she was both capable and attentive to my concerns. The nurses in the hospital were good. It's the systems that are bad, and I see it all over across medical settings and in industry too, and it is so aggravating when it's the bank. But when it's your own heart on which you depend? When you've been poked and prodded and scanned and hooked up to wires and cut into? I want to wring someone's neck.
A road map to afterward would help. I've had minimally invasive treatment yet I still feel like I got worked over, I'm exhausted instead of feeling the same or better, the incisions in my groin hurt and my underwear scrapes on them so I've had to buy new, in a different style (which I'd have done ahead if warned). A bandage won't come off because it seeped blood a long time and the nurse had to keep applying pressure, but now the dried blood is sticking the dressing to me and I can't get it off without risking bleeding again. Long shower in the morning to soak it off, I guess.
These are all such small things but they add up and I just feel sick of the details: take this, don't take that, do this, don't do that, weigh yourself daily, take your pulse, WTF. I have little appetite just when I had thought it would be fun to indulge a little -- I earned it! Nothing tastes good, which is weird.
I've had a couple of lightheaded spells, my BP is up and so is my heart rate. They discontinued the Rx I'd been taking for high BP which is apparently what gave me kidney disease, so I'm not happy about this. I have many years of experience with the medical system and I know how the only person putting anything together was always me. So frankly, I don't trust the Rx discontinuation. My heart docs weren't around when I started that Rx. What's going to control my BP now?
Everybody has blinders on, looking at their own specialty, and not seeing the whole picture. I'm sick of trying to get them to listen and actually hear. My sister tells me it's very possible none of my providers sees the whole picture. As an example of this from her life, she told me how (many years ago now) after her C-section, the surgeon who had with his own hands removed the baby from her body, told her she needn't take the antibiotic he'd prescribed at precise intervals because he didn't want her to not get a full night's sleep. Hell-o-o!? Newborns don't sleep through the night! Her life was changed the day he took the baby out and a full night's sleep was no longer a possibility anyway! Talk about specializing, good lord.
So because of that phenomenon, I generally clue one doctor in about the other stuff going on. My TAVR doc took good care of my kidneys. But the surgeon I didn't end up needing had a misapprehension about what prompted the taking of a certain medicine I take. She had it wrong, and when I corrected her, she refuted my explanation, I held firm, and she looked at me as if she still thought the error was mine. That made me worry if in the middle of OHS she might blow off what a nurse or other doctor told her if it didn't comport with her own idea. People raved about her but I found that very bothersome and had I opted for OHS I'd have had to discuss it with her directly and maybe even ask for another surgeon if she didn't offer me something to explain or inspire my confidence in her everyday capacity to take in new information that was counter to her perceptions.
**And these are the people into whose hands we place our lives. I am not a fan.**
Even my TAVR doc, whom I like quite a bit, didn't anticipate how it would feel when the kitchen person refused to include a Caesar salad with my dinner because it added too many grams of fat. Whattt?? That's not what brought me here, I wanted to holler through the phone. Well I was calling from the heart recovery unit and I guess standing orders are the same for everyone, even though my arteries and vessels are nicely clear of plaque and I know this because of all the tests and scans and whatnot. So did my doctor know, but didn't think how in just trying to get a big enough salad, I was spoken bluntly to by someone who isn't qualified to use discretion, and lord knows a "heart healthy" diet is more important (though how healthy is lettuce past its prime? Or fake ice cream made from a chemistry set and so sweet it hurt my teeth?) than eating more green leafy salad. Yeah, with dressing. At home I eat butter, too, and my arteries are fine.
Okay, I know I'm in a foul mood, and I'm just bitching about minor details in the greater scheme of hey! I got a new heart valve and it's working and I'm not going to die in a year! But the accretion of multiple small indignities, being expected to tolerate being Done To without it having an effect, the withholding of basic information a reasonable person is better off having, on and on, and just not feeling right since the hospital, like my normal self, is REALLY GETTING ME DOWN.
I'm calling the valve team in the morning with a short list of questions, and to report on my status (BP up, heart rate up, incisions ouch, dizzy). Ugh I hate this. Sorry for the screed. No one needs to answer if they don't want to, and please, if you do, don't minimize my experience. Just say oh poor you and leave it at that.
Betsy Davenport And yeah, tell me about cardiac rehab programs.
Richard Munson I never had any formal rehab being in the middle of covid but the best advice i received from my doct ... Read more
Richard Munson I never had any formal rehab being in the middle of covid but the best advice i received from my doctor when i was leaving the hospital was walking is the best medicine. I was lucky to have a treadmill at the time. So i made my own rehab program and stuck by it. I believe if you overdo it, your body says to knock it off.
Marie Myers My rehab consisted of walking on the treadmill, using the bicycle-type machine, and then the arms plu ... Read more
Marie Myers My rehab consisted of walking on the treadmill, using the bicycle-type machine, and then the arms plus pedal machine. My first day was about 5 minutes on each machine because I started rehab at 3 weeks post surgery. I went 3 times a week, and did 48 sessions. The nurses checked by BP, pulse, and oxygenation pre-excercise, during, and after exercise. I was also hooked up to an EKG during the whole event. Rehab was very helpful in regaining my confidence about Pushing myself in recovery.
Susan Lynn My experience was similar to Marie's. The staff would increase time and resistance as my blood pres... Read more
Susan Lynn My experience was similar to Marie's. The staff would increase time and resistance as my blood pressure and heart rate indicated that more challenge was necessary. I loved the workout and the people. I stayed in their advanced class for two years.
