Adam's Heart Valve Surgery Blog – Page 11

Our online Community is one of the fastest growing sections of HeartValveSurgery.com. It’s a great place where patients, family members and friends can share their experiences, connect and learn from each other.

Thanks to your wonderful feedback, I am happy to share that we just launched several new interactive updates to the Community. Here’s a video to help you learn about the new interactive features. (See the “refreshed” Patient News Feed here.)

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Thanks to all the wonderful patients in our community who entered our Heart Valve Day Patient Giveaway! It was amazing to see that over 1,000 patients entered the fun giveaway.

As for the winner… I am excited to share that Sara, a mitral and tricuspid valve repair patient, from California won the giveaway.
 

Sara Wins Heart Valve Day Patient Giveaway

 
When Sara found out that she won the giveaway, she sent me a note saying, “Thank You! Wow! Cool! I had endocardial cushion defect. So, I had mitral valve and tricuspid valve repairs as part of that. I have two nephews who have had to have heart valve surgery over the last 2 years — in their early 50s. I was able to support them a lot with your website and newsletter content.”

 
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I am excited to announce the launch of the “My Aortic Stenosis Journey Toolkit” for aortic stenosis patients.

Aortic stenosis is a common and dangerous type of heart disease in which the aortic valve is narrowed thereby limiting the flow of blood through the heart and body.  Without treatment, 50% of severe aortic stenosis patients will die just 24 months after the onset of symptoms.

 
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[UPDATE: Unfortunately, we are no longer accepting entries for the “Heart Valve Day Giveaway”. All entries for the giveaway needed to be submitted by 11:59pm PST on February 22, 2022. We are sorry if you did not submit your entry in time. Click here to see which patient won the giveaway.]

Woo-hoo! This Tuesday, February 22, is National Heart Valve Disease Awareness Day.

To celebrate… We’re doing a special “HeartValveSurgery.com Patient Giveaway” for the wonderful members of our community. That’s right. You can enter to win all the goodies shown below.  And, it’s free!

 
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Dear Patients and Friends,

I am excited to share that the HeartValveSurgery.com Facebook page just reached a fantastic milestone.  Our Facebook page now has over 350,000 members around the world!

 
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Did you know that heart disease is the number one killer of women causing 1 in 3 deaths each year?  And, did you know that cardiovascular disease kills more women than all forms of cancer combined and yet only 44% of women recognize that cardiovascular disease is their greatest health threat?

So today, on National Wear Red Day, join me as we unite for the “Go Red for Women” initiative to raise awareness for women’s heart health!

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There is nothing better than hearing from patients about their personal journeys to healthy hearts. For example, I just got a wonderful email from Reed about his successful Ross Procedure with Dr. Vaughn Starnes at Keck Medicine of USC. (As you might recall, Dr. Starnes performed my Ross Procedure over 15 years ago.)

Reed After Ross Procedure with Danny

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I just received a fantastic question about the genetics specific to bicuspid aortic valves (BAV).

In her email, Donna asks, “Adam – I had a BAV and aneurysm replacement surgery 9 and 1/2 years ago. My question after watching the Advances in Aortic Valve & Aneurysm Surgery Webinar is, ‘Which family members could also be at risk?’ I have no knowledge of family members that had this issue.  But, what about my children or grandchildren?”

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[January 21, 2022 Update: Great News! The “Advances in Aortic Valve & Aneurysm Surgery” webinar with Penn Medicine was a wonderful and very interactive session with over 700 patient registrations. You can now watch the webinar video playback at this link.]

I’m excited to announce that our LIVE and FREE patient education events continue this Thursday, January 20 at 6pm EST, with a special webinar, “Advances in Aortic Valve & Aneurysm Surgery”, featuring Penn Medicine Heart and Vascular Center doctors.

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In November… Thanks to your extraordinary support, the patient community at HeartValveSurgery.com sponsored the cardiac surgery of Baby Alfred, a courageous 8-month old boy from Nigeria, who suffered from Tetralogy of Fallot, a life-threatening form of heart valve disease.

Unfortunately, after traveling from Nigeria to Amrita Institute of Medial Sciences and Research Centre in Kerala, India, Alfred’s medical team quickly learned that his condition was much worse than expected.

Alfred Arrives at Amrita Institute in India After Traveling from Nigeria

 
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Dear Patients & Friends

On behalf of Robyn, Ethan and Bodie, I want to wish you and all those around you a safe and happy holidays!

All the best in 2022!!!
Adam

I am happy to share that 15 years ago today HeartValveSurgery.com launched.

So you know… When I posted our first blog on December 17, 2006, I had absolutely no idea what I was doing. We had no plan.  We had no team. No playbook. No nothing. I simply knew that I wanted to help other patients learn from my mistakes.

 
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I am excited to announce that the Jeffrey M. Carlton Heart & Vascular Institute at Hoag Memorial Hospital Presbyterian just became the newest sponsor of HeartValveSurgery.com.

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Dear Patients and Friends,

On Thanksgiving, I am happy to share wonderful news with the HeartValveSurgery.com community!!!

Thanks to your extraordinary support, we just sponsored the life-saving heart surgery of Baby Alfred, a 7-month-old boy from Lagos, Nigeria.  Alfred was born with Tetralogy of Fallot, a dangerous, congenital heart defect that affects blood flow through the heart valves.
 

 
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[Update: Great News! The “Advances in Mitral Valve Surgery” webinar with Dr. Chikwe from Cedars-Sinai Medical Center, and Wendy Spector, a recent mitral valve repair patient, was a wonderful and very interactive session with over 350 patient registrations. You can now watch the webinar video playback at this link.]

I’m excited to announce that our LIVE and FREE patient education events continue this Thursday, November 11 at 6pm EST, with a special webinar, “Advances in Mitral Valve Surgery”.  The featured speakers are Dr. Joanna Chikwe, the Chair of Cardiac Surgery at Cedars-Sinai Medical Center, the #3 ranked heart hospital according to U.S. News & World Report, Wendy Spector, a mitral valve patient, and me.

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A mighty “CONGRATULATIONS!!!” is going out to John Deysher, a heart valve patient from our Community.

John, who had a successful mitral valve repair surgery five years ago, just completed a coast-to-coast bike ride with Tom, his brother.  That’s right. John and Tom rode 2,600 miles across the Southern tier of the United States.  Unbelievable!!!

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I am very excited to announce that UW Medicine Heart Institute just became the newest sponsor of HeartValveSurgery.com.

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It’s one thing to be told you need heart valve surgery.

It’s another thing to be told you need a second heart surgery because your tissue valve replacement is failing ahead of schedule.

That is the exact situation that Sonny Abassi, an attorney from Vienna, Virginia, recently experienced.  According to his cardiologist… Sonny’s aortic valve replacement, which was surgically implanted six years ago, was unfortunately calcified. To mitigate the dangerous risks of aortic stenosis, Sonny needed a reoperation.

Sonny Abassi (Surgical & Transcatheter Aortic Valve Replacement Patient)

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The stories in our Patient Community just get better-and-better!

This time…

Rosemary and Tom Rice, a wonderful couple that has been married for 53 years, just shared their special heart surgery bond with me.

Rosemary & Tom Rice (Aortic Valve Replacement Patients)

 
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Since starting HeartValveSurgery.com in 2006, I’ve been fortunate to speak with thousands of patients about heart valve disease. 

As you might imagine, I have also had the privilege of speaking with thousands of care partners including wives, husbands, sons, daughters, brothers, sisters, aunts, uncles, grandsons and granddaughters.

Grant (Aortic Valve Patient) & Joe Foster

 
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