Hi Everyone! well, a year ago today I was in the VA hospital getting prepped for open heart surgery with an aortic valve replacement and preparing to become ...Read more
Hi Everyone! well, a year ago today I was in the VA hospital getting prepped for open heart surgery with an aortic valve replacement and preparing to become a member of the "CCC" (cracked chest club). This website went a long way in helping me to prepare for surgery, understand all of the pros and cons and everyone was so very supportive. I want to thank Adam for this great website and for all his effort and time he has put into this work. I am totally back to a normal life and doing all of the things I used to do in the way of exercise. My incision scar and drain hole scars have nearly disappeared and I have a new lease on life now. Prayer and positive thoughts are a great help, but one also needs to do their research and understand everything that is about to transpire. Gaining knowledge of your situation will help you mentally to prepare for the surgery and this website with all of its great information and people's input with their different situations will be a great help in getting you ready for your surgery. I wish everyone the very best and thanks to one and all for your messages and support. This will be my last post probably unless something comes up that I need to share, so "keep on trucking" and be good to yourself! Vaya con dios! and may the good Lord give you peace and comfort!
Civita Fahey Wow seems like yesterday I was reading about your surgery before mine.. Great news and glad you are d ... Read more
Civita Fahey Wow seems like yesterday I was reading about your surgery before mine.. Great news and glad you are doing well.
Joey Hardee Thank you, James. AVR (repair) surgery is definitely in my future and this site has been so very help ... Read more
Joey Hardee Thank you, James. AVR (repair) surgery is definitely in my future and this site has been so very helpful so far and I know it will be even more as surgery approaches and during recovery. What Adam has created here is just awesome! Your story is so inspirational as I want desperately to feel I can fully recover and get back to a fully active life again post op. So happy for you that you are doing so well. Thank you again for the inspiration. Godspeed!
Hello Everyone! It's been awhile since I last posted, but all systems are "go"! I had my last CT scan in May and everything was A-OK and now I'm up to about ...Read more
Hello Everyone! It's been awhile since I last posted, but all systems are "go"! I had my last CT scan in May and everything was A-OK and now I'm up to about 5 miles/day every other day through the week on my bicycle plus walking a mile 2 to 3 times per week. My incision and drain holes in my chest have nearly faded away and using Bio Oil has helped this process of healing the scars. I'm also down from about 200lbs. to 182 now after having changed my diet and portion sizes as per my trainer in cardio rehab and I highly recommend going through cardio rehab. My goal is to eventually get to 170lbs. which is where I should be for my height of 5'9", so at 67 years old, I feel I'm good to go now for several more years. I will post one more time at the 1 year mark and update. I wish for everyone good health and success with their heart surgery and I want everyone to know the Indianapolis VA and their surgical team did an outstanding job for surgery, recovery and rehab and I can't thank them enough. Happy trails to one and all!
Lilly Black Wonderful news! Congratulations, James.
Jill Krajnovich As so much of the VA news has been bad recently, glad to hear something positive and glad you are doi ... Read more
Jill Krajnovich As so much of the VA news has been bad recently, glad to hear something positive and glad you are doing so well! Noticed on your story that you are from Carmel and I am from Zionsville. It is nice seeing someone on here from the same area. Thanks for the update and congratulations on all of your progress!
James Johnson Best wishes to you Lilly and Jill! Life is certainly a long and winding road and not always smooth s ... Read more
James Johnson Best wishes to you Lilly and Jill! Life is certainly a long and winding road and not always smooth sailing, but nonetheless with faith in God and with the help of good people everywhere like Adam, the bumps in life are easier to withstand.
