I just passed 4-weeks since my surgery and everything physical is perfect, at least appearing so from the outside. I'm walking almost every day, provided that ...Read more
I just passed 4-weeks since my surgery and everything physical is perfect, at least appearing so from the outside. I'm walking almost every day, provided that I'm not tired from other activities. When I over-do it -- I get very tired, the only physical clue left that I had a significant surgery -- but I have no pain, and the incisions are almost fully healed. I am eager to start driving and getting out of the house on my own steam. Only thing is that at least every other day I get slammed with depression -- chest-pressing, heart "hurting" depression -- for seemingly no good reason. I am going to start a personal journal regarding when it happens, what preceded it, and how long it lasts. Maybe that will help me beat it. I hope so, because it becomes debilitating. I've heard it sometimes happens with heart surgery patients, but I don't understand why and what I've got to do to beat it. My "normal" life, once resumed, will be stressful (Mom care-taking), but I have plans to make it less so. Also, even though I seem to be doing so well physically, I have signed up for card rehab, because it might help with the depression too. So, does anyone out there have any ideas about this or a similar person experience? What the heck is happening?!!
Terrie Syvertsen Hello Jennifer- Please do yourself a favor Heart Sister; Look up "Cardiac Depression" online or discu ... Read more
Terrie Syvertsen Hello Jennifer- Please do yourself a favor Heart Sister; Look up "Cardiac Depression" online or discuss it with your Cardiologist or just wait a bit as You are going to hear from many Heart Brother's and Sisters who will tell you that this is a very, very common event that takes place after cardiac surgery and it helps to read about the fact it is all too real an event and will back off in time. I have had depression off and on and I am nearing the 9 month period since my surgery. Don't beat yourself up over it as it is nothing you are doing wrong just your body taking a bit of time to sort itself out and talking about it with a friend, family member, when it hits is a good thing. Writing a journal to see when and what preceded it is a good idea as well to see if there is a pattern so you can work on it. Sometimes it also goes with medications we are put on and taken off as the body adjusts. I think that reading about it online is an immediate way of finding answers and hope that you find it lessening soon. I know I have gotten close to several people over the months of my surgery and afterwards who have all experienced it during recovery and expect you might hear from them as well. You take care and I hope your healing time is good for you as you continue!
Steven A Husted yes jennifer i agree with terrie it comes and goes and i think your idea of going to cardio rehab is ... Read more
Steven A Husted yes jennifer i agree with terrie it comes and goes and i think your idea of going to cardio rehab is a good one i know it has helped me to have others to talk to who have been there done that so to speak i mean ohs i will keep you in my prayers
Pat Bluemel Yup. Very real. It's a roller coaster. I am headed to the three month mark and fight every day. Mo ... Read more
Pat Bluemel Yup. Very real. It's a roller coaster. I am headed to the three month mark and fight every day. Move your body, get fresh air, and talk to your doctors about pharmacological intervention if you need to go there. It's not a pride thing, we are all wired differently. Do what you have to to get through. I'm on 5mgs of lexapro a day for anxiety and the blues and have no idea what I do without it.
Robert Osmachenko Yes, Terrie has summed it up well. This is very real and affects each of us differently. I also had ... Read more
Robert Osmachenko Yes, Terrie has summed it up well. This is very real and affects each of us differently. I also had bouts of anger and forgetfulness. It has improved greatly over the 9 months but have to be patient and pray like ever that it will go sooner than later. Eat whole foods, take your cardiac supplements and exercise. Research Bill Clinton's syndrome" and "pump head" syndrome to find out more online.
Bill Cherry (Just my opinions)
Yes, it is real, but it is a fairly complex area that is not well understood. An ... Read more
Bill Cherry (Just my opinions)
Yes, it is real, but it is a fairly complex area that is not well understood. And since each of us is unique and different, the effects are somewhat different in individuals. If you were to ask 30 people to define 'depression' you would probably get 30 different definitions. I read one paper where the author defined 5 general types of depression; some improved with medication, some got worse with medication. So which depression is post heart operation depression?
