Today is 2 weeks post op from my open heart mitral valve replacement. I am feeling pretty darn good. Still annoying pain on right side of chest, but it's tolerable. ...Read more
Today is 2 weeks post op from my open heart mitral valve replacement. I am feeling pretty darn good. Still annoying pain on right side of chest, but it's tolerable. Yesterday was my last day of water pills so of course I am rattling quite a bit in my lungs, yea.
I am walking 3/4 of a mile each time wheather I feel like going or not. I am constantly blown away by how much better I feel. Compared to the first week, this second week was great, I am looking forward to the next week's to come.
If you are about to go in for surgery please know you are going to feel so much better, the first week is tough but, be patient and listen to your body and the doctors. Life is beautiful!
Sue Sanchez Grela Thank you Kim for sharing your experiences! I met with my surgeon yesterday and I was so prepared fo ... Read more
Sue Sanchez Grela Thank you Kim for sharing your experiences! I met with my surgeon yesterday and I was so prepared for what was discussed thanks to you and everyone. I will soon start my journal.
Kim Jones It's still scary, but inevitable...the morning of I woke up in peace took a shower and did what I had ... Read more
Kim Jones It's still scary, but inevitable...the morning of I woke up in peace took a shower and did what I had to do. I am lucky that I have had so much help. Did you get a date?
Linda Richards I had minmal invasive ... coming up on one year March 3.
I have been lucky, I feel as if I am healing faster than I thought I would. Having said that I have developed a new pain, 3 days ago. It starts at my sternum ...Read more
I have been lucky, I feel as if I am healing faster than I thought I would. Having said that I have developed a new pain, 3 days ago. It starts at my sternum and runs to my arm pit, under my right breast. Nothing makes it go away. I am gonna try to get in the surgeons office in the morning, just to put my mind at ease. Any of my fellow cracked chest people experience the same? Hurts to extend my right arm and sometimes I feel ribs shifting as I grab for a deep breath which also hurts. Pain while breathing is expected .
Catie B It sounds like this pain is really tough and is holding onto you. I'm glad you're getting checked and ... Read more
Catie B It sounds like this pain is really tough and is holding onto you. I'm glad you're getting checked and hope things are ok.
I had a horrible pain deep inside, a little to the left of my right armpit and extending my arm and moving it left and right or reaching for things could be excruciating. But mine was intermittent, I was told it was normal and it stopped after a few weeks.
Emily Rowley Yes, it is not nice at all, I had alot of wind trapped there from Surgery.
Michael McMullen Yes Kim, I have pain on right side, around the arm pit and wrapping around to my scapula muscle group ... Read more
Michael McMullen Yes Kim, I have pain on right side, around the arm pit and wrapping around to my scapula muscle group to mid back. ...muscles spasms!@#$% ...and same with me on extending of right arm...ugh I see surgeon tomorrow for post op follow-up.
Kim Jones Ok. Sorry, not sorry that I am not the only one. I called the surgeons office this morning, they just ... Read more
Kim Jones Ok. Sorry, not sorry that I am not the only one. I called the surgeons office this morning, they just told me to increase meds and I switched to Advil as well. It is helping, thank God. I really am sorry any of us have pain but it really beats the alternative. I was lucky apparently that I didn't drop dead already. I would like to know what the surgeon says tomorrow Michael. Great job by the way on all the mileage you are putting on. I am excited to have made it around the block 2times today. One more walk when it cools down this evening, it's 80Β° here today.
Michael McMullen Thats awesome Kim on the two blocks...how I started too...and glad the weather is cooperating. I als ... Read more
Michael McMullen Thats awesome Kim on the two blocks...how I started too...and glad the weather is cooperating. I also had to increase med intake, unfortunately, like you say better than the alternative though. ...my PCP suggests chest xray...but want to see what surgeon says. This too shall pass :-D
Kim Jones Yes it will Michael. I spoke with a friend tonight that had his OHS 35 years ago and he remembered th ... Read more
Kim Jones Yes it will Michael. I spoke with a friend tonight that had his OHS 35 years ago and he remembered th right side pain. He also was not fortunate to have the good wire for his sternum and has to adjust his from time to time manually. Good luck tomorrow, hoping it is a simple albeit annoying hiccup.