Deena Z Ditto, Marie and Susan. Also did some light weights, but it was two months after surgery, so able to ... Read more
Deena Z Ditto, Marie and Susan. Also did some light weights, but it was two months after surgery, so able to do such then.
Valerie Allen Similar. I did a total of 28 sessions out of a possible 36 since they gave me clearance and we planne ... Read more
Valerie Allen Similar. I did a total of 28 sessions out of a possible 36 since they gave me clearance and we planned a short end-of-summer vacation. The staff was absolutely wonderful and so helpful. They would increase the time/incline based on how difficult I rated an activity each time and gave me detailed printouts to share with the cardiologist.
Your posts describe my experience with the medical system, perhaps it's an Oregon thing. My experien ... Read more
Your posts describe my experience with the medical system, perhaps it's an Oregon thing. My experience at OHSU was laughable, and Providence has been only a very marginal improvement.
Betsy Davenport So, it's an exercise program. Is there anything special about it that I can't do myself? I'm a former ... Read more
Betsy Davenport So, it's an exercise program. Is there anything special about it that I can't do myself? I'm a former runner and used free weights for years, so I know how.
Betsy Davenport Alexander I would like to hear about it. IDK to send PMs here but maybe there's a way. Or say the wor ... Read more
Betsy Davenport Alexander I would like to hear about it. IDK to send PMs here but maybe there's a way. Or say the word and I'll give you my email address.
Rita Savelis Love your post Betsy and your attitude. I can completely relate to being routinely put on a "cardiac ... Read more
Rita Savelis Love your post Betsy and your attitude. I can completely relate to being routinely put on a "cardiac diet" even though I am skinny, with low blood pressure and have no plaque in any arteries. Also agree that specialists do not see the whole picture. That said I am also indulgent with doctors and medical staff who are overworked and forced to deal with a lot that is out of their control. I've had 3 cancers as well as valve disease so I see way too many specialists. As far as cardiac rehab goes I imagine it is different everywhere and depends on your insurance. I found that cardiac rehab was helpful on an emotional level - seeing other patients who had had heart surgery. Some patients like to feel protected as they begin to exercice again with medical staff around. I was in a live-in rehab for 3 weeks - since I was way too exhausted to go back and forth. Exercices were simple and there were also sessions on one's new life as a cardiac patient (I sat out the session on healthy heart food!). There was a session where I got to gripe about all that went wrong or I wasn't told about. Would have loved a co-patient like you around!! There is nothing special about the exercices and a former runner like you or anyone who is used to exercising does not need a cardiac rehab program. It serves a psychological need for many who may have fears or need comraderie or just some attention for a few weeks/months after surgery since doctors won't give you that attention. The exercice part was not important to me as I had no fears about walking, running, climbing stairs, but I did like the psychological component. There were definitely some there (men!) who were not used to exercising at all. Take care Betsy.
Betsy Davenport Rita. You always say the best things. I agree that individuals in the medical system should not bear the burden of the rancor I hold for the system in which they work. But you know, someone designs these systems that don't meet our needs. I would like that job. I would do it while I recuperate and have fun in the process.
As for rehab, I'll give it a whirl. I'm eager for a bit of reassurance and guidelines on reconditioning. One thing that's been hard about all this for me is that it's happening in the context of aging, and I don't know which is which: am I tired because I'm, you know, aging? Or because my heart can't get the blood/oxygen/nutrients out to my body and brain the way it should?
So some perspective from experts would be useful. I admit I am not expecting much because a) I'm an introvert and not a joiner, and b) I can't stand happy yipping from anyone cheering me on. I have a really good internal satisfaction meter and do not get anything out of praise and such. In fact, it irritates me because of its intrusiveness, and I am not interested in being evaluated, even positively, by others. I can do that myself and I'm not in need of a boost to my self esteem. (Whoever thought up that idea should be thrown in a river.) ... Read more
Betsy Davenport Rita. You always say the best things. I agree that individuals in the medical system should not bear the burden of the rancor I hold for the system in which they work. But you know, someone designs these systems that don't meet our needs. I would like that job. I would do it while I recuperate and have fun in the process.
As for rehab, I'll give it a whirl. I'm eager for a bit of reassurance and guidelines on reconditioning. One thing that's been hard about all this for me is that it's happening in the context of aging, and I don't know which is which: am I tired because I'm, you know, aging? Or because my heart can't get the blood/oxygen/nutrients out to my body and brain the way it should?
So some perspective from experts would be useful. I admit I am not expecting much because a) I'm an introvert and not a joiner, and b) I can't stand happy yipping from anyone cheering me on. I have a really good internal satisfaction meter and do not get anything out of praise and such. In fact, it irritates me because of its intrusiveness, and I am not interested in being evaluated, even positively, by others. I can do that myself and I'm not in need of a boost to my self esteem. (Whoever thought up that idea should be thrown in a river.)
So, we'll see.
Marie Myers My cardiologist knew I was a very active person, and told me if cardiac rehab was “too lame”, I ... Read more
Marie Myers My cardiologist knew I was a very active person, and told me if cardiac rehab was “too lame”, I didn’t have to do it. I did enjoy it though, and could clearly see my progress through the sessions. If you have been active, I am sure you can do your own rehab. I never did have any problems with my vital signs or EKG rhythm throughout rehab, but occasionally people do have issues that come up. In that case, monitoring is great…
Rita Savelis Every time I read you Betsy, I like you more and more! The aging question makes me wonder as well. ... Read more
Rita Savelis Every time I read you Betsy, I like you more and more! The aging question makes me wonder as well. Is this old age? Or did heart surgery affect me? Probably a heavy dose of both. I do think (some of) your energy will come back when your heart has gotten over its need to rest. Post surgery is not instantaneous boundless energy as some say.