When the word depression is used, most people think of a mood disorder caused mainly by a chemical imbalance in the brain, usually a deficiency of the neurotransmitter serotonin. What is usually not realized is that less than 10% of the serotonin producing cells are in the brain. The other 90% are out in the body, mainly the digestive tract and are also impacted. The result can be nerve problems (muscles), sensor problems (pain), etc.
How would open heart surgery cause 'depression' or a hypo serotonin condition? One way is stress. I would say that open heart surgery is very stressful. If you want a more detailed description of the body's reaction to stress, I would recommend watching this video:
So, in my opinion, at least do the following:
- healthy cardio diet, hydration
- exercise, cardiac rehab, and then on your own
- good restful sleep
- stress management, positive attitude
While it's clear that stress can make depression worse, it's never been clear why this is. Dr. Owen Wolkowitz, a professor of psychiatry at UCSF, explores th...
Jennifer Bramlett Oh my goodness, each and every one of you has helped me. I will do my best to follow your advice and ... Read more
Jennifer Bramlett Oh my goodness, each and every one of you has helped me. I will do my best to follow your advice and find a way to push through it and come out on the other side. I am having "one of those days" now but am keeping busy around the house and listening to taped David Letterman shows playing in the background. Thank you so very much.
All is still well. Yesterday I had the post-op visit to the surgeon's office. I was interviewed and then examined by the head nurse. She also showed me my ...Read more
All is still well. Yesterday I had the post-op visit to the surgeon's office. I was interviewed and then examined by the head nurse. She also showed me my recent chest x-ray, on which I could see the annulus band used to repair my valve. Wow. The nurse told me that while min invasive may provide a quicker recovery than a sternal, it is typically more painful due to the muscle tissue cut through to get to the heart. I can only say that must not be true in my case, because the tramadol and Tylenol are working very well for managing my pain. One of my friends had a sternal, and she needed much stronger drugs. After my appointment with the surgeon's nurse, she gave us a copy of the surgeon's notes regarding what transpired during surgery. Very interesting -- it included a comment that the phrenic nerve was preserved upon opening the pericardium. Perhaps that explains the low level of pain. In all, I believe my surgeon did a masterly job in repairing my valve. I am grateful, so very very grateful.
Nancy D So glad you are doing so well in your post op journey!! Sounds like you are making all kinds of good ... Read more
Nancy D So glad you are doing so well in your post op journey!! Sounds like you are making all kinds of good progress!! I too had minimally invasive, and was told it was more painful initially, but a faster healing time. Well, I can't say for sure which is more painful as I have never had an OHS midline sternal incision. I have had the luxury of really taking my time getting well but am now looking for work, and getting back on track.
I am sharing your feelings of gratefulness, for sure. So happy it is over and I am getting my life back on track! Good going for you, keep up the good work!
Cheryl Batzing Jennifer, I had "minimally invasive" mitral valve repair Dec. 16, and I also had a follow up chest x- ... Read more
Cheryl Batzing Jennifer, I had "minimally invasive" mitral valve repair Dec. 16, and I also had a follow up chest x-ray and got to see the "ring" that had repaired my valve. It was bizarre. I also got my "card" in the mail to give me the ID # of my valve ring. That freaked me out! The nurses told me at the hospital that "minimally invasive" surgery is more painful up front (which I experienced), but the recovery is quicker (which I've also experienced...at 4 months post op). HOWEVER, no one told me the nerves/muscles they cut through on the right side are numb for a long time. They are starting to "wake up" and sometimes it is not fun. Not unbearable at all...and I'm a wimp. It does tell me, "hey you had heart surgery!" So glad you are doing well and will pray for your continued healing and recovery.
Nancy D I have to agree with Cheryl about the numbness and nerves regenerating. My right arm pit is no longer ... Read more
Nancy D I have to agree with Cheryl about the numbness and nerves regenerating. My right arm pit is no longer numb- made shaving interesting.....but do also have some soreness as the nerves find their new pathways. Nerves take their own sweet time, so I am trying to be patient. LOL It isn't unbearable, just a wee reminder that some one was in there and I did indeed have heart surgery. It all takes time.....be patient with yourself, but you sound like you are off to a great start!!
