I went over to the Cleveland Clinic yesterday to be evaluated by one of their cardiologists. Left at 3:30 in the morning, no traffic! I was very impressed ...Read more
I went over to the Cleveland Clinic yesterday to be evaluated by one of their cardiologists. Left at 3:30 in the morning, no traffic! I was very impressed with the place and the doctor. When it came time for him to go over my 3 ECHO tests from my cardiologist, he comes in and says what they sent over was worthless because they just sent still shots, not any movies of the heart pumping. So they changed the schedule around and I met with him after they ran their ECHO. His analysis is that I have a severe regurgitation of my mitral valves, but the leak is not active during the entire ventricular contraction. The result is that the volume of blood going back is not as large as it could be and that is why my heart has not started to compensate (enlarge, thicken, etc.). Because my cardiologist screwed up with what he sent over, they have no idea how this is changing with time . So because my heart is doing fine, he felt that we can take time in evaluating the situation. He wants me to come back in August and have a stress ECHO where they would make their measurements while I am exercising. He suspects that the leak gets worse with exercise. That is probably what causes shortness of breath, even with simple tasks like picking up my 85 pound 14 yr. old dog to put in the station wagon. So I think I am in good hands over there in having them follow my valve disease, and I will make the effort to do the drive rather than take the convenient route and try to work with the group over here. Bottom line, no surgery at least for a while.
Lila Robinson My experience with the Cleveland Clinic is they never "like" tests done anywhere but there. It's alm ... Read more
Lila Robinson My experience with the Cleveland Clinic is they never "like" tests done anywhere but there. It's almost a standard response!
I'm almost 4 weeks post AVR from UH Cleveland from Dr. Alan Markowitz. He's fantastic.
I wish you the best.
Wiliam Height Barry, great news! You are well informed and definitely in good hands at CC.
jan murphy Thank you for telling us about the Heart 411 book.I have three brothers,two who have had CABG ad one ... Read more
jan murphy Thank you for telling us about the Heart 411 book.I have three brothers,two who have had CABG ad one with stents starting at age 49. I think the book will help my children understand the gene pool they come from but what can be changed.Thanks again.
A lot of the questions Adam is getting for the Mitral Valve Conclave he is attending in NY has to do with durability of the repair. We recently had a post from ...Read more
A lot of the questions Adam is getting for the Mitral Valve Conclave he is attending in NY has to do with durability of the repair. We recently had a post from a heart valve brother that had a very rapid failure. It will be interesting to read the answers.
Lewis Garlisi Thanks. It will be interesting to read about their findings.
Wiliam Height Are durability and failure one in the same? The failures result from progression of original disease ... Read more
Wiliam Height Are durability and failure one in the same? The failures result from progression of original disease, new disease, or technical failure leading the way. We must assume these will be durable because re-repair has replaced the default strategy of replacement after repair. Euro-Journal of Cardio-Thoracic Surgery 2/14
"Re-repair of the mitral valve as a primary strategy for early and late failures of mitral valve repair"
A.C. Anyanwu, S. Itagaki, R. Varghese, J. Castillo, J. Chikwe, and D.H. Adams
Barry Van Gemert I had read that article and found it very reassuring. One thing most people don't realise is that th ... Read more
Barry Van Gemert I had read that article and found it very reassuring. One thing most people don't realise is that the surgery does not cure the disease that lead to valve failure.
Nancy D Repairs fail, as do replacements. It is our reality as people with heart valve disease. We make th ... Read more
Nancy D Repairs fail, as do replacements. It is our reality as people with heart valve disease. We make the best decisions given the information we have at the time. I am thankful for Adam and this site and the invaluable information I found as I went through the process. Knowledge is power. Looking forward to reading the above mentioned article, and the conclave information. Medicine is advancing as we are recovering, and the fact we live in this day and age is the reason many of us are alive today. I am thankful every day for this second chance.
I had my appointment today with the cardiologist to go over my ECHO from March 3rd. As I suspected the valve regurgitation is now rated as severe and the doctor ...Read more
I had my appointment today with the cardiologist to go over my ECHO from March 3rd. As I suspected the valve regurgitation is now rated as severe and the doctor said it is now time to look into getting the valves repaired. The rest of the heart has not suffered any damage yet, so this is the prime time to get it fixed before damage happens. So I will be calling Cleveland Clinic this week and arranging going over there for them to evaluate things (probably do a TEE who knows what else) and get me on the waiting list to get the surgery. I am guessing this is ballpark four months out. I am ready to git ‘er done!