Hey. I am still a little loopy.please excuse my writing. Went in have mitral valve repair but when they got in they couldn't repair and replaced with a pig, ...Read more
Hey. I am still a little loopy.please excuse my writing. Went in have mitral valve repair but when they got in they couldn't repair and replaced with a pig, oink. It's been almost 6 days and I hurt without meds at the incision site( open heart). I was in from Wednesday 1,2017 until February 6. It's scary, and you will hurt, just remember to breath. I remember waking from all the crazy dreams I was having,thinking i would be there forever or th inking this wasnt, couldn't be MY life. You have to get your ass up and walk. As soon as the chest tubes come out, which didn't hurt me, you will feel so much better. The chest tubes hurt in, not taking them out My legs were so tired even though I felt in good shape. You can do this my friends, not gonna lie, it hurts, don't give up please.
Emily Rowley It's so great to hear an update from you. Whoa, alot more, so are you on any blood thinners? Try to t ... Read more
Emily Rowley It's so great to hear an update from you. Whoa, alot more, so are you on any blood thinners? Try to take each step slowly as it comes-I know they push you to get up which isn't nice at the time but helps alot with starting our recoveries. You are still in my thoughts hun xoxo Take care π
Rita Savelis Of course you are still loopy after only a few days. I'm sorry you couldn't get a repair and instead ... Read more
Rita Savelis Of course you are still loopy after only a few days. I'm sorry you couldn't get a repair and instead got a surprise replacement valve. I hear you on waking up from surgery and facing those first days. It hurts or there is major discomfort... But you are able to update which is great and something I did not feel like doing for weeks.
Take care.
Catie B I hope you start to feel less pain soon, Kim. It's a tough battle early on. Congratulations on getti ... Read more
Catie B I hope you start to feel less pain soon, Kim. It's a tough battle early on. Congratulations on getting through your surgery--it'll keep getting better, you'll keep getting stronger.
Heath Larner Thanks for the update. The progress for me seemed to be weekly. Literally every seven days I seemed ... Read more
Heath Larner Thanks for the update. The progress for me seemed to be weekly. Literally every seven days I seemed to have a 10-15% jump in strength and stamina. Keep walking and eating. You'll get there soon!
Kim Jones Thanks y'all. Incredibly tired. Much love to y'all, gonna take a nap.
Civita Fahey Good to hear all is going well.. keep up the good work
Phyllis Petersen It's good to hear from you Kim. Now, onto recovery!
Alina FH Welcome to the other side, Kim! May you have a speedy recovery!
Kim Jones What about water weight? I have15-20#at least. How long will I be blessed with this side effect?
Kim Jones Thanks for the responses, glad to have made it over to this side.
Rita Savelis The water weight will drop off as your heart begins to pump more efficiently. I imagine you are alrea ... Read more
Rita Savelis The water weight will drop off as your heart begins to pump more efficiently. I imagine you are already on some sort of diuretic pill for at least a few days/weeks...?
I lost a lot of weight in hospital after surgery, but there was still that odd tire of water around my middle and swollen ankles...
Yikes! Is this my body??
It does get better. Take care.
Kim Jones Rita, so far I have lost 21lbs, no more diuretics for me, I was starting to get headaches so I think ... Read more
Kim Jones Rita, so far I have lost 21lbs, no more diuretics for me, I was starting to get headaches so I think it's good.
Tomorrow is my last day to prepare. I stayed busy todaycleaning,planting,grocery shopping and cooking. I feel like I am crawling out of my skin. I pray for ...Read more
Tomorrow is my last day to prepare. I stayed busy todaycleaning,planting,grocery shopping and cooking. I feel like I am crawling out of my skin. I pray for peace of mind and health for all of us. I remember feeling this way in labor with my first child and how during the end stages wondering what the hell we had done. The prize was a beautiful new life, now we have 2. I can't wait to wake up to another beautiful new life. Thoughts and prayers for all!
Phyllis Petersen Of course you're stressed! You're going for heart surgery. Take some time tomorrow and do something f ... Read more
Phyllis Petersen Of course you're stressed! You're going for heart surgery. Take some time tomorrow and do something fun, even if it's just a special dinner before you have to stop eating. All the best for a successful surgery and an uneventful recovery!