Hi Everyone! I've reached the end of my surgeon's designated 12 week recovery period and I'm doing great! I have completed 13 of my 1-hour cardio rehab sessions ...Read more
Hi Everyone! I've reached the end of my surgeon's designated 12 week recovery period and I'm doing great! I have completed 13 of my 1-hour cardio rehab sessions with only 6 more to go and after that is completed next week I will finish 5 sessions with my personal trainer that I didn't complete before surgery back in January. I am walking a mile + every day and today I get to start riding my bike again which I haven't been able to do since the first part of last November. I just want to say to everyone facing this surgery to not be apprehensive or afraid, but do your research by reading Adam's book, go online to youtube and watch videos of surgery and google as much info as you can to help yourself mentally prepare. I can't stress enough the mental prep to help relieve the anxiety, fear, etc. I also bought the "incision shield" that Adam mentioned in the book and it worked like a champ in keeping shirts, sweaters, etc. off my incision while it healed. (see pics) Also, after getting the OK from my surgeon's assistant I started using Bio-Oil on my incision and drain holes and it did wonderful in the healing process. I will post again at the 6 month & 12 month marks, but this is it for now. I wish everyone the very, very best in their upcoming surgeries and/or recovery periods and to "keep on truckin"!
Terrie Hodges James, this is encouraging to hear...thank you...surgery for me is tomorrow morning
...headed out rig ... Read more
Terrie Hodges James, this is encouraging to hear...thank you...surgery for me is tomorrow morning
...headed out right now for my last 2 mile walk for a while...glad the VA was able to do this and do it correctly...wishing you well💜Terrie
James Johnson Hi Terrie! I know the VA as a whole has gotten a bad rap overall in the past few years, but for me th ... Read more
James Johnson Hi Terrie! I know the VA as a whole has gotten a bad rap overall in the past few years, but for me they have been great. I lived in Florida for 14 years and used the Orlando VA and then after moving to Vero Beach I used the West Palm VA and they were outstanding! Now, I'm in Carmel and use the Indianapolis VA and they've taken great care of me, so I think it's like anything else in business or government, it just depends on the quality of management and the people who work there. No complaints from me that's for sure!
It will be nine weeks tomorrow, Mon. Apr. 3, and I am walking a mile + every day now without being too winded. I have completed four - 1 hour sessions of cardio ...Read more
It will be nine weeks tomorrow, Mon. Apr. 3, and I am walking a mile + every day now without being too winded. I have completed four - 1 hour sessions of cardio rehab with another six sessions to go. I have been using Bio-Oil, similar to Mederma and Scar Gel, since the end of week four after getting the Ok from my surgical team assistant. The oil is helping the incision and drain holes to heal up nicely. I still have some tenderness/soreness, not pain, when lying on my back at night, but I can now comfortably lie on right/left side with no problem. After my cardio rehab is complete in two weeks, I plan to be back doing my water aerobics, yoga and bike riding, so with warm weather arriving and my twelve week recovery period coming to an end, I'm looking forward to getting back to everything I enjoy doing. I will make another entry at the end of the twelve weeks and I wish/hope/pray for everyone the success I've had with this experience!
Amy Steele You're doing great, James! Keep up the good work. April 3rd will be 6 months for me AVR, aortic roo ... Read more
Amy Steele You're doing great, James! Keep up the good work. April 3rd will be 6 months for me AVR, aortic root replacement and aneurysm repair. I felt like I was just getting started with rehab after 10 sessions... went for 36 sessions and it was so worth it. Sounds like you have plenty of activities lined up. You'll continue to feel better and better.
Laurie Baglio I'm so glad your doing well James. As you know, we had our surgeries on the same day. My rehab has be ... Read more
Laurie Baglio I'm so glad your doing well James. As you know, we had our surgeries on the same day. My rehab has been slower. Still waiting for my stress test before my first session but I am looking forward to it. I look forward to hearing from you again at the 12 week mark. Keep up the great work!