Bill Hendrickson Barry,Good luck at CCF, I hope you get to meet your surgeon during your visit ahead of surgery. My ca ... Read more
Bill Hendrickson Barry,Good luck at CCF, I hope you get to meet your surgeon during your visit ahead of surgery. My cardiologist is at CCF and was very encouraging about my two valve replacement surgery. I never had a chance to get to know my surgeon. You will be in good hands with the CCF team. Keep us posted on your journey. Regards Bill
Duane Beeman If I'm lucky I'll be hanging brook trout in that stream I posted, by the time they're wheeling you in ... Read more
Duane Beeman If I'm lucky I'll be hanging brook trout in that stream I posted, by the time they're wheeling you in !! If I'm not lucky, I'll be swimming up that stream inside of a brook trout.
Terry Shermeister Hi Barry and thanks for your post to Ben, as I looked into the informative video and the protocol for ... Read more
Terry Shermeister Hi Barry and thanks for your post to Ben, as I looked into the informative video and the protocol for taking care of this stuff. It helps hearing from you as to you attitude. I want to do what's best for my heart and deal with this in the appropriate manner. I'm asymptomatic, still swim and exercise regularly but get stressed as you can imagine. One nice thing was that on March 18, I had my yearly echo, they said I should have a TEE, did it the next day, then they set up my meeting time with the surgeon for Wednesday of next week. So you thing that it takes 4 months out?? Thanks so much for your informative responses it is very helpful. Hope to talk again, Terry
Ben Hyman Barry ...go ahead and email me a copy of those guidelines
My email address is lapidarian_2000@yahoo ... Read more
Ben Hyman Barry ...go ahead and email me a copy of those guidelines
My email address is lapidarian_2000@yahoo.com
Henry Boehringer Good Luck , sooner is better, You have the right approach going forward.
Terry Shermeister Hi Barry: Yup, I've been where you are just a few weeks ago. My trip went a little quicker. Echo, T ... Read more
Terry Shermeister Hi Barry: Yup, I've been where you are just a few weeks ago. My trip went a little quicker. Echo, TEE, Surgeon meeting, and I'll be having my surgery in about three weeks. Same deal as far has getting this taken care of before any damage. I read a lot of information to validate surgery earlier rather than wait.
Duane Beeman Barry: You haven't written, called or sent flowers. What's up with that ? I haven't been insulted ... Read more
Duane Beeman Barry: You haven't written, called or sent flowers. What's up with that ? I haven't been insulted in DAYS. I'm feeling left out. Beat me up a little will ya.
Cleveland Clinic is having a web chat Tuesday, March 17, 2015 - 12 Noon (Eastern Time). Sounds like an interesting opportunity to get some questions answered ...Read more
Get answers to your health questions and concerns. It's easy to be part of our live chat events, led by Cleveland Clinic physicians and health professionals.
About 5:00 tonight I get a call from the cardiologist ‘s office and the nurse says “the doctor has read your ECHO”. I am a bit unsettled as in the past ...Read more
About 5:00 tonight I get a call from the cardiologist ‘s office and the nurse says “the doctor has read your ECHO”. I am a bit unsettled as in the past it has taken about a week to get any feedback. The ECHO technician must have red flagged the scan because the nurse said the doctor found that your condition has worsened and wanted to know if I wanted to move up my appointment. She also wanted to know if I was experiencing fatigue and shortness of breath. Well, yea. I am sticking with the original appointment on the 23rd, but because I was already at moderate to severe regurgitation, I guess this means I am on the road to getting this fixed. Yes!
Daryl McCallum
Sounds like me....when the nurse called me back and said the doc wanted to see me earlier than plann ... Read more
Daryl McCallum
Sounds like me....when the nurse called me back and said the doc wanted to see me earlier than planned I said heck yea....I was at the severe state and was sick of be tired...working on 11 months PO and feel great except for a chronic state of vertigo
.
Susan Bach Yes. The sooner, the better to great heart health
Wiliam Height I was in no rush either. Never reached the fatigue or shortness of breath stage in my mind, my wife ... Read more
Wiliam Height I was in no rush either. Never reached the fatigue or shortness of breath stage in my mind, my wife noticed me breathing hard a few times though. The range of moderate to severe is an interpretation and I had three opinions to hear it was severe, with other factors--the significant LV increase being one. BTW, you can have the valve repaired with a median cut.
LaDonna Mangile I was not planning on a surgical repair anytime soon myself and now I'm on a surgery schedule for th ... Read more
LaDonna Mangile I was not planning on a surgical repair anytime soon myself and now I'm on a surgery schedule for the 30th. I understand!