I am home already from my MVR surgery. I feel like the surgery was a miracle. It went well. Thanks to all and hope and faith to those undergoing surgery today ...Read more
I am home already from my MVR surgery. I feel like the surgery was a miracle. It went well. Thanks to all and hope and faith to those undergoing surgery today and next week.
Barry Van Gemert Wow! Minimally invasive surgery does make a big difference.
Gerald Schaffer Happy things went well. I hope the rest of your recovery goes well too.
Tim Goff Glad to hear you are home and I hope you are feeling well. It truly is a miracle what these Dr's do f ... Read more
Tim Goff Glad to hear you are home and I hope you are feeling well. It truly is a miracle what these Dr's do for us, a new lease on life. How great is that?
I wish you the best in your home recuperation. I am several weeks ahead and feeling better each day.
Best Regards,
Tim
Jen's husband Tom here. She wanted me to let you know when she got out of surgery. Her mitral valve was repaired with the minimally invasive approach. She ...Read more
Jen's husband Tom here. She wanted me to let you know when she got out of surgery. Her mitral valve was repaired with the minimally invasive approach. She is now coming out of anesthesia in the CVICU. We will post more after she gets to the step down unit tonight. Thank you for all your warm thoughts, best wishes, humor, and care. It really helped Jen to have this community as she prepared for this.
Thank you so much, Tom.
Nancy D So good to hear the news that she did well and is beginning her recovery process...continued prayers ... Read more
Nancy D So good to hear the news that she did well and is beginning her recovery process...continued prayers for all of you!
Laura Metrano wonderful news! you must be very relieved :)
Tim Goff Glad to hear of the repair instead of replacement. Wishing her a smooth recovery
Terrie Syvertsen Tom- Thank you for posting to us about your beautiful wife Jen! Great news to hear she is on the othe ... Read more
Terrie Syvertsen Tom- Thank you for posting to us about your beautiful wife Jen! Great news to hear she is on the other side of surgery and on the road to recovery! Take good care of her and give her the love of all her heart brothers and sisters!
Mary Myers So thankful that all went well. Tom thank you for posting this fantastic news. You are both in our ... Read more
Mary Myers So thankful that all went well. Tom thank you for posting this fantastic news. You are both in our thoughts and prayers. Sending big hugs from her heart sisters and brothers.
Tomorrow is the big day for me. Like many others, my feelings and thoughts seem to include a wide range of ups and downs. But here's where I am now -- Regardless ...Read more
Tomorrow is the big day for me. Like many others, my feelings and thoughts seem to include a wide range of ups and downs. But here's where I am now -- Regardless of the outcome -- being positive rather than negative, feeling excitement rather than anxiety, being kind to both myself and those that care for me --- plays forward and makes a propitious impact in this world, in the little part of this big world that we each occupy. So, given that, I will do my best to go into the operating room smiling, feeling hope rather than fear. My many thanks and love to my family and friends who have supported me; and my new friends at this wonderful, so very helpful site. We're all going to be fine.
Tammy Pilcher Jennifer, you have a wonderful outlook and you'll do great! Keeping you in my prayers tomorrow! God ... Read more
Tammy Pilcher Jennifer, you have a wonderful outlook and you'll do great! Keeping you in my prayers tomorrow! God bless you! Isaiah 41:13.
Terry Shermeister Hi Jennifer, thank you for your great words and attitude. Prayers, positive thoughts, and look forwa ... Read more
Terry Shermeister Hi Jennifer, thank you for your great words and attitude. Prayers, positive thoughts, and look forward to seeing your recovery progress!!
Tammy VanBuskirk Jennifer you are a great and positive roll model!! Praying for you and wishing you a fast recovery!! ... Read more
Tammy VanBuskirk Jennifer you are a great and positive roll model!! Praying for you and wishing you a fast recovery!!
Ben Hyman Good luck Jennifer. We're all thinking about you. You'll come through with flying colors!
Duane Beeman Nothing to be afraid of. You'll pop out the other side looking and feeling great. How would you lik ... Read more
Duane Beeman Nothing to be afraid of. You'll pop out the other side looking and feeling great. How would you like to be me....knowing that when you get up each morning, this is the best you're going to look all day !!! My thoughts are with you. No negative thinking allowed.