At the 6 weeks mark now and doing great! Walking up to a mile per day now and I will start a 3 week rehab on Mar. 23. This week I go in to see my PCP, full ...Read more
At the 6 weeks mark now and doing great! Walking up to a mile per day now and I will start a 3 week rehab on Mar. 23. This week I go in to see my PCP, full blood work-up and a CT scan to see how everything is healing up inside. I won't be seeing my surgical team again until May 15 unless I feel I need to see them. My team's surgical assistant, Matt Ozimek, after seeing me last week felt that I was doing so well that it was unnecessary to come back in any earlier. My incision and drain holes are nearly healed already but I still have some tenderness/soreness (not pain) in the chest especially at night if I roll to the left side. Looking back now I would say the first 10 days after surgery were the toughest days & nights to get through, but it's been pretty much smooth sailing since. I will post again at the 9 week mark and then again at the 12 week mark, which is the expiration for the "recovery period". Unless something comes up, I'll be talking with everyone again in 3 weeks! I wish one and all the very best and I hope you receive the same excellent care I did from my VA team! bye for now---
Matthew Russo Thank you for the update James. Glad to hear you are doing so well.
I have posted my pictures of the incision and drain holes both without the incision shield and with the incision shield in place. The shield has truly been ...Read more
I have posted my pictures of the incision and drain holes both without the incision shield and with the incision shield in place. The shield has truly been a "real saver" in that it keeps the shirt material away from the incision and prevents irritation. These pictures are at post-op + 3 wks. and the incision and drain holes are healing up nicely. My surgical team used stainless steel surgical wire which is about the diameter of a hair follicle to close the sternum and these wires will eventually disappear into the bone and skin and will remain with me the rest of my life. On the surface of the incision, they used super glue which with time is flaking off, not to be picked off by the patient, but to be allowed to naturally dry out and just fall off. The drain holes were where the tubes and monitoring wires came out from in front of the heart and behind the heart to monitor fluid build-up. There was absolutely no pain involved when they were removed, but only if your RN or NP knows what they are doing. My daily walks are now stretching out farther and farther and I will try to walk to my local library today to return a couple of movies. My purchase of Adam's book, the incision shield and rental of a "lift chair" have been invaluable! I am a veteran and had my OHS done at the Indianapolis Roudebush Veteran's Medical Center and in my opinion did an outstanding job! I hope and pray that everyone on this site has the same excellent care that I have had and that your surgery is a success in all respects! Take care, one and all!
Mon. Feb.20--post op + 3 weeks: the first 10 days at home after surgery were pretty rough. I had a lot of coughing and lived with my "heart pillow". I had ...Read more
Mon. Feb.20--post op + 3 weeks: the first 10 days at home after surgery were pretty rough. I had a lot of coughing and lived with my "heart pillow". I had to go back to the ER because of the continuous coughing and after some x-rays and a meeting with my surgical team, they found fluid in my chest cavity, not in the lungs, but it was also determined that I might have some left over issues from my cold prior to surgery, so after changing my diuretic meds and giving me an inhaler for my lungs, I'm doing great now. The fluid in my chest cavity, common for OHS, will take about 2 weeks to be eliminated/absorbed from the body. I am able to walk down to the end of the block now, do laundry, do steps and today I reached the 2000ml level on my spirometer, so it's a daily improvement. The "lift-chair" has been a real saver for me, however, this week I'm weening myself off of it and trying to sleep in bed now as I'm sending the chair back to the rental company this Friday. I had visitors this past weekend to stop by and see how I was doing and they were stunned to see how well I was doing considering it was just 3 weeks ago that I had surgery. This week since the weather is nice I will start to walk farther out a little bit each day and see what my limitations are at this point. My cardiac rehab begins in 3 weeks so I want to be in pretty good shape by then. For those of you with upcoming surgeries, there is no reason to be afraid; just do your research and gather all of the info that you can. It's certainly not a "walk in the park", but like all difficulties in life, "this too shall pass"!
Jane Welp Thanks for letting us know the reality; it really helps me prepare for my aortic valve replacement su ... Read more
Jane Welp Thanks for letting us know the reality; it really helps me prepare for my aortic valve replacement surgery.
Sue Sanchez Grela Tim thank you for your very informative and post! I am trying my best to stay healthy in this cold a ... Read more
Sue Sanchez Grela Tim thank you for your very informative and post! I am trying my best to stay healthy in this cold and flu season. I'm planning on many nights in my recliner, but ordered a wedge for my bed in hopes of get back there as soon as possible. Also getting up and prepared for rehabilitation will be a great motivator! Prayers for your continued success in recovery❤
Civita Fahey Thanks James for your update.. Glad to hear all is going well.. its good too see all sides of the 're ... Read more
Civita Fahey Thanks James for your update.. Glad to hear all is going well.. its good too see all sides of the 'recovery" and any complications that may arise so that we who are still waiting will know what might happen. keep up the good work. !
