Hi all, been awhile since I last posted. I had aortic valve replacement (went with bovine) and aortic aneurysm repair in July 2019. I had a decent recovery and was even doing some jogging this July and August. However gradually I've been having more and more incidences of atrial flutter. The most recent required a shot of adenosine for cardioversion. When I had my surgery I opted NOT to get the MAZE procedure because I'd not really suffered from arrhythmia and my surgeon was okay with that decision. Now I'm probably looking at cardiac ablation for the atrial flutter. Has anyone else had the issue and did this procedure help you? I'll admit I'm a bit discouraged by this as I was just hoping to continue to get better and stronger.
Well here I am at 4 weeks and a couple of days post surgery (aortic valve replacement/aortic aneurysm repair). I walk about 30 minutes a day, which is what they told me to do prior to cardiac rehab which starts in a couple of weeks. Still on amiodarone and metoprolol (when I can take it because often my blood pressure is too low). Still feel that I have very little energy and still have a lot of achiness in my chest. I've had some very good days in which I probably overdid but I seem to be having a short run of not so good days this week. It sure gets discouraging at times and it's hard to be patient waiting for things to improve. I wonder how much the drugs I'm taking are keeping me down. Did anyone else notice things improved a great deal once off the drugs? Thanks for listening/reading my post.
Hi all, I'm coming up on 3 weeks post surgery for aortic valve replacement, aortic aneurysm repair and left atrial appendage clip surgery. Surgery went well and recovery seems on schedule except I've had some incidences of atrial fibrillation - one 12 hr episode while still in ICU and then 3 shorter episodes once I've gotten home. The episodes at home resolved on their own, 5 to 15 minutes after they started. I'm taking Metoprolol, Amiodarone and Coumadin. I would love some encouragement that this is only temporary and will get better, as the a-fib frightens me because it seems completely out of my control. If you've "been there, done that", I'd love some encouraging words. Thanks so much.
Could anyone who has had an aortic valve replacement (with or without aortic aneurysm repair) comment on whether or not their surgeon recommended and performed Left Atrial Appendage ablation? I am having a MAZE procedure to help prevent the possibility of Afib post-surgery and the LAA ablation is also recommended. To me, it seems like "overkill" but maybe this is more commonly done than I know. Thanks in advance.
Did you ever feel before surgery like you really just couldn't go through with it or couldn't handle it? I just have to put that out there. This discussion board is filled with so much "you got this" and "it will all go well" and "be informed" etc. and I try to take some of that in, but when I look at diagrams of how many pieces of equipment one is hooked up to after the surgery and what the actual surgery entails, I find it t.e.r.r.i.f.y.i.n.g. to the point where I just want to... I don't know... there's no where to run. I have a master's degree in the sciences and had anatomy, biochemistry, physiology in undergraduate, so I mentally understand but am in panic at times while I wait to meet with the surgeon. All my life as I moved around quite a bit, various cardiologists always told me, you want to have this done at the Cleveland Clinic if you ever need to have it done. Now that the time has come, despite picking out a surgeon there, Cleveland Clinic is not in my health insurance plan (though we thought it was when we bought the insurance - enough misleading information on the insurance website for a legal case but that's another story...) So I am trying to use my local hospital that is "in plan". A couple of weeks ago knowing my mental state could be better, I asked my PCP (primary care physician) for an antidepressant in an effort to try and be proactive in advance of this surgery. However, once I had an RX for Celaxa in hand I've never taken it because I researched the effects of this drug on the electrochemical effects of the heart. I already suffer from infrequent supraventricular tachycardia, so I don't think it's a great idea to be downing Celexa at this time and possibly alter the electrochemisty of my heart. I asked my PCP for a support group for this type of surgery, she didn't know of any, but recommended that I ask my surgeon. So, there is just very little "handholding" help in this medical system and I am trying to watch out for myself as best I can because I just don't feel like there is anyone I've met so far (PCP or cardiologist) that has "got my back". If the surgeon I meet with in a week from now doesn't give me some degree of confidence, I really will be at the end of my rope. I don't know how medical access if for all of you but even to get an appointment with my PCP or cardiologist takes weeks.
How did you find your surgeon? I can't seem to find one. The ones listed on this website in my area are not in my insurance plan. There are no hospitals that specialize in heart valve surgery in my state other than Cleveland Clinic - also NOT in network in my health insurance. My cardiologist says he knows some surgeons that may do this type of surgery but I'm still waiting for him to suggest specific names.
So last week my cardiologist's office called to let me know that all my test results had been faxed to my prospective surgeon at the Cleveland Clinic. Called Cleveland Clinic on Tuesday of this was but was told it was too soon for anything to have happened. Contacted Cleveland Clinic again today only to find that they had received nothing and only as of today are now working with my cardiologist's office to get my records. So now I'm looking at another 7 to 10 days wait before I even hear a prospective treatment plan. Are these kind of problems common? Since I really don't know how this is all supposed to work, it makes it difficult for me to "micro manage" what is supposed to happen. I just hope I don't have to order my own Inspira valve off of Amazon!