Laura Metrano All good thoughts and prayers will be with you tomorrow for a very uneventful surgery! Glad to hear h ... Read more
Laura Metrano All good thoughts and prayers will be with you tomorrow for a very uneventful surgery! Glad to hear how kind and gentle you are being with yourself. I hope to follow your example when it's my turn :)
Best of luck!
What an awesome, positive attitude! Praying that your surgery goes smoothly...and that your recovery ... Read more
What an awesome, positive attitude! Praying that your surgery goes smoothly...and that your recovery is steady. God Bless You.....
Rhonda Rawles Great outlook and the best way to look at it, attitude is such a big part of recovery! Stay strong a ... Read more
Rhonda Rawles Great outlook and the best way to look at it, attitude is such a big part of recovery! Stay strong and know that each hour/day/week gets a bit easier and closer to pre-surgery. Everyone is right, the waiting is worse than the day of surgery, I remember VERY little which is awesome.
Theresa C. Crawford You're in my prayers for a swift and easy recovery, Jennifer!
Today I feel it is really going to happen. I am going to have heart surgery. I met with two different nurses at two different locations (one representing ...Read more
Today I feel it is really going to happen. I am going to have heart surgery. I met with two different nurses at two different locations (one representing the surgeon and the other the hospital, I suppose). The second one met with my husband and I for almost 2 hours. She took from me the white patient folder which I am supposed to take with me to all meetings and the hospital. She opened it up and asked where was the Patient Resources Handbook. I thought it was in there but it wasn't. I thought she was looking sternly at me. I felt like back in elementary school when I forgot to bring my homework page. So, of course, I burst into tears!!! She came over immediately and put her arms around me and gave me comfort. Just what I needed. It was okay after all and all went well after that. Turned out she has 5 cats, just like me (and we are NOT crazy cat people, just suckers for a whiskered face!) In conclusion, each encounter with hospital/surgical staff is making me feel more prepared, even emotionally. Yet, you know -- I'm still asking for that happy sleepy time cocktail while waiting on the gurney!
May each of you find comfort.
Matt Doran God bless you. Prayers for great recovery
Duane Beeman I would have made you write, I will not forget my Handbook" at least 100 times. I only have two cats ... Read more
Duane Beeman I would have made you write, I will not forget my Handbook" at least 100 times. I only have two cats. "A good cat is more valuable than a swift horse, when mice infest the palace" --- Mark Twain.
Bob M Yes, nurses are awesome. I pray that your upcoming surgery will be textbook and your recovery will be ... Read more
Bob M Yes, nurses are awesome. I pray that your upcoming surgery will be textbook and your recovery will be uneventful. On April 7, it will be a new day for you with a fixed heart. God bless and rise up!
It's On!
Just got word from surgeon's office that based on test results, we can move forward with surgery on the 7th. There had been a concern regarding an ...Read more
It's On!
Just got word from surgeon's office that based on test results, we can move forward with surgery on the 7th. There had been a concern regarding an infection, but it appears to be cleared up. My sister has taken over care of my mother and today is my first day for just "me care" in quite a while. I changed my profile picture to show who I am -- what I truly love to do (bad hair day and all!). I paint in pastels and today plan to sit in the sun first and then go to the studio and paint. I am nervous but want to invest in other distractions today!
Stay well everyone.
Tim Goff Clear the decks and get it moving sounds like a good plan. A "you"day is an excellent idea
Nancy D enjoy these days of self care! You will need to put yourself first for a while! Praying for smooth ... Read more
Nancy D enjoy these days of self care! You will need to put yourself first for a while! Praying for smooth sailing ahead for you- all the way to Recovery home!!
Jennifer Bramlett Thank you everyone -- you have made me "heart happy" with your encouraging thoughts! It was a good d ... Read more
Jennifer Bramlett Thank you everyone -- you have made me "heart happy" with your encouraging thoughts! It was a good day.
Rodrigo Ponce Sounds to me your into life 100%. And I promise you that after your surgery is a complete success and ... Read more
Rodrigo Ponce Sounds to me your into life 100%. And I promise you that after your surgery is a complete success and recovery is over and you're back home, that 100% will still be there but with more intensity, with more vitality. That 100% will change (you) so much you'll be amazed to discover that now you enjoy life a whole lot more.