Lisa Giaccone Good luck Kim! I wish you the best and most speedy recovery. I am awaiting my mom's on Feb 22. Ple ... Read more
Lisa Giaccone Good luck Kim! I wish you the best and most speedy recovery. I am awaiting my mom's on Feb 22. Please post how things are going in the next couple of weeks.
Kim Jones Phyllis, my parents will be here soon, I have lost 7 lbs in a week. I foresee cards and family time t ... Read more
Kim Jones Phyllis, my parents will be here soon, I have lost 7 lbs in a week. I foresee cards and family time tomorrow.
Lisa, I will post. My grandmother had her first quadruple bypass at 74 and had the same again 4 years later. She was full of spunk and lived well into her 80's.
Ron Broadhead Best wishes to you. You have a wonderful attitude. All will be fine, and beautiful.
Kim Jones Thanks Ron, I am trying to look past my fear, it gets harder the closer I get. All will be well, and ... Read more
Kim Jones Thanks Ron, I am trying to look past my fear, it gets harder the closer I get. All will be well, and I am excited to have my energy back.
So many emotions...I really can't wait to have this over and done. It's really wonderful to have this place to come to where I know others are dealing with ...Read more
So many emotions...I really can't wait to have this over and done. It's really wonderful to have this place to come to where I know others are dealing with or have dealt with the same feelings. I have family coming tomorrow, my parents. Can't wait to get a hug. Good luck to all of you going in soon, I hope you all have a fast recovery and wonderful results.
To all that have had open heart....how is it doing simple tasks, showering,brushing hair, using the toilet? I just cut 10" off my hair anticipating I may not ...Read more
To all that have had open heart....how is it doing simple tasks, showering,brushing hair, using the toilet? I just cut 10" off my hair anticipating I may not feel like brushing my hair.
Clare Auten I really don't remember too clearly the early days in the hospital. I do know when I got home, I did ... Read more
Clare Auten I really don't remember too clearly the early days in the hospital. I do know when I got home, I did all those things alone. They were tirinf. Taking a shower might mean taking a little nap, etc. My husband went back to work on day 12. My four year old and I were home alone while the other kids were at school. We managed to take care of each other. We got breakfast, lunch, loaded the dishwasher etc.
Kim Jones Thank you. Just thinking about getting back to normal
Alina FH Kim, using the toilet is a bit tricky in the first couple of weeks, because you have trouble twisting ... Read more
Alina FH Kim, using the toilet is a bit tricky in the first couple of weeks, because you have trouble twisting. Your range of motion is limited, so cleaning up is a bit tough. Showering is ok, you can buy a medical chair and sit if you feel like you tire easily. I did not sit on mine, but I used it to rest my legs while shaving them. Now, washing and moussing my hair was THE absolute most taxing chore during my recovery for about a month or so. I had to take a 2-3 hour nap after washing my hear, it would tire me up sooo much. I have medium length hair, too, and very thick and curly. Second to washing my hair, climbing stairs was another thing that made me very tired. Another easy chore that was difficult for me was putting shoes or socks on - my husband did that for about a month, too. I could not easily bend over. Good luck.
Meredith Bray Surgery on Wednesday, home on Sunday. Sunday evening I sat on my shower chair and my husband held the ... Read more
Meredith Bray Surgery on Wednesday, home on Sunday. Sunday evening I sat on my shower chair and my husband held the shower head for me. I did everything myself - very slowly! And then I took a nap. I have short hair and can let it air dry. I don't think I styled it for several weeks. Pro Tip: Get a hair cut and shave your legs before surgery. If you wax facial hair, do that too. I found that my hair and nails did not grow for about 5 weeks after surgery. It was GREAT!
Meredith
Rita Savelis I second everything already said. Small tasks can wear you out, so you do them and take a rest. Or yo ... Read more
Rita Savelis I second everything already said. Small tasks can wear you out, so you do them and take a rest. Or you put them off for another day. I tied my hair back and let it be for a few weeks. I took sponge baths sitting down.
Kim Jones Awesome info y'all. Glad. I cut my hair off then. I guess I need to find a booty bottle like they giv ... Read more
Kim Jones Awesome info y'all. Glad. I cut my hair off then. I guess I need to find a booty bottle like they give you after childbirth. 3days left and my allergies are kicking in. Down here in Florida the spring flowering trees are blooming. Beautiful but ugh to my nose and chest, don't want to postpone this surgery.