I just got back from my third ECHO to check on my mitral valves. This time the technician performing the test was this lady that has been doing it for over ...Read more
I just got back from my third ECHO to check on my mitral valves. This time the technician performing the test was this lady that has been doing it for over 20 years. The last girl had me facing away from the screen and didn’t say boo, but this one had me facing the screen and talked non-stop about what she was looking at and measuring. I am glad I had educated myself enough on the subject to be able to ask good questions. I now know that most, but not all the prolapse involves the posterior leaflet vs. anterior leaflet. This is good news as it is the easiest one to have fixed, and from what I have read it can sometimes be done minimally invasive vs. full sternectomy. She was looking at the regurgitation and showed me that the jets were going directly back into two of the pulmonary arteries (there are a total of four) and that is what is giving me shortness of breath. On a good note she said my heart function is still good and she did not observe any dilation or the left atrium or left ventricle. My appointment with the cardiologist is March 23rd to go over the results and find out if regurgitation is stable at moderate to severe or has ticked up to severe .
Tim Goff That is good news, atrium swelling leads to other problems which I can attest to. Hope all continues ... Read more
Tim Goff That is good news, atrium swelling leads to other problems which I can attest to. Hope all continues well with the intervention.
Lenore Mitchell Gotta love those Echo tests - we've all had many. I've found that results vary according to cardiolog ... Read more
Lenore Mitchell Gotta love those Echo tests - we've all had many. I've found that results vary according to cardiologists at different places (i.e. the doctors at Cleveland Clinic read my tests much more thoroughly than my local doctors). Interesting, and a bit confusing too. Good luck with your results. Nice to know your lt atrium isn't dilated. Mine showed severe dilation pre-op, although the lt ventricle fortunately wasn't dilated. As I understand it, the lt atrium enlargement goes along with regurgitation and often also atrial fibrillation. It gets quite complicated, though, which is why we rely on cardiologists to interpret all of this. Good luck!
Ben Hyman I have severe MR with swelling of left atrium but normal ventricular function. Is my valve still rep ... Read more
Ben Hyman I have severe MR with swelling of left atrium but normal ventricular function. Is my valve still reparable? Does the atrium go back to normal after the valve is repaired ?
Taking advantage of this miserable weather in PA, I have been reading Heart 411 by Marc Gillinov and Steven Nissan. Marc is the Dr. at the Cleveland Clinic ...Read more
Taking advantage of this miserable weather in PA, I have been reading Heart 411 by Marc Gillinov and Steven Nissan. Marc is the Dr. at the Cleveland Clinic that I would like to have do my valve job when the time comes. Although the primary focus of the book is keeping your heart healthy so that you never end up in the hospital with coronary heart disease (CHD), there is a lot of information pertinent to those of us with valve issues. At 550 pages, it is sort of the “War and Peace” of heart health. Give it a read.
Ken Zipf Hey Barry,Dr. Gillinov is doing my surgery Apr 18
Barry Van Gemert Ken, you are in good hands! Marc would be my first choice and I was wondering how long a waiting list ... Read more
Barry Van Gemert Ken, you are in good hands! Marc would be my first choice and I was wondering how long a waiting list to get under the knife with him?
Along with my MV regurgitation I have a rather low LVEF (55%). I have been doing some research on the effects of surgery on LVEF, which one would intuitively ...Read more
Along with my MV regurgitation I have a rather low LVEF (55%). I have been doing some research on the effects of surgery on LVEF, which one would intuitively expect to go up. This journal article http://content.onlinejacc.org/article.aspx?articleid=1126867 indicates just the opposite occurs…it goes down! Also, there was no increase in exercise capacity.
Adam Pick Barry, I could be wrong but I don't think your ejection fraction is terribly low. Here's a little mo ... Read more
I just received a question from Simone about her 66-year old father. Her email reads, "Hi Adam - My father was just diagnosed with severe mitral regurgitation.
Ken Zipf My Ev went from 57 percent to 50 was hoping it would go up!
Dave Van Buren (DVB) With mitral regurgitation some of the ejection is wrong-way, but counted in the ejection fraction sti ... Read more
Dave Van Buren (DVB) With mitral regurgitation some of the ejection is wrong-way, but counted in the ejection fraction still as ejection. After repair that "leak path" is plugged and you can see a reduction in EF because the total amount ejected is lower. Even though it's now all going the right way. If your left ventrical was enlarged, and after surgery it slowly shrinks back to size (remodels), then your EF can go back up some. EF is hard to measure exactly, so some of that 7% difference is measurement error too.
I'm almost 4 weeks post AVR from UH Cleveland from Dr. Alan Markowitz. He's fantastic.
I wish you the best.