Archive for the 'Bicuspid Aortic Valve' Category

Bicuspid Aortic Valve Conference Video Just Posted!

Tuesday, November 25th, 2014

If you, or someone you know, have been diagnosed with a bicuspid aortic valve (BAV), this post is for you. Let me explain…

I recently attended and spoke at the 2nd Annual Bicuspid Aortic Valve Conference in Chicago, Illinois. During this special conference — which was created for patients, their families and friends — several BAV specialists shared their latest research and clinical experiences specific to the management and treatment of bicuspid aortic valves. The conference was amazing. And, I was super excited to meet many patients from our website at the event.

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Let’s Connect at the Bicuspid Aortic Valve Conference in Chicago Next Tuesday!

Wednesday, September 10th, 2014

Great news! Next Tuesday, September 16, I’ll be speaking at the “Bicuspid Aortic Valve — Beyond The Basics” conference in Chicago. The event, which is hosted by Northwestern Medicine’s Bluhm Cardiovascular Institute and Lurie Children’s Hospital is going to be an incredible experience with several leading BAV specialists including Dr. Puthumana, Dr. Fedak, Dr. Young and Dr. Malaisrie.

Please see the the flyer below for details. To register, click here.Northwestern Bicuspid Aortic Valve Conference

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“Will An Enlarged Aorta Return to Normal Size After Bicuspid Aortic Valve Replacement?” Asks Mary

Monday, August 4th, 2014

I just received several excellent questions from Mary about bicuspid aortic valve replacement, aorta size and heart valve replacement devices. In her email, Mary writes, “Hi Adam – I want to know whether an enlarged aorta returns to normal after bicuspid valve replacement. Also do you have an opinion as to which is better, bovine or mechanical valve. Thank you.”

Enlarged Aortic Root

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“What About Child Birth for Patients with Bicuspid Aortic Valves and Dilated Roots?” Asks Elaine

Thursday, July 24th, 2014

I recently received a great question from Elaine about child birth, heart valve disorders and dilated aortic roots. In her email, Elaine writes, “Hi Adam –¬† I have a bicuspid aortic valve and a dilated root of 4.2cm. I am currently 29 weeks pregnant. I was wondering if anyone else has a diagnosis similar to mine and if they were able to deliver naturally instead of C-section?”

Child Birth (Natural or C-Section) for Patients with Valve Disease

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Technology Update: Using 4D-MRI to Advance Bicuspid Aortic Valve Therapy

Friday, January 24th, 2014

Like many of you, I was born with a bicuspid aortic valve. For that reason, I’m overly interested to learn more about this valvular disorder that impacts 2% of the population.

Recently, I had a special opportunity to meet and interview Dr. Paul Fedak, a cardiac surgeon, scientist and Director of Translational Research at the Northwestern Bicuspid Aortic Valve Disease Program. As you will see in this video, Dr. Fedak and his team is using the latest technology, 4D-MRI, to better understand and treat bicuspid aortic valves.

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“TAVR or Mini-Sternotomy for Bicuspid Aortic Valve?” asks Julie

Friday, January 10th, 2014

I just received a great question from Julie about transcatheter aortic valve replacement (TAVR), mini-sternotomies and bicuspid aortic valve therapy. She writes to me, “Hi Adam, can the TAVR or mini sternotomy be used for bicuspid valve replacement?”

Bicuspid Aortic Valve Tavr Ministernotomy

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“Have The Guidelines For Replacing Aortic Aneurysms Changed For Patients With Bicuspid Aortic Valves?” Asks Barbara

Tuesday, September 3rd, 2013

I just received a great question from Barbara about aortic aneurysms, bicuspid aortic valves and the guidelines used by physicians to determine treatment. In her email, Barbara wrote to me, “Hi Adam – I have a bicuspid aortic valve with stenosis. I also have an aneurysm (4.1 cm) that we have been tracking for a number of years. I have heard that the guidelines for treatment just changed from 5cm to 4.5cm. Is that true? If so, why did the guidelines change? Is this change causing more patients, like me, to get treatment earlier? Thanks, Barbara”

Aortic Aneursym GuidelinesDiagram Showing An Aortic Aneurysm

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Video Interview: A New Approach To Treating Bicuspid Aortic Valve Disease with Dr. Patrick McCarthy

Monday, December 3rd, 2012

In July, we learned that Northwestern Memorial Hospital launched the first Bicuspid Aortic Valve Program in the country.

As I was born with a bicuspid aortic valve, I was eager to learn more about this program. For that reason, I traveled to Chicago to meet with Dr. Patrick McCarthy, the Chief of Cardiac surgery at Northwestern. So you know, Dr. McCarthy is a valve surgeon guru. During his remarkable career, Dr. McCarthy has performed thousands of heart valve procedures and is one of the most recommended surgeons at our website.

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Heart Valve Summit Video #1: “When Can I Expect To Have Bicuspid Aortic Valve Surgery?” Asks Kim

Friday, October 19th, 2012

Prior to the Heart Valve Summit, I received over 70 patient questions for the doctors at the conference. In her question, Kim asked, “Hi Adam, I have a bicuspid aortic valve with a valve size of .6 and a gradient of 80. When can I expect to have surgery?”

To answer Kim’s question, I was very fortunate to meet and interview¬†Dr. Robert Bonow, who is a Past President of The American Heart Association and current Professor of Cardiology at Northwestern University. I have posted a written transcript of this video (below) for the patients and caregivers who are hearing impaired.

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“Happy Anniversary!” To Robert Following Bicuspid Aortic Valve Replacement Surgery

Thursday, August 9th, 2012

I wanted to extend a big “Happy Anniversary!” to Robert Anderson from Groton, Massachusetts. As you can read in his note below, Robert had a congenital bicuspid aortic valve that needed to be replaced. Here is more from Robert about his journey and his celebration:

Hi Adam – I just wanted to say ‘Thank you’ for the book. I just passed my 1st anniversary for stenotic bicuspid aortic valve replacement and an ascending aortic resection for a non-ruptured aneurysm at Massachusetts General Hospital in Boston. My wife bought your book a few weeks before my surgery and I still thumb through it (more so the last few chapters now).

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