Cathleen Weed You'll be tired but try to get back to normal as soon as possible even though it's uncomfortable. Wal ... Read more
Cathleen Weed You'll be tired but try to get back to normal as soon as possible even though it's uncomfortable. Walking is SUPER important. Rest a lot too but also get out of bed and move about β€οΈ Best wishes! π
Emily Rowley Quite easy, the hair brushing might be uncomfortable with reaching-I cut mine too and it was so much ... Read more
Emily Rowley Quite easy, the hair brushing might be uncomfortable with reaching-I cut mine too and it was so much easier to care for! Showering and washing hair and going the toilet were hard for sometime especially as feeling off balance on my feet. The Nurses will hopefully help you with these tasks until you feel ready to try on your own. I am guessing you haven't gone through menopause (forgive if I am wrong), in this case surgery onsets menstrual cycle therefore loads of pads-I just used uncomfortable unisex Hospital ones (one Nurse bought some from the local pharmacy for me), this is another reason why I stayed in Hospital gown+Hospital disposable undies (they placed a 'bluey' sheet on my chair due to leaking out). Sorry this doesn't sound nice or advertsing. Soon you will be back on your feet π
Kim Jones Hey Emily, I had no clue about that part. Some days I wish I had no uterus but alas it still does its ... Read more
Kim Jones Hey Emily, I had no clue about that part. Some days I wish I had no uterus but alas it still does its thing, just had the factory shut down. ;) Thanks for that tid bit of info. I have had 2 kids completely natural so that is a battle fought as far as disposable mesh undies and all the wonderful things that follow. π
After years of dealing with undiagnosed mitral valve prolapse and regurgitation I am having open heart valve repair Feb.1 2017. I am a little apprehensive and ...Read more
After years of dealing with undiagnosed mitral valve prolapse and regurgitation I am having open heart valve repair Feb.1 2017. I am a little apprehensive and excited to feel better soon.
Ben Hyman Good luck on your Mitral Valve journey. I'm having my Mitral Valve repaired robotically at Mayo Roch ... Read more
Ben Hyman Good luck on your Mitral Valve journey. I'm having my Mitral Valve repaired robotically at Mayo Rochester in March
Kim Jones Good luck to you as well. I am sure the wait is hard for you. I have had a 12 days notice and am read ... Read more
Kim Jones Good luck to you as well. I am sure the wait is hard for you. I have had a 12 days notice and am ready to get it over and done with.
Charlene Lanigan Good luck! I'm having the same surgery on February 7th! It is a little nerve wracking to know so fa ... Read more
Charlene Lanigan Good luck! I'm having the same surgery on February 7th! It is a little nerve wracking to know so far ahead when the date is but I also am excited to just know I'll feel better and not worry so much.
Marcia Mcgregor I found out three weeks ago I have a problem, and I have been through the tests and will see my surge ... Read more
Marcia Mcgregor I found out three weeks ago I have a problem, and I have been through the tests and will see my surgeon Feb. 1st. I understand my surgery should be with in a couple of weeks of that appointment. I look forward to reading how your surgery goes. I feel as you do, not looking forward to surgery but I am looking forward to feeling better.
Kathy Blank Kim- you are a week ahead of me so I look forward to hearing about your recovery and progress! Stay ... Read more
Kathy Blank Kim- you are a week ahead of me so I look forward to hearing about your recovery and progress! Stay strong!
Kim Jones Thanks y'all. I am told I have a fantastic surgeon. Feeling anxious today until I read the messages h ... Read more
Kim Jones Thanks y'all. I am told I have a fantastic surgeon. Feeling anxious today until I read the messages here. I will try and post as soon as I can. Good luck to you all as well.
Kim Jones Linda, I am in the Gainesville area. The surgeon I have just moved over from UF health which was Shan ... Read more
Kim Jones Linda, I am in the Gainesville area. The surgeon I have just moved over from UF health which was Shands. It takes me 25 minutes to get to the hospital. I'm very fortunate to live in such a fantastic area with fantastic doctors and surgeons.
Dwight Miller Prayers being sent, you will be fine. You are part of this support team that provides strength and kn ... Read more
Dwight Miller Prayers being sent, you will be fine. You are part of this support team that provides strength and knowledge.