Valerie Allen One difference would be they monitor your heart rhythm and bp and heart rate the whole time. A new pa ... Read more
Valerie Allen One difference would be they monitor your heart rhythm and bp and heart rate the whole time. A new patient came in and began on the treadmill and they immediately pulled her off as her monitor said she was in afib unbeknownst to her.She then made a cardiology appt. It also calculates your mets and you can see progress from when you start to when you finish. That was helpful to me. I, like you, still wonder how much is aging vs de conditioning. The quantification at rehab gives you some guideposts.
Judith O'Driscoll Betsy - Thanks so much for being feisty and honest about your experience. I did not have a great exp ... Read more
Judith O'Driscoll Betsy - Thanks so much for being feisty and honest about your experience. I did not have a great experience with one of the premier MVR teams in the country but sometimes it seems that everyone else did. I am also interested in the effect of aging on post surgical activity. It's been a year but my oxygen percentage plummets when I try to run. Has anyone else had that experience?
Maggie Ma I’m currently in cardiac rehab ( completed 12 sessions out of 36 so far). I was very active pre-sur ... Read more
Maggie Ma I’m currently in cardiac rehab ( completed 12 sessions out of 36 so far). I was very active pre-surgery. I was back to my daily orange theory classes one month post surgery. Currently I do rehab three days per week at 8am and then my orange theory class at 7pm after my work.
At beginning. I was wondering whether I need 36 sessions. Now I decided to finish all of them. You can choose your intensity. If you’re active, you can do more intensive exercise there vs other people at the same class. For my case I normally run between 5-7.5mpr for 18 minutes at treadmill, then water rowing for 15 minutes. You can also choose more difficult level for strength as well. They monitor your BP and HR, so you feel safe for trying next levels. In addition, they also provide training on nutrition/health lifestyle while we are doing exercise
To me that’s free opportunity of getting more exercise with support resources and people with similar experiences. I would strongly recommend utilizing the rehab program even you are active
Suzette Schear Betsy the Pt assessment came to my boyfriends house once saw me moving around and said you don’t ne ... Read more
Suzette Schear Betsy the Pt assessment came to my boyfriends house once saw me moving around and said you don’t need it. I asked what to they do he told me they make you walk. So he said to skip it you don’t need it. Just walk at your own pace. Whether or not that was good advice I still don’t know. I have no idea where I should be so I think s quick assement was wrong. Would have liked to have feedback on what was to be expected. The vertigo or spinning in my head I always walked with someone and limited doing things cause I was afraid. I read what to expect but wasn’t in the paperwork fog head , change in appetite and definitely depression or partial pstd. Everything I pointed out seemed to be normal but it wasn’t I expected. I spoke to my cardio I really believe they don’t know much about the effects of ohs. They stop my heart pushed blood through then started it up. I read it could be from your head being in the same position for the amount of hours as your surgery. It could be the machine pushing blood through I looked it all up.I think there is such a lack of knowledge in after care on certain things cause they just don’t know. There’s nothing wrong with talking about it. I know this is long hope it offers some comfort
Mirza Baig I am so glad that your TAVR procedure went well- Mine is just around the corner, on August 27 at Kais ... Read more
Mirza Baig I am so glad that your TAVR procedure went well- Mine is just around the corner, on August 27 at Kaiser hospital- little nervous ==
I've been home 24 hours. My TAVR went just fine, and now when I go upstairs I am not breathless. My most keen feeling at first was relief: no stroke, no bleeding, ...Read more
I've been home 24 hours. My TAVR went just fine, and now when I go upstairs I am not breathless. My most keen feeling at first was relief: no stroke, no bleeding, not dead. Now, I'm tired. Like, bone-deep fatigue. My doc said, of course. We call it "minimally invasive" but the body doesn't experience it that way.
I've slept a lot today and I don't care that my discharge instructions say not to stay in bed too much. I'm not in bed now; I'm slouching in a chair.
Sue Maize Welcome home Betsy! So glad to hear your surgery went well and you’re now in recovery! Fatigue is p ... Read more
Sue Maize Welcome home Betsy! So glad to hear your surgery went well and you’re now in recovery! Fatigue is part of the deal—just rest as you need to and walk when you can in short spurts. It gets better I promise. ❤️🩹🙏🏻
Doug Fults Great news, Betsy! Hoping I can follow in your footsteps :)
Rita Savelis Take it easy Betsy! Sleep is okay, the sofa is okay. Your body has been through a lot (that you can n ... Read more
Rita Savelis Take it easy Betsy! Sleep is okay, the sofa is okay. Your body has been through a lot (that you can not see). If you had a broken leg you'd be aware of the time it takes to heal. With a heart, you can't see it. Every organ in your body is reacting to the trauma of heart surgery. Sleep is essential for healing. The words I would use to describe post heart surgery are: exhaustion and discomfort. Bone-deep fatigue, as you say. I've had many surgeries and heart surgery was the only one where I felt this bone-deep fatigue. Your energy will return. Just not tomorrow.
Grace Mason Welcome home ❤️🩹💖 Napping is good for the mind and body. Take them when you need them ... Read more
Grace Mason Welcome home ❤️🩹💖 Napping is good for the mind and body. Take them when you need them, especially now in recovery.