Barbara Wood Thank you so much for that update James:)
Amy Steele Keep up the good work and great attitude, James! I found that I felt much more normal between 4 and ... Read more
Amy Steele Keep up the good work and great attitude, James! I found that I felt much more normal between 4 and 6 weeks post-op. It's amazing how well the human body can recover from major surgery!
To anyone and everyone that is having OHS for whatever reason I recommend researching your situation online, BUT I also recommend getting Adam's book, read ...Read more
To anyone and everyone that is having OHS for whatever reason I recommend researching your situation online, BUT I also recommend getting Adam's book, read through it and give yourself a good dose of confidence! Adam's book along with my own research online and being a part of this website prepared me for everything that has happened to me so far. Adam, if it sounds like I'm pushing your book, your darn right I am! My surgical nurse, Sandy, thumbed through the book, took pictures of it, so she could go to the book store and get one for herself! She said, "I just hate it when the patient knows as much or more than I do about what to expect"! LOL Folks, if you haven't got it yet, GET IT!
Friday, Feb. 3rd: home from the VA Medical Center today. The surgeons have been great to come in each of the past 4 days and check on me and they say all ...Read more
Friday, Feb. 3rd: home from the VA Medical Center today. The surgeons have been great to come in each of the past 4 days and check on me and they say all is looking well! The nurses and everyone in cardiac care have been fantastic and now it's on the road to recovery. I wish everyone the very best with their upcoming surgeries and I hope and trust your experience will be as positive as mine was this past week!
Marcia Mcgregor My surgery is on the 8th. It is encouraging to me to hear you say you had a positive experience
Laurie Baglio Hi James! We went in on Monday together and we were both discharged today. I can't believe how many p ... Read more
Laurie Baglio Hi James! We went in on Monday together and we were both discharged today. I can't believe how many prescriptions I came home with.
I'm glad things went well. They did for me as well. Keep in touch and let us know how you are healing.
Don Catoe Congratulations, I'm hoping to be right behind you but I am still in ICU today day. Take good care
Sue Sanchez Grela James, thank you for your update and I pray your recovery goes smoothly!
Barbara Wood Great news- best wishes to you & Laurie too:)
James Johnson To everyone, "thanks" for your comments and support. This is no cakewalk by any means, but we someti ... Read more
James Johnson To everyone, "thanks" for your comments and support. This is no cakewalk by any means, but we sometimes in life have to go through the pain and suffering to get to the good things in this life! For those with upcoming surgeries, be positive, think good thoughts and remember it's either "git r' dun" or the alternative lies six feet under!
That's the "Cracked Chest Club"! I just realized I'll be a member and can proudly show off my cracked chest scar to the guys!
Laurie Baglio Haha!! At least you'll be able to show your scar off. How are you feeling? It's almost 7pm here. Bag ... Read more
Laurie Baglio Haha!! At least you'll be able to show your scar off. How are you feeling? It's almost 7pm here. Bag packed, Just finished dinner and will be showering with the special soap a little later. Did your doctor give you anything to sleep tonight?
James Johnson Hi Laurie & Robert! yep, have finished packing, taking my pre-op nasal antibiotic, showered with the ... Read more
James Johnson Hi Laurie & Robert! yep, have finished packing, taking my pre-op nasal antibiotic, showered with the surgical soap (one more time in the morning before leaving) plus the suppository to evacuate the bowels. I'm really going to miss my midnight bowl of cereal--last meal at 6pm was my home-made chicken noodle soup, so I've eaten light meals today to prevent any indigestion problems. Well, here we go, not too fast and not too slow!
