Patient Stories Blog - Page 4

By Adam Pick

Would Alan Play Hockey Again After Heart Surgery?

By Adam Pick on March 21, 2018

His passion was hockey.  His diagnosis was severe heart valve disease.  His fear… Never playing hockey again.

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John’s Photos Go Viral With 5,300 Facebook Likes!

By Adam Pick on October 24, 2017

The power of our patient community never ceases to amaze me. You guys and gals are simply amazing!!!

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Barry’s Patient Advice: Find The Best Heart Surgeon for You!

By Adam Pick on October 1, 2017

I have to congratulate Barry for being his own… best… patient advocate.

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What Happened When 60 Patients & Caregivers Met for “Patient Day 2017” at Edwards Lifesciences?

By Adam Pick on June 7, 2017

Something special recently happened. More than 60 patients and their care partners traveled to Edwards Lifesciences, a leading heart valve manufacturer in Irvine, California, to meet each other, to share their stories and to inspire action within our community – the heart valve patient community.

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Jimmy Kimmel Opens Up About His Newborn Son’s Heart Valve Surgery

By Adam Pick on May 4, 2017

As a dad… As a heart valve patient… I need to say “Thank You!” to Jimmy Kimmel for sharing this emotional and inspirational story about Billy, his newborn son.

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A First… We’re On Boomer TV! Thanks Steve!

By Adam Pick on March 30, 2017

This is completely unexpected and amazing! Our website was just mentioned in an interview with Steve Nicklin, a heart valve patient from Washington DC, who had successful surgery with Dr. Marc Gerdisch in Indiana. (So you know, Dr. Gerdisch has treated many patients from our community.)

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At the Marathon Finish Line, Phil Held This Up!

By Adam Pick on December 9, 2016

A BIG question patients ask me prior to heart valve surgery is, “Will I be able to do the things I love after surgery?”

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What Happened When 100 Patients & Caregivers Met for “Patient Day 2016” at Edwards Lifesciences?

By Adam Pick on August 25, 2016

Something special recently happened. More than 100 patients and their care partners traveled to Edwards Lifesciences, a leading heart valve manufacturer in Irvine, California, to meet each other, to share their stories and to inspire action within our community – the heart valve patient community.

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Leilani is a Heart Warrior Princess!

By Adam Pick on May 24, 2016

How would you react if you learned that your unborn child was suffering from a life-threatening disease known as hypoplastic left heart syndrome? What would you do? Who would you turn to?

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From Immediate Bed Rest to a “Valve-in-Valve” Procedure, This Is Jesse’s Story

By Adam Pick on March 18, 2016

Jesse had been put on immediate bed rest. Jesse had not one… But, two heart surgeries. Then, he needed a third. Jesse learned of a new technology known as a “Valve-in-Valve” procedure that was in clinical trials. This is his story.

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Chicago Bulls Coach, Fred Hoiberg, Opens Up About His Heart Valve Surgery

By Adam Pick on January 13, 2016

Imagine your childhood dream of becoming a professional basketball player has come true. Imagine you are leading the NBA in 3-point shooting. Imagine you are in the prime of your career. Then… Imagine you are unexpectedly diagnosed with a life-threatening aortic aneurysm due to a bicuspid aortic valve.

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At Edwards Lifesciences Patient Day 2015, Stewart Gully Can’t Hold Back Tears of Joy!

By Adam Pick on November 17, 2015

At Edwards Lifesciences Patient Day 2015, Stewart Gully can’t hold back tears of joy, thankfulness and appreciation.

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At 14,505 Feet, Dave is a Mountain of Inspiration!

By Adam Pick on September 22, 2015

A man. A bicuspid aortic valve. A heart valve surgery. A mountain of inspiration.

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What Happened When 100 Heart Valve Patients & Caregivers Met for “Patient Day” at Edwards Lifesciences?

By Adam Pick on September 2, 2015

When I started this website nine years ago, I had a dream. My dream was that someday heart valve patients would connect in real-time to share their experiences as a community.

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Patient Week Finale: In the Dominican Republic, Dionicio Gets a “Second Chance” at Life!

By Adam Pick on July 19, 2015

We’re excited to wrap up our first “Patient Success Week” with a story of hope!

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Patient Success Week: Thanks to Her Dad’s Memory, Sophie Got the Screening & Treatment She Needed!

By Adam Pick on July 18, 2015

After the unfortunate loss of her dad to a heart attack, Sophie Marsh decided it was time to see a cardiologist for a heart disease screening. The test results surprised Sophie, Geoff, her husband, and their two daughters.

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Patient Success Week: After Fainting & Aortic Valve Surgery, Laurence Gets Back to Pick-Up Basketball

By Adam Pick on July 17, 2015

As “2015 Patient Success Week” continues, I think it’s a great time to address an important symptom of heart valve disease — fainting. Needless to say, fainting can be very dangerous and very indicative of valvular disorders that have progressed to severe status. Several patients in our community, including Randy Heimerl, experienced this dislocating symptom.

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Patient Success Week: Tammy Pilcher & Cris Dykeman, Our Community Rockstars!

By Adam Pick on July 16, 2015

I’ll admit it. I love our community. I love seeing patients inspire each other. I love seeing patients educate each other. And, I loooooooooove when patients use the community in ways that I never imagined.

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