Susan Lynn Sleep whenever you need to. I remember that exhaustion, well. You'll build up your endurance when ... Read more
Susan Lynn Sleep whenever you need to. I remember that exhaustion, well. You'll build up your endurance when your body is ready. Congrats on your successful procedure!
Shawna D. I’ve been thinking of you all day during your surgery. Glad you’re home and doing well!!
Betsy Davenport Thank you to everybody who has posted to me. I get mixed up replying to replies and can't tell who I' ... Read more
Betsy Davenport Thank you to everybody who has posted to me. I get mixed up replying to replies and can't tell who I'm speaking to. So as a general statement: Thank you all! It's a comfort to hear from fellow travelers.
Robert Miller This sounds pretty normal. If you stay in bed extended periods of time, do make sure that you get up ... Read more
Robert Miller This sounds pretty normal. If you stay in bed extended periods of time, do make sure that you get up every so often. It's the same drill as in the hospital. You don't have to go for long walks. Just get up for like 5 minutes every so often. You might also want to elevate your legs a bit. Also check out the learning center. Especially the "The Recovery" section. https://www.heart-valve-surgery.com/learning-center.php
So this is the filthy cat I'm not allowed to sleep with the night before my TAVR. She's not going to take it lightly, and I'll hear about it from her for days ...Read more
So this is the filthy cat I'm not allowed to sleep with the night before my TAVR. She's not going to take it lightly, and I'll hear about it from her for days afterward.
Marie Myers I remember sleeping in the guest bedroom because my little dog couldn’t sleep with me. So my filth ... Read more
Marie Myers I remember sleeping in the guest bedroom because my little dog couldn’t sleep with me. So my filthy dog and filthy husband kept each other company the night before my surgery..I actually had a better night sleep without those two!! Your cat is beautiful!
Kathy Pate You'd probably have been better sleeping with your precious cat....I know...we have stress when they' ... Read more
Kathy Pate You'd probably have been better sleeping with your precious cat....I know...we have stress when they're stressed when they don't understand why Mama won't let me on the bed. Same thing here with our dog!! I'm more concerned about her than me.😎❤️. My daughter says it will teach her some humbleness! We both laughed!
Counting down. Today is Monday and my TAVR is Wednesday.
A question I'd like to have an answer to is this: why start so early?
With the special bathing before bed and again in the morning (and sleeping in not my own room because I'm not supposed to let my cat sleep on the bed), plus leaving the house by 5:45 am, there's no way on earth I will be anything but exhausted on top of normal anxiety when I arrive at the hospital and put myself into their care. Surely someone has studied the effect of this on outcomes?
Barbara deLoache Hi Betsy. This is just the way it is when having surgery or certain procedures. I was an OR nurse fo ... Read more
Barbara deLoache Hi Betsy. This is just the way it is when having surgery or certain procedures. I was an OR nurse for over 40 years. I got up at 5:30 every morning to be at the hospital & ready for my first patient at 7 AM. When I had my open heart valve replacement I had to BE at the hospital by 5:30!! You will be the first patient of the day apparently & that is a good thing. Just follow the hospital rules and you will be fine. Remember .. no eating or drinking anything after midnight.
Suzette Schear Hi Betsy They gave me this special stuff to wash with. It’s like prep the skin to be sterile. You ... Read more
Suzette Schear Hi Betsy They gave me this special stuff to wash with. It’s like prep the skin to be sterile. Your fur baby will understand. . I’m not sure how your hospital works but once they checked my vitals talked to me about what to expect the anesthesiologist spoke with me and the doctor and when I was laying there I finally said you guys are all making me nervous can you give me something in my Iv to calm me down they did but I was so exhausted I stopped being anxious. Then they put something in my iv and I was okay. Sorry so long hope this helps. I do understand and hope this helps. Sincerely suzette
Betsy Davenport Suzette, that's funny, kind of. There will be a lot of waiting, as the procedure isn't scheduled til ... Read more
Betsy Davenport Suzette, that's funny, kind of. There will be a lot of waiting, as the procedure isn't scheduled til 10:30. I'm going to expect my daughter and my sister to keep me entertained. They'll be bored that day for sure.
Suzette Schear Betsy My sister is a nurse. I love that she was there but she was over talking me to doctors and sta ... Read more
Suzette Schear Betsy My sister is a nurse. I love that she was there but she was over talking me to doctors and started driving me nuts you know how they can be, Better off being there so you don’t eat drink and stay sanitized lol Sounds like you are going to be in good company and have a great support system. I’ll be thinking about you and saying prayers. It’s wonderful to get your breathing back.
Marie Myers The special bathing, clean sheets, and for me nasal antibiotic ointment were all precautions to decre ... Read more
Marie Myers The special bathing, clean sheets, and for me nasal antibiotic ointment were all precautions to decrease the load of bacteria on your skin. Better safe than sorry!
J Alexander Lassally Cardiac Surgery is difficult 101. This is how it works. Better to be an early case than late. Everyo ... Read more
J Alexander Lassally Cardiac Surgery is difficult 101. This is how it works. Better to be an early case than late. Everyone feels like garbage the morning of surgery. Best to just warrior up and find your inner strength.
I'm too tired to write all the details, but the preoperative appointment was aggravating, draining, and one day I'll write more. I'm satisfied with my doctor, ...Read more
I'm too tired to write all the details, but the preoperative appointment was aggravating, draining, and one day I'll write more. I'm satisfied with my doctor, but the system in which she is supposed to do her job is sorely lacking when it comes to almost every part of the preparation which has now been going on since April. I'm so tired of it and tired from it that now I just want the whole thing to be over.