Tina Maroon Hope all goes well with your surgery. The Cracked Chest Club is a club I wished I didn't belong to. M ... Read more
Tina Maroon Hope all goes well with your surgery. The Cracked Chest Club is a club I wished I didn't belong to. My sternum hurts me every day of my life. Its been 17 months since my surgery.
Matthew Russo Sending positive thoughts your way James.
Phyllis Petersen It's a little awkward as a woman to show off my side scar. I hope your surgery is going well and that ... Read more
Phyllis Petersen It's a little awkward as a woman to show off my side scar. I hope your surgery is going well and that you have an easy recovery.
Hello Everyone! thanks for the prayers and support! 2marO's the big day for not only myself but for others as well with pending surgeries! Let me say I wish ...Read more
Hello Everyone! thanks for the prayers and support! 2marO's the big day for not only myself but for others as well with pending surgeries! Let me say I wish everyone the very best and Godspeed to one and all! And Adam thanks again for the book, the website and all of this much needed info!!!
James Johnson Kim, thanks for your best wishes! Looks like a handful of us with surgeries for the next couple of d ... Read more
James Johnson Kim, thanks for your best wishes! Looks like a handful of us with surgeries for the next couple of days, so again, I wish everyone the very best---and as Jackie Gleason would say, "and away we go"!
Kim Jones Yes, the time has come. Feel better soon.
Good morning everyone! are there any stats on what percentage of our general population have a bicuspid aortic valve versus the tricuspid aortic valve and ...Read more
Good morning everyone! are there any stats on what percentage of our general population have a bicuspid aortic valve versus the tricuspid aortic valve and also, is there any research on a possible bio-prosthetic bicuspid valve replacement that can be inserted by TAVR?
Civita Fahey Hi James, I was told that about 2% of the population has a bicuspid valve. its the most common geneti ... Read more
Civita Fahey Hi James, I was told that about 2% of the population has a bicuspid valve. its the most common genetic heart defect. I'm not sure what you mean by your second question. so hope this helps.
Phyllis Petersen From what I've read, TAVR is still only available for people who's health would prevent them from hav ... Read more
Phyllis Petersen From what I've read, TAVR is still only available for people who's health would prevent them from having OHS.
James Johnson Hi Civita and Phyllis! I guess I was hoping to find a way to have this valve procedure done without ... Read more
James Johnson Hi Civita and Phyllis! I guess I was hoping to find a way to have this valve procedure done without having to crack my chest, but I guess it's not possible and I was hoping someone had designed/invented by now a bio-prosthetic bicuspid valve to be used in a TAVR procedure. Apparently science and technology haven't advanced that far yet, so OHS here we go, not too fast and not too slow!
Civita Fahey At this point, those of us who need to have it replaced, will have to have some invasion of the chest ... Read more
Civita Fahey At this point, those of us who need to have it replaced, will have to have some invasion of the chest wall, hopefully a mini sternotomy, but, as I have been told over and over again, this is a routine procedure, low risk.. (to them).. We still will have to put our faith in them(surgical team).. As you can see by the many, many successful stories here on the site, whether its a full sternotomy or mini, everyone does really well.. do you know when you are having surgery? I am scheduling after the new year and planning on early April.. This site has relieved my anxieties and fear over this procedure so much in the past few months.. I can't express how valuable its been for me.. Thank you Adam Pick.. I read daily success stories and event those that have some complications in the end do well.. I hope I can soon be a success story and I'm sure you'll be too.
Cathleen Weed Hi 🤓 I had TAVR last year to replace a bioprosthetic bovine valve from a previous OHS 11 years pri ... Read more
Cathleen Weed Hi 🤓 I had TAVR last year to replace a bioprosthetic bovine valve from a previous OHS 11 years prior. My native valve was a bicuspid. You'll have to have OHS this time but if you need another replacement down the road I'm sure it will be TAVR 🌟
James Johnson Hi Cathleen! thanks for the info as my valve replacement is also a bio-prosthetic bovine valve and I ... Read more
James Johnson Hi Cathleen! thanks for the info as my valve replacement is also a bio-prosthetic bovine valve and I was told it would be good for 10 to 12 years, so I reckon a TAVR is somewhere in my future! Loved the movie you recommended!