Have a Good Friday, in every sense of the word, Jenny. And to the rest of you too.
Met with four friends today at a luncheon scheduled especially so I could make it. It was a wonderful time. We laughed and cried. I so needed that! What ...Read more
Met with four friends today at a luncheon scheduled especially so I could make it. It was a wonderful time. We laughed and cried. I so needed that! What I learned -- No matter what else is going on, never turn down an opportunity to spend time in the company of good friends. It will not be time wasted.
Nancy D One thing I have learned through this journey- is just what you expressed. In the past 7 months of re ... Read more
Nancy D One thing I have learned through this journey- is just what you expressed. In the past 7 months of recovery I have such a new appreciation for the every day things, and sort of remind myself "If not now, when?" as I try to decide how to spend the day and I always accept invites out or in with good friends and family! I see how they need it too, to see how I was doing, if they could do anything for me. Your mind and heart are in the right place! Take good care!
Jennifer Bramlett Thank you Nancy. You made an important point -- that friends and family also need the opportunity to ... Read more
Jennifer Bramlett Thank you Nancy. You made an important point -- that friends and family also need the opportunity to connect and see in person how one is doing.
Be well!
My Mom is on my mind. In January 2014 my brother died suddenly of a heart attack. He was the primary caregiver for my 89-year old Mom, and both lived close ...Read more
My Mom is on my mind. In January 2014 my brother died suddenly of a heart attack. He was the primary caregiver for my 89-year old Mom, and both lived close to each other in Florida. My Mom sold her home and moved to an apartment close to my home in Virginia. I became her primary caregiver. On the outside she appears to be strong regarding my upcoming surgery. Last night, however, she cried aloud while with me, admitting that she feels always close to tears and that she still misses my brother terribly. I know this is very hard on her, and she is indeed depressed. I don't know how to make it easier (I do assure her that I will be fine and give her information to support that), and I worry about the stress affecting her own health (she has congestive heart failure). Does anyone out there have any advice from experiencing close family member depression regarding the upcoming heart surgery? Thank you.
Robyn Tatu Would it be helpful if she could be more involved with your recovery? Or help you with the planning ... Read more
Robyn Tatu Would it be helpful if she could be more involved with your recovery? Or help you with the planning or details? I know you have a family that you care for, but could she join you for a time and be a help to you? Channel her sorrow into action? My 85 year old father moved in with us last year. The thought of moving him in to "help" me makes me giggle.... but he is so willing to help and he also has a very active prayer schedule which I know keeps his spirits up (so to speak). I'm so sorry about your brother, Jennifer. I know thoughts of his death are still so fresh for your family. Thankfully you are NOT in his situation and are getting help. Considering my recent experiences with therapy - would a visit to a therapist be too far fetched?
LaDonna Mangile I agree with Robyn and think that's a great idea! My Dad is 93 and he has offered to come take care ... Read more
LaDonna Mangile I agree with Robyn and think that's a great idea! My Dad is 93 and he has offered to come take care of me and I just told him sounds great!
Jennifer Bramlett Thank you Robyn and Ladonna. It's a very good idea. She can't physically help, but perhaps I can fi ... Read more
Jennifer Bramlett Thank you Robyn and Ladonna. It's a very good idea. She can't physically help, but perhaps I can find another way to give her a role that will be positive. At the least, I can share my thoughts with her. And perhaps we both could use a visit to a therapist.
(I hope you ladies are doing well.)
Tammy VanBuskirk I have found that taking my mom to visit her friends helped to ease her anxiety of my upcoming surge ... Read more
Tammy VanBuskirk I have found that taking my mom to visit her friends helped to ease her anxiety of my upcoming surgery. Sometimes going to a senior center or taking her to visit a close relative can help also. I also allowed her to speak to my cardiologist about any questions she may have. My mom has dementia and we lost my dad about three years ago. My dad had a quadruple by pass and did not go through the surgery well. I can sympathize where you are coming from.
Jennifer Bramlett Thank you Tammy. As a matter of fact, we both have the same cardiologist! I also "introduced" her t ... Read more
Jennifer Bramlett Thank you Tammy. As a matter of fact, we both have the same cardiologist! I also "introduced" her to my surgeon by showing her videos of him speaking about heart valve surgery. Knowledge can be comforting, it's the unknown that is scary.