The 2-weeks-til-TAVR day went by without my noticing until evening. That was Wednesday. Today is Friday. Twelve days to go. I'm not eager for it, but I am tired ...Read more
The 2-weeks-til-TAVR day went by without my noticing until evening. That was Wednesday. Today is Friday. Twelve days to go. I'm not eager for it, but I am tired of being tired and out of breath and not doing anything. So I could say, in 2 weeks I'll be home again!
In other news, the day I was feeling so lousy, I went with my daughter for a walk - a birding walk - at a wetlands area close by. It was evening, and the day ...Read more
In other news, the day I was feeling so lousy, I went with my daughter for a walk - a birding walk - at a wetlands area close by. It was evening, and the day had cooled, the terrain was flat, and we saw lots of birds. It felt good to be somewhere other than home, and so many birds!
Sue Maize I love birds too Betsy—I’ve put out 3 new feeders this summer and find their presence so special, ... Read more
Sue Maize I love birds too Betsy—I’ve put out 3 new feeders this summer and find their presence so special, even healing. Being in nature is very life-giving. 💕
Rose Madura Birds are very interesting to watch. Glad you are feeling better emotionally. 👍
Ana Brusso I have a bird that comes every day and wets his body in our pool but doesn’t go in the pool, he kno ... Read more
Ana Brusso I have a bird that comes every day and wets his body in our pool but doesn’t go in the pool, he knows better. In the front yard every afternoon we get a whole bunch of small birds that eats who knows what and then go away. I love to watch them. Birds are very special.
Today I just don't feel like doing anything. I put in a load of laundry and want to sit down. I'm more grateful than ever there's a cure for this, and it's ...Read more
Today I just don't feel like doing anything. I put in a load of laundry and want to sit down. I'm more grateful than ever there's a cure for this, and it's only 3 weeks away now, for me. I have so much to do before then, and my normal procrastination is more troublesome because I suddenly can do so much less than in the past. Oh well, if the house isn't clean, so be it. My sister is coming and she'll just have to deal. Not that she wouldn't, but I'm not really up to more than the bare minimum anymore.
Rita Savelis Your house does not have to be clean. There will be time in the future for clean houses. Take it slow ... Read more
Rita Savelis Your house does not have to be clean. There will be time in the future for clean houses. Take it slow. I don't remember cleaning my house before surgery or being organised. The bare minimum is enough for now. Take care Betsy.
Susan Lynn Betsy - No worries. The dust will still be there when you feel like getting rid of it. Been there... Read more
Susan Lynn Betsy - No worries. The dust will still be there when you feel like getting rid of it. Been there! Just relax until game day. There's nothing more important than your peace of mind.
Suzette Schear Hi Betsy it’s okay and very overwhelming approaching surgery. I was determined to get things in or ... Read more
Suzette Schear Hi Betsy it’s okay and very overwhelming approaching surgery. I was determined to get things in order. It’s okay just sit outside and enjoy your horse and the beauty of where you live. If you do little chores in between make sure you don’t over due it. The hardest part is learning how to just let go and trust in the process and just take care of you. Sending a big hug.
Valerie Allen Just do what you feel like. It will all work out!
meg oconnell If you can afford it, hire someone to come in and help before surgery. Even if it is a teenager - th ... Read more
meg oconnell If you can afford it, hire someone to come in and help before surgery. Even if it is a teenager - they can help with chores and cleaning. It is so helpful to come home to a clean house - it will help you mentally because you will be focused on other things.
Betsy Davenport You all are so nice. And you don't know what a terrible housekeeper I am in the best of times, LOL. I ... Read more
Betsy Davenport You all are so nice. And you don't know what a terrible housekeeper I am in the best of times, LOL. I've always been able to rely on a last minute scramble to get ready for things, but now I don't have the energy for that "strategy." My slovenliness is catching up with me.
Sue Maize Betsy, I could have written this exact post a couple of months ago—I had some friends come and help ... Read more
Sue Maize Betsy, I could have written this exact post a couple of months ago—I had some friends come and help me clean my house beforehand…it definitely was nice to come home to, but don’t stress about things like that. Get lots of rest and give yourself lots of grace. Your health is all that matters really—the rest will take care of itself. God bless you with peace and rest. 🙏🏻❤️🩹
Betsy Davenport The mower died in late May. The raggedy look of things is attributable to that. The brown color of th ... Read more
Betsy Davenport The mower died in late May. The raggedy look of things is attributable to that. The brown color of the grass is due to the now routine lack of rain.
I have a question about people traveling to distant places for surgery. What kind of insurance covers that? And, what do you do for support from family or friends ...Read more
I have a question about people traveling to distant places for surgery. What kind of insurance covers that? And, what do you do for support from family or friends while there? Take them with you?
Valerie Allen I have Medicare and BC/BS which paid the hospital/surgeon costs as usual. We paid out of pocket for a ... Read more
Valerie Allen I have Medicare and BC/BS which paid the hospital/surgeon costs as usual. We paid out of pocket for air travel, hotel, transport etc. To my knowledge the only way to get reimbursed for that would be on taxes if you hit a certain percent of your income. My husband was there, and my 2 grown children were there approximately half the time. Hope this helps!