I am meeting with my surgery team leader on Dec. 30th to discuss my open heart surgery to replace my aortic valve and I am trying to ascertain why I do not ...Read more
I am meeting with my surgery team leader on Dec. 30th to discuss my open heart surgery to replace my aortic valve and I am trying to ascertain why I do not qualify for the TAVR procedure. I was told by the cardiologist that oversaw my heart cath ten days ago that at 67 I am too young and that I am in too good of health and I have no other medical conditions that would preclude me from having open heart surgery. However, I have a pseudo-aneurysm in the right ICA at C1 as the result from an accident nearly two years ago and I also have a herniated umbilical cord in my abdomen, so my questions is this; would these conditions not qualify me for TAVR? thanks!
Civita Fahey I was told that a TAVR right now is for high risk patients (ones that normally would not make it thro ... Read more
Civita Fahey I was told that a TAVR right now is for high risk patients (ones that normally would not make it through surgery or have high risk conditions), they have been doing TAVRs on moderate risk patients and are starting some trials on low risk patients. In the hospital I will be going to (Brigham and Women in Boston) I was told I was not a candidate since having a bicuspid valve. They are trialing low risk aortic stenosis patients but not with bicuspid valve. Its all the info I have.. I am a candidate for a mini sternotomy so, I'll go with that.
James Johnson Hi Civita! thanks for the reply and info and I will bring up the mini sternotomy procedure with my s ... Read more
James Johnson Hi Civita! thanks for the reply and info and I will bring up the mini sternotomy procedure with my surgeon. I did remember my cardiologist mentioning my bicuspid valve and that they don't have anything to replace it with, so your mentioning jogged my memory, so I guess TAVR is out of the question, but I'll see what he says about a mini sternotomy. thanks again!!!!!
Civita Fahey it is for now.. but, it will be the gold standard in about 5 years.. Good luck and let us know what y ... Read more
Civita Fahey it is for now.. but, it will be the gold standard in about 5 years.. Good luck and let us know what you find out.
Rita Savelis You are young and healthy so you can withstand OHS, which is a safe procedure.
I'm sorry that you ha ... Read more
Rita Savelis You are young and healthy so you can withstand OHS, which is a safe procedure.
I'm sorry that you have to go through any kind of heart surgery, though. It's tough. But I wish you the best.
James Johnson Hi Rita! thanks for the note and your confidence in OHS. I'm not that confident about this whole thi ... Read more
James Johnson Hi Rita! thanks for the note and your confidence in OHS. I'm not that confident about this whole thing, but hopefully I will get to that point mentally before having my chest cracked open.
susan kotansky They say in the near future TAVR will be the way to go but for now it's just for those who cannot tol ... Read more
susan kotansky They say in the near future TAVR will be the way to go but for now it's just for those who cannot tolerate surgery. you're lucky you can have surgery as it seems it's much safer. You can research this and reassure yourself. The surgery isn't exactly a party but is routine and here I am a year past and feel amazing. You will too!!!!!
Great guidebook! Am using this book to prep for my upcoming surgery-my sister, an RN for nearly 35 years, agreed it's the best guidebook she has seen on this ...Read more
Great guidebook! Am using this book to prep for my upcoming surgery-my sister, an RN for nearly 35 years, agreed it's the best guidebook she has seen on this subject. Many thanks to Adam Pick for writing this book and helping me to prepare for this major surgery!
Adam Pick Whoa James! Thanks so much for the kind words! You just made my day! :)
Bob Brehm I second the recommendation. Book and all the website videos were also helpful in understanding the ... Read more
Bob Brehm I second the recommendation. Book and all the website videos were also helpful in understanding the options and expectations of the typical patient. Now if it would help with my spelling.....
James Johnson YEP! I forgot to mention the helpful videos and this excellent website for researching the different ... Read more
James Johnson YEP! I forgot to mention the helpful videos and this excellent website for researching the different aspects to open heart surgery!
Thank you for sharing.