MV is shredding my red blood cells, back under the knife on
Journal posted on June 23, 2018
Had a mitral valve repair on 4/5/18, not quite 3 months ago. Looks like a stitch came lose creating a tiny hole in the valve. Because the hole is so small the red blood cells being pumped through it are actually getting ripped apart. It is called hemolytic anemia after mitral valve repair. Have been in the hospital since Wednesday severely anemic and receiving transfusions. A regular echo and then a trans esophageal one (TEE) confirmed the dx yesterday. Have another open heart on Monday,less than 3 months from the last to try and fix it. Can't believe I am having this done again. Just came off of weight restrictions from the first surgery!
Almost 3 months post mitral valve repair. Been feeling easily fatigued and noticed that my urine was quite dark. On Monday it looked like Coca Cola ! Jump to the conclusion, I have a severe hemolytic anemia. My red cells are being destroyed. In the hospital now and everyone is pointing their fingers at the other service cardia surgery says it is a cardiology issue or maybe a hematology issue. Anyone have this happen to them?
I am 5 weeks post OHS for a mitral valve repair. I got AFib about a week after I was discharged so am also on warfarin now. I was feeling continued shortness of breath so when I had my post op visit with my cardiologist he ordered a stress echo and put me on an event monitor. He also saw changes in my EKG from immediately post op to the readmission for the AFib a week later that wasn't just the AFIB. The stress echo showed worse cardiac function than preop although the repaired valve was working great. He thinks I ruptured some plaque in one of my coronary arteries which was 50% blocked and this caused a heart attack at some point while I was home between admissions. This is so depressing. My EF is down to 37-40 where it was 60 immediately after the valve surgery. Anyone else have stories like this? My cardiologist started me on a ACE inhibitor along with the statin and beta blocker I was already on. He said that it may help the heart function improve but I am worried that I am permanently worse off than I was before surgery.
I have the ability to see a variety of things in my medical records from the hospital. I had a mitral valve repair done and they did a TEE in the OR after the repair to see how the valve was. The results post bypass say:
There is no mitral regurgitation. There is no paravalvular regurgitation.The transmitral gradients are norml. The Left ventricular function is depressed as compared to prebypass. There is no regional wall morion abnormality The ret o fthe exam is unchanged .The thoracic aorta is intact
I sent the following message and got the following answer. What does this mean? Should I be worried?
Message Date/Time: 4/30/2018 2:37 PM
Read Date/Time: 4/30/2018 3:18 PM
From: Gauthier, Amie PA
To: ROBICHAU, SUSAN G
Subject: Re: A message in my TEE report from the OR
Hi Ms. Robichau,
This is a pretty common finding for patients with mitral regurgitation. Sometimes when the valve is leaky (mitral regurgitation) the heart function might look better than it actually is before surgery. Now that the valve is fixed the heart function might appear reduced compared to previous.
From: ROBICHAU, SUSAN G
Message Date:4/27/2018 7:08 PM
Read Time: 4/30/2018 11:32 AM
The TEE done in the OR (mitral value repair) has the following statement. "The Left ventricular function is depressed as compared to prebypass." What does this mean?
I got post op AFIB about a week after my surgery. I was just discharged home Thursday afternoon. I am on metoprolol (put on after my surgery) which they significantly increased to get me out of AFIB and it worked. I came home on 75 mg 3 times a day. I feel like a total zombie. Have others had this experience? Also I had my mitral valve repaired, not replaced. Doesn't that mean that I can be on one of the newest anticoagulants rather than Coumadin??
Today is post op day 10. Tomorrow will be one week home. I keep have big extremes on how I feel. Yesterday was pretty good, I did some walking outside and actually went out to lunch (although I ate very little) it was nice to get out and feel a little normal again. I wake this morning and can barely make it from my bed to the couch. It feels like I am climbing a mountain or something. Spent the entire day on the couch. I am trying to eat and push fluids but all I really want to do is sleep. No fever, weight is the same. Thoughts?
Were those of you who had a sternotomy told that you need to ride in the back seat of the car for 4 weeks? Funny, depending on the hospital the rules are a little different. For example I was told that I could sleep in any position that I found comfortable except flat on my stomach. Others were told they needed to sleep on their backs only.
Another question. Unfortunately post op day 6 (Wednesday) I got a horrendous 24-36 hour stomach bug. They think it was norovirus. I am over that now except I get burning sensations in my hips and legs. I actually had them in my hips before the virus hit but now in my legs. It is not that painful, just strange. The burning sensation is also accompanied by a numbness.
Discharge today! Post op day 4. It was everything that I thought it would be and maybe even more. That is not a good thing. The docs, nurses, residents and midlevels (PA and NP) were all fantastic. The issue was me I think. ICU kind of freaked me because it made realize how big a deal it was to have this surgery.
Otherwise some specifics
1- had a full sternotomy
2- 2 Chords were fixed with Cortex. The valve itself looked good so no artificial valve for me. I had decided to get a tissue valve instead of the mechanical and in the end I didn't need either which I am very thankful for.
3- bad reaction to something causing a lot of nausea for almost 3 days.
4- Pump head, and/or any anesthesia can really leave you in a fog. I was no different and am still foggy. I also had a period of time where I thought I was in a hotel rather than a hospital which was really bad because I needed a hospital! Of course it was a hospital, and I got great care. Use this as a example of how your mind can be temporarily screwed up because of something involved in the surgery
I also have found that food tastes like metal, that has not gone away yet. My family and I have ordered pizza for dinner, will see if it is getting any better
I am being admitted tomorrow and having a TEE followed by a cardiac cath. The next day I am getting my mitral value repaired. I heard that they with put the cardiac catheter into my arm. (rather than groin). Anyone had this same scenario? If they use my radial artery for the cath can't they just keep it open for the arterial line that is needed for my heart surgery the following day?
January 25th 2018, a routine physical. My PCP mentions my heart murmur and I say, "What heart murmur?" Valentine's Day I get my echocardiogram and am diagnosed with severe mitral regurgitation. Fast forward and this coming Wednesday, April 4th I am being admitted to BIDMC in Boston. This is one day before my OHS. They are doing a cardiac cath and a TEE on Wednesday and fixing the valve on Thursday.
I was able to get an OR date only 2 weeks after I saw my surgeon, Dr Kamal Khabbaz, which is good. I do not think I could have managed this level of stress for any longer!
My hopes are:
That I won't die
That they don't find any other cardiac issue on the cath
That they can repair the valve and not need to replace it
That I don't end up with A Fib
That it doesn't hurt too much and they keep me VERY sedated
That the scar isn't too terrible
That I can breath better when the surgery is over
I guess there is a lot more to wish for as well! Any thoughts to help me through this would be welcome!