Suelynn Hanegraaf Hi Betsy! My first AVR was done at Cleveland Clinic (6-7 hours from my home in the Chicago area). My ... Read more
Suelynn Hanegraaf Hi Betsy! My first AVR was done at Cleveland Clinic (6-7 hours from my home in the Chicago area). My husband accompanied me and stayed at an extended stay hotel nearby. CC required that I stay in the Cleveland area for a couple of weeks post-hospitalization. Because - at the time - one of our kids was in college and the other had just started a new FT job, I decided that they shouldn’t come. Like Valerie said, the hotel and meals was on “us”. We were able to drive - so no air travel expenses. The cost was well worth it in our view to be at the #1 heart hospital.
Allen Carkner Often PPO insurance plans have more flexibility and have many “in-network” hospitals and provider ... Read more
Allen Carkner Often PPO insurance plans have more flexibility and have many “in-network” hospitals and providers. Though these plans and medical expenses in general are exceedingly more expensive than HMO coverage. You sometimes even have out of network coverage with far higher deductibles and out of pocket maxes where you can go about anywhere for covered care. HMO plans you may have to have surgery within your insurance’s own group of providers for it to be covered. There are sometimes exceptions if there is something special that could be done outside the HMO that can’t be done with current HMO providers if you can get it approved. Hope this helps. I’m no insurance expert. Medicare is a whole beast of in own.
J Alexander Lassally Hi - I'm not on Medicare - but a BCBS policy. I paid for every part of my travel /recovery time out o ... Read more
J Alexander Lassally Hi - I'm not on Medicare - but a BCBS policy. I paid for every part of my travel /recovery time out of pocket. Even for Medicare, there is no travel covered. The beauty, though, for Medicare is that you should be eligible for the lion share of the procedure at any US hospital even if supplement does not cover. Do check the supplement overlap. Good luck.
Betsy Davenport Thanks, everybody. I'm having my procedure nearby at one of the major heart programs in the state, an ... Read more
Betsy Davenport Thanks, everybody. I'm having my procedure nearby at one of the major heart programs in the state, and I'm not considering moving it. I really was curious about how people go about it though.
NEW date: August 14, 2023 Start time is 6:30 am with echocardiogram. Blood work the week before.
It's a month away and my sister wants to know if ...Read more
NEW date: August 14, 2023 Start time is 6:30 am with echocardiogram. Blood work the week before.
It's a month away and my sister wants to know if she can help me with new sheets and what I'm going to wear, LOL. I am not even thinking about that. Today I met with the lawyer to get my "mortality papers" finished up. I'm discussing getting folks to come take care of the outside/horse chores so my daughter doesn't have to while I'm in the hospital. And figuring out what she'll need for emotional support so she's free to be MY emotional support.
I'm noticing that I seem to be past the hand-wringing and feel much more matter-of-fact about what's to come, which is something of a relief. It occurred to me today that I can look forward to feeling good enough to want to do things that I've quit doing due to low energy and the disinterest that prompts.
Dan Fouratt Glad you made it to the matter of fact stage, it will make the waiting easier.
Anna Ma Is the new date your surgery date, Betsy? Like Dan said once you face it and get over the initial ove ... Read more
Anna Ma Is the new date your surgery date, Betsy? Like Dan said once you face it and get over the initial overwhelming stage, you will have more peace. You will get through this, I will be praying for you🙏
Marie Myers It took me a while to get through the overwhelm phase. Glad you sped through it!
Betsy Davenport Marie, I have been preoccupied with dread and feeling like all I do is read, keep appointments, and f ... Read more
Betsy Davenport Marie, I have been preoccupied with dread and feeling like all I do is read, keep appointments, and feel shocked and discouraged since mid April. Now I'm in preparation mode, somewhat daunted by so much to do and so little energy with which to do it. But time marches on, and me with it. In 5 weeks it'll be done.
Marie Myers If you are like me, you will find that the whole experience was not as “bad” as my worrying mind ... Read more
Marie Myers If you are like me, you will find that the whole experience was not as “bad” as my worrying mind would have me believe.
Sue Maize Betsy, I’d say you’re right on track—everything you describe is so familiar, and I will say, th ... Read more
Sue Maize Betsy, I’d say you’re right on track—everything you describe is so familiar, and I will say, the time before surgery is exponentially harder than after. I, too, had to get my Will updated before hand and had it all signed and finalized literally days before my surgery. Try not to give in to the dread and allow yourself to rest when you need to—our hearts are not healthy when we head into surgery and we need to really take care of ourselves. Let others do for you what they can…most people want to help and I’ve found that being weak and vulnerable and having to ask for help has actually deepened my relationships with others profoundly. You also have all of us and we are all here to support you and cheer you on! God bless! ❤️🩹🙏🏻
Betsy Davenport Sue, I'm about at Y that point, where what I consider the minimum feels like too much. Thank you for ... Read more
Betsy Davenport Sue, I'm about at Y that point, where what I consider the minimum feels like too much. Thank you for your kind Ave wise words. I feel vulnerable in a way I never have, before.
I procrastinated half a day in calling, because it felt like something final was happening.
I've gotten settled regarding this vs. OHS. I did some more reading of specific studies that pertain to my situation. And I listened to a talk by the head of Cleveland Clinic that really underscored the nature of the decision. I concluded that no one else is in a better position to decide than I am. And I'm confident I understand sufficiently the variables and the relative merits of both.
So, with an acceptable level of nervousness, I made the decision and scheduled the procedure. Now I'm working out the calendar for my sister to come, and after that my daughter's friend, both from the bay area. This is primarily to support my daughter, who is my primary support. Part of me looks forward to the family and friends showing up aspect. My family is small and my friend group small, too. Being an introvert can make some things harder.