Meredith Bray I second the suggestion of involving mom in your recovery planning. maybe she has some great recipes ... Read more
Meredith Bray I second the suggestion of involving mom in your recovery planning. maybe she has some great recipes for casseroles that you can make together and put in the freezer?
I am having trouble finding the time to do what is important to me before my surgery date. I am my Mom's primary caregiver, so I manage two households. The ...Read more
I am having trouble finding the time to do what is important to me before my surgery date. I am my Mom's primary caregiver, so I manage two households. The challenge for me is to pare down and just address what is truly most important. And of course accept that it all won't get done, at least not by me!
I did get Adam's book and have been reading it. It helps.
Ben Hyman Hi Jennifer. I'm in the same boat (severe MR) and now exploring my options . It's daunting to try an ... Read more
Ben Hyman Hi Jennifer. I'm in the same boat (severe MR) and now exploring my options . It's daunting to try and figure out what to do next. I'm getting cardiac monitoring for the next month, meeting with surgeons at some of the local Heart Centers here in Minneapolis (Abbott Northwestern and hopefully Mayo in Rochester) getting a TEE in April, and whatever testing is necessary to see if my leaky valve can be replaced with a minimally invasive technique. Adam's book is excellent, as is another book called Heart 411. Both provide great tips to get prepared . We're all in this together. Stay strong..,you'll come through with flying colors
Ben from Minneapolis
Tim Goff Hopefully some of your family and friends will step up to lighten the load for you.
LaDonna Mangile I can empathize, I don't have two households, but I do have 30 head of horses, donkeys and ponies. Tw ... Read more
LaDonna Mangile I can empathize, I don't have two households, but I do have 30 head of horses, donkeys and ponies. Two are expected to foal while I'm away and one is high risk. I also have a big yard and gardening project that already out of control. One of my worst fears is losing my independence totally for a while...not being able to control or take care of things! Today is my last day at home before drive up to Mayo and I still don't know if all is covered!
Jennifer Bramlett Thanks to all for your support. LaDonna, you are amazing to be taking care of so many members of you ... Read more
Jennifer Bramlett Thanks to all for your support. LaDonna, you are amazing to be taking care of so many members of your animal family. My very best to you.
All of you helped me realize that my worries are not atypical. I guess we just have to concentrate mostly on ourselves, preparing for surgery or healing afterwards - but that is hard when others have depended on us. Letting go should feel like a zen action, but instead for me now it is hard. Still, I deep down do believe it will come together ok. And that I too will be ok.
Tim Goff Jennifer many depend on you which can be quite a load, especially under these circumstances. You must ... Read more
Tim Goff Jennifer many depend on you which can be quite a load, especially under these circumstances. You must work on what is medically best for you as job one which probably hasn't been part of the deal for some time, an adjustment is coming for many. Take care of yourself, we are pulling for you.
Yes, it is real, but it is a fairly complex area that is not well understood. An ... Read more
Yes, it is real, but it is a fairly complex area that is not well understood. And since each of us is unique and different, the effects are somewhat different in individuals. If you were to ask 30 people to define 'depression' you would probably get 30 different definitions. I read one paper where the author defined 5 general types of depression; some improved with medication, some got worse with medication. So which depression is post heart operation depression?
When the word depression is used, most people think of a mood disorder caused mainly by a chemical imbalance in the brain, usually a deficiency of the neurotransmitter serotonin. What is usually not realized is that less than 10% of the serotonin producing cells are in the brain. The other 90% are out in the body, mainly the digestive tract and are also impacted. The result can be nerve problems (muscles), sensor problems (pain), etc.
How would open heart surgery cause 'depression' or a hypo serotonin condition? One way is stress. I would say that open heart surgery is very stressful. If you want a more detailed description of the body's reaction to stress, I would recommend watching this video:
https://www.youtube.com/watch?v=6gFVQGD-aB8
So, in my opinion, at least do the following:
- healthy cardio diet, hydration
- exercise, cardiac rehab, and then on your own
- good restful sleep
- stress management, positive attitude
bc