I've been writing a lot; this is just a bit of it. More will show up here in due time.
Dan Fouratt Betsy, Great to hear you have a plan! Good luck on your journey.
Susan Lynn Betsy - There's always a bit of apprehension, but you'll have time to get used to the idea by the ti... Read more
Susan Lynn Betsy - There's always a bit of apprehension, but you'll have time to get used to the idea by the time game day arrives. You'll be ready to put it behind you and enjoy the company of your sister. Kudos to you for booking your procedure! One step at a time. One day at a time. You can do it!
Rose Madura Congratulations. You've made your decision that only you can make. Don't look. Ack. It's the right on ... Read more
Rose Madura Congratulations. You've made your decision that only you can make. Don't look. Ack. It's the right one for you. Believe that! 👍
Betsy Davenport Thank you all. One small glitch in scheduling because I jumped the gun a little regarding date, becau ... Read more
Betsy Davenport Thank you all. One small glitch in scheduling because I jumped the gun a little regarding date, because I'd meant to make it 2 days later to maximize the options for support-and-backup. I believe I can amend the plan in the morning.
No sleep so far all night. This used to happen every few months without explanation. Now it's at least weekly. I have a lot on my mind. The cat races around ...Read more
No sleep so far all night. This used to happen every few months without explanation. Now it's at least weekly. I have a lot on my mind. The cat races around making a Rackers, but I think she's acting out my unrest. I'll be glad when this valve job is done and I can resume normal living.
Betsy Davenport No date yet. I believe I'll have that nailed down today. It will either be at the end of this month, ... Read more
Betsy Davenport No date yet. I believe I'll have that nailed down today. It will either be at the end of this month, or mid-August. I'm getting people lined up to come for support to my daughter and to take care of the horses while I'm unable to.
Marie Myers The preop waiting time was a very nerve-wracking time for me…
Susan Lynn I agree with Marie! Waiting for surgery is the worst. Looking forward to putting it behind you, i... Read more
Susan Lynn I agree with Marie! Waiting for surgery is the worst. Looking forward to putting it behind you, is a sign you're ready to get it done! Keep looking ahead - recovery is just around the corner!
Dan Fouratt Betsy, as other said waiting is the worse part. I not sure how others handled the period but I focus ... Read more
Dan Fouratt Betsy, as other said waiting is the worse part. I not sure how others handled the period but I focused on anything physical I could do to get ready for the event and did my best not to think about it. Regardless of how you get to surgery, recovery is much better.
J Alexander Lassally Hey sleepless nights are part of the pre surgery journey ! I wish you luck in picking time and place. ... Read more
J Alexander Lassally Hey sleepless nights are part of the pre surgery journey ! I wish you luck in picking time and place. Are you settled in that?
Sue Maize My family doctor just recommended this website to me Betsy—some tips and tricks you might try pre-s ... Read more
Sue Maize My family doctor just recommended this website to me Betsy—some tips and tricks you might try pre-surgery?
Sue Maize If it doesn’t improve, maybe consider taking something prescribed. I was given 5mg of Zopiclone in ... Read more
Sue Maize If it doesn’t improve, maybe consider taking something prescribed. I was given 5mg of Zopiclone in the hospital and about 7 tablets when I was discharged. I use it very sparingly (every 4-5 days) and it has helped me get back to a more normal sleep schedule.
On Wed. I met with someone on the valve team to get my questions answered about TAVR at my age. The PA I spoke with was only somewhat reassuring about the possibility ...Read more
On Wed. I met with someone on the valve team to get my questions answered about TAVR at my age. The PA I spoke with was only somewhat reassuring about the possibility of valve-in-valve replacement if the new one fails, but it's not something anyone can judge with 100% certainty. There are so many variables. I find it all very nerve-wracking.
I've concluded that there isn't, in my case, a medically preferable way to replace the valve. I just wish they would say that so I don't have to sort it myself based on what they do and don't say. I'm disappointed that it's so hard to get plain talk. I have the feeling they are trying not to upset the patient, or themselves. Maybe the TAVR is okay for me because they don't expect me to live past its soundness. I doubt they would say that, and I'm kicking myself for not asking directly. But I certainly did, and do, talk in such terms, indicating I'm able to handle the subject.
Generally, I feel ill-equipped to make a decision that is apparently mine to make. But it's made, and while I'd expected to leave the appointment with a date, I realized I can't until I have consulted with family and friends who will interrupt their lives to come and provide support to my daughter.
Rose Madura Hi Betsy, I'm sorry you have this dilemma. Have you thought about getting a second opinion?
Rita Savelis I hear you. Doctors don't always share bad news or their ignorance about certain things. But there is ... Read more
Rita Savelis I hear you. Doctors don't always share bad news or their ignorance about certain things. But there is really not enough data about valve-in-valve replacements. Not every patient wants the information you do. I do and have always had to push and ask questions in order to get doctors to tell me the hard stuff or to admit when they don't know. We can't really know what the future will bring but have to make decisions anyway. I hear you. It's all hard. I'm sorry that you have to go through this.
Betsy Davenport Rose, that's not a bad idea, but the recommendation for TAVR was made by the team, with at least 2, m ... Read more
Betsy Davenport Rose, that's not a bad idea, but the recommendation for TAVR was made by the team, with at least 2, maybe 3, MDs present. In other words, the summary of their case conference could have indicated differing opinions, or could have said both SAVR and TAVR are good choices. But it said we want to do TAVR. I've been glad of that, yet now I'm wondering if when early on I said, "I don't want OHS," they took that to mean i was refusing it, which i wasn't. I was voicng my dread and displeasure. It's so fraught to make such important decisions with people you don't even know. I'm going to think about your suggestion, and maybe I need to get more clarification on how they arrived at their recommendation.
Richard Munson The key word is the team. They are all on the same team.
Valerie Allen A second opinion would be good, if only to ease your mind. Another surgeon in another hospital may ha ... Read more
Valerie Allen A second opinion would be good, if only to ease your mind. Another surgeon in another hospital may have a different perspective, or confirm the info. You can do this remotely. I would choose a well known hospital that does many of these surgeries. See upper right drop down for a surgeon finder.
J Alexander Lassally It is daunting ! But be your own judge and jury - and do seek second and third opinions. As I say, ca ... Read more
J Alexander Lassally It is daunting ! But be your own judge and jury - and do seek second and third opinions. As I say, cardiologists and cardiac surgeons only sell you what they know. So keep pressing. If you are on Medicare, you have room to go to the hospital that feels right for you. It is not easy ! Best of luck.
Betsy Davenport Yes I'm looking into how to obtain a 2nd opinion outside of my medical plan. It is frustrating there ... Read more
Betsy Davenport Yes I'm looking into how to obtain a 2nd opinion outside of my medical plan. It is frustrating there is so little information where I can find it on the relevant websites. Monday I will call.
Rose Madura Betsy, here's a list of surgeons in Oregon. You could see who is in your plan and go from there
Betsy Davenport To me this is funny because I never anymore get dressed up. I keep a pair of new dark brown (that's m ... Read more
Betsy Davenport To me this is funny because I never anymore get dressed up. I keep a pair of new dark brown (that's my version of black) jeans to break out when I have to be presentable for a medical appointment, or - hmm, what else? Someone's house for dinner I guess. In 2022 I put on a dress once, and then this in 2023. I'm not planning on a long hospital stay, but I am nonetheless considering getting a new pair of pajamas for the occasion of my valve job.
Last week I had an angiogram. It went remarkably well and I was less anxious than I'd anticipated. The bruising was unexpected, wow. And the compression bandage ...Read more
Last week I had an angiogram. It went remarkably well and I was less anxious than I'd anticipated. The bruising was unexpected, wow. And the compression bandage took my skin with it when I removed it - ow!
The good news is, my arteries and blood vessels are nicely clear of significant plaque, so it's being recommended I get my new valve via TAVR. The valve they intend to use is the Edwards Resilia, which is designed with anti calcification properties, so maybe it will outlast my need for it.
I have some concerns about that, and other questions, so will meet with the doc tomorrow for that. I'm assuming I'll be given a date, then. Holy moley, it's going to happen.
I'm so happy about the state of my clear arteries etc. I've been a careful eater since my mother fed us from our massive garden, but I've always eaten bacon, LOL. And butter is a daily pleasure. Guess I got away with something after all, ha!
Sue Maize Hey, I was 19 in 1986 and would have been impressed then too Betsy! Definitely wasn’t running (unle ... Read more
Sue Maize Hey, I was 19 in 1986 and would have been impressed then too Betsy! Definitely wasn’t running (unless something was chasing me! 😜)
Betsy Davenport I was 35. I kept running until I became pg at 40. After that it was walking and backpacking and not a ... Read more
Betsy Davenport I was 35. I kept running until I became pg at 40. After that it was walking and backpacking and not a lot of that. I've already issued a challenge to my sister: in a year we'll play pickleball together. She's always been sub-athletic but is fiendish about p-ball. I figure with a new heart valve, I can bear her, LOL.
Sue Maize Good for you! Yes, pickleballers are a pretty dedicated sort! I’ve yet to try it but it’s huge he ... Read more
Sue Maize Good for you! Yes, pickleballers are a pretty dedicated sort! I’ve yet to try it but it’s huge here (I guess everywhere these days). I’m looking forward to some good hikes again with my new and improved ❤️.
Life has resumed its old rhythms, mostly. The only thing ...Read more
Life has resumed its old rhythms, mostly. The only thing different from before last summer's TAVR is that i get breathless with not much exertion. I did cardiac rehab for some months, I'm doing my barn and pasture chores without any trouble. I can clean a couple of horse stalls about like before. But walking up a not-steep incline from barn to house makes me breathless.
I saw my regular cardiologist recently and told him about it. I wondered aloud if it was still being deconditioned after the months of curtailed activity before TAVR. He listened to my heart, listened to my description. He said I am not having heart failure, so deconditioning is most likely. We discussed exercise, and he gave me a written plan for increasing gradually, etc. I have barely looked at it because I don't like walking. I live on a farm on a rural road and I could walk up the road every day, but I am not motivated to do it.
I'd be more likely to use the treadmill in my basement, but it won't start. Who do you call for that? It's huge and heavy, so needs a house call. My husband bought it near where we used to live and they service them, but 25 miles away? I guess it's worth asking.
No one has ever said that I could improve that. I think surgery was also hard on my lungs and this type of exertion (small inclines) will have to be taken slowly.
Wouldn't it be lovely if I were better than pre-surgery?! I admire your ability to do all your farm chores. And I have always appreciated your frank honest posts. Take care.
Not sure about your treadmill. Maybe check yelp. The problem is, that repair sometimes is half the cost of